CoalitionHemoB @CoalitionHemoB
Our mission is to make quality of life the focal point of treatment for individuals with hemophilia B. hemob.org New York, NY Joined June 2014-
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¡Nos sentimos honrados de recibir un testimonio tan poderoso, no solo de las familias a las que servimos, sino también de nuestros socios que imparten nuestros programas educativos!
Discover the B Education Hub, a dedicated online space tailored for Hemophilia B patients and caregivers. Enjoy the flexibility of online accessibility, benefit form multi-lingual support, and explore a digital library with a patient-centric glossary. hemob.org/education
Our three scholarships are now open! This year, all three scholarships will have the same due date: July 15, 2024! More info on the website: ow.ly/10Nn50QAoQi #scholarships #musicscholarship #golfscholarship #academicscholarship #hemob
Breaking News: Pfizer announced that the FDA has approved BEQVEZ™ for the treatment of adults with moderate to severe hemophilia B. Get the details here: pfizer.com/news/press-rel… #genetherapy #hemophiliab #hemob #breakingnews
Her Care, Her Choice: Women & Hemophilia B, A Multi-Part Series! Join us as we amplify women’s voices in hemophilia B care! Register today: hemob.org/upcoming-events #hemob #hemophiliab #womenbleeders #womenschoice
We invite those 50+ to join us for a Virtual series on Strength in Connection! Balance training from Mike Zolotnisky, a fun trivia game with Kim & Wayne, and time to chat with others! Register today: hemob.org/upcoming-events #hemob #hemophiliab #hemobevents #agingtogether
Today is the day!! We can’t wait to see everyone in person and virtually for our annual hybrid Symposium!!! #CHB24 #BAmazing #BEmpowered #BTogether #annualsymposium #advocacy #research
We’re so excited to bring to you the Parenting Support Network co-hosted by Cassandra Starks and Megan King! On July 23, discover the relaxation benefits of Somatic Dance & Movement Education. Register today: hemob.org/upcoming-events #hemob #hemobevents #hemobparents
Check out the Hemophilia B Newsletter and stay in the know about news, therapies, events, and community happenings! hemob.org/newsletter #hemob #hemophiliab #resources #hemobnews
Safe travels to those who are headed to Dallas for our Annual Symposium! We can’t wait to see you tomorrow as we kick off an exciting weekend filled with education, togetherness, and empowerment! We can’t wait to see you there! #AnnualSymposium #Empowerment #EducationForAll 🌐✨
Join us at the Annual Symposium for Roundtable Discussion On Gene Therapy. This is an opportunity to learn what gene therapy is and what it is not, and gain knowledge on setting and managing your expectations, as well as the ongoing monitoring required. ow.ly/1Exk50R26ff
Word of the Week: Cell Culture: A method for growing cells outside the body in a laboratory environment. Check out this word and others in our Hemo B Glossary: hemob.org/glossary
✅ Save the date for the Eternal Spirit Award Gala on August 8, 2024! #hemob #hemobevents #savethedate
Recently a large group of European and Canadian researchers decided to investigate inhibitor development in hemophilia patients. Learn more about their findings on page 23 of the most recent newsletter: ow.ly/X4BI50Rax1W
🌿 April is Stress Awareness Month, a time to prioritize self-care and mental well-being. Join us this April as we raise awareness and prioritize self-care. Let's tackle stress together! 💚 #StressAwarenessMonth #SelfCare #MentalHealthMatters
Join us at the Annual Symposium for New Family Welcome: We are Stronger Together! Come ready to connect, learn, and embark on this path together. ow.ly/erzW50R25S5 #CHB24 #BTogether #annualsymposium
Attention Women and Girl Bleeders all over the USA! Please share with us your Favorite Hematologist and Success Story from Diagnosis to Treatment! #womenbleeders #femalebleeders #hematologists
The Hemophilia B Men’s Education & Empowerment Programs are an outstanding success for men with hemophilia B, fathers of children with hemophilia, and spouses! Apply today: hemob.org/upcoming-events #hemob #mensseminar #bleedingdisorders #education #hemophilia
We are honored to receive such a powerful testimony, not only from the families we serve, but also from our partners who deliver our educational programs! #gratitude #testimony #hemob #community
Our three scholarships are now open! This year, all three scholarships will have the same due date: July 15, 2024! More info on the website: ow.ly/10Nn50QAoQi #scholarships #musicscholarship #golfscholarship #academicscholarship #hemob
Brian O Mahony @Brianhemophilia
3K Followers 517 Following CEO of Irish Haemophilia Society,former President of WFH and EHC. Supporter of Kerry GAA. Interested in politics,history,advocacy, books. All opinions personal.
