Search results for #Fabry
@RNAiAnalyst @JohnIII39374266 - #hemA is exclusively in the hands of $PFE (yesterday's approval of Fidanacogene Elaparvovec for #HemB demonstrates Pfizer commitment to #genetherapy and #Hemophilia)! $SGMO is in negotiations to sell/partner #Fabry - but for a fair price not as a free giveaway ...
📣La Comisión Interministerial de Precios de los Medicamentos #CIPM @sanidadgob acuerda financiar: 💉#Elfabrio (#pegunigalsidasa alfa) para la enfermedad de #Fabry 💉#Xenpozyme H (#olipudasa alfa) para manifestaciones no neurologicas del déficit de esfingomielinasa ácida #ASMD
📣La Comisión Interministerial de Precios de los Medicamentos #CIPM @sanidadgob acuerda financiar: 💉#Elfabrio (#pegunigalsidasa alfa) para la enfermedad de #Fabry 💉#Xenpozyme H (#olipudasa alfa) para manifestaciones no neurologicas del déficit de esfingomielinasa ácida #ASMD
Webinar Fabry y tus riñones ¡Tu guía para el mejor seguimiento! El próximo dia 30 de abril, celebramos el webinar para pacientes sobre la enfermedad de #Fabry a cargo del Dr. Alberto Ortíz. mpsesp.org/portal1/h_item…
We were excited to receive a @WORLDSymposia New Treatment Award recognizing our work to develop a therapeutic option for people living with Fabry disease. Diego Ardigò, Head of R&D, shares a message of gratitude for the #Fabry community. b.link/oqury314
A young woman with Fabry disease had no complications while using enzyme replacement therapy (ERT) during two pregnancies, per a case study. buff.ly/3W6LABL #Fabry #FabryDisease #FabryDiseaseNews #FabryDiseaseResearch
#HéroesFabry: Testimonio de Sandra En el Mes de #Fabry, el reto que supone convertirse en madre con esta patología poco frecuente. #EnfermedadesRaras youtube.com/watch?v=94p_9v…
En el Mes de #Fabry, nos unimos a @mps_lisosomales para dar voz a Sandra, una paciente que cuenta cómo es vivir con esta #EnfermedadRara y el reto de convertirse en madre con esta patología poco frecuente. 🔗 bit.ly/3Q6RTS6 #SomosChiesi bit.ly/3Q6RTS6
Conoce algunos síntomas de la enfermedad de Fabry. 🧡 #AcopelComunica #Conecta2 #Fabry #Sintomas
On April 22, 2024, the Editorial Office of RDOD Journal was delighted to interview Fabry disease specialist Dr. Juan Politei. Let's have a look what Dr. Politei said. oaepublish.com/interviews/rdo… #rare disease #orphan drugs #Fabry disease
Llevo 22 años haciendo perfusiones para enfermedad de #Fabry y otros 10 en enfermedad de #Pompe, pero en España hay compañeros que llevan más de 30 años haciendo perfusiones para #Gaucher. #lisosomales #enfermedadesraras isanidad.com/281021/juan-po…
Mes de concientización de Fabry. 🧡 #AcopelComunica #Conecta2 #Fabry
🔴 Arrhythmogenesis in Fabry Disease #CardioEd #Cardiology #FOAMed #Fabry
Today we announced the publication of results from a comprehensive survey of people living with #Fabry to share important insights related to disease management and monitoring. For details, see our press release: r.chiesi.com/ylq0kihh @ojrarediseases #RareDiseases
While other medical laboratories offer similar testing options for #Fabry disease, Mayo Clinic Laboratories' biomarker testing sets it apart by adding an additional layer of accuracy. Learn more in this "Patient Spotlight." bit.ly/4daieZv
Mes de concientización Fabry en la ciudad de Barranquilla. 🧡 #AcopelComunica #Conecta2 #Fabry
Mes de concientización Fabry en la ciudad de Medellín. 🧡 #AcopelComunica #Conecta2 #Fabry
Mes de concientización Fabry en la ciudad de Cali. 🧡 #AcopelComunica #Conecta2 #Fabry
Este mes de ABRIL impulsamos la concientización de la enfermedad de #Fabry. Campaña de @fabryintnetwork “TÚ ERES EL VERDADERO HÉROE FABRY”, reconociendo a nuestros #FabrysHeroes miembros de @peruappel #enfermedadesrarasperu #Fabrydisease Atte. Presidenta APPEL
I now have a deep fear that we might be missing many rare diseases causing pain after @Dr_CherylStucky ‘s talk about #Fabry disorder… time for whole exome sequencing? #AusPainSoc #persistentpain #genetics @TeamVCGS
Centogene and Takeda have extended their partnership in providing services that can help patients in getting a Fabry disease diagnosis. buff.ly/3UzCVHb #Fabry #FabryDisease #FabryDiseaseNews #FabryDiseaseResearch
Elvire Fabry @elvirefabry
2K Followers 1K Following @DelorsInstitute Senior Research Fellow on Geopolitics of #Trade, rapporteur of the EU-China working group. #EU #US #China https://t.co/vhapRGuV3G
Nat Fabry Diseas Fdn @FabryDisease1
722 Followers 40 Following Our primary goal is to provide education and support to enable people with Fabry disease to live better and longer lives. @jerrywalter
Fabry Spada @fabryspada
5K Followers 182 Following
Philippe Fabry @Historionome
16K Followers 327 Following Avocat. Théoricien de l'Histoire. Auteur. 📺▶️ Ma chaîne YT : https://t.co/m9K7NdPmgZ 📕 Se procurer mes ouvrages (& mail, Telegram) : https://t.co/cyMldjmSXV
UPF Barcelona @UPFBarcelona
45K Followers 3K Following Qüestionar. Avançar. Transformar. Una universitat compromesa a donar resposta als reptes globals i a desenvolupar talent en un entorn culturalment estimulant.
