Forgotten Lives Uk @4gottenlivesuk
People are coming together to get Evusheld funded in the uk. Please join our group https://t.co/pkgwbGvSpn forgottenlives.uk Joined June 2022-
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We just wanted to share with you the information below, which is a chance to have your say on the call for evidence on the Fit Note Reform relating to disabled people. gov.uk/government/cal…
Free and open to all! Come along to our webinar for an update on @STRAVINSKYstudy’s progress so far. ✅Hear the latest on #COVID19 immunity in clinically vulnerable people ✅See how you could get involved ⏲️18:00-19:00, Weds 24 April 🔗immunology.org/events/update-… @AlexRichter3
Next, after +++outreach and public engagement around how to manage mental health at home while #shielding, I teamed up with @Bernardi_L @4gottenlivesuk & @APPG_VGP to produce an important, policymaker facing report with key recommendations for this group tinyurl.com/2wth549h
One of the key findings was that those who were shielding others were experiencing 'vicarious' health anxiety, excessive worry about the vulnerable person they were #shielding. We recommended adapted evidence-based interventions. See below for more 👇 theconversation.com/many-people-ar…
It was clear that people were continuing to #shield at home due to continued threat of #COVID19 Next, we conducted a study focussed on those #shielding and their families, establishing that two years later, distress rates were higher pubmed.ncbi.nlm.nih.gov/35742580/
Next, a @ConversationUK article about the psychological impact of being indoors, and what steps could be taken to reintegrate into society However, sadly it was clear that despite vaccines, the clinically vulnerable were not guaranteed protection outdoors tinyurl.com/5n686pfd
Our initial study, led by @HannahRettie was the first study to identify that those who were clinically vulnerable had higher rates of anxiety compared to the general public, with >30% reaching clinical levels This established a hard-to reach group in need psycnet.apa.org/doiLanding?doi…
In December, we presented our data in #Parliament revealing that another year later, the vulnerable were still struggling with their mental health, but were politically engaged. Now we wait to see how far our recommendations will go Thanks @4gottenlivesuk for leading this work!
16 leading charities in the UK deliver letter to the Prime Minister calling for supports to be put in place for the immunocompromised, including blood cancer patients due to continuing isolation due to covid risks.
16 leading charities in the UK deliver letter to the Prime Minister calling for supports to be put in place for the immunocompromised, including blood cancer patients due to continuing isolation due to covid risks.
We NEED your help! If you are immunocompromised and still living a restricted life or have someone in your family who are please head over to our Facebook page for more info. facebook.com/share/RJHjVCN5…
👀 Here is the letter delivered yesterday together with 16 charities & patient organisations representing #Immunocompromised people across the UK. We called for further support for those facing continued isolation and risk on the 4th anniversary of the first UK Covid-19 lockdown.
👀 Here is the letter delivered yesterday together with 16 charities & patient organisations representing #Immunocompromised people across the UK. We called for further support for those facing continued isolation and risk on the 4th anniversary of the first UK Covid-19 lockdown.
@GwynneMP @hepababe @4gottenlivesuk Thanks Mark & Nikola for your tireless work. Couldn't have stronger ambassadors for our cause. You have not forgetting us.
To read the letter visit: bit.ly/3PFY2V7
On the 4th anniversary of the first UK Covid-19 lockdown, we're calling for support for those facing continued risk & isolation.
Yesterday we delivered a letter to Prime Minister @RishiSunak signed by 16 charities & organisations representing immunocompromised people across the UK.
On 4th anniversary of UK Covid19 lockdown @libdemdaisy for @APPG_VGP was proud to stand with @nkf @AnthonyNolan @BloodCancerUK & 16 charities & @4gottenlivesuk delivering a reminder to @RishiSunak that the immunocompromised continue to face risk & isolation with little support
16 charities and patient organisations representing immunocompromised people throughout the UK collaboratively wrote to Prime Minister @RishiSunak, calling for further support for those facing continued isolation and risk on the 4th anniversary of the first UK Covid-19 lockdown.
