Joanne Holloway @CharmingAngelCo
Mom 2 girl with #Pans.Took 2.5 years & huge battle 2 get 2 diagnosis!Delays are damaging. Goal 2 raise awareness 2 end present suffering & stop future suffering Birmingham, England Joined November 2016-
Tweets47K
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Followers792
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Following1K
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Likes35K
If SEND staff aren't aware of these conditions they aren't serving the growing community of children being flattened by 🍳🐼Please ➡️staff in the direction of #PansPandasHour CPD Link 🧵@teachwestlondon @TwynhamLearning @IOE_London @SCastro_Kemp @ProfJulieAllan @SOEBristol
If you are parent/guardian/family member/friend of child/adult with #Pans #Pandas or adult who continues 2 suffer please do continue 2 add to this thread to build a picture of the change that is desperately needed. It remains pinned to my page and is tweeted every #PansPandasHour
“When we say PANS is hard we mean it is really, really, really hard” #PansPandasHour
Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative! #PansPandasHour
My Kid is Not Crazy: a search for hope in the face of misdiagnosis- cin... youtu.be/WJQT9-cQwIw via @YouTube #PansPandasHour
When a community rises!❤️#ChooseYourChallenge event 2023 saw many wonderful people taking part in amazing challenges to raise awareness of conditions #Pans #Pandas & also a brilliant £50,000+ for @PandasPans #PansPandasHour This was just 1 such event 👇🏻 panspandasuk.org/post/amazing-a…
Many, many families bravely put themselves in the spotlight to raise awareness of the lack of recognition, support or treatment for those suffering with #Pans #Pandas @mctavishgal #PansPandasHour dailymail.co.uk/health/article…
Educators please be aware you could make such a difference to a child’s life with understanding of conditions #Pans #Pandas #SEND #edutwitter #education #SENDTwitter #PansPandasHour
Educators please be aware you could make such a difference to a child’s life with understanding of conditions #Pans #Pandas #SEND #edutwitter #education #SENDTwitter #PansPandasHour
Jane Bird @LindaLaHughes9
944 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Hopeful @Hopesaxons
2K Followers 2K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
PANS/PANDAS UK @PandasPans
4K Followers 893 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.
Diane Palmer @NurseDiane2020
2K Followers 2K Following NHS Director of Specialist Services (Veterans Mental Health, Trauma informed care, TRiM, Occupational Mental Health Services) Trustee of PPUK. My personal views
NB @np9000
750 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME Views my own
Sarah Hughes @SHughesDr
834 Followers 976 Following
Paula Scott @PaulaScottUK
990 Followers 2K Following Raising awareness of PANS PANDAS #itstimeforchange
laura aylott @aylott_laura
559 Followers 1K Following Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDAS
Kathryn Gillett @kathryn_gillett
763 Followers 692 Following Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.
Susannah H @firebug70
2K Followers 4K Following Mum. Carer for my son. Former English teacher. Researching #Lyme #ME #LongCovid #Pandas #Pans #believethepatient #believetheparent
James @MFCIRed
644 Followers 1K Following Just a normal guy, that has lived with OCD for over 30 years but decided to retire his superhero cloak. KNOWLEDGE DISPELS FEAR
Emma McNally @EmmaJMcNally
869 Followers 860 Following Mum of 2 beautiful children 👦 👧 Campaigning with everything I have raise awareness & improve medical services for people with #tourettes CEO @tourettesaction
Obsessively OCD @obsessivelyocd
5K Followers 2K Following Obsessive Compulsive Disorder isolated me to my bedroom for two years of my Life. Now I work to spread awareness through my blog, “Obsessively OCD.”
Melissa Stutler @StutlerMelissa
354 Followers 1K Following PANS/PANDAS Activist, Proud Snowflake, Editor, Writer, Painter, Mom, Wife, Alto, Cat Person
Mel Payne @melpayne77
679 Followers 1K Following Mum to 2👭, 2 🐱🐱 & 1 crazy🐶. Wife to 1 ⛰ obsessed husband. Lifes ambition to meet Barenaked Ladies (done) New ambition - to make the 🌍 aware of PANS PANDAS.
Tim Clarke @TJClarke_
2K Followers 1K Following Manage PR & media for a consumer group. Occasional non-league football writer. All the right words but not necessarily in the right order. My views.
DrAqm @draqam
309 Followers 222 Following #CBT //I am a clinical psychologist My approach is CBT Yes, a psychologist without borders...
