The Mast Cell Disease Society, Inc. OFFICIAL @MCDiseasesUnite
Transforming lives of patients and families while finding a cure for #mastcelldisease since 1995. #Mastocytosis #MCAS #HereditaryAlphaTryptasemia #raredisease tmsforacure.org Sterling, MA Joined October 2019-
Tweets850
-
Followers2K
-
Following341
-
Likes202
EDS and HSD Awareness Month is in May, with vital connections to our mast cell disease community. This May, let's engage, share, and support. Awareness creates unity. buff.ly/3gXoKbj #EDSHSDAwareness #MastCellDisease
Upcoming weekly Support groups: - Tue, April 30th: Undiagnosed Only Support Group(3PM-5PM EST) - Thu, May 2: Mastocytosis Support w/ Pam Hodge(1PM-3PM EST) - Thu, May 2nd: Chronic Illness and Comorbidities w/ with Calla Mace(5PM-6PM EST) Sign up here: buff.ly/3vCJbEd
Personal stories resonate deeply, carrying echoes of our shared experiences. On this day dedicated to storytelling, we invite you to read the heartfelt stories from our TMS community. Feel the support and know you're not alone. buff.ly/3xzmzVJ
Need help navigating our website? Watch our latest webinar for a website walk-through, tips and a takeaway guide from Isabelle Charlot, ensuring you find exactly what you need. Check out the webinar now! buff.ly/3JdJgkK
On DNA Day, we recognize the importance of genetics in understanding health conditions such as Hereditary alpha-tryptasemia (HαT). It’s a day to learn, support, and advance our knowledge. Explore our resources for insights into HαT. buff.ly/3VW01c3
Register for TMS MastcellCon, July 13-15, Indianapolis! Don’t miss this chance to explore mast cell disease research and connect with the community. Be part of something big. Register here: buff.ly/3VDTyST
Innovate and advocate! 🚀 Join the RARE Drug Development Symposium (Apr 29 - May 1), hosted by @GlobalGenes & @Penn's Orphan Disease Center. Learn how to amplify the patient voice in therapy development. Register now: buff.ly/3xuETiW #RareDisease #Advocacy
Our Clinical Trials page is a gateway to understanding the ongoing efforts in Mast Cell treatment and research. It's a resource for you to stay informed about the latest studies and advancements. Gain insights into the scientific strides being made. buff.ly/44478Aj
April's upcoming support groups for the week: Work Support Group with Eliza Jones: Fri, Apr 26, 5-6 PM Fiber Arts with the ED: Sun, Apr 28, 2-3 PM (1 PM Central) For more details and registration, visit buff.ly/3vCJbEd
Did you know today is Clean Out Your Medicine Cabinet Day? 🚮 We've got a video to guide you through safe disposal of meds, protecting you and the planet. For full FDA guidelines, visit: buff.ly/2MRcwB8.
For individuals with mast cell disease, there’s a space carved out just for you. Join us on April 21st at 2 PM for a support session led by Debbie McGee. It's a chance to share, learn, and find comfort in community. Sign up at buff.ly/3vCJbEd .
Ready to delve deeper into the world of mast cell disease? Early bird spots for TMS MastcellCon are filling fast. Register now to ensure your place at the leading edge of mast cell disease research and advocacy from July 13th-15th. [buff.ly/3VDTyST]
Lindsay's testimonial shines a light on the difference TMS makes. For support and understanding, contact us at [email protected] or engage with peers on Inspire: buff.ly/3BqYlvJ.
Laundry day can be a breeze even for the sensitive among us. Share your #FragranceFree laundry hacks below on this #NationalLaundryDay and help us all freshen up the smart way.
