Rare Diseases India @rarediseasesind
A public awareness initiative by Sanofi (Specialty Care) India on #RareDisease issues. For India residents only. #EveryLifeIsPrecious https://t.co/YH80r3SUFk sanofi.in/en/about-us/em… India Joined June 2017-
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Arvind was already used to living with heat intolerance, joint pain & exhaustion as a child. He was used to living with #FabryDisease. April is #FabryAwarenessMonth & is our opportunity to spread awareness, as #Fabry is hugely underdiagnosed in India. linkedin.com/posts/sanofi_d…
Early diagnosis and timely treatment can significantly improve the quality of life #raredisease #rarediseaseday #rarediseaseawareness #BharatKeLiye
Early diagnosis and timely treatment can significantly improve the quality of life #raredisease #rarediseaseday #rarediseaseawareness #BharatKeLiye
On World #RareDiseaseDay today, the need for equity permeates those living with RDs (Rare Diseases) the most. With the broadest & widest portfolio of our RD therapies, we're driven by #EquityInInnovation to make our medicines available in India. @OPPIIndia linkedin.com/posts/sanofi_t…
Millions with #RareDiseases go unnoticed for their needs. ~96mn live in India. By creating registries, building capacity like fellowship programs, setting up Centres of Excellence, we're committed to #EquityInSupport. Learn more. linkedin.com/posts/sanofi_d… @OPPIIndia @anilraina1969
As we lead up to the commemoration of #RareDiseaseDay (29th February), watch Alka's story to see how #EquityinAccess can transform the lives of those living with these debilitating disorders. Read more here: linkedin.com/posts/sanofi_w… @IndiaSanofi @OPPIIndia @anilraina1969
While there is no cure for #MultipleSclerosis (MS), existing treatment options can help slow its progression. On #WorldMSDay today, see Avantika's story to know how much there is to be done still, to help improve the lives of those living with MS. linkedin.com/posts/sanofi_a…
On #MPSAwarenessDay today, we celebrate 20-years of the 1st #EnzymeReplacementTherapy for #MPS I – over two decades of producing a definitive treatment for this disorder, which is the only therapy for MPS I as on date. See how it transformed Akash's life. linkedin.com/posts/sanofi_a…
#MPSAwarenessDay is approaching. It spreads awareness of #Mucopolysaccharidosis (MPS), a genetic #lysosomalstoragedisorder caused by the body’s inability to produce a specific enzyme. The journey to its diagnosis is difficult, so let’s cut to the chase. linkedin.com/posts/sanofi_l…
On #InternationalPompeDay we stand by those courageous people who tell us their stories of living with Pompe, to help shape the way the world sees this disorder! Early diagnosis & timely treatment can make a huge difference in their lives. See 1 such story linkedin.com/posts/sanofi_m…
April is Pomp Awareness Month: It is a rare, progressive illness that shares symptoms with other neuromuscular conditions. Because of this, delays in diagnosis are common. Increasing awareness & education on #Pompe disease is vital to accelerate diagnosis. linkedin.com/posts/sanofi_p…
April is #FabryAwarenessMonth, a hugely underdiagnosed disease in India. See how Dr. Arvind battled #Fabry & how early diagnosis and timely treatment can help. Read more here: sanofi.in/en/about-us/em… See Dr. Arvind's story: linkedin.com/posts/sanofi_d…
#RareDiseaseDay matters! RDs are life-threatening & require long-term, specialized mngt. Working with key decision makers, policy shapers & opinion leaders have set wheels-in-motion; but a 'Roar for Rare' is needed to make them a public health priority. sanofi.in/en/about-us/em…
Awareness of rare diseases needs improvement as is the diagnosis. This is true for all states and truer for NE states. Supplementing with the Centre's efforts, #ASSOCHAM is deliberating among experts to set out the way forward. #healthcare #health #raredisease #NPRD
This month, Sanofi Specialty Care celebrates over 30-yrs of treating #GaucherDisease. We stand together with the rare global community to commemorate 3 decades of brining hope to the lives of many; to reflect and recognize this important milestone. linkedin.com/posts/sanofi_a…
"Prajwal now lives a happy and healthy life" – Vanitha Over 3 decades since we launched the 1st Enzyme Replacement Therapy for #Gaucher. Over 30 years of existence of our Humanitarian initiative. Countless moments of feeling proud of being a Sanofian. linkedin.com/posts/sanofi_p…
"I live a normal life!" - Deepesh Over 3 decades back since @sanofi's 1st treatment for #Gaucher was approved by the USFDA in 1991, it has been years of tireless efforts to ensure we provide standard of care treatments to people with #GaucherDisease. linkedin.com/posts/sanofi_i…
Today is #InternationalMPSAwarenessDay. The journey to an MPS diagnosis is long & complex. The sooner we all #ChaseTheSigns, the faster we help people with MPS. Today, let’s cut to the chase. You too, can identify MPS & help in early diagnosis & timely treatment.
