Hopeful @Hopesaxons
Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection Somerset, UK Joined August 2020-
Tweets115K
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Can anyone give any insight into pediatric post covid rashes? ❤️😔
Can anyone give any insight into pediatric post covid rashes? ❤️😔
Any dermatologists on here? #MedTwitter patient has been seen by various specialists, no one know what’s happening, has inflammation, muscle pain, swelling and now this skin pattern.
Any dermatologists on here? #MedTwitter patient has been seen by various specialists, no one know what’s happening, has inflammation, muscle pain, swelling and now this skin pattern.
Warnings from Yale on #SARSCoV2 infections. ⚠️
After 60 Years, Scientists Find the Missing Link in Our Body’s Blood Pressure Control #dysautonomia #POTS #MECFS #LongCovid newsroom.uvahealth.com/2021/08/03/uva…
Interested in learning more about the PANS/PANDAS IVIG study? Go to pandasppn.org/ivig-study for info and quick links.
Severe covid-19 infections linked to increased risk of schizophrenia newscientist.com/article/241025…
We're into another soup season - a messy, hard to predict wave with a half dozen competitive variants, the next generations of JN.1. They're all growing fast, it's just a question of which gets the best distribution.
This may be relevant for anyone with chronic illness / inflammation to be aware of. People often have histamine / mast cell issues in #ME & #PANS #PANDAs @Hopesaxons
This may be relevant for anyone with chronic illness / inflammation to be aware of. People often have histamine / mast cell issues in #ME & #PANS #PANDAs @Hopesaxons
Amazing Dad @neil_gilson @24HourSwim last July - the 1st person to swim the Bristol Channel. Dolphins join him for the home coming 🐬 Raising Funds & Awareness @PandasPans @StephLunch on @PackedLunchC4 last yr #FathersDay
I understand that during the #Pandemic, #LongCovid was not intuitive & foreseeable. But now it is clear that Millions of people have been suffering for over three years The #LongCovid should be at the forefront of Healthcare Agendas.
@aftab_usa Not just foreseeable but foreseen -pretty much every person with #MECFS was warning anyone who'd sit long enough to listen - as were our doctors and researchers in the field.
New pre-print out on the gut microbiome and how we might discriminate disease specific factors from common changes associated with dysbiosis. Great piece of work by Jonathan Williams. Big thank you to the Dove Clinic for providing the data. medrxiv.org/content/10.110…
Blackpool pleasure beach was one of our favourite places. I’ve not been back since you’ve been ill , but one day maybe …. I love you mate ❤️#pans #pandas #panspandas #MedTwitter
Salon: Can nasal Neosporin fight COVID? Surprising new research suggests it works A potential treatment for COVID-19 may have been hiding in our medicine cabinets, a new study in PNAS has found salon.com/2024/04/27/can…
I wrote to my MP in October 2021 warning about this (covered in the local press - see link) It’s now 2024, there’s ongoing / rising levels of chronic illness in children It’s not too late, we can act. We can prevent. #CleanAir warrington-worldwide.co.uk/2021/10/05/con…
I wrote to my MP in October 2021 warning about this (covered in the local press - see link) It’s now 2024, there’s ongoing / rising levels of chronic illness in children It’s not too late, we can act. We can prevent. #CleanAir warrington-worldwide.co.uk/2021/10/05/con…
My daughter had 15 different diagnosis at one point all sudden and overnight following #StrepA this should have been a major 🚩 and treated accordingly #PansPandasHour
My daughter had 15 different diagnosis at one point all sudden and overnight following #StrepA this should have been a major 🚩 and treated accordingly #PansPandasHour
@AndiH72 @bhanlon15 Thanks for sharing this article. Hopefully some paediatricians and neurologists might read it and accept this disease instead of sending our children to CAHMS
#PANS #PANDAS How common viruses can make the body attack the brain dailymail.co.uk/health/article…
@Szyzygy2 @Be_Kinderr Hyper mobility is a common feature in children with PANS/pandas/AE. Absolutely there is some link in immune dysregulation
Jane Bird @LindaLaHughes9
946 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Joanne Holloway @CharmingAngelCo
803 Followers 1K Following Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
PANS PANDAS UK @PandasPans
4K Followers 893 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.