Connect with our TMS community. 🌟 Discuss chronic illness challenges with Calla Mace on Apr 18th or join healthcare pros with Debbie McGee on May 13th. Your insights matter. Join us: buff.ly/3vCJbEd
TMS Support Groups: Apr 15, 6-7PM: Gen Adult (A. Fiorenza) Apr 17, 8-9PM: Positivity (G. Dickson) Apr 18, 1-3PM: Mastocytosis (P. Hodge), 5-6PM: Chronic Illness (C. Mace) Apr 19, 5-6PM: Work (E. Jones) Apr 21, 2-4PM: Men's (C. Shoemaker) Details & Join:buff.ly/3vCJbEd
ICYMI: Earlier this month, TMS sent out a newsletter to our email subscribers, updating them on all the things we have been working on in the first few months of 2024! You can access a web version of the newsletter here: buff.ly/43GBABb
Our friends at Patient Power will be hosting one of there patient hosted events: "Evening with the Docs." The topic will be systemic mastocytosis and will feature doctors from the University of Kansas. Check it out: buff.ly/3VRLQEQ
Register for TMS MastcellCon, July 13-15, Indianapolis! Don’t miss this chance to explore mast cell disease research and connect with the community. Be part of something big. Register now: buff.ly/3VDTyST
Today's forecast: 100% chance of pawsitivity! Happy National Pet Day from the Pets of TMS. Share your perfect pet pics and let’s create a furever stream of cuteness. #PawsAndLove #NationalPetDay
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Alissa Zingman MD MPH.. @DocZing
5K Followers 1K Following PRISM Spine and Joint, https://t.co/xU10wz4Q5O, Research https://t.co/1kUMpVueSJ, Hypermobility Care, Wife/Mom/CEO/Dancer. Tweets are not medical advice.
The Ehlers-Danlos Soc.. @TheEDSociety
24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Emily Johnson (is on .. @emily_rj
8K Followers 6K Following Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/her
Anne Maitland, MD @asktheallergist
2K Followers 291 Following Board certified Allergist-Immunologist Asst. Professor, Mount Sinai School of Medicine
MastCellAction @MastCellAction
5K Followers 306 Following We exist to promote progress in the awareness, diagnosis and treatment of Mast Cell Activation Syndrome and to provide support to people affected by MCAS.
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
angela mv/p 💁🏻�.. @ItsAngInLA
4K Followers 3K Following 🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat
Michael Stingl @neurostingl
16K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin
Amanda Hinkle, MD, FA.. @AHinkle628
3K Followers 1K Following mom. wife. pediatrician. advocate. warrior. she/her. hEDS, MCAS, dysautonomia, CCI, TMJD. eating disorder survivor. personal views, not medical advice.
auntie cistamine @laurenancona
30K Followers 18K Following neurodivergent public servant • learning to help • 338ppm • she • no DMs
Jane Green MBE FCCT c.. @JGjanegreen
6K Followers 4K Following Founder/Chair @SEDSconnective / MBE for Neurodivergence Tissue FELLOW MA Ed. exAHT NED Aut/ADHD/ND ParentCarer / Columnist / Disabled often discombobulated 😶
Rita @goldson_rita
161 Followers 3K Following
Tina Worth @tina_worth
153 Followers 895 Following RGN, HV, MBA, LMM. Any views or opinions expressed are totally personal.
Brendan McCann, DC @bhmccann
696 Followers 1K Following Primary Spine Practitioner at Cape Integrative Health. Certified spine geek. Also runner, singer, writer, perpetual motion machine. Special interest #hEDS.
Trent @trentlapinski
5K Followers 5K Following I help Entrepreneurs and startups grow and market technical products. Husband. Father. Pro-humanity technologist. Yogi. Author.
Rowan Harrison @RowanRowandh
11 Followers 41 Following
lisa gorman @lisalyn1213
0 Followers 2 Following
Jewel Wiggins @WigginsJew19562
133 Followers 3K Following
Ina @Ina_Luftschloss
774 Followers 2K Following Building castles in the sky. A hodgepodge of things that interest me.... at the moment mainly UAP, NHI, nutrition, Zen, AI and polyamory. 🫶🛸✨
Susan Foertsch @SusanFoertsch2
2 Followers 101 Following
K @kcsunrise11160
88 Followers 340 Following
DrTulikaSeth @drtulikahemat
53 Followers 138 Following AIIMS, New Delhi Member Advisory Council of Delhi School of Public Health (DSPH) Member several ethics committees
