Search results for #CareAboutRare
Did you know social media algorithms stop showing you our post if you don't interact regularly? Following, sharing, commenting, & liking our post ensures you see updates & helps us expand out reach! #careaboutrare #neuromuscular #autoimmune #myastheniagravis #missouricures
Profluent Releases AI-Created and Open-Source Gene Editor & More — This Week in RARE Daily. Read