Zonked Club @zonkedclub
Welcome to Zonked Club, for people with #ME #CFS #MECFS and other fatigue-linked conditions. Run by @GaryBurgessCI who’s sharing his experiences along the way. zonked.club Global Joined October 2017-
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Long time, no tweet! But thankfully @GaryBurgessCI has finally recorded a video update on the theme of being kind to yourself. Have a watch here and please share: youtu.be/2j1iCSw3CIM #MEcfs
New blog post: a week of me and ME. The other side of the smiley face we often share with others... zonked.club/2019/06/22/a-w… #MEcfs
"Until I had it myself I didn't quite understand what a hidden disability is", says @GaryBurgessCI in this emotional interview about living with ME. itv.com/news/channel/2…
Many thanks to @GaryBurgessCI for opening up about his ME diagnosis and explaining what ME is so succinctly 👌🏼 #pwME #MyalgicE
Many thanks to @GaryBurgessCI for opening up about his ME diagnosis and explaining what ME is so succinctly 👌🏼 #pwME #MyalgicE
A huge well done to @GaryBurgessCI for bravely sharing your story and experiences of M.E. with @ITVChannelTV! You can watch the full video below. #MECFS #PWME #MEAwareness #Journalism #Press
A huge well done to @GaryBurgessCI for bravely sharing your story and experiences of M.E. with @ITVChannelTV! You can watch the full video below. #MECFS #PWME #MEAwareness #Journalism #Press
"Imagine your worst hangover combined with the flu permanently". ITV Channel reporter @GaryBurgessCI opens up about his ME diagnosis, which forced him to take a step back...
New blog alert: @GaryBurgessCI has been overdoing it and paying the price. How many of us recognise that boom and bust cycle? Have a read: zonked.club/2019/04/12/kat… #PwME #MEcfs
New blog post: Learning to give it a rest! @GaryBurgessCI reflects on balancing doing ‘some’ work while also looking after himself. #MEcfs zonked.club/2019/02/28/giv…
If you want to subscribe, rate and review #TheMEShow in iTunes, you can do so here: itunes.apple.com/gb/podcast/the…
It’s here! Series two of #TheMEShow podcast, for people with an interest in #MEcfs, starts today. Search ‘The ME Show’ in iTunes or visit meassociation.org.uk/themeshow
Sorry it’s been a while! But here’s @GaryBurgessCI’s new #MEcfs blog, including his experience with #CBDoil... zonked.club/2018/11/11/cbd…
@GaryBurgessCI just listened to this ep of #theMEshow might be a tad biased but it is excellent @Chantel21284355 @RachelEphgrave work so hard for this group, despite being incredibly unwell themselves. This group makes *such* a difference keeping us from being alone #mecfs #pwme x.com/garyburgessci/…
@GaryBurgessCI just listened to this ep of #theMEshow might be a tad biased but it is excellent @Chantel21284355 @RachelEphgrave work so hard for this group, despite being incredibly unwell themselves. This group makes *such* a difference keeping us from being alone #mecfs #pwme x.com/garyburgessci/…
NEW POST: Here’s Gary’s latest blog about managing #MEcfs symptoms while travelling... zonked.club/2018/07/06/sun…
Meeting others with #MEcfs can provide companionship, support, and an understanding like no other. It's something I look at in the latest episode of my podcast #TheMEShow. Listen for free here: meassociation.org.uk/podcast
Episode 9 of #TheMEShow with @GaryBurgessCI is out today! He speaks to Chantelle who set up an #MECFS friendship group in her community. Find out what difference it made and her tips if you want to set up your own. Listen for free here: meassociation.org.uk/podcast @MEAssociation
The ME Show has attracted over 10,000 listeners in the short time it has been on air. In this week's episode, Gary speaks to award-winning, and full-time, carer, Greg Crowhurst. Don't miss it! meassociation.org.uk/podcast/ @MEAssociation @GaryBurgessCI @thestonebird #MECFS #TheMEShow
Are you a carer of somebody with #MEcfs? Greg Crowhurst is, and he shares his own deeply personal and moving story with me in the latest episode of #TheMEShow. Listen now, here: meassociation.org.uk/podcast
