Thuvia Flannery @thuvia2014
Leeds, England Joined June 2016-
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Happy #WorldHemophiliaDay 2024 #WHD2024 #LightItUpRed from all at the Haemophilia Chartered Physiotherapist Asoociation of the UK and Ireland @HCPA11 #AccessForAll
Equitable access for all starts with a diagnosis. For anyone with easy #bruising; #bleeding after #childbirth, #surgery or #dental work; heavy #menstrualbleeding e.g. >7 day #periods, changing sanitary products >2 hourly, clots >£1 or QoL. Seek medical help. #WorldHemophiliaDay
On World Hemophilia Day, @SustainableRich looks at a @haemjournal paper exploring challenges to accessing treatment for acute bleeding among people with haemophilia in Uganda. Read more on the Haemnet blog: bit.ly/3vWsMuA #WHD2024 #WorldHemophiliaDay #LightItUpRed
Happy #WorldHaemophiliaDay Marked on 17th April, which was the birthday of Frank Schnabel, founder of the @wfhemophilia Off into London for a board meeting of @HaemoSocUK Much to discuss! #Haemophilia #Hemophilia #BleedingDisorders
Patient's like Harry and Freddie have been having a great time at our Diabetes Teddy Bear Clinic where patients come to learn about their condition in a way that is playful and accessible for them and their families 🧸
Millie's Saturday Suppers 🍕🍕 Tonight's meals were kindly sponsored by Millie's very much loved football coach Helen. 💜🦋 We can't thank Helen enough for helping to feed the parents this evening ⚽⚽ @Leeds_Childrens @LeedsHospitals
Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of #haemophilia: a qualitative study - confirms that decision making is multifactorial & complex sciendo.com/article/10.247…
In a week when I've reported a 3rd ICH in a mild pwh in the period of 12 months, I think it's time for equitable access for all #bleedingdisorders. Whether it be haemophilia, VWD or other conditions; bleeding is impacting on life expectancy and quality of life #WHD2024
In a week when I've reported a 3rd ICH in a mild pwh in the period of 12 months, I think it's time for equitable access for all #bleedingdisorders. Whether it be haemophilia, VWD or other conditions; bleeding is impacting on life expectancy and quality of life #WHD2024
Happy Easter 🐣 🐇 Thank you for supporting us to bring some egg-citement this Easter @Leeds_Childrens @_VictoriaCentre and Leeds Motorcycle and MOT Centre. 💜 #workingtogether @LeedsHospitals
🚨The chairs of three haemophilia societies have told @JohnGlenUK the minister with responsibility for @bloodinquiry not to start a fact-finding 'tour' before confirming the government will pay compensation. @Clive_Smith_ @HaemophiliaScot @HaemophiliaNI haemophilia.org.uk/pi_posts/lette…
The Great North Swim is the UK's largest open water swimming event, held at the world-famous Lake Windermere. Take on the challenge as part of #TeamTHS and raise crucial funds for the Haemophilia Society. Find out more and sign up here haemophilia.org.uk/events/events-…
🎉 Exciting news! Bookings now open for the Sickle Cell Family Retreat 2024 at Whitemoor Lakes, 30th Aug - 1st Sept. Don't miss out on this unforgettable weekend of fun and connection. Apply now: bit.ly/scs-family-ret… 🏕️ #SickleCell #FamilyFun #Retreat2024
Have you used Voxelotor? We want YOUR input! Despite NICE's rejection, we're teaming up with Pfizer to appeal this decision. 🤝 Help us by sharing your experience with Voxelotor. Your feedback can make a difference! Contact us at : [email protected] to participate.
The Infected Blood Inquiry's Final Report will be published on Monday 20th May. In advance of the report, Inquiry chairman Sir Brian Langstaff has said: "No-one should be in any doubt about the serious nature of the failings..."
