Unclottable @UnclottableUK
Unclottable! Ambassador for The Haemophilia Society. Trying to provide a voice for all bleeders! Joined April 2019-
Tweets157
-
Followers236
-
Following179
-
Likes424
Delighted to welcome our members to the 1st session of our second virtual Leadership Conference!
When you have to isolate and can't watch the game in the pub and your cousin brings it to you! #proud #scotland #euros2021
Final days for UK haemophilia community too. @HaemoSocUK @HaemoSocUK_PI @HaemophiliaScot
Final days for UK haemophilia community too. @HaemoSocUK @HaemoSocUK_PI @HaemophiliaScot
I need one of these in my life.
Living with a bleeding disorder can impact your mental as well as physical health. 50% of people responding to our recent survey conducted with @TakedaPharma in the UK reported feeling depressed in the last year due to their condition. Find out more ow.ly/c5lT50Evbrw
Thank you to everyone that joined my live stream today. Apologies for the slight hiccup to begin with! Amazing talking to you all. Hope everyone enjoyed. More content soon. 🤙🏻 #Haemophilia #Bleedingdisorders #Livestream
Going live on Facebook and Instagram at 6:30pm today! Looking forward to the questions. #bleedingdisorders #haemophilia #livestream
Live Q&A Monday! Facebook and Instagram 6:30pm.
Live Q&A Monday! Facebook and Instagram 6:30pm.
Finally got round to arranging my live stream! Find me on insta and Facebook at 6:30pm on Monday 5th April! #heamophilia #bleedingdisorders #bleedingawesome #unclottable
Playing warzone is one of the things keeping me sane in lockdown. Time for a bleeder team maybe? #haemophilia #bleedingdisorders #unclottable #lockdown #warzone
Today makes it a year since I started Hemlibra. That means I've gone from treating daily to fortnightly. 365 injections a year minimum to 26! Give or take a loading dose and bleed or two. Unreal when I think about it. Time for a live Q and A! #bleedingawesome #haemophilia
So I've been on hemlibra for almost a year now. Still trying to determine the difference between a bleed/arthritic and normal joint pain. None of this explains how I have ended up with a thumb bleed playing warzone 😂 #bleederproblems #haemophilia
Well done to all the lads and our shocking face fuzz. We beat our target for @HaemoSocUK still plenty of time to donate! #movember #bleedingawesome justgiving.com/team/thebleedi…
Our Bleeding shave team is getting hairier and hairier. Head to their JustGiving page to show them your support and help the hit their target! #Haemophilia #BleedingShave #donate #support #JustGiving justgiving.com/team/thebleedi…
Despite how folicaly challenged we are. Me and the other ambassadors have put our razors down. 20 days in, still time to donate justgiving.com/team/thebleedi…
Brooklyn nine-nine with another gem referencing Haemophilia! 👌🏻 #haemophilia #bleedingawesome #bleedingdisorders #brooklyn99
Would you like to see what have our ambassadors grown so far? Donate to their fundraising page and we will spot some pictures of their facial hair soon! #Haemophilia #donate #support #moustache justgiving.com/team/thebleedi…
A copy of the @HaemoSocUK open letter to @hah_insights CEO. The bleeding disorder community aren’t going away. This needs sorting so that we aren’t left in the dark again. @Clive_Smith_
Join us tomorrow, talking about virtual consultations! If you have had one, you know what we are on about if not, prepare to be enlightened!
Join us tomorrow, talking about virtual consultations! If you have had one, you know what we are on about if not, prepare to be enlightened!
People with bleeding disorders are still seeing their lives held back by their condition, our latest report calls on the Government to invest in improving outcomes haemophilia.org.uk/appg #bleedingdisorders #haemophilia #bettercareforall
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
Paul McLaughlin @physio_paul
565 Followers 796 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Dr Kate Khair PhD @katekhair
1K Followers 861 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Mark Antony Ward @Haemosexual
2K Followers 5K Following Haemosexual is a community based online support & information resource. Advocating for anyone LGBTQ+ with a bleeding disorder/impacted by contaminated blood 🩸
Simon Fletcher @abookclubof1
581 Followers 586 Following A bemused husband, father, christian, researcher & PhD candidate. A lover of books & a thinker of weird thoughts. You have been warned.
