Terry Field @AlongsideME
Follow evidence-based biological #MECFS research. Bedbound #pwME, 1 of #MillionsMissing 35 yrs. Love & miss nature, living a social, active life, photography. South Australia Joined September 2013-
Tweets3K
-
Followers326
-
Following274
-
Likes7K
Terry Field retweeted
Even when ME/CFS starts taking from your mind, you think there’s some limit - something that’s yours, that is sacred and defines you in some way, or is just you in some core way that nothing, including ME/CFS can touch. But there isn’t. ME/CFS keeps going and will keep taking… Read, Watch or Listen to this post on my blog: whitneydafoe.com/mecfs/?post=se… ——————————————————————————————————————————- #mecfs #pwME #LongCovid #brainfog #ChronicIllness
13
31
187
5K
28
View Details
@DafoeWhitney It's so lovely to be hearing your voice, Whitney, while also understanding the level of energy this consumes. Yes, those housebound days most definitely seem a way better place now. 🫂💙
1st outing yesterday in 15 months. Medical tests waiting till sufficient energy. Carer husband takes me, wheelchair user. Visible to the outside world after 65 wks, longest period in 35 yrs between outings. Saw/heard/smelled the ocean, bliss! Now cactus. #MECFS #millionsmissing
@hopefullizzy Wonderful to see this, Lizzy. Nature is like food for the soul. So unfair rarely getting to immerse oneself in the outdoors and the following effects. 💜🫂
@hopefullizzy Oh Lizzy, pretty rubbish numbers. 🫂
Terry Field retweeted
For ten years, I've been pushing back against problematic research suggesting that ME, ME/CFS, Long COVID and related illnesses are psyhosomatic, "functional," etc. I'm continuing the project through December. If you'd like to help out: crowdfund.berkeley.edu/project/49720
#MECFS & #LongCovid community. 🙏 David highlights poor, inaccurate science & harmful, unsubstantiated treatments. Thx for yrs of dedicated advocacy @davidtuller1 & being a voice for many. Trial By Error: Reporting on ME and ME/CFS, Long COVID, etc crowdfund.berkeley.edu/project/49720?…
@SandyHorne61 Nice photo of yours on ABC weather tonight, Sandy.
@hopefullizzy So sorry to hear that, Lizzy. 💜🫂
@Naomi_D_Harvey One of our lawnmowers recharging on the job. A little cloud cover, well, you get what you get....
@SandyHorne61 Saw photos yesterday taken at Marree. Astonishingly green around town and railway station. Have never seen it like that before - not too far from my home region.
@AnneinAyrshire I hear you. Something none of us want for our spouses over many yrs. Our carers are unsung heroes. Their numbers must be great, their contribution immeasurable.
Changed bio +1 yr severe #MyalgicEncephalomyelitis, never gets easier. 35 yrs life-changing, debilitating illness. Fortunately v supportive carer husband. Adequate bio research $ will bring #pwME improved QOL w appropriate treatments. Thoughts w all suffering #MECFS #LongCovid ❤️
@WALangProf @davidtuller1 From lived experience, many HCPs have limited knowledge of post-infectious diseases incl. ME in Aus. Despite ~250,000 being impacted (no. used for decades pre 2020), internationally renowned research occurring here. 👇 PEM the hallmark in diagnosing #pwME. mdpi.com/2075-4418/9/3/…
Terry Field retweeted
PRESS RELEASE: Is the Royal Australian College of GPs harming patients? getthewordout.com.au/press-release/… @liammannix @MelissaSweetDr @NC_Robinson @JacktheInsider @Hayley_Gleeson @TraceySpicer @nickrheinberger @DavidJoffe64 @davidtuller1 @TomKindlon #MECFS #MyalgicEncephalomyelitis
@hopefullizzy Oh, that's fantastic, Lizzy. Haven't been on sm often recently, but so very pleased to come across such wonderful news. Take care. 🌻🫂
@JuliePSmith1 Experience of SARS without having the benefit of any protection other than masks seems to also have given particularly Asian nations a more realistic appreciation of the importance of masks.
@SandyHorne61 Just scrolled down and saw it, doh. I'm like, look, look to hubby. ☺️
What wonderful news.