Sunny🌻 7Blessed �.. @Sevenblahs
192 Followers 1K Following Info share only. ( I'm not a med dr.) RT's are not endorsements.
WinnpegPoli @Gee24218071
34 Followers 203 Following
The impatient patient @HalfThePerson
910 Followers 475 Following Ultramarathoner, triathlete & #LongCovidAdvocate I never wanted to be
🇵🇸 @timidheathen
1K Followers 1K Following london’s fruitiest transf4g. wasian (derogatory). unpaid carer + queer cripple. wear a mask Ⓐ☭ #hEDS #Fibromyalgia #POTS #ChronicMigraine #AuDHD
Jillian @JillianCookNoE
1 Followers 40 Following
Nic @LilNic000
468 Followers 3K Following #Disabled & 10x #ChronicIllness inc #pwME for 20 yrs + prob #AuDHD please #WearAMask whovian, history grad, Christian, grey/demi, #ClimateActionNow
Sandra Feichtner @sanfeich
10 Followers 441 Following
Moonla (that’s not .. @momoonla
1K Followers 3K Following Covid is real, whether you’re capable of understanding or not. Mask up, avoid it, stave off disability & death, be a #CovidSmart genius, & my new friend! 🥳😷⭐️
meg @MegGilliland
673 Followers 443 Following chaotic neutral cat / AuDHD / marketing and design professional on a break 😴 / queer 🌈 / sci-fi fantasy geek 📚 / market anarchist / rationalist but kinda woo
E73hdhdjued @12425gh
32 Followers 154 Following
Jaclyn Dew @JaclynDew0013
0 Followers 9 Following
jen @histamean
12 Followers 96 Following working on managing MCAS, POTS, migraine. Maybe ME/CFS? still not certain…
AloneLonghaulLady @LadyLonghaul
854 Followers 5K Following animal adorer • impatient advocate • LC 2020 • masker • needs more spoons • prefers clean air • some adult language • #ADHD #HSD #spoonie #pwME #pwLC
Provide Aimovig for m.. @PutAimovigOnNHS
620 Followers 1K Following Group of migraine patients calling for 'life changing' new medicine Aimovig to be provided on the NHS -- Emphasis now on 'provided' as many trusts still won't
Vivienne Matthies-Boo.. @V_MatthiesBoon
2K Followers 2K Following Socrates Professor & Associate Professor in Ethics & Political Philosophy Radboud University. Critical Theory, Vulnerability, Trauma, #healthjustice. #LongCovid
Nicky @mcasnicky
5 Followers 63 Following itchy bitch trying to find a way out of (MCAS + long covid) hell
Janine Freder 🇪�.. @JanAnFred
80 Followers 533 Following Anthropologist. German European. Professional health reporter. Carnivorous part-time vegan. Lover of literature, film, music, and a wee dram.
Marissa McKean @missmars902
204 Followers 218 Following AuDHD • hEDS • POTS • Lifelong learner • Bibliophile • Anthropology Student #ActuallyAutistic
NurseNancy911 @Nursenancy911
399 Followers 2K Following FD/EMS/DMAT/DS/ED RN was my life! Now trying to live w/RA, Sjogren's, hEDS. Blessed to be Momma to Sean. Animal Rescuer. Nature Lover. Crazy Cat Lady.
Sherri French Memoria.. @Sherri_Memorial
8 Followers 146 Following #JusticeforSherriFrenchRN She mattered. She matters and so does her tragic story. 🔗 to https://t.co/OCG2gAjKQ7 petition. Follow her story ⚖️⚖️⚖️
The Scholar @Scholarly1
208 Followers 817 Following
Kirsten L. Schneider .. @leaferi
3K Followers 5K Following Nature at night, cars are not people, lover of law—not lawyers, human beings are inherently equal. https://t.co/E8FQenPcq6
Longcovidwarrior @Donnajrinn
143 Followers 914 Following ❤️🧡💛💚💙💜🌎🌊🌈 Long Covid survivor, ME/CFS and MCAS warrior, Wife of Rhonda for 23 years, Mother of 3 amazing adults, Nana to 6 precious grandchildren
Eastwood @TPry001
82 Followers 2K Following
Sue Dailey Thomson @Princess59S
31 Followers 427 Following Wife. Mother. Nana. Friend. Eternal optimist. Avid reader. Loyal and honest. My friends are the family I've chosen!