Paula Scott @PaulaScottUK
990 Followers 2K Following Raising awareness of PANS PANDAS #itstimeforchange
Sarah Hughes @SHughesDr
835 Followers 976 Following
Diane Palmer @NurseDiane2020
2K Followers 2K Following NHS Director of Specialist Services (Veterans Mental Health, Trauma informed care, TRiM, Occupational Mental Health Services) Trustee of PPUK. My personal views
NB @np9000
751 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME Views my own
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Kathryn Gillett @kathryn_gillett
766 Followers 693 Following Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.
laura aylott @aylott_laura
560 Followers 1K Following Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDAS
Paula McGowan OBE. @PaulaMc007
41K Followers 12K Following •Hon Fellow Fac Health @PlymUni •The Oliver McGowan Mandatory Training •You have gone too far not to go further You have done too much not to do more •Autistic
Susannah H @firebug70
2K Followers 4K Following Mum. Carer for my son. Former English teacher. Researching #Lyme #ME #LongCovid #Pandas #Pans #believethepatient #believetheparent
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Ticcers Unite @TiccerU
557 Followers 460 Following Mental Health, Chronic Illness, & Neurodivergency Awareness
Emma McNally @EmmaJMcNally
870 Followers 860 Following Mum of 2 beautiful children 👦 👧 Campaigning with everything I have raise awareness & improve medical services for people with #tourettes CEO @tourettesaction
Dritan Agalliu @DAgalliu
2K Followers 3K Following A neuroscientist with a passion for visual & performing arts, classical & jazz music and dance in search of new adventures in NYC. Opinions are my own.
ZenAPE @zen_vibes
64 Followers 3K Following 🙏✝️⚾🦍🖍💎🚀🍄✌️🇺🇲 Believer in JESUS INFORMED DISSENT consciousness ANTI-WAR decentralization HEALTH FREEDOM cancer survivor DIAMOND HAND #AMC #APE #GME
DrAqm @draqam
312 Followers 264 Following #CBT //I am a clinical psychologist My approach is CBT Yes, a psychologist without borders...
Michelle Fleming (she.. @Michelle_Pamela
1K Followers 2K Following passionate about transforming #longtermcare | knowledge broker @CLRI_LTC @bruyerecare | 🏳️🌈#2SLGBTQI ally | #HELLP syndrome survivor | opinions my own
Dark Revival Film @DarkRevivalFilm
295 Followers 2K Following 🎞Exploring the nexus of mental health, spiritual awakening, and migrant life. #DarkRevivalFilm invites you on a journey of self-discovery and resilience. 🎥🧠✨
Jaylen Navarro @JaylenNava35826
106 Followers 3K Following
Sueli aparecida Cunha @cunha12605
238 Followers 413 Following
Elon musk @Elonmuskgw
73 Followers 1K Following private account for my friends, I can chat with anyone from here
Lyndsey @hallquist_lynds
215 Followers 3K Following
The Vigilant Fox🦊 @VigilantFox34
528 Followers 711 Following Editor-in-Chief @VigilantNews. Writer, video clipper, and pro-freedom citizen journalist with 12 years of healthcare experience. Inquires: My backup Account
Lyra @lyradoodles
4 Followers 37 Following
Melissa Mazur @PhillyPhile215
2K Followers 3K Following Just a Philly girl, livin' in a lonely world…and a Luddite learning to Twitter. #LongCovid since March 2020 || Lawyer on Pause
Sian @sep2004
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Wanja Hof @wanja_hof
109 Followers 516 Following Tech & Science enthusiast | Digital Artist, Colorist and Director | ME/CFS Advocat & Creative Director for MirameArts e.V.
