Evan Vandegriff @evandegr
corgi dad and cto. Healthtech #AI enthusiast #LongCovid #LongVax #T1D #FBLC New York City Joined August 2009-
Tweets5K
-
Followers1K
-
Following904
-
Likes11K
Huge. Good to get some confirmation on this. Need to continue research here and find better ways to treat and restore connective tissue
Huge. Good to get some confirmation on this. Need to continue research here and find better ways to treat and restore connective tissue
Anyone out there with #hereditaryalphatryptasemia ? Any advice or treatments that helped?
BREAKING: Senator Bernie Sanders drafts proposal for Long Covid Moonshot. The proposal earmarks $10B in Long Covid research funding over the next decade.
Wouldn’t be surprised to see alcohol consumption numbers continue to decrease as people get sicker and more alcohol intolerance/mast cell issues crop up
Wouldn’t be surprised to see alcohol consumption numbers continue to decrease as people get sicker and more alcohol intolerance/mast cell issues crop up https://t.co/i3INUvuLkx
The fight against long COVID is not just a medical one. It is a moral one. Long COVID can have devastating consequences and too many people now face debilitating symptoms as a result. How many Americans need to suffer before Congress acts boldly to address this crisis?
Ten reasons I'm not worried about avian flu:
Would be interesting to run some machine learning on brain MRIs of pwLC and/or pwME who have tinnitus to see if any causative factors could be found
Does anyone know of a good repo/collection of #LongCovid papers that’s updated regularly? Even better would have API access. For #DataScience purposes #LongCovidAI
So when you see people say "only the vulnerable are dying" or "we're just clearing out the dry tinder" or "the economically inviable"...
Today is #LongCovidAwarenessDay. My promise to patients who are desperate for acknowledgment and care: we will not stop until we have accessible diagnostics and accepted treatments. #noplaceforminimizers whn.global/scientific/spe…
I’m interested in getting my hepcidin levels checked. Hepcidin is a key regulator of iron metabolism. vit D, vit C, curcumin, quercetin, and fish oil all have potential hepcidin modulation effects (from ChatGPT), probably mainly as anti inflammatories, but still a v familiar list
I’m interested in getting my hepcidin levels checked. Hepcidin is a key regulator of iron metabolism. vit D, vit C, curcumin, quercetin, and fish oil all have potential hepcidin modulation effects (from ChatGPT), probably mainly as anti inflammatories, but still a v familiar list
Are we starting to reach a critical mass of reinfection or is a particularly bad strain going around? Seeing more “sicker than I’ve ever been/went to urgent care/ER” posts than ever before on social media from my direct network.
“The UCSF team includes people who helped make HIV and AIDS a treatable disease,” said Amy Proal, president of @polybioRF, whose research foundation is pumping $3 million into the long COVID tissue program 👇 sfchronicle.com/health/article…
Electric shocks and weird stuff at the base of my skull happened to me too.
Electric shocks and weird stuff at the base of my skull happened to me too.
I agree, I think this is an important piece of the puzzle
I agree, I think this is an important piece of the puzzle
Julius @juliusrblm
1K Followers 4K Following (he/him) Berliner im Halleschen Exil. Jewish Studies & Political Science @ UniHalle. HaHoHe! 💙🤍 #BringThemHome
Debera Mallacara @mallacara28417
52 Followers 5K Following
Nikola Riscen @NikolaRisc17613
73 Followers 5K Following
we'll see @kellywashburn
320 Followers 1K Following
MyVaccident @MyVaccident
58 Followers 233 Following #LongVax #LongCovid Dx: Post Vaccination Syndrome via #Yale neurologist 2021. #Pfizer Lot #EW0169 &7 #ER8736. Disabled American ♿️ #Dysautonomia #Polyneuropathy
3byte @treybyte
3 Followers 66 Following physicist turned software engineer. welp, i guess i'm here for the long haul. #longcovid since Dec. 2021
AliceMartin @0Odb7TMeYbHqy
1 Followers 113 Following
peter orr @orrtknpp
2K Followers 2K Following degrowth, local community net zero, retrofit, biodiversity and transformation with social justice
Ayman Fanka @fanka308
79 Followers 586 Following Join us in helping Ayman and his family escape the turmoil of Gaza before the Israeli incursion on Rafah. Ayman, a devoted father, is tirelessly seeking assista
Elon Musk @ElonMusk17134
38 Followers 2K Following 🚀| Spacex • CEO & CTO 🚔| Tesla • CEO and Product architect 🚄| Hyperloop • Founder 🧩| OpenAI • Co-founder
Ramy2.0 @Ramyisback
1K Followers 702 Following I am back from the twitter grave, with memes, and other stuff about mecfs and long covid.