Reposting this: Alem Matthees, whose heroic effort to liberate the raw PACE trial data was followed by a collapse in his health, has recently improved somewhat. He's e-mailing again! virology.ws/2026/01/02/tri…
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Lizzy H @hopefullizzy
8K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Dan Wyke 🦠➡️�... @Dan_Wyke
14K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Tracey Burgess @TraceyABurgess
4K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Open Medicine Foundat... @OpenMedF
14K Followers 1K Following OMF is fundraising to support open, collaborative research to find effective treatments and diagnostic markers for ME/CFS, Long COVID, and related diseases.
Claire 🧠🔥 #pwME... @Naylor007
2K Followers 5K Following ME, FM, OH, MCAS, TMJ, OSA, DDD, TOS, hypothyroid stole too much from me. Doing everything I can to take back what's mine💪 I will do what i can to help others
Illustrator Interrupt... @FranceyME
3K Followers 2K Following https://t.co/jrET531Men illustrator, writer, photographer. Career interrupted indefinitely by myalgic encephalomyelitis #MECFS @franceyme.bsky.social
FionaPWME @fioname.bs... @FionaPWME
2K Followers 3K Following Was a journo/writer/editor. #MECFS has crushed my life for 15 years. (Profile pic: excerpt of cartoon by @KorneliaPaulson.)
Paula Knight @Paula_JKnight
6K Followers 3K Following Author Illustrator Comics Creator THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Disabled. Bedridden 8yr v severe M.E. IG: @paulajkstudio
Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
sarah @swastrosarah
2K Followers 766 Following #MaeveInquest updates in the space where thought is free of antagonising algorithm. Her legacy lives on https://t.co/HLc4kVkc6U
Carole Bruce @CaroleBruce17
7K Followers 5K Following 💙Art, Nature, Books, Some Music. Severe ME 32 years. Daughter severe 38 years. Furious about treatment of ME. https://t.co/gEIrl86Wim
Matthew Dalby @MatthewJDalby
8K Followers 5K Following
All of them snollygos... @OnlyEnnui
3K Followers 2K Following Ex philosopher, Ex Singer Song Writer Ex Friend & lover. #MEcfs activist #hEDS benzo withdrawal = hell. Expect swearing & sarcasm
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Jenny Meagher @JennMeagher
1K Followers 1K Following Life stolen by Myalgic Encephalomyelitis. Waiting to be rescued by science. Science waiting to be funded by governments. #MECFS
PZ *ME Lobbyist* @pzneedsrest
1K Followers 795 Following Music🎶 Film🎞️ Investigative Journalism🧐 Hot Chips🍟 Happiest by the sea 🌊 I used to do things, now living small as a #pwME #MillionsMissing 👻
Hillary Johnson Autho... @oslersweb
4K Followers 1K Following Investigating ME for 40 years. The Why "Indispensable" Osler's Web “A relentless, highly persuasive expose" "Groundbreaking" "A major documentary account"
jamaal @Jamaal66821
293 Followers 7K Following I came here to help struggling ppl and poor people in any situation you are
Clara Valverde @enfermarebelde
5K Followers 7K Following Sick anarchist. Rebel writer. Retired nursing professor. Canadian expat. #ME/CFS #CriticalGeography #FreePalestine #Feminisms #FrailButFurious #SectBusters
The Ginger Ninja @ginger_ninja72
1K Followers 7K Following Stroppy short ginger bird, blessed with various chronic illnesses but still with a sense of humour. Huge Charlatans fan! Currently politically homeless...
Alice Burchfield @ABirch111
38 Followers 561 Following
A Darkened Room @adarkenedroom
209 Followers 366 Following One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Sandy Horne @SandyHorne61
14K Followers 3K Following Birder. Amateur photographer. Mostly birds but other things at times. Feed cleansing one photo at a time. Project Officer.
María Richardson @_diatoma
3K Followers 6K Following ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #MyalgicEncephalomyelitis #GreatestMEdicalScandal
Comprendre l'EM @Comprendre_EM
8 Followers 101 Following Comprendre L’EM est une publication par et pour les personnes avec Encéphalomyélite Myalgique. Savoirs et réflexions politiques sur l’EM/SFC.
