HCPA @HCPA11
Haemophilia Chartered Physiotherapists Association United Kingdom Joined May 2018-
Tweets1K
-
Followers406
-
Following290
-
Likes2K
Ankle arthrodesis can be carried out in #hemophilia on an outpatient basis! Data from Ireland presented at #wfh2024.
Srivastava on defining success #WFHCongress2024 Comprehensive care having such a large team is "not a measure of success but an apology for not being able to cure haemophilia"
Dr Glenn Pierce @gfp55 not pulling any punches in his criticism of @WHO and @isth in their new guidelines recommending the use of sub-optimal treatments for haemophilia. In many countries around the world, the risk of transmission of hepatitis and HIV remains. #WFHCongress2024
Skinner #WFHCongress2024 on the inexplicable and unsafe WHO decision to put PR Cryo on the core essential medicines list with non PR Cryo as an alternative. Safe CFCS relegated to the complementary list. This is crazy, retrograde and will cause morbidity and mortality
🔔 A first in the history of @wfhemophilia congresses: @HermansCedric just gave a talk about publishing in the @haemophilia_jnl 🗞️ at #WFHCongress2024, emphasizing that every paper should add a “new brick to the big wall of scientific knowledge” 🧱
Srivastava #wfhCongress2024 on the proposed @isth Haemophilia Guidelines. These have generated a lot of concern in the community. The GRADE methodology used is viewed as not suitable for a condition like haemophilia without understanding the real needs of patients.Result are 1/
Great job @physio_paul 👏🏻 So important to broaden our thinking around pain & always keep in mind that ‘Amount of joint damage correlates poorly to pain’ @HCPA11
Great job @physio_paul 👏🏻 So important to broaden our thinking around pain & always keep in mind that ‘Amount of joint damage correlates poorly to pain’ @HCPA11
#WFHCongress2024 continues! Wolfgang Miesbach leads the session on women with bleeding disorders, Mike Makris delves into the cardiovascular risks associated with elevated factor levels, and Paul McLaughlin discusses about future directions in pain management.
Happy #WorldHemophiliaDay 2024 #WHD2024 #LightItUpRed from all at the Haemophilia Chartered Physiotherapist Asoociation of the UK and Ireland @HCPA11 #AccessForAll
🚨 Last call for aspiring researchers! This is your last chance to apply for grants in #haemophilia. Explore grants of up to €40K for young researchers, up to €25K for AHPs, and up to €10K for short-term training! Apply now before it's too late: eahad.org/2024eahad-rese…
📢 Closing Date approaching! 2024 EAHAD Grants cycle is currently open. Research Grants and Training Fellow Grants available. Closing date 15th April. Application details 👇🏼👇🏼 @HCPA11 @EAHADnews @thecsp @_ISCP_ @WorldPhysio1951 #Haemophilia #BleedingDisorders
📢 Closing Date approaching! 2024 EAHAD Grants cycle is currently open. Research Grants and Training Fellow Grants available. Closing date 15th April. Application details 👇🏼👇🏼 @HCPA11 @EAHADnews @thecsp @_ISCP_ @WorldPhysio1951 #Haemophilia #BleedingDisorders
🎙️ Join us for a journey into the world of #haemophilia research! In our latest "Meet the Author", we sit down with Megan Kennedy as she shares her groundbreaking findings on the physical well-being of adults with moderate and severe haemophilia. academy.eahad.org/eahad/2024/mee…
🎙️Dive into the latest research on the well-being of adults with moderate and severe #haemophilia with Megan Kennedy. 🏃♂️Learn about the study's insights on physical activity, fitness, and cardiometabolic risks. academy.eahad.org/eahad/2024/mee…
Mark your calendar for the next Gene Therapy webinar on “Models for gene therapy worldwide" with Robert Klamroth, Wolfgang Miesbach, and chaired by Flora peyvandi. 📅 18 April ⌚ 18.00 - 19.00 (CEST) Register now: academy.eahad.org/eahad/2023/gen… More detailed information coming soon!
