DOLPHIN Haemophilia Exercise Study @DolphinStudy
Using #physiotherapy and #exercise to improve #PhysicalActivity and health outcomes for young people with #haemophilia. Funded by @NIHRresearch. @HCPA11 Joined April 2021-
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Delighted to welcome @RoyalLondonHosp to the @DolphinStudy they are the 10th site open to recruit. Using #physiotherapy and #exercise to improve health outcomes for young people with #haemophilia. @CTU_EK @HCPA11 @NIHRresearch @HaemoSocUK @EKHUFT_Research
Haemophilia Physio job in the ‘Garden of England’ Come and join the amazing multidisciplinary team at the Haemophilia Centre in Canterbury - 12 months maternity leave cover. Clinical role and time for research. nhsjobs.com/job/UK/Kent/Ca…
London Marathon 2023: Ex-pro cyclist Alex Dowsett runs for blood charity - BBC News bbc.co.uk/news/uk-englan…
Welcome @BelfastTrust Haemophilia Centre to the @DolphinStudy family. 9th Site to receive the green light for recruitment. Using #physiotherapy and #exercise to improve health outcomes for young people with #haemophilia. @CTU_EK @HCPA11 @NIHRresearch
Top scoring abstract #EAHAD2023 Thank you @sarah_pygott @KimHaywood17 from @CTU_EK & all investigators @HarbidgeHannah @DoddCharlene MelanieBladen @NicsHubert @kcjmillar @SayersLou @ClaireForde12 @davidhopper1978 EmmaHope @FenlonPhilippa @Lcrossley5 AndrewClements LisaGueran
@DStephensen68, on behalf of #IPOP group, opened the #SLAM session #EAHAD2023 this morning. #EAHADCongress @EAHADnews @HCPA11
Congratulations to Anna Wells and David Stephensen on receiving research grant awards at the EAHAD Annual Congress. @HCPA11 #EAHAD2023
Delighted and proud for @Hcpa members @AnnaJWells_PT & @DStephensen68 receiving @EAHADnews AHP research awards today. 👏👏🥳🥳
PWBD should have #access to physiotherapy, be able to #selfrefer. Physiotherapy care is #MoreThanAJointScore. #Rehabilitation needs to be #personalised, and with #SharedDecisionMaking
European Principles of Care for #Physiotherapy provision for persons with inherited bleeding disorders. Presented by @DStephensen68 on behalf of EAHAD Physiotherapy Committee @EAHADnews and @EHC_Haemophilia
Huge congratulations to @DStephensen68 and @AnnaJWells_PT, recipients of #EAHADResearchGrants, to fund work on #IPOP and #PainMemories respectively 👏🏼👏🏼
Proud to receive top abstract rosette at #EAHAD2023 Thank you. Measuring physical function with 6-minute walk test, jump and hop test remotely at home safe and repeatable in young children with #haemophilia. Part of our @NIHRresearch @CTU_EK
Proud to receive top abstract rosette at #EAHAD2023 Thank you. Measuring physical function with 6-minute walk test, jump and hop test remotely at home safe and repeatable in young children with #haemophilia. Part of our @NIHRresearch @CTU_EK
A wonderful start to 2023 for @DolphinStudy Bristol Childrens Hospital @uhbwNHS #Haemophilia Centre has received the green light for recruitment #physiotherapy led @NIHRresearch funded #exercise intervention @HCPA11 @HaemoSocUK @CTU_EK
Excited to hold our first @DolphinStudy Donuts Journal Club on Tuesday with the amazing team of principle investigators around the UK to discuss functional movement skills in children with #haemophilia. Without them this study would not be possible. Thank you. @HCPA11 @CTU_EK
WELCOME to the @DolphinStudy @NewcastleHC New study site #physiotherapy led @NIHRresearch funded #exercise intervention for children with #haemophilia. We'll be seeing you soon. @HaemoSocUK @HCPA11 @CTU_EK @EKHUFT_Research #PhysicalActivity
FANTASTIC NEWS- Cardiff Haemophilia Centre have received the green light for recruitment to @DolphinStudy #physiotherapy led @NIHRresearch funded intervention looking at effects of #exercise for children with #haemophilia @CAV_Research @EKHUFT_Research @HCPA11 @HaemoSocUK
Leicester #Haemophilia Centre @LeicResearch congratulations on your green light for recruitment of @NIHRresearch @DolphinStudy #physiotherapy led #exercise intervention for young people with haemophilia. @HaemoSocUK @HCPA11 @EKHUFT_Research
Thanks to UKHCDO for opportunity to discuss the @DolphinStudy today. #movement competency and #confidence as part of #rehabilitation for children with #haemophilia
Thanks to UKHCDO for opportunity to discuss the @DolphinStudy today. #movement competency and #confidence as part of #rehabilitation for children with #haemophilia
championing all #physiotherapists in #haemophilia centres working to maximise physical development, rehabilitation and promoting activity involvement in those under their care and appreciating physios leading research to answer what more can be done.
