Kindred Long COVID Support @kindred_health
Kindred is an interactive Long COVID community offering support and research opportunities. We do care. We do listen. We are here for you. Kindred.Hugo.Health Joined April 2022-
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Kindred Cafe Dr. Erica Spatz, MD youtu.be/50pd8UoIOCM?si… via @YouTube Thank you to all who attended and to our hosts. @SpatzErica #LongCovid
Coming tomorrow 10/26 5pm ET! The next Hugo Health Kindred Cafe featuring Yale cardiologist @SpatzErica to share latest info and Q & A #longcovidawareness Registration required kindred.hugo.health/events
Please join the next @kindred_health Cafe tomorrow, Thursday 9/28 @ 5 ET hosted by members of the Kindred Advisory Task Force for peer to peer discussions around topics relevant to #LongCovid and #CovidVaccineInjuries Reg required: kindred.hugo.health/events
@hmkyale @VirusesImmunity @kindred_health @bornali_27 @YaleCII Imagine world with trusted, equitable, sustained partnerships in multiple countries for clinical/public health trial collaborations, permanently used not just for discrete projects, bringing utility & value all the time, enhancing clinical care, facilitating innovation & careers
@JeremyFarrar @VirusesImmunity @kindred_health @bornali_27 @YaleCII That is same vision I have... and imagine these trials are easily accessible, convenient, respectful, & efficient - that the platforms are reusable - and the trials produce the knowledge we need for progress. This can be achieved by being digital, decentralized, and democratized.
The #PaxLC trial (15d Paxlovid for #longCOVID) continues to break ground on showing how to do digital, decentralized & democratized trial in partnership w/participants. Now covering almost entire US. It's convenient, no need to travel to study sites. medicine.yale.edu/cii/research/p…
Another update - our #PaxLC trial is now open to even more states! If you are suffering from #LongCOVID and live in these states, please join our Paxlovid RCT by signing up here. Our trial requires no travel on your part. @kindred_health medicine.yale.edu/cii/research/p…
Forever grateful to those who choose to share their #longcovid and #postvaccinesyndrome stories on @kindred_health. Read here: content.hugo.health Connect with others at our next Fireside Chat, hosted by our amazing Task Force is 9/28 5 ET. Register kindred.hugo.health/events
Glad to know this follow up to our July @kindred_health cafe was useful. Thank you to @LindsayMcA for spending time answering so many unanswered questions during the event.
Glad to know this follow up to our July @kindred_health cafe was useful. Thank you to @LindsayMcA for spending time answering so many unanswered questions during the event.
"I've never doubted it — people are suffering," says @hmkyale, a cardiologist at @Yale involved in #LongCovid research. "But we're now seeing imaging evidence, biopsy evidence, physiologic testing evidence of derangements in people who have long COVID." npr.org/sections/healt…
Honored to be partnering with the @BIPOC_Equity agency and @CynthiaAdinig @limitlessliza and Yashira Henriquez to offer the latest KTalk on disrupting research barriers. Join us. Register here: bipocequityagency.com/ktalk
Honored to be partnering with the @BIPOC_Equity agency and @CynthiaAdinig @limitlessliza and Yashira Henriquez to offer the latest KTalk on disrupting research barriers. Join us. Register here: bipocequityagency.com/ktalk
@Opinions_Survey @VirusesImmunity @kindred_health @PutrinoLab @WesElyMD @bornali_27 We haven't seen any data from the Stanford study. It was not stopped because of safety. Their design differs from ours... and the verdict on Paxlovid for #LongCovid is not yet out. There is much to learn.
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
WesElyMD @WesElyMD
63K Followers 361 Following Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, PICS, Dementia, Delirium. Tweets my own. Still learning.
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Harriet Carroll: Long.. @angryhacademic
8K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Monica Verduzco-Gutie.. @MVGutierrezMD
26K Followers 8K Following Professor & Chair of Rehabilitation Medicine @uthsa_rehabmed @UTHealthSA | #Physiatry #LongCOVID | mom, runner, #LatinasInMedicine | my ideas
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Amy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at PolyBio Research Foundation: helping research teams collaborate on infection-associated chronic disease #me #longcovid #lyme #eds @polybioRF
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Turnto Long Covid @turntolongcovid
0 Followers 10 Following
Long Covid Educators .. @LCEducatorsUK
79 Followers 187 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.
H H @bbctbm
3 Followers 109 Following
Rete Long Covid Press @ReteLongCovid
150 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Katie @missktsmith24
219 Followers 370 Following First wave Long Covid-er (March 2020) #FBLC. POTS, MCAS, hEDS, ME/CFS
JesusIsComing @JesusIs91940818
91 Followers 386 Following Mat 24:7 For nation shall rise against nation, and kingdom against kingdom: and there shall be famines, and pestilences, and earthquakes, in divers places.
