Haemophilia Journal @haemophilia_jnl
The official journal of the World Federation of Hemophilia @wfhemophilia, @EAHADnews & @HTRSToday | EiC: @HermansCedric | Social Media Editor: @krumbeve onlinelibrary.wiley.com/journal/136525… Joined May 2022-
Tweets514
-
Followers1K
-
Following312
-
Likes465
What a remarkable gathering! #WFHCongress2024 brought together over 3,000 delegates from 135 countries. 🌍Their participation is proof of our community’s commitment to the WFH vision of #TreatmentForAll. Read more: bit.ly/4b8zWL9
At #WFHCongress2024 🌏🩸, Nihal Bakeer shared insights about early #ultrasound detection & treatment of pediatric #synovitis. Make sure to also read her #StateOfTheArt paper on hemophilic #arthropathy, co-authored by W Saied, A Gavrilovski, & C Bailey 👉buff.ly/4b7x01s
At #WFHCongress2024 🌍🩸, Andreas Tiede presented data on emicizumab for acquired #hemophilia A. The corresponding #StateOfTheArt paper in @haemophilia_jnl on acquired #bleedingdisorders is now available #FreeToRead ⏳, so wait no more & follow the link 👉buff.ly/4aIgjtC
During today’s session about benefits & risks of novel therapies at #WFHCongress2024, @KlamrothRobert 🌏🩸 will speak about the benefits & risks of rebalancing agents. Check out the corresponding #StateOfTheArt paper in @haemophilia_jnl 👉buff.ly/3WbPA4g #FreeToRead ⏳
What defines success in #hemophilia care? Alok Srivastava, MD, takes the stage to question if we're getting it right. #WFHCongress2024
🆕 #WFHCongress2024 🌎🩸 #StateOfTheArt: Alok Srivastava discusses recent advancements in #hemophilia care, highlighting improvements but also identifying gaps in diagnosis, reporting of #hemarthrosis, treatment & more 👉buff.ly/4cY0y3a #FreeToRead for a limited time ⏳
Missed @ProfMakris' talk about the cardiovascular risk of elevated factor levels at #WFHCongress2024? No worries, you can still read his #StateOfTheArt paper on challenges in ageing PWH in @haemophilia_jnl, co-authored by @riitta_lassila & @mekennedypt 👉buff.ly/3QcCgsz
Today at #WFHCongress2024 🌎🩸, @RKaczmarekDr spoke about emerging #genetherapy 🧬 technologies. Read the #StateOfTheArt paper he authored together with Wolfgang Miesbach, Margareth Ozelo & Pratima Chowdary on the topic 👉buff.ly/4aJTA0d #FreeToRead ⏳
Absolutely amazing short but complete and inspirational presentation of @HermansCedric at #WFHCongress2024 “Living the #GeneTherapy journey”, from basic science to “achieving unimaginable” in #hemophilia. Visual info on hemophilia A&B gene therapy is also available at…
Don't forget to drop by the WFH Resource Center in the exhibit hall! Explore our invaluable resources and meet our friendly staff, ready to assist delegates in finding what they need at #WFHCongress2024. 🌟
📚 Publishing in the @haemophilia_jnl offers both opportunities and challenges. Attendees of our Publishing Workshop at #WFHCongress2024 acquired invaluable insights and strategies for effectively sharing their research findings with the global #hemophilia community. 🌍💡
🔔 A first in the history of @wfhemophilia congresses: @HermansCedric just gave a talk about publishing in the @haemophilia_jnl 🗞️ at #WFHCongress2024, emphasizing that every paper should add a “new brick to the big wall of scientific knowledge” 🧱
Using real-world data from people in Canada 🇨🇦 w/ #haemophilia A, Matino et al. describe changes in PK, effectiveness, utilization & patient satisfaction when switching from SHL octocog alfa to EHL damoctocog alfa pegol #prophylaxis 👉buff.ly/3PSEPQ3 #OpenAccess 🟢
Tomorrow is #WorldHemophiliaDay! Join the global conversation with #WHD2024 and #LightItUpRed and amplify your own events and stories with our toolkit. Retweet this to spread the word! bit.ly/3up6exA
Don't miss out on our #genetherapy webinar on "Global Distribution of Gene Therapy" and gain valuable insights into the situation in the USA from the perspective of Amy Dunn, Director of Haematology at Nationwide Children's Hospital, Ohio 🇺🇸. 📅 18 April academy.eahad.org/eahad/2023/gen…