LongCovid-TMS MindBod.. @LongCovid_TMS
67 Followers 242 Following The 21th century epidemic. MindBody isn't a fluke, it's biology. Make the brain feel safe, see your symptoms as a little kid falling down. Heal in safety.
Peter Quintas @PeterQuintas
605 Followers 789 Following Founder @getSOMA. Former Co-Founder/CTO NOMi (now @flir), SilkRoad (now @_RivalHR). Greek-American, BJJ Enthusiast.
WhiteAngels @CardosoPedroMi1
64 Followers 729 Following
Sam Nolen @SamRNolen
1K Followers 3K Following Machine learning, chess, languages, fiction, philosophy, history, cats, socialism. In recovery from ME/CFS, CCI, mold toxicity
Pag Louis @cpf2tgib6g
5 Followers 294 Following Startups | Fintech | E-commerce | Operator and investor
Trula Lazalde @lazal_tru
11 Followers 3K Following
Amy Hair MD @AmyHairMD
4K Followers 3K Following Neonatologist at Texas Children's Hospital. Tweets and opinions are my own. I specialize in Neonatal Nutrition. Scientific Advisor for @NECsociety
⭐️ 🎸 📚 🖊.. @Seafoam_Dream
419 Followers 2K Following 🧠 🔥 #Infections cause #chronicillness Treat #pathogens Treat #postvac #cleantheair #FundtheNHS 💙 Real Punks Wear Masks 😷 I just wasn’t made for these times.
Kirst @kirstler31
2K Followers 939 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS #Renegade50 💫 @RemissionBiome
Hannah Cheadle @CheadleHann
61 Followers 5K Following
Dr. Phillip - Chiropr.. @SpinedAligned
42 Followers 234 Following Pronouns: She/Her, They/Them 🏳️🌈🏳️⚧️🏴☠️🏁🇵🇸
Samuel Rosenblatt @Rosenblades
217 Followers 697 Following Cheesephobic, former magician and jump roper, juggling gefilte fish and Freud, more than just my Macs tennis record #GoMacs ✡️
Cleta Schnitzler @CSchnitzle36754
77 Followers 5K Following
Brenda brenner @Brendabrenner11
240 Followers 1K Following life long RI, ocean state, pre-med / humanities, URI/Brown U , MA ;RIC MA counseling,; CAGS, RIC, administration/education; NIH fellow; Eisenhower delegate
EPIPOLE of Phoenix @EpipoleofPHX
1K Followers 3K Following WRITER, DISABLED, PRO-CHOICE, PRO-WOMAN, FEMINIST, ANTI-EPIDURAL,ANTI-ESI,NOZEMPIC(CSF leak, HT, migraines,EBV, spinal lipoma & BPD)LET’S GET WOMEN TALKING!
Paul #LongCovid #prot.. @TOM88HK
319 Followers 1K Following Inf.over SARS COV2 het is geen GRIEP & andere actuele onderwerpen.#Kinderrechten STOP MEDISCHE DISCRIMINATIE Kan niet tegen onrecht. Komt op voor kinderrechten.
AllyAlly @AllyKeyLime
2K Followers 3K Following FAR UVC 222nm, masks for doctor/dentist/hospitals/public transpo/pharmacies/grocery. Organs matter. CFS. MCS. Protect Animals. Ⓥ XRP🪙
Kelli Gramberg @GrambergKe5191
76 Followers 5K Following
Liana Rabinowitz @LianRabinow
64 Followers 5K Following
Adam Sarah @AdamDamilo13532
6 Followers 186 Following I am promotional and talented crownfunding campaign creator or promoter
Portia Agumga @port_agum
83 Followers 5K Following
Cameron Shein @came_shei
39 Followers 5K Following
Yolando Misty @MistyYolan29649
80 Followers 5K Following
Lynsey Busta @BustaLynse63420
58 Followers 5K Following
Shemeka Stell @sheme_ste
61 Followers 5K Following
Diane Mudger @mud_dian
55 Followers 5K Following
thetranscendedman @atranscendedman
367 Followers 141 Following Transparent to the transcendent. Wrote a book on Long Covid. - https://t.co/EulMyWl4cr Helpful info on LC - https://t.co/qQnix9uXNN
Madeline Puffenberger @MadelinePu67715
35 Followers 5K Following
Janyce Rettinger @retting_jan
56 Followers 5K Following
Kala Rollow @KalaRollo
52 Followers 5K Following
Jessica-rose Stokey @stokey_ros74295
107 Followers 5K Following
Mellie Burchett @BurchettMe20214
80 Followers 5K Following
Erica Mcconahay @EMcconahay17414
19 Followers 3K Following
May Fernstaedt @MFernstaed4634
27 Followers 5K Following
Hope Biosciences Rese.. @hopebio_org
388 Followers 190 Following On a mission to accelerate translational research in regenerative medicine and develop cures for all.