All Sickle Cell patients, caregivers, & relatives in London! Help improve ambulance care by sharing your experiences. Submit as a Microsoft Word doc to [email protected] by April 12. More information and questions can be found at: sicklecellsociety.org
Applications for the 2024 youth camp are closing very soon. There's still time to be involved in what will be an incredible weekend. Find out more and apply now haemophilia.org.uk/events/events-…
On March 12, 2024, Michele Salter and Iyamide Thomas presented at the 'Anti-racism in Healthcare' conference in Brighton. They showcased our collaboration with NHS Sickle Cell and Thalassaemia Screening Programme, addressing healthcare inequalities. #SickleCellSociety
🌟HELP LUCY WIN A BAFTA!!!!🌟 Lucy joined us at our Launch Event in February. She is truly inspirational. If you don't believe us, watch this 👇 Vote here: publicvote.bafta.org/po-cruises-mem…
🌟HELP LUCY WIN A BAFTA!!!!🌟 Lucy joined us at our Launch Event in February. She is truly inspirational. If you don't believe us, watch this 👇 Vote here: publicvote.bafta.org/po-cruises-mem…
#WorldKidneyDay Families not only worry about the physical health of their child but also the financial and emotional impacts for the family. We are here to help and support @Leeds_Childrens @LeedsHospitals #WorldKidneyDay
KeithaVaillancourt @KeithaVail72322
19 Followers 2K FollowingKirsten Cromie @CromieKirsten
103 Followers 173 Following Epidemiologist interested in health inequalities and long-term outcomes following childhood cancerThe Millie Wright Chi.. @millie_charity
267 Followers 908 Following Addressing inequalities in support for children with life threatening conditions. (Based at Leeds Children's Hospital).Laura Stubbs @lauranumberuno
35 Followers 107 Following Project Data Manager @UniversityofLeeds #PICANet Paediatric Intensive Care Audit Network Personal account 👋🏻CHORAL @CHORAL_RESEARCH
215 Followers 162 Following Improving health of children, young people and families and enabling equitable access to health and social care through a coordinated research infrastructureLynne Schofield (she/.. @lmschof
533 Followers 523 Following Paediatric PCD physiotherapist and NIHR Clinical Academic Research Fellow. All views are my own.Richard Feltbower @rgfeltbower
299 Followers 145 Following Epidemiologist @UniversityLeeds based in @LIDA_UK @LeedsMedHealth; childhood and young adult cancer outcomes; CHORAL Deputy Director; co-PI @PICANetAuditHannah Buckley - Seni.. @PICStato
322 Followers 590 Following Hannah Buckley - Senior Research Statistician @ Paediatric Intensive Care Audit Network #PICANet #pedsICU | PhD candidate | Ex Clinical Trials. All own views.Malia Butler @MaliaButle35407
112 Followers 3K FollowingConnie @connieklocke37
226 Followers 3K FollowingSullivan Hutchinson @SullivanHu19633
98 Followers 3K FollowingKyler Wu @KylerWu79491
94 Followers 3K FollowingColton Brandt @ColtonBran34716
110 Followers 3K Followingflora peyvandi @flora_peyvandi
2K Followers 411 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.Malta Bleeding Disord.. @MBDSociety
65 Followers 124 Following The general purpose of the Malta Bleeding Disorders Society is to provide a fellowship and support for people with #bleedingdisorders and their carersPhoughtha @phoughtha17389
15 Followers 2K FollowingVeronica Ciolini @Veronic49953243
24 Followers 327 FollowingMr Santosh Kumar Jais.. @Santosh27465653
197 Followers 2K Following Assistant Professor PA.& Pol Sc SSJDC Boreo SKMU Dumka Secretary, HSRC Ranchi Jh. Member SARC NHM Jh HFI. Delhi,JSCCW.,IRCS.,EC Member Hemophilia Federation IJenna Shardha @jennakumari
84 Followers 65 Following Specialist Occupational Therapist in Long Covid rehabilitation, Leeds Community Healthcare NHS trustHaemophilia Journal @haemophilia_jnl
1K Followers 311 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeveEm Campbell @_emcampbell
938 Followers 1K Following Health Equity Lead in NHS Community Services. Into wellbeing, communities, environment. Loves ideas & the small or quirky things that make a difference. She/HerMark Millen @markamillen