🎥Join us for a journey into the art of delivering a successful oral presentation with Julie Van Orne and BJ Ramsay. 🤝 In collaboration w/ the Nurses Committees of #EAHAD, @isth and @wfhemophilia academy.isth.org/isth/2022/nurs… 🧑🎓 Don't miss the first 2 webinars: academy.eahad.org/eahad/?menu=24…
📰 Check out the latest article from the #EAHAD Nurses Committee on the role of specialist nurses in handling BDs. Delve into the five primary functions of HNs and understand the evolving responsibilities due to innovative treatments across Europe. onlinelibrary.wiley.com/doi/full/10.11…
Join us for our monthly #physiotalk tweetchat! 👉The Impact of AI in Physiotherapy 🗓️Mon 19th February 🕗8pm GMT physiotalk.co.uk/2024/01/24/the……… #DigitalAHP #DigitalPhysio
📅 SAVE THE DATE: HCPA AGM will be held online on Thurs 18th April from 18:30 to 20:00. Teams link will be sent to HCPA members in the coming weeks.
Paul McLaughlin @physio_paul
565 Followers 797 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Brian O Mahony @Brianhemophilia
3K Followers 517 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
Dr Kate Khair PhD @katekhair
1K Followers 858 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Haemophilia Journal @haemophilia_jnl
1K Followers 312 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
haemnet @haemnet
1K Followers 363 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Dr Richard A Wilkins @RichardAWilkins
389 Followers 365 Following NIHR funded research fellow, University of leeds. Principal podiatrist Leeds Teaching Hospitals NHS Trust
Helen Manson @MrsM___
315 Followers 527 Following Mrs Mapsman to @mapsman, proud mum and Sister/Specialist Nurse in Bleeding Disorders Care. RCN NI Nurse of the Year ‘Team Manager’ 2023 Own opinions here.
Simon Fletcher @abookclubof1
582 Followers 586 Following A bemused husband, father, christian, researcher & PhD candidate. A lover of books & a thinker of weird thoughts. You have been warned.
April Jones 💙 @AprilHaem
364 Followers 193 Following Nurse Specialist for Haemophilia and other non malignant Haematology. Newcastle Upon Tyne, UK. Making a difference in Haematology ... I hope!
Laurence Woollard @TheWoollard
1K Followers 645 Following Director @PulseInSync | Stalwart advocate for informed patient choice | MSc candidate in Health Policy @imperialcollege | 📧[email protected]
Liz Carroll 💙 @LizCCarroll
898 Followers 952 Following Former charity CEO and cancer nurse, with a passion for people and campervans!
Radoslaw Kaczmarek @RKaczmarekDr
2K Followers 5K Following Researcher | #immunology | #gene therapy | #hemophilia | #glycobiology | IU School of Medicine/Hirszfeld Institute
Quateles @quateles25467
0 Followers 35 Following
Gebreamlak A Kefale @GebreamlakK
234 Followers 3K Following A health care professional work in government hospitals
Hemophilia Associatio.. @Hemophiliany
15 Followers 90 Following The Hemophilia Association of New York has provided people with bleeding disorders support and aid since 1952.
Hemophilia Free India @HemophiliaX
158 Followers 316 Following a dream.. that is.. life without pain
Mukta K Jaiswal @MuktaKJaiswal
8 Followers 181 Following COORDINATOR WGHFI EAST INDIA CHAIRMAN WGHSRC RANCHI JHARKHAND.
Ruby @Ruby1173661
0 Followers 22 Following
simon mbugua @mbuguakuhunya
51 Followers 799 Following
Maj Friberg Birkedal @BirkedalMaj
30 Followers 36 Following
Opinion Health @OpinionHealth
749 Followers 2K Following A Global Healthcare Research company based in London. Every year, we engage with thousands of patients with rare diseases across the globe.
Lourdes Pérez @LourdesPG4
708 Followers 1K Following Trabajadora Social , Patient Advocate Gerente en @fedhemo Amante de las pequeñas grandes cosas que ayudan a cambiar el mundo #TSSanitario #pacientes
Abigail Novakova @PalomaaSofia
16 Followers 556 Following
Mauro Davoli @MauroDavoli2
19 Followers 81 Following Médico Hematologo. Docente por concurso en la UNR. Director Médico de la Fundación de la Hemofilia de Santa Fe Argentina. Presidente de AAHDA. Hincha de Central
Allison Vetter @vetter_allison
1 Followers 13 Following
Alessandra Vinci @alole08
17 Followers 164 Following
Roisinnic @ni_charra
158 Followers 325 Following Paed ICU nurse Loves rugby wine and chocolate ideally at the same time
Sarah Mangles @SarahDo31939748
118 Followers 189 Following
CellCounter @CellCounterApp
109 Followers 568 Following I am the Cell Counter App! Please follow me to hear about my cell counting adventures! buy me from the Apple App Store
StevieDarkSide @StevieDS
664 Followers 2K Following #FullStackWebDeveloper #DJ, #Gamer, #DigitalArtist, #Web3 #XR #AR #MR Developer #TestPilotOfTheFuture https://t.co/Xch8GSEAdw
SOHAN Jat @JATSohan1
65 Followers 1K Following
Ilenia Calcaterra, MD.. @IleniaCalcater1
66 Followers 220 Following Specialist in Internal Medicine, Assistant Professor at Federico II University, Naples
Siwan Angharad @siwan_angharad
59 Followers 313 Following Cymraes, Haematology Advanced Nurse Practitioner & Survivor ❤️
Empowering Minds @Empower_Minds
46 Followers 131 Following Empowering Minds Society for Research & Development is a not-for-profit organisation working for the marginalised children, youth, women, and elderly.