#ChaseTheSigns to diagnose MPS soon! In the race between symptom progression & diagnosis, there’s not a moment to lose. Help more MPS patients Cut to the Chase and Chase the Signs of MPS. See Lavanya’s story on conquering MPS I. #InternationalMPSDay #EveryLifeIsPrecious #15April
Cure SMA Foundation o.. @curesmaindia
2K Followers 618 Following Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
ORDIndia @ORDIndia
1K Followers 986 Following National rare disease advocacy, 24/7 patients hotline, engage Hospitals, Physicians, Pharma/Biotech/Dx industry, Orphan drugs act for India, Global Alliances
Vinod Scaria @vinodscaria
11K Followers 4K Following Scientist | Former Doctor | Passionate about Genomics in Clinical Medicine #Genomics4Everyone | Occassional #MysteryDisease tracker | Views are personal
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Prasanna Shirol @Prasannashirol
820 Followers 414 Following #WhoAfterMe #icareforrare 16yrs Rare Diseases Advocacy, Rare Champion of HOPE 2019,ASHOKA fellow, Father of first Pompe patient in India.24yr RD,Inclusivity,
IndoUSrare @indousrare
804 Followers 1K Following IndoUSrare is a non-profit public charity organization based in the US, which addresses the unmet needs of diverse patients with rare diseases globally.
Anil Raina @anilraina1969
422 Followers 651 Following Rare disease fighter & survivor | ‘Techie’ turned ’Healthcare Professional’ | Atheist | Intrepid | Views personal
yoni יוני @Primary_Immune
41K Followers 27K Following Human being. Jew. Israeli. Primary Immunodeficiency patient. הודו לה׳ כי טוב כי לעולם חסדו #Immunology #raredisease #ISRAEL
Avantika Shrivastava @avshrivas
459 Followers 933 Following Strategic communications for social impact. Fmr Uni of Edinburgh scholar. Tweets on Rare Diseases, Disability, Welfare/Public Policy in India. Views personal.
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
Multiple Sclerosis So.. @mssocietyindia
850 Followers 153 Following Ensuring that people affected with Multiple Sclerosis (MS) in India can continue to live life to the fullest. Affiliated to @MSIntFederation
Vasundhara Raghavan @Vasuragh
2K Followers 2K Following Advocacy - kidney patients welfare. Member- National Oversight Committee (NatCom) for National Dialysis Programme_ 25.10.2019. Ambassador of AAKP since Feb.2020
Harsha K Rajasimha @Harsharajasimha
1K Followers 2K Following #Entrepreneur #RareDiseases #orphandrugs #decentralizedtrials #PrecisionMedicine #AI #clinicalTrials #Digitalhealth #RWE #clinicalresearch opinions my own
EllaAldington @FUI2391g4Si503
9 Followers 357 Following
vcjdaecj8m @g2dneqsr9qwijp
20 Followers 1K Following We first transfer USDT to you TRC20, you return 90% to BEP20, you get 10% , 2K per day Our co hv a large amt of USDT need to from TRC20 convert to BEP20 network
JudithHume @5ESoZwFaN70v58k
3 Followers 337 Following
1yuz7tx06sg @5awt6cynp0gd0
3 Followers 218 Following If you want to make friends, you can contact me anytime TG：https://t.co/TkBy1A1zo8
Vinay Kalluri @imvinaykalluri
30 Followers 216 Following Selectively Social☺️, F1 Enthusiast!! Coffee Lover!! Opinions are my own and not the views of my employer or government!!