🎥 Discover the latest e-learning module on "Clinical Experience in Haemophilia Gene Therapy" with Johnny Mahlangu on the #EAHAD Academy 🔗 academy.eahad.org/eahad/2024/mod… #genetherapy #haemophilia #EAHADAcademy
Check out this new paper by @raydebadrita et al., who studied genotype-inhibitor phenotype 🧬associations in people with severe #haemophilia A in India 🇮🇳 👉buff.ly/3VD8HDQ #FreeToRead ⏳
Sundaresan et al. report data from Australian 🇦🇺 pilot programme limiting use of factor replacement products before invasive dental procedures in PwH 🦷 Observed outcomes are promising, yet further research needed to support this protocol 👉buff.ly/3vi7BCY #OpenAccess 🟢
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
flora peyvandi @flora_peyvandi
2K Followers 412 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
Brian O Mahony @Brianhemophilia
3K Followers 518 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Paul McLaughlin @physio_paul
565 Followers 796 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
Dr Kate Khair PhD @katekhair
1K Followers 860 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
J Roberts @JonRob08
685 Followers 693 Following Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Peter Kouides MD @PKouides
2K Followers 1K Following Prof. of Medicine Univ. Rochester; Medical Director Mary Gooley Hemophilia Center; past prez THSNA;avid cyclist, family enthusiast!
Nathan Connell, MD, M.. @NTConnell
4K Followers 2K Following Chief of Medicine @FaulknerHosp • Systems-based hematologist focused on #hemophilia #VWD @BrighamWomens @BrighamHeme @HarvardMed •🏳️🌈• he/him • views my own
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Focus On Sickle Cell .. @UgandaSickle
254 Followers 1K Following FOSCA exists to provide a multi-faceted approach to combating SCD that includes testing, research, raising awareness, and providing psychosocial support.
Lauren arena @Lauren_T_Arena
0 Followers 15 Following
Hana Mohamed @HanaMohame20591
3 Followers 46 Following
Luis Ma Gonzalez @LuisMa1982
184 Followers 656 Following
WATSON @Watson_Horizon
693 Followers 3K Following Horizon Europe project aiming to identify and prevent the spread of fraudulent practices in food systems
Bhavani P @p_bhavani3936
5 Followers 132 Following Student of Blood science#❤️Hematology, MD Medicine#Clinician on board!
Quentin Pomorski @QuentinPomorski
29 Followers 37 Following
Niamh O'Connell @oconnn04
135 Followers 47 Following Haematologist, hiker and camper, Lyric FM fan, proud mother of three amazing daughters
Rahul Goma Phulore @missingfaktor
2K Followers 796 Following Scala/FP geek turned AI rookie. Still pondering the future of computing. Cultivating equanimity. Technoöptimist. Dreamer. Explorer. Tinkerer. Builder. 🇮🇳🇬🇧
fergal egan @eganfergal
200 Followers 660 Following
zac maluwa @zacmaluwa
4 Followers 44 Following
Χαράλαμπος .. @babbism
375 Followers 3K Following endocrinologist-Diabetologist, #athensmedicalcenter loves playing chess , serving the art of photography @ #instantane , Hemophilia pt
AdeMD @Elneda77
9 Followers 217 Following
Janice Staber @janice_staber
402 Followers 310 Following
Ousmane T. Seck @ousmanet
1K Followers 5K Following Scout un jour, Scout toujours! "Ami je suis, Fidèle je reste!"
Genevieve Crane, MD, .. @evemariecrane
9K Followers 7K Following #Hemepath at @ClevelandClinic Deputy Ed @Pathoutlines, co-founder #PathJC, #PathPower19 Author of Survival Guide to Lymph Node #Pathology
varun bafna @drvarunbafna6
11 Followers 89 Following
Eduardo Lee @edcheelee1
95 Followers 196 Following Haemophilia & other inherited bleeding disorders/Kidney Genetics/Dialysis Nurse-Clinical Nurse Specialist | @gstt
PACIFIC RIM @luvage22
1K Followers 4K Following .- Encontraremos siempre un camino y sino lo crearemos. .-No confíes en todo lo que veas, no creas en todo lo que escuches y no digas todo lo que sabes.