Laung Haller @LaungHaller
79 Followers 256 Following “What is the cost of lies? The real danger is that if we hear enough lies, then we no longer recognize the truth at all.” -Chernobyl 2019 #VaxInjuredLivesMatter
Inge Lonnroth @IngeLonnroth
10 Followers 102 Following
Kurashima Lab＠千�.. @KurashimaLab
598 Followers 464 Following Now recruiting students! Innovative treatment for allergy and inflammatory disease. 千葉大学大学院 イノベーション医学、アレルギー・炎症疾患の革新的な治療法の開発を目指しています。免疫・腸内細菌について情報共有をします。余談も。
Mark Thompson @gmthompsonjr06
57 Followers 194 Following
Dane @Dane2052777
20 Followers 13 Following
Tanya Parker @TanyaParke26555
62 Followers 3K Following
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
The Ehlers-Danlos Soc.. @TheEDSociety
24K Followers 6K Following The global nonprofit organization dedicated to change and progress in the world of Ehlers-Danlos syndromes (EDS) and hypermobility spectrum disorders (HSD).
Hypermobility MD: Dr .. @BluesteinLinda
8K Followers 662 Following 🩺 Pain & inflammation specialist 🦓 Ehlers-Dani’s, HSD & MCAS 🎙Founder Bendy Bodies Podcast ⚕️@mayoclinic trained 🚫Not medical advice.
Anne Maitland, MD @asktheallergist
2K Followers 291 Following Board certified Allergist-Immunologist Asst. Professor, Mount Sinai School of Medicine
MastCellAction @MastCellAction
5K Followers 306 Following We exist to promote progress in the awareness, diagnosis and treatment of Mast Cell Activation Syndrome and to provide support to people affected by MCAS.
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
Amanda Hinkle, MD, FA.. @AHinkle628
3K Followers 1K Following mom. wife. pediatrician. advocate. warrior. she/her. hEDS, MCAS, dysautonomia, CCI, TMJD. eating disorder survivor. personal views, not medical advice.
Naveen Pemmaraju, MD @doctorpemm
18K Followers 3K Following Professor, Leukemia; Executive Director-Cancer Medicine for MDACC Cancer Network | Director #BPDCN Program | #MPNSM #leusm #TeamPemm | Tweets:my own opinions
Reed Abelson @ReedAbelson
12K Followers 1K Following Following the money in health care for NYT. Fond of good books, old movies, dogs and one particular cat. A RT is just a RT. [email protected]
Carla K. Johnson @CarlaKJohnson
21K Followers 4K Following Journalist covering health care and medical research for The Associated Press. Member @APNewsGuild. I'm @[email protected] on #Mastodon
jacque wilson @jacquewilson1
1K Followers 305 Following Lawyer, Manager at SF Public Defender, criminal justice reform advocate, school reform advocate, warrior, & brother. Fighting to get my brothers free.
Robert Weissman @Rob_Weissman
5K Followers 201 Following President of @Public_Citizen. Public interest advocate working to loosen the chokehold corporations & the wealthy have over our democracy.
Julie Steenhuysen @JDSteenhuysen
2K Followers 1K Following Health and science correspondent at Reuters. Any opinions are mine.
Alice Park @AliceParkNY
14K Followers 479 Following Health and medicine (and occasional Olympics) national correspondent for @TIME. Author of The Stem Cell Hope, How Stem Cell Medicine Can Change Our Lives.