Varsha Rajesh @VarshaRajesh11
34 Followers 192 Following
Anusha Ashwin @ashwin_anusha
357 Followers 3K Following WFH Content Expert - Life Sciences, Healthcare & New-Age Tech I Agri-tech I Karkinos Healthcare - Redefining India's Cancer Care I BioSpectrum l Mom at her best
A @UserNumber2107
30 Followers 149 Following
infectious diseases 2.. @Diseases2024
292 Followers 2K Following We are happy to welcome you to the official website of 2nd Global Meet on Infectious congress on March 12, 2024 as a Webinar.
CRISPRKing @CRISPRKING
747 Followers 4K Following Editing genes, one CRISPR at a time. The future is not written; it's engineered. Builder personality.
Vachas @vachasamrita
135 Followers 254 Following #LupusAdvocacy CoFounder @lupusindia Constant attempt to optimise time cause of Lupus
Vedika Pharmaceutical.. @Vedika_Pharma
2 Followers 19 Following we're dealing with Chronic Therapy medicine. Rare diseases, HIV HEPATITIS CANCER NEPHROLOGY UROLOGY RHUMATOLOGY etc contact us [email protected]
Ari Araya @aarayam25
0 Followers 14 Following
Sujatha @sujatha21
3K Followers 1K Following An Indian. Born a princess, now a storyteller. A conversationalist. An empath. A dreamer. A writer.
Leah 💬 @Leah005788
221 Followers 503 Following Conservative with a rare Vasculitis called Behçet’s. I finally tried Twitter, since it’s no longer being run by those truth-squashing Leftists! 🚫DM’s Thnx!
bharathmdfoundation @bharathmdfound1
263 Followers 1K Following A Parent Advocacy Organisation of Muscular Dystrophy. NGO under Sec 8 of MCA 2013. Awareness, Approach , Assistance,Prevention, Management and Cure.
inam ul rehman @inamulrehman
354 Followers 132 Following a failed journalist. dream: a world free of borders.
Rupsa Chakraborty @RupsaChak
6K Followers 1K Following Journalist @IndianExpress | Winner Ramnath Goenka, The Statesman Rural Award, Laadli | Fellow @DartCenter @MSF @NatPress | Health, Gender, Rural, Science | 🐾
priyanshi chauhan @priyans34093045
1 Followers 30 Following
McTeshe @mc_teshe62606
90 Followers 817 Following
Rare-X @RareX_2024
114 Followers 345 Following Rare-X 2024, Africa's leading conference on rare disease treatment and access, will be taking place at Indaba Hotel, Johannesburg from 14-17 February 2024
Shettesi @Shettesi131570
56 Followers 607 Following
Sesmyski @sesmyski96198
59 Followers 879 Following
MedUniverse @MedUniverseAB
762 Followers 1K Following The HCP Engagement Platform dedicated to improving interactions between pharmaceutical companies and HCPs through interactive patient cases.
MICHAEL BENJAMIN DEFI.. @MichaelDeFiore6
859 Followers 4K Following 31 married I am chronically ill I suffer from a chronic illness please consider subscribing to my new YouTube channel https://t.co/7sLcl1eYqC
Rosa HP Sca @ro_sca26
416 Followers 2K Following Postdoc'ing @WUSTLcellbio 👩🏻🔬 Rare musculoskeletal diseases & ion channels 🔬 Bookworm and avocaddicted 📍🇺🇸 | 🇮🇹
Bloom Bharat @BharatBloom
54 Followers 2K Following random became complex n conscious now searching for meaning
Ali Al-Tameemi @AliAlTameemi20
19 Followers 315 Following Everything I knew that I don’t know anything..
Harsh Sheth @professor_gene
1K Followers 1K Following Husband | Son | Brother | Uncle | Scientist | Geek | Martial artist | Homo sapien | Tweeting in personal capacity | Assistant Professor at #FRIGE
Sanjay Modi @SanjayModi35294
2 Followers 39 Following
Stephani Guerrero @StefluGA
10 Followers 167 Following
DJ ACE @DJCSE7
79 Followers 490 Following Computer Science student passionate about art, lit, tech, data science, and politics. Exploring tech-society intersection through code and creativity. #coding
Arif Iqbal Ahamad Kha.. @ArifIqbal1804
0 Followers 8 Following
sowmya s @sowmyas29314879
0 Followers 3 Following
vishal yadav @vishaly44760377
2 Followers 328 Following
Rashmi Nair @Rashmi2482
150 Followers 218 Following 'Being happy never goes out of style.' A happy soul. A proud mom. An optimist all the way. PR & comms @VZIndia. Views/Opinions are my own
AEEPompe - Asociació.. @AEEPompe
304 Followers 394 Following Queremos ayudar a que la Enfermedad de Pompe se entienda más y mejor. Y apoyar a los enfermos de Pompe. ¡Hemos hecho mucho, queda mucho por hacer!