"There are times I feel lonely. I feel isolated." Greg Crowhurst talks honestly about caring for his wife Linda, who has severe ME, in the latest episode of my podcast #TheMEShow. Listen for free here: meassociation.org.uk/podcast
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwMECarole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.L'eptit Colin 🇬�.. @LeRoiHaptalon
3K Followers 2K Following Indigenous Guernsey man. Radio Ham, MU0FAL .Digi Photography. Part owner of a Northern isle since 1066 NOT In UK Happily With OH #chog Duc s SubjectME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poetRivka @Rivkatweets
4K Followers 2K Following Activist/Organizer: ChronicIllness, disability, ME/CFS, Lyme, LongCovid, women | Writer: WashPost, MarieClaire, NPR, Ms, Newsweek | Playwright: Many productionsJoy In The Seasons @JoyInTheSeasons
5K Followers 4K Following Mindfully capturing & sharing little seasonal joys in nature. Currently #JoyInSpring 🌸🌼 Mindfulness & Meditation Practitioner #pwME #SpoonieBilly Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyJohn Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.petersChris Edmond @chrismedmond
2K Followers 4K Following Father, Husband, and island Doctor. ♥️ Cardiology & Occupational Medicine. FRSA. Loves #ABCD. Founder @WorkHealthJsy. Director @JerseySport and @JerseyRecoveryITV Channel News @ITVChannelTV
38K Followers 2K Following ITV News for Jersey, Guernsey and around the Channel Islands | Catch the latest updates on weekdays during @GMB 6am-9am and at 1:55pm, 6pm & 10:30pm on ITV1.Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfsNick Le Huray 🇬�.. @Nickleh
4K Followers 5K Following 🇬🇬 Warro! IC member #158. Blog about Occupation of the Channel Islands https://t.co/MeX6xGEw69. @fortress_island. Find me on https://t.co/62ARrmzqavRichard Evans @Richard_D_E
1K Followers 1K Following Dad, husband, former yachtsman, former motor boater, chef, not necessarily in that order. St Peter Port Lifeboat. Views expressed are mine alone.ein Mensch @Euzebia
509 Followers 699 Following kleiner Mensch, um genau zu sein #MECFS durch Gürtelrose NOV 2020 #MECFS ist ein A....loch #pwMEArthur @unreal_arthur
9 Followers 165 FollowingLong Covid Sufferer M.. @LCsuffererMECFS
2K Followers 2K Following Diagnosed with #MECFS and #POTS. Looking for a treatment. #Dysautonomia #Millionsmissing #LongHauler #LongCovid #Apheresis #SteroidPulse #IVIG #BC007 #RituximabJersey Cheshire Home @JCH_JE
145 Followers 762 Following Jersey Cheshire Home is the only residential facility on the island caring solely for adults with disabilities.Andrew Bennett @AndrewJBen1988
99 Followers 504 Following Environmental Inspector - Anglian Water, Disney, Photography, Fast Jets & Motorcycles... Warning I am anti Conservative party & all views are my own!!Justice is like air @JusticeIsAir
199 Followers 2K Following Justice is like air; without it we cannot survive; We’re suffocating from lack of Justice! #DisabilityJustice #pots #ptsd #depression #migraines #mecfs etcJason Boyce @FatigueGone
82 Followers 490 Following Pioneer of therapies to beat chronic fatigue caused by Long COVID, EBV, Lyme and fibromyalgia. Book now available on Amazon - Chronic Fatigue Gone! GET WELL NOWBridget O'Shea @Bridget_OShea
2K Followers 2K Following Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing.Movie About M.E. @Movie_About_ME
478 Followers 2K Following A documentary that seeks to shine a light on and tell the stories of those suffering with myalgic encephalomyelitis and Long COVID.Naomi @girlcallednaomi
420 Followers 611 Following 29 ~ Muddling my way through life with severe M.E., EDS and other illnesses ~ Blogger and YouTuber ~ Views my ownsian jackson 🕯 #Be.. @sianjackson1
167 Followers 583 Following I love Jersey ( in channel island) I have alot of disability’s & love both my home town & jersey ,enjoying my project on jersey . dont like having aphasia.Alisha Whittam @alishawhittam
605 Followers 653 Following Professional Nap Taker & Netflix aficionado. Conquering ME, Endometriosis and De Quervains syndrome with a dash of humour & sprig of sarcasm.nraffz @nraffz