James Dalton @jardalton
344 Followers 270 Following Computational biologist. Interested in long covid, persistent Lyme disease and fluoroquinolone-associated disability (FQAD). Views my own, not medical advice.
The Vigilant Fox🦊 @VigilantFox34
520 Followers 711 Following Editor-in-Chief @VigilantNews. Writer, video clipper, and pro-freedom citizen journalist with 12 years of healthcare experience. Inquires: My backup Account
Lyra @lyradoodles
4 Followers 37 Following
coalesce @coalesc42483574
0 Followers 19 Following
Clare McGinty @McgintyClare
31 Followers 230 Following
Carole McCulloch @carolemcculloch
49 Followers 672 Following
ScienceMeLive @ScienceMeLive
17 Followers 139 Following #Lyme Stage III, #AcrodermtitisChronicaAtrophicans #Arthritis #Immunosenescence. https://t.co/IAVaYdSJS1
Kate Peirce @KatePeirce
108 Followers 544 Following Super busy wife, Mum, leader of 12, EWO and most of all, lover of Jesus who is working out the truth of Matthew 11:28-30 :-)
Miss Smiffy @shaznney
135 Followers 309 Following Lover of all things lovely and very happy with my lot 👍 Nurse of the psychiatry kind and yes, we are real nurses 😉 😘
ADHDlaterinlife @ADHDLaterInLife
664 Followers 3K Following ADHD LATE! Dublin Ireland! Ready to tell the world I’m neurodivergent. In recovery. Trying not to mask/procrastinate. Work and study hard !Good person :)
AndiH (she/her) @AndiH72
500 Followers 1K Following Teacher, B.Sci, B.Ed, Parent, COVIDisairborne, Indoor Air Quality (IAQ) matters, better ventilation everywhere & filter the air
Behind The Smile @BehindTheSmil17
1K Followers 3K Following To support those experiencing mental ill health, to reduce suicide / attempts and postvention by supporting those bereaved by suicide; in memory of our son Zac;
EYAD MOBARKI @mobarki_ey63406
1 Followers 69 Following
Elaine Stewart 🏴�.. @LaineyHolmes2
265 Followers 365 Following Advanced Practitioner Occupational Therapist in NHS Lanarkshire Primary Care. Background in orthopaedics & hand therapy. All views are my own. 🎀
Sarahxbeex @Sarahxbeex
491 Followers 559 Following Mum 👩👧👦 Advocate 👦🏼🏆 Autism ADHD SALT • 1 to 1 👩🏼🏫 Mindfulness & Well-being 🧘🏼♀️💫
RB @RamzyBains
186 Followers 3K Following *Teacher of Tiny Humans *Climate Change is Real *Pro: Science, Wildlife, Democracy, DEIB, LGBTQ+, Teachers, Unions, A Better World for All *COVID isn't over
Victoria Hindmarch @Vickie6275
3 Followers 16 Following
Karen Smith @KarenSm52762499
42 Followers 284 Following Irca Area Export Manager Gourmet - United Kingdom and Ireland
Carolyn Cooper @CooperCeclarke8
1K Followers 4K Following Happily retired. Mother of 4 including @CarlyWaterman21 & @_Esther_Gray. 50s woman & against heartless tories. I have SCC oral cancer.
Anne Delaney @anne_delaney
2K Followers 3K Following Senior producer BBC National News, based in Birmingham. I travel across the Midlands, for a good story. These are my thoughts, the BBC's got its own.
Laurie Stahl @LaurieStahl20
84 Followers 692 Following City, New to Twitter. Liberal conservative or conservative liberal, not sure. Pro-Israel and lots of other things.
Helen @Unfi1tered_H
48 Followers 127 Following
Saffron @SwiftMary4
185 Followers 1K Following
Jenn @HelloJennLeigh
7 Followers 25 Following Jenn Leigh is a mother, entrepreneur and an aspiring author. #PANS #PANDAS advocate.
Lyme disease and PANS @LymePANS
11 Followers 120 Following
Conor Reeves @ConorDCR
819 Followers 2K Following 31. RE EOD Veteran🇬🇧 Aspiring Author & Blogger📚 Loves Guinness and an organised music playlist. Fool on TikTok🎥 Notes for (and from) Private Bloggs👇🏻
CronFest: Democracy f.. @CronFest
7K Followers 8K Following I take the road less traveled. Foodie, lover of science, facts and common sense @Cronfest on Counter social, @CronFest on https://t.co/G4SdZXlVza
Selooajgha @tingjisara
12 Followers 751 Following
The Trouble Club @TheTroubleClub
66K Followers 60K Following The finest voices on everything from politics to fiction. They all happen to be women. Coming up: @CherieBlairFndn, @Lucy_Worsley and more.
