Paula Scott @PaulaScottUK
Raising awareness of PANS PANDAS #itstimeforchange Essex Joined October 2018-
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Please be aware that a lot of infectious diseases currently circulating here at uncomfortable levels can cause PANS/PANDAS. ❤️👇
Please be aware that a lot of infectious diseases currently circulating here at uncomfortable levels can cause PANS/PANDAS. ❤️👇
When a community rises!❤️#ChooseYourChallenge event 2023 saw many wonderful people taking part in amazing challenges to raise awareness of conditions #Pans #Pandas & also a brilliant £50,000+ for @PandasPans #PansPandasHour This was just 1 such event 👇🏻 panspandasuk.org/post/amazing-a…
Many mental-health conditions have bodily triggers economist.com/science-and-te…
Many, many families bravely put themselves in the spotlight to raise awareness of the lack of recognition, support or treatment for those suffering with #Pans #Pandas @mctavishgal #PansPandasHour dailymail.co.uk/health/article…
If you are parent/guardian/family member/friend of child/adult with #Pans #Pandas or adult who continues 2 suffer please do continue 2 add to this thread to build a picture of the change that is desperately needed. It remains pinned to my page and is tweeted every #PansPandasHour
“When we say PANS is hard we mean it is really, really, really hard” #PansPandasHour
My Kid is Not Crazy: a search for hope in the face of misdiagnosis- cin... youtu.be/WJQT9-cQwIw via @YouTube #PansPandasHour
Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative! #PansPandasHour
🍋 A Big Thank You to Jessie and Harri for their fantastic effort in supporting the Challenge for PANS PANDAS UK. They planned and ran their own lemonade stand, raising £20 for our cause! More info available here - panspandasuk.org/challenge #ChallengeforPANSPANDASUK #ThankYou
#PANDAS - paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections: newspaper report on one case (sudden personality change, reversed with antibiotics). Via @CharmingAngelCo; cc. @LindaLaHughes9, @LonnieRhea, @DrJudyStone: devonlive.com/news/devon-new…
Educators please be aware you could make such a difference to a child’s life with understanding of conditions #Pans #Pandas #SEND #edutwitter #education #SENDTwitter #PansPandasHour
Educators please be aware you could make such a difference to a child’s life with understanding of conditions #Pans #Pandas #SEND #edutwitter #education #SENDTwitter #PansPandasHour
Hopeful @Hopesaxons
2K Followers 2K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection
Jane Bird @LindaLaHughes9
944 Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
PANS/PANDAS UK @PandasPans
4K Followers 893 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
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NB @np9000
750 Followers 1K Following Tick-Borne Infections & Pans/Pandas in the UK #Pans #Pandas #Lyme #Bartonella #Babesia #TickBorneInfections #MCAS #POTS #ME Views my own
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4K Followers 893 Following PANS/PANDAS UK provides support to families of children with PANS/PANDAS. We aim to raise awareness of an easily treated, often misdiagnosed condition in kids.
Notes to my boy ✉�.. @notestomyboy
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Cat in the Hat 🐈�.. @_CatintheHat
10K Followers 1K Following Mum • Lover of nature and clean, fresh air • Passionate about science • “Without data, you’re just another person with an opinion.”Blackpool pleasure beach was one of our favourite places. I’ve not been back since you’ve been ill , but one day maybe …. I love you mate ❤️#pans #pandas #panspandas #MedTwitter
Please be aware that a lot of infectious diseases currently circulating here at uncomfortable levels can cause PANS/PANDAS. ❤️👇
Thank you for reporting on the current increase in #whoopingcough and measles. We find that many illnesses such as #Covid #strep #ebv can trigger a misdirected immune response #PANS #PANDAS and ask for the public to be aware of the symptoms @drfariahmad @BBCBreakfast @PandasPans
When a community rises!❤️#ChooseYourChallenge event 2023 saw many wonderful people taking part in amazing challenges to raise awareness of conditions #Pans #Pandas & also a brilliant £50,000+ for @PandasPans #PansPandasHour This was just 1 such event 👇🏻 panspandasuk.org/post/amazing-a…
Many mental-health conditions have bodily triggers economist.com/science-and-te…
Infections can trigger a misdirected immune response causing inflammation in the brain. Psychiatric and neurologic symptoms can manifest due to the inflammation. To learn about the medical diagnosis of PANS/PANDAS, visit pandasppn.org/understanding.