Emma Buffery @emma_buff
19 Followers 83 Following
DKV Salud (ES) @DKVSeguros
40K Followers 24K Following Somos activistas de la salud. Por eso ofrecemos seguros y servicios de salud. ¿Eres de los nuestros? Atención al cliente: @DKVResponde Normas https://t.co/Jh7YFXXPcK
WOMEN Study @WOMENstudy_Ire
30 Followers 51 Following Our aim is to understand menstrual health, bleeding experiences and physical activity participation in women/people with the potential to menstruate in Ireland.
survey know @SurveyKnow
344 Followers 3K Following SurveyKnow is professional data collection agency that helps their client to target the audience and help in their research studies in various fields
nihalify 🍄 @nihalify
225 Followers 787 Following Cityzen. Physiotherapist. movies maketh life beautiful.
Mr Santosh Kumar Jais.. @Santosh27465653
198 Followers 2K Following Assistant Professor PA.& Pol Sc SSJDC Boreo SKMU Dumka Secretary, HSRC Ranchi Jh. Member SARC NHM Jh HFI. Delhi,JSCCW.,IRCS.,EC Member Hemophilia Federation I
Gerard Crotty 🇺�.. @gmcrotty
29K Followers 32K Following Blood doctor (consultant haematologist). https://t.co/gDOLTsUPvV Past President of IHCA. Personal views. Retweets are not endorsements. #QI
Girl Bleeder @HemoIX
124 Followers 610 Following 🌊🌊Speaking truth to power in the Hemphilia Community since 1996. No plan to stop✊🏻✊🏽✊🏿
Rajiv @rajiv_bangalore
144 Followers 2K Following - Heading Design @xrlucidpvt - Co-Founder Hemophilia Society Bangalore Chapter - Volunteer @HemoIndia - Advocacy for #DEI, #RareDiseases, and #Climatechange
Hemophilia Society of.. @HemophiliaMsia
258 Followers 56 Following A National Member Organisation under World Federation of Hemophilia
Bonnie Charles @Bonniecharles94
76 Followers 136 Following mum of 2, self employed, woman living with haemophilia A severe
chirivico 1990 @victorh20254154
2K Followers 5K Following ingeniero civil, especialista en construcción sostenible. Cali mi ciudad amada, mi valle del Cauca.
ANGELA WALKER REPORTS @AngieHWalker
2K Followers 5K Following Video journalist, podcaster & former BBC reporter. Shining a light on under-reported issues. Let me tell your story. https://t.co/g5AfARRCEh
Nicola Fenton @NicolaFenton14
1 Followers 46 Following
Priyanka Raheja @bcndoc
306 Followers 490 Following Haematologist from Barcelona (Vall d'Hebron Hospital), currently at the Royal London Hospital Haemophilia Centre.
One Chain Immunothera.. @onechaintx
1K Followers 757 Following Spin-off company of the @Menendez_Lab, @CarrerasIJC & @icreacommunity, aiming to develop CAR-T candidates as a treatment for oncological diseases.
Valeska Becker @vale_beckerb
136 Followers 164 Following fan del teatro musical, el chocolate, artista amateur, amante del té y mi CV dice enfermera.
Paul McLaughlin @physio_paul
565 Followers 797 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Brian O Mahony @Brianhemophilia
3K Followers 517 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
Dr Kate Khair PhD @katekhair
1K Followers 858 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
flora peyvandi @flora_peyvandi
2K Followers 411 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Haemophilia Journal @haemophilia_jnl
1K Followers 312 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve
haemnet @haemnet
1K Followers 363 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Dr Richard A Wilkins @RichardAWilkins
389 Followers 365 Following NIHR funded research fellow, University of leeds. Principal podiatrist Leeds Teaching Hospitals NHS Trust
Helen Manson @MrsM___
315 Followers 527 Following Mrs Mapsman to @mapsman, proud mum and Sister/Specialist Nurse in Bleeding Disorders Care. RCN NI Nurse of the Year ‘Team Manager’ 2023 Own opinions here.