Yuberth Alexander Pic.. @yub33753
17 Followers 169 Following
Núria Moreno @nmorenoa
22 Followers 293 Following
Kiran Yadav @KiranYa12966805
17 Followers 396 Following
Francisco J. López J.. @franlopezjm
1K Followers 1K Following Hematologist - Department of Haemostasis & Thrombosis | Hospital Regional Universitario de Málaga
Zapatos Ocre @OcreBCN
39 Followers 152 Following Últimas tendencias multimarca en zapatos de mujer de calidad, cómodos y urbanos. OcreBCN, Fashion Shoes
EU Research Results @CORDIS_EU
50K Followers 6K Following 🇪🇺 News & information on #EUFunded #EUResearch projects @EU_Commission 👩🔬🔬👨🔬 | 🎧 Listen to our podcast #CORDIScovery 👉 https://t.co/U1KsbwEQQZ
Goutam Malik🇮🇳 @GoutamMalik_20
16 Followers 353 Following Official Twitter Account... College Student...😎😎 Account managed by Me....🤞🤞✌️✌️
Hemophilia Free India @HemophiliaX
159 Followers 317 Following a dream.. that is.. life without pain
Maria Russo @MariaRu4999652
0 Followers 21 Following
Nicolas Graeve @NicolasGraeve
250 Followers 1K Following Je suis curieux de tout, non polarisé et ouvert à la discussion. J'écoute même si je suis contre. J'apprécie la nuance et la mise en perspective.
Hemophilia society Ji.. @SocietyJin94348
0 Followers 2 Following
Jeremy Jacobs, MD, MH.. @jwjacobs12
530 Followers 543 Following Coagulation and transfusion medicine specialist @MayoClinic Alum: @Yale_LabMed @VanderbiltU @JohnsHopkinsSPH | he/him | Tweets my own
NASEER ALHABSI @NASEERalhabsy
2 Followers 34 Following
Carlos de la serna @Carlosdelaser11
0 Followers 4 Following
Prof.Dr.Tekin Güney @TekinGuney52
4 Followers 55 Following Sağlık Bilimleri Üniv, Ankara Bilkent Şehir Hast. Hematoloji, European Haemophilia Comprehensive Care Centre, Kanama🩸Tromboz 👬 Ahmet Tuna, Mehmet Mert 📍Ordu
CincyChildren's CBDI @ChildrensCBDI
1K Followers 861 Following Cancer & Blood Diseases Institute at @CincyChildrens. Proudly ranked as the #1 cancer program in the country by U.S. News & World Report.
BOJJA REDDIKUMAR @reddikumardevar
1 Followers 19 Following
Joseph R. Shaw @JRand083
727 Followers 1K Following Thrombosis Physician/Associate Scientist @OttawaHospital ➡️ #Periop #anticoagulation management 💊, anticoagulation reversal🩸🔄 and thrombin generation 🧪🔬
SETH Trombosis y Hemo.. @SETH__Oficial
3K Followers 2K Following Cuenta oficial de la Sociedad Española de #Trombosis y #Hemostasia (SETH) enfocada en la divulgación científica. Creamos comunidad.
catticuss💙✊🏼 @backstabbath_
18 Followers 147 Following here for wee cats doing wee cat things 🌈doctor🩺rock playlist extortionist🪨
Saad Ahmed @saadzmahmed
6 Followers 94 Following
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
flora peyvandi @flora_peyvandi
2K Followers 412 Following Professor of Internal Medicine- Hemostasis and Thrombosis Unit, University of Milan-Italy.
Brian O Mahony @Brianhemophilia
3K Followers 518 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
Saskia Middeldorp @MiddeldorpS
5K Followers 460 Following Head Department of Internal Medicine @Radboudumc. Professor fighting venous thromboembolism. Pregnancy, thrombosis, thrombophilia. Council @ISTH. Feminist.
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Paul McLaughlin @physio_paul
565 Followers 796 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
Dr Kate Khair PhD @katekhair
1K Followers 860 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
J Roberts @JonRob08
685 Followers 693 Following Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Peter Kouides MD @PKouides
2K Followers 1K Following Prof. of Medicine Univ. Rochester; Medical Director Mary Gooley Hemophilia Center; past prez THSNA;avid cyclist, family enthusiast!
Nathan Connell, MD, M.. @NTConnell
4K Followers 2K Following Chief of Medicine @FaulknerHosp • Systems-based hematologist focused on #hemophilia #VWD @BrighamWomens @BrighamHeme @HarvardMed •🏳️🌈• he/him • views my own
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Niamh O'Connell @oconnn04
135 Followers 47 Following Haematologist, hiker and camper, Lyric FM fan, proud mother of three amazing daughters
Pr Saliou Diop @pr_diop
173 Followers 114 Following Directeur du Centre National de Transfusion sanguine du Sénégal. Professeur d Hématologie Faculté de Medecine. Université Cheikh Anta Diop Dakar Sénégal.