WELCOME to @OUHospitals #haemophilia CCC who have become a study site for @DolphinStudy using #physiotherapy led intervention and #exercise to improve #PhysicalActivity for young people with haemophilia. @CTU_EK @HaemoSocUK @HCPA11 @NIHRresearch
Vanessa Girotto Guede.. @GirottoGuedes
48 Followers 97 Following Physiotherapist, Master in Public Health and PhD in Medicine (radiology/nuclear medicine area). #haemophilia #bleedingdisorders #QoL #chronicpain #publichealth
Cathy Farrelly @CathyFarrelly
177 Followers 404 Following Consultant Haematologist. Director Liverpool Haemophilia CCC. Founder: The OnCall Room. Passionate about med education. All opinions my own.
Hemofilija.lv @Hemofilija_lv
302 Followers 316 Following Par un ap cilvēkiem ar retiem iedzimtiem asins recēšanas traucējumiem Latvijā. Hemofilija, Villebranda slimība, pavisam retie faktoru deficīti.
WOMEN Study @WOMENstudy_Ire
30 Followers 51 Following Our aim is to understand menstrual health, bleeding experiences and physical activity participation in women/people with the potential to menstruate in Ireland.
Veronica Ciolini @Veronic49953243
23 Followers 327 Following
Lizzie Bradshaw @ElizabethBrads
603 Followers 1K Following System Lead for Advanced Practice & Pain Clinician (portfolio role). Physio by background. Occasionally dabbles in clinical academia.
Suzanne Lester @liverprehabPT
551 Followers 1K Following Physio, PhD fellow, delivering a feasibility study utilising a remote prehabilitation intervention to patients awaiting liver transplantation.
Deirdre Winters @shannaragh
317 Followers 570 Following
Dr.HC.Engels Reyes @engelsreyes
337 Followers 1K Following Lic en Administración y Dirección Empresarial en preparación | Doctor Honoris Causa | Arquitecto | 🇳🇮🇲🇽
Tatiana Rivera, MD�.. @tarisrid2
121 Followers 384 Following Sub especialista en Hematología 🇲🇽 Especialista en Medicina Interna👩🏽⚕️🩺🇭🇳 Speaker/ Asistencial Dr. Hematología a la vanguardia😼 I lost @tatisrid
Wael Ali @WaelAli84652135
8 Followers 558 Following
HCD Economics @HCDEconomics
179 Followers 316 Following Health economics experts. Part of the Prime Global group
johnna1222 @johnna1222
1 Followers 41 Following
ILIANA CHATZIFRAGKOU @ILIANAPhysio
346 Followers 577 Following Clinical Physiotherapist & Swimming teacher level 1. Boccia Referee.Mother of 2.
Malta Bleeding Disord.. @MBDSociety
67 Followers 124 Following The general purpose of the Malta Bleeding Disorders Society is to provide a fellowship and support for people with #bleedingdisorders and their carers