Gail MarksJarvis @gailmarksjarvis
6K Followers 3K Following Financial journalist @BarronsOnline @Reuters @ChicagoTribune, speaker, Book of Year: "Saving for Retirement without Living Like a Pauper or Winning the Lottery"
Laura Lorenzetti @lauralorenzetti
2K Followers 419 Following News Editor at LinkedIn working on special projects of all sorts
Susan Jaffe @susanjaffe
2K Followers 301 Following Kaiser Health News Contributing Writer on health policy & aging, Lancet's DC Correspondent, ex-Plain Dealer(OH) aging issues reporter. Tips? [email protected]
melissa healey @sonylisa
45 Followers 251 Following Into childrens's education, ADD/HD, NARCOLEPSY, and other health stuff.
Shannon Firth @shannonfirth
1K Followers 2K Following Washington correspondent for @MedPageToday @cunyjschool pride. Tweets, RTs not endorsements.
Jeanne Erdmann @jeanne_erdmann
1K Followers 1K Following Freelance health and science writer, Co-founder, editor-at-large @Open_Notebook. Executive board member and treasurer, @AHCJ. Dog lover, ice dancer. She/her
Karen Bouffard @kbouffardDN
2K Followers 1K Following Detroit News health writer and Michigan Press Association 2016 Journalist of the Year. kbouffard (at) detnews (dot) com
Arthur Allen @ArthurAllen202
4K Followers 2K Following Senior Correspondent @kffhealthnews, formerly @Politico. Author, The Fantastic Laboratory of Dr. Weigl, Ripe, and Vaccine. [email protected]
David Wahlberg @davidkwahlberg
3K Followers 1K Following Health/medicine reporter for the Wisconsin State Journal. Husband to teacher. Human to two canines. Wish I was hiking. Not related to Marky Mark.
Erin Prater @ErinMPrater
3K Followers 1K Following Public health journo @FortuneMagazine. ID, post-viral illness, rare dz, AMR, epigenetics, one health, health comm. MA². Educate. Bear witness. Truth to power.
Will Newton @WillNewton19
236 Followers 298 Following Healthcare journalist covering drug pricing policy at 340B Report, Williams College ’20, #MFFL
Meeri Kim @meeri_kim
1K Followers 2K Following Science writer | Regular contributor @WashingtonPost | @Penn Physics PhD | Email: [email protected]
Bijal P Trivedi @BijalPTrivedi
511 Followers 74 Following Sr Science Editor @NatGeo, former Science Editor @TheConversation and Author of the Bill Gates recommended book, #BreathfromSalt
Erin Garcia de Jesús @viruswhiz
2K Followers 973 Following Staff reporter @ScienceNews | Lapsed virologist but a PhD is forever | Transplanted New Mexican | Standing in solidarity with @snmediaguild
Kristina Fiore @KristinaMFiore
4K Followers 4K Following Director, Enterprise & Investigative Reporting @MedPageToday. Mentor @Report4America. Past Fellow @NatPress. NYU SHERP & @TCNJ grad. [email protected]
josh fischman (now on.. @jfischman
2K Followers 251 Following Senior medicine editor at Scientific American. Cohost, Your Health Quickly podcast. Assigning stories on health, social inequity, pandemics, cute animals.
Jeff DelViscio @Jeffdelviscio
5K Followers 3K Following Chief Multimedia Editor/EP #video & #podcast @Sciam. Emmy winner. Drone pilot. 3D tinkerer. Formers: @KSJatMIT @statnews @nytimes
Laura Helmuth @laurahelmuth
53K Followers 8K Following Editor in chief @SciAm. @laurahelmuth.bsky.social @[email protected] @ScienceWriters @washingtonpost @NatGeo @Slate @SmithsonianMag @NewsFromScience
Dr. Tara C. Smith @aetiology
123K Followers 6K Following Infectious disease epidemiologist, writer, mom. Antibiotic resistance, zoonotic disease, scicomm, zombies. She/her. Same handle @ bsky
Chris Mooney @chriscmooney
41K Followers 4K Following Journalist @washingtonpost, lecturer @YaleEnvironment, climate communicator. Views my own.
Carl Zimmer @carlzimmer
284K Followers 2K Following I write about science https://t.co/kFEXJadgqf (I didn't pay for that blue check.)
