Princess, The Tower @APainPrincess
Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP princessinthetower.org The Tower Joined November 2012-
Tweets29K
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Followers28K
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Following27K
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Likes8K
“The people closest to me didn’t understand what I was going through, and after a while didn’t care because I was ‘always sick.’ So I stopped talking about my #chronicillness… The time I needed support the most, I found myself almost completely alone.” buff.ly/3TtXNOg
“I spend everyday in excruciating #pain… I’m sensitive to light/noise, simple tasks are hard… My short term memory is bad… #CRPS is a horrid disease… Don’t allow someone else to minimize your journey—every warrior is a warrior.” buff.ly/4cx6hNk @RSDSA #RareDisease
“‘How are you really?’ I wish they would ask me how I’m feeling and not assume I’m having a good day because I look OK. I wish they would show #compassion when I suddenly have #Fibromyalgia flares and need to rest instead of ignoring me.” buff.ly/4cfN42r #ChronicPain #FM
“Are people with #chronicillness lazy? …We definitely are not, quite the opposite. And of course, many of us do all these things while also working, raising a family, caring for others and so much more…those with chronic illness work incredibly hard.” buff.ly/4aFIbOi
“I’m tired of being told to “deal with it”… It’s hard to deal with something that never goes away… But I’m also tired of blaming myself for my #chronicillness…it is not my fault… I’m trying my best, even though it might not seem like it.” buff.ly/3Qo9BR9 #endo
“#ChronicPain is a thief… It steals time with my children, time with my friends…time to do things I enjoy. It not only decides every day what I am capable of… It steals from the days following if I manage to… it wreaks revenge…days, sometimes weeks.” buff.ly/49VCwDk
“#ChronicPain prevents me from concentrating… Then there are the really bad days—where my bones feel like glass and nerves like molten wires. When the #pain is so much I want to cry… I can’t move or get out of bed—they’re completely debilitating.” buff.ly/43uRoqA #EDS
“With #chronicillness it is extremely difficult to know how one will feel. It is no longer a day to day struggle but an hour to hour battle… You can be having a ‘good’ day… when suddenly the pain flares and leaves you vomiting, doubled over in #pain.” buff.ly/3IZIg3y
“It’s a day-to-day battle… a lot of the time it feels more like just surviving… pain makes the most simplest tasks, like getting out of bed or getting dressed, difficult feats. You’re battling everything. All of the time.” buff.ly/4b6BGEQ #ChronicIllness #ChronicPain
“Life with a physical #disability is hard… When you’re disabled, it’s easy to be hard on yourself… your health often is unpredictable…but you shouldn’t blame yourself or consider it a failure… sometimes things happen beyond your control.” buff.ly/4df07BH @sarahlynn358
“There comes a time in the life of many people living with #lupus or #chronicillness when your body just cannot support your need to work… Losing your ability to earn a living can be devastating… you’ll also feel keenly the loss of identity.” buff.ly/3xFxi0O #Disability
“You don't always have to pretend to be strong… Cry if you need to, it's good to cry out all your tears, because only then you will be able to smile again.” ~ Paulo Coelho #chronicpain #chronicillness #mentalhealthmatters
“I experience fear every time I make any kind of plans—how will I feel when the day comes around? Will I have to cancel? Will my friends be upset? Will my body let me down? … It’s one of the parts of #chronicillness that most people would never think of.” buff.ly/3Tu9Ivk
“The whole thought process of a #chronicallyill person is vastly different from a “healthy” person… they have no idea what it’s like—there may be 20 or more decisions you need to process before you can walk out your door.” buff.ly/49hxUqN @KimberlyJPenix #spoonie
“No one wants to be home sick—it’s just not always possible to go out… But even if people with #chronicillness aren’t able to go out most of the time, it doesn’t mean they never want to… Continuing to be invited and included means so, so much.” buff.ly/49k81Xb #spoonie
“Most people start the day with possibilities, and energy to do whatever they desire, especially young people… Every little thing I do as a person with #chronicillness(es) and #chronicpain requires energy (especially because #fatigue is a symptom).” buff.ly/43MBFDy