David Atati @DavidAtati4
47 Followers 1K Following
sharda shanbhag @ShanbhagSharda
9 Followers 364 Following
maze @AlqraMazn
3 Followers 47 Following
FionaRobinsonPhD @FRobinsonPhD
154 Followers 269 Following Consultant, medical writing and editing. Passionate about empowerment through knowledge.
David Hopper @davidhopper1978
298 Followers 321 Following
Mel @Mel58086906
20 Followers 70 Following
Sarah O'Connell @SarahOC70
9 Followers 349 Following
samgodwin @tispygirl4
114 Followers 1K Following
East Kent Clinical Tr.. @CTU_EK
257 Followers 302 Following Clinical Trials Unit @EKHUFT A clinical space for research studies & research infrastructure to help bring more innovative trials to our patients.
Jessica 🆎➕ @jessica_sandham
129 Followers 562 Following Mama, married to my best friend, proud to work @AlderHey. Centre Director for Liverpool Childrens Haemophilia CCC, Trust Lead for Transfusion.Views my own.
radRounds Radiology N.. @radRounds
53K Followers 39K Following radRounds is for sharing cases, finding latest career opportunities, connecting in #radiology. DM to submit cases, find, post career opportunities. #medtwitter
Aggie Mavis Kisakye, .. @mavis_agnes
178 Followers 399 Following Executive Secretary Haemophilia Foundation of Uganda
Ariel Martinez @ArielAlondraM
33 Followers 134 Following Hi, I'm currently a student at UCSB using Twitter for animal science learning purposes.
Marley Standard @MarleyStandard
34 Followers 144 Following Hi! I am a UCSC student looking to learn about writing and animal science. #39canimals I am doing my literature review on Canines and their emotions!
Dayana Sheinin @DayanaSheinin7
36 Followers 146 Following I am a student at UCSC who is learning about research in science and becoming an active voice about animal-related issues! #39canimals
Sejojo Phaaroe @707c53873ae6498
22 Followers 565 Following Grand Father of Cytology , Cancer Diagnostics , cell markers, digital Cytology , designer of Modalities of recall followup system , BI specialist and a Coach.
Kate Starkey @KateStarkey
9 Followers 64 Following
NIHR CRN Kent, Surrey.. @NIHRCRN_kss
2K Followers 2K Following We are part of @NIHRresearch supporting high-quality health and social care research across Kent, Surrey and Sussex.
Dan Hart @a9dph
1K Followers 1K Following haematologist, immunologist, honorary senior lecturer Genomics & Child Health, QMUL. Industry early development Clinical Science Lead. views my own
Naveed Tamboli @NavedTamboli2
94 Followers 338 Following DrNB clinical hematology and bone marrow transplant (Tata Medical center, Kolkata)
Kate Millar @kcjmillar
20 Followers 38 Following Paediatric Physiotherapist Currently working towards a MSc in sports physiotherapy Interests: Paediatric Oncology and Haemophilia, Rowing, Running and Cycling
Stewart Morrison @S_Mo_15
1K Followers 2K Following PhD. SFHEA. He/Him. Interested in the clinical management of paediatric foot and lower limb problems. Views are mine.
Ami Young @ami_young90844
18 Followers 130 Following Follow my main for the real stuff @ami_young13 😘🍑💦
Okys Mates @okysmates
67 Followers 890 Following
Sandra Le Quellec @SandraLeQuellec
144 Followers 279 Following MD PhD, #haemostasis lover/ Opinions are my own
HaemophAmicus @HaemophAmicus
1K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
Nicolas Graeve @NicolasGraeve
251 Followers 1K Following Je suis curieux de tout, non polarisé et ouvert à la discussion. J'écoute même si je suis contre. J'apprécie la nuance et la mise en perspective.
Ghadir Tawil @ghadir_tawil
11 Followers 22 Following
Radoslaw Kaczmarek @RKaczmarekDr
2K Followers 5K Following Researcher | #immunology | #gene therapy | #hemophilia | #glycobiology | IU School of Medicine/Hirszfeld Institute
Thuvia Flannery @thuvia2014
154 Followers 148 Following
Claire Forde @ClaireForde12
54 Followers 117 Following
East Kent NHSFT R&I @EKHUFT_Research
1K Followers 591 Following This is the Twitter feed for the Research & Innovation Department at East Kent Hospitals NHS Foundation Trust.