Fabry Swag Boy @FabryColombia
3K Followers 90 Following Instagram: fabrymusic [email protected] wap: 302-276-4776 (ESTO ES COLOMBIA♬)
Glenn Fabry @fabrystudios
3K Followers 211 Following The official Glenn Fabry Twitter account. Artist for SLAINE, PREACHER and MADI.
ℱ𝒶𝒷𝓇𝓎 �.. @Fabry_Bianco
226 Followers 4 Following Se vi blocco, sappiate che sarà perché siete pentaPiDioti, analfabeti, o tutte e due! 🇮🇹 Rimuovo tutti i followers lucchettati. Odi profanum vulgus et arceo
Glenn Fabry Studios @FabryGlenn
2K Followers 623 Following Hello, My name's Glenn Fabry and I've been making a living out of drawing comics for about 30 years now.
Chris Fabry Live @chrisfabrylive
438 Followers 24 Following With his sense of humor, sense of people and no sense of direction, host Chris Fabry treks the faith journey with you each weekday.
Fabry @Tekersit
4K Followers 122 Following Canale ufficiale per tutte le informazioni e gli aggiornamenti dei Reality/Talent Italiani - Stellinatore e defilipper presso @defilippi_m
Ben Fabry @BenFabryErl
1K Followers 254 Following Biophysicist with a focus on the mechanobiology of cells, tissue and penguins
iosonoFabry @iosonoFabry
2K Followers 464 Following Se vuoi posso essere l'insegnante di matematica che tu hai sempre odiato.
Fabry Disease News @fabryalerts
297 Followers 32 Following Fabry Disease news, alerts, articles, etc.
Philippe FABRY @Histheorist
54 Followers 9 Following French historian and lawyer, writer. Books : https://t.co/YLchRmEMfD YT channel : https://t.co/uAJVe0pj6u
Ina Fabry @InaFabry
374 Followers 767 Following Ina Fabry sport & event is the dynamic and flexible organizer for your national and international racetrack.
Fabry International N.. @fabryintnetwork
442 Followers 109 Following FIN is an independent & vibrant network of Fabry patient associations whose purpose is to collaborate, communicate, promote best practices & empower patients
Margaud Antoine-Fabry @Margaud_a
1K Followers 1K Following Occupante de locaux vides à Bruxelles. Tentation permanente pour la transformation et le commun.
FSIG @FabryOrg
378 Followers 70 Following Increasing awareness for those with Fabry disease to create a brighter future, and better lives today - Education, Support, Awareness and Advocacy
Eva Fabry @w4techEU @eva_fabry
764 Followers 2K Following #ECoVEM @social_brokers @w4techEU @womenForIT #Women4RES @WeRinproject @DFS_MWC #STEMEntrepreneurs
Brian Fabry @Brian_Fabry
1K Followers 574 Following Year #24 as a freelancer for @BostonHeraldHS. Asst Baseball Coach Plymouth North HS ; Head Coach Sr. Legion - Plymouth Post 40
Fabricio Segura @FabrySeguraS
19K Followers 14K Following Muy alérgico a las injusticias Con la debida argumentación suelo recapacitar. Aprecio el diálogo sosegado, sin fanatismos. PRECAUCIÓN: Alto contenido sarcástico
MAx Fabry @maxfabry
112 Followers 0 Following Business Woman, Counselor, Spiritual being having a human experience
fabry @faberath
1K Followers 2K Following Archeologo, docente, capitano e #10 asd Real Bando#3. Autore di Eracle in riposo del tipo di Argo. Allievo di Paolo Moreno.