Simon Fletcher @abookclubof1
582 Followers 586 Following A bemused husband, father, christian, researcher & PhD candidate. A lover of books & a thinker of weird thoughts. You have been warned.
Opinion Health @OpinionHealth
749 Followers 2K Following A Global Healthcare Research company based in London. Every year, we engage with thousands of patients with rare diseases across the globe.
Maj Friberg Birkedal @BirkedalMaj
30 Followers 36 Following
Lotte Haverman @LotteHaverman
131 Followers 127 Following
Asad Naveed @dr_asadnaveed
15K Followers 405 Following MBChB, MPH. Posts on research, academia & AI. Fulbright & QES Scholar. Postdoctoral Fellow in Trauma @UofTTrauma/@unityhealthto Views=mine
Canterbury Christ Chu.. @CanterburyCCUni
22K Followers 1K Following Official twitter for Canterbury Christ Church University (CCCU). Answering tweets Mon-Fri, 9am-5pm.
Roisinnic @ni_charra
158 Followers 325 Following Paed ICU nurse Loves rugby wine and chocolate ideally at the same time
Evelien Krumb @krumbeve
55 Followers 104 Following MD, PhD candidate, hematologist in training 👩🏼⚕️• Social media editor of @haemophilia_jnl 🗞️
Sarah Barnes Pygott @sarah_pygott
76 Followers 109 Following R&I Risk & Compliance Officer for The East Kent Hospitals University NHS Foundation Trust.
Gary Benson @GaryBen75666640
367 Followers 34 Following Haematologist with a passion for haemostasis. NI Haemophilia Centre Director. Husband, father, Lego expert
WOMEN Study @WOMENstudy_Ire
30 Followers 51 Following Our aim is to understand menstrual health, bleeding experiences and physical activity participation in women/people with the potential to menstruate in Ireland.
Anna Clemens, PhD @scientistswrite
47K Followers 4K Following I help researchers get published in high-ranking journals without lacking structure in the writing process 👩💻 Free training: https://t.co/ifhP8EvwHg
CSL Behring @CSLBehring
10K Followers 518 Following We are driven by our promise to help patients lead full lives. See our community guidelines: https://t.co/kApe7qvO6t
Sanofi @sanofi
152K Followers 224 Following We chase the miracles of science to improve people’s lives. Interactions with this account must comply with the Terms: https://t.co/mXmuqtkJaU
Pfizer UK @Pfizer_UK
23K Followers 208 Following Breakthroughs that change patients' lives. Follow for all the latest from Pfizer UK. Community guidelines: https://t.co/Rq7edN9zs8
Megan Brown MD @MeganBrownMD
2K Followers 991 Following Pediatric Hematologist. Spartan. Jesus follower. Passionate about the intersection of hemostasis and women's health. All views are my own.
Harriet Talbott @HarrietTalbott
117 Followers 112 Following Lecturer and Researcher at @uniofhull interested in utilising computational tools to investigate pathologies of the foot and ankle
#hellomynameis Diarmu.. @diarmuiddenneny
2K Followers 2K Following Physio, co-production, PAR, prescriber, pain, psychologically informed, mindfulness, cold water swimming, PhD candidate (ESRC fellowship). Past PPA chair He/him
Roche @Roche
246K Followers 1K Following We advance science so that we all have more time with the people we love. Read our community guidelines: https://t.co/7k1HdbdrYL
Stuart Wildman @swildmanphysio
5K Followers 2K Following Dad, Advanced MSK Physio + Consultant MSK Sonographer @nhsuk ,Hon lecturer @brunelmskultra1, @case_news @thecsp Director @mskultrasound.