Pietrob basile @PietrobBasile
374 Followers 3K Following 🇮🇹🇩🇪 Mein einziges Konto bei X Il mio unico account su X
geoff brown @geoffbr85790890
194 Followers 906 Following 1988 m.e /fm/MCS/CMV/toxoplasmosis/Grover's disease/ severe pain and it's still the same in 2024
Princess, The Tower @APainPrincess
29K Followers 28K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Kinsley Williams @KinsleyW48737
32 Followers 261 Following
Pati ⚖️♎️🌎... @plwin49
4K Followers 5K Following Amazed by the essence& beauty of life. Independent. Value justice,truth, kindness. Married w/sense of humor. FMS,RA,OA. NO DM’s. @plwin49r.bsky.social🇺🇦🇺🇸☮️
Sammlung von Informat... @lhaztknup
5K Followers 7K Following
The teacher Najwa Kha... @NKhaled19921918
166 Followers 1K Following 🇵🇸 Palestinian mother And a teacher from Gaza Raising hearts with hope ♥️ We live with love and dignity, despite having little Your support keeps us going ⬇️
Martin Bonner 🦋 @a... @MartinJBonner
2K Followers 5K Following Exeter, UK. Interested in Science, Technology, Healthcare, and Disability Rights. Partner of Heart/Lung transplant recipient. Self Employed. Unpaid carer.
Dame Sa 🐝 3.5% @LongCovidHell
10K Followers 7K Following Raising awareness for #LongCovid and the need for treatment. I suffered heart, lung & eye damage from a 2020 Covid infection. Politically homeless. #NovavaxNow
holdingonME @JoannaWo4
811 Followers 891 Following 27/ i have long covid for 40 month, and now suffer from severe mecfs (bell 0-10) and pots. I prob have other issues as well but too fatigue to get tested #mecfs
Irish ME/CFS Associat... @IrishMECFSAssoc
3K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research. NB: Posts are not advice. RCN 20100254. CHY 22039
Bridgette Jones @biocultural13
690 Followers 2K Following ⬆️from @talilalewis! 🛌bound #DisabledOracle💫 #COVIDIsAirborne #QuarantineYear5 chronically gaslit #PwME/Lyme/POTS/#longCOVID ambulatory♿️user; #LandBack🌈🍉🎶
Rachel 💚 ♿ 🌍 @ChasingGlimmers
20K Followers 22K Following Autistic. Northumbrian. Green 💚 SEND Mam. M.E Sufferer. Disability Rights Advocate. Opinions Own. Writer @TheCanaryUK Blogger @wearecarers
Barnaclebum6 @barnaclebum6
1K Followers 2K Following #Spoony #ME/CFS. Carer for Soul Mate who has terminal Cancer. Proud Parent Frustrated Artist. New to the Joys of Gardening. Sick of Political liars & corruption
Sunny🌻 7Blessed �... @Sevenblahs
301 Followers 2K Following (I'm not a med dr.) RT's are not endorsements.
Rose Hewitt @rose4Rog4ever
104 Followers 713 Following Just a fraction of my old self, I exist in the LH of ME/CFS. Watching tennis keeps me sane. Justice for all living things
Andrew Green @AndrewG76201347
2K Followers 1K Following ME/CFS, POTS, MCAS, lupus, mtDNA, AVP-D. Female (ignore name). Scientist retired due illness/disability. Anonymous because I share medical details of my child.
Anne @AnneinAyrshire
2K Followers 978 Following Over 35 yrs of #ME. V limited since 2014. Living a small life, crashed much of the time. Still trying & hoping. Likes Tea. Prev life #property #financial servs
🌱 katski 💙 @katkatski
746 Followers 2K Following One of the #MillionsMissing I miss singing, gardening, travelling, seeing friends and family, doing the ordinary things in life... I miss work. Cat mum 🐾🐾
star pwME 😷 @_cureme_
292 Followers 886 Following Struggling w/ MECFS for 16+yrs, MCAS, OI, POTS, Long Covid. Victim of Domestic Abuse #NarcAbuse #FreePalestine 🇵🇸 #MillionsMissing #WearAMask #CleanAir
Delena @delbarriob
537 Followers 3K Following
Arsen Balls @ArsenBalls
2K Followers 3K Following Former taxi driver of Cab 666, Satan’s official driver. Fmr political staffer. MECFS certified. Senior Hashtag Consultant. Why you mad?