166 Followers 3K FollowingJo Charters @jo_charters
11 Followers 249 Following Mum of a fantastic, autistic little boy who makes me smile every day; #spoonie living with ME/CFS; lover of nature and a northerner!John Everington @johnevs
883 Followers 1K Following Middle East and Africa Editor @TheBanker. Formerly @Telegraph and @TheNationalUAE among others. All views my own etcAvril McLean @lean1_mc
168 Followers 194 Following Scotland Support and Development at Action for M.E. The views expressed are my own and do not reflect the views of Action for M.EPhoenix Rising @aboutmecfs
7K Followers 4K Following A community for people with Myalgic Encephalomyelitis & related conditions. Fibromyalgia, Long Covid, Dysautonomia, EDS & MCAS all welcome!NewFrame @NewFrameThePain
978 Followers 3K Following NewFrame is a digital health platform that supports physical therapist's care for patients with chronic pain 🔬 🧘♀️💤🥑🏃♀️🩺ME / CFS C.I @me_cfs_ci
219 Followers 2K Following ME / CFS Channel Islands (Jersey, Guernsey, Alderney, Sark + Herm)🌊 Deb Stauffer �.. @DebStauffer
3K Followers 4K Following Jewelry Designer #LoveIsLove 🌈 #BLM #LetsMakeLyingWrongAgainSusan - M.E/Fibromyal.. @mefibromyalgia1
2K Followers 5K Following ME/FM patient since 2006, I hope some info helpful to those unaware of them you can also gain an insight. Advocate & sufferer invisible illnesses/chronic painRose @sleepitea
360 Followers 831 Following 20-something 🏴 living with hEDS, ME/CFS etc 🏩 neurodivergent 🍭 lover of animals and nature 🐙🌵The Chronic Meet @TheChronicMeet
1K Followers 3K Following Founded by @mindmagicnatter The Chronic Meet is running online socials, particularly for those affected by chronic illness and mental health problemsCarbonara - #ME/CFS #.. @BettinafightsME
2K Followers 3K Following 18ys+slowly dying from #verysevereMECFS #pots #MCAS #heds #migraine #ClimateChange #ClimateCrisis #StopAnimalcruelty #EndSpeciism #GoVegan #FuckRacism #FuckAfDEulette @rein_ester
53 Followers 215 Following Junge Mutter, Verlobt, ME/CFS Erkrankung in der Familie, League of Legends playerRach @ME_Rach
2K Followers 1K Following Bedbound 13yrs in a dark room. Brace yourself for my thoughts, symptoms, treatments & rants!!! 😉MEcfs together @MEcfsTogether
869 Followers 1K Following I retweet and initiate small community projects and bundle our voices to raise awareness 🇬🇧🇩🇪 / send valuable tweets via DM / #MEcfs #pwME #millionsmissingSusan Ward @Chrisansue1234
798 Followers 4K Following Happy home body, cuddles with my pets are perfect Hi! Take a look at this List I created on Amazon. https://t.co/YtOqM6GFewMummying and M.E. @mummyingandme
1K Followers 2K Following 💕Chronic illness, lifestyle & parenting blog 💕 #MECFS #POTS #Hypermobile | FB: /mummyingandme | Insta: @mummyingme𝔾𝕖𝕞𝕞𝕒 .. @AuthorGemma
480 Followers 730 Following Children's author | Primary teacher | Mummy to two | Wife to T - #MECFS #myalgice | New book out now - #SUPERCHARGEDSUPERHERO ! 🦸♂Rach King @RachieWease
91 Followers 151 Following I tried being normal once. It scared me and I vowed to never to do something so insane again. You normal people are WEIRD! Weird I tell you!!Patricia Wood @blackberdy
123 Followers 1K FollowingSalus Fatigue Foundat.. @Salus101
508 Followers 2K Following Salus Fatigue Foundation is a not for profit organisation that provides support, education and help to inspire people living with fatigue related conditions.Stephen🇺🇦🌊�.. @StephenBright
59K Followers 65K Following CatDad GayNOH8 HeHim FamilyCaregiver BoomerangGenX RevZeal DisabledSpoonie CPTSD CPS CFS Fibro ResistFBR TeamPeteKHive4Joe StillWithHer Venmo: IAguymssmythwithay @mssmythwithay
545 Followers 978 FollowingNorthamptonshire Chro.. @Northam19886985
646 Followers 2K Following We are there to support and empower those suffering from the effects of chronic pain (carers/family too) We offer online, telephone and face to face to support!Niki 🏳️🌈 �.. @Stawb3rryEyes