ISTH President @IsthPresident
3K Followers 596 Following @ISTH President, Flora Peyvandi, MD, PhD, prof of internal medicine at Univ of Milan & Director of Angelo Bianchi Bonomi, H+T Center, IRCCS Maggiore Hospital
Melanie Lindsay @MelanieBladen
2 Followers 3 Following
stephen Classey @ClasseyStephen
2 Followers 4 Following
Blood MedEd @bloodmeded
219 Followers 861 Following Here for sharing information & bringing awareness to 🩸 disorders &🩸diseases. RTs ≠ endorsements. Help us grow, follow us! #hemophilia #cancer #scd #dvt
Malta Bleeding Disord.. @MBDSociety
67 Followers 124 Following The general purpose of the Malta Bleeding Disorders Society is to provide a fellowship and support for people with #bleedingdisorders and their carers
Rob Mast @RMastPhysio
3K Followers 1K Following APP Physio/MSK Sonographer, Hon.lecturer PgCert. MSK US Brunel Uni, PrescribeFounding Tutor https://t.co/iykwgUdg9k, Private Injections https://t.co/bPsSMmijeP
@davebakerphysio @davebakerphysio
3K Followers 1K Following APP prescribing, injecting and ultrasound, Director @completephysio contributor https://t.co/vJBvYzdZPv Hon lecturer @Bruneluni Chair @ACPOM_IT vws own
Daniel Armitage @Dannythephysio
155 Followers 200 Following
sarah kane @sarahka25048353
10 Followers 75 Following
ATHN @ATHNnews
358 Followers 499 Following At ATHN, our goal is to secure data, advance knowledge, transform care—and ultimately improve the lives of people with bleeding and clotting disorders.
Robert Klamroth @KlamrothRobert
53 Followers 14 Following
Jan Blatný @JanBlatn1
565 Followers 37 Following Účet pro vysvětlování a komunikaci kroků MZdr ČR, a nejspíše i celé vlády. Budu komunikovat ve dne i v noci. Je to potřeba!!!
ILIANA CHATZIFRAGKOU @ILIANAPhysio
346 Followers 577 Following Clinical Physiotherapist & Swimming teacher level 1. Boccia Referee.Mother of 2.
Marlene Beijlevelt @MarleneBeijl
43 Followers 117 Following
Jefferson Courtney @JeffMCourtney
126 Followers 483 Following Policy and Public Affairs for @HaemoSocUK. I also love food, craft beer and gigs. Views expressed are my own and don't necessarily represent the views of THS.
Ray McKeown @thedatamanager
90 Followers 192 Following Data Manager at NI Haemophilia Comprehensive Care Centre, Belfast City Hospital. Views, tweets and/or opinions are my own unless they are quotes or retweets.
BioMatrix Bleeding Di.. @BMX_BD
1K Followers 398 Following BioMatrix Specialty Pharmacy helps bleeding disorder patients live healthy. Follow us for content focused on bleeding disorders.
Mushtaq Bilal, PhD @MushtaqBilalPhD
228K Followers 34 Following I simplify the process of academic writing | Helped 5,000+ become efficient academic writers with AI | Work @SyddanskUni | Join 600 using https://t.co/SKfrXx2V5q
HCD Economics @HCDEconomics
178 Followers 316 Following Health economics experts. Part of the Prime Global group
Professor Chris Neste.. @ChrisNester10
2K Followers 2K Following Proud allied health professional, Prof at Keele Uni, lower limb health fan, human & encouraging others to be likewise through my leadership style.
Bethany Samuelson MD,.. @bsamuelson_md
1K Followers 677 Following Hematologist, wife, mama to 2. Passionate about equal care and representation in research for women and all patients with bleeding disorders. Tweets my own.
Heme PT @lmvolland
396 Followers 610 Following Translational Health Scientist in the making, #bleedingdisorders, #painscience, #WGPPM, #impsci, lover of positivity and kindness, all views are my own
MediCom Medical Educa.. @medical_medicom
345 Followers 2K Following MediCom is dedicated to the development & provision of interactive, engaging & clinically relevant continuing education activities for HCPs. #ONC #CVD #HEM
FionaRobinsonPhD @FRobinsonPhD
154 Followers 269 Following Consultant, medical writing and editing. Passionate about empowerment through knowledge.
James Blunt @JamesBlunt
2.2M Followers 100 Following Cockney rhyming slang for the good stuff; Proof that one song is all you need. New album "Who We Used To Be" out now. On tour in 2024.
World Physiotherapy @WorldPhysio1951
34K Followers 357 Following World Physiotherapy is the sole international voice for physiotherapy, representing more than 600,000 physiotherapists through 128 member organisations
Valérie-Anne Chantra.. @VAChantrain
4 Followers 13 Following
Justine Musiime - MSc.. @JustineMusiime
4K Followers 5K Following Physiotherapy Lead & Shadow Board Member @HCTNHS |EoE AHP IR Lead @NHSEngland till March24|@AGILECSP East Rep| @theCSP EDB committee |Frailty |Health EquityMerel Timmer is now opening the session "Long-term joint health monitoring in hemophilia: from childhood to adulthood" at #WFHCongress2024 focused on monitoring joint health in PWH, early detection of synovitis and managing MSK issues in older adults with bleeding disorders.