“What many don’t seem to take into account is that these things can be a symptom of or a reaction to being sick, rather than the cause… You aren’t going to not have #chronicillness because you suddenly picked up a diet. It’s easier to blame #depression.” buff.ly/49oRgdA
“Overdoing it. Walking too much. Doing too much work around the house. I want to pace all the time, but sometimes my brain thinks ‘Hey we can do this’ and my body is like ‘What the…!'” #PainFlare Triggers buff.ly/3J5OcII @AChVoice #chronicallyill #chronicpain
“I have flares that last two weeks and others that last upwards of three months… I am left with the “flare hangover” of severe #fatigue and #brainfog… Other times… hospital. I receive infusions/treatments in an effort to break the cycle.” buff.ly/49lQcHk #ChronicPain
“It’s not only the flare, exacerbated pain and symptoms, nor the #stress of not knowing when it’ll abate, but the consequences—and the longer the #flareup—the greater those consequences.” How to Cope With Flares buff.ly/49PCa1p @APainPrincess #chronicillness #chronicpain
Thomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6Ku
Bev Schechtman🇮�.. @ibdgirl76
10K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPP
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Claudia A. Merandi @CMerandi
10K Followers 512 Following RI HCP/patient advocate. Founder Doctor-Patient Forum/Don't Punish Pain.
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Angie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Joe Newman @JoeAllenNewman
8K Followers 1K Following A Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPP
Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
Burning Nights CRPS @BNightsCRPS
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Justice 4 Dr. Norris @Justice4Norris
5K Followers 4K Following Advocate 4 Drs - #ChronicPain - #SUD - #EndTheDrugWar - Repeal the 70s Substance Abuse Act Lo💘e's the only 🏠 big enough for all the pain in this 🌎
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Illicit fentanyl is k.. @JSG_54
7K Followers 3K Following Advocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.
SomeWoundsAreNotVisib.. @PTSDAdvocate
4K Followers 3K Following #Married #ChronicPain #SA #PTSD #Survivor #NotAllWoundsAreVisable #SuicidePrevention #FightForYourLife #YouAreWorthIt #SUPERFAMILY Politics🤷♀️ 🚫DMs
Laird Law PLLC @DanLairdMD
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BilkedToTheBrink @Bilked2TheBrink
4K Followers 5K Following ■STOP•WEALTH•HOARDING: MORE Money, in fewer hands than ANY TIME IN HISTORY is à threat to all! Rich $idiots$ need food, h2O, Oxygen, TOO. https://t.co/Ta0925IdHc
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K Benson @fadedrose75
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singkepe @singkepe
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Shakawat Rabbu @ShakawatRabbu
461 Followers 1K Following Hi there, This is Shakawat Rabbu a professional Google Ads specialist. My Work Area : Google PPC Ads Google Display Ads Google Video Ads Google Ads conversion
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Bizarro World🤪🌎 @bizarroworld27
315 Followers 1K Following Life These Days Is More Than Just Bizarro ... It's Just Plain Crazy!! 🤷♂️🤡 Crazy Videos & Memes Outlet. #Funstuff
Teddy Jefferson @PurpleEquity
12K Followers 13K Following American. Read the Constitution. Retweet is not endorsement. Do your own work; not financial advice 🤠🇺🇸☮️🔫
Fibrowarrior1🙏🏼.. @fibrowarrior1
188 Followers 2K Following ~Christian ~Wife ~Army Mom ~Gma of 2 ~Conservative #Constitution #1A #2A ~America First ~Freedom, Peace & Love
Old Man John @Old_JohnPasBon
4K Followers 7K Following Waste no more time arguing about what a good man should be. Be one-Marcus Aurelius. Be self-confident & make a difference (however big or small it may be)
joe @joe923146992727
1K Followers 3K Following MAGA Londoner married living the dream on the beach in South Florida
REBel - 4 God & Count.. @7x7Down
5K Followers 6K Following 🇺🇸#USAF🇺🇸#Constitutionalist 🇺🇸 Our #2A Supports The Rest 🇺🇸 GOD WINS! Christian #IFBAP💯 #Jeep #Hunt #Fish #Cook Μολὼν λαβέ • #NRA #RangersVetsAndLEOs
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120 Followers 1K Following What God Can Not Do, Does Not Exist. What Mercy Can Not Do, Does Not Exist.