110 Followers 443 Following Tea drinking, gluten avoiding, photo snapping, fiction writing, film watching, M.E. fighting, fun loving, geek- with a little bit of sugar and spice.Olivia J @josephineleruez
96 Followers 2K FollowingEmiliano Muñoz @milo776
7 Followers 328 FollowingJackie Naiditch @frenchten
6 Followers 99 FollowingSarah Pryer @slpryer
107 Followers 393 Following Deputy Director of Fundraising and Marketing, Bristol and Weston Hospitals Charity, volunteer for @TherapyDogsUK.1000yd Stare @OohBluddyEll
1K Followers 4K Following Nosce te ipsum. T2 Diabetes/MECFS/PTSD/Depression/Anxiety/Confidence destroyed. One day at a time. Ex-RAF Officer.Phil King @LittleToRelate
225 Followers 693 Following 'I'll tell thee everything I can, there's little to relate...' He/himJanet Eastham @JanetEastham
5K Followers 5K Following Investigations Reporter @Telegraph. @BAFTA nominated & @RTS_media @editorsuk @pressawardsuk award-winning journalist. Highly commended @IRE_NICAR.Emily Cricket @Emily_Cricket
298 Followers 488 Following Sports fan. ME/CFS & POTS Video maker 28yo spoonie https://t.co/6FYTmClU3qJen D Morgan @JenDrakeMorgan
940 Followers 2K Following Teacher, Cambridge grad, parent, devotee of kidlit, #pwME. Mainly living in the happy world of medieval research. She/herPeter Baxter @thevulcaneer
38 Followers 475 FollowingAnil van der Zee © @AnilvanderZee
9K Followers 825 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissingTom Kindlon @TomKindlon
14K Followers 579 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrsIt'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.Paula Knight @Paula_JKnight
6K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/herKaty B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwMEME/CFS News @MECFSNews
15K Followers 713 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.Dr Keith Geraghty @keithgeraghty
9K Followers 500 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcrL'eptit Colin 🇬�.. @LeRoiHaptalon
3K Followers 2K Following Indigenous Guernsey man. Radio Ham, MU0FAL .Digi Photography. Part owner of a Northern isle since 1066 NOT In UK Happily With OH #chog Duc s SubjectME Association @MEAssociation
20K Followers 2K Following We raise funds for medical research into ME/CFS and provide support, information & campaign for people in the UK. RTs do not necessarily mean endorsement.Michael VanElzakker @MBVanElzakker
10K Followers 290 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poetJoy In The Seasons @JoyInTheSeasons
5K Followers 4K Following Mindfully capturing & sharing little seasonal joys in nature. Currently #JoyInSpring 🌸🌼 Mindfulness & Meditation Practitioner #pwME #SpoonieJohn Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.petersJulie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled PacerBen H @benh_mecfs
6K Followers 3K Following ME/CFS patient advocate, @OpenMedF science correspondent. Bedbound. Former: biochemist in training, Powerlifter, PT, Gym Manager. Jazz grad/Musician. F1/Boxing.Cort Johnson @CortJohnson
10K Followers 1K Following Founder of Health Rising /Phoenix Rising - Chronic Fatigue Syndrome (ME/CFS)/Fibromyalgia/Long COVID journalist/blogger - ME/CFS/FM patient for 40 plus yearsdavidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.Meg @megannrr
132 Followers 1K Following 28 🥳 Everyday may not be good but there's something good in every day. 💗🦓💙Dee Ruddock @deeruddock
2K Followers 5K Following welcome to my echo chamber 💫 🐈⬛ 🐈⬛🌱 🎹 📖 🧘♀️🧠 🎶 📚 🍕 ☕️💞🎻 🐾 RTs are often offered without comment; ❤️s are sometimes bookmarks, not endorsements.#MillionsMissing Swed.. @MMissingSweden
808 Followers 907 Following #MillionsMissing is a global campaign for ME health equality! #MECFS #pwME https://t.co/BPrULX2K3x #MillionsMissingSwedenJulie Gitsham 🇺�.. @jaygitsham
103 Followers 236 Following Clown fearing, cloud loving, gluten/dairy intolerance, rugby loving, social anxiety, #MECFS - good times 🤪🤔Alison T Smith @Alison_T_Smith
368 Followers 416 FollowingJess @JKat_miaow
121 Followers 115 FollowingDr. David Jernigan @DavidJernigan