Victoria @victoriakref
686 Followers 5K Following Politikwissenschaftlerin. ME / LC. MCAS. Dysautonomie / POTS. Chronische Schmerzen. Zöliakie. Hashimoto. PMOS. hausgebunden, vormals bettgebunden #F95
Paul Pettinger is hav... @PettingerP
909 Followers 1K Following Enlightenment fan and Open Society friend - Pimlico & Exeter. Not well but naturally this pale. Ⓥ🇪🇺❄️🇺🇦♿️🌈✊🏿💚
Swiftsandswallows @Swiftsswallows
1K Followers 2K Following @swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Lindsey 💀🇨🇦 @linds_longcovid
4K Followers 2K Following Disabled by #LongCovid • #MECFS • #pwLC • #chronicillness since 01/22 💔 Terminal brain/nervous system disease 😭
Bas Koelewijn @BasKoelewijn
2K Followers 5K Following Disability research, advocacy & inclusive education. Overly invested in sports and the dog 🐶. Chronically ill but definitely not lesser than. He/Him.
Catherine Harris @oovChirrupvoo
2K Followers 5K Following Christian, socialist. Catholic.🏴. 🇹🇹. Long Covid, ME. Kidney cancer and DV survivor. Sometime HA NED, former Chair Haringey Pensions Committee.
Gary Anderson @G_A_grandsong
2K Followers 7K Following #LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹
Long Covid Patient Ac... @LC_UK_Action
4K Followers 2K Following @LongCovidUK @longcovidactionuk.bsky.social @med-mastodon.com https://t.co/DlgXF9BQSe
sean stidston @seanstidston
1K Followers 3K Following
Long COVID Campaign @LCCampaign
1K Followers 463 Following Nonpartisan & patient-focused, Long COVID Campaign (LCC) works for accelerated research, affordable treatment & expanded support in the U.S. & globally.
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Wading through treacl... @kimisgubbed
3K Followers 3K Following Advocate & sharer of bio research for INFECTION ASSOCIATED CHRONIC DISEASES inc MECFS, Long COVID, MCAS, Dysautonomia, Vaccine injuries, FMS, Sjogrens & Lyme 🔬
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Lizzy H @hopefullizzy
8K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Sten Helmfrid 🇺�... @StenHelmfrid
8K Followers 189 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Christoph Ströck @cstroeckw
9K Followers 760 Following Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
Janet Dafoe @JanetDafoe
17K Followers 223 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Tom Kindlon @TomKindlon
15K Followers 621 Following With ME 37 years (31 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 29 yrs
Todd Davenport @sunsopeningband
13K Followers 4K Following Chief rapscallion & picaroon. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. DPT PhD MPH.
davidtuller @davidtuller1
11K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
PwME 4 bioMEdical res... @ValeBodi
5K Followers 3K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/ gnarled Pacer
Dan Wyke 🦠➡️�... @Dan_Wyke
14K Followers 6K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Whitney Dafoe @DafoeWhitney
12K Followers 87 Following Severe ME/CFS patient and advocate. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊ Useful info for ME/CFS and Long Covid patients in bio link.
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Adam @ABrokenBattery
8K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Tracey Burgess @TraceyABurgess
4K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
@richardvallee.bsky.s... @richardvallee
3K Followers 4K Following I play language. Mostly irreverent. Debugger. AI. Global warming. Integrity. Healthcare. Science. We are actually in the pre-truth era. #MillionsMissing
Anil van der Zee © @AnilvanderZee
10K Followers 891 Following Former professional ballet dancer | Bed- and wheelchair bound M.E. patient | Using ✖️ to raise awareness for #pwME | #IACI #art2cureME #pwme #millionsmissing
A Darkened Room @adarkenedroom
209 Followers 366 Following One of the #millionsmissing || Raising awareness of the most severe form of #MyalgicEncephalomyelitis
Adrian Esterman | Epi... @profesterman
503 Followers 263 Following Epidemiologist & biostatistician | Prof @ Adelaide University Ex-WHO Explains outbreaks, vaccines & risk in plain English Evidence greater than vibes
Sandy Horne @SandyHorne61
14K Followers 3K Following Birder. Amateur photographer. Mostly birds but other things at times. Feed cleansing one photo at a time. Project Officer.