Siobhan Doyle @SiobhanDoy27001
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Melanie Joseph 🇨�.. @PurlingPanda
216 Followers 2K Following Knitter/sewist with a husband and 3 kids - she/her @[email protected] @PurlingPanda.bsky.social
Lumbar Luxury @LumbarLuxury
69 Followers 331 Following Welcome to Lumbar Luxury! Your ultimate destination for relaxation and comfort.
long covid teacher WA @longcovidteachr
84 Followers 306 Following too sick to work trying not to freak out
Luwaina Martinez-Diaz @diaz_luwai45248
3K Followers 5K Following A child of God, a woman of faith, a warrior of Christ. ⚔️ Patriot 🇺🇸🇺🇸 No DMs please
kim mahoney @kimkatm
245 Followers 4K Following animal welfare advocate, entrepreneur, former business owner, RN, Board member at Big Cat Rescue and a local animal rescue. ❤️🇺🇸🇺🇸🇺🇸. Weary from🤡 world.
American Chronic Pain.. @ACPAnow
3 Followers 38 Following
Jfoxtales-Flames🔥t.. @NowunTrumped
109 Followers 399 Following Tired of being quiet. Ready to be heard. Full-body #CRPS. 🔥🐦🔥Defender of the voiceless, ALLY🏳️🌈, EXvangelical, loves Jesus (PK). Survivor.✌🏼
Brian O’Keeffe @BrianOKeeffeBOK
65 Followers 387 Following
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Lea 🐝 @_lea35166
11 Followers 223 Following Postgraduate 2021 📑📚from Life Long Learning Centre at University of Leeds. Will always be a lifelong learner.
Maria Hetenyi @PoolDesign17
58 Followers 236 Following Pool, hardscape and landscape design service. Contact: 310-463-9823 [email protected]
Chrissy Gainey @cgainey1671
3 Followers 60 Following
🦅Kristin 🇺🇸�.. @CPS444836411
714 Followers 252 Following Non-partisan women. Anyone who disrupts the harmony of America is seen as an aggressor, and America always comes first. Consistency of opinion is important.
Joyce Johnson @JoyceJohns33844
4 Followers 7 Following
RheumaWarrior @steffie_davis
121 Followers 499 Following "Life's temporary - enjoy the ride! If you know, you know. Embrace the moment and let loose. Make memories and cherish every moment. 🌟"
Amanda Wiggin @MandaPrincess86
38 Followers 166 Following I volunteer for the American Foundation for Suicide Prevention, I am a Teacher and every day even with health issues I wake up ready to challenge a new day!
Amy E Hostetter @AmesDaizy
82 Followers 152 Following Love My Cat 🐈⬛ I'm a Reader 📚Love Music 🎶 I Suffer From Fibromyalgia & An Autoimmune Disease called UCTD. 💜. 🚫PLEASE NO DM’s🚫
Thomas Clark Fenner @tomqwest
81 Followers 249 Following Technology explorer. Currently building and installing high fidelity Sensory Stimulation Drivers in massage tables and furniture for sensory immersion
Iris Carden @IrisCarden
1K Followers 2K Following Indie Author, pet owner, lupus survivor, grandmother. Facebook: https://t.co/8bfdnzPGGb Instagram/Threads @authoririscarden