Dr Katherine Fender �.. @KAFender_Oxford
1K Followers 4K Following Research Manager (#mentalillness projects) @CNGGcardiff @cardiffuni; #Romanticist @UniofOxford; #trustee @llysnini; #Editor; #photography enthusiast. Views=mine
Split Brain Project @splitbrainpro
367 Followers 1K Following International Non-Governmental Organization | BTC Onboarding 4 Freedom | Technologies and Innovations | B2B & B2P |
BBC Health News priva.. @bbchealth_Owner
9 Followers 285 Following Health & Lifestyle news and features from the BBC, via an automated feed of website headlines.
Bronwen 💋 @Bronwen_L81
4 Followers 475 Following Rаvishing seduсtress with an insаtiable арpеtitе fоr plеаsure
Amy Boylan @amyboylanwrites
4K Followers 3K Following Freelance #copywriting rock doc. Sticky #websitecopy, long #content & expert #articles. Life on ⏸ First 🌊 #LongCovid #PoTS (she/her)
Kate Peirce @KatePeirce
108 Followers 544 Following Super busy wife, Mum, leader of 12, EWO and most of all, lover of Jesus who is working out the truth of Matthew 11:28-30 :-)
ADHDlaterinlife @ADHDLaterInLife
670 Followers 3K Following ADHD LATE! Dublin Ireland! Ready to tell the world I’m neurodivergent. In recovery. Trying not to mask/procrastinate. Work and study hard !Good person :)
Behind The Smile @BehindTheSmil17
1K Followers 3K Following To support those experiencing mental ill health, to reduce suicide / attempts and postvention by supporting those bereaved by suicide; in memory of our son Zac;
EYAD MOBARKI @mobarki_ey63406
1 Followers 69 Following
Elaine Stewart 🏴�.. @LaineyHolmes2
265 Followers 365 Following Advanced Practitioner Occupational Therapist in NHS Lanarkshire Primary Care. Background in orthopaedics & hand therapy. All views are my own. 🎀
Karen Smith @KarenSm52762499
42 Followers 284 Following Irca Area Export Manager Gourmet - United Kingdom and Ireland
Anne Delaney @anne_delaney
2K Followers 3K Following Senior producer BBC National News, based in Birmingham. I travel across the Midlands, for a good story. These are my thoughts, the BBC's got its own.
Laurie Stahl @LaurieStahl20
84 Followers 692 Following City, New to Twitter. Liberal conservative or conservative liberal, not sure. Pro-Israel and lots of other things.
Maria-louise Williams @Mariararoo
1K Followers 3K Following Severe M.E warrior (One of the missing millions). Crohn's disease in remission.
Tania J. Spencer @TaniaJSpencer
1K Followers 3K Following 🇨🇦 🇿🇦• observer • dweller in possibility • writer • Long Covid first waver • maker of 12x Corsi-Rosenthals • #Mastodon @[email protected]
TopazStudios.com @TopazStudiosCOM
2K Followers 5K Following ONE chronic #illness to #disabled—follow @RenegadeRes—#longcovid #ckd #IgG #kidney #mecfs #pots #mcas #dysautonomia #pem #mitochondria $ltnc #lockdin #health
Star💫 @Starseeker1986
2K Followers 3K Following C19 March 2022 || Life ⏸️ || Creator of Beautiful Things | Emotional Health & #longcovid Advocate 🌙 💫 🔮💎🪬 🦋🦄#unvaxed #MCAS #foodintolerances #ToriesOut
Shirley Nieves @shirley50221
15 Followers 682 Following
Regulated Safesupply @K2spiceN8745
209 Followers 2K Following We are in favor of a safe regulated supply of FDA approved prescription medications. Check link and get a safe supply now
L ø r d B å r r õ .. @lord_barrold
857 Followers 107 Following Pronouns: Bloke / Lord / Punter / Baz / Sober / Hermit / Racehorse Owner
Safe Inside - Clean T.. @SafeInside2024
677 Followers 1K Following Building a database of places with clean air protocols https://t.co/FXLlVEfc4I please read, like and repost pinned tweet to help spread the word.