Dave Levitan @davelevitan
11K Followers 627 Following Climate and science journalist for various outlets. Freelance all over the place. Book: NOT A SCIENTIST. davelevitan{at}https://t.co/AJAFLhFSpb
Christie Aschwanden @cragcrest
16K Followers 2K Following Author NYT bestseller GOOD TO GO https://t.co/7BTooRgznX @wwnorton co-host EMERGING FORM pod https://t.co/DeBZEJemBF alum @FiveThirtyEight, Find me: https://t.co/TSuZiHTZll
Siri Carpenter @SiriCarpenter
8K Followers 2K Following Cofounder/executive director/editor-in-chief @Open_Notebook, @ScienceWriters past pres. [email protected]. @siricarpenter.bsky.social. She/her.
Christopher Mims @christophermims
697 Followers 1K Following Strategic communications professional, blogger, freelance writer. Views = mine ❖ RTs ≠ endorsements
Sandi Doughton @SandiDoughton
3K Followers 5K Following @SeattleTimes reporter; author of Full Rip 9.0: The Next Big Earthquake in the Pacific Northwest. Hiker. Dancer
Tara Parker-Pope @taraparkerpope
45K Followers 4K Following WaPo Well+Being Editor, founder NYTWell, Emmy & GLAAD winner, prev @wsj, @houstonchron, @statesman Yale MPH. Will post dog pix of Sugar. https://t.co/wGkO2MMxxE
Charles Ornstein @charlesornstein
56K Followers 4K Following Managing editor/local at @ProPublica, past prez of @ahcj, Detroit Lions fan. Email: [email protected] Tweets are my own.
J. David Gatz @DrDavidGatz
65 Followers 46 Following Assistant Medical Director @ University of Maryland Medical Center Emergency Department
Glenn Gilmore @GlennGilmore
419 Followers 927 Following Californian, Commercial Real Estate Owner/Developer, Husband, Dad, Sports Fan, Jesuit Educated, Eagle Scout
Eric Topol @EricTopol
694K Followers 589 Following physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Dr. Sanjay Gupta @drsanjaygupta
2.4M Followers 362 Following Associate Professor of Neurosurgery, Emory University Hospital; CNN Chief Medical Correspondent
Allison Bell @Think_Allison
7K Followers 8K Following Covers life & health insurance for @TA_LifeHealth. RTs simply imply an effort to help many voices get heard. Likes="Thanks," or "Hope you're doing OK."
Jonathan Cohn @CitizenCohn
61K Followers 5K Following Senior national reporter @HuffPost / Author of THE TEN YEAR WAR & SICK / Lecturer @FordSchool / Fan of Red Sox, Dolphins, Wolverines / Proud husband & dad
Paige W. Cunningham @pw_cunningham
14K Followers 1K Following Deputy Washington editor at @washingtonpost. Tips to paige.cunningham (at) washpost (dot) com. DM's open.
Stephanie Armour @StephArmour1
15K Followers 2K Following Wall Street Journal senior healthcare policy reporter. Email tips to [email protected] or DM for Signal.
Zachary Tracer @ZTracer
12K Followers 7K Following Former investigations editor and healthcare editor at Business Insider, ex-Bloomberg reporter. Dad, husband to @marradcliffe. go duke! [email protected]
Shelby Livingston @ShelbyJLiv
5K Followers 2K Following Reporting on health tech for @endpts. Formerly Business Insider, Modern Healthcare. Medill, Clemson. Go Tigers! DM for Signal.
Austin Frakt @afrakt
25K Followers 0 Following Health Economist with the Veterans Health Administration, Boston University, and Harvard University • Editor-in-Chief @HSR_HRET • Trumpet player 🎺
Margot Sanger-Katz @sangerkatz
50K Followers 2K Following Covering health care metaphors at @nytimes @upshotnyt. Popcorn enthusiast. #wthealth
Dylan Scott @dylanlscott
35K Followers 2K Following I cover health care for @voxdotcom. Send news tips to [email protected]. Gonna kick the darkness till it bleeds daylight.
Sarah Kliff @sarahkliff
142K Followers 1K Following Investigations and health policy for the @nytimes. I like reading your medical bills.
@MCDiseasesUnite When I walk in the neighborhood, I always have a carbon filtered face mask with me because laundry scent from dryer vents can pollute whole streets. I prefer to hike on stormy or cold days and avoid crowds to be less exposed to laundry fragrance of other hikers.
