Blood MedEd @bloodmeded
Here for sharing information & bringing awareness to 🩸 disorders &🩸diseases. RTs ≠ endorsements. Help us grow, follow us! #hemophilia #cancer #scd #dvt bloodmeded.com Joined December 2022-
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📰The results from this study published @BloodAdvances, support incorporation of WBC count into PV risk stratification & studies of treatment strategies, & indicate the importance of controlling both hematocrit & WBC count in disease management. READ➡️doi.org/10.1182/blood.…
📢Great video🔛#multiplemyeloma featuring @szusmani & colleagues, discussing complex, real🌐pt cases highlighting diagnostic & tx guidelines, clinical practice issues, clinical trial 📊& expert analysis of best practices Watch➡️tinyurl.com/46fayd2e #MedTwitter #myeloma #cancer
📰This study published by International Journal of Surgery Global Health, concluded there is no need 4⃣a routine antiphospholipid assay for ♀️ candidates for IVF, & when it is confirmed, tx is required by anticoagulants. READ➡️journals.lww.com/ijsgh/fulltext… #IVF #aps #fertility
📰In short summary, this study published by @BloodCancerJnl, concluded that patients with no-BT before ide-cel showed prolonged PFS & OS, possibly indicating less aggressive disease. READ➡️tinyurl.com/2p9wc5aw #MYELOMA #MultipleMyeloma #Oncology #hematology #CancerResearch
📰This study published by @BloodCancerJnl, elucidates not only the importance of disease biology but also the role of management prior to apheresis. READ➡️tinyurl.com/3yb2tt76 #MYELOMA #MultipleMyeloma #bloodcancer #hematology #MedTwitter #Oncology #Cancer #CancerResearch
📰The analyses conducted by the Applicants & the FDA provide robust data to characterize the relationship between MRD & long-term outcomes of interest. MRD negative CR is a strong prognostic factor for OS & PFS. READ➡️fda.gov/media/177652/d… #MedTwitter #MultipleMyeloma
📢The FDA has granted Orphan Drug Designation to BVX001, a novel twin antigen (CD33/CD7) targeting bxADC for the treatment of AML. READ➡️tinyurl.com/v8dbe9ax #drugapprovals #leukemia #bloodcancer #cancer #oncology #hematology
📰in Thrombosis Update, demonstrates that a careful evaluation of the antithrombotic strategy with the best efficacy/🦺ratio (in terms of doses or💊) is always needed in #Cancer patients & anticoagulation for CAT & AF should be tailored individually READ➡️tinyurl.com/yhm2f3pb
An excellent review article with insightful case-based management on how to approach thromboprophylaxis in myeloma! @rajshekharucms link.springer.com/article/10.100… Non paywalled link: drive.google.com/file/d/1ri2LYm… #MMSM
⏰📰by @WHO, the number of lives lost due to viral hepatitis is increasing. The disease is the2⃣leading infectious cause of death🌐with 1.3 million deaths per year, the same as tuberculosis. READ➡️tinyurl.com/52npjmzc #Hepatitis #diseases #infectiousdisease
Join @GuyYoungMD and I as we mark World Hemophilia Day with a Wednesday Webinar on treatment options for hemophilia A and B. April 17, 2PM EDT Don't forget to register (free): bit.ly/3VSk3UD #WHD2024 #Inhibitors #Hemophilia #BleedingDisorders
Join @GuyYoungMD and I as we mark World Hemophilia Day with a Wednesday Webinar on treatment options for hemophilia A and B. April 17, 2PM EDT Don't forget to register (free): bit.ly/3VSk3UD #WHD2024 #Inhibitors #Hemophilia #BleedingDisorders
This P2⃣trial compares iberdomide maintenance therapy to disease monitoring for improving survival in patients who have received idecabtagene vicleucel (a type of chimeric antigen receptor T-cell [CAR-T] therapy) for multiple myeloma. Read➡️classic.clinicaltrials.gov/ct2/show/NCT06… #MYELOMA
📰by @BloodAdvances, in short summary, this study addresses the need for more data on VWF prophylaxis & the positive results support the updating of current guidelines for use of VWF prophylaxis in pts with VWD with a severe🩸phenotype. READ➡️tinyurl.com/49sd5v34 #RareDisease