Reine Corley @CorleyReine
38 Followers 166 Following
Evelyn Gil @Lady12Cat
4K Followers 5K Following Animal Rescuer of Homeless Animals I Love All Species 🙀 🐶 🐢 🦒 🦁 🦊 🦏 🐬 🐘 🐔 🐳 🦓 🐺
Mhairi Begley @varibee
53 Followers 101 Following Secondary teacher passionate about English, literacy, language and communication, D/deaf education, careers education and DYW, inclusion and social justice.
Cb @Cb5422471872703
0 Followers 37 Following
ArdentAmerican355 @ArdentA355
182 Followers 1K Following catholic. wife + home educating mama. constitutionalist + political enthusiast. new englandah. fueled by iced coffee, dark chocolate + liberty
Michelle @miesje75
631 Followers 2K Following Beheerder FB groep kinderen met langdurige Covid klachten| Moeder van een Long Covid kind gediagnosticeerd op 6 jarige leeftijd. Twittert op persoonlijke titel
Sarah (Rainbow Dandel.. @sarahbarron1985
557 Followers 497 Following #mentalhealthmatters #CPTSD #DID #Autism #ADHD #PND #crochetformindfulness #mhhsbd #smartsocialwinner #sbswinner April 2024
Dr Muhammad Yasin @Muhammadyasinaf
6 Followers 663 Following
Jessikah Braginton @LadyBraginton
139 Followers 248 Following Artist & Writer.Advocate for Ehlers-Danlos,Dysautonomia,SLC research and awareness. Empath & body language communications. Be good, Do good everyday!💙🦓🦓💙
Luna @Elara6195042003
14 Followers 794 Following
DasIstME @BobundDaisy
1K Followers 2K Following Psychologin, bis 2016 spez. in Therapien bei #ASS, seither arbeitsunfähig aufgrund ME, seit Covid schwer erkrankt #MECFS #LongCovid
Jane Bird @LindaLaHughes9
944 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Hopeful @Hopesaxons
2K Followers 2K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
PANS/PANDAS UK @PandasPans
4K Followers 893 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.
Diane Palmer @NurseDiane2020
2K Followers 2K Following NHS Director of Specialist Services (Veterans Mental Health, Trauma informed care, TRiM, Occupational Mental Health Services) Trustee of PPUK. My personal views
NB @np9000
750 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME Views my own
Sarah Hughes @SHughesDr
834 Followers 976 Following
Paula Scott @PaulaScottUK
990 Followers 2K Following Raising awareness of PANS PANDAS #itstimeforchange
laura aylott @aylott_laura
559 Followers 1K Following Just a mum of 3 boys ! volunteer supporter of families & parents, interest in child development & trying to raise awareness of PANS PANDAS
Kathryn Gillett @kathryn_gillett
763 Followers 692 Following Raising awareness for PANS Paediatric Acute Onset Neuropsychiatric Syndrome. Mum, theatre lover, events.
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Susannah H @firebug70
2K Followers 4K Following Mum. Carer for my son. Former English teacher. Researching #Lyme #ME #LongCovid #Pandas #Pans #believethepatient #believetheparent
James @MFCIRed
644 Followers 1K Following Just a normal guy, that has lived with OCD for over 30 years but decided to retire his superhero cloak. KNOWLEDGE DISPELS FEAR
PANDAS PHYSICIANS NET.. @PANDASPPN
2K Followers 1K Following PANDAS Physicians Network (PPN) - Nonprofit helping clinicians diagnose & treat #PANDAS #PANS. #strep #infection #OCD #neuroinflammation #MentalHealth
Ticcers Unite @TiccerU
555 Followers 460 Following Mental Health, Chronic Illness, & Neurodivergency Awareness
ASPIRE @ASPIREpans
796 Followers 231 Following ASPIRE is a 501c3 organization whose mission is to improve the quality of life for those affected by PANS, PANDAS, and immune-related encephalopathies.
Naomi Fisher @naomicfisher
43K Followers 1K Following Clinical Psychologist. Author of Changing Our Minds and A Different Way to Learn. Website: https://t.co/lNP61HBdr2. Substack: https://t.co/jZKGYJJB3I.