8K Followers 85 Following 28-years specializing in treatment-resistant illnesses, Innovator BES testing, phage wrangler. Developed new ways to heal the Vax-injured. Veteran. NaturalMedGillian Jones Designs @GillAJones
2K Followers 5K Following Military artist. Ex-Royal Navy. PhD in engineering. Interested in the use of creative methods in academic research. Gillian Jones Designs. ♿️LesleyCMC @Rosienufc
402 Followers 1K Following Dad 💜5.11.20💔 Library assistant. Love films,tv,theatre,reading,& all things Robin Hood. #library #dementiaawareness #genealogy Tweet for @NCLlibraryMike Bettison @mikebettison
2K Followers 106 Following Lover of fresh air. Campervanner. Supporter of LUFC since 1969. Former BBC journalist (ret.)SparkleMinx 👠 👄.. @LadyMinxNI
2K Followers 928 Following ....📚 The truth will set you free !!! Let the fire inside of you burn brighter than the fire around you A work in progress. Flowing cat speak .... !!!! 👄🎹Simas @chickenoregg22
303 Followers 697 Following Interested in chronic illnesses, MCAS(mast cell activation syndrome), ME/CFS, dysautonomia.Bionic Man @fourstriper
270 Followers 3K Following Sufferer of iatrogenic Severe Myalgic Encephalomyelitis.Lover of Aviation/Aerospace.Civilian Pilot.Was chosen to be a 🇨🇦NASA Shuttle Astronaut! In bed 25 yrs!Keraig @Craig22758624
20 Followers 255 FollowingDr Hng + Friends @DoctorwithME
2K Followers 1K Following Author of "Doctor with M.E." Founder of Doctors with M.E. (DwME), international professional association. Views our own (me + friends) not DwME.Disability Alliance @GDA_Disability
2K Followers 3K Following The GDA is a membership organisation, a collective voice for persons with disabilities, carers and 40+member charities. #Rights #Legislation #Inclusion #AccessKatherine Early @kateinbed
41 Followers 108 Following Severe ME / CFS. Mother of three. Unable to participate in their lives. Twitter my lifeline to whats going on in the outside world of #pwme When able to read.Ali Pardoe @ali_pardoe
1K Followers 1K Following Raising the sedentary lifestyle to an art form. I write, as and when my M.E allows it. BookwormJulie Ryan @drunkitty2000
10K Followers 8K Following Blogging at https://t.co/NxnA8YoE1K about life with #chronicillness #fibromyalgia #tmj #endometriosis #migraine and #clusterheadaches - I choose #HappinessAllan Alach @allanalach
1K Followers 1K Following Retired school principal. Career cut short by ME aka chronic fatigue syndrome. Interested observer of education, politics & life in general.DeMbCR @DeMbCRy
619 Followers 5K Following Following those I agree with and those I don’t, otherwise how will I know?BendyHEDS&Co 🐴🦓.. @luvenice_h
4K Followers 5K Following Helping awareness of #EDS & Hypermobility Spectrum #HSD = #POTS #MCAS #MECFS #CSFleak #SIH/IIH #Stenosis #CCI #TMJ #ON/TN #GP #CRPS #SFN & more ⬇GPtoolkit⬇Rachel @tylermeister
256 Followers 709 Following Partner, Daughter, Friend, Godmother, ('resting') HR Advisor. ME/CFS warrior. A bit quirky!♥ Sarah ♥ @SaZzzby
799 Followers 3K Following Mum of two, disabled by a chronic illness and ignorance, just trying to make the most of life! Passionate about equality issues, inclusion, access.Stickman Communicatio.. @stickmancrips
7K Followers 6K Following Stickman Communications Ltd: Creating understanding of disability related needs and issues. Run by Hannah Ensor. Now also on spoutible.Kathryn H. Cusimano @kathryncusimano
290 Followers 867 Following Reader, writer, editor, American expat. Work in progress. All views my own.Victoria @moonsoulnature
43 Followers 199 Following Bookworm, music lover, married to @dolorous_drew, geek, cross stitch enthusiast and gamerAni 🎄⛄️❄️ @AniRobb
204 Followers 364 Following Just an ordinary person, nobody special, sound of mind (mostly) free will (not included in the pack from Chuck) "Be Kind To One Another & Animals!" 💖A Londoner's London @LondonersLondon
4K Followers 5K Following Paul Atherton (FRSA) - I'm still #Homeless, now 14 years, but remain campaigning to get all those experiencing homelessness homed permanently in the UK.Claire Chipping @ClaireEChipping
