Emma McNally @EmmaJMcNally
Mum of 2 beautiful children 👦 👧 Campaigning with everything I have raise awareness & improve medical services for people with #tourettes CEO @tourettesaction Joined January 2022-
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We have 15 places left for our Fest For All in August! This event is for anyone living with Tourette Syndrome, to attend with their family. Apply here! buff.ly/4aWbIEk #Tourettes #Tourettesyndrome #Wales #TourettesWales
Who’s in?
Were you inspired by the thousands of runners who took on the iconic #LondonMarathon at the weekend? Thinking of doing it next year? The ballot closes today, what are you waiting for!! Register here buff.ly/4b8Ryqh #RunTogether #RunForTourettesAction
Join us today in Basingstoke! Both Steph our wonderful volunteer and Jenna from TA will be raising awareness for our Tourettes community at The Basingstoke District Disability Forum (BDDF) Awareness Day providing support to those in the local community. #Basingstoke #Tourettes
Our lovely Ione spoke to the wonderful Jess Thom @touretteshero about all things OT and it's wonderful! 💚 Take a read here: buff.ly/3w32xCJ #Tourettes #Tourettesyndrome #Neurodiversity
The TA team has definitely been touring the UK lately! Here's Anne-Marie at the Snap Parent Carer Forum in Central #Bedfordshire - a local community event where the forum launched a new booklet to support parents, teachers & professionals and #neurodiverse families in their area
As mentioned today @MattHancock to be an inclusive neurodivergent bill, you need to include #Tourettes #dyscalculia #dyspraxia it can’t be ring fenced to ADHD, autism & dyslexia. We are all suffering from the same underlying problems with under / late diagnosis / lack of support
As mentioned today @MattHancock to be an inclusive neurodivergent bill, you need to include #Tourettes #dyscalculia #dyspraxia it can’t be ring fenced to ADHD, autism & dyslexia. We are all suffering from the same underlying problems with under / late diagnosis / lack of support
This postcode lottery rings true for Tourette’s and is a huge problem for families outside of London. There are few commissioned services for #Tourettes even though prevalence is 1 in 100 - it is NOT rare but gaining a diagnosis and treatment is extremely difficult
This postcode lottery rings true for Tourette’s and is a huge problem for families outside of London. There are few commissioned services for #Tourettes even though prevalence is 1 in 100 - it is NOT rare but gaining a diagnosis and treatment is extremely difficult
Heading to London to attend parliament where @MattHancock will unveil the #Neurodivergent Conditions Screening, Teaching and Training Bill. Urging Matt to ensure #Tourettes is represented & receives equal focus in the provisions. My comments here linkedin.com/posts/emma-mcn…
“ITS THE POLICE” It has been a wonderful day at New Scotland Yard training the @metpoliceuk on all things tics and TS including how to support members of the public and colleagues with the condition #tourettes #ADHD #livedexperience #occupationaltherapy #inclusion #Solidarity
“ITS THE POLICE” It has been a wonderful day at New Scotland Yard training the @metpoliceuk on all things tics and TS including how to support members of the public and colleagues with the condition #tourettes #ADHD #livedexperience #occupationaltherapy #inclusion #Solidarity
Ione and Pippa are today at the @metpoliceuk summit on Neurodiversity at New Scotland Yard today and we are SO delighted to be here telling everyone about Tourette Syndrome and sharing stories on inclusion 💚 #Tourettes #Tourettesyndrome #Neurodiversity #MetPolice
A good friend of mine is running the #londonmarathon2024 for @tourettesaction . He’s a teacher and he has gone above and beyond to educate the children on all things Tourette’s. Go on Chris you’ve got this 🙌🏼 donate here ➡️ justgiving.com/page/chris-lon… #londonmarathon2024
Rishi Sunak today announced plans to review the fit note system for people who aren’t well enough to work, with a focus on mental health. His speech continues a trend in recent rhetoric that is stigmatising, harmful, and inaccurate.
"The proposals announced today seem driven by a desire to make spending cuts regardless of the very serious impact this will have on many disabled young people". Read more from Contact: contact.org.uk/about-contact/… #benefits #disability
At several key moments Occupational Therapists have suggested tools that have transformed what's possible for me. OT has a lot to offer those of us with tics but it's often underutilised. So I sat down with @Neurodiverse_OT to talk all things OT touretteshero.com/2024/04/20/occ… #Tourettes
A local Durham resident is trying to improve local services & has written to her local MP & health board asking them to put improvements in place. A meeting will be taking place later this month. Please email [email protected] if you would like to be put in touch.
Well done Samantha, the more we stand up and fight for what should be readily available the more likely things will change. Things shouldn’t be this hard but if we want change to happen we need to highlight it. I encourage everyone to write to their MP and ICB and complain
Well done Samantha, the more we stand up and fight for what should be readily available the more likely things will change. Things shouldn’t be this hard but if we want change to happen we need to highlight it. I encourage everyone to write to their MP and ICB and complain
💚 THIS SUNDAY - London Marathon 2024 💚 We will be hosting the #Tourettes Action cheer stand in the Surrey Quays area, just before the mile 9 marker on the left side of the road. We have plenty of pompoms & rattles to go round, so if you’re in London, please come and join us 🥰
We're looking for 4 individuals, diagnosed with #Tourettes willing to travel to London on the 22/04 for a photoshoot. We're seeking a diverse representation of people. Please contact us at [email protected] before MIDNIGHT tonight sending your:⭐Name⭐Age⭐Photo
With just one month to go until Tourette Awareness Month, it's time to gear up for a month-long celebration of understanding, acceptance & empowerment. Contact [email protected] to get involved Together, let's make Tourettes Awareness Month 2024 our most impactful yet!
