Norges ME-forening - Rogaland Fylkeslag @ME_Rogaland
(The Norwegian ME Association - Rogaland) Deler nyheter og aktualiteter om sykdommen ME. Bak spakene: Astrid Meyer-Knutsen Mail: [email protected] me-foreningen.info/fylkeslag/roga… Stavanger, Norway Joined May 2016-
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- "If five years ago, we were to imagine that a completely new disease, which for some can cause medium- to long-term, and potentially disabling symptoms in approximately 3% of the population, which is what the new figures suggest, we would be enormously concerned.”
- "If five years ago, we were to imagine that a completely new disease, which for some can cause medium- to long-term, and potentially disabling symptoms in approximately 3% of the population, which is what the new figures suggest, we would be enormously concerned.”
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
I hope our op-ed in The Hill will raise awareness of the need for substantial funding for pre-pandemic ME/CFS. Treatments are needed for all infection-associated chronic conditions. thehill.com/opinion/461560…
And for those who haven't seen it, here's the video of my interview with @GeorgeMonbiot about the "national scandal" involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…
And for those who haven't seen it, here's the video of my interview with @GeorgeMonbiot about the "national scandal" involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…
Hvordan tilpasse skolegangen for barn med anstrengelsusløst forverring (PEM)? I kveld arrangerer vi og @MEforeldrene webinar om dette temaet. Velkommen til alle interesserte! covidforeningen.no/Nyheter/ID/19/…
Out now, our News in Brief post for w/c 15th April. Headlines and links to further reading for these ME/CFS, Long Covid and related topics: News, advocacy & media Research news & commentary Coming events #MECFS & related research & #LongCovid research s4me.info/threads/news-i…
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
I spoke earlier today with The Guardian's George Monbiot about his recent scathing column on a "national scandal"--the longstanding mistreatment of those with the illness (or cluster of illnesses) currently known as ME/CFS. Thanks @GeorgeMonbiot! virology.ws/2024/04/18/tri…
Congratulations @VirusesImmunity for this highly-deserved recognition ! The Yale CII is lucky to count on your leadership! Akiko is listed among the 100 most influential people of 2024! 👏👏👏 time.com/6964230/akiko-…
This week is all about Chronic Fatigue Syndrome, or Myalgic Encephalomyelitis. Tune in to find out just how much really is in a name. Artwork is from Jem Yoshioka available on her Flickr at: buff.ly/4aKImrU
Jetzt geht es los. 3. Runde Tisch #LongCovid: 81 Mio Fördergeld für Forschung @BMG_Bund, neue Richtlinie Therapie, Förderprogramm Kinder LC und Off-Label Medikamente. Es ist wichtig, insbesondere #MECFS zu erforschen. Eine Heilung fehlt, oft junge Frauen, die sehr leiden
BBC Radio 4 Clip on #LongCovid Almost a quarter of the adult workforce are either not seeking work or are deemed unable. #LongCovid is undoubtedly one of the reasons for an increase in the number of people out of work post pandemic. (Note: we are still in a pandemic)
Bernie Sanders is seeking stakeholder input for his $10 billion "moonshot" proposal for Long Covid. It is critical that ME and ME/CFS stakeholders also make their voices heard. Includes a letter from @sunsopeningband virology.ws/2024/04/14/tri…
Earlier this month, the European ME Alliance released a major analysis of survey responses from 11,000+ patients from 44 countries. I recently spoke with the authors, Trude Schei @t_schei and Arild Angelsen of the Norwegian ME Association. virology.ws/2024/04/14/tri…
Our latest News in Brief post provides headlines and links to further reading for news, advocacy and research from w/c 8th April. Topics this week: News, advocacy and articles Research news and commentary #MECFS and related research & #LongCovid research s4me.info/threads/news-i…
It’s finally here! Season 7 is kicking off with a big one: Long Covid. We’ve covered so much about #covid in the past but this is the first time we are tackling #longcovid and when we say it’s a doozy… Tune in now wherever you get your podcasts!
