elly brosius @NovaSupport

@RemissionBiome R50 + @RenegadeRes volunteer. Disabling ME/CFS+ OI+Long Covid. 💖 physics, pets, mindfulness, metaphors, & medicinal gratitude. Am @CFSnova. groups.io/g/EGGdish Mid-Atlantic Joined September 2011

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elly brosius @NovaSupport

11 hours ago

@FatigueMe92484 @KatBoniface I have a love/hate experience with keto meals. I don't think I can do more than a few meals in a row. So glad it has helped you.

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elly brosius @NovaSupport

11 hours ago

@FatigueMe92484 @KatBoniface I just have to be careful with it because montelukast goes through metabolism with CYP3A4 and I have low function there. If I take it with an inducer such as myrrh and I avoid other foods and meds and supplements using that, I am doing ok on small doses.

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Warren Togami @wtogami

2 days ago

Long COVID capillary damage is real. Here are my damaged capillaries. For comparison these small and straight capillaries were photographed by me testing the capillaroscope on the healthy clinic staff.

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MECFS, MCAS and PTSD @FatigueMe92484

2 days ago

MECFS / Keto Diet When I was mildly severe last year from hurricane stress it was recommended that I try the keto diet. I am no expert and researched it online. Honestly, byfollowing a keto diet, I believe got me out of the worst symptoms which included severe burning of the face, insomnia and leg weakness. I had no other options I could try. It wasn't the wobbles yet but it was close. Now, I now try to follow a low carb diet as much as I can, although some days I just can't help but splurging. I wouldn't try the restrictiveness of the true keto diet for long. I didn't have my lactate meter then, but am confident my levels were really high. It may have been because of GR resistance and alterations in the PDK-PDH axis. Now that I have a lactate meter, I should be able to get better data when it happens again. Before you try it, it is good to talk with your doctor. "KDT is a widely used and generally well tolerated therapeutic strategy for PDHD across genotypes and age groups, with reported clinical benefits extending beyond seizure control. Clinical practice demonstrates variability, reflecting the limited high-quality evidence base." Ketogenic diet therapy in pyruvate dehydrogenase deficiency: Global clinical practice from literature and survey data sciencedirect.com/science/articl…

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nyscof @nyscof

3 days ago

"the risk of [fluoride] damage to non-skeletal tissues, including the kidneys, may persist even at concentrations below the WHO drinking water safety guideline of 1.5 mg/L." "Scientists have found an early warning system for kidney damage caused by too much fluoride. By measuring the balance of a person's immune cells alongside the amount of fluoride in their urine, doctors can predict if kidney damage is coming. They also discovered that fluoride triggers this damage by flipping on an internal cell alarm called p65, which sparks harmful inflammation." (Thank you AI) #scimed #medtwitter #kidney #dialysis #diabetes #nephrologists @DeForestWI @ithacavoice @albanywater @NYCCouncil @NYCMayor @SpeakerMenin #fluoridation #dentistry #OralHealthMonth pubmed.ncbi.nlm.nih.gov/42320618/

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Rebecca Ryan @DrRebeccaRyan

4 days ago

@GutOptimized Yes the two most common are wheat and dairy (protein). There is a test confocal microscopy at gadtroscopy but not widely available. After all pts are imaging these allergies! Even though we fully acknowledge non IgE allergies as the cause of eosinophilic oesophagitis.

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elly brosius @NovaSupport

4 days ago

@KatBoniface @angryhacademic I’ve been reading labels on walnuts and they usually say just walnuts. A allergy test I got said moderate allergy to one kind, black or English, but not the other. Are most walnuts here in US black walnuts??

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Katrin Boniface @KatBoniface

a week ago

For a couple decades, Buckwheat (rather than Corn) was the crop most encouraged by the U.S. gov- in order to produce Rutin in case of nuclear attack.

Katrin Boniface @KatBoniface

10 months ago

Might be a good time to remind folks that Rutin has an excellent track record for protection against various types of radiation damage. #MECFS25

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Bendy by Birthright @gymrat_bookworm

a week ago

There is a difference between listening to vs. suppressing the nervous system. Sometimes the nervous system is telling us that we need to change our mindsets, our environments, our habits, our relationships, or our jobs. Sometimes it's telling us that our left pelvic vein is 75% compressed. Wisdom is taking a interdisciplinary approach to figuring it out.

Andrew Green @AndrewG76201347

a week ago

Results like these are one reason I don’t like calling POTS automatically ‘dysautonomia’ ie venous compression as a cause of POTS is not a problem in the autonomic nervous system.

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Mike Hoerger, PhD MSCR MBA @michael_hoerger

4 days ago

We had warned for two weeks that wastewater levels were exceedingly high in Central Texas. Now the Emergency Department visit levels have kicked up. 💩 don't lie.

CyFi @CyFi10

4 days ago

BREAKING: COVID ED visits hit 12+ week highs in 7 locations (up from 4 last week) including the entire state of Florida, Austin TX, and Lafayette, LA. Florida increases the most since 2025's final week!

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Science Postcard @Sciencepostcard

5 days ago

This 3-D Printer Flows Concrete Like Cake Frosting!

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books 📖 @bookpoets

5 days ago

a friendly reminder

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Interesting STEM @InterestingSTEM

2 weeks ago

Spider Vein (Telangiectasia) Treatment with Immediate Visible Results

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davidtuller @davidtuller1

3 weeks ago

This interview with U of Edinburgh geneticist Chris Ponting about Sequence ME & Long Covid has had more than 800 views. youtube.com/watch?v=fyWw2k…

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Lindsay Skipper @LindsaySkipper

2 weeks ago

New article released today by our team. We highlight how the lived experience can and should be part of all stages of research and never just tokenism. Patients are the expert in their condition and there is always more to hear and learn from them. link.springer.com/article/10.118…

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Rebecca Ryan @DrRebeccaRyan

5 months ago

Why microdosing GLP1a/GIP agonist (Tirzepatide) helps POTS/MCAS/Long COVID/Functional GI symptoms. #POTS #MCAS #LC #DGBI #microdosing I had an epiphany a few months ago. One of those “why didn’t I realize this sooner” moments.

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Rebecca Ryan @DrRebeccaRyan

5 months ago

@gtamoeb Yes in sensitive patients I sometimes use 1/60 th of the starting dose!

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charlos @loscharlos

2 weeks ago

“Exposure to respiratory viruses before a baby’s first birthday — when immune systems are immature and before most childhood vaccinations — consistently predicted reduced earnings, education and health decades later.”