Notes to my boy ✉️ @notestomyboy
Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️ England, United Kingdom Joined October 2020-
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Teacher of History eteach.com/job/teacher-of… Anyone fancy working in beautiful West Wales with me?
@notestomyboy Such a beautiful smile. Here's hoping it returns soon. Have been reading so much recently about your sons condition let's hope it leads to better understanding and education. Take care of each other.
Blackpool pleasure beach was one of our favourite places. I’ve not been back since you’ve been ill , but one day maybe …. I love you mate ❤️#pans #pandas #panspandas #MedTwitter
@natashaloder @notestomyboy I learned through my trauma recovery that the body and mind are 100% tied. Mind effects body and body effects mind. Warmest wishes to you and your family.
As I sit (yet again) and watch my 7yr old struggle with a new painful tic alongside the sudden appearance of non-blanching rashes, I PRAY. Things have got to change and I hope people are listening. @aaroncumminsNHS @simonfell @mariacaulfield #NHS #PansPandasHour
As I sit (yet again) and watch my 7yr old struggle with a new painful tic alongside the sudden appearance of non-blanching rashes, I PRAY. Things have got to change and I hope people are listening. @aaroncumminsNHS @simonfell @mariacaulfield #NHS #PansPandasHour
How problems in the body can drive mental ill health and the need to search for the missing biology in psychiatry. A new feature. economist.com/science-and-te… from The Economist
Say it with me: I will no longer rely on the fake behavioral foundation that I built around myself in a time when I felt I could no longer trust my own abilities to cope. I will tear these walls down, brick by brick, until my true qualities can be seen and utilized again.
📢 Exciting News Alert! 🌟 We're thrilled to announce the beginning of a groundbreaking initiative: The development of UK clinical guidelines for PANS and PANDAS! Read the full blog post here: panspandasuk.org/post/work-begi… #PANS #PANDAS #Healthcare #ClinicalGuidelines #UKHealthcare
Thank you so much @notestomyboy
🌟 Join Us for Our Monthly Support Group Event in Doncaster! 🌟 🗓️ Date & Time: Saturday, April 27th | 11:00 am - 1:00 pm 📍 Venue: Bawtry Mayflower Primary School Station Road, Bawtry, Doncaster, DN10 6PU #PANSPANDASSupportGroup #DoncasterCommunity #TogetherWeThrive 💙
@notestomyboy @np9000 I really, honestly wish there was something, anything that I can do to help you and your families. Noone, not a soul, should go through this nightmare. Will always keep you in my thoughts with hope to hear some good news one day. Until then, stay strong, stay sane. Much love, e
@notestomyboy I, like him, never heard of it…even with 18 years in Nursing. You are definitely teaching us through your notes to your boy. 💙🙏🏼💙
Another day another lovely DM. Thank you to the open minded and positive Neuroscientist who sent me this lovely message. We always have hope ❤️
@notestomyboy One of the beautiful things for your son to see after his recovery will be the “Notes” you wrote him. What an amazing father you are !!! Stay positive 💙 Your son is coming back soon !!!
I’ve just had this lovely message thru on DM. Such a positive (and similar) story. Gives me lots of hope that we can get our beautiful boy back 🙏 a big thank you to the person who has sent it. ❤️
@notestomyboy Thanks. Was so sad to read about your boy.
🏴 SECONDARY TEACHERS IN #SCOTLAND 🏴 Now that the seniors have gone on study leave, if you have capacity for 1 hour of FREE #CPD join one of #PANS #PANDAS UK CPD sessions. Pertinent for all teachers - but especially pastoral care and #ASN
Ok so this is a last attempt! My baby girl is so lonely right now. It's her 13th birthday tomorrow and her friends have ditched her. Her #anxiety & #ocd are consuming her 🥺 I just want her to be happy on her birthday
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@natashaloder @notestomyboy I learned through my trauma recovery that the body and mind are 100% tied. Mind effects body and body effects mind. Warmest wishes to you and your family.
Many mental-health conditions have bodily triggers 👍👍👍👍 PANDAS & #RegressiveAutism 👍👍👍👍 economist.com/science-and-te…
@notestomyboy IVIG infusions helped our friends son who the same thing happened to.
@notestomyboy I have ADHD, changing my diet changed my life. Carnivore is worth looking at. At least it helps to remove all the processed junk, sugar, seed oils, refined carbs As little screen time as possible. My thoughts are with you sir. My mind is as clear and level as possible to get now.
@notestomyboy @CherylKeagy My heart breaks for you and your son with this. I can't imagine the pain for you. 💔🌷🌹
@notestomyboy I will & thank you so much for sharing. Let’s hope good outcomes for all. ❤️
@notestomyboy Willing that your son will get better. I'm so sorry for him, you and all your family. Thanks for sharing your experience for other parents to have an awareness and what to look out for.
@notestomyboy Thank you for sharing your own pain in the hope of helping others and for your beautiful boy to know how much you love him. With two autistic children , one with overriding sensory and anxiety issues, every day is tough. Reading your boys story, I send heartfelt hugs and love xxx
How problems in the body can drive mental ill health and the need to search for the missing biology in psychiatry. A new feature. economist.com/science-and-te… from The Economist
Such a huge step in the UK. Thanks so much @notestomyboy.
Very lucky today to be asked to contribute by @PandasPans as a parent of a child with PANS PANDAS as we try to put in place UK clinical guidelines for our children. I 🙏 that change is coming. I love you Son ❤️
📢 Exciting News Alert! 🌟 We're thrilled to announce the beginning of a groundbreaking initiative: The development of UK clinical guidelines for PANS and PANDAS! Read the full blog post here: panspandasuk.org/post/work-begi… #PANS #PANDAS #Healthcare #ClinicalGuidelines #UKHealthcare
Thank you so much @notestomyboy
Very lucky today to be asked to contribute by @PandasPans as a parent of a child with PANS PANDAS as we try to put in place UK clinical guidelines for our children. I 🙏 that change is coming. I love you Son ❤️
@notestomyboy I, like him, never heard of it…even with 18 years in Nursing. You are definitely teaching us through your notes to your boy. 💙🙏🏼💙
@notestomyboy My heart is fluttery at the min with tears in my eyes.stay strong what an amazing uplift for you! Both you parents are Awesome! Keep fighting stay strong ❤
@notestomyboy One of the beautiful things for your son to see after his recovery will be the “Notes” you wrote him. What an amazing father you are !!! Stay positive 💙 Your son is coming back soon !!!
@notestomyboy @RuudGrethe Breaks my heart 💔 I wish I had a magic wand... 🥺
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