It was an absolute honor to talk to Ed Yong, Ezra Spier, @LisaAMcCorkell, and Molly Adams! I so appreciate Ed's initiative, and am so thankful that Ezra, Lisa, and Molly were willing to talk to me about their experiences with #longCOVID and birding. audubon.org/magazine/new-b…
Family push for daughter's removal from Lancashire hospital bbc.in/3UfwQPV
Nina E. Steinkopf @Nina_Steinkopf
2K Followers 2K Following Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and blogger. 🇳🇴🏳️🌈🇵🇸🇺🇳😷
Frøydis Lilledalen @FLilledalen
2K Followers 984 Following Psykologspesialist, forfatter, tangodanser og engasjert i debatten om pasientrettigheter og kvinnesykdommer
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Benedikte Monrad-Kroh.. @bmkrohn1
2K Followers 2K Following Siving med ME. Snill og grei, kanskje litt sta.
Diplodokus @Diplodokus1
633 Followers 203 Following Aina E N: Stolt pasientrettighetsforkjemper 💙💙💙 Bruker digitale boksehansker med god samvittighet! 💪 Livsnyter av rang 😎
Marit Skotheim @MaritSkotheim
2K Followers 3K Following Society, politics, human rights, science, research. MSc ChemEng. Myalgic encephalopathy (ME) since 2010. Mainly Norwegian and English tweets. Whistleblower.
Norges ME-forening @MEforeningen
953 Followers 474 Following Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://t.co/HMoKg2ochN
Adrian @mradrianen
413 Followers 425 Following Revisjon. Rett skal være rett. Fasettmenneske. Jeg twitrer mine egne meninger.
Sissel Sunde 🇳🇴 @Sissel777
1K Followers 628 Following I got a virus and never recovered (2015). ME/CFS Advocate, Leader of MillionsMissing Stavanger. Former PA/Sr. Business Administrator.
Hilde_C @___Hilde
1K Followers 1K Following #PwME, Norway. “Solidaritet er ikke et grunnstoff som finnes i naturen. Det rettferdige samfunn må vi ville og velge” -Per Fugelli
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
HegeGull @HegeGull
507 Followers 278 Following Følger ME debatten, ME forskning og bidrar med pas.erfaring. Pasientens erfaring er nøkkelen, hadde man lyttet mer så hadde vi hatt en kur. Innestemme.
ME-foreldrene @MEforeldrene
590 Followers 508 Following Foreningen ME-foreldrene. Bli medlem her: https://t.co/nypxXT1NOV The ME Parents of Norway. English pages: https://t.co/Z7dH0tmTyj #ME #SEID
Marit Stafseth @MariBjor
1K Followers 1K Following Økonom, pedagog og hobbypoet. Long Covid-syk siden mars 2020. Jobber med hard valuta på dagtid, myke verdier på kveldstid.
Eirik @EirikAks
489 Followers 701 Following Ex-musikant frå Hardanger. BSc i Folkehøgkule 😉 Pleiepasient med ME og nakkeskade 🛏️ Nei til NPM. Eg syner meg surare på Twitter enn i røynda 👻Litt Tourettes
Lena Kjempengren-Vold @LenaFoxfoot
444 Followers 443 Following Stor tilhenger av faktabasert kunnskap og god forskning, etter 30 år som leder av Komparativ Medisin-Radiumhospitalet, OUS. Nå ME-pasient og -student.
Irene @irene2up
768 Followers 1K Following Ufrivillig ekspert i sosial isolasjon. #hage #hund #småfugler #musikk #pwme #mecfs #postcommotio G.93.3
TwannaVrazel @TwannaV22351
4 Followers 686 Following
May Lillian Fjeldsaun.. @MayFjeldsaunet
0 Followers 23 Following
Michael Alexander @Michaeltikus
956 Followers 2K Following I like animals 🐙 Zoology/Psych PG interested in nature connections, diving and tapirs. Member @Long_Covid / @RenegadeRes Lead contributor @wecrunchme LC-PLAN
Renate-new account�.. @Renate834601
79 Followers 402 Following Myalgic Encephalomyelitis since -87,severeME,Bedbound, diagnosecriteria /name matters!separate ME from ME/cfs; use ICC -G93.3 for ME❤️#Enterovirus
Teodora Dollinger @TeodoraDol93707
52 Followers 5K Following
Whitley Radziwon @RadziWhitl
67 Followers 5K Following
Rahaf Soldow @soldow38534
69 Followers 5K Following
Asiyah Podvin @AsiyahPodv7004
80 Followers 5K Following
Raven Kreighbaum @Kreighbaum74905
65 Followers 5K Following
Amalie Drinkwine @AmalieDrin45489
22 Followers 2K Following
ME Accountability @No_ME_Denialism
54 Followers 269 Following Working to dispel myths & refute lies about Myalgic Encephalomyelitis. No harassment, doxxing, stalking, or threats. Don't care about your politics.