2 Followers 4 FollowingCarol 🌸 @CarolaViveysefe
389 Followers 993 Following Residente Hematología y Hemoterapia. H.U. de La Princesa🩸🔬💉RhianParry @raparry29
119 Followers 330 Following Haemophilia Clinical Nurse Specialist. Views are my own.Annette Bowyer @DrNetBow
111 Followers 153 Following Excited by new projects, new books and new travels. Does not like gravy. adopted Yorkshirer PhD.hjb @hjb1111
10 Followers 63 FollowingProf. Anna Tarrant (s.. @Profatarrant
4K Followers 4K Following UKRI Future Leaders Fellow @FollowingYFF. QL study of young fathers; co-creating father inclusive practice. Sociologist. All opinions/RTs mine. Occasional bake.juan castro @juan36222468
3 Followers 47 Following buenas soy una persona con hemofilia y estoy necesitando factor 8 que alto costo no hay ayúdeme porque tengo que operarme urgentekahryn hughes @KahrynHughes
2K Followers 3K Following Sociologist interested in poverty, time, process and practice. Keen to hear your thinking. All views my own.Curtiss Reid Coleman @CReidColeman
482 Followers 2K Following Social Worker/Social Media Advocate working with Hemophilia, HIV, Hep C and LGBT Rights. Stroke Survivor. I love animals, nature, travel.Shilpa Muth @ShilpaM54550582
255 Followers 1K Following Program Manager for 6th World Congress on Nursing Education & Health Care" | November 14-15, 2022 in Rome, Italy [email protected]Portsesahan @portsesahan
0 Followers 17 FollowingGroup Manager Bob Hos.. @Golf_One4
2K Followers 2K Following Working for North Yorkshire Fire & Rescue Service as a Group Manager for Hambleton, Richmondshire & Control.emna hammami @emnahammamihema
134 Followers 551 Following MD, Laboratory hematologist Young hemostasis specialistMartin Threadgold @FredgoldMartin
7K Followers 5K Following Retired Barber Yorkshire CCC member and Leeds United Season Ticket Holder. I have a fantastic wife a fantastic life 🐻❄️Denise Ross @DrDeniseRoss
658 Followers 808 Following Head of Healthcare Professionals Academic Development LTHT. ❤️R&I & PPIEP. Passionate about improving lives for our patients and our peopleProfessor Suzanne Mar.. @DrSuzanneMartin
1K Followers 850 Following Chief Allied Health Professions Officer Department of Health Northern IrelandRana Saifi @RanaSaifi16
196 Followers 219 Following Regional Manager Middle East at @Wfhemophilia Passionate about International Development. Views are my own. RTs are not endorsements.JCMorales @JCrisMorales
1K Followers 3K Following ”Esto de la Hemostasia..lo llevo en la sangre..”😌 #hemofilia #Coagulopatias Médico @SoterodelRio @ucchistus 👨🏻💻🏥 #SaludDigital @SaludSurOrienteSimon Fletcher @abookclubof1
574 Followers 584 Following A bemused husband, father, christian, researcher & PhD candidate. A lover of books & a thinker of weird thoughts. You have been warned.Belén del Río Lanza @abdelriolanza
357 Followers 1K Following Profesora marketing Universidad de Oviedo. Ilusionada por combinar Sanidad Pública + eSalud + Marketing = POR y CON el paciente. Viviendo con hemofilia.Sarah Johns @SarahJHaemNurse
100 Followers 75 Following Proud Haemophilia Nurse in Cornwall and UK. Passionate about education and development, and the value of nurses. Unashamed Brass Band geek!!Jessica 🆎➕ @jessica_sandham
129 Followers 562 Following Mama, married to my best friend, proud to work @AlderHey. Centre Director for Liverpool Childrens Haemophilia CCC, Trust Lead for Transfusion.Views my own.Rutendo @Rutendo_rm
72 Followers 55 Following Epidemiologist at @imperialcollege interested in sickle cell disease, health inequalities, infections and dementia. Previously at @LSHTMFred Piel 💙🖤�.. @FredPiel
403 Followers 290 Following Geographer/epidemiologist, Map maker, Cyclist. Environment/Health. Sickle cell disease/cystic fibrosis/inequalities. He/him.Kirsten Cromie @CromieKirsten
103 Followers 173 Following Epidemiologist interested in health inequalities and long-term outcomes following childhood cancerThe Millie Wright Chi.. @millie_charity