Kathryn Benjamin @KathrynBen10
59 Followers 499 Following Social care and health, great outdoors, furry animals.
ไผ่ @LoDvt1LbSETr5i
61 Followers 1K Following ในโลกของฉัน มีกลยุทธ์การออกเดทที่จะทำให้หัวใจคุณเต้นเร็วขึ้น ดังนั้นให้ความสนใจตอนนี้! หน้าแรกอัพเดทข้อมูลการติดต่อ
Casey @caseyramsey519
128 Followers 647 Following Music is good for the Soul. I love supporting music. Volunteer for @bbcsi. I’m a liberal. I love spending time with my family and friends.#fibromyalgia warrior
LÈAD PATRIOT 🇺�.. @walking_inj
668 Followers 1K Following Disabled PO/Sgt/SWAT Go get another BOOSTER, OPEN your home to Squatters and Illegals or 🛑 STOP the FAKE VIRTUE SIGNALING. 🤡🌎
Lynn @lynne1251
3K Followers 3K Following My greatest blessing calls me Mom 💙 Educator, lover of books, science, my pups 🐶 & kind humans.🦋 #BlueCrew #VoteBlue 🌊💙 No DM’s
TrekbikesRider @LucSevriens
21 Followers 127 Following
Siri Supports Biden @siristone
4K Followers 3K Following I choose the earth. I choose education. I choose equality. I choose freedom. I choose peace. I choose gun reform. I choose healthcare for all.🇺🇸🇺🇦🇸🇪🏳️🌈
Thomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6Ku
Bev Schechtman🇮�.. @ibdgirl76
10K Followers 4K Following Wife, mom of 2 girls & an Aussiedoodle, Crohn’s, PsA, PTSD, sexual abuse survivor, chronic pain advocate. VP/Researcher for The Doctor Patient Forum/DPP
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
Claudia A. Merandi @CMerandi
10K Followers 512 Following RI HCP/patient advocate. Founder Doctor-Patient Forum/Don't Punish Pain.
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Angie B @quinky_dink
5K Followers 4K Following Chronic pain patient. Multiple autoimmune diseases. Patient Advocate. Fighting the fight of my life everyday.
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Joe Newman @JoeAllenNewman
8K Followers 1K Following A Dr said he could not see, measure, or prescribe for pain because it is invisible. Wrong, Doc, pain looks like me & millions more who die if u are blind. #IPP
Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
stable finally, getti.. @bennessb
27K Followers 693 Following currently: haunted / unwell & host of No End In Sight, creator of #NEISVoid, a keeper of @RTsFromTheVoid. find me on 🦣: @[email protected] she/her.
☃️☃️Fibro Slo.. @FibroSloth
6K Followers 3K Following Epilepsy fibromyalgia POTs depression anxiety ptsd psoriasis👩🦼love sloths,cats all animals and sea life Halloween.Laughter is the best medicine💕
Burning Nights CRPS @BNightsCRPS
11K Followers 11K Following Burning Nights CRPS Support is a UK charity raising awareness & supporting all those affected by Complex Regional Pain Syndrome (CRPS). Charity No 1166522
Justice 4 Dr. Norris @Justice4Norris
5K Followers 4K Following Advocate 4 Drs - #ChronicPain - #SUD - #EndTheDrugWar - Repeal the 70s Substance Abuse Act Lo💘e's the only 🏠 big enough for all the pain in this 🌎
Orkney Fibromyalgia S.. @OSufferer
4K Followers 5K Following Writer, aspiring speaker, blogger, Advocate for Fibromyalgia & Invisible Disabilities. Fibromyalgia, FND & MECFS sufferer for over a decade.
Illicit fentanyl is k.. @JSG_54
7K Followers 3K Following Advocate for individualized treatment of high impact Chronic pain. Seeking to discredit PROP'S,CDC guidelines,CDC & CDC Foundation.