PAWAN KUMAR @PAWANKUMAR28710
124 Followers 1K Following
Larissa Slomba @SlombaLarissa
3 Followers 9 Following
Emely Mcbride @EmelyMcbri23840
79 Followers 3K Following
Staffan @kalvfond
180 Followers 1K Following
Katie Oleksy McKenzie @kit_kat517
47 Followers 237 Following
Esther Rodriguez @Draroro
487 Followers 2K Following Enamorada de la vida misma&los misterios que conlleva, el 7o arte,la serie LOST, el teatro &Tim Burton&David Lynch&medicina gracias Hygeia!!!
Charlie Hunnam @hunnam_charlie1
26 Followers 884 Following
Paragon Supplements @PgSupplements
48 Followers 12 Following Purveyor of the best Base Spike Protein detoxification product for Covid-19 vaccine injury and Covid-19 illness.
Millicent_US_ @MillicentU22825
0 Followers 118 Following
Bonnie Rone @RoneBonnie
2 Followers 52 Following
LongCovidPsych @LongCovidPsych
62 Followers 243 Following A psychologist sharing tips for supporting #mentalhealth in people with #longcovid and #mecfs from research, consumer perspectives and personal experience.
Tiffani Lewis @tiffanitime
78 Followers 148 Following Renaissance woman, native Texan, mama, optimist & encourager, IT enthusiast... #itwithtiffani
Frau𝕏ausNRW @FrauXausNRW
2K Followers 2K Following MomOf2 mit #LongCovid #MECFS #POTS #SFN - Werde 2024 (vielleicht) gesund ! #UniteToFight2024
Idoia Mujika Altuna @MujikaAltuna
210 Followers 3K Following
יוסי פרס @Yosiperes
183 Followers 2K Following
BYoung @BGRITful
7 Followers 161 Following
lily pond @lilypond513720
11 Followers 244 Following
CleanTheAir @CleanTheAir2024
312 Followers 5K Following
Yolanda Emaldi @EmaldiYolanda
2 Followers 6 Following
🍀LC EUSKAL HERRIA�.. @covideuskal
2K Followers 1K Following Long CoVID Euskal herria Elkartea,EuskaLCe #SarsCov2persistente 🆘#LongCoVID #NoSurrender #JoTaKe https://t.co/bRyc9ITTKA
Anna Louise Magee (�.. @AnnaLouiseMagee
1K Followers 1K Following My spleen is an open-air theatre. 💄 + 🐷 = 🐷
𝔭𝔥𝔦𝔩𝔩�.. @phillyangel13
249 Followers 5K Following Philly Born & Raised GenX Mama. Spread kindness✧support✧awareness✧ stories ✧art✧ legacies✧ #AdopteeVoices #TWDfamily *+:｡.｡†｡.｡:+*🤍*+:｡.｡†｡.｡:+*🤍*+:｡.｡†｡.｡:+*
Chanty @Chanty37748606
226 Followers 1K Following
James Ballantyne @jamesmotus
2 Followers 3K Following
🫥ModernFeudalism�.. @Tommmmorow
453 Followers 3K Following looooong Covid —-N95 4 Life —— Bask in the Mask —-It can happen to you! —You don’t want it —
♈️AriesOnFire🔥 @BrwnEyedBlondie
305 Followers 2K Following Three things cannot be hidden for long:the Sun,the Moon and the truth.Pissed @ the bioweapon unleashed upon us all 💉= ☠️ #LongCovid #Unvaxxed #healthcareworker
Meg Samuelson @coastalthinking
331 Followers 904 Following i used to read think write teach (literatures of the South/Africa/Indian Ocean & environment littorals oceans women’s stories). #LongCovid #MECFS
MaidenMotherCrone @Femmemystic
997 Followers 5K Following Trying to survive the end times 😷 and have some laughs.
Distraction Jackson @LadyDontTekNo1
278 Followers 2K Following She/Her | Underdog Sabre Protector | UPL/Comrie Defense Squad | Reborn Music Slut | Fragrance Junkie | Tea Connoisseur | Flo Mask Gang | COVID is Airborne
carlos perez @Carlosfreedom10
66 Followers 2K Following
Louise Lone @lone_louise
54 Followers 273 Following I’m a woman. Science rock! I'll go with evidence-based reason and debate, not feelings and imagination. Sex is real.