Michael Makris @ProfMakris
14K Followers 1K Following Emeritus Professor of Haemostasis and Thrombosis in Sheffield, UK. I tweet about thrombosis, hemophilia, COVID-19, medicine, NHS & AI. Opinions are my own.
National Bleeding Dis.. @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
Laurence Woollard @TheWoollard
1K Followers 645 Following Director @PulseInSync | Stalwart advocate for informed patient choice | MSc candidate in Health Policy @imperialcollege | 📧[email protected]
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Cathy Harrison 💙 @CathyAH1980
1K Followers 1K Following Haemophilia ANP. WFH nurses committee vice chair. Mum, wife, daughter, sister, baker, gardener, artist, forever learning. Opinions are my own.
J Roberts @JonRob08
682 Followers 693 Following Classical hematologist; hemostasis/thrombosis, hemophilia, VWD, rare bleeding disorders specialist; severe hemophilia A blood brother🩸, opinions my own
Dr Kate Khair PhD @katekhair
1K Followers 858 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
Peter Kouides MD @PKouides
2K Followers 1K Following Prof. of Medicine Univ. Rochester; Medical Director Mary Gooley Hemophilia Center; past prez THSNA;avid cyclist, family enthusiast!
BloodStream Media @BloodStrmMedia
1K Followers 457 Following Bringing education and inspiration to those living with rare and chronic diseases. 🩸
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Hemophilia Federation.. @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
haemnet @haemnet
1K Followers 363 Following Undertaking in-depth mixed methods research into the lived experience of people affected by bleeding disorders
Lynne Kinst @lynnekinst
500 Followers 1K Following Grateful recipient of grace, wife, mom, Exec Director for @hemocouncilofCA, Founder @DuranKinst - topics vary, opinions are mine.
Heme PT @lmvolland
396 Followers 610 Following Translational Health Scientist in the making, #bleedingdisorders, #painscience, #WGPPM, #impsci, lover of positivity and kindness, all views are my own
HFA @Haemophilia_Au
878 Followers 242 Following Haemophilia Foundation Australia (HFA) represents the Australian bleeding disorders community.
Sanjay Ahuja @ahujadoc
708 Followers 936 Following Professor, Hematologist at Rainbow Babies & Children's Hospital, Hemophilia/hemostasis expert Pragmatic realist
A-L @AnneLouiseCruic
33 Followers 234 Following
Chris loran @chrisloran123
8 Followers 52 Following
Jason du Preez @JasonduPreez13
670 Followers 1K Following #training #health #nutrition #sports #cars #invest #medicalrep #Easyinvester. #journey #learning Wisdom upgrade everyday. https://t.co/nV3Gyxkxuy
Hemophilia Associatio.. @Hemophiliany
16 Followers 90 Following The Hemophilia Association of New York has provided people with bleeding disorders support and aid since 1952.
Marita @marantoscano
137 Followers 1K Following Mexicana. Hematóloga pediatra. Hemostasia y trombosis. Instituto Nacional de Pediatría. CDMX. #sepuedemassiempre #esfuerzo https://t.co/vFgFR0N3N9
Carrie McCracken @MccrackenC70658
0 Followers 35 Following
الزير @kamalsalrimawy
8 Followers 58 Following
Hemophilia News Today @hemophilia_news
77 Followers 8 Following We are dedicated to sharing the latest news, research, and Hemophilia patient perspectives.
Kezt One @Keztorone01
8 Followers 26 Following
Barbie for Congress (.. @BarbieHardnHall
3K Followers 3K Following Democratic candidate for U.S. Congress, Florida District 11 Wife, mother, Rare Disease Advocate, MLD mom It's time to give FL-11 its voice back.
Scott (Sanjay) Hayes @sanjayjobs
26 Followers 65 Following Living in a world of international friends and family
Hemophilia Society Ti.. @dibhemophilia
0 Followers 16 Following
Institute for Gene Th.. @gene_therapies
2K Followers 413 Following Gene therapy is transforming how we treat diseases. But today’s healthcare system can’t realize its potential. We’re changing that.