267 Followers 908 Following Addressing inequalities in support for children with life threatening conditions. (Based at Leeds Children's Hospital).Hannah Buckley - Seni.. @PICStato
322 Followers 590 Following Hannah Buckley - Senior Research Statistician @ Paediatric Intensive Care Audit Network #PICANet #pedsICU | PhD candidate | Ex Clinical Trials. All own views.Leeds ChildrensMayor @LSChildrenMayor
2K Followers 359 Following Engaging children in the process of democracy to influence change and become active citizens. All tweets on behalf of the Leeds Children’s Mayor.Adam Glaser @BaldAdam
226 Followers 81 Following Happy Dad, recovering chocaholic and labrador walker. Professor of Paediatric Oncology & Late Effects, University of Leeds.Richard Feltbower @rgfeltbower
299 Followers 145 Following Epidemiologist @UniversityLeeds based in @LIDA_UK @LeedsMedHealth; childhood and young adult cancer outcomes; CHORAL Deputy Director; co-PI @PICANetAuditCHORAL @CHORAL_RESEARCH
215 Followers 162 Following Improving health of children, young people and families and enabling equitable access to health and social care through a coordinated research infrastructureSickle Cell Awareness.. @SCAGOSCD
2K Followers 729 Following SCAGO is the largest patient organization supporting and advocating for families affected by sickle cell disease in Ontario. Learn more at: https://t.co/XSMYBtWaa4Coqual @Coqual_
3K Followers 406 Following Coqual is a global, nonprofit think tank that conducts research on diversity, equity, and inclusion in the workplace.Helen Bevan @HelenBevan
140K Followers 20K Following Leads/facilitates large-scale change. Professor of Practice in Health & Care Improvement @WarwickBSchool. Advisor @HorizonsNHS. Senior Fellow @TheIHI. Views ownProf Paul McGee @TheSumoGuy
22K Followers 2K Following Sunday Times best selling author. Motivational speaker. Instagram, TikTok @theSumoguyRana Saifi @RanaSaifi16
196 Followers 219 Following Regional Manager Middle East at @Wfhemophilia Passionate about International Development. Views are my own. RTs are not endorsements.Sick Cells @SickCells
3K Followers 661 Following National Advocacy Organization, Official Nonprofit.Sickle Cell Society @SickleCellUK
11K Followers 2K Following The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.Sickle Cell 101 @sicklecell101
5K Followers 205 Following Non-profit organization specializing in sickle cell education through the use of social media. The Sickle Cell Podcast: https://t.co/fnVW8O6VCMBloodStream Media @BloodStrmMedia
1K Followers 430 Following Bringing education and inspiration to those living with rare and chronic diseases. 🩸Jenna Shardha @jennakumari
84 Followers 65 Following Specialist Occupational Therapist in Long Covid rehabilitation, Leeds Community Healthcare NHS trustHaemophilia Journal @haemophilia_jnl
1K Followers 311 Following The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbevehjb @hjb1111
10 Followers 63 FollowingMANOJ SIVAN @sivanmanoj
3K Followers 394 Following Professor and Consultant in Rehabilitation Medicine, Healthcare Technology, Pain Medicine, Autonomic MedicineSocial Biobehavioural.. @UCL_SBB
5K Followers 3K Following Research Group @UCL_BSH led by @Daisy_Fancourt investigating how social factors affect health. WHO Collaborating Centre, @ArtsHealthECRN, Covid-19 Social Study4ward North Academy @4wardNorth
103 Followers 11 FollowingE.ON Next @eon_next
28K Followers 351 Following E.ON Next: We’re always working towards helping you get more out of your energy.Professor Suzanne Mar.. @DrSuzanneMartin
1K Followers 850 Following Chief Allied Health Professions Officer Department of Health Northern IrelandChristine Comer @DrCComer
790 Followers 1K Following Increasing AHP impact through research and evidence in clinical care #AHPsinResearch #Spinal Stenosis #MSK #Community Healthcare Research @NIHRAcademyProf. Anna Tarrant (s.. @Profatarrant