Long Covid Educators .. @LCEducatorsUK
77 Followers 187 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.
MyVaccident @MyVaccident
58 Followers 233 Following #LongVax #LongCovid Dx: Post Vaccination Syndrome via #Yale neurologist 2021. #Pfizer Lot #EW0169 &7 #ER8736. Disabled American ♿️ #Dysautonomia #Polyneuropathy
peter orr @orrtknpp
2K Followers 2K Following degrowth, local community net zero, retrofit, biodiversity and transformation with social justice
Metrodora Institute @MetrodoraInst
1K Followers 409 Following A national medical and research center focused on advancing care, diagnostics, and therapeutics for patients living with complex, multisystem disorders.
Fidji Simo @fidjissimo
30K Followers 553 Following CEO and Chair @Instacart. Cofounder of @Metrodorainst, focused on finding cures for neuroimmune conditions.
Ramy2.0 @Ramyisback
1K Followers 702 Following I am back from the twitter grave, with memes, and other stuff about mecfs and long covid.
Rowan Cheung @rowancheung
497K Followers 377 Following Founder @therundownai. Sharing the latest developments in the world of artificial intelligence.
Sam Nolen @SamRNolen
1K Followers 3K Following Machine learning, chess, languages, fiction, philosophy, history, cats, socialism. In recovery from ME/CFS, CCI, mold toxicity
R A W S A L E R T S @rawsalerts
966K Followers 2K Following RawsAlerts is your go-to source for fast and accurate news coverage, specializing in groundbreaking events across the USA. Follow @Rawsglobal for world news
⭐️ 🎸 📚 🖊.. @Seafoam_Dream
419 Followers 2K Following 🧠 🔥 #Infections cause #chronicillness Treat #pathogens Treat #postvac #cleantheair #FundtheNHS 💙 Real Punks Wear Masks 😷 I just wasn’t made for these times.
Amy Hair MD @AmyHairMD
4K Followers 3K Following Neonatologist at Texas Children's Hospital. Tweets and opinions are my own. I specialize in Neonatal Nutrition. Scientific Advisor for @NECsociety
Kirst @kirstler31
2K Followers 939 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS #Renegade50 💫 @RemissionBiome
Mark Wright @markeology
12K Followers 3K Following Professor, archaeologist, PhD, and recreational micropoet. #SCBWI. Budding YouTuber. Impatient #MECFS patient.
AllyAlly @AllyKeyLime
2K Followers 3K Following FAR UVC 222nm, masks for doctor/dentist/hospitals/public transpo/pharmacies/grocery. Organs matter. CFS. MCS. Protect Animals. Ⓥ XRP🪙
ARPA-H @ARPA_H
6K Followers 245 Following Official Twitter account of the Advanced Research Projects Agency for Health (ARPA-H). Privacy Policy: https://t.co/Z855rcfwXT Engagement ≠ endorsement
AI_4_Healthcare @AI_4_Healthcare
663 Followers 944 Following #AIinHealthcare #MedTwitter #DigitalHealth #MedTech #AIinPharma #HealthcareInnovation #AIGovernance #ResponsibleAI #HealthEquity #AI 💻 🩺 💊💉🏥⚕️🩻 🚑 🗺️
carrie dalton @cazd45
1K Followers 1K Following Associate Professor of Neuroscience and Genetics @BMRC_News Theme Lead for Living Well with Chronic Disease @SHU_AWRC
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Matt Maxwell @MattyMaxwell
446 Followers 566 Following Leadership coach, writer, author of How to Hold a Cockroach, and Nuggets fan! #LongCovid since Mar. 2021.