Manon Degenaar-Dujard.. @DegenaarManon
230 Followers 248 Following Patient advocate, Bleeding disorders, Public administrator, Politics
Infected Blood Inquir.. @bloodinquiry
3K Followers 224 Following The Inquiry examines the circumstances in which patients treated by the NHS received infected blood & blood products, in particular since 1970.
Helen Manson @MrsM___
313 Followers 526 Following Mrs Mapsman to @mapsman, proud mum and Sister/Specialist Nurse in Bleeding Disorders Care. RCN NI Nurse of the Year ‘Team Manager’ 2023 Own opinions here.
Jack Bridge ᴘʟʏ @JBridge125
9K Followers 7K Following 🇬🇧 27 | Retired Paralympic Swimmer | @F1 🏎 | @pnefc ⚪️ | @LancsCCC 🌹 |
Dr Rich Gorman @SustainableRich
2K Followers 2K Following Social scientist @BSMSMedSchool. Creative research methods, patient involvement, animal & nature-based therapies... and horseshoe crabs. Haemophiliac 🩸
Laurence Woollard @TheWoollard
1K Followers 645 Following Director @PulseInSync | Stalwart advocate for informed patient choice | MSc candidate in Health Policy @imperialcollege | 📧[email protected]
Sean Cavens @seancavens
703 Followers 2K Following ill educated & a burden on society, described as ‘useful material’ as a Haemophiliac #InfectedBloodInquiry @bloodinquiry Re-energised @NUFC fan
Martin Threadgold @FredgoldMartin
7K Followers 5K Following Retired Barber Yorkshire CCC member and Leeds United Season Ticket Holder. I have a fantastic wife a fantastic life 🐻❄️
Martin Whittle @MartinWhittle17
152 Followers 264 Following Part time picture taker, contaminated blood receiver.
Bonnie Charles @Bonniecharles94
76 Followers 136 Following mum of 2, self employed, woman living with haemophilia A severe
Craig Wheeler @CraigWheeler91
306 Followers 548 Following Store Manager for Central England Co-op @mycoopfood and Town Councillor at @thrapstontc. All views are my own and not of my employer or Town Council.
Mademoiselle Escaton @melle_escaton
168 Followers 669 Following
Rareminds @RaremindsUK
983 Followers 2K Following Specialised mental health and wellbeing services for the rare disease community. https://t.co/eVmeTw0aah…
William McKeown @WillMcKeown
397 Followers 407 Following Geriatrics SpR. BGS Fellow. Frailty and De-prescribing Enthusiast. Haemophilia Patient and Advocate. Christian.
Louise Johnson @LuJohns86
221 Followers 452 Following Bleeding disorder specialist nurse, NHS. Views are my own. She/her
HCD Economics @HCDEconomics
178 Followers 316 Following Health economics experts. Part of the Prime Global group
Anais @A83949419
2 Followers 76 Following
hjb @hjb1111
10 Followers 63 Following
Roddy Morrison @RoddyMorrison9
66 Followers 328 Following
kyle.UK2020 @uk_kyle2020
157 Followers 2K Following
Jenny Symmons @jenny_symmons
3K Followers 3K Following Labour staffer 🌹 Chair of @gmb_mps_staff 🍊 CFCW ultra. Views my own
Curtiss Reid Coleman @CReidColeman
447 Followers 2K Following Social Worker/Social Media Advocate working with Hemophilia, HIV, Hep C and LGBT Rights. Stroke Survivor. I love animals, nature, travel.