HaemophAmicus @HaemophAmicus
1K Followers 5K Following Haemophilia and Allied Disorders Slovenia/Europe 🇸🇮➡️🇪🇺➡️🌎
Local Families with B.. @LFwBDisorders
186 Followers 172 Following Support for local families affected by bleeding disorders, by families for families.
haemnet @haemnet
1K Followers 363 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Charlene Dodd @DoddCharlene
8 Followers 12 Following
Dr Kate Khair PhD @katekhair
1K Followers 858 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
Sarah Rand @PhysioSarah
739 Followers 1K Following Physiotherapist | Lecturer @UCLphysio @RCSIPhysio | Researcher | PhD student @CanterburyCCUni #physio #exercise #physicalactivity #healthtech 🇮🇪➡️🇬🇧➡️🇸🇪
jess hedden @jessfalv
52 Followers 107 Following
Anna Wells @AnnaJWells_PT
297 Followers 325 Following Advanced Practice Physiotherapist in Haemophilia. All views are my own.
MyHemophiliaTeam @HemophiliaTeam
1K Followers 613 Following We are the private social network for those living with #hemophilia and other #bleedingdisorders. Join our community of 3000 members!
Unclottable @UnclottableUK
236 Followers 179 Following Unclottable! Ambassador for The Haemophilia Society. Trying to provide a voice for all bleeders!
Claire Forde @ClaireForde9
62 Followers 98 Following Occupational Therapist, Haemophilia Comprehensive Care Centre, Belfast
Emma Raywood @Fizzy_Emma
604 Followers 775 Following (she/her) 🫁 Respiratory physiologist (paediatrics) 👩🏻🎓 @FizzyoCF PhD candidate @UCLchildhealth 👩🏻💻 @NuvoAir Digital coach
Exercise is Medicine @EIMnews
35K Followers 133 Following A global initiative by @ACSMNews calling on health care providers to assess and review every patient's physical activity program at every visit.
Ruth Elise @rutheliseM
107 Followers 156 Following Physiotherapist / PhD student at Oslo University Hospital, Norway.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
Anne Penn @anne_penn
36 Followers 59 Following
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
Sheila Roche @sheilsroc
242 Followers 236 Following Clinical Specialist Physiotherapist specialised in Haemophilia.
Lou Sayers @SayersLou
177 Followers 185 Following
Project Fizzyo @FizzyoCF
687 Followers 755 Following Using tech and games to improve #physiotherapy for children and young people with #CysticFibrosis funders: @RosetreesT @CFTrust @UCLPartners
Hannah harbidge @HarbidgeHannah
51 Followers 420 Following
Paul McLaughlin @physio_paul
564 Followers 796 Following Post Doctoral Clinical Academic Specialist Physio-Haemophilia @royalfreenhs || #Pain #Haemophilia || All views my own! 🇮🇪🏳️🌈🏳️⚧️
Clive Smith @Clive_Smith_
1K Followers 1K Following Chair of The Haemophilia Society•World Federation of Hemophilia youth chair•Criminal barrister•Lecturer•Triathlete•🇬🇧 AG Duathlete•Ironman x 4
NicsHubert @NicsHubert
242 Followers 343 Following Loves all things adventurous, active & outdoors. Always up for the next challenge. Fits in working as a paediatric physio too.