Reuters Events Pharma @RE_Pharma
27K Followers 2K Following We find real innovators in pharma and give them a platform, raising the minimum standard for an industry that urgently needs to evolve.
Healthnika @healthnika
63 Followers 756 Following Based in Nigeria, Healthnika is a digital media #startup with a focus on #health. #News #Features #Podcasts #Videos #InternetRadio
てんどん @tendonnnno___
15 Followers 398 Following #hemophilia B 低学年息子👦🏻のための情報収集をしています / メーカークリエイティブ職 / トピックスはスポ少と教育 / 仕事趣味も含め雑多に呟きます
Moppeski @moppeski259
186 Followers 2K Following
Anita Brikman @AnitaBrikman
2K Followers 1K Following President & CEO, Plasma Protein Therapeutics Association (PPTA Global) @plasmaproteins @pptaeurope
Mimi @Mimi361432525
1 Followers 69 Following
Seshatab @seshatab22676
8 Followers 2K Following
Dethaez @Dethaez182504
122 Followers 1K Following
Hemo @hemo_hmdn06
1 Followers 12 Following
Youlianwang @YLW_raredisease
1 Followers 15 Following Youlianwang website is a mutual aid public welfare platform spontaneously created by rare disease patients and volunteers.
Thoalley @thoalley88574
128 Followers 1K Following
Faryal Munir, MD @FaryalMunir6
140 Followers 358 Following MBBS, MD, FAAP, Pediatric Hematology/Oncology Fellow, MD Anderson Cancer Center @UTHealthHouston @MDAndersonnews | Traveler, Reader, Explorer, Realist, Optimist
John Smith @john54327
40 Followers 19 Following
Rafiqul Islam @Rafiqul73508679
220 Followers 865 Following Graphics Designer & Freelancer ------ 👉 [email protected]
Maria Santaella @SantaellaMariaE
0 Followers 69 Following
Keiko_Shinozawa @KeikoShinozawa
7 Followers 51 Following
Abi @abiguler
63 Followers 1K Following
kemal bölceci @KemalBolce92429
197 Followers 2K Following kendi değişken ve sonlu evren,üzerinde değişmez ve sonsuz birşey taşımaz.
JOSÉ OVALLES FLK @elflc809
275 Followers 436 Following ME DEFINO CON UNA SOLA PALABRA: (JEVI) https://t.co/NkVkH9xsNs https://t.co/mTkUqIB5vu
Gebreamlak A Kefale @GebreamlakK
234 Followers 3K Following A health care professional work in government hospitals
Reading1000Books @Reading1000B
101 Followers 667 Following
Victor Delahanty @vdelahanty1987
55 Followers 843 Following Paciencia y Silencio virtud de los sábios.
KT @KT31115639
31 Followers 71 Following
Rosemary Monaghan @rosiemon1
1K Followers 4K Following Pharmacist | PhD | Pharmacoepidemiology | Musician | Love dogs | Views my own
Tammy Shelor-Blain @TShelorBlain
51 Followers 1K Following
WFH @wfhemophilia
7K Followers 163 Following The World Federation of Hemophilia improves and sustains care for people with inherited bleeding disorders around the world.
National Bleeding Dis.. @nbd_foundation
7K Followers 1K Following Dedicated to finding better treatments/cures for inheritable blood/bleeding disorders & preventing complications via education, advocacy, research. #WeAreNBDF
Laurence Woollard @TheWoollard
1K Followers 645 Following Director @PulseInSync | Stalwart advocate for informed patient choice | MSc candidate in Health Policy @imperialcollege | 📧[email protected]
Haemophilia Society @HaemoSocUK
5K Followers 729 Following We are a community that makes each other feel stronger every day. Membership is completely free and everyone affected by a bleeding disorder is welcome.
EHC_Haemophilia @EHC_Haemophilia
3K Followers 406 Following The European Haemophilia Consortium aims to improve the quality of life of people with haemophilia and other rare bleeding disorders throughout Europe.
ISTH @isth
15K Followers 2K Following The ISTH (nonprofit) offers a variety of educational programs & events for those who have a scientific interest in thrombosis, hemostasis & vascular biology.