4K Followers 4K Following UKRI Future Leaders Fellow @FollowingYFF. QL study of young fathers; co-creating father inclusive practice. Sociologist. All opinions/RTs mine. Occasional bake.Susie Shapiro @shapiro_susie
649 Followers 334 Following Haematology Consultant (Haemostasis and Thrombosis), Oxford. Views my own.kahryn hughes @KahrynHughes
2K Followers 3K Following Sociologist interested in poverty, time, process and practice. Keen to hear your thinking. All views my own.The Haemophilia Socie.. @HaemoSocUK_PI
2K Followers 475 Following Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]stephtaylor @sctx2yahooco1
28 Followers 54 FollowingHaemophAmicus @HaemophAmicus
1K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎Martin Threadgold @FredgoldMartin
7K Followers 5K Following Retired Barber Yorkshire CCC member and Leeds United Season Ticket Holder. I have a fantastic wife a fantastic life 🐻❄️Denise Ross @DrDeniseRoss
658 Followers 808 Following Head of Healthcare Professionals Academic Development LTHT. ❤️R&I & PPIEP. Passionate about improving lives for our patients and our peopleJessica 🆎➕ @jessica_sandham
129 Followers 562 Following Mama, married to my best friend, proud to work @AlderHey. Centre Director for Liverpool Childrens Haemophilia CCC, Trust Lead for Transfusion.Views my own.Heme PT @lmvolland
397 Followers 612 Following Translational Health Scientist in the making, #bleedingdisorders, #painscience, #WGPPM, #impsci, lover of positivity and kindness, all views are my ownSimon Fletcher @abookclubof1
574 Followers 584 Following A bemused husband, father, christian, researcher & PhD candidate. A lover of books & a thinker of weird thoughts. You have been warned.Abi @PolusAbi
10 Followers 21 Following Musculoskeletal physiotherapist, educator, exercise enthusiast, chocolate connoisseur, reader, writer, motherMarie Eales @mariethenurse
236 Followers 344 Following Paediatric Haemophilia ANP, Oxford. Always hoping to make life easier for my patients and families...Factor 8 @Factor8Campaign
3K Followers 883 Following The UK’s leading #ContaminatedBlood scandal campaign organisation. Infected Blood Inquiry Core Participant.Hannah Brady Sawant @HBradysawant
87 Followers 180 Following MSc | Clinical Research fellow, District Nurse, Independent and Supplementary Prescriber | QN | All views my own.Kate Millar @kcjmillar
20 Followers 38 Following Paediatric Physiotherapist Currently working towards a MSc in sports physiotherapy Interests: Paediatric Oncology and Haemophilia, Rowing, Running and CyclingJayne 💙 @keaney_jayne
30 Followers 81 FollowingCathy Farrelly @CathyFarrelly
177 Followers 402 Following Consultant Haematologist. Director Liverpool Haemophilia CCC. Founder: The OnCall Room. Passionate about med education. All opinions my own.isabella presch @isabell96270032
249 Followers 517 Following purpose driven medical executive | rare diseases | Clinical Development | Medical Affairs | passionate about making a difference for patients | views are ownMariette Driessens @Mariette_HE
647 Followers 2K Following Patientvertegenwoordiger in onderzoek en zorg. Weesziekten, hemofilie, biologicals en cel- & gentherapie. ex-EMA CATLongCovid.org @LongCovidOrg
6K Followers 5 Following Seeking rehab, research and recognition for people with #LongCovid | https://t.co/A49aKj8RUG | https://t.co/7d2EEIRWPbDebbie Artis @DebbieArtisPT
137 Followers 324 Following Specialist Sarcoma Physiotherapist @leedshospitals @Sarcoma_UK @BCRT Tricia Moate Award 2021/ BSG board memberHappy #WorldHemophiliaDay 2024 #WHD2024 #LightItUpRed from all at the Haemophilia Chartered Physiotherapist Asoociation of the UK and Ireland @HCPA11 #AccessForAll
Equitable access for all starts with a diagnosis. For anyone with easy #bruising; #bleeding after #childbirth, #surgery or #dental work; heavy #menstrualbleeding e.g. >7 day #periods, changing sanitary products >2 hourly, clots >£1 or QoL. Seek medical help. #WorldHemophiliaDay
On World Hemophilia Day, @SustainableRich looks at a @haemjournal paper exploring challenges to accessing treatment for acute bleeding among people with haemophilia in Uganda. Read more on the Haemnet blog: bit.ly/3vWsMuA #WHD2024 #WorldHemophiliaDay #LightItUpRed