Emma McNally @EmmaJMcNally
869 Followers 860 Following Mum of 2 beautiful children 👦 👧 Campaigning with everything I have raise awareness & improve medical services for people with #tourettes CEO @tourettesaction
James Dalton @jardalton
344 Followers 270 Following Computational biologist. Interested in long covid, persistent Lyme disease and fluoroquinolone-associated disability (FQAD). Views my own, not medical advice.
The Vigilant Fox🦊 @VigilantFox34
520 Followers 711 Following Editor-in-Chief @VigilantNews. Writer, video clipper, and pro-freedom citizen journalist with 12 years of healthcare experience. Inquires: My backup Account
Lyra @lyradoodles
4 Followers 37 Following
Carole McCulloch @carolemcculloch
49 Followers 672 Following
ADHDlaterinlife @ADHDLaterInLife
664 Followers 3K Following ADHD LATE! Dublin Ireland! Ready to tell the world I’m neurodivergent. In recovery. Trying not to mask/procrastinate. Work and study hard !Good person :)
Miss Smiffy @shaznney
135 Followers 309 Following Lover of all things lovely and very happy with my lot 👍 Nurse of the psychiatry kind and yes, we are real nurses 😉 😘
Behind The Smile @BehindTheSmil17
1K Followers 3K Following To support those experiencing mental ill health, to reduce suicide / attempts and postvention by supporting those bereaved by suicide; in memory of our son Zac;
AndiH (she/her) @AndiH72
500 Followers 1K Following Teacher, B.Sci, B.Ed, Parent, COVIDisairborne, Indoor Air Quality (IAQ) matters, better ventilation everywhere & filter the air
RB @RamzyBains
186 Followers 3K Following *Teacher of Tiny Humans *Climate Change is Real *Pro: Science, Wildlife, Democracy, DEIB, LGBTQ+, Teachers, Unions, A Better World for All *COVID isn't over
Sarahxbeex @Sarahxbeex
491 Followers 559 Following Mum 👩👧👦 Advocate 👦🏼🏆 Autism ADHD SALT • 1 to 1 👩🏼🏫 Mindfulness & Well-being 🧘🏼♀️💫
Elaine Stewart 🏴�.. @LaineyHolmes2
265 Followers 365 Following Advanced Practitioner Occupational Therapist in NHS Lanarkshire Primary Care. Background in orthopaedics & hand therapy. All views are my own. 🎀
Anne Delaney @anne_delaney
2K Followers 3K Following Senior producer BBC National News, based in Birmingham. I travel across the Midlands, for a good story. These are my thoughts, the BBC's got its own.
Helen @Unfi1tered_H
48 Followers 127 Following
Saffron @SwiftMary4
185 Followers 1K Following
Conor Reeves @ConorDCR
819 Followers 2K Following 31. RE EOD Veteran🇬🇧 Aspiring Author & Blogger📚 Loves Guinness and an organised music playlist. Fool on TikTok🎥 Notes for (and from) Private Bloggs👇🏻
CronFest: Democracy f.. @CronFest
7K Followers 8K Following I take the road less traveled. Foodie, lover of science, facts and common sense @Cronfest on Counter social, @CronFest on https://t.co/G4SdZXlVza
The Trouble Club @TheTroubleClub
66K Followers 60K Following The finest voices on everything from politics to fiction. They all happen to be women. Coming up: @CherieBlairFndn, @Lucy_Worsley and more.
Catherine Millar @CatherineMillar
23 Followers 105 Following
Evelyn Gil @Lady12Cat
4K Followers 5K Following Animal Rescuer of Homeless Animals I Love All Species 🙀 🐶 🐢 🦒 🦁 🦊 🦏 🐬 🐘 🐔 🐳 🦓 🐺
Mhairi Begley @varibee
53 Followers 101 Following Secondary teacher passionate about English, literacy, language and communication, D/deaf education, careers education and DYW, inclusion and social justice.
Michelle @miesje75
631 Followers 2K Following Beheerder FB groep kinderen met langdurige Covid klachten| Moeder van een Long Covid kind gediagnosticeerd op 6 jarige leeftijd. Twittert op persoonlijke titel
Jessikah Braginton @LadyBraginton
139 Followers 248 Following Artist & Writer.Advocate for Ehlers-Danlos,Dysautonomia,SLC research and awareness. Empath & body language communications. Be good, Do good everyday!💙🦓🦓💙
Tom Tolkien @tomtolkien
74K Followers 519 Following Editor of @schoolreading and @k12readinglist. Avid snapper. #kidlit | #booktwitter | #teachertwitter | #edutwitter
Larni @Larni36769043
25 Followers 51 Following
The Scottish Health R.. @register4share
1K Followers 2K Following Official Twitter Account for SHARE - The Scottish Health Research Register. An NHS Scotland initiative for people interested in participating in health research
Daniel Kerlinsky MD @DrDan20000
7K Followers 314 Following Neurodevelopmental Child Psychiatrist. Physician Activism brought me into the Secretary of Energy Advisory Board Task Force for the Zero-Yield CTBT battle.