Many, many families bravely put themselves in the spotlight to raise awareness of the lack of recognition, support or treatment for those suffering with #Pans #Pandas @mctavishgal #PansPandasHour dailymail.co.uk/health/article…
The PPN presentation library consists of a variety of topics related to PANS/PANDAS including past CME learning activities. Watch for free, on demand. No account needed. pandasppn.org/presentations
If you are parent/guardian/family member/friend of child/adult with #Pans #Pandas or adult who continues 2 suffer please do continue 2 add to this thread to build a picture of the change that is desperately needed. It remains pinned to my page and is tweeted every #PansPandasHour
PPN welcomes Dritan Agalliu, PhD to the Scientific Advisory Board! His research will lead to innovative, new treatments for those suffering from infection triggered neuropsychiatric symptoms. His findings will impact generations of children. pandasppn.org/agalliu-sab #PANS #PANDAS
🌟 Can your child's school rise to the challenge and make a difference for families affected by PANS and PANDAS? 🌈 📧Reach out to [email protected] to learn more and get started on your school's journey to make a difference. #ChallengeForPANSPANDASUK
“When we say PANS is hard we mean it is really, really, really hard” #PansPandasHour
My Kid is Not Crazy: a search for hope in the face of misdiagnosis- cin... youtu.be/WJQT9-cQwIw via @YouTube #PansPandasHour
Such unnecessary prolonged suffering, loss & sadness due 2 lack of appropriate treatment pathways. Prompt diagnosis & treatment is essential 2 prevent exacerbation of symptoms & gives best chance of recovery. Prompt treatment of subsequent flares also imperative! #PansPandasHour
🍋 A Big Thank You to Jessie and Harri for their fantastic effort in supporting the Challenge for PANS PANDAS UK. They planned and ran their own lemonade stand, raising £20 for our cause! More info available here - panspandasuk.org/challenge #ChallengeforPANSPANDASUK #ThankYou
#PANDAS - paediatric autoimmune neuropsychiatric disorders associated with streptococcal infections: newspaper report on one case (sudden personality change, reversed with antibiotics). Via @CharmingAngelCo; cc. @LindaLaHughes9, @LonnieRhea, @DrJudyStone: devonlive.com/news/devon-new…
Too many 👩🏫remain unaware of the devastating impact of #PansPandasHour. Free CPD is available and with the tidal wave MH issues in school is absolutely necessary eventbrite.co.uk/e/supporting-c… @ScittelsSchool @KingsbridgeEIP @mscitt @ExchangeITT @astra_hub @EastScitt @emttp @DurhamSCITT
"I thought he was having some sort of breakdown. I felt like we were losing him." Kyleigh Callow is the mother of 8-year-old Phoenix who suffers from PANDAS, a medical condition that can affect children's brain. For more support and advice, visit: @PandasPans @MindCharity
Run don't walk! There's still places left for the @PansPandasHour CPD! eventbrite.co.uk/e/supporting-c… Professional curiosity champions! Give your SEND pals a nudge! @OxfordDeptofEd @UniRdg_IoE @Anna_Tsakalaki @DrHelenBilton @ProfCarolFuller @EducationSheff @DanGoodley @KirstyLiddiard
🌟 Thank You for Joining Us! Next Teacher Training Sessions Announced! 📚✨ 📅 Save the Dates for Our Upcoming Training Sessions: May 7th May 22nd June 10th June 25th July 10th 🌐 Book Your Spot Now: eventbrite.co.uk/o/pans-pandas-… #PANSPANDASTeacherTraining #ALNWA
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