📰 Published by @BloodAdvances, the IELSG30 phase 2 study investigated feasibility and activity of an intensified IT and IV CNS prophylaxis. Read➡️tinyurl.com/fdabmex #lymphoma #bloodcancer #hematology #oncology #clinicaltrials #Cancer #CancerResearch
It's welcome news that the drug, Kymriah has been approved for routine use on the NHS in England and Wales! It is an option for those 25 years and under with the B-cell acute lymphoblastic leukaemia, which has relapsed or is refractory. More 👇 bit.ly/3Ucch6P
📰by @JCO_ASCO, an international multicenter retrospective study of patients with RT who received CAR-T concluded that CAR-T demonstrates clinical efficacy for patients with RT. READ➡️tinyurl.com/22t8u6cm #bloodcancer #hematology #oncology #cancer #leukemia #hematologyoncology
🤔Did you know❓ Learn more➡️tinyurl.com/4z56ddbz #thrombosis #thrombocytopenia #bleedingdisorder #facts #bleeding #TheMoreYouKnow #platelets
✅FDA has approved Abecma® 4⃣ the tx of adult patients with relapsed or refractory multiple myeloma after4⃣➕prior lines of therapy including an immunomodulatory agent, a proteasome inhibitor, & an anti-CD38 monoclonal antibody LEARN MORE➡️tinyurl.com/53twm7nz #MultipleMyeloma
🎉📢VOYDEYA™ (danicopan) has been approved in the US as add-on therapy to ravulizumab or eculizumab for the treatment of extravascular hemolysis (EVH) in adults with paroxysmal nocturnal hemoglobinuria (PNH). LEARN MORE➡️tinyurl.com/tjez2m7k #pnh #raredisease #bloodcancer
📰by @BloodAdvances, this systematic review & meta-analysis was conducted to evaluate toxicity & disease-related complications in PV<60 tx with interferon alfa (rIFNα) or hydroxyurea (HU) READ➡️tinyurl.com/2waj4e8k #CancerResearch #bloodcancer #Oncology #hematology #Cancer
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hzn7k24yyfgor6e @uq6hys2lzu1e
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flora peyvandi @flora_peyvandi
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Faith Frischman @FaiFrischm
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Sr. Annie @SrAnnie362159
6 Followers 112 Following Cardiac nurse. Middle England. Interested in MedEd, personal development. Hates cliques and subterfuge. #NHS
Rajeev Vijayakumar @rajeevonco
71 Followers 179 Following I'm a cancer specialist. Medical Oncologist and Hemato-Oncologist at Bangalore. Trained at the reputed Army hospital R & R at Delhi. Passion for patient care
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
Rare Disease UK @rarediseaseuk
22K Followers 2K Following National campaign run by @GeneticAll_UK to improve the lives of those affected by rare conditions and all who support them. #RareDisease.
Beatriz Wills @BeatrizWills
181 Followers 434 Following Hematologist/ Oncologist.Interested in CAR-T, co-host @tumortalks , global oncology.@MSKCancerCenter, @JohnsHopkinsHospital,@FSFB
Rare Disease Report @RareDR
16K Followers 1K Following Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossi
Amalya Sargsyan @amalsargsyan
429 Followers 1K Following Medical Oncologist 🩺 | Yeolyan Oncology and Hematology Center🚀 🇦🇲l Research Fellow at Immune Oncology Research Institute 🧪| MSc in Precision Medicine 🇨🇾
Larry Anderson,MD,PhD.. @ldandersonjr
2K Followers 959 Following Myeloma, Waldenstroms, Amyloidosis, CAR-T and Cellular Therapy Specialist at UT Southwestern Medical Center (tweets are my own)
Bijoy Telivala @BijoyTelivala
4K Followers 1K Following Partner physician at Cancer Specialists of North Florida , Jacksonville. All views are my own . Not medical advice Cricket/Pickleball/Bridge/Coffee /India/USA
U.S. FDA @US_FDA
563K Followers 145 Following Our posts are FDA Approved! Privacy Policy - https://t.co/LbTJXYRXVP FDA Authentic Accounts - https://t.co/w2LNbzG7M0
Rare Diseases @CheckOrphan
18K Followers 5K Following CheckOrphan is the leading #news and information platform dedicated to #rarediseases and #orphandrugs
AACR @AACR
112K Followers 2K Following The mission of the American Association for Cancer Research is to prevent and cure cancer through research, education, communication, and collaboration.