Víctor Jiménez Yust.. @vjimenezyuste
3K Followers 3K Following Hematólogo. Jefe de Servicio. Hospital Universitario La Paz. EGB, BUP, COU, UVA, MD, HULP, PhD, HA/B, EVW, AMHH, SEHH, EAHAD Cuenta personal #LaPazHospital4U
Margaret Ragni, MD @ragnmv
18 Followers 14 Following professor medicine, hematologist, clinical and translational researcher, designer of clinical trials in bleeding disorders, writer, pianist, jazz lover
Dawn Rotellini @DRotellini
137 Followers 367 Following Mom of two amazing kids that I adore. COO at National Bleeding Disorders Foundation, LOVE to travel! Board member of World Federation of Hemophilia.
Thomas Reiser @TomReiser
1K Followers 550 Following Executive Director @isth, global association executive and world traveler. Opinions are my own. Retweets do not imply endorsement.
Geraldine POENOU @zudenstein
411 Followers 857 Following #hemostasis #thrombus and #anticoagulant Med Vasc saint Étienne 💚💚💚 happy mum
Schved Jean-François @schvedjf
294 Followers 145 Following Médecin, professeur d'hématologie . Ecrivain. Obi: plongée, aviation
Heleen Eising @heleeneising
48 Followers 102 Following
Martin Lennon @martin_a_lennon
79 Followers 230 Following
Ilenia Calcaterra, MD.. @IleniaCalcater1
66 Followers 220 Following Specialist in Internal Medicine, Assistant Professor at Federico II University, Naples
Azusa Nagao, MD, MSc,.. @azsusumi
287 Followers 249 Following 血友病診療してます I’m hemophilia treater @Tokyo, Japan
Sheffield Laboratory .. @SheffLabMed
438 Followers 80 Following Leading edge pathology; diagnostic, prognostic, screening and long term condition management conducted by our highly trained, skilled and specialised scientists
Annette Bowyer @DrNetBow
112 Followers 153 Following Excited by new projects, new books and new travels. Does not like gravy. adopted Yorkshirer PhD.
Servicio de Hematolog.. @crh_MoralesIMIB
3K Followers 1K Following Unidad multidisciplinaria de Hematologia. Hospital G. U. Morales Meseguer/Centro Regional Hemodonación. Murcia #investigación #hematología #universidad #CIBERER
Juane Megías @juanemegias
883 Followers 555 Following Especialista en #FarmaciaHospitalaria, @HospitalLaFe. Responsable de la OMPTA
Rana Saifi @RanaSaifi16
197 Followers 220 Following Regional Manager Middle East at @Wfhemophilia Passionate about International Development. Views are my own. RTs are not endorsements.
Anna Wells @AnnaJWells_PT
297 Followers 325 Following Advanced Practice Physiotherapist in Haemophilia. All views are my own.
David @DStephensen68
293 Followers 205 Following Professor Applied Clinical Research, Physiotherapist, NIHR Clinical Lecturer. All opinions my own
miguel escobar @DrCoagdoc
46 Followers 46 Following Professor of Medicine and Pediatrics at the University of Texas and McGovern Medical School Director of the Gulf States Hemophilia and Thrombophilia Center
Anisa Abdulrahman @DrAnisaTalks
702 Followers 617 Following Founder of House Service App 🏡 @houseserviceapp. Doctor 🏥 Medical Oncologist @NHS UK ❤️ AI | ❤️ @UKIP | Pharmacovigilance | pharmacoepidemiology
Scott Hadland, MD @DrScottHadland
59K Followers 3K Following Pediatrician 👨🏻⚕️ • Chief of Adolescent Med at MassGeneral • Associate Prof at Harvard Med • NIH researcher • Husband & dad of 2 kiddos • 🇨🇦 in 🇺🇸 & 🌈
May Baker @MayBakerEditor
47 Followers 209 Following Executive Editor - Open Research Journals Life Sciences All views expressed are my own.
Paula Prestes @paulapprestes
75 Followers 505 Following Hematologist @FMUSPoficial. Interest in Thrombosis and Hemostasis
Sayli Rasal @Sayli_Rasal
34 Followers 288 Following PhD Candidate @ICMR-NIIH Haemostasis and Thrombosis Nature Lover 🌾🍀🌷🌴🌊🌧️🌤️🌈🌍 Love to support and work towards good cause ✨
Debbie Hetherington @Debbie_H_281
77 Followers 245 Following Scientist with an interest in genetics, oncology and haematology. PhD in cellular and molecular biology. From Dundee, Scotland. Based in London.