Mrs Anderson @mrs_anders67349
14 Followers 154 Following
Lyme disease and PANS @LymePANS
11 Followers 120 Following
John Caudwell @JohnDCaudwel
35 Followers 193 Following Philanthropist. Entrepreneur. PhonesU. & Giving Pledge: 70% of wealth to charity. @CaudwellKids @CaudwellYouth The Making of a Billionaire
Kathy Strange @KathyStran31042
50 Followers 2K Following
Yvette @libertygracebag
4 Followers 20 Following
Alex Duckitt @alexef1973
13 Followers 146 Following
Delphine @LiliDelphi62
10 Followers 131 Following
NIHR Bristol Biomedic.. @BristolBRC
2K Followers 1K Following The @NIHRresearch Bristol Biomedical Research Centre is led by @uhbwNHS in partnership with @BristolUni. Sign up for our newsletter: https://t.co/pgjQG69nTa
Chronic Diaries @Rs_chronicdiary
203 Followers 209 Following Just me trying to navigate multiple chronic illnesses and try to survive. ME/CFS, POTS, ASD, Chronic UTI and more
Conor Reeves @ConorDCR
820 Followers 2K Following 31. RE EOD Veteran🇬🇧 Aspiring Author & Blogger📚 Loves Guinness and an organised music playlist. Fool on TikTok🎥 Notes for (and from) Private Bloggs👇🏻
AL @AL44296259
2 Followers 542 Following
Gillian Ann Blower @BlowerGill89857
428 Followers 1K Following rumi and poets. bit of politics, few things I want to understand.
Jane Bird @LindaLaHughes9
946 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Joanne Holloway @CharmingAngelCo
803 Followers 1K Following Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
PANS PANDAS UK @PandasPans
4K Followers 893 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.
Paula Scott @PaulaScottUK
990 Followers 2K Following Raising awareness of PANS PANDAS #itstimeforchange
Sarah Hughes @SHughesDr
835 Followers 976 Following
Diane Palmer @NurseDiane2020
2K Followers 2K Following NHS Director of Specialist Services (Veterans Mental Health, Trauma informed care, TRiM, Occupational Mental Health Services) Trustee of PPUK. My personal views
NB @np9000
751 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME Views my own
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Kathryn Gillett @kathryn_gillett
766 Followers 693 Following Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.
laura aylott @aylott_laura
560 Followers 1K Following Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDAS
Dr. Lisa Iannattone @lisa_iannattone
74K Followers 2K Following Assistant Professor of Dermatology @McGillMed. MD/residency @med_umontreal. Fellowship @HarvardDerm. Focus: complex medical dermatology and medical education.
Paula McGowan OBE. @PaulaMc007
41K Followers 12K Following •Hon Fellow Fac Health @PlymUni •The Oliver McGowan Mandatory Training •You have gone too far not to go further You have done too much not to do more •Autistic
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Susannah H @firebug70
2K Followers 4K Following Mum. Carer for my son. Former English teacher. Researching #Lyme #ME #LongCovid #Pandas #Pans #believethepatient #believetheparent
Jess @MeetJess
46K Followers 5K Following Lover of all animals. Nature admirer. Elderly advocate. Bookworm. Sarcastic & compassionate. Music lover. Fierce Mama bear. #WeNotMe #COVIDISAIRBORNE
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Lisa Pattullo @LisaPattullo
110 Followers 421 Following Mum to 👩👦👧, 6 🐴 , 1 🐶 and four 🐥 and wife to 👱♂️
Michelle Fleming (she.. @Michelle_Pamela
1K Followers 2K Following passionate about transforming #longtermcare | knowledge broker @CLRI_LTC @bruyerecare | 🏳️🌈#2SLGBTQI ally | #HELLP syndrome survivor | opinions my own
Dan Wootton @danwootton
547K Followers 7K Following The real stories and opinions the MSM are censoring with No Spin, No Bias and No Censorship. Brand new daily show coming soon...LET'S GO!