Dr Kate Khair PhD @katekhair
1K Followers 858 Following Nurse, researcher, Director of Research @haemnet. Passionate about bleeding disorder care for people globally ....... and 🐘🐘🐘🐘
EAHAD @EAHADnews
3K Followers 482 Following EAHAD seeks to improve care for people with haemophilia and other bleeding disorders through research, education and multidisciplinary collaboration.
BloodStream Media @BloodStrmMedia
1K Followers 457 Following Bringing education and inspiration to those living with rare and chronic diseases. 🩸
IrishHaemophiliaSoc @HaemophiliaIRL
1K Followers 298 Following The Irish Haemophilia Society is a charity representing people living with haemophilia, von Willebrands and other inherited bleeding disorders
Hemophilia Federation.. @hemophiliafed
6K Followers 1K Following Assisting and advocating for people living with a #bleedingdisorder and their families.🩸#hemophiliafed
ASH @ASH_hematology
69K Followers 2K Following The American Society of Hematology (ASH) is the world's largest professional society concerned with the causes and treatments of blood disorders.
HFA @Haemophilia_Au
878 Followers 242 Following Haemophilia Foundation Australia (HFA) represents the Australian bleeding disorders community.
Simon Fletcher @abookclubof1
583 Followers 586 Following A bemused husband, father, christian, researcher & PhD candidate. A lover of books & a thinker of weird thoughts. You have been warned.
uniQure @uniQure_NV
3K Followers 133 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.
Hemophilia Foundation.. @HemoFoundation
873 Followers 451 Following Hemophilia Foundation of Northern California - nonprofit organization serving needs of people with hemophilia, VWD, and all other bleeding disorders
HemophiliaCouncilCA @HemoCouncilofCA
644 Followers 461 Following We promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach.
HemoWeb @HemoWeb
1K Followers 557 Following To improve the lives and well-being of the #BleedingDisorders community. #Hemophilia #Hemo #VonWillebrandDisease #VWD #BleedingDisordersAwarenessMonth #Bleeder
Shawn of the Bled �.. @shawndecker
4K Followers 991 Following HIV+ Diagnosed in 87. Authored My Pet Virus and a viral tweet. One of the first HIV+ bloggers online in 1996. Half of Shawn & Gwenn (speakers, lovers, besties)
Titan Armored @Titan__Armored
4 Followers 4 Following Bulletproof Glassboards, Bulletproof Mobile Glassboards & Custom Bullet Resistant Laminated Glass #bulletproof
Clear National Title @ClearTitleNow
30 Followers 48 Following Providing dependable and timely title insurance and title insurance and risk management services
National Virtual Teac.. @NVTAVirtual
45 Followers 60 Following NVTA was created to set a standard for teaching students virtually. We virtual educators learn how to instruct students in a virtual environment.
dlvr.it @dlvrit
77K Followers 681 Following Smart social media automation. Automatically schedule and post photos, updates and blogs to Twitter, Facebook, Instagram & more. For support: @dlvrit_support
Reviews.org @reviews_org
53K Followers 1K Following We test products and try out services so you don’t have to. Find internet: https://t.co/T1KLd9gaEu
Rocky Williams @RockyJWilliams
65 Followers 88 Following Passionate community and education outreach professional, youth camp program director, Cardinals fan.
Captain Jim's Trivia @jim_trivia
150 Followers 725 Following Captain Jim’s Trivia – The trivia that is both curiously competitive and perfect with a Cape Codder or Piña Colada, drenched in yacht rock.
Laurie Kelley @LaurieKelley2
866 Followers 73 Following Dedicated to educating people about bleeding disorders, and bringing aid and relief to families in developing countries with bleeding disorders
Intuit Mailchimp Stat.. @MailchimpStatus
34K Followers 1 Following What's up with our servers? Award Winning Support: @mailchimphelp Everything Else: @mailchimp
HemoDoc @HemoDoc
11 Followers 3 Following Dr. Michael Zolotnitsky is a severe hemophiliac, exercise fanatic focused on helping others with bleeding disorders.