Fabry 💚💛 @FabricioAumenta
2K Followers 314 Following 👽👽Fabricio Aumenta - Allegra Dee 👽👽💃 Corte y Confección 2019/20/21 Diseñador de modas. Vestuarista. Dragqueen. Performer. Artisssta 😚
Natalie Fabry @NatalieFabry
701 Followers 378 Following 💜💚⚜💚💜 mom | actress | model | biological anthropologist | former D1 athlete ⚔️
Thomas Fabry @TommyFabry
848 Followers 285 Following Unterwegs in Agrarkommunikation und Social Media - Ich bin Fabrykant: Filmemacher | Social Media Manager | Autor | Student
Fabrizio Lorenzi @fabry23lorenzi
1K Followers 1K Following La Repubblica - Milano bball reporter @rep_milano @SportRepubblica
Fabrizio Mussi #Stati.. @Fabry0222
3K Followers 3K Following #StatiUnitidEuropa con l’Ucraina e Israele, con l’Occidente. Contro le dittature, i fanatismi religiosi, il grillismo sciagura del Paese. #ItaliaViva 💙🖤 ⭐️⭐️
Fabry Support @FabryDisease2
1K Followers 2K Following An account made for anyone with an interest in Fabry Disease. To share information and experiences, ask questions and raise awareness!!
FABRICIO @fabry_victorian
789 Followers 776 Following Dispuesto a conocer gente de todo lugar, me gusta el montañismo y la escalada! y mi fb: https://t.co/oMyrdxhsGm importante #Teamfollowback
Mauricio Fabry Otte @MauricioFabry
3K Followers 1K Following Médico Veterinario de primera profesión, Guardaparques de corazón. Mandelista y Maturanista. Jefe Depto. Medio Ambiente en @GobiernoRM
Ben Fabry @ATC_Ventilator
331 Followers 193 Following Developed the Automatic Tube Compensation mode (that was my PhD project) in 1993, now Prof. of Physics, main research in cellular mechanobiology
Lydia Fabry Mazorol @seomom2
175 Followers 0 Following Now on Twitter as @LydiaFabry. Follow me there!
Marius Fabry 🍣 @MariusFabry
754 Followers 1K Following
Candice Fabry (she/he.. @CandiceFabry
1K Followers 2K Following @ottawawomensoc HC • @FearlessCapable Owner & Mentor • @KCCourage UWS HC • USSF A • GR Instructor • Mom to 2 kids, 2 pups
Danny Fabry @DannyFabry
889 Followers 662 Following Danny Fabry (leuven 1948),vroeger sologitarist in groepen als The Young Devils, The Beatnicks en The Spotlights, begon een solocarrière .
Jeff R. Fabry @TeamSTR8DC
426 Followers 288 Following Paralympic Gold Medalist Archer. Love helping the vets, aswell as others find their passion for archery. Family, fishing, hunting, life is good.
Fabry Fahlevi Lubis @fabry_aby
337 Followers 192 Following Samsung Electronics Indonesia|Silent Hide Inv|i Love InterMilan|@dinainda|OttmarAlaricLubis
My Fabry Disease @MyFabryDisease
130 Followers 56 Following Having Fabry Disease has a huge impact. It's amazing how few people, including medics, know about it, or understand how it affects people. Let’s change that.
Fabry, Australia @FabryAustralia
230 Followers 128 Following Fabry Australia is an incorporated patient organisation founded in 1994 by patients diagnosed with a rare genetic condition called Fabry Disease.
Alexander Fabry @alexanderfabry
1K Followers 1K Following Working on making healthcare better @noom, formerly @GalileoHealth @BlinkHealth @Artsy
FabryGore McMillan @FabryGore
636 Followers 1K Following musician, songwriter, live singer. #music #originals #depechemode #electronic #steampunk
mitch fabry @MitchFabry
258 Followers 89 Following
Fabry @FabryWrath
2K Followers 2K Following Non si invecchia per il passare degli anni, ma per avere abbandonato il proprio ideale #LegaSalvini🇮🇹 #Trump 🇺🇲
Philippe Fabry @philippefabry
599 Followers 592 Following Responsable performance Médias Sociaux à Atout France (@atout_france) #socialmedia #socialmediaManager - blogueur à @etourismeinfo, fan de #streetart
Fabri.Bene @Bene_Fabry
3K Followers 2K Following Hai presente quando ti bruciano i piedi ma tu te ne freghi perché sai che stai correndo verso il mare? Ecco.. bisognerebbe vivere così.
skip de Fabry @skipdefabry
350 Followers 640 Following real estate investor, owner of pink Cadillac property management. university of colorado alum. skoo buffs!