Tulips forever @nuzhatara78
0 Followers 3 Following
Supriya Vartak @VartakSupriya
620 Followers 1K Following Genome biologist | Post-doc @NIH_NIAMS @NIH 🇺🇸 | studying #generegulation | MS-PhD alum @iiscbangalore 🇮🇳 | views my own, she/her
Atul Kadam @atulkadam4u
164 Followers 1K Following Academician Pharmacy Researcher Freelancer open to work as consultant advisor trainings speaker
Tajamul Islam khan @khtajamul
15 Followers 517 Following
Cripples Unite @UniteCrips
14 Followers 397 Following
Sunitha Rao R @sunitha_rao
4K Followers 4K Following Senior Editor-@happiesthealth1 @HappiestMinds | Earlier with @Timesofindia, @DNA
RareDiseasesGreece @RareDiseasesGr
116 Followers 174 Following "#RareDiseases Greece" is the Greek RD Federation dedicated to improving the quality of life of all those affected by rare disorders | #ΣπάνιεςΠαθήσεις #Υγεία
ORDIndia @ORDIndia
1K Followers 986 Following National rare disease advocacy, 24/7 patients hotline, engage Hospitals, Physicians, Pharma/Biotech/Dx industry, Orphan drugs act for India, Global Alliances
Prasanna Shirol @Prasannashirol
820 Followers 414 Following #WhoAfterMe #icareforrare 16yrs Rare Diseases Advocacy, Rare Champion of HOPE 2019,ASHOKA fellow, Father of first Pompe patient in India.24yr RD,Inclusivity,
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
yoni יוני @Primary_Immune
41K Followers 27K Following Human being. Jew. Israeli. Primary Immunodeficiency patient. הודו לה׳ כי טוב כי לעולם חסדו #Immunology #raredisease #ISRAEL
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
Kiran Mazumdar-Shaw @kiranshaw
1.6M Followers 699 Following Executive Chairperson of Biocon Limited - Asia’s leading Biopharmaceuticals enterprise. A global influencer and proud recipient of Padma Shri & Padma Bhushan.
Cambridge Rare Diseas.. @camraredisease
8K Followers 7K Following Improving #RareDisease lives. Creators of #RAREfest, #RAREsummit, Companies Forum & #UniqueFeetCam https://t.co/bWJ8DVF9iw
Harsha K Rajasimha @Harsharajasimha
1K Followers 2K Following #Entrepreneur #RareDiseases #orphandrugs #decentralizedtrials #PrecisionMedicine #AI #clinicalTrials #Digitalhealth #RWE #clinicalresearch opinions my own
Dr. Ranjana Kumari @ranjanakumari
461K Followers 1K Following Director @CSR_India | Chairperson @WPC | Online Safety & Gender Policy Expert | Women's Rights Advocate | Ex Official United Nations | Author of 9 books
International Gaucher.. @IGAgaucher
461 Followers 205 Following The IGA represents the interests of Gaucher patients and non-profit Gaucher patient groups worldwide. Find us on Threads: https://t.co/Fv7UMsqkyv
Abhishek Anagha Sawan.. @abhisaw86
129 Followers 464 Following Proud Indian, Hindu by Heart, Maratha by region and HR by Profession.
Sneha Koshy @SnehaMKoshy
15K Followers 533 Following Journalist. Currently News Editor & Anchor at Mirror Now. Ex-NDTV. Always a reporter at heart and a people's person.
Sujat Ambedkar @Sujat_Ambedkar
32K Followers 727 Following Learning the science of politics, resistance & assertion with @VBAforIndia; interests-strategy, communication. Alumnus @RoyalHolloway, @ACJIndia, @FergussonPune
Sanofi India @IndiaSanofi
4K Followers 53 Following Sanofi is a global biopharmaceutical co. in India since 1956, committed to improving access to healthcare & supporting people throughout their health journey.