Clinically Vulnerable.. @cv_cev
14K Followers 12K Following 𝗖𝗼𝗿𝗲 𝗣𝗮𝗿𝘁𝗶𝗰𝗶𝗽𝗮𝗻𝘁 in the 𝗨𝗞 𝗖𝗼𝘃𝗶𝗱-𝟭𝟵 𝗜𝗻𝗾𝘂𝗶𝗿𝘆 JOIN us on FB 📸cv_cev 🟦☁️@cvcev.bsky.socialMartin Paul Eve @martin_eve
13K Followers 4K Following Principal R&D Developer @CrossrefOrg | Lit Prof @birkbeck_etc | Music on tici taci records | My books: https://t.co/OsmxBx7Bux | Personal account.Mark Oakley @MarkOak04974342
3K Followers 3K Following fighting to protect 1.2 mill immunocompromised people stuck in the nightmare of shielding for over 3 yrs abandoned by this Government @4gottenlivesukDr Lennard Lee (Oxfor.. @drlennardlee
2K Followers 851 Following Associate Prof Oxford (NDM) & Birmingham University | NHS Oncologist | HMG advisor | @independentsage | #cancervaccines #personalviewsStephen Griffin @SGriffin_Lab
28K Followers 10K Following Professor of Cancer Virology | Viroporins, Antivirals, Viral Oncology, Immunotherapy | Own views | @IndependentSAGE @LongCovidKids @projecthalo #VaccinesPlusProtectPatients @ProtectPatient5
1K Followers 1K Following Tweet anything that raises awareness of #immunosuppressed abandonment by the U.K. GOV. RT not an endorsement just interesting. @protectpatient5.bsky.socialDaisy Cooper MP 🔶 @libdemdaisy
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3K Followers 5K Following Lifelong #Autoimmunity #Kidney #Transplant CNS SLE Sjogrens Evans Asplenia Graves #TransverseMyelitis AFib MECFS+ #MasksInHealthcare EVERY STORY IS US - RumiShannon Peters Banks @ShannonB
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619 Followers 577 Following Retired maths teacher, ex-Bridge player, learning Italian in hope to visit Italy again but meds for Rheumatoid Arthritis make me #CEV #immunesuppressed💛 Katie’s Voice .. @Charles83230639
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3K Followers 3K Following fighting to protect 1.2 mill immunocompromised people stuck in the nightmare of shielding for over 3 yrs abandoned by this Government @4gottenlivesukDr Lennard Lee (Oxfor.. @drlennardlee
2K Followers 851 Following Associate Prof Oxford (NDM) & Birmingham University | NHS Oncologist | HMG advisor | @independentsage | #cancervaccines #personalviewsStephen Griffin @SGriffin_Lab
28K Followers 10K Following Professor of Cancer Virology | Viroporins, Antivirals, Viral Oncology, Immunotherapy | Own views | @IndependentSAGE @LongCovidKids @projecthalo #VaccinesPlusProtectPatients @ProtectPatient5
1K Followers 1K Following Tweet anything that raises awareness of #immunosuppressed abandonment by the U.K. GOV. RT not an endorsement just interesting. @protectpatient5.bsky.socialDaisy Cooper MP 🔶 @libdemdaisy
34K Followers 6K Following #StAlbans MP | @libdems Deputy Leader, Health & Care Spokesperson | 📧 [email protected] | Promoted by Liberal Democrats, 9 Hatfield Road AL1 3RR.Pete 😷 #COVIDisAir.. @PeteUK7
24K Followers 9K Following Chemistry. ChemEng. UK DIY filter team. Use shared air mitigations. High quality FFP2/3/N95 masks, ventilation, effective air filtration. #SpaceshostAmanda Tomlins💜�.. @tomlins_amanda
3K Followers 5K Following Lifelong #Autoimmunity #Kidney #Transplant CNS SLE Sjogrens Evans Asplenia Graves #TransverseMyelitis AFib MECFS+ #MasksInHealthcare EVERY STORY IS US - RumiFrances Ryan @DrFrancesRyan
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31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |Esther @ELHopkins
12K Followers 11K Following Composer. Interested in #CleanAir #Wildlife #ClimateChangeEternalShielder @TicketToZen
587 Followers 847 Following CEV CRUELLY ABANDONED BY TORY SCUM and SNP. Kidney Transplant Recipient ..shielding since March 2020 Deflated but not defeated! #GTTO 🇵🇸Dr Ali G #StandWithUk.. @AlisonGeorge10
13K Followers 8K Following NHS Dr #CovidisAirborne #SOSNHS #EuropeanAlways🇪🇺 #RefugeesWelcome #CharacterMatters #FBPE #GTTO #HumanityBlood Cancer UK @bloodcancer_uk
40K Followers 4K Following We're a community dedicated to beating blood cancer through research - leukaemia, lymphoma, myeloma.CMPV Consultancy @CmpvConsultancy
6 Followers 325 Following At ClovisMed Pharmacovigilance Consultancy, we are a leading pharmacovigilance consultancy committed to enhancing drug safety and efficacy across the World.E.J. Games @E_J_Games
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946 Followers 2K Following PhD student @SPHSU researching student mental health, complexity, social networks, systems thinking ☕️🐶🏴Dr Catherine James @catherinepjames
367 Followers 507 Following Artist, academic, feminist, opera habitué, scientist. RAer. Historian with L-plates. Prints, takes pictures, makes things.Jacqui Dawson @JacquiD69167
2K Followers 3K Following vegan, woke, living with partner and 4 cats, I have 2 adult kids, labour voter, love books, my allotment and good food, retired nhs manager, NO DMS please!Paul Howard 🐈🐈�.. @PaulAHoward89
695 Followers 273 Following I'm a geek who enjoys running. I live with my wife (Frances) and two rescue cats (Cheesecake & Churro)| he/himThe Secret Barrister @BarristerSecret