Elizabeth McIntyre @LilMacca81
74 Followers 100 Following Married Ian in July 2011 and have two little beauties, Orla and Freya. Life is good :-)
johnddada @johnddada
174 Followers 1K Following
Aggie Mavis Kisakye, .. @mavis_agnes
178 Followers 399 Following Executive Secretary Haemophilia Foundation of Uganda
andy beasley @BeasleyAbeasley
1K Followers 2K Following @EveshamUnited to the core, seemingly grumpy, lol, help anybody if i can, staunch Brexiteer no deal all the way
Víctor Jiménez Yust.. @vjimenezyuste
3K Followers 3K Following Hematólogo. Jefe de Servicio. Hospital Universitario La Paz. EGB, BUP, COU, UVA, MD, HULP, PhD, HA/B, EVW, AMHH, SEHH, EAHAD Cuenta personal #LaPazHospital4U
Luke O'Shea Phillips @lukeoshea
194 Followers 809 Following Keeping an eye on the world going by my window
Marcel @MarcelHietbrink
114 Followers 1K Following
Arizona Blood Allianc.. @ArizonaBleed
95 Followers 549 Following 501c3 Organization Dedicated to increasing life-enhancing opportunities for Arizonans living with inherited blood conditions #Hemophilia #VWD #BleedingDisorders
Vince Jenkins @celticimport
157 Followers 326 Following Cardiff, formerly Dublin, Rochester, Milan and London.
FionaRobinsonPhD @FRobinsonPhD
155 Followers 269 Following Consultant, medical writing and editing. Passionate about empowerment through knowledge.
Laurence Duprez @DuprezLaurence
7 Followers 86 Following
Gordon Dixon @GordonwDixon
60 Followers 555 Following
Adele Bridge @AdeleBridge2
31 Followers 1K Following Proud Mum to Hannah and Jack and Granny to Alice and my fur baby Bracken
Journal of Haemophili.. @haemjournal
709 Followers 209 Following An open-access journal for sharing experience in the care of people with bleeding disorders. Enquiries: [email protected]
Indi-Adam Jones @adamrobertjones
782 Followers 898 Following Severe haemophilia B 🖤❤️💛 Physiologist. Academic. Gene therapy & haemophilia advocate. Clinical Trials. Star Wars. Marvel. Politics. EBM. FIBMS, FHEA, MRSB.😷
Sandra Le Quellec @SandraLeQuellec
144 Followers 279 Following MD PhD, #haemostasis lover/ Opinions are my own
Lauren Foote @Laurenjane2204
4 Followers 51 Following PA to Director of Adult Social Care, SBC. OU student- Health & Social Care. Raising awareness for Haemophilia 🩸
Tamilarasan Rathinagi.. @TamilR1
450 Followers 3K Following Loves computing, science, adventure, music, nature & bikes. Husband and a Dad.
Jenny Green @Jenny_T_Green
58 Followers 455 Following
World Thrombosis Day @thrombosisday
11K Followers 5K Following Global, year-long movement to build #bloodclot #awareness. Share info & take part in the campaign at https://t.co/PZlgcYy4jk #MoveAgainstThrombosis #WTDay24
MK @MANOJ_BANSHAL
18 Followers 130 Following Competitive Intelligence │ Pharma Consulting │ Business Research │ Strategy Consulting │ Pharma │ Biotech
Arunuday Paul @paul_arunuday
12 Followers 90 Following
greg ball/bleeding au.. @gregbal95964599
93 Followers 193 Following And still 30 years later, searching for truth for Haemophiliacs
Anna Wells @AnnaJWells_PT
297 Followers 325 Following Advanced Practice Physiotherapist in Haemophilia. All views are my own.
Haemophilia Welfare S.. @HWSP17
151 Followers 569 Following Official account of Haemophilia Welfare Society Palwal,Haryana. NGO, Work for Person with Hemophilia(Divyangs).
Syed Qayyum @QayyyumSyed
31 Followers 243 Following Vice president Hemophillia society Akola Chapter
Sajid Ds wala @SajidQureshiDs
33 Followers 794 Following Virtual Assistant | Product Sourcing | Amazon Seller | Amazon FBM & FBA Expert| LTD & LLC FORMATION
Ivan rodellas garcia(.. @RodellasJose
260 Followers 3K Following La peor pesadilla del gobierno español. Me divierto quemando tus bosques. Te estrangulo con todos los gobiernos. Como yo tienes cientos. No te libras de mi.