N @Manxie8900
2K Followers 1K Following vaccine injured 1st dose Az batch no Pv46688 severe systemic allergic anaphylaxis,multi system injury worked in Dental, changed my life completely never again
CLCH West Herts Long .. @CLCHLongCOVID
39 Followers 149 Following Welcome to the West Hertfordshire Long Covid rehabilitation service's page. Our aim is to support people and raise awareness of the condition. #LongCovid
Bob Joyner @BobJoyner249882
850 Followers 2K Following Genuine, kind and compassionate. Retired lawyer and an excellent fingerstyle guitarist.
Fish Out Of Water | L.. @fowusorg
20 Followers 115 Following Non-Profit 501c3 supporting effective treatment for C-Injured & LongHaulers | Bringing hope and healing to those with Long COVID. Msg @ Telegram @fowus_org
MercyIsToday @ZhengPeace
44 Followers 503 Following Romans 6:18 says “You have been set free from sin and have become slaves to righteousness.” Don't be a slave to sin, be free and sinless.
Josh Fox ✡️ 🤌�.. @joshfoxfilm
56K Followers 4K Following Oscar-nominee. Emmy winner. director of GASLAND, THE TRUTH HAS CHANGED, HOW TO LET GO OF THE WORLD,AWAKE. also @joshfoxfilm on Instagram . #banfracking!
Junior @nolimitjuni0r
2K Followers 823 Following 22 year old long hauler fighting for his life back. Former CC/T&F athlete. @miamiheat fan. #longcovid #notrecovered.
Long Covid Breathing @LCBreathing
57 Followers 220 Following Breathing coaches with lived experience of #LongCovid. Join our courses to learn the best breathing exercises & how to do them.
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
WesElyMD @WesElyMD
63K Followers 361 Following Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, PICS, Dementia, Delirium. Tweets my own. Still learning.
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Gez Medinger @gezmedinger
20K Followers 719 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Long Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Patient-Led Research .. @patientled
27K Followers 615 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Amy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at PolyBio Research Foundation: helping research teams collaborate on infection-associated chronic disease #me #longcovid #lyme #eds @polybioRF
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Michael Stingl @neurostingl
16K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
H H @bbctbm
3 Followers 109 Following
LongCovidPodcast @longcovidpod
5K Followers 4K Following Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
The Long Covid Sessio.. @SessionsTlc
7K Followers 1K Following Longest running Podcast on #LongCovid. In depth interviews with the world’s leading doctors and scientists trying to work on the pandemic’s long tail.
Practice Courage @SilviPastured
2K Followers 3K Following Climate-resilient food security, neurodivergent. #NoPrideInGenocide #LandBack #KeepItInTheGround #ClimateStrike #Divest #FoodNotLawns
Pandemic Patients @PandemicPatient
2K Followers 388 Following Pandemic Patients is a 501(c)(3) non-profit organization that works to relieve the harm caused by COVID-19.
Long Covid is Real @brailemom
848 Followers 788 Following Freelance copyeditor with Long Covid. Also Mom of teen with Long Covid. She/her. Covid deniers & anti-maskers get blocked :-) brailemom in the Blue sky.