Volodymyr Zelenskyy /... @ZelenskyyUa
8.5M Followers 1 Following President of Ukraine / Президент України
Yr buskined mistress ... @rhymeswithvery
2K Followers 4K Following PVS: Booster #2 05/22. Now: OH, dysautonomia, MCAS, pre-diabetic, fibromyalgia, #ME, corneal basement dystrophy syndrome. Pro-vax but #FcktheNIH. Mask up FFS.
Dame Sa 🐝 3.5% @LongCovidHell
10K Followers 7K Following Raising awareness for #LongCovid and the need for treatment. I suffered heart, lung & eye damage from a 2020 Covid infection. Politically homeless. #NovavaxNow
RarasNoInvisibles @NoInvisibles
55K Followers 7K Following Hablamos de salud, enfermedades raras, inclusion social y biomedicina. Escribe @Sombradoble Mas Información: [email protected]
Daniel Missailidis, P... @DanMissailidis
4K Followers 697 Following Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI
ME/CFS Science @mecfsskeptic
6K Followers 485 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Minghao Gong @MinghaoGongD960
387 Followers 1K Following Musically-inspired Postdoc @ Jackson laboratory for Genomic Medicine - Pains sharpen the mind and channel the spirit to the utmost heights!
NicandME @nich85380
139 Followers 407 Following Life on pause since 2012 PWME, HEDS, POTS, MCAS & CSU. Raising Awareness when health allows.
holdingonME @JoannaWo4
811 Followers 891 Following 27/ i have long covid for 40 month, and now suffer from severe mecfs (bell 0-10) and pots. I prob have other issues as well but too fatigue to get tested #mecfs
Royal Australian Coll... @RACGPPresident
10K Followers 5K Following The official account of the @RACGP President Dr Michael Wright.
AMA President @amapresident
35K Followers 1K Following Dr Danielle McMullen FRACGP Leading Australia's Doctors, Promoting Australia's Health. Follow AMA_Media on Twitter @ama_media
RACGP @RACGP
26K Followers 2K Following We set standards for general practice, educate the GPs of today and tomorrow, and advocate for a GP community dedicated to better health for all Australians.
Karl @karlander_
2K Followers 3K Following Ich twittere zum Thema ME/CFS. I tweet about the topic ME/CFS.
Irish ME/CFS Associat... @IrishMECFSAssoc
3K Followers 2K Following Irish Myalgic Encephalomyelitis/Chronic Fatigue Syndrome Association-for Information, Support & Research. NB: Posts are not advice. RCN 20100254. CHY 22039
🌱 katski 💙 @katkatski
746 Followers 2K Following One of the #MillionsMissing I miss singing, gardening, travelling, seeing friends and family, doing the ordinary things in life... I miss work. Cat mum 🐾🐾
KCIMESG @KCIMESG
260 Followers 186 Following Kirklees and Calderdale Independent ME Support Group. We are a local ME/CFS Support group covering Kirklees and Calderdale as well as surrounding areas.
Bridgette Jones @biocultural13
690 Followers 2K Following ⬆️from @talilalewis! 🛌bound #DisabledOracle💫 #COVIDIsAirborne #QuarantineYear5 chronically gaslit #PwME/Lyme/POTS/#longCOVID ambulatory♿️user; #LandBack🌈🍉🎶
Narelle @Narelle20447928
225 Followers 2K Following
Barnaclebum6 @barnaclebum6
1K Followers 2K Following #Spoony #ME/CFS. Carer for Soul Mate who has terminal Cancer. Proud Parent Frustrated Artist. New to the Joys of Gardening. Sick of Political liars & corruption
Christina @christina4hope
4K Followers 6K Following ME/CFS ,Fibromyalgia ,Longcovid,lyme Boriliose,MCS ,Vax Injured( not corrona vax ),Hearing loss ect . Also find me on @christina4hope.bsky.social
Andrew Green @AndrewG76201347
2K Followers 1K Following ME/CFS, POTS, MCAS, lupus, mtDNA, AVP-D. Female (ignore name). Scientist retired due illness/disability. Anonymous because I share medical details of my child.