Aaidah Rhome @aaidah_rh
75 Followers 5K Following
Kori Bethers @BethersKor
33 Followers 5K Following
Shemika Bruzewski @ShemikBruzewsk
57 Followers 5K Following
#NotJustFatigue @njfatigue
573 Followers 654 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
Isla Zannino @zann_is
83 Followers 5K Following
Iman Armocida @IArmoci
71 Followers 5K Following
Isra Feltmann @FeltmaIs
65 Followers 5K Following
Megan Loree @LoreeMegan65446
44 Followers 5K Following
Gwenda Quirindongo @QuirindonGwe
55 Followers 5K Following
Tormod Iversen @IversenTormod
66 Followers 259 Following
Brigida Glaeser @BrigidaGla58327
83 Followers 5K Following
@invest_in_me (Invest.. @Invest_in_ME
8K Followers 733 Following An independent UK charity finding, funding, facilitating biomedical research into ME and providing better education and awareness of this disease in UK & Europe
Jaron Kirby @kirby_jaro94339
8 Followers 642 Following
Suzanne Wheeler @Suzanne30150545
133 Followers 295 Following Army Vet, Mom^3 young women, former Blackhawk pilot who knits & fights for better ME/CFS treatments.
Sharon Thornton @_SharonThornton
710 Followers 2K Following Here to read the news. Likes science, health, old buildings, crafty things, law and reform. Somewhat shy. Hates corruption. Dip Accounting.
Kristy Arunachalam @KristyArun68857
22 Followers 5K Following
Kjøttsekk @Kjottsekk
568 Followers 541 Following Jeg er en kortlivet og fungibel kjøttsekk på et unnselig støvkorn som farer blindt gjennom verdensrommet mot undergangen. #NarkoTwitter
Line Ottem @LineOttem
152 Followers 177 Following Superengasjert i helse og hva som hjelper folk fremover generelt
Nina A Tomei, MD @doctormom63
4K Followers 2K Following Life derailed #Sjogrens #MECFS #POTS #LongVax Child with #LongCovid Surviving Not Living. Sick Not Tired. Tweets not medical advice. We just want our lives back
Soloppgangerobrer @NeriticZ
218 Followers 627 Following
Sigrid Danielsen @sidanielsen
8 Followers 35 Following
Lidia Thompson @LidiaThompson14
352 Followers 295 Following Studied and taught physics. Love science. Have a strong faith (work that one out.) Ill with ME for 30+ years. Doing my bit to promote biomedical knowledge of ME
FND Health @FNDHealthCoach
92 Followers 104 Following FND Health - Assisting individuals dealing with FND, Fibromyalgia, ME/CFS, and Long COVID in reclaiming their well-being.
Stine Mari Lyngseth @Stinelyngseth
60 Followers 245 Following On the hunt for causes and cures for Myalgic Encephalomyelitis and Long Covid
Beate Kristiansen @BipsK
9 Followers 28 Following
Anett🎀 @HaukedalVik
5 Followers 38 Following
Arild Helgeland - TvA.. @helgeland_arild
416 Followers 1K Following Redaktør av ÆTV, TvArild, videoblogger og naturist/nudist - #Narkotwitter
A Tired Owl @aTiredOwl
1K Followers 3K Following 30s, #MaskUp #MyalgicEncephalomyelitis all my adult life. LC ally. Networking with #pwME and other chronic illnesses. 🍞Ⓐ🏴 Ⓥ🌱 🇵🇸
Sᴄʜʀᴇɪɴᴇʀ @schreinerorg
2K Followers 3K Following documentalist | one of #millionsmissing | team #GOfundMECFS & #SIGNforMECFS | suffering from #myalgicencephalomyelitis 08 | 1. FC Union Berlin
Chanty @Chanty37748606
244 Followers 1K Following
T @noFO__allMO
511 Followers 4K Following Queen of Vertigo👸Empress of Brainfog👑Wanderluster Interrupted🌎Inconsistent Gardener🌱#SevereMECFS #MigraineWithBrainstemAura #VestibularMigraine +etc,etc🙄
Ahsan Zil E Ali @ahsanzileali
4K Followers 3K Following Postdoctoral Research Fellow, Vascular Surgery • Health Services & Outcomes Researcher
Donna @masondonna47
361 Followers 3K Following
sarkhano @sarkhano1
529 Followers 3K Following Came here for news. Found denial, coping and disinfo instead. Stayed out of spite. C0vid is airborne. Multiple pandemics aren't over.