@ImaniBarbarin@disabl.. @Imani_Barbarin
221K Followers 1K Following she/her Black girl magic+disabled pride |MA Global Comms | my thoughts | #DisTheOscars + #AbledsAreWeird #ThingsDisabledPeopleKnow | ✉️ imani.barbarin gmail
HEALTH @REZILIR
9K Followers 1K Following #RezilirHealth helps patients w/hard to treat chronic conditions improve their outcomes through a precision medical approach. #NeurodegenerativeDisease #CIRS
Shaun Lintern @ShaunLintern
89K Followers 6K Following Health Editor at The Sunday Times. National Press Awards Health Journalist of the Year 2023. Chair of @mjauk. Public interest journalism matters #E17
Rasu Shrestha MD MBA @RasuShrestha
41K Followers 889 Following Bridge builder & strategist. EVP, Chief Innovation & Commercialization Officer. In pursuit of person-centered value-based health & care. Tweets are my own.
Nikhil Krishnan @nikillinit
54K Followers 1K Following Thinkboi the only funny + non-jargon healthcare newsletter: https://t.co/61zgESgkhw learn healthcare quickly with crash courses: https://t.co/C6cWc5YHK7
Rohan S. @RSiddhanti
2K Followers 723 Following Biz Dev @GetHealthie + Creator @PepperNYC1 🌶 || Tweets: healthcare, startups, community, Indian-American stuff & occasional geopolitics.
Aike Ho @aikeho
4K Followers 530 Following VC @ACME investing in breakthrough tech for human thriving // Ex-human doing becoming a human being. Reflecting on relative vs absolute reality
Lance McCarthy @Lancemccarthy
2K Followers 595 Following Proud CEO at The Princess Alexandra Hospital NHS Trust (@NHSHarlow). Love the NHS. Father of 2; husband; fan of all sports; Peloton obsessed. https://t.co/DdkoWEWs02
Farzad Mostashari @Farzad_MD
57K Followers 2K Following Founder, Aledade/ Former National Coordinator for Health IT/ NYC Health Dept/ CDC EIS Officer
Christina Farr @chrissyfarr
92K Followers 3K Following Author/owner of “Second Opinion," a health-tech newsletter read by 20,000 industry professionals. Investor. Advisor. Mama.
Marissa Moore @MSchlueterMoore
3K Followers 2K Following principal @OMERSVentures (vertical sw lead) and creator of The Green Room. ex @CBInsights @MeliusResearch @Barclays. @Princeton @JohnsHopkins alumna.
Craig Tanio @DrTanio
628 Followers 839 Following CEO & Co-Founder @Rezilir Health. Board certified in internal & functional medicine. Former McKinsey partner & Chair Maryland Healthcare Commission
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Harry Spoelstra @HarrySpoelstra
13K Followers 2K Following CardioVascular Surgeon, international clinical research, spin-offs, peer-Reviewer, globetrotter, #covididiots/insults =instant block, KIWI
XD AlphaKep @AlphaKep
42K Followers 468 Following Welcome lil bro🤫 Content Creator for @DeletedXDGaming Business Inquires: [email protected]
Anne Vroegindeweij @thisistheillme
2K Followers 1K Following PEMfluencer | Author of 'De achterblijvers' about #longcovid (book & e-reader & audiobook out now) | Tweets in 🇬🇧 & 🇳🇱 | 🏳️🌈
David Fajgenbaum, MD @DavidFajgenbaum
11K Followers 3K Following @Penn physician-scientist-patient who 'cured thyself' | Advancing @CureCastleman + @EveryCure | National Bestseller #ChasingMyCure https://t.co/26OS13etrF
Every Cure @EveryCure
2K Followers 230 Following We leverage #ai to unlock the power of each and every drug to treat each and every potential disease they possibly can. Inspired by @DavidFajgenbaum
Ondine Sherwood 💙 @selkieO
1K Followers 918 Following IT professional. Recent graduate @UCLSELCS MA PPE of Health. @HRA_latest REC member. Campaigning for rights of those with #LongCovid @LongCovidSOS
thetranscendedman @atranscendedman
367 Followers 141 Following Transparent to the transcendent. Wrote a book on Long Covid. - https://t.co/EulMyWl4cr Helpful info on LC - https://t.co/qQnix9uXNN
Invivyd @Invivyd
743 Followers 67 Following On a mission to protect the vulnerable from serious viral infectious diseases
Daniel Freeman (on hi.. @LongCovidKiwi
2K Followers 1K Following Used to be @GayKiwiDan. 44 y/o battling #LongCovid since 01 June 2022. Here to correspond with fellow sufferers. #MECFS #FBLC #MillionsMissing 🤒 😷
LongCovidPapers @LongCovidPapers
2K Followers 566 Following A bot tweeting out research papers on LongCovid from Pubmed (peer-reviewed) and MedRxiv (before peer-review). #LongCovid
Thiemo Fetzer 🇪�.. @fetzert
9K Followers 4K Following Accidental Economist. Prof at @warwickecon and @unibonn. Visiting Prof @GRI_LSE. Fellow @STICERD_LSE. ERC STG. CEPR @cepr_org & Associate Editor @EJ_RES.