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
RareDiseaseFdn @rarediseasefdn
9K Followers 517 Following Changing the lives of patients affected by rare & undiagnosed diseases through social support, advocacy & treatment-focused research. https://t.co/qWTTVoKeyL
Matthew Schwede, MD @MattSchwedeMD
77 Followers 108 Following Hematologist/Oncologist at @ProvSwedish and @ProvSwedCancRes via @StanfordMed @UCSFMedicine @BrownMedicine | interested in #leukemia #datascience
Rare Diseases Clinica.. @rarediseasesnet
8K Followers 507 Following NIH-funded network fostering collaborative research among 20 teams of researchers, patients, and clinicians, each focused on a group of rare diseases.
CheckRare @CheckRare
3K Followers 2K Following Leading publisher and learning platform focused on rare diseases. Rare Diseases Are Our Focus, Expertise, and Passion.
World Obesity @WorldObesity
23K Followers 792 Following The World Obesity Federation is a not-for-profit devoted to addressing the global #obesity burden. Sign up for news: https://t.co/HLAkmXrx3P
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
Ghaith Abu-Zeinah, MD @GhaithAbuZeinah
832 Followers 534 Following Hematologist/Oncologist, Clinical and Translational Researcher @WeillCornell @SilverMPNCenter focused on #MPN #mpnsm 🇯🇴🇺🇸 alum @WCMQatar
@SehgalPathLab @sehgalpathlab
732 Followers 785 Following Blood Testing lab Hematopathology Speciality Laboratory with focus on Bone Marrow and Flow Cytometry Diagnsotics
Miguel .Crato @CratoMiguel
250 Followers 236 Following President of the European Hemophilia Consortium Patient with HemA with inhibitors Father of 3 plus a cat
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
AAMDSPNHBostonCOH @AAMDSIFBoston
114 Followers 153 Following Greater Boston @AAMDSIF Community of Hope for Patients, Families & Friends Fighting #AplasticAnemia, #MDS & #PNH #BoneMarrowFailure
Prashant Deshpande @pradesh1001
435 Followers 465 Following Hematopathologist and molecular pathologist, a history buff when not working.... Views are personal.
Dr. Rajiv Kovil (Diab.. @rajivkovil
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SickleCellTexas @SickleCellMTF
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MGA @myastheniakc
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290 Followers 1 Following We exist to bring you science, research and clinical news about Myasthenia Gravis. We are a free digital publication dedicated to the patient community.
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Scott Howard, MD, MSc @ResonanceOrg
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You Hold Our Hands, Also Our Hearts - Family Personalized Custom 3D Inflated Effect Printed Mug ❤️☕️ Get it here 👉glasslee.co/MG-Q045
Spent half the week with my colleagues from Brazil discussing CAR T-cell in MM.... just in time to defend an opposing view vs. the great Sham Mailankody 😄
Speaking at the Atlanta Myeloma Symposium today. Great to hear from colleagues including @szusmani @End_myeloma @EagleMyeloma
Saad Z. Usmani, MD, MBA, FACP, FASCO, discusses the significance of the FDA approval of cilta-cel in relapsed/refractory multiple myeloma. @szusmani @MSKCancerCenter #oncology #MedTwitter #mmsm. onclive.com/view/cilta-cel…
For those of you who don’t speak koala let me translate… “silly tourist. I wanna go back to sleep “. Had some amazing times discussing #myeloma in Australia!