Solveig Marie Stenbæ.. @sunroadstone
148 Followers 550 Following
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Nina E. Steinkopf @Nina_Steinkopf
2K Followers 2K Following Former HSEQ Chief Executive. Have survived Myalgic Encephalomyelitis (ME) since 2010. Patient advocate and blogger. 🇳🇴🏳️🌈🇵🇸🇺🇳😷
Frøydis Lilledalen @FLilledalen
2K Followers 984 Following Psykologspesialist, forfatter, tangodanser og engasjert i debatten om pasientrettigheter og kvinnesykdommer
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Benedikte Monrad-Kroh.. @bmkrohn1
2K Followers 2K Following Siving med ME. Snill og grei, kanskje litt sta.
Diplodokus @Diplodokus1
633 Followers 203 Following Aina E N: Stolt pasientrettighetsforkjemper 💙💙💙 Bruker digitale boksehansker med god samvittighet! 💪 Livsnyter av rang 😎
Marit Skotheim @MaritSkotheim
2K Followers 3K Following Society, politics, human rights, science, research. MSc ChemEng. Myalgic encephalopathy (ME) since 2010. Mainly Norwegian and English tweets. Whistleblower.
Norges ME-forening @MEforeningen
953 Followers 474 Following Norges ME-forening (Norwegian Myalgic Encephalopathy Association) jobber for å bedre situasjonen for landets ME-syke. Facebook: https://t.co/HMoKg2ochN
Adrian @mradrianen
413 Followers 425 Following Revisjon. Rett skal være rett. Fasettmenneske. Jeg twitrer mine egne meninger.
Sissel Sunde 🇳🇴 @Sissel777
1K Followers 628 Following I got a virus and never recovered (2015). ME/CFS Advocate, Leader of MillionsMissing Stavanger. Former PA/Sr. Business Administrator.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Sidsel Fjelltun @SidselFjelltun
1K Followers 795 Following Psykolog, feminist, nordlending. Lokalpolitiker for Sagene SV. Kvinnepolitisk leder i Oslo SV.
Hilde_C @___Hilde
1K Followers 1K Following #PwME, Norway. “Solidaritet er ikke et grunnstoff som finnes i naturen. Det rettferdige samfunn må vi ville og velge” -Per Fugelli
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Gunhild Alvik Nyborg,.. @GANyborg
7K Followers 543 Following MD, PhD, BSc Pro science, pro compassion Singer/songwriter/producer Albums: Ambient: https://t.co/Cx8TufwLxp Jazz: https://t.co/tCfTNPguHJ
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
HegeGull @HegeGull
507 Followers 278 Following Følger ME debatten, ME forskning og bidrar med pas.erfaring. Pasientens erfaring er nøkkelen, hadde man lyttet mer så hadde vi hatt en kur. Innestemme.
Tom Kindlon @TomKindlon
14K Followers 577 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
Per Anders Todal @Varenatur
36 Followers 30 Following
Long Covid Moonshot @LCMoonshot
3K Followers 317 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding! Press: [email protected]
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Stine Mari Lyngseth @Stinelyngseth
60 Followers 245 Following On the hunt for causes and cures for Myalgic Encephalomyelitis and Long Covid
Amanda Kvalsvig @AmandaKvalsvig
5K Followers 913 Following Epidemiologist in the Department of Public Health, University of Otago Wellington @OtagoWellington Aotearoa New Zealand, all views my own, she/her.
Science News @ScienceNews
5.1M Followers 555 Following Covering the latest news in all fields of science. Publisher @society4science. See also @SN_Explores.
Derya Unutmaz, MD @DeryaTR_
290K Followers 4K Following Professor, medical scientist immunologist @jacksonlab research in aging & cancer immunotherapy. Interests: #longevity #robotics #AI #Scifi #tech #space🇺🇸🇹🇷
Jocelyn J. Fitzgerald.. @jjfitzgeraldMD
38K Followers 5K Following Urogynecologist and Pelvic Reconstructive Surgeon Gynecologic Economics ⚖️ IG: @jjfitzgeraldMD 💡Opinions are my own and do not reflect my employer.