Jenny Davies @JennyDavies74
97 Followers 294 Following
Nia Evans @haf_nia
303 Followers 344 Following Nothing special- just hogan cymraeg ym mhell o adra....
Karen Reed ❤ 🙏 �.. @DrScienceOwl
1K Followers 2K Following Mum, daughter, wife, friend. ScienceOwl at local Girl Guiding brownies unit. Striving to make a difference to help others. Enjoying life & learning.
Dr Jon Reid Ⓥ @JonReidOBU
5K Followers 795 Following Academic: SEND SEMH 'Vulnerable' & Excluded CYP Ex DH: Sec SEMH Sp Sch MBPsS FRSA SFHEA @irct_uk Trustee #CompassionEDRevolution ✊ #Compassionx3 👊
Jane Nolan FCCT @janenolanOAT
974 Followers 1K Following Director of Inclusion @OrmistonAcads SEND, safeguarding, mental health, behaviour across 42 academies; TES Headteacher of the Year; #SEND parent
Paul Brand @PaulBrandITV
193K Followers 2K Following UK Editor @itvnews. Presenter @ITVTonight @LBC. 3 x Royal Television Society winner 2023. Award-winning podcast Partygate: The Inside Story👇
Philip Sime @PhilipSimeITV
19K Followers 9K Following Health & Science Producer @ITVNews @ITN | Got a story? DMs open or email: [email protected]
“Prof” David Clar.. @D_M_Clark_
2K Followers 2K Following #Bipolar diagnosed; not defined. Experience in public services reform. “Prof”, Lived Experience. Sharing #mentalillness to #mentalhealth realness.
Hannah Devlin @hannahdev
21K Followers 2K Following Science Correspondent for The Guardian. Get in touch: [email protected] or DM.
Virginia Alliance for.. @VAAlliance4PA
47 Followers 66 Following Virginia families & supporters fighting for awareness, training & insurance coverage for Pediatric Acute-onset Neuropsychiatric Disorders (PANS/PANDAS)
Karen M @Shainie19
37 Followers 175 Following
Clare McGinty @McgintyClare
31 Followers 230 Following
SEND & EHCP Consultan.. @SENDconsultant
7K Followers 7K Following Independent professional #advocate helping families through all aspects of the #SEND & #EHCP process. Free support: https://t.co/PyLzE7XUYM
Dr TINA RAE @DrTinarae
8K Followers 3K Following Child Psychologist, prolific & award winning Author focusing on mental health of CYP & Mixed media Artist #wellbeing #mentalhealth #psychology #nurture #art
Carrie Anna McGinn @Carrie_McGinn
1K Followers 2K Following Post-infectious illness advocate | #PatientPartner | Health Professional | https://t.co/NHXmWbl7bd. | She/Her/Elle | #MECFS #EMSFC #POTS #LongCovid #CovidLongue
Todd Maderis, ND @dr_todd
3K Followers 224 Following Specializing in treating the cause of complex chronic illness #LymeDisease, #MoldIllness, #MCAS #LongCOVID #MECFS #autoimmune
Jo Twiby @JTwiby
664 Followers 1K Following Executive Director, The Exchange Partnership at Delta Academies Trust. NCLT trustee. UCL MBA student. Paddle-boarder and proud mum of three. Views my own.
Dr Mohit Mandiratta @DoctorMoMan
1K Followers 2K Following GP Partner | GP Trainer | Resident GP on @BBCBreakfast | Evidence-based Tweet-ments only | Views my own 🙏 Insta 📷: thedoctorwillseeyounow 🇬🇧🇮🇳@CharmingAngelCo I wonder how many adults are actually misdiagnosed PP people
@CharmingAngelCo Thanks for raising awareness my children would never have got the help they needed without it.