Bridgette Charleston @DaweBridgette
38 Followers 389 Following brexiteer, member of Tainted Blood ❤️💛🖤 Cornish first and its independence, Cornish girl born and raised, full time wheelchair user
Ed Combes RGN @Research_RGN
31 Followers 58 Following Research Nurse working on NIHR portfolio and trust sponsored home grown research in ED, Critical Care, Cardiology, and Diabetes @sashnhs Views are my own.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
Paul McLaughlin @physio_paul
565 Followers 796 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
Brian O Mahony @Brianhemophilia
3K Followers 518 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
Dr Kate Khair PhD @katekhair
1K Followers 861 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Mark Antony Ward @Haemosexual
2K Followers 5K Following Haemosexual is a community based online support & information resource. Advocating for anyone LGBTQ+ with a bleeding disorder/impacted by contaminated blood 🩸
Simon Fletcher @abookclubof1
581 Followers 586 Following A bemused husband, father, christian, researcher & PhD candidate. A lover of books & a thinker of weird thoughts. You have been warned.
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
The Haemophilia Socie.. @HaemoSocUK_PI
2K Followers 477 Following Tweeting about and from the Infected Blood Inquiry into contaminated blood and blood products. The Haemophilia Society: [email protected]
April Jones 💙 @AprilHaem
363 Followers 193 Following Nurse Specialist for Haemophilia and other non malignant Haematology. Newcastle Upon Tyne, UK. Making a difference in Haematology ... I hope!
haemnet @haemnet
1K Followers 363 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Factor 8 @Factor8Campaign
3K Followers 968 Following The UK’s leading #ContaminatedBlood scandal campaign organisation. Infected Blood Inquiry Core Participant.
Diana Johnson DBE MP .. @DianaJohnsonMP
33K Followers 4K Following Hull North Labour MP. Chair of Home Affairs Select Committee. ❤️strong Yorkshire tea, cake, crime novels, black Labradors and colour red! Splash of politics too
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
greg ball/bleeding au.. @gregbal95964599
93 Followers 193 Following And still 30 years later, searching for truth for Haemophiliacs
BÎмÎηÎ @biminibabes
269K Followers 490 Following
🇵🇰Altaf Ur Rehm.. @altafrx7
469 Followers 19 Following 🇵🇰 International PARA Player. Bronze Madeliat 5th Islamic Solidarity Games Konya Turkey . National PARA Champion. Sports Coordinator In FOP.
Ed Combes RGN @Research_RGN
31 Followers 58 Following Research Nurse working on NIHR portfolio and trust sponsored home grown research in ED, Critical Care, Cardiology, and Diabetes @sashnhs Views are my own.
DOLPHIN Haemophilia E.. @DolphinStudy
90 Followers 32 Following Using #physiotherapy and #exercise to improve #PhysicalActivity and health outcomes for young people with #haemophilia. Funded by @NIHRresearch. @HCPA11
Tainted Blood @CampaignTB
2K Followers 907 Following Advocates for Haemophiliacs infected with HIV and Hepatitis from #ContaminatedBlood products. Join our fight. https://t.co/5ULuBCuP1o
Nkem Jacob @NkemJacob1
51 Followers 374 Following A happy soul, children medic, budding haematologist, MUFC fan
Hemofilija Srbija @HemofilijaSRB
38 Followers 39 Following
HemoWeb @HemoWeb
1K Followers 557 Following To improve the lives and well-being of the #BleedingDisorders community. #Hemophilia #Hemo #VonWillebrandDisease #VWD #BleedingDisordersAwarenessMonth #Bleeder
HEMOSTASIS CONNECT @HemeConnect
1K Followers 806 Following COR2ED bringing you Independent Medical Education developed by HEMOSTASIS CONNECT, international experts in bleeding disorders