Line Ottem @LineOttem
152 Followers 177 Following Superengasjert i helse og hva som hjelper folk fremover generelt
Steve Topple @MrTopple
33K Followers 5K Following Journalist @TheCanaryUK | Journalist @BywireNews | Vibes @Reggaeville @PauzeRadio | Contrib @RadArtReview | Project lead @ #CanaryAmplify | Views my own etc.
Arne Søraas @arnesoraas
42 Followers 44 Following Principal Investigator of the Norwegian Corona Cohort, Oslo University Hospital Co-founder Age Labs.
Hannah Preston @hannahpreston91
644 Followers 413 Following Clinical Research Fellow- BHF, REA3 Renal Registrar - Edinburgh RCPE T&MC Co-chair Yoga lover, coffee drinker, average runner!
Lidia Thompson @LidiaThompson14
352 Followers 295 Following Studied and taught physics. Love science. Have a strong faith (work that one out.) Ill with ME for 30+ years. Doing my bit to promote biomedical knowledge of ME
Anett🎀 @HaukedalVik
5 Followers 38 Following
Jennifer Hulme @jenniferhulme
4K Followers 2K Following Physician, Assistant Prof @UofT Family & Community Medicine | Health systems | Health equity | Health in all policies | Long COVID/ME/POTS. Tweets are my own
Danilo.Buonsenso_Surf.. @surf4children
3K Followers 662 Following Pediatrician/pedsID working on #longcovidkids, #TB, #congenitalinfections☀️funder of surf4children no profit
𝑫𝒓 𝑵𝒊𝒈.. @DrNighatArif
31K Followers 974 Following NHS/Private GPwSI Women’s Health.📺Doctor on @bbcbreakfast @thismorning 📘Author 𝘔𝘦𝘥𝘪𝘢 𝘦𝘯𝘲𝘶𝘪𝘳𝘦𝘴:𝘫𝘢𝘯@𝘥𝘮𝘭-𝘶𝘬.𝘤𝘰m
Ahsan Zil E Ali @ahsanzileali
4K Followers 3K Following Postdoctoral Research Fellow, Vascular Surgery • Health Services & Outcomes Researcher
Alice Wong 王美華 @SFdirewolf
80K Followers 4K Following Disabled oracle. Founder, @DisVisibility. Editor, DISABILITY INTIMACY pre-order https://t.co/HUW0gq4JTd Available April 30, 2024
Angela M. Vázquez is.. @AngelaMSWinCA
4K Followers 2K Following Public Policy acct | #MentalHealth @kidspartnership | Comm @wedrawthelines ✊🏽✊🏾✊🏿 Chicanx #LongCOVID #MECFS disabled 🐦🙋🏽♀️she/he | #ActuallyAutistic
angela mv/p 💁🏻�.. @ItsAngInLA
4K Followers 3K Following 🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat
Karoline devold @DevoldKaroline
31 Followers 69 Following
Maria Van Kerkhove @mvankerkhove
119K Followers 597 Following Infectious Disease Epidemiologist; COVID-19 Technical Lead, Director ai Epidemic & Pandemic Preparedness & Prevention, WHO, WHE, Mom of 2. Opinions my own
Rob Wüst @RobWust
6K Followers 771 Following Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease
AJ Leonardi, MBBS, Ph.. @fitterhappierAJ
107K Followers 5K Following Less than nothing. Former @riteaid cashier. Immunology aficionado (of my own ideas) 😷N95❤️🔥 Caremonger Hated by Infection-based immunity proponents Views own
The Sick Times @thesicktimes
3K Followers 281 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx
Irene Qvan @irene_qvan
156 Followers 405 Following
betsy ladyzhets 📊 @betsyladyzhets
5K Followers 1K Following editor/co-founder @thesicktimes & freelance science/health journalist | she/her/🏳️🌈 | @[email protected] & [email protected]
Nwiss 🇸🇪🇪�.. @Gronnet
4K Followers 2K Following Health & Medical Science (views my own) News and Research on #LongCovid #FBLC #MEspine #EDS Longhauler since March 2020, (3x Covid inf) #MECFS since 2011