If SEND staff aren't aware of these conditions they aren't serving the growing community of children being flattened by 🍳🐼Please ➡️staff in the direction of #PansPandasHour CPD Link 🧵@teachwestlondon @TwynhamLearning @IOE_London @SCastro_Kemp @ProfJulieAllan @SOEBristol
The PPN presentation library consists of a variety of topics related to PANS/PANDAS including past CME learning activities. Watch for free, on demand. No account needed. pandasppn.org/presentations
📰 Exciting Coverage in @TheEconomist! 🌟 In this insightful piece, journalist @natashaloder highlights PANDAS as a key example of the growing body of research supporting the link between infections and neuropsychiatric symptoms. 🔗 economist.com/science-and-te… #PANS #PANDAS
Hello @Headteacherchat 👋it's #PansPandasHour. Give a share to any SEND staff. It's FREE accredited CPD!
🌟 Thank You for Joining Us! Next Teacher Training Sessions Announced! 📚✨ 📅 Save the Dates for Our Upcoming Training Sessions: May 7th May 22nd June 10th June 25th July 10th 🌐 Book Your Spot Now: eventbrite.co.uk/o/pans-pandas-… #PANSPANDASTeacherTraining #ALNWA
#PansPandasHour Run don't walk and send this to all your ITT's. Too many staff remain woefully uneducated about a condition that they are often at the front line of! @education_uw @AlexandraSewel3 @DrBethBell @DeptEdYork @umartoseeb @KathrynAsbury1 @laura_j_fox @WandsworthSCITT
🔍 Notice Changes in School? Think PANS/PANDAS! 🎓 Free CPD Certified Training: PANS PANDAS UK offers free CPD certified training for education professionals 📅 Book Your Training Now: Visit eventbrite.co.uk/o/pans-pandas-… to secure your spot #EducationMatters #EduTwitter #SEND #SEMH
More than 1m people have read this post about a boy with PANS/PANDAS, a rare and poorly recognised condition that with prompt attention is very treatable. Read my article about PANS/PANDAS from last year...
It's #PansPandasHour and lots of things to celebrate. Have you seen the latest news? @beccyjanehealey @PhilipSimeITV @LucyKapasi @BeccaBarry @RealDeniseWelch @DrTinarae @Dranjaliphysio2 @DrNighatArif @DrRanj @carolvorders @MichaelRosenYes @LongCovidKids
📢 Exciting News Alert! 🌟 We're thrilled to announce the beginning of a groundbreaking initiative: The development of UK clinical guidelines for PANS and PANDAS! Read the full blog post here: panspandasuk.org/post/work-begi… #PANS #PANDAS #Healthcare #ClinicalGuidelines #UKHealthcare
#PANDAS - paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections: newspaper report on one case (sudden personality change, reversed with antibiotics). Via @CharmingAngelCo; cc. @LindaLaHughes9, @LonnieRhea, @DrJudyStone: devonlive.com/news/devon-new…
#PansPandasHour Are you aware of the changes afoot with these devastating conditions? @The_Real_JSP @EamonnHolmes @reallorraine @Rylan @RobbieRinder @StaceySolomon @DrRanj @StephLunch @benshephard @susannahreid100 @NolanColeen @AlisonHammond edpsyched.co.uk/blog/pans-and-…
I’m honored to be part of the PPN Scientific Advisory Board. Hopefully we can push forward the transition from bench to bedside through involvement of pharmaceutical companies and physicians to bring a cure for PANDAS/PANS and OCD.
It's #PansPandasHour and we are busy celebrating all things #ChallengePansPandas. Fancy getting the kids involved in a lovely art competition? panspandasuk.org/challenge-art-…
#EduSundayFunday Lovely little activity to keep the kids busy this Sunday. Free entry with donations to @PandasPans welcome for those who are able. justgiving.com/page/rebecca-w…
If you are affected by PANS PANDAS and live in the Yorkshire & Humber region, this new support group is just for you.
Georgia families whose children are diagnosed with PANS or PANDAS say they cannot find medical providers who will treat their kids. | Here’s what families are doing. | via @11Alive 11alive.com/article/news/s…
#PansPandasHour For any staff with no PansPandas training the charity @PansPandasUk offer CPD eventbrite.co.uk/e/supporting-c…
🚨 ATTENTION PARENTS! 🚨 Imagine being told you need parenting classes when your child is battling significant anxiety, OCD, urinary frequency, poor balance, and deteriorated writing after an infection. Shocking, right? Yet, this was the reality for a parent I met at my clinic…
PANDAS is a disease associated with neuropsychiatric issues, like OCD, in a subset of children infected with strep. However, PANDAS is considered controversial by many physicians who simply aren't taking the time to review the medical literature.
In England, data reporting on Invasive Group A Strep has been completely stripped of all information about deaths caused by the infections.
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