Tourettes Action @tourettesaction
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42K Followers 5K Following All nursing, midwifery and care staff have a key contribution to make to the delivery of the Long Term Plan. We are all #teamCNO. Account Monitored Mon-Fri 9-5.Seren Jaye 🦋 | Ott.. @serenhaspockets
381 Followers 300 Following Student Journalist with #Tourettes and 2 very dodgy eyeballs #DisabilityAdvocate #BlindA 2016 report by Early Intervention Foundation shows every £1 spent on early help saves £3 later, yet local authorities claim they don’t understand why costs of statutory services have spiralled? We need a neuro-inclusive, safe, nurturing education system(culture)for ALL children
NEW POST: Parent campaigners: We need to suspend the SEND Safety Valve programme: @CutScenesUK explains why, and how you can sign to help. specialneedsjungle.com/stop-safety-va…
I’m nominated for a Lifetime Achievement Award - I’m thrilled and honoured to get your votes. Thank you to all those who have voted so far.
PLEASE vote now for your UK Diversity Champions in a range of categories. @RoyalVolService @WomensInstitute @ThirdSector @ION_Diversity @ndin_law @KellanovaJobs @IBMUKI @Harbourenergy @LucyandYak @ASTRAZENECAUK @AbdnInspired @HansonRegan @JPAHealthComm @sypped @DrSusanYoung1
We have 15 places left for our Fest For All in August! This event is for anyone living with Tourette Syndrome, to attend with their family. Apply here! buff.ly/4aWbIEk #Tourettes #Tourettesyndrome #Wales #TourettesWales
Were you inspired by the thousands of runners who took on the iconic #LondonMarathon at the weekend? Thinking of doing it next year? The ballot closes today, what are you waiting for!! Register here buff.ly/4b8Ryqh #RunTogether #RunForTourettesAction
Join us today in Basingstoke! Both Steph our wonderful volunteer and Jenna from TA will be raising awareness for our Tourettes community at The Basingstoke District Disability Forum (BDDF) Awareness Day providing support to those in the local community. #Basingstoke #Tourettes
🎉 Congratulations to our incredible London Marathon runners of 2024!🏃♂️Your dedication, perseverance & miles of training inspire us all! Thank you so much from all of the #Tourettes community on raising over £17,000 so far! Applications now open to be our TA runner of 2025! 🏅
Such amazing news that our lovely past TA Champion, Wilamena, has been offered a full scholarship for a place on the music performance degree at the Royal College of Music in London! How amazing is that!!! HUGE congratulations Wilamena from all of us at TA! 🎉
Our lovely Ione spoke to the wonderful Jess Thom @touretteshero about all things OT and it's wonderful! 💚 Take a read here: buff.ly/3w32xCJ #Tourettes #Tourettesyndrome #Neurodiversity
The TA team has definitely been touring the UK lately! Here's Anne-Marie at the Snap Parent Carer Forum in Central #Bedfordshire - a local community event where the forum launched a new booklet to support parents, teachers & professionals and #neurodiverse families in their area
@EmmaJMcNally @MattHancock 👏 and "co-morbid" conditions often mask others so many neurodivergent people may be initially mis, or under diagnosed. So important to support the full spectrum.
@EmmaJMcNally I couldn’t believe it when I heard people can only be diagnosed in London!!!
We need to ensure all conditions are taken into account #dyspraxia #dyscalculia #tourettes @MattHancock
For far too long those with neurodivergent conditions - including ADHD, dyslexia and autism - have been part of the 'school-to-prison' pipeline. 🧵
This afternoon I made the case for my Neurodivergent Conditions (Screening and Teacher Training) Bill in Parliament.
The sooner neurodivergent children can be identified, the earlier they can access the vital support they not only need but desperately deserve.
For far too long those with neurodivergent conditions - including ADHD, dyslexia and autism - have been part of the 'school-to-prison' pipeline. 🧵
Access to diagnosis for neurodivergent individuals is a silent scandal. It can’t be right that 15% of children with SEND diagnoses live in the most affluent decile but only 6% in the most deprived. It’s because of unfair access This bill will help end this postcode lottery.
A huge thank you & a big shout out to the stakeholders who have come to Parliament today to support my Neurodivergent Conditions Bill. The support I’ve received has been incredible. For those coming to the public gallery, the bill will be read just after 2pm. See you shortly.
Just arrived at Westminster @MattHancock #neurodivergent conditions screening bill.
Heading to London to attend parliament where @MattHancock will unveil the #Neurodivergent Conditions Screening, Teaching and Training Bill. Urging Matt to ensure #Tourettes is represented & receives equal focus in the provisions. My comments here linkedin.com/posts/emma-mcn…
@EmmaJMcNally @MattHancock @tourettesaction @goldylookfleece Good luck Emma, really hoping it's a positive day for all!