Gunnar Gottschalk @ggottschalkPhD
426 Followers 221 Following ME/CFS and Long-COVID Researcher Scientist and Executive Director Simmaron Research Inc.
Avik Roy @AvikRoy74969264
576 Followers 461 Following CSO Simmaron Research @RedefiningMECFS; Co-Founder/Sci. Director of Sotira Scientific: Professor (adj) @UWM; Neurobiology; ME/CFS; Drug design and development
ONG PEM @AsociacionPEM
1K Followers 964 Following Asociación de Personas con Encefalomielitis Miálgica (PEM) Spain #EncefalomielitisMiálgica #MyalgicEncephalomyelitis #TestimoniosPEM #pwME [email protected]
Dansk Covidforening @DCovidforening
92 Followers 38 Following Vi er en patientforening for mennesker med senfølger efter covid. #sundpol #sundhed #covid
Benjamin K Wellander @Benjaministern
3K Followers 261 Following Specialistläkare internmedicin. Twittrar/X:ar som privatperson.
Nikolai Berge @gnberge
26 Followers 165 Following Researcher ( PhD), pharmaceuticals, public debate health and nutrition
Anthony Costello @globalhlthtwit
89K Followers 1K Following Doctor, Speaker, The Social Edge. Ex-Director, WHO. Professor UCL. Chair, Lancet Climate Countdown. Advisor @cap2030org Tweets/RT≠endorsement
The John Snow Project @JohnSnowProject
17K Followers 274 Following Reliable, honest information on COVID-19 from public health, clinical, and research experts. https://t.co/KVTMhCT9ct
Kendra F @SurvivingCFS
4K Followers 5K Following Disabled for a decade due to MECFS| Escaped homelessness | I’m advocating for those who can’t | See highlights tab for my free masking and disability art.
Evan Blake @EvanBlake17
7K Followers 3K Following Eliminate #COVID globally to save millions of lives | https://t.co/1uY2mgRc5X | https://t.co/1SI6zDmJCk
Dr. Mads Gilbert @DrMadsGilbert
91K Followers 121 Following Norwegian physician, Professor em. Univ. Hospital of North Norway, Solidarity medical worker, Researcher, Teacher, Longtime volunteer for Palestinian healthcare
BigMuff @BigMuffPI
235 Followers 433 Following Norway. MS Psychology. Music. Pink Floyd. Guitar. Blackburn Rovers. Nature. Cats. ME/CFS. Motorcycle. Married, and father of two.
Susanne Fosbeg @SFosbeg36760
176 Followers 1K Following hei ret d noen som kan låne meg200 tusn og få att45 tusn når jeg får d jeg skal ha vent på peger! må støm. mesinervipps til4775742!.takk
Henning Heldbjerg @HHeldbjerg
18 Followers 32 Following Biologist, Department of Bioscience, Aarhus University, Denmark
Giada Da Ros @Giada_Da_Ros
469 Followers 522 Following TV critic; President of the CFS/ME Italian Association (and CFS/ME patient since 1990); Socratic.
Helge Sverre Risan @HelgeRisan
159 Followers 465 Following Vitebegjærlig og er veldig glad i ting jeg ikke kan. Kan tenkes at jeg har plukket opp ett og annet på veien :) Familieterapeut. ME
Lawrence Hayes @DrLawrenceHayes
1K Followers 1K Following Lecturer and Researcher in Physiology at @UniWestScotland. Interests: ageing, exercise, HIIT, long COVID, ME/CFS, and mHealth
Prof. Karl Lauterbach @Karl_Lauterbach
1.2M Followers 322 Following SPD Bundestagsabgeordneter, Bundesgesundheitsminister, der hier selbst und privat tweetet.Mike Harley on Serbian TV today raising awareness of #mecfs prior to #Belgrade #marathon Mike's efforts have raised almost £50k for @Invest_in_ME all funds go to #BiomedicalResearch @CofEforME in @NorwichResearch Mike's JustGiving page here justgiving.com/fundraising/mi… #philanthropy
About 2m people have long Covid in England and Scotland, figures show theguardian.com/society/2024/a…
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
🧵The @ONS have published #LongCovid prevelence data from the Winter CIS England+Scotland only ❗️2 million (3.3%) have #LongCovid ❗️1.5 m adversely affected ❗️381k severely impacted ❗️71.1% have had symptoms a year or more ❗️51.3% 2 years + ❗️30.6% 3 years + 600k people 1/3
I posted this interview with Guardian columnist @GeorgeMonbiot a week ago. It's gotten almost 5,000 views, which is a lot for me. Here it is again: youtube.com/watch?v=GC5i3v…
Maureen Hanson, PhD, and I have written an op-ed for The Hill, a non-partisan Washington DC news publication with 31 million online views per month, about the seriousness of ME and the need for equally serious funding by Congress. thehill.com/opinion/461560…
I hope our op-ed in The Hill will raise awareness of the need for substantial funding for pre-pandemic ME/CFS. Treatments are needed for all infection-associated chronic conditions. thehill.com/opinion/461560…
And for those who haven't seen it, here's the video of my interview with @GeorgeMonbiot about the "national scandal" involving the decades-long mistreatment of patients with ME/CFS: youtube.com/watch?v=GC5i3v…
Last week I spoke with Guardian columnist @GeorgeMonbiot about his scathing rebuke of the biopsychosocial brigades and their bogus research into ME/CFS and Long Covid, the so-called "Science Media Centre," etc. Here's an edited transcript of our convo: virology.ws/2024/04/23/tri…
Gratis webinar i dag kl 18!