Corinne Murphy @savingmeredith
1K Followers 346 Following building a movement to save my sister. opinions are my own
Pucho Digital Health .. @PuchoDigiHealth
552 Followers 4K Following AI assisted digital health platform for #LongCovid Patients. #Healthequity #healthtech #healthjustice #potsvaccineinjuries #mecfs Founder & CEO :@invinciblejha
Covid Castaways @CovidCastaways
5K Followers 4K Following Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜“𝓢𝓾𝓻𝓿𝓲𝓿𝓮 𝓣𝓲𝓵 𝓨𝓸𝓾 𝓒𝓪𝓷 𝓣𝓱𝓻𝓲𝓿𝓮”
COVID Survivors for C.. @SurvivorsChange
2K Followers 161 Following A national movement bringing together Americans affected by #COVID19 to support survivors and demand more of our elected leaders
Julie Taylor @JulieTa58407536
853 Followers 520 Following 👩⚕️Nurse 🌱Mind-body and health advocate 🎤 “Living with long covid” podcast host; listen here: https://t.co/chAv1MO2kM
Project StopTheSpread.. @stopthespreadLC
280 Followers 995 Following Tracking Covid-19 cases globally in decentralised way #LongCovid #healthjustice #dataprivacy #Covid19 #Healthequity. Part of @PuchoDigiHealth
Global Initiative for.. @pwLCDataPrivacy
399 Followers 3K Following Global Collaborative efforts towards ensuring patient data privacy of highest standards for #pwLC #pwME. Part of @PuchoDigiHealth
Elise Racine, MSc, MP.. @Elise_Racine
488 Followers 1K Following Health/tech advocate #AI #COVID #ethics 🏳️🌈 PhD candidate @Oxford_NDPH @EthicsInAI @Ethox_Centre 🇬🇧 MPA @thehertieschool 🇩🇪 MSc @LSE_ID 🇺🇸 BA @Stanford
Becky A Robertson @AnciraBecky
4K Followers 6K Following Survivor. Proud mother. Teacher. Philanthropist. Activist. Trying to make a difference. #maskup #longcovidawareness #LCDC #March15 #ValueCognition
Hazie Thompson @haziethompson
6K Followers 2K Following Long Covid/ME 2020, Mitigation Advocate, Founder @BIRcovidhealth
Long COVID Alliance @LongCOVIDAllian
4K Followers 90 Following Research. Advocacy. Education. https://t.co/yE6W9ul1Yd
Long Covid Families @LongCovidFam
4K Followers 701 Following We are a nonprofit that supports children with long Covid and their families.
Long Covid Choir @LongCovidChoir
874 Followers 2K Following Singing has brought joy and friendship as we navigate the life-changing experience of Long Covid. Time to find our voice again. Join us via https://t.co/hwyYtuLHZE
Alma Viviana Silva @Almavivi1
397 Followers 2K Following Physiotherapist, dancer, runner, PhD candidate. Interested in critical physiotherapy, psychology, reassurance and cross-culture issues. I❤︎Art
Lisa McCorkell @LisaAMcCorkell
6K Followers 2K Following @patientled cofounder | #longcovid patient-researcher/advocate | disability justice policy nerd | MPP | she/her | natures 10 2022
Reilly Neill @Reilly2020
4K Followers 2K Following Irish-Memphian, Montana mother, rounds cook, once-publisher @MontanaPress, Montana Rep (63rd session), earthling 🌎 Dang this site is a hot garbage express now!
💛Lady w/ LongCovid.. @TheExtraFiles
4K Followers 4K Following ~ #LongCovid 2/2020 ~ International #LongCovidAwareness ~ Long Covid Zoom Chat (DM for link) ~ #FBLC ~ Hater of #COVID ~ #Mask it up~✌🏼💛😷
Association Action Co.. @ActionCovidLong
1K Followers 2K Following Les oubliés du Covid S’unir pour agir, ensemble pour la reconnaissance #CovidLong #CovidLongPediatrique #LongCovidAwareness
Dr Yane Valdez Tejeir.. @YaneValdezT
3K Followers 2K Following #Mom | #Immunologist | #EDI activist |🇵🇪🇨🇦 |#WomeninSTEM | @AntiNMDA_Inc #LongCOVID #advocate | #GlobalHealth | @ImmunoLatinXs |Tweets & typos are my own
Massachusetts ME/CFS .. @MassMECFS
2K Followers 790 Following To improve the lives of all people affected by ME/CFS and Fibromyalgia through advancing awareness, care, treatment and research.
Vasileios Margaritis,.. @v_margar
10K Followers 3K Following Senior Academic & Researcher. Public Health, Healthcare Administration, Health Data & Research Methods Sr Global Consultant & Evaluator. Opinions my own.