Dr Kuldeep Singh @drkuldeep
1K Followers 555 Following Ex-Dean Academics | Prof &Head, Pediatrics| Public Health |Area of interest- Medical Education & Innovation | Child Health | Medical Genetics |Rare Diseases
Prof Harish K Pemde @harishpemde
1K Followers 1K Following Director Professor of Pediatrics LHMC Delhi In-Charge Center for Adolescent Health
shahid akhter @shahid_akhter
117 Followers 52 Following
PriyankaPulla @PriyankaPulla
27K Followers 577 Following Journalist, freelance. Tweets are often opinion and sarcasm, not journalism. Highly skilled at monotasking. https://t.co/6yZC8zHngA
Dr. C P Thakur @Drcpthakurbjp
107 Followers 3 Following A former Union minister in the Government of India, a physician a leader and Karyakarta of Bharatiya Janata Party.
daktre/ಡಾಕ್�.. @prashanthns
4K Followers 4K Following Personal a/c|ಕನ್ನಡಿಗ|Dad|Dr|Health policy & systems|Adivasi health|Critical realist|birder|baker|half-marathoner|HAM VU2JWD| broadcast at https://t.co/zhhlJx7xF9
dattu143dattu @dattu143dattu1
51 Followers 721 Following
Dr Dinesh Arora @drdineshias
23K Followers 1K Following MBBS,MA (Eco),MPH, Pursuing DrPH@Johns Hopkins, IAS,Ex-Secretary Govt of Kerala, Dy CEO Ayushman Bharat, Director NITI AAYOG, MD NHM/KMSCL Kerala, Chevener@LSE
Ch. Kanwar Singh Tanw.. @kstanwarmp
4K Followers 114 Following Former Member of Parliament (2014-2019) from Amroha, Uttar Pradesh Constituency @bjp4india
Dr Shrikant Lata Ekna.. @DrSEShinde
134K Followers 135 Following Member of Parliament, Kalyan Loksabha, Maharashtra, India
युवा बि�.. @iChiragPaswan
862K Followers 117 Following National President Lok Janshakti Party and Member of Parliament ( LS ) Jamui Bihar. Views are personal.
Dr. Mahendra Nath Pan.. @DrMNPandeyMP
480K Followers 696 Following मंत्री, भारी उद्योग मंत्रालय, भारत सरकार, Minister for Heavy Industries, Govt. of India. सांसद - लोकसभा चन्दौली, MP - Lok Sabha Chandauli.
Sampatiya Uikey (Modi.. @SampatiyaUikey
6K Followers 153 Following कैबिनेट मंत्री, मध्यप्रदेश. विधायक-मण्डला
Thangso Baite @ThangsoBaite
75 Followers 0 Following Lok Sabha MP from Outer Manipur. Indian National Congress (INC)
Dr. C.P. Joshi @drcpjoshi
582K Followers 56 Following || Ex Speaker, Rajasthan Legislative Assembly || Ex MLA Nathdwara , Rajasthan ||
k somaprasad @KSomaprasad
17 Followers 0 Following
Dr Santanu Sen @DrSantanuSen1
194 Followers 151 Following
Jairam Ramesh @Jairam_Ramesh
399K Followers 84 Following Member of Parliament| General Secretary in-charge Communications, Indian National Congress| #GintiKaro #BhartiBharosa #PehliNaukriPakki #KisaanMSPGuarantee
Dr Vikas Mahatme (Mod.. @MPvikasmahatme
5K Followers 231 Following Former Member of Parliament (Rajya Sabha) @BJP | #PadmaShriAward Recipient Eye Specialist | Founder of Mahatme Eye Bank & Eye Hospital
Dr. Sanjay Jaiswal (M.. @sanjayjaiswalMP
173K Followers 55 Following Chairperson - Estimate Committee | MP(LS) I Former State President - @BJP4Bihar l Former Chairperson - Parliamentary Standing committee on Water Resources
Nitin Mirani @nitinmirani
4K Followers 2K Following International Stand up Comedian , Actor & Founder of KOMIC SUTRA - Laugh and Let Laugh
Aravind Limbavali (Mo.. @ArvindLBJP
83K Followers 375 Following Former Minister Govt of Karnataka https://t.co/HQJ0jqYfK0
Dr ANBUMANI RAMADOSS @draramadoss
445K Followers 1 Following நாடாளுமன்ற உறுப்பினர், தலைவர், பாட்டாளி மக்கள் கட்சி, இந்திய நலவாழ்வுத்துறை மேனாள் அமைச்சர். MP-Rajya Sabha, President-PMK, Former Union Minister for Health.