45 Followers 640 FollowingAbiE @handfhome.bsky... @handfhome
543 Followers 190 FollowingLloydsBankFdnCI @lloydsbfci
771 Followers 2K Following Our mission is to support charitable organisations which help people, especially those who are disadvantaged, to play a fuller role in communities throughout CIrosy prue @rosyprue
804 Followers 2K Following Freelance artist-educator & facilitator. Creative. Curly. Curious. Chronically Ill. #pwme #elci Instagram: rosy_prueDave Underwood @daveunderwood
732 Followers 845 Following I blog about mortality awareness. Humanist. Anti-corruption. I have #MECFS. he/himMandy Moo @mcdeescoop
8 Followers 171 Following Bookworm, Knitter, Mum, Wife, ME/Fibro Spoonie, lover of Nature, Animals, Kindness + Silliness.daveo, standard issue @uncleweed
4K Followers 3K Following there's something i meant to tell you // scribbling cards with inky stamps, folding laundry – its a revolution (see other channels for pods, art & hockey)Pia Zelda @pia_zelda
3K Followers 3K Following Former Addiction/Mental Health counselor Social worker psychiatric speciality Geek Star Wars maniac She/her Queer #pwME #CPTSD #ED insta: piazeldaSarah Cumming @sarahssweetcs
378 Followers 614 Following Daughter, Sister, Aunt. Book reviewer, M.E sufferer & Androgenic alopecia. Trustee of CareLinkJennySRP🇬🇧🇺�.. @JennySRP
1K Followers 2K Following UK/USA expat, animator, video editor, storyteller, PwME, multipotentialite, seeker UCLA MFA '10 she/herSonja Kohl @eskabadu
2K Followers 1K Following 🇩🇪 One of #millionsmissing | Team #GOfundMECFS & #SIGNforMECFS | Suffering from #MECFS after a viral infection in 2012 | https://t.co/FSdIVPb7iIGillian Rayne @TheMoneyLounge
1K Followers 2K Following #no2stress #ForgeYourOwnPath #TimeChoices | Lifestyle Guru | Supporting You to Make Positive Change | Educational | MentoringSean G @InflammaSean
680 Followers 1K Following #MECFS, #PASC, chronic illness & science. For better or worse, will at times post none of that, but instead silly stuff or nature photos or whatever-whateversAnna Mason @annaa_mason
735 Followers 685 Following Producing Dotun Adebayo’s programme on @bbc5live 🎥 📻Janet Brockbank @JanetBrockbank
162 Followers 1K Following 48 year old Endoscopy staff nurse love chardonnay, my 2 grumpy cats, my friends and family, my Mini and my lovely boyfriend, proud Northerner and have RRMS 🤔🤔Lottie 🐩🐩🐩 @fuzzy_poodle
184 Followers 189 Following 'You're only given a little spark of madness. You musn't lose it'Prof Jo Ingold @joingold
2K Followers 3K Following HRM, Public Policy, employment services, workplace inclusion @DistantWelfare @digitcentre Yorkshirewoman in Melbourne. Views my own.It can't rain all the.. @CaunceSally
85 Followers 396 Following The soundtrack to this twitter feed is Separate Ways by Journey on repeatThe ME Show has attracted over 10,000 listeners in the short time it has been on air. In this week's episode, Gary speaks to award-winning, and full-time, carer, Greg Crowhurst. Don't miss it! meassociation.org.uk/podcast/ @MEAssociation @GaryBurgessCI @thestonebird #MECFS #TheMEShow
Episode 4 of #TheMEShow is out now! 😀 @GaryBurgessCI speaks to @JaneCColby from @tymestrust a charity which supports children with M.E. Listen here: meassociation.org.uk/podcast @MEAssociation #MECFS #MEChildren #MEYoungPeople
@MEawarenesshour Another informative episode - worth listening to all if you havent already. #ME #pwME x.com/zonkedclub/sta…
Episode three of #TheMEShow is out now. This time, @GaryBurgessCI speaks to @CMonaghanSNP, the MP who led a debate in Westminster about the Pace trial. Gary also reviews some of the #MillionsMissing coverage. Hear the podcast now at meassociation.org.uk/podcast
Episode two of #TheMEShow is now live. @GaryBurgessCI speaks to the ME Association's medical advisor Dr Charles Shepherd about his own ME experience and the latest medical research. Listen now at meassociation.org.uk/podcast #MECFS #MEAwarenessWeek #MillionsMissing #BBCNewsbeat
@zonkedclub huffingtonpost.com/david-michael-… it's long, it's WONDERFUL, IT's entirely relevant even though posted in 206!