Daily Dose @Karen_Pinachyan
867 Followers 4K Following Shaping the #Future of #Healthcare. MD, ENT surgeon #HealthCareIndustry #DigitalHealth #GeneTherapy #PatientAdvocacy #IBD. PERSONAL ONLY
flora peyvandi @PeyvandiFlora
120 Followers 3 Following Director of Internal Medicine Angelo Bianchi Bonomi Hemophilia and Thrombosis Centre Milan Italy
Samuel @Sam26984539
9 Followers 184 Following
J Roberts @JonRob08
685 Followers 693 Following Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
Dr Zoë Ayres @ZJAyres
83K Followers 22K Following Analytical Scientist 👩🔬 #AcademicMentalHealth advocate 🌱 Founder @academicvoices 💬 Author 📘 ADHDer 💚 'Furiously opinionated'🤭 she/her 🌈 Views my own
Jason Evans @JasonEvansF8
2K Followers 669 Following Director of @Factor8Campaign. Campaigner of the Year 2023. Infected Blood Inquiry Core Participant. #ContaminatedBlood
KMN @haemokm
14 Followers 28 Following
David dids Allen @dids808
354 Followers 1K Following Captain of Navigation Hotel Bowling Team PLAYERS ALWAYS WELCOME, I enjoy collecting Adidas Superstar trainers, love anything Star Wars
Indi-Adam Jones @adamrobertjones
782 Followers 898 Following Severe haemophilia B 🖤❤️💛 Physiologist. Academic. Gene therapy & haemophilia advocate. Clinical Trials. Star Wars. Marvel. Politics. EBM. FIBMS, FHEA, MRSB.😷
Anna Geffert @AnnaGeff
781 Followers 2K Following Mum (2 boys), Wife, MD (HERA Comms), Former President (Women in PR), Trustee (Haemophilia Society). Interested in finance, business and politics.
Debra Pollard @Debra_PollardRN
113 Followers 198 Following
Healthcare at Home @hah_insights
959 Followers 77 Following Please be aware this account is no longer monitored. Please follow our new account @Sciensus_Group
Joseph Aslan @JoePlatelet
2K Followers 3K Following Platelets - Cell biology - Signal transduction - Hematology - Cardiovascular Health & Disease
Conan McIlwrath @ConanMci
255 Followers 593 Following Vice Chair UK Haemophilia Society, Co-Chair family’s of Haemophila NI, Leakage FM NI Water, Big Toon fan, but my most important role - Dad! Opinions are my own!
Rana Saifi @RanaSaifi16
197 Followers 220 Following Regional Manager Middle East at @Wfhemophilia Passionate about International Development. Views are my own. RTs are not endorsements.
Daniel James - Tubefl.. @tubefluence
531 Followers 60 Following YouTube Marketing Expert - 10+ Years of Experience. Grow your YouTube channel 👉 https://t.co/rnFhuWwthe
Dylan Scott @djmmbb2324
60 Followers 271 Following advocate for hemophilia awareness and just your average every day person fighting for what's right
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
DULSE PHARMA @DulsePharma
287 Followers 180 Following WELCOME TO DULSE PHARMACEUTICALS ,DULSE PHARMACEUTICALS IS INDO EURO COLLABORATION UNDER EUROPEAN MANAGEMENT WITH EVERY DAY HEALTH CARE PRODUCTS
Martin Theaker @martintheaker
491 Followers 88 Following Claret to the core and a surviving victim of #ContaminatedBlood Severe Haemophiliac.
Helen-marie Wilcox @HelenmarieWilc1
34 Followers 46 Following
Save One Life @SaveOneLifeInc
1K Followers 214 Following Creating change in the global bleeding disorders community, one life at a time.
God @TheTweetOfGod
6.0M Followers 1 Following Come join Me at @[email protected]. Still can't help plugging My book "The Book of Pslams" out now: https://t.co/3h3qRbmo7c
DΛЯK ᑕOGᑎITIᐯ.. @chrisdark
146 Followers 504 Following Synth player. Super Recogniser. Scottish. Politically Centrist. My opinion is the correct one, if you disagree with me that's fine, It's ok to be wrong.