Hemophilia News @hemophilianews
201 Followers 0 Following
Pfizer Inc. @pfizer
490K Followers 2K Following Breakthroughs that change patients' lives. Visit https://t.co/zipcKiG1jD to learn more. https://t.co/FPP9fmzZh6
Takeda @TakedaPharma
30K Followers 282 Following Official Twitter handle of Takeda Pharmaceutical | Better Health, Brighter Future. Read more: https://t.co/vS94jm6SBf
Danny's Dose @dannys_dose
518 Followers 2K Following Campaign to change Emergency Treatment Protocols in every state for all requiring specialized care. (501C3)
New York State Bleedi.. @nysbdorg
155 Followers 180 Following Advocating for people with bleeding disorders in New York state!
bombardierblood @bombardierblood
278 Followers 127 Following AVAILABLE NOW: https://t.co/FDYTCfW5rg | 20% of proceeds benefit @saveonelifeinc | Follow @adventurehemo’s historic attempt of #Everest! #hemophilia
Daniela's Little Wish @danilittlewish
167 Followers 452 Following I am 13 year old girl| I decorate and deliver FREE birthday cakes for kids with rare diseases since 2011| https://t.co/FRahxFSUwi
Shelby Smoak @ShelbySmoakBLDR
93 Followers 173 Following
Kate Greene, MBA @kategreene1116
919 Followers 4K Following Global health professional @abtassociates. Steering Committee member @FHWCoalition. #Hemophilia & #dyslexia mom, #SilverSpring MD booster. Views my own.
Dakota Rosenfelt, Pha.. @DRosenfelt
3K Followers 1K Following Sr MSL. Bleeding Disorders Advocate. TEDx Speaker. Created HemoTool. *All opinions mine, represent no org*
Bhupendrasinh @cpbhalu66
16 Followers 305 Following
Danielle Flores @danielleaflores
201 Followers 221 Following
BloodFeed @thebloodfeed
243 Followers 98 Following Stay organized, stay sane, stay healthy! #bleedingdisorders #hemophilia #vwd
Belén del Río Lanza @abdelriolanza
357 Followers 1K Following Profesora marketing Universidad de Oviedo. Ilusionada por combinar Sanidad Pública + eSalud + Marketing = POR y CON el paciente. Viviendo con hemofilia.
HireLifeScience.com @HireLifeScience
2K Followers 2K Following Pharmaceutical, Biotech, Medical Device & Life Science Jobs & HR Network #LifeScience #Pharma #Biotech #Device #Clinical #Careers #Jobs
MorecambeBayNHSTrust @UHMBT
15K Followers 7K Following This account is monitored by the UHMBT Communications team Mon-Fri 9am-5pm. Got a patient related query? Contact Patient Relations on 01539 716621. #TeamUHMBT
SaintAnthonyHospital @SaintAnthonyHos
550 Followers 561 Following Saint Anthony Hospital is an independent, nonprofit, faith-based, acute care, community hospital serving the West and Southwest sides of Chicago.
World Health Innovati.. @WHIS2020
9K Followers 12K Following World Health Innovation Summit platform Mission Empower people to manage their own health and wellbeing Vision To deliver health for all #WHIS
PerformSpecialty @PerformSP
240 Followers 243 Following PerformSpecialty, LLC is a full-service specialty pharmacy dedicated to providing complete pharmaceutical care management.
Geneviève Leclerc @Gena_L
933 Followers 792 Following Dedicated to innovation, impact and value creation for all stakeholders of the association meetings industry. ❤️ sailing, good food & wine, playing outdoors.
Joanna Nightingale @heyjo2012
494 Followers 440 Following Science and workforce lead. Office of the Chief Scientific Officer, NHSE&I. biomedical scientist, coach, Passionate about health care science. All views my own.
Propper Manufacturing.. @PropperMfg
324 Followers 450 Following Propper Manufacturing Company: Empowering Healthcare Excellence with Quality Disposable and Reusable Medical Devices (718) 392-6650 - [email protected]
Prahar Trivedi @prahartrivedi
133 Followers 743 Following
Dimitris Skempes, MPH.. @dskempes
653 Followers 2K Following Postdoctoral Researcher @ICED_LSHTM | member @physagenet @EU_netwOArk | @snsf_ch grantee
Emerald @EmeraldADo
220 Followers 1K Following
ANGEL MORENO @ANGELMORENOH
153 Followers 1K Following
Margaret Angel @margitangyal
691 Followers 5K Following From chem-biochem to med to hem to TM 👩⚕️/ ♥️ learning,🐕, 👩🍳,👟,🧘,🤿, ASL, & more
KsenijaPolla @KsenijaPolla
999 Followers 786 Following Mother of twins, Association Executive, passionate about meetings, food, wine, books and movies. All views and comments expressed are my own.