Canadian Fabry Assoc @CdnFabry
309 Followers 356 Following
Madelyn Fabry @madelynfabry
119 Followers 100 Following
Florence Fabry @FlorenceFabry
427 Followers 169 Following Conseillère municipale déléguée aux Temps périscolaires,aux Conseils d’écoles, au Conseil Municipal des Jeunes @ville_plaisance
Smart4Fabry @smart4fabry
198 Followers 108 Following This project receives funding from the @EU_H2020 Research & Innovation Programme. Any related tweets reflect only the views of the project owner
ashley fabry | market.. @ashleyrosefabry
700 Followers 665 Following Founder of Ashley Rose Branding; offering strategic branding, marketing & social media management✨ l sometimes I play fantasy football (she/her)
Lydia Fabry Mazorol @LydiaFabry
577 Followers 749 Following I'm all about successful online search, SEO, and Digital Marketing for all businesses except my own. Ha! Mom of 2, sabre fencer, living the life... online!
Jared Fabry @jfabry_3
317 Followers 236 Following
Vivien Fabry @ViviFabrien
360 Followers 428 Following 🌼 PhD Candidate @FU_Berlin 📚 | RMSc @UvA_Amsterdam | Political Participation and Representation 📣| Likes NLP too much 💻 Amsterdam/Berlin
Toni Fabry @farm_girl68
557 Followers 705 Following
fabry @fabrymusik
548 Followers 761 Following Gitarre & Stimme, Liedermacher, Singer / Songwriter, deutschsprachig
Jocelyn Fabry @jocelynfabry
474 Followers 981 Following Mom, wife, Yooper, runner, and Chief Judge for the Sault Ste. Marie Tribe of Chippewa Indians. @MichiganStateU ’01, @ColoLaw ’04. Go Green, Go White.
Richard Fabry @richard_fabry
560 Followers 406 Following No till, no stock, wheat, barley, lentil and canola producer, 12m 3:1 CTF
Fabry. @Fabryzzziiiooo
624 Followers 571 Following {{{NO WAY}}} Oriana Fallaci. {{{NO EUROPA}}} Ida Magli. NO IUS SOLI. VIVA VIKTOR!
Fabrizia Carboni @FabryC27
1K Followers 1K Following Seguo un po' tutto. Sport. 👑 AtleticaLeggera. Istr e Dir FIDAL
Go Outside @Mr__Fabry
197 Followers 247 Following Social Studies Teacher AkA fabreeze, fabreezy, breezy f baby, fabs, and I am reluctantly adding farby to this. Always looking to learn. Equity/Inclusion/SEL.
Amy Fabry @Aimstersisfab
34 Followers 68 Following Singer-Songwriter-Pianist-Francophile-Minnesotan-Mackin Inside Sales
Fabrizio Garrone @FabryGarr
90 Followers 89 Following Enterprise Solution Director at https://t.co/hhPeUbkLkN Technology enthusiast and passionate biker
thierry fabry @ThierryFabry
280 Followers 169 Following Gestionnaire du magasin Stone-industrie 38 DOISSIN
Fabrizio Mura @fabry_il_bomber
828 Followers 1K Following •engineering student 📖✏📐🏗🛣 •fitness & gym addicted 🏃💪🏋 •maxim:''fight for what you want..but especially for what you love.IMPOSSIBLE IS NOTHING''☀💫❤💯
Anne Fabry Gomm @AFGomm
135 Followers 421 Following National Marketing Manager, HK Tourism...travel, photography, always exploring
Fabry Manfroni | Shad.. @ShadesOfTech
284 Followers 199 Following Inspired ⬡ Content Creator on YouTube ⬡ Clean Cinematic Video
Tom Fabry @tcfabry
363 Followers 465 Following
Trever Fabry @Fabs1818
255 Followers 290 Following The wilderness is healing, a therapy for the soul. #GoPackGo
ZsuzsannaFabry @zfabry
311 Followers 546 Following Neuroimmunology aficionado, Mom, devotee of family and science.
Manu @Manu_Fabry
183 Followers 506 Following Building the future of music in a cave, far from eyes to see - OG HapeBeast #6654, Antonym, @themetav3rse Trust Corp. I want @azuki 4690 and 6121 - @CPGCLUB
Austin Fabry @AustinFabry
319 Followers 633 Following “It’s not whether you get knocked down; it’s whether you get up” - V. Lombardi
Tessa Fabry @tessssssssy
224 Followers 158 Following
Fabrizio Brignone @fabry3210
644 Followers 854 Following Giornalista, scrittore “La ragazza coi tarocchi" (racconti NY), “Ultimo minuto” (romanzo), “Nascono da sole e sanno chi sei. Vasco e Ligabue nelle loro canzoni”