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498 Followers 1K Following Mama/Taylor-Trout/Haematology Nurse/Senior Support Services Nurse @bloodcancer_uk and all views my ownGemma Buckland @doitjusticeltd
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8K Followers 9K Following Mum, Recently retired scientist & medical doctor, loves owls, wildlife, books, cats & Northumberland #LongCovid #CCH📣 We will do all we can to ensure the proposed reforms on #PIP & #SickNotes do not affect #KidneyPatients negatively & will provide an update soon. Please email [email protected] if you would like to share any experience with us. 🤝 PIP support: kidneycareuk.org/get-support/co…
Free and open to all! Come along to our webinar for an update on @STRAVINSKYstudy’s progress so far. ✅Hear the latest on #COVID19 immunity in clinically vulnerable people ✅See how you could get involved ⏲️18:00-19:00, Weds 24 April 🔗immunology.org/events/update-… @AlexRichter3
Next, after +++outreach and public engagement around how to manage mental health at home while #shielding, I teamed up with @Bernardi_L @4gottenlivesuk & @APPG_VGP to produce an important, policymaker facing report with key recommendations for this group tinyurl.com/2wth549h
One of the key findings was that those who were shielding others were experiencing 'vicarious' health anxiety, excessive worry about the vulnerable person they were #shielding. We recommended adapted evidence-based interventions. See below for more 👇 theconversation.com/many-people-ar…
It was clear that people were continuing to #shield at home due to continued threat of #COVID19 Next, we conducted a study focussed on those #shielding and their families, establishing that two years later, distress rates were higher pubmed.ncbi.nlm.nih.gov/35742580/
Next, a @ConversationUK article about the psychological impact of being indoors, and what steps could be taken to reintegrate into society However, sadly it was clear that despite vaccines, the clinically vulnerable were not guaranteed protection outdoors tinyurl.com/5n686pfd
Our initial study, led by @HannahRettie was the first study to identify that those who were clinically vulnerable had higher rates of anxiety compared to the general public, with >30% reaching clinical levels This established a hard-to reach group in need psycnet.apa.org/doiLanding?doi…
In December, we presented our data in #Parliament revealing that another year later, the vulnerable were still struggling with their mental health, but were politically engaged. Now we wait to see how far our recommendations will go Thanks @4gottenlivesuk for leading this work!
16 leading charities in the UK deliver letter to the Prime Minister calling for supports to be put in place for the immunocompromised, including blood cancer patients due to continuing isolation due to covid risks.
Today we delivered a letter to Prime Minister @RishiSunak signed by 16 charities & organisations representing immunocompromised people across the UK. On this 4th anniversary of the first UK Covid-19 lockdown, we're calling for support for those facing continued risk & isolation.
🤵🏻👰🏻♀️ 21 years ago I married my soulmate @GwynneCllr at St Anne’s Church, Haughton. We’d been together though since 1994, and all three of our children were at our wedding (we didn’t do things in the conventional order 😂) Here’s to the years ahead, whatever they bring. 💕
Today is Paul Howard's last day at LUPUS UK after 13 years at the charity. Please join us in sending him our very best wishes for the future. Thank you for everything you have done for the lupus community. You will be very much missed!
👀 Here is the letter delivered yesterday together with 16 charities & patient organisations representing #Immunocompromised people across the UK. We called for further support for those facing continued isolation and risk on the 4th anniversary of the first UK Covid-19 lockdown.
Please see attached a copy of our letter delivered to @RishiSunak at No 10 yesterday. Let’s hope we get a prompt response.
@4gottenlivesuk This is an excellent letter, thank you.
And breathe… ☀️ ☕️ 😎 ❤️💛❤️ #forevergrateful #shareyourwishes #organdonation #hearttransplant #secondchance #formydonor #livinglife #leavethemcertain #havethechat #donatelife #passiton
3 years ago, I was back in hospital with rejection. Today, I walked on the sand in Valencia with the sun on my skin & the wind in my face. Remember to always keep going & never give up ❤️💛❤️ #forevergrateful to my #heart #donor for the #gift of life that allows me more todays.
@GwynneMP @hepababe @4gottenlivesuk Thanks Mark & Nikola for your tireless work. Couldn't have stronger ambassadors for our cause. You have not forgetting us.
On the 4th anniversary of the first UK Covid-19 lockdown, we're calling for support for those facing continued risk & isolation.