Check out #TheMEShow hosted by @GaryBurgessCI where he speaks to Jennifer Brea and Robert Saunders about #mecfs #MillionsMissing and more! meassociation.org.uk/podcast/
@JennySRP @TwitterUK @TwitterMktgUK @Tripadvisoruk @localguides @LovePopUpsLon @MEActNet @MEAssociation @LBRUTMayor @LBRUT @actionforme @zonkedclub If health permits - will definitely be there @JennySRP. Are you going? L&s P
Yesterday's only #UniquelyLondon moment, sadly couldn't do anything else due to my #MECFS (car bound all day except for an hour to get food at) #TheCrown #Pub in #Richmond (Again no @TwitterUK dear @TwitterMktgUK) #50YearsOfTrying #Homeless #LetsGuide #MillionsMissing
Well worth a listen, really good show. x.com/zonkedclub/sta…
We’re so pleased this idea is now a reality. Give #TheMEShow a listen and please subscribe, rate and review in iTunes to automatically receive future episodes. x.com/meassociation/…
Today's the day. #TheMEShow is now live! Listen to our new podcast presented by @GaryBurgessCI, featuring an interview with @jenbrea by subscribing in iTunes here: itunes.apple.com/gb/podcast/the… #MECFS #MEAwarenessWeek #MEAdvocacy #Unrest
Welcome to ME Awareness Week! #TheMEShow is now live! Listen to our new podcast series presented by @GaryBurgessCI, featuring interviews with @jenbrea and @RobertHMcMullen here: meassociation.org.uk/podcast #MECFS #MEAwarenessWeek #GoBLUE4ME #Unrest #Podcast #TheMEShow
Exciting news! The ME Association has teamed-up with Gary Burgess to produce a series of podcasts we have called ‘The ME Show’. meassociation.org.uk/2018/04/the-me… @MEAssociation #MECFS #TheMEShow #MEAwarenessWeek #MEAdvocacy #iTunes #Podcast
@zonkedclub @MEAssociation Great, congratulations @GaryBurgessITV! Would love to hear @davidtuller1 on the podcast.
A few weeks ago @GaryBurgessITV told us his wedding day would be the 'ultimate test' of coping with #MEcfs. He's now married and the big day went brilliantly! Read Gary's original article 'Why do we know so little about ME?'👇 bbc.in/2JzCl5E
Thanks to @JEPnews for devoting two full pages to a feature on @zonkedclub in the 'A Touch of Heath' supplement in today's paper.
@GaryBurgessITV @MEAssociation @MEActNetUK @jenbrea @zonkedclub Thanks very much for highlighting this, Gary! ICYMI, also reported in today's @thetimes thetimes.co.uk/article/findin…
@zonkedclub One of the best bits of advice ever given to my by a Dr (actually by a leading Prof) was “Stuff them” - in relation to people who either didn’t want to understand or kept giving you lots of ‘helpful’ information…!
@LondonersLondon @jenbrea @unrestfilm @MEActNet @MEActNetUK @actionforme @zonkedclub @SonyaChowdhury @MEAssociation Sending all good wishes for a happy 50th... on international day of happiness and the first day of spring! ☀️