MGH @MichelleGHunder
13K Followers 3K Following Michelle Grace Hunder | Photographer | Supported by @Nikon_Australia | Repped by House of Cooper in US | Got Next Productions | 📷 for @oneruel
David Steadson #NAFO .. @DavidSteadson
16K Followers 3K Following Digital Health Entrepreneur. Public health epidemiologist and former Uni researcher. #plantpowered 🌱 #kyokushin 🥋 #longcovid (mostly recovered)
FrancesSteadSellers @FrancesSSellers
4K Followers 865 Following Senior Writer at the Washington Post. Retweets are not endorsements.
Mae @Mae522018
1K Followers 3K Following Mom, Speech and Language Pathologist, #covidvaxinjured #POTS, #longcovidally
Arjun @arjunvenkatesh
1K Followers 335 Following Chair and Chief of EM @yale_EM and @YNHH, Health Services Researcher • opinions my own • retweet ≠ endorsement
Raj Mehta @raj_mehta
2K Followers 4K Following Family Doc, Clinical Informaticist, EBM & Bioethics enthusiast | Faculty @AdventHealth Family Medicine Residency | @UFMEDICINE alum
Dr Sue Cunliffe (MBch.. @CunliffeSue
2K Followers 510 Following Brain injured by ECT. Using my medical training for a pro safety campaign for monitoring during ECT, valid consent and rehabilitation for those injured.
Bornali Bhattacharjee.. @bornali_27
84 Followers 79 Following Research Associate Scientist, Yale University @YALE IBIO @YaleCII
IamMeNYC 💙 @TriciaONeil17
663 Followers 2K Following Optimism & Cynicism. Being performative & having talent are not the same thing. https://t.co/uZaqYE5Qfs https://t.co/I7jCm3cY4B…
World Health Organiza.. @WHO
12.3M Followers 2K Following We are the #UnitedNations’ health agency - #HealthForAll. ▶️ Always check our latest tweets on #COVID19 for updated advice/information.
Jeff Cavanagh @JeffCavanagh1
2K Followers 67 Following Canuck. #LongCovid sufferer - which is why I can't always follow back. I retweet mostly info I want to find again later.
Abilities Research Ce.. @ARC_Mount_Sinai
2K Followers 296 Following We research rehabilitation technology so it can improve people's lives
Long Covid Research I.. @research_long
15K Followers 1K Following Research initiative aimed at basic science and clinical trials for Long Covid. https://t.co/QHcZmCJMJw
Nick Campos @DrNickCampos
140K Followers 124K Following Changing the Way the World Thinks About Health™
Lauri (#CovidIsAirbor.. @laurirose
2K Followers 4K Following “Mild” #COVID 3/18/20 led to #LongCovid #MEcfs 😔: #WearMasks #N95 even vaxxed. #ProtectTransKids 🙏 #IWillAidandAbetAbortion @EnviroDefenders @filmfestsbook
Sujata Srinivasan @SujataSrini
1K Followers 1K Following Senior Health Reporter @wnpr / Connecticut Public Radio Tips: [email protected]
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
Liz Carlson @usabilityliz
1K Followers 1K Following Sharing CFS and Long Covid recovery stories on my blog & YouTube @ Heal With Liz. Mother of lions. Mirror dancer.
"If people are complaining of symptoms we have to listen to them and take it seriously." Dr. John Campbell weighs in on the results of the @Yale @kindred_health LISTEN study: youtu.be/-UJqhG1I7tY To enroll in future research papers, learn more: medicine.yale.edu/ycci/listen-st…
Listen to my story here : Kindred Café, September 28, 2023: Fireside Chat with the Kindred COVID A... youtu.be/polh67E3Vf0?si… via @YouTube @kindred_health #listenstudy #longvovid
@VirusesImmunity @kindred_health @hmkyale @bornali_27 @YaleCII This sounds great!
@seeksboston26mi Here’s an interview on @kindred_health with one of your Super Hero’s @WesElyMD Please share with your followers. youtu.be/0u9CbWa6ntQ?si…
@VirusesImmunity @kindred_health @bornali_27 @YaleCII Our aim w/#PaxLC trial (15d of Paxlovid for #longCOVID) is to cover contiguous US (for biospecimen shipping, we can't do AL, HI, or international). This trial is digital, decentralized, and democratized. Unprecedented coverage w/Phase II investigational new drug trial. @YaleMed
@hmkyale @VirusesImmunity @kindred_health @bornali_27 @YaleCII Imagine world with trusted, equitable, sustained partnerships in multiple countries for clinical/public health trial collaborations, permanently used not just for discrete projects, bringing utility & value all the time, enhancing clinical care, facilitating innovation & careers
@JeremyFarrar @VirusesImmunity @kindred_health @bornali_27 @YaleCII That is same vision I have... and imagine these trials are easily accessible, convenient, respectful, & efficient - that the platforms are reusable - and the trials produce the knowledge we need for progress. This can be achieved by being digital, decentralized, and democratized.