Helen J Huitson @HuitsonJ49909
8 Followers 34 Following
jj.huitson @HuitsonJj
21 Followers 110 Following friendly neighbourhood disabled bitch 💪🏻 Tourette’s 💪🏻 Pandas 💪🏻OCD💪🏻
Amy Boylan @amyboylanwrites
4K Followers 3K Following Freelance #copywriting rock doc. Sticky #websitecopy, long #content & expert #articles. Life on ⏸ First 🌊 #LongCovid #PoTS (she/her)
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
Nouri Ben Zakour, PhD.. @genomiss
1K Followers 1K Following Principal research scientist @WestmeadInst @Iredell_lab, interested in the m(ea|i)ning of life. Bioinformatics, Data science, Microbes, Phages. Cancer survivor.
L ø r d B å r r õ .. @lord_barrold
857 Followers 107 Following Pronouns: Bloke / Lord / Punter / Baz / Sober / Hermit / Racehorse Owner
Stephen Davis @PlanetEarth_HD
7K Followers 1K Following Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid
June Shannon @juneshannon
26K Followers 11K Following Award winning medical journalist interests: health inequity,women’s health& mental health. Tweets personal. #darttales RT not endorsement. [email protected]
Center for Long Covid.. @cflcaci
260 Followers 704 Following
Dr Ho Kwong Li @HoKwongLi
145 Followers 145 Following MRC CMBI Clinical Research Fellow @ImperialCollege | Honorary Research Fellow @NDMOxford @UniofOxford (prev.) | Specialist Registrar Infectious Diseases / GIM
Prof. Christina Pagel @chrischirp
204K Followers 952 Following Prof Operational Research @UCL_CORU, health care, women in STEM. Member of @independentsage. Tweets personal. chrischirp at bluesky. https://t.co/nNW5zMenx2
Claire Jones @Claire145
848 Followers 620 Following BCUHB Consultant Physiotherapist. Long Covid Physio Disability & Safe Rehab Committee Member. DProf Student at Uni of Chester. Views are my own.
BlueHeronDays @blueherondays
843 Followers 36 Following Lots of interests, etc., but Moderna vaccine messed me up in March 2021 and that’s mostly why I’m here. Recovering, but won’t stop until I’m 100%.
Kerry Newnham @Squashedhedgi
1K Followers 942 Following Tube-fed, bedbound, a very severe M.E. veteran, wounded on the battlefield. Unlikely to come out of this intact or alive. UK has allowed ME neglect. LW-green
_____________________.. @BaszkoM
2K Followers 5K Following ME-dically gaslit for 9yrs. Literal dopamine hit from blocking terfs, ableists and racists. Esos son Reebok o son Nike... @baszkom.bsky.social
Rene Sugar @renesugar
4K Followers 4K Following
C. Franklin @synergy2023c
114 Followers 534 Following Supporter of clean air initiatives. Biochem background. PhD. Here to keep up with the latest in scientific/medical research. Supporter of long covid research.
Fiona @Fiona1755925
419 Followers 473 Following I live with my son, 25, has Aspergers n Epilepsy, he’s my inspiration 😊 I’m 64 ❤️ life, friends, my cats 🐱 I love travel, nature, read loads! People person x
Conor Reeves @ConorDCR
820 Followers 2K Following 31. RE EOD Veteran🇬🇧 Aspiring Author & Blogger📚 Loves Guinness and an organised music playlist. Fool on TikTok🎥 Notes for (and from) Private Bloggs👇🏻
Chronic Diaries @Rs_chronicdiary
203 Followers 209 Following Just me trying to navigate multiple chronic illnesses and try to survive. ME/CFS, POTS, ASD, Chronic UTI and more
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
SalBrinton @SalBrinton
10K Followers 2K Following Vice Pres @ALDE since 2019. 👨🦼Lib Dem Health & Social Care spokes House of Lords 2020-22. Lib Dem President 2015-19. Retweets/likes not endorsement. She/Her
Mark Heslin @Mark_Heslin
795 Followers 515 Following Internal Medicine PGY-3 @PennMedicine | @CPSolvers Academy Member | Clinical Reasoning, Diagnostic Error, #MedEd | @CooperMedSchool | @JMU
Kirk Haworth @kirk_Haworth
1K Followers 667 Following Chef / Co-founder @Plates_london Development & consultancy, enquiries; [email protected]
Lucie BD @luciebd
3K Followers 2K Following Mum, Health psych, Prof & Director Int Ed Partnerships at School Med Sci, Uni Manchester, Fellow EHPS, Ac Social Sciences, Principal Fellow HEA, Change Exchange
CronFest: Democracy f.. @CronFest
7K Followers 8K Following I take the road less traveled. Foodie, lover of science, facts and common sense @Cronfest on Counter social, @CronFest on https://t.co/G4SdZXlVza
Mothers Gut @mothersgut
157 Followers 568 Following Family after Infertility. but hardest battles followed. Son diagnosed #PANDAS 4 yrs after onset. Fighting the SEND system. Breaking one day at a time.