Everything's set for @flora_peyvandi's presentation on the current status of factor concentrates and future possible therapeutics at #WFHCongress2024
@sortoutbleeding Michelle Lavin, member of the #EAHAD Women and girls with bleeding disorders Working Group, is now opening “Diagnosis and Treatment of von Willebrand Diseas3 in 2024 and Beyond” session at #WFHCongress2024 alongside Robert Sidonio.
#EAHAD President Jan Blatny takes the stage to explore the question "what should be the target for prophylaxis adequacy?" on the last day of the #WFHCongress2024
"The purpose of personalised medicine is to do the best for your patient with the resources you have " @EAHADnews President Jan Blatny at @wfhemophilia 2024 🇪🇸
@AnnaJWells_PT @HCPA11 @SarahDo31939748 @DStephensen68 @HHFTnhs @HHFTResearch Great stuff so important to move the focus towards function and away from arbitrary pain scales and ranges of movement which are meaningless without context.
Concerns flagged that draft #haemophilia guidelines from @isth could create confusion & inconsistent access to treatment. The link between ABR & joint health & the impact of product choice on burden of disease & burden of disease is well established #WFHCongress2024
The audience at this morning's #WFHCongress2024 session on women & girls with haemophilia challenge us to change language that disadvantages women with bleeding disorders. We agree. bit.ly/4d9RKHl
Our Chief Executive @katehaemophili1 will be on BBC Radio Kent shortly to talk about the contaminated blood scandal. BBC regions across the UK are focussing on this issue today with special reports and interviews. #InfectedBloodInquiry
Thank you to the @wfhemophilia MDT committee for the invite to speak. A vital subject for further evaluation. Understanding the role of sex specific life experiences on underlying bleeding disorder care is a significant gap in evidence #WFHCongress2024
Our very brilliant @CathyAH1980 looks at the differences between men and women in ageing with bleeding disorders and how there is very little evidence to determine these and invites further research into this area. #WFHCongress2024 #BleedingDisorders
At #WFHCongress2024 our posters share findings from our studies on #Glanzmann's thrombasthenia, #FVII deficiency, living with a milder #haemophilia bleeding phenotype, and the SEEK survey on work & productivity. Stop by to find out more and say hello! bit.ly/3xMo8zI
Dunn #wfhCongress2024 on Altuviiio ABR on prophylaxis decreased from previous 3.0 to 0.7. FVIII trough above 40% for 4 days and above 15% at day 7. Paediatric data: FVIII trough Day 1: 77%,Day 3: 34-41%, Day 4 :20-30%, Day 7 :6-7%.
Haemophilia therapy and Thrombosis. Hermans #WFHCongress2024
In their #WFHCongress2024 🌍🩸 #StateOfTheArt review, Johnny Mahlangu et al. identify critical stakeholders & essential needs for #hemophilia diagnosis & treatment in resource-limited countries & examine persisting challenges in #VWD care 👉buff.ly/3Jo90ex #OpenAccess 🟢
Chowdary #wfhCongress2024 lists non replacement therapies with emicizumab licenced, Concizumab licenced in Canada for inhibitors and the others under development. Exciting times
Novel drugs requests a full multidisciplinary team at HTC#Alok Srivastava#WFH
7 patients with Glanzmann Thrombasthenia have been dosed with the bispecific antibody HMB-001. Dosing likely to be every 14 days or less.
Very insightful panel discussion moderated by @HermansCedric with 3 gene therapy patients @Brianhemophilia from Ireland, Niclas Nilsson from Sweden, Paul Thompson from UK, with Greta Mulders from @EAHADnews Nurses Committee adding her extensive experience in #hemophilia…
We loved meeting Tineke at #WFHCongress2024. She has Type 1 #vWD & said: “I’ve had haematologists tell me I’m taking up their time when they should be seeing people with haemophilia.” ALL BLEEDING DISORDERS MATTER. Contact us to take part in our vWD survey bit.ly/3xMo8zI
Today @wfh Congress, Christine Lynn, on behalf of our amazing haemophilia nursing team, presents Belfast centre experience with novel therapies in VWD patients surgery @BelfastTrust. Possible thanks to skilled surgical teams, fabulous specialist lab staff and the best patients
Trends for United States
You might like