Harsimrat Kaur Badal @HarsimratBadal_
273K Followers 8 Following Former Union Cabinet Minister of Food Processing in the Govt of India | Current MP - Bathinda | Shiromani Akali Dal | Patron Nanhi Chhaan
Maneka Sanjay Gandhi @Manekagandhibjp
260K Followers 109 Following Member of Parliament (LS), Sultanpur. Author. Environmentalist. Animal Rights Activist. Founder & Chairperson: People for Animals. SOS: [email protected]
Ashok Gehlot @ashokgehlot51
5.0M Followers 117 Following Former Chief Minister of Rajasthan, MLA from Sardarpura.
Mukhtar Abbas Naqvi @naqvimukhtar
1.3M Followers 652 Following मुख़्तार अब्बास नक़वी, पूर्व कैबिनेट मंत्री, भारत सरकार Mukhtar Abbas Naqvi, Former Cabinet Minister GOI🇮🇳,Ex national General Secretary BJP
Bali Bhagat @balibhagat_1
3K Followers 79 Following BJP| Former Minister(Health & Med Edu)Social Welfare,(Forest, Ecology & Environment)J&K Retweet doesn’t mean endorsements
Satyendar Jain @SatyendarJain
273K Followers 123 Following Minister of Health, Home, Power,PWD, Industries,Urban Development & Flood and Irrigation and Water. Govt of Delhi. MLA from Shakurbasti
Mangal Pandey (Modi K.. @mangalpandeybjp
500K Followers 314 Following Health and Agriculture Minister, Govt. Of Bihar, Incharge @BJP4Bengal, Ex - State President BJP BIHAR, MLC
Sidharth Nath Singh (.. @SidharthNSingh
519K Followers 644 Following Former Cabinet Minister l MLA City West Prayagraj Instagram: @sidharthnsingh
Tej Pratap Yadav @TejYadav14
1.7M Followers 23 Following Ex. Minister of Environment, Forest and Climate Change, Bihar Government.
Anil Vij Ex - Home Mi.. @anilvijminister
859K Followers 154 Following Ex - Home and Health Minister Haryana, India ( मोदी का परिवार )
VishwajitRane (मो.. @visrane
34K Followers 951 Following Minister for Health, TCP, Forest, Urban Development, Women & Child Development | MLA - Valpoi | Government of Goa
Dr. Mahendra Singh (M.. @bjpdrmahendra
422K Followers 468 Following Members of Legislative Council (MLC) |Ex. Minister of Jal Shakti Uttar Pradesh | Ex. National Secretary of BJP | Ex Incharge of BJP ASSAM (2014-2020)
Bhooshan Shukla @docbhooshan
25K Followers 2K Following Psychiatrist (Child & Adolescent). Preventing Child Sex Abuse since 2000. Member @rcpsych Parenting. Mental Health. Healthcare.
DrAnujGupta (#ModiKaP.. @DrAnujGupta_
569 Followers 503 Following MGHL (SBS), 2022 class, Oxford. Healthcare analyst. an Investor. a Doctor. a critic. #ProudIndian . I speak my mind!!