Jo Harvey @joharvey21
308 Followers 246 Following Curriculum lead, primary schl teacher. Adapting to life w Long Covid and 2 chadults. Here for chat, books, dance and the outdoors while waiting for a cure.
BBC News (UK) @BBCNews
15.3M Followers 85 Following News, features and analysis. For world news, follow @BBCWorld. Breaking news, follow @BBCBreaking. Latest sport news @BBCSport. Our Instagram: BBCNews
Charity Film Awards @SmileyCFA
6K Followers 6K Following The Charity Film Awards is hosted by @SmileyNews.
Dr Tim Robinson @LongCovidDoctor
80 Followers 68 Following Long Covid specialist Doctor Physician. Education for patients - to help understand, validate and recover from Long Covid. @LongCovidDoctor on #YouTube #Podcast
Fe. @NoHealthNoFun
1K Followers 592 Following Rotting with #LongCovid since May 22. Looking for scientific insights, community, and memes. 😷 Wear a high-performance mask.
Melissa Bell @FLLymeDisease
2K Followers 1K Following FL attorney turned accidental advocate; Founder #LymeDiseaseChallenge President of Florida #Lyme Disease Assoc.; Exec Board @ProjectLyme #GoGators 🧡💙🐊
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Anil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Katie Klocksin, by th.. @KatieKlocksin
3K Followers 5K Following 😷 LONG COVID IS COMMON 😷 Radio +podcast producer, one of the #MillionsMissing with #LongCovid #MECFS / @transom_org alum 🏳️⚧️ ally
Kimbo @DozyDollop
418 Followers 837 Following Writer, actor, drama teacher, fabulous auntie, diagnosed spoonie and now single mum by choice to a baby girl using a donor! @hopefulmummy83
Joanne Davies @Joanne6d
11K Followers 5K Following Life is for living, not coping with! Mummy, teacher, survivor 💜💙🦊
Monarchs Gymnastics @Monarchsgym
80 Followers 37 Following We are an Acrobatic gymnastics Club in Highbridge with classes available from walking up to Elite gymnasts. To find out about classes phone 07738909318
Ellie Simmonds @EllieSimmonds1
99K Followers 582 Following Can mostly be found in a swimming pool. Baking enthusiast, insatiable traveller & ocean lover. Paralympian: 08, 12, 16, 20. Enquiries: @NickHartwell1.
Wenddy 1 @Wenddy1234
122 Followers 446 Following chronic illness and looking to get better somehow someway.
Cambridge ME group @CBMEgroup
1K Followers 2K Following CBME is a support group based in #Cambridge UK for people with #MECFS, #MyalgicE , #CFS, #PostViralFatigue, #Fibromyalgia, including #pwME caused by #LongCovid
Jennie Jacques @JennieJacques1
19K Followers 412 Following avid reader 📚 lover of science 🧪 🧬 actress 🎭 & writer ✍️ #disabilityswareness 🌻 #mecfs 💙 @bake4mecfsAny dermatologists on here? #MedTwitter patient has been seen by various specialists, no one know what’s happening, has inflammation, muscle pain, swelling and now this skin pattern.
And while we are at it, wtf has happened to my hands? How can they be both swollen and have weird snake-skin wrinkles at the same time?