At #GDUHem @JoshuaRichterMD discussed promising novel advances in the multiple myeloma treatment landscape, including the use of t-cell redirection therapy and possible treatment approvals to come. Learn more: hmpgloballearningnetwork.com/site/llm/confe… #medtwitter #onctwitter
Factor levels alone don't reveal the whole picture. Ever wondered why one person with moderate #hemophilia bleeds more or less than another? @LenValentino1, MD, sheds light on the distinction between factor levels and phenotype. #WFHCongress2024
Check out this fun kids book our friend Dr @seethal_jacobmd just published! ❤️💪🏾📚
Exciting news to share…we wrote a book! A 📕 for kids about #sicklecell! A 📘 you want to share w/ teachers, neighbors, friends. A 📗 you want to read w/ your kid bc it’s important for them to know more about a disease that affects so many in our 🌎. a.co/d/iX3cAFG
Finished putting laundry away and I only had one sock left over without a match. Is it wrong to consider that a win ?
An excellent review article with insightful case-based management on how to approach thromboprophylaxis in myeloma! @rajshekharucms link.springer.com/article/10.100… Non paywalled link: drive.google.com/file/d/1ri2LYm… #MMSM
Join @GuyYoungMD and I as we mark World Hemophilia Day with a Wednesday Webinar on treatment options for hemophilia A and B. April 17, 2PM EDT Don't forget to register (free): bit.ly/3VSk3UD #WHD2024 #Inhibitors #Hemophilia #BleedingDisorders
Are you seeking insights into treatment options for hemophilia A or B with inhibitors? Look no further! Join renowned expert, Dr. Guy Young, as he shares valuable knowledge and breakthrough developments in this field. Register today! bit.ly/3VSk3UD. #NBDF @HEMABiologics
We are looking to partner with a creative agency to develop and produce our visual materials for the 2025-2028 #RareDiseaseDay campaigns. The deadline for submitting tenders is Friday 3 May 2024. 👉 download2.rarediseaseday.org/2025/Rare-Dise…
It's welcome news that the drug, Kymriah has been approved for routine use on the NHS in England and Wales! It is an option for those 25 years and under with the B-cell acute lymphoblastic leukaemia, which has relapsed or is refractory. More 👇 bit.ly/3Ucch6P
Cannot wait for this @StopTheClot #PEPTalk tomorrow night. Don’t have to be a #VTE patient for this one! Sign up and learn from leading #VTE and #AUTOIMMUNE experts @JordanKSchaefer and @jasonsknight 👇
HAPPENING TOMORROW! During our next PEP Talk, hosts @lesllake & @bloodclotbuddha explore autoimmune conditions and #bloodclots with @JordanKSchaefer & @jasonsknight, both of @umichmedicine. Join us! Register: bit.ly/April2024PEPTa… #stoptheclot #peptalk #autoimmunedisorder
HAPPENING TOMORROW! During our next PEP Talk, hosts @lesllake & @bloodclotbuddha explore autoimmune conditions and #bloodclots with @JordanKSchaefer & @jasonsknight, both of @umichmedicine. Join us! Register: bit.ly/April2024PEPTa… #stoptheclot #peptalk #autoimmunedisorder
Need to keep moving this forward! Not right the lack of women in research-it impacts patients!! This is one of the reasons the @StopTheClot #CERT is majority female and supported by its co-chairs @rushadpatell & @dangeliniMD @AleCardscrit
Greta got arrested again..
Great to see @AleCardscrit @StopTheClot #CERT member & recipient of the 2024 #JenniferLuftScholarship at #ACC24 The #VTE patient community is so lucky to have you!! #stoptheclot
Happy Easter Sunday, #SickleCellWarriors!🐇 We hope this day brings you all the joys of spring and that you never lack what is most important in life: health to thrive, love to cherish, and happiness to fill your heart.🤍
"I spend a lot of time on the NBCA website and #StopTheClot Facebook page. I have learned more in the past month than I did in the previous 20 years. It is so appreciated." #StopTheClotstory #bcam #bcam2024 #bloodclots #pe #dvt #bloodclotsurvivor #bloodclotawareness
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