Dr Saleem Rehman @SaleemRehman01
4K Followers 210 Following Ex Director General, Health & Family Welfare
Dr Suresh K Rathi,.. @drsjrathi
821 Followers 2K Following Principal, Management Department and Deputy Director - Research, Sumandeep Vidyapeeth University - Vadodara. (Epidemiologist and Public Health Specialist)
Gunasekar C Rajaratna.. @crguna1
51K Followers 23K Following Wish India to be a million rural/urban settlements connected by a global knowledge network each working towards local self sufficiency for every need and SwarajEarly diagnosis and timely treatment can significantly improve the quality of life #raredisease #rarediseaseday #rarediseaseawareness #BharatKeLiye
On World #RareDiseaseDay today, the need for equity permeates those living with RDs (Rare Diseases) the most. With the broadest & widest portfolio of our RD therapies, we're driven by #EquityInInnovation to make our medicines available in India. @OPPIIndia linkedin.com/posts/sanofi_t…
Early diagnosis and timely treatment can significantly improve the quality of life #raredisease #rarediseaseday #rarediseaseawareness #BharatKeLiye
Millions with #RareDiseases go unnoticed for their needs. ~96mn live in India. By creating registries, building capacity like fellowship programs, setting up Centres of Excellence, we're committed to #EquityInSupport. Learn more. linkedin.com/posts/sanofi_d… @OPPIIndia @anilraina1969
While science is bringing newer possibilities for people living with #RareDisease wish availability, accessibility and affordablilty becomes a reality soon. Also salute to patient organisations who have been putting relentless support in education and awareness
Awareness of rare diseases needs improvement as is the diagnosis. This is true for all states and truer for NE states. Supplementing with the Centre's efforts, #ASSOCHAM is deliberating among experts to set out the way forward. #healthcare #health #raredisease #NPRD
A robust approach backed by compassion is needed to save the lives of children and other patients of rare diseases. Do read my article - ‘Why rare diseases in India require robust government support to save patients’ lives’ in The Financial Express. bit.ly/3gwhbHr
Recently, I’ve known about several families struggling to seek medical aid to save their kids with #RareDiseases Incredibly painful for parents to know there’s a way but be unable to help On Rare Disease Day, urge @MoHFW_INDIA to make treatment accessible #EveryLifeIsPrecious
Patients diagnosed with #RareDiseases need love and care, and support from @MoHFW_INDIA for early treatment, as is being done by many other countries #EveryLifeIsPrecious #RareDiseaseDay2021
Patients diagnosed with #RareDiseases need love and care, and support from @MoHFW_INDIA for early treatment, as is being done by many other countries #EveryLifeIsPrecious
Patients diagnosed with #RareDiseases need love and care, and support from @MoHFW_INDIA for early treatment, as is being done by many other countries #EveryLifeIsPrecious
@rarediseasesind @MoHFW_INDIA @PMOIndia @drharshvardhan @WHO @UNICEFIndia @AyushmanNHA This issue needs to be taken care of, a fair demand.
@rarediseasesind @MoHFW_INDIA @PMOIndia @drharshvardhan @WHO @UNICEFIndia @AyushmanNHA Right to Life is sacrosanct
@rarediseasesind @MoHFW_INDIA @PMOIndia @drharshvardhan @WHO @UNICEFIndia @AyushmanNHA High time. This should be a priority
Persons with Disabilities are three times as unlikely to receive health care @DwDAoC @socialpwds @rarediseasesind @Disaboom @DHorizons @drag_org @DisabilityIndia @WHOdisability @MoHFW_INDIA @MSJEGOI
Supreme Court's decision brings relief and parents await news from state health dept. Court ruling raises hopes of parents with children suffering from LSD: thg.page.link/LcAkHX3S621hhQ… @THChennai @the_hindu
Timely diagnosis can goa long way in saving lives. Support this movement for rare diseases and make it count coz #EveryLifeIsPrecious
Rare Diseases such as #Gaucher, if diagnosed timely, can be treated. With regular Infusion Therapy, patients can lead a near-normal life. Dr Shruti Kumar from @SGRRUOFFICIAL talks about the need for timely diagnosis for treatment of #Gaucher patients. #EveryLifeIsPrecious
@rarediseasesind @MoHFW_INDIA @drharshvardhan @LSDSS #RareDiseases patients like Shreya need support for diagnosis, treatment @ArvindKejriwal @SatyendarJain. Will @CMODelhi provide clear funding for #Group3 disorders #EveryLifeIsPrecious
Dr Sheela Nampoothiri, geneticist @AmritaHospitals explains why a national #policy on #RareDiseases is a must #EveryLifeIsPrecious @rarediseasesind @drharshvardhan @MoHFW_INDIA
#FoodForThought #EveryLifeIsPrecious
Infusion therapy has come a long way in treating #Gaucher patients and helping them lead a normal life. Read the story of 17-year-old Sangeeta from Chennai and how infusion therapy has been a lifesaver for her even after late diagnosis and treatment. #EveryLifeIsPrecious
Patients battling with #Gaucher could do with some support. Hope the National Policy on #RareDiseases with funding assistance for #Group3 disorders in #India is finalised soon. @rarediseasesind #EveryLifeIsPrecious
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