Gabriela Salvatierra .. @GSalvatierraMD
251 Followers 272 Following Médico adjunto. Hematología @HUReyJuanCarlos. Profesora asociada. Facultad de Medicina @urjc.
David Gurney @dghaem
246 Followers 858 Following Biomedical Scientist, specialist clotter, obsessed with platelets, amateur photographer
THANZ @THANZBlood
372 Followers 391 Following A forum for bringing together clinicians and scientists in Thrombosis and Haemostasis
Chamouard @Chamouard3
90 Followers 371 Following
Isaac Janson @PhDJ23
44 Followers 291 Following Human | Curious Learner | Thinker | Scientist | Lilly Scholar
Vanessa Girotto Guede.. @GirottoGuedes
48 Followers 97 Following Physiotherapist, Master in Public Health and PhD in Medicine (radiology/nuclear medicine area). #haemophilia #bleedingdisorders #QoL #chronicpain #publichealth
yoko @yoko13670611
1 Followers 5 Following
Huyen Tran @HuyenTr89452217
24 Followers 13 Following Science & Technology, cycling, Food Holidays Travel General News
HemaSphere Journal (I.. @Hemasphere_EHA
4K Followers 599 Following Official #OpenAccess journal of #EHA, publishing highly relevant basic, translational, & clinical heme research. 2022 Impact Factor = 9.1
Karin Fijn van Draat @KDraat
116 Followers 140 Following Ped Hematology Research group @Amsterdam UMC works for children with Hemophilia or Sickle Cell Disease* Love Cycling, Mountains & my 3 teenage daughters
Local Families with B.. @LFwBDisorders
186 Followers 172 Following Support for local families affected by bleeding disorders, by families for families.
Steph Taylor @TaylorSxtx2
67 Followers 64 Following
Gina Sangha @GinaSangha
49 Followers 133 Following Haematology Academic Clinical Fellow, Oxford Clinical Research Trainee, Huntly Lab, Cambridge
Abubaker Obeidalla @obeidallax
42 Followers 118 Following
Asociación Andaluza .. @asanhemo
1K Followers 1K Following Somos una entidad sin ánimo de lucro cuyo fin es mejorar la calidad de vida de las personas afectadas de hemofilia,otras coagulopatías congénitas y portadoras.
William McKeown @WillMcKeown
397 Followers 407 Following Geriatrics SpR. BGS Fellow. Frailty and De-prescribing Enthusiast. Haemophilia Patient and Advocate. Christian.
Melanie Lindsay @MelanieBladen
2 Followers 3 Following
Awa Babington-Ashaye @AwaSarr
120 Followers 221 Following Passionated about Global Health challenges, E-Health and improving QoL of patients in low-resources countries using Digital solutions.
Sonu Varghese @sonusamvarghese
281 Followers 301 Following MD/MSc Student @queensugme @umanitoba | Ontario Regional Director @cfmsfemc
JGebhart @JoGebhart
19 Followers 57 Following
Thuvia Flannery @thuvia2014
155 Followers 149 Following
Patricia Lopes @patylopes013
241 Followers 349 Following Master's Degree in Pharmacology; PhD candidate - RCSI, Dublin📊 Big milestone alert: The 2023 Data Report includes individuals with #VWD! With 999 PwVWD from 45 HTCs and 22 countries enrolled in the WBDR, we're opening new avenues for understanding and improving care worldwide. Read the report: bit.ly/3Je3N98 🌍💉
What a remarkable gathering! #WFHCongress2024 brought together over 3,000 delegates from 135 countries. 🌍Their participation is proof of our community’s commitment to the WFH vision of #TreatmentForAll. Read more: bit.ly/4b8zWL9
What defines success in #hemophilia care? Alok Srivastava, MD, takes the stage to question if we're getting it right. #WFHCongress2024
Absolutely amazing short but complete and inspirational presentation of @HermansCedric at #WFHCongress2024 “Living the #GeneTherapy journey”, from basic science to “achieving unimaginable” in #hemophilia. Visual info on hemophilia A&B gene therapy is also available at…
Don't forget to drop by the WFH Resource Center in the exhibit hall! Explore our invaluable resources and meet our friendly staff, ready to assist delegates in finding what they need at #WFHCongress2024. 🌟
Original and new information, relevant or prevalent problem. How to get your #hemophilia #bleedingdisorders #genetherapy research published in @haemophilia_jnl by Editor in Chief @HermansCedric at #WFHCongress2024 by @wfhemophilia