SomeWoundsAreNotVisib.. @PTSDAdvocate
4K Followers 3K Following #Married #ChronicPain #SA #PTSD #Survivor #NotAllWoundsAreVisable #SuicidePrevention #FightForYourLife #YouAreWorthIt #SUPERFAMILY Politics🤷♀️ 🚫DMs
Evanna Balles +41 79 .. @BallesEvan
12 Followers 208 Following HUMAN RIGHT EDUCATION Anti-Injustices, Pire lorsque C Est Gratuit, Alors Les Laches, Manipulateurs, Menteurs, Etc... Vous Pouvez Directement Tracer...
Marcia @MarciaW_ard
700 Followers 1K Following Human being, Clinical Neuropsychologist & Behaviour Analyst who loves to laugh
‽ @HowNotToADHD
155 Followers 1K Following 28F / #ankylosing spondylitis warrior Spacex fangirl also #chronicpain #switchfoot #NF
Sjogren's Woman @SjogrenWoman
10 Followers 42 Following #chronicillness #chronicpain #autoimmune #sjogrens #diabetes #hypothyroidism #migraine
EMPOWERA @Empowera_coach
4 Followers 38 Following Certified inclusion expert. Mentor and coach. Twin medical mom. Years of experience counseling, mentoring and coaching medical moms. [email protected]
👻👻 Miss B 👻�.. @therockbabe82
924 Followers 5K Following 🧙🏻♀️ 💛&🕯️🙏🇺🇦 Empath, trying to navigate this world. Blocked by Edward Snowden.
Delilah Castillo @Delilah06104415
30 Followers 269 Following hi my name is delilah i been fighting fibromyalgia since 2017 !!
Arachwarrior @ArachwarriorEve
4 Followers 20 Following
Keri Randolph @mkeri19
51 Followers 113 Following link in bio for crafty creations 🖤💕 CRPS type 2 awareness 🔥
jessicaღann @jessicafjelstad
196 Followers 236 Following Life isn't about finding yourself; Life is about creating yourself. Stay focused. ✌
JJ @myhealth_andme
9 Followers 41 Following Fighting #invisibleillness 💪🏻 My life with IBS, CPTSD, fibro and ME/CFS ✨
MJNUCH @MJNUCH72NUCH
211 Followers 1K Following Watching, Observing, Learning, Ruminating...for now.
Rita Darrigo Leonard @reetaspieces
2K Followers 3K Following Working in Healthcare. Excelsior College 2020 🎓. Mom to daughter and the 🐶 she left behind. 😂 Beach Lover 🌊 💗reading non fiction 📚 Married 💕 💙💙💙
CMD @sandygap46
1K Followers 1K Following Resister Army(ret). Gay, grands, gardens, critters. I read. Mongrel child of long line of immigrants. Pissed off at all magas. Aging poorly
✏Kimmie❤️ #ISta.. @kimm_moekotte
3K Followers 510 Following Artist, Mommy, Nick Carter and Backstreet Boys fan!😊 Positive vibes only!🌟 Fibromyalgia warrior💪❤ Making of the Backstreet30Project https://t.co/FMIeKhvBWa
L5/S1 incomplete SCI�.. @OvercomingMySCI
43 Followers 343 Following Being a better me after Cauda Equina Syndrome turned my life upside down. Complex mental health. MSc student ❤️ music, languages, poetry, sport. Frenchie dad 🐾
Iris Carden @IrisCarden
1K Followers 2K Following Indie Author, pet owner, lupus survivor, grandmother. Facebook: https://t.co/8bfdnzPGGb Instagram/Threads @authoririscarden
Peachy Potsy @peachypotsy
25 Followers 0 Following
UmarFarooq📚🇵�.. @UmarFarooq794
570 Followers 8K Following I want to learn more. Meaning Science Culture Business History. I like subjects like politics etc. I like future subject more. I am a student.and books love
Laura Gawlinski @GawlinskiLaura
2K Followers 5K Following Fiber artist, Democrat💙 Proud to support Ukraine ✊🏻🇺🇦 WOKE❣️It’s not the Drag Queens. Supporting 🌈Love is love.