BSCAH @BSCAH1
2K Followers 4K Following British Society of Clinical & Academic Hypnosis Reg Charity All Members HCP’s We teach colleagues how to use medical hypnosis adjunctively in clinical settings.
Medicare First @MedicareFirst
150 Followers 192 Following We are a leading social work & allied health recruitment agency.
Katimavik @Katimavik
3K Followers 5K Following Transforming individuals, enriching communities and building a better Canada. Transformer les individus, enrichir les communautés, bâtir un Canada meilleur.
Lokesh Goyal @digmod
303 Followers 434 Following Technology enthusiast and Teacher by Profession.. And a hemophilic.
Ber Lin @BerHldlife
269 Followers 1K Following
Carlos Marvez @silverado58
1K Followers 3K Following Democrata 100% . Llanero . Y de los TIBURONES DE LA GUAIRA ..
Hematonews @hematonews
1K Followers 3K Following Hematología, Medicina, Salud, Noticias, arte, cultura, literatura, novela, gadgets,cine, musica, France
I received this great news today. I was nominated by my professor Dr. Smith. I feel excited as being my 2nd. year as virtual teacher, I’ve been able to create amazing experiences for my students. @AndreaHonigsfel @scibri @SimpleK12 @ncties
Of those enrolled in Community Voices in Research, only 6% identify as Black/African American. As part of this group, your lived experiences are important to shape the future of research. Share your voice! Click the link to learn more bit.ly/3H4tINv
Conozca los programas de la NHF. hemophilia.org/sites/default/…
Takeda announces approval of prophylactic indication for VWD therapy. Read more: hemophilia.org/news/takeda-an…
Registration for #NHF2022 is officially OPEN! Sign up by March 11 to take advantage of early-bird admission! bit.ly/3KYDOSJ
This afternoon: Applications of Gene Editing in Medical Science bit.ly/3fTTYhU
New in HemAware: What You Should Know About Ministrokes hemaware.org/mind-body/what…
Travel grant applications for the NHF 2022 Bleeding Disorder Conference in Houston, Texas are now open! Applications will be open through March 6th. Apply here bit.ly/3gd0pwG
As we celebrate the beginning of Black History Month, NHF looks to the lived experiences in community. Of ppl enrolled in Community Voices in Research, only 6% identify as Black/African American. Your experiences are important in shaping future research. bit.ly/3L2RFr1
📣Calling all families! We have incredible sessions for you too! From learning to build your own volcano and creating at-home terrariums to making origami and learning card tricks. ow.ly/wIgP50G8NPj #betogether #hybridsymposium #hemobevents
@EFAFreelancers Monday, because that gives me the whole weekend to finish up without interruptions from clients.
@CoalitionHemoB B - it’s the 30th anniversary this year!
Did you know there are 300 million people living with a rare disease worldwide? As we get ready for #RareDiseaseDay, take this chance to learn more about #bleedingdisorders and the worldwide estimates for prevalence of #hemophilia here: ow.ly/ycpD50DAAPY
@SquarespaceHelp I can't access any of the five websites in my account (mine and my clients')! I get this page for each one. Your status page says everything is operational.
If you have a bleeding disorder and the correct prophylaxis plan, you are blessed! That means that you will able to live a better life with your disease. Treat yourself, care for yourself. Infuse! #bleedingdisorders #vwd #vonwillebrand #nhf #hemophilia #hfa #hemob #factor7 #hemo
Joining @CoalitionHemoB for the 2020 virtual Symposium. Wish we were in person but better than nothing.
Joining @CoalitionHemoB for the 2020 virtual Symposium. Wish we were in person but better than nothing.
Awesome turnout, incredible feedback...and the session’s 1/2 way thru. 🙌🏽
Join us tonight for an immersive journey through the lives of five members of the U.S. bleeding disorders community, as we watch Let's Talk Mental Health. Starts at 7 pm
@CoalitionHemoB Thanks to everyone from @CoalitionHemoB who came to LetsTalkMH.com tonight! Awesome turnout, great energy, powerful comments. Keep talking and working your way toward tool that'll help YOU. MentalHealthMattersToo.com can help!
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