@MCDiseasesUnite When my clothes were washed in a shared machine, masking scent got stuck to it. No soap or vinegar wash helped but after it was hanging on my balcony for 2 weeks, I was able to use it again 🥼👖🧶
@MCDiseasesUnite 1. Room scenting and vaping odors are designed to stick to surfaces. They can be very pervasive on clothes but can be removed with vinegar. 2. Detergent powder is generally safer than liquid (and better for environment🤗). Drying outside with wind+sunlight reduces residuals.
@FantasyCaresOrg @RareDiseases @MCDiseasesUnite Appreciate this so much!
@FantasyCaresOrg @RareDiseases @MCDiseasesUnite As a father of a daughter with a rare disease I cannot thank you enough for the donations and for bringing awareness to these very special kids.
@FantasyCaresOrg @MCDiseasesUnite Thank you for your support! 🦓
In honor of Rare Disease Day we made donations to @RareDiseases and @MCDiseasesUnite. Thank you to all of you who helped make these donations possible. #Charity #RareDiseaseDay #AlwaysDoGood
@FaubelRegina @MCDiseasesUnite thank you 💛💛💛
300 million voices. 6000+ rare diseases. As we near #RareDiseaseDay, let's amplify awareness and push for equality in care and opportunity for all. 🤝 Your voice can make a world of difference.
@MCDiseasesUnite What a nice idea! I would like to applaud kindness expressed in art: this artist with MCAS, barely getting from one day to the next due to society’s ableism, and yet putting all effort into advocating for the well-being of random people. Can you see the gloom of great kindness?
@MCDiseasesUnite Welcome Isabelle. May you be very successful and happy in your new role 🩷
Register for the @MCDiseasesUnite Patient and Provider Symposium on 10/15-10/16! This unique event will bring together patients, leading physicians, and researchers to discuss the top needs of our global community. Register today: bit.ly/3OrVfMx #TMSForACure
@shasha55 @exceedhergrasp1 @betterltthannvr @ahandvanish @robsteinnews Try FluBlok! It’s the only MCAD flu shot, @MCDiseasesUnite promotes it annually
Definitely!!!! #mcas and mast cell mediators play a huge role in both peripheral and central sensitization. These effects, while well researched, are vastly under appreciated in clinical practice. 1/ #MastCellDisease #MastCell #EhlersDanlos
@eullrich11 @Madeinavalon @BluesteinLinda @BendyBrain @LoveInYourTummy @CortDoesScience I suspect that #CRPS is connected with #MCAS. More work required!
We’re honored to be taking part in the 20th Annual Meeting of the European Competence Network on Mastocytosis (ECNM) in Switzerland, where we’re connecting with systemic #mastocytosis disease experts.
Good Luck! We’re so thankful for our wonderful partners doing amazing work. Enjoy the @GlobalGenes Summit! #AllTeachAllLearn
Excited to share that we are presenting a poster on leveraging @ProjectECHO to increase #physicianeducation on #raredisease at the @GlobalGenes Rare Patient Advocacy Summit this week! go.globalgenes.org/summit #GGSummit22 #CareAboutRare #mastcelldisease #mastocytosis
@mpdrc @RobynScherber @UTHealthSAMDA So much more to do and continue doing to make a difference #SM/#mastocytosis
Glad this team based project could help highlight just some of the challenges systemic #mastocytosis patients and their care providers face! @RobynScherber @DeeptiRadia @UTHealthSAMDA
The 2 articles by @mpdrc et al reveal that both patients & health care providers report significant symptom burden w/ systemic #mastocytosis. An accompanying editorial by Drs. Jennifer Vaughn & Casey Curtis (@OSUWexMed) urges further investigation. acsjournals.onlinelibrary.wiley.com/doi/10.1002/cn… #MPNSM
#clinicaltrials #patients #CRAACO
Have questions about clinical trials? Find out why clinical trials are done, who should consider participating in clinical trials, and what to consider before joining a trial: fda.gov/patients/clini…
Trends for United States
You might like