LA2LAGURL @La2Arceri
427 Followers 2K Following Questioning everything : 𝚖𝚎𝚗𝚊𝚐𝚎𝚛𝚒𝚎 𝚘𝚏 𝚠𝚑𝚊𝚝 𝚠𝚊𝚜: spiritual & narcissistic abuse survivor #CPTSD: severe #ME/CFS: POTS, CCI 20yrs
B Rad @BBarnes11155
179 Followers 265 Following SDSU Aztecs, Padres, Chargers; Cancer Survivor , 🎗️CRPS Warrior🎗️, Sports Card Collector, Financial Professional
Brenda Alexia @brendaalexia21
63 Followers 452 Following Wear your wisdom with silence in front of fools.. Dreams get you started....Discipline keeps you Going.. psalms 20:4
paigey @paigeycannon
70 Followers 192 Following RSD WARRIOR, CRIME FIGHTER, SEABRIGHT BEACH NEIGHBORHOOD PROTECTOR !!
Peter Wilkinson @PeteWilkinson23
21 Followers 39 Following Goal for 2023/2024 is to feed myself back to Health and on the Journey I look forward to meeting and Helping you. Come and Join me let's have Fun.
Tiffany Dages @TiffanyDages
890 Followers 3K Following Lifelong vEDS warrior🦓 proud wife of an OIF combat explosives Vet🇺🇸 7th gen hillbilly Floridian🍊foster/adoptive mom 💐hospice volunteer🤗x-stitch🪡Dem💙
Elhers Danlos syndrom.. @MedicallyGaslit
430 Followers 1K Following Elhers Danlos Syndrome Warrior!fighting 4 justice 2 stop medical gaslighting & get treatments we need! No to the VAX 👺🩼Racists do 1! Noahs Army💙⚡️
E @wonderwall1973
328 Followers 1K Following Victim of unsafe hernia Mesh fighting to expose the truth
j ray @eagle_bluff
22 Followers 368 Following a simple guy living a simple life in a terribly convoluted world • fibro-spoonie • tea drinker • ✞
Brett Harper @BrettWHarper
80 Followers 376 Following #Disabled #CPTSD #MDD #ChronicPain #Sciatica #SleepApnea #ChildAbuse #Survivor #Author #Activist #Independant #Misanthrope #FathersRights #ACAB #FuckSociety
D.Gi.Talco @dgitalco
311 Followers 3K Following #UnlockArt 🌟 Donate for exclusive access! Instantly explore the gallery and download high-res masterpieces. Your support matters! 💖🎨 #ArtAdventures
Whatsgoingon @41shotswhy
71 Followers 226 Following #BLM #POCMatter See something say something. Music ❤️ Animal ❤️ Live to laugh.
Amy E Hostetter @AmesDaizy72
82 Followers 139 Following Love My Cat 🐈⬛ I’m a Reader 📚I Love Music 🎶 I Suffer From Fibromyalgia & An Autoimmune Disease called UCTD. 💜 🚫PLEASE NO DM’S 🚫
Emily S @emsuemo
39 Followers 200 Following
Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following @patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022
Julia MV @julialmv
2K Followers 404 Following Let's increase health equity Now: @AllofUsResearch at @ScrippsRTI & #LongCovid patient-researcher @patientled Then: @RockefellerUniv & @nygenome
Samuel Hume @SamuelBHume
3K Followers 5K Following Scientist, medic. PhD from @UniofOxford, Fellow of @FoulkesFdn. Writing about new innovations in biology and medicine.
Anodunos World Withou.. @sotmary1
534 Followers 558 Following Advocating for more coverage of options for reducing pain and educating pain navigators and providers to offer collaborative care for the pain client.