Dr. Megan Kennedy, Ph.. @mekennedypt
200 Followers 278 Following CORU Registered Physiotherapist/ Postdoctoral Research Fellow, Trinity College Dublin.
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Exercise Works! @exerciseworks
64K Followers 60K Following Exercise Works in the prevention & treatment of disease. By Honorary Visiting Professor/Associate Professor Ann Gates #MovementForMovement @The_VANGUARD_EU
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
David @DStephensen68
293 Followers 205 Following Professor Applied Clinical Research, Physiotherapist, NIHR Clinical Lecturer. All opinions my ownBlokzijl et al: Functional ability of persons w/ #haemophilia (PWH) declined in about one-third within 3-5 years. Identifying those at highest risk was impossible. Probability of decline was higher in PWH w/ BMI >30 kg/m². Learn more 👉buff.ly/3BYNsS5 #OpenAccess 🟢
Absolute plum of a job 👍🏽🤩🙌🏽#haemophiliaphysio #Liverpool Great opportunity, progressive service @CathyFarrelly & #MDT Get your skates 🛼on closing date soon👇🏽@HCPA11 @physio_paul @DStephensen68 @Clive_Smith_ @HaemoSocUK
Final day at #wfhCCS. Great talk from @DStephensen68 on effect of therapy switching on joint pain. “Arthropathy and frailty are not reasons to avoid activity, but reasons to engage more in activity”. Couldn’t agree more 👏🏻
That's fantastic news 👏 Well done. Great example of a home grown, multi- site study running @EKHUFT via the Clinical Trials Unit @CTU_EK @DStephensen68
Proud to receive top abstract rosette at #EAHAD2023 Thank you. Measuring physical function with 6-minute walk test, jump and hop test remotely at home safe and repeatable in young children with #haemophilia. Part of our @NIHRresearch @CTU_EK
European principles of care for physiotherapy for pw #bleedingdisorders NOT just haemophilia. Access for all, self referral options, working with the MDT & continued CPD for practitioners #EAHAD2023 onlinelibrary.wiley.com/doi/10.1111/ha…
@DStephensen68, on behalf of #IPOP group, opened the #SLAM session #EAHAD2023 this morning. #EAHADCongress @EAHADnews @HCPA11
Wearable activity trackers in young adults with haemophilia: what needs to be considered? @DoddCharlene Ferhana Hashem Paul Bassett #EAHAD2023 #EAHADCongress
Congratulations to Anna Wells and David Stephensen on receiving research grant awards at the EAHAD Annual Congress. @HCPA11 #EAHAD2023
Delighted and proud for @Hcpa members @AnnaJWells_PT & @DStephensen68 receiving @EAHADnews AHP research awards today. 👏👏🥳🥳
PWBD should have #access to physiotherapy, be able to #selfrefer. Physiotherapy care is #MoreThanAJointScore. #Rehabilitation needs to be #personalised, and with #SharedDecisionMaking
European Principles of Care for #Physiotherapy provision for persons with inherited bleeding disorders. Presented by @DStephensen68 on behalf of EAHAD Physiotherapy Committee @EAHADnews and @EHC_Haemophilia
Huge congratulations to @DStephensen68 and @AnnaJWells_PT, recipients of #EAHADResearchGrants, to fund work on #IPOP and #PainMemories respectively 👏🏼👏🏼
Well done to Claire Forde (OT) and Patricia McGrath (SW) - presenting their poster ‘Team Haem goes Green’ at EAHAD 2023. @BelfastTrust @ClaireForde12 @MrsM___ @GaryBen75666640 @HCPA11 @EMcConnell99
Just a slice of #EAHAD23 quality posters 🤩 Day 2 Multidisciplinary Education - 👀 forward to it ! @HCPA11 @TaylorSxtx2 @DStephensen68
Wonderful opening session on Supporting Sports in Haemophilia at #EAHAD2023 this morning
Very high quality work presented at #Physiotherapy #SLAM session last night, including updates on #IPOP from @DStephensen68, and #REMAP-Haemophilia from @physio_paul
Should we continue with virtual exercise classes after COVID? @TaylorSxtx2 @HCPA11
Pain Memories in Haemophilia by @AnnaJWells_PT et al 👏🏼👏🏼
@DStephensen68 and @HarbidgeHannah representing @DolphinStudy @HCPA11 at #EAHAD2023
@DolphinStudy @NIHRresearch @CAV_Research @EKHUFT_Research @HCPA11 @HaemoSocUK @Lcrossley5 Congratulations to Louise Crossley!
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