Hvordan tilpasse skolegangen for barn med anstrengelsusløst forverring (PEM)? I kveld arrangerer vi og @MEforeldrene webinar om dette temaet. Velkommen til alle interesserte! covidforeningen.no/Nyheter/ID/19/…
Hvordan tilpasse skolegangen for barn med anstrengelsusløst forverring (PEM)? I kveld arrangerer vi og @MEforeldrene webinar om dette temaet. Velkommen til alle interesserte! covidforeningen.no/Nyheter/ID/19/…
Out now, our News in Brief post for w/c 15th April. Headlines and links to further reading for these ME/CFS, Long Covid and related topics: News, advocacy & media Research news & commentary Coming events #MECFS & related research & #LongCovid research s4me.info/threads/news-i…
My interview with @GeorgeMonbiot has had 2500 views since I posted it two days ago. I'm going to post an edited transcript later, but for now here's the video again: youtube.com/watch?v=GC5i3v…
Economic inactivity due to ill health is a huge problem because it restricts the number of people able and available for work, which holds back economic growth. The government continue to miss the point: it's NOT health vs economy; it's health AND economy theguardian.com/business/2024/…
Myalgic encephalomyelitis (ME), known as Chronic Fatigue Syndrome, is a long-term condition with a range of symptoms, including extreme tiredness and muscle pain. @Ruth5News speaks to the parents of a 23-year-old woman, who suffers from the serious condition. @TheChronicColab
"I don't have to choose between my values and my desire for connection.” @Clean_Air_Club_ still cares about COVID—and wants safer concerts. Learn how their Chicago-based organizing work helped create a global wave of clean air initiatives for artists. tnvge.co/dbLwGYk
“…Long Covid is a Reality for Millions..” “Long Covid needs deeper, more extensive and more intense research.” heraldgoa.in/Edit/Opinions/…
'We need a moonshot for long COVID': What we know (and don't know) about the illness. Thank you for having me on your show this morning @wnpr and @wherewelive! Featuring @LisaAMcCorkell @patientled, with Prof. Daniel HoSang and Catherine Shen. ctpublic.org/show/where-we-…
I spoke earlier today with The Guardian's George Monbiot about his recent scathing column on a "national scandal"--the longstanding mistreatment of those with the illness (or cluster of illnesses) currently known as ME/CFS. Thanks @GeorgeMonbiot! virology.ws/2024/04/18/tri…
So ist es leider bisher. Schwere #MECFS Fälle sind noch nicht heilbar, aber wir forschen sehr intensiv daran. Das schulden wir den Betroffenen
Zur ungelösten (d. h. Stand heute unheilbaren) #LongCovid-Situation äußert sich @Karl_Lauterbach heute in bemerkenswerter Klarheit zu den schweren Fällen. Auch bei Kindern. Mit jeder Corona-Infektion spielt man Roulette, Long Covid und im schweren Fall #MECFS zu entwickeln.
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
Thrilled to see such richly deserved recognition for Akiko, w/ phenomenal contributions throughout the pandemic, a standout educator, a champion for #LongCovid, a model leader in life science (and so humble)
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
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