Kãte Ohoyo @IssiOhoyo
52 Followers 43 Following Auntie✨farming🌱growing in the red dirt❤️Choctaw/Chickasaw🪶MMIW/MMIP❤️Survived Medical Gaslighting,DV, TBI, Stroke, Fibromyalgia,MECFS, Spine Injuries #CPP
Teri Hendricks @HendricksT19837
7K Followers 8K Following #Resister, Liberal Democrat, retired RN, #Equality #LGBTQIA+ #BLM #VoteBlueToSaveDemocracy (previous account: @sykrn86)
Kellie Leigh💙 @ArtistsUnitedWW
251K Followers 231K Following Follower of Christ~Now Booking @jc3music ~*Founder #MusicLov3rz Music Mag & Radio~†1 Corinthians 13:4-8†
Cynthia Balicki @CynthiaBalicki
3K Followers 5K Following I’m one of those radical liberal democrats, I’m also 71 and happily retired! I scare republicans! No DM’s!!! I block all DM’s
Darcy Bonjour @DarcyBonjour
158 Followers 293 Following PROS: Loves Jesus, family, health advocacy, laughing & naps CONS: Deaf, dizzy, long covid first waver, distorted taste/smell, migraine & more. Life is Good 🦙🦩
I hung out with Gilga.. @1bhfolach
30 Followers 125 Following A feminine shaped human. Frequently partakes in bolloxology. I tweet all kinds of crap. ✌🏻 #FreePalestine 🇵🇸 #FibromyalgiaWarrior #AgnosticPagan
Long Covid Commentary @LongCovidComms
3K Followers 4K Following Long covid patient who thinks the world needs more resources to solve and treat long covid and me/cfs #FBLC #pwLC #LongCovid #mecfs #pwME treat #PEM
Brad @Bradgolf1216
3K Followers 2K Following Bachelor of Biological Science Degree. #LongCovid #TeamAutoantibodies #Bc007. Any tweet is my opinion and not medical advice. Check out my podcast on Spotify
Phoenix Rising @62WalterP
49K Followers 43K Following Soccer, Politics #ChangesAhead #FBR #FBPE #Resistencia #EpilepsyAwareness #BlackLivesMatter Earth
@APainPrincess Always so on point ✌️ It’s like you are inside my head 🤍 sorry u deal w it as well … I get YOU ✌️
@APainPrincess Thanks for sharing!
“Understand that these pills do not take all of the pain away. They just enable us to get up, move around & hv some semblance of a “normal” life. They simply allow us to function": buff.ly/45cp107 by @APainPrincess #ChronicPain #awareness #InvisibleIllness #ChronicallyIll
@APainPrincess @DespitePainBlog It can eat you alive, if you're used to being a go go kinda person. Those beginning years were the loneliest times of my life.
@COmama74 @APainPrincess @DespitePainBlog I can understand that; I’ve found being more mindful & present helps. I’m trying to venture out when I can.
@APainPrincess @serenebutterfly A holiday to me is a day I win over pain.
@mrsbloor @APainPrincess @DespitePainBlog Absolutely. I'm bedbound most of the time the last year, so I've lost the ability to do many of the activities I've always enjoyed outdoors. Getting some fresh air is definitely helpful though. Even if it's just sitting on my porch for a bit.
@APainPrincess I find that taking "pain" medications is far more conservative than having a surgery that may not improve the situation.
@APainPrincess I just messaged my doctor basically saying that.
@APainPrincess Right!! I wish I could work a real job. Right now I babysit as well as get disability because disability just isn’t enough especially today
@APainPrincess Sometimes I think my family think I’m just on disability and don’t realize how sick and in pain I’m in. That I’m really suffering !
@APainPrincess Yep. People take these simple things for granted.
@APainPrincess I totally feel this #Migraines #Diabetes
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