Anne @AnneinAyrshire
2K Followers 978 Following Over 35 yrs of #ME. V limited since 2014. Living a small life, crashed much of the time. Still trying & hoping. Likes Tea. Prev life #property #financial servs
ChronicParent @NotUnexplained
168 Followers 252 Following Walking with my daughter and learning fast about the world of #MECFS
Swiftsandswallows @Swiftsswallows
1K Followers 2K Following @swiftsandswallows.bsky.social My daughter had Severe ME/POTS & MCAS and died in 2024 I am also a parent and carer of a younger daughter with ME & POTS
Michael R Scoma MD @DrMichaelScoma
9K Followers 121 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given. https://t.co/HkQt5xRhlP
Lindsey 💀🇨🇦 @linds_longcovid
4K Followers 2K Following Disabled by #LongCovid • #MECFS • #pwLC • #chronicillness since 01/22 💔 Terminal brain/nervous system disease 😭
Cynthia Johnson @MineToDo
446 Followers 2K Following Storyteller. Advocate. Stand By ME/CFS! #StandByMEcfs #StillSickStillFighting #MEcfs since 2009
Top Media Pi𝕏 @JasonXMedia
10K Followers 9K Following Movies, Music, Gaming, & Anime Nerd…Sometimes Sports & Politics. ME/CFS Warrior & 💯 % Anti WEF
Massimiliano @Snipperspace
799 Followers 3K Following 53y/man/Nurse and Osteopath/#MECFS (Long Mumps, The only one in the world) from 13/08/2021.🇮🇹 Italy
Nic @LilNic000
958 Followers 4K Following #Disabled & 10x #ChronicIllness inc #pwME for 22 yrs + prob #AuDHD please #WearAMask whovian, history grad, Christian, grey/demi, #ClimateActionNow
Clay Crosby ☮️ @ClayCrosbyLMFT
312 Followers 1K Following psychotherapist for creative people, dad, erstwhile crooner #MECFS #MillionsMissing , https://t.co/nAWsDEOwaU
Matthew Kirby @aintnometaphor
577 Followers 1K Following ME/CFS, long-covid, generally finding it impossible to live life on life's terms, #FBLC
Hillary Johnson Autho... @oslersweb
4K Followers 1K Following Investigating ME for 40 years. The Why "Indispensable" Osler's Web “A relentless, highly persuasive expose" "Groundbreaking" "A major documentary account"
Long COVID Campaign @LCCampaign
1K Followers 463 Following Nonpartisan & patient-focused, Long COVID Campaign (LCC) works for accelerated research, affordable treatment & expanded support in the U.S. & globally.
#NotJustFatigue @njfatigue
1K Followers 726 Following We’re a bipartisan 501(c)(3) sounding the alarm on ME/CFS with digestible, creative content, and advocating for people with the disease. This is #NotJustFatigue
Catherine Harris @oovChirrupvoo
2K Followers 5K Following Christian, socialist. Catholic.🏴. 🇹🇹. Long Covid, ME. Kidney cancer and DV survivor. Sometime HA NED, former Chair Haringey Pensions Committee.
Bas Koelewijn @BasKoelewijn
2K Followers 5K Following Disability research, advocacy & inclusive education. Overly invested in sports and the dog 🐶. Chronically ill but definitely not lesser than. He/Him.
Gary Anderson @G_A_grandsong
2K Followers 7K Following #LongCovid #MECFS - Another Long Covidian pursuing science in service of the ‘heart.’ 🫶🏼🌹You might like
Illustrator Interrupt...
@FranceyME
3K Followers
Andrea Joliat
@AndreaJoliat
1K Followers
PZ *ME Lobbyist*
@pzneedsrest
1K Followers
Paul Mc Daid
@paulthedaid
1K Followers
Jenny Meagher
@JennMeagher
1K Followers
Crystal
@GemzME
1K Followers
Liz Burlingame
@LizMEActGA
896 Followers
shelley-lee waller
@shellchat
985 Followers
ME Research UK
@MEResearchUK
6K Followers
Lisa Zett
@ME_LisaZett
2K Followers
Marilyn Gavranovic
@marilyngavrano1
816 Followers
MEnaced
@MEnaced_2016
551 Followers
Kerry Newnham
@Squashedhedgi
1K Followers
Margaret Laverick
@margaretlav
830 Followers
Joanne Smith - Jo
@_Joannesmith
834 Followers