Today we recognise #WorldHaemophiliaDay worldwide to increase awareness of #haemophilia, #vonWillebrand disease and other #bleedingdisorders. #WHD2024
Happy #WorldHaemophiliaDay Marked on 17th April, which was the birthday of Frank Schnabel, founder of the @wfhemophilia Off into London for a board meeting of @HaemoSocUK Much to discuss! #Haemophilia #Hemophilia #BleedingDisorders
Infected blood scandal: victims’ families hope report will finally apportion blame Immuno AG recognised that there was a “significantly higher hepatitis risk” from a Factor VIII product known as Kryobulin 2, made from US plasma theguardian.com/uk-news/2024/a…
Article in today’s @guardian about govts acceptance of greater risk when importing blood products to treat people with haemophilia. #ContaminatedBloodScandal #InfectedBloodInquiry
Article in today's @guardian discusses the identification of documents (during the @bloodinquiry) that show that cheaper products of known higher hepatitis infectivity were being sold to the UK in preference.
Shane Goldstone, died on 14th April 2019 aged 60 from HCV through infected Factor Concentrate Blood Products.
Jane and Caroline are fundraising for Eckersley House @TheSCT in Reception today. There are a range of prizes to be won in their lucky dip. 12-2pm, while stocks last!
Patient's like Harry and Freddie have been having a great time at our Diabetes Teddy Bear Clinic where patients come to learn about their condition in a way that is playful and accessible for them and their families 🧸
Millie's Saturday Suppers 🍕🍕 Tonight's meals were kindly sponsored by Millie's very much loved football coach Helen. 💜🦋 We can't thank Helen enough for helping to feed the parents this evening ⚽⚽ @Leeds_Childrens @LeedsHospitals
It's London Marathon week and we wanted to give you the chance to get to know our runners better. Find out what's motivated them to take on this challenge and why they chose the Haemophilia Society to run for. Part two to follow in a couple of days. haemophilia.org.uk/marathon-team-…
Join us for the 1st RAIN Summit for Patients with Rare Anaemias, organized by RAIN in collaboration with TIF and APTM – Romania. May 18th-19th, 2024 at Grand Hotel Bucharest. Our CEO, John James, will be speaking! Sponsored packages to join available now:ow.ly/jmSx50Rf3lB
On 20th May, the Infected Blood Inquiry will publish its final report in London. I’ll be on @BBCBreakfast at 8:15 tomorrow morning to discuss the final report as many news outlets begin to trail their coverage of the worst treatment disaster in the history of the NHS.
Exploring patient and clinician perspectives on the benefits and risks of emerging therapies for the treatment of #haemophilia: a qualitative study - confirms that decision making is multifactorial & complex sciendo.com/article/10.247…
A year ago today @bloodinquiry recommended that compensation be paid to people infected and affected by contaminated blood as a matter of urgency. A year on, there's no scheme and no plan. The govt is shamefully trying to pass the buck on compensation. haemophilia.org.uk/pi_posts/compe…
It's been a year since the Infected Blood Inquiry recommended a compensation scheme be set up immediately. In the 12 months since, there has been no progress. With every month that passes, the number of people who will never see justice serviced increases. Pay compensation now.
Really powerful piece of work making the lived experience of women that bleed visible and real. And great to see a majority non white study population, an identified gap in the evidence from the last 5 years of published work #women #womenshealth #HMB #menorrhagia
“There is so much power in just believing someone” - a key quote/theme from Dr @fmsiad’s qualitative research on experiences of women w heavy vaginal bleeding. Powerful & sad themes: shame, fear, lack of belief. It is time to believe women. ⭐️ @THSNA_Societies