ATTENTION: Long Covid peeps! #PaxLC trial is now open to even more states! If you are suffering from #LongCOVID and live in these states, please join our Paxlovid RCT by signing up here. Our trial requires no travel on your part. @kindred_health
Another update - our #PaxLC trial is now open to even more states! If you are suffering from #LongCOVID and live in these states, please join our Paxlovid RCT by signing up here. Our trial requires no travel on your part. @kindred_health medicine.yale.edu/cii/research/p…
The #PaxLC trial (15d Paxlovid for #longCOVID) continues to break ground on showing how to do digital, decentralized & democratized trial in partnership w/participants. Now covering almost entire US. It's convenient, no need to travel to study sites. medicine.yale.edu/cii/research/p…
Another update - our #PaxLC trial is now open to even more states! If you are suffering from #LongCOVID and live in these states, please join our Paxlovid RCT by signing up here. Our trial requires no travel on your part. @kindred_health medicine.yale.edu/cii/research/p…
@VirusesImmunity @YaleCII Akiko, thank you for your tireless work for the #LongCovid community and so many others. Your research will continue to help people around the world. @hmkyale @PutrinoLab @microbeminded2 @drclairetaylor @WesElyMD @kindred_health
I am so sorry, @K_Bishof. For those who don't know, Karyn is one of the most dedicated & smart #LongCovid advocates, working tirelessly the last 3 years on transmission prevention & treatment for LC incl antivirals. She is also a dear friend. Please send her positive thoughts
Being admitted. Vomiting up blood (mildly) now too. CT with contrast done and nada showing.
Just watched youtu.be/XjmLjgZGBRA from @kindred_health and @LindsayMcA answered questions about Long Covid that I have been wondering about for years, particularly about sleep quality, flare-ups and autoimmunity. Recommended.
"I've never doubted it — people are suffering," says @hmkyale, a cardiologist at @Yale involved in #LongCovid research. "But we're now seeing imaging evidence, biopsy evidence, physiologic testing evidence of derangements in people who have long COVID." npr.org/sections/healt…
Hit ▶️ to get a sneak peek of our FREE game-changing Ktalk:The BIPOC Guide to Disrupting Research Barriers on Sept 14th. Learn the barriers and how anyone can help!👉🏾Register now: bipocequityagency.com/ktalk #Ktalk #ElevateBIPOCVoices #SciComm #ResearchForChange
We are more than our stories & more than reps. Go where you are celebrated or build it! We have so much good to give to the world born from our struggles. I'm on a mission to give every person the tools to understand research and healthcare #scicomm #bipoc #stem #BlackTwitter
Hit ▶️ to get a sneak peek of our FREE game-changing Ktalk:The BIPOC Guide to Disrupting Research Barriers on Sept 14th. Learn the barriers and how anyone can help!👉🏾Register now: bipocequityagency.com/ktalk #Ktalk #ElevateBIPOCVoices #SciComm #ResearchForChange
@Opinions_Survey @VirusesImmunity @kindred_health @PutrinoLab @WesElyMD @bornali_27 We haven't seen any data from the Stanford study. It was not stopped because of safety. Their design differs from ours... and the verdict on Paxlovid for #LongCovid is not yet out. There is much to learn.
@PutrinoLab @kindred_health David, thank you for everything you are doing. Your work, along with @hmkyale and @VirusesImmunity gives hope to the #LongCovid community. Thank you for not giving up.
@PutrinoLab Thank you @PutrinoLab - so appreciate your deep thinking about the trial - and your support and friendship.
@PutrinoLab Thank you so much, @PutrinoLab. I’m grateful to be participating in this trial—I’m hoping it will help provide answers and I appreciate that @VirusesImmunity and @hmkyale designed it to be as accessible as possible. Thanks to you all for your incredible work on LC!!
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