🔔 A first in the history of @wfhemophilia congresses: @HermansCedric just gave a talk about publishing in the @haemophilia_jnl 🗞️ at #WFHCongress2024, emphasizing that every paper should add a “new brick to the big wall of scientific knowledge” 🧱
📚 Publishing in the @haemophilia_jnl offers both opportunities and challenges. Attendees of our Publishing Workshop at #WFHCongress2024 acquired invaluable insights and strategies for effectively sharing their research findings with the global #hemophilia community. 🌍💡
Great talk by Cyrus Githinji from Kenya #wfh2024 watch out for his upcoming @haemophilia_jnl publication
Tomorrow is #WorldHemophiliaDay! Join the global conversation with #WHD2024 and #LightItUpRed and amplify your own events and stories with our toolkit. Retweet this to spread the word! bit.ly/3up6exA
Perceived transition readiness in adolescents with #hemophilia is crucial for smooth care transfer. Study findings in the Netherlands show perceived readiness increases with age and among patients who are more adherent. Read more below.👇
Perceived readiness to transition from paediatric to adult care 🚀 among adolescents & young adults w/ #haemophilia in the #Netherlands increased w/ age & was higher among adherent patients. Check out the results of this questionnaire study 👉buff.ly/46eqF1o #OpenAccess🟢
#Hemophilia carriers confront profound psychological hurdles, especially regarding the potential of having an affected child. Read more below⤵️ #BleedingDisorders
Interviews w/ 54 #haemophilia #carriers reveal high distress given by negative childhood experiences of haemophilia & high concern for children’s health influence choice of performing diagnostic prenatal tests. Read more in @haemophilia_jnl👉buff.ly/45dtJek #OpenAccess 🟢
Don't miss out on our #genetherapy webinar on "Global Distribution of Gene Therapy" and gain valuable insights into the situation in the USA from the perspective of Amy Dunn, Director of Haematology at Nationwide Children's Hospital, Ohio 🇺🇸. 📅 18 April academy.eahad.org/eahad/2023/gen…
🎥 Discover the latest e-learning module on "Clinical Experience in Haemophilia Gene Therapy" with Johnny Mahlangu on the #EAHAD Academy 🔗 academy.eahad.org/eahad/2024/mod… #genetherapy #haemophilia #EAHADAcademy
🔹Our experience in 20 years of primary prophylaxis(PP) with FVIII 🔹Probably of the last in the face of NFT ⬆️More than 80% pts achieve pristine joints 🟢The key: early initiation of PP ✔️Great value as a comparator for future PP with NFT @haemophilia_jnl #hemophilia
🧬Ready to explore the frontiers of #GeneTherapy? Discover the recently published paper "Administration of Gene Therapy for haemophilia: the hub and spoke model and its regional differences and challenges" with Wolfgang Miesbach.📅 April 18 @ 18h (CEST) academy.eahad.org/eahad/2023/gen…
🔹The survey can help identify the necessary preparations for GT and the appropriate implementation of the modifiable hub-and-spoke or alternative models 🔹Highlights the need for the classification of centers for the cooperation process and guidelines @haemophilia_jnl
Another great commentary on reduced dose emicizumab (#Hemlibra) to treat #hemophilia A, this time published in the journal Haemophilia. @haemophilia_jnl
Join us for the #WFHCongress2024 Publishing workshop on the publishing of @haemophilia_jnl. Learn how to tackle hurdles like peer reviews and standards, share your research effectively and contribute to the global #hemophilia community: bit.ly/3OQY38i
Pleased to hear from @haemophilia_jnl that my review article on gene therapy for #hemophilia has ranked within the top 10% of downloaded papers. Thank you! #TopDownloadedArticle onlinelibrary.wiley.com/doi/full/10.11…
🚨 Calling all young researchers and allied health professionals! The 2024 EAHAD Research Grants cycle is now open and this year, we are amplifying opportunities with grants tailored for AHPs, researchers <35 and short-term training! Apply now: eahad.org/2024eahad-rese…
Trends for United States
You might like