Video Influencers @videoinfluencer
12K Followers 364 Following Helping you grow your INFLUENCE, INCOME, & IMPACT with YouTube & online video 📈 Created by @BenjimanTV & @SeanCannell
Sean Cannell @seancannell
87K Followers 5K Following I help people build their influence with YouTube 🎥 Forbes™ Top 20 YouTube Channels 4 Business ✝ God First 👨👩👦👦 Family is Everything
Graham Manning ❤️.. @GraymF1
2K Followers 5K Following Campaigner for justice for infected Haemophiliacs of the contaminated blood disaster core participant of the infected blood inquiry: Victory for Ukraine ✌🏻🇺🇦
Helen Holmes @HelenHolmes7
211 Followers 900 Following Mother, Grandmother and Cardiothoracic Radiographer....
Sarah Mangles @SarahDo31939748
118 Followers 190 Following
Anna Wells @AnnaJWells_PT
297 Followers 325 Following Advanced Practice Physiotherapist in Haemophilia. All views are my own.
Sarah Garside @Sarahhaemonurse
164 Followers 151 Following Lead Nurse for Children’s Haematology at Leeds Children’s Hospital and The North and West Yorkshire Haemophilia Network. Follow us @NWYorkshaem.The decision by @BorisJohnson to lift all restrictions will be a big problem for the immunocompromised who do not mount good responses to the vaccines? How can they go on public transport or do their food shopping safely?
Delighted to welcome our members to the 1st session of our second virtual Leadership Conference!
It’s #year6residential and I bought my @tassimo_uk machine.
Today we go on our #year6residential After the year they’ve had, I’m glad they get to go but oh god pass the coffee.
Scotland fans helping to clear up Leicester Square. Fair play. 👏
The attack on the trans community that has been happening for a while now is outrageous. Everyone deserves to be comfortable with who they are. #TransMenAreMen #TransWomenAreWomen
Ahhh the summer. When you come back from a run covered in dead flies and sweat.
Final days for UK haemophilia community too. @HaemoSocUK @HaemoSocUK_PI @HaemophiliaScot
How is the pandemic affecting the mental health of you and your family? Take this survey by May 31. bit.ly/2Paaxw2
In 1999 PM Tony Blair ruled out a public inquiry. He wrote to THS: "I am not convinced that a public inquiry would provide greater insight into the problem or pave the way for any further improvements in the safety controls which are now in place." #InfectedBloodInquiry
Do you have all our hottest merch yet? If not, head to our online shop! haemophilia.org.uk/product/apron/
I've started writing reports again and I predict I will put on exactly 18kg in weight.
In December, I was admitted to hospital. I had nothing on me apart from my phone and no-one local to bring me stuff. My battery dying, alone, not knowing how long I was staying/what was wrong with me, I broke down in tears. My nurse lent me her own phone charger. #NursesDay
Blessed to take another journey round the sun 🙏🏻 26 was a difficult chapter, but I positive one, can’t wait to see what chapter 27 has in store for me ✨
Happy #InternationalNursesDay2021 A huge thank you to @katekhair & @Debra_PollardRN for looking after me for 30 years. And all the other fantastic haemophilia nurses around the world. You are all amazing.
We are pleased to introduce Sunny who has been appointed as the UK VWD Ambassador for The Haemophillia Society. Sunny is looking forward to getting involved in projects and adding value from his vast experience. ow.ly/eqla50EEk2g
Having the right conversations with healthcare professionals is vital to enable people living with a rare bleeding disorder to live the life they want to. Follow the #WeBleedDifferently campaign for more information ow.ly/ap5T50EvbGV
Living with a bleeding disorder can impact your mental as well as physical health. 50% of people responding to our recent survey conducted with @TakedaPharma in the UK reported feeling depressed in the last year due to their condition. Find out more ow.ly/c5lT50Evbrw
We need to address #pain in #haemophilia - we are letting PWH suffer without even discussing pain experience yet alone treatment - we can do better.
Pain management in #bleedingdisorders care: perspectives of Canadian Social Workers in #Hemophilia Care doi.org/10.17225/jhp00…
Don't forget to join a live Q&A today at 4pm with Clive Smith and Jack Bridge, hosted by Baroness Molly Meacher. See you there! haemophilia.org.uk/events-page/li…
Trends for United States
You might like