Warnings from Yale on #SARSCoV2 infections. ⚠️
Looks like Yale school of public health has finally started to say what I have been repeatedly saying since 2020 1) covid creates longlasting autoimmunity by harming t regs 2) harms adaptive immunity 3) causes immune dysregulation 4) persists etc
After 60 Years, Scientists Find the Missing Link in Our Body’s Blood Pressure Control #dysautonomia #POTS #MECFS #LongCovid newsroom.uvahealth.com/2021/08/03/uva…
Interested in learning more about the PANS/PANDAS IVIG study? Go to pandasppn.org/ivig-study for info and quick links.
Severe covid-19 infections linked to increased risk of schizophrenia newscientist.com/article/241025…
We're into another soup season - a messy, hard to predict wave with a half dozen competitive variants, the next generations of JN.1. They're all growing fast, it's just a question of which gets the best distribution.
A new Covid wave is probably coming in England. That’s our tentative view after looking at all the available data. At the moment, Covid levels appear to be roughly the same and the risk of meeting a Covid-infected person in your everyday life remains HIGH. buds.org.uk/covid-19-risk-…
This may be relevant for anyone with chronic illness / inflammation to be aware of. People often have histamine / mast cell issues in #ME & #PANS #PANDAs @Hopesaxons
[NEW PUBLICATION] Inactive ingredients in medications can trigger Mast Cell Activation Syndrome Inactive ingredients (excipients) are common causes of medication intolerances and allergic reactions. Physicians who treat mast cell activation syndrome and their patients know that…
Amazing Dad @neil_gilson @24HourSwim last July - the 1st person to swim the Bristol Channel. Dolphins join him for the home coming 🐬 Raising Funds & Awareness @PandasPans @StephLunch on @PackedLunchC4 last yr #FathersDay
"The damage of the WHO’s false claims continue to reverberate today. Doctors and hospitals continue to infect their patients with flu, RSV, strep, and now COVID as infection control measures like HEPA filtration go completely unmentioned in the new guidance document. " /2
So painful to read this💔 I do remember that horrible Covid Winter in 2022 when 'invasive Group A Strep numbers rebounded to the highest level on record since 1997. Corridors were flooded with sick children on the top of acute staff shortages! What 1/2 irishexaminer.com/news/munster/a…
I understand that during the #Pandemic, #LongCovid was not intuitive & foreseeable. But now it is clear that Millions of people have been suffering for over three years The #LongCovid should be at the forefront of Healthcare Agendas.
@CBMEgroup @aftab_usa It was very, very foreseeable--and yes, it was foreseen by all involved in the ME/CFS community.
@aftab_usa Not just foreseeable but foreseen -pretty much every person with #MECFS was warning anyone who'd sit long enough to listen - as were our doctors and researchers in the field.
New pre-print out on the gut microbiome and how we might discriminate disease specific factors from common changes associated with dysbiosis. Great piece of work by Jonathan Williams. Big thank you to the Dove Clinic for providing the data. medrxiv.org/content/10.110…
@notestomyboy Such a beautiful smile. Here's hoping it returns soon. Have been reading so much recently about your sons condition let's hope it leads to better understanding and education. Take care of each other.
Blackpool pleasure beach was one of our favourite places. I’ve not been back since you’ve been ill , but one day maybe …. I love you mate ❤️#pans #pandas #panspandas #MedTwitter
Salon: Can nasal Neosporin fight COVID? Surprising new research suggests it works A potential treatment for COVID-19 may have been hiding in our medicine cabinets, a new study in PNAS has found salon.com/2024/04/27/can…
I wrote to my MP in October 2021 warning about this (covered in the local press - see link) It’s now 2024, there’s ongoing / rising levels of chronic illness in children It’s not too late, we can act. We can prevent. #CleanAir warrington-worldwide.co.uk/2021/10/05/con…
🚨 ONS Winter Coronavirus Infection Study‼️ 111,816 children (3-17) are now experiencing #LongCovidKids Of which nearly 21,000 have their daily activities "limited a lot"! NOTE these are approx double the rates of March 2023 when the previous survey was stopped #CovidIsNotOver
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