Ed Markey @SenMarkey
258K Followers 2K Following Senator for Massachusetts. Chair of Clean Air, Climate & Nuclear Safety and Primary Health & Retirement Security subcommittees. Fighting for a Green New Deal.
Senator Tim Kaine @SenTimKaine
4K Followers 1K Following Official account of U.S. Senator Tim Kaine.
Dr Anjali Agarwal @Dranjaliphysio2
1K Followers 3K Following Health care Professional, consultant Physiotherapist. Lifestyle consultant. Advocacy Co Director Long covid Physio, treats #EDS #Hypermobile #POTS
KENDRICK WINS, always has, always will. That was insane 😂
the dumbest people are always the loudest. smart people just sit back and quietly observe. we need more smart/loud people. stand tall, brethren. i think it’s time to finally start posting more.
After getting #longcovid I look back and see a history of MCAS. Big bites like goose eggs. Leaving a rodeo bc the dust made me sneeze and eye water ridiculously bad. Allergic to grass all my life etc… anyone else?
Brian Cox says the Bible is 'one of the worst books ever' “The propaganda goes right the way back ... it starts with the idea that … out of Adam’s rib, this woman was created, and they’ll believe it cause they’re stupid … They need it, but they don’t need to be told lies, they…
Had a lovely experience seeing a neuro-opthalmologist today. She looked at me in my wheelchair and asked me why I was in one and when I explained about POTS and long covid she said I don't need a wheelchair and that all of my issues are being caused by my emotions. And this was…
Messages that you can expect to receive years after leaving a startup
Is there only 8 episodes of fallout?! Just finished the last episode and I’m so sad 😭 it’s so good. 10/10. Now I’m in the mood to play fallout 4
@keetmuise It would just make me sad; the CDC are always competent in movies and actually serve their purpose. Movies like that just expose how inept we are in reality.
For all the people in the back. Let @PutrinoLab school you. #PEM is just not understood. My #LongCOVID symptoms were made permanently worse by doctors prescribing exercise to me.
Ok. One last time: #LongCOVID, #PEM and exercise. Let's talk and I'll try to be REAL clear and REAL simple. If someone has PEM, exercise is contraindicated. Not only do you not prescribe/suggest exercise, you recommend avoiding exercise. That's it. Simple. No gray area. Why? 1/
to clinically diagnose me based on my symptoms and triggering event on a video visit and help me…it’s almost like…saying you can’t diagnose things without biomarkers is a giant cop-out to not help sick people that you’re too insecure/uninformed to properly treat? I dunno.. 🤷🏻♂️
What is wrong with the food in America?
Researchers unlock fiber optic connection 1.2 million times faster than broadband popsci.com/technology/fib…
@CorAndersson I think it's caused by hypoxia in the tissues.. our cells' inability to uptake oxygen properly & lactic acid buildup
@CovidSolidarit1 If it is, our government would lie about it and cover it for as long as they could.
@chrislittlewoo8 Wow, aren't you a clever little boy. Who's an edgy boy? Who's an edgy boy, then? Yes, yes. Yes, you're an edgy little boy, aren't you?
@chrislittlewoo8 You're a fucking creep mate.
@chrislittlewoo8 Look forward to the day you call me a mong in person mate.
@chrislittlewoo8 I put it to you that being a keyboard warrior doesn't make you a hard man. So I suggest you probably couldn't fight sleep and will say nowt to anyone. Kind regards.
@chrislittlewoo8 A personal message for you, Chris:
When my bf goes to go pick us up food, we ask for curbside pick up because we are both immune compromised. The restaurant always says they don’t have it. But when my bf says his dog is in the car and he doesn’t want to leave his pup alone…….they always bring the food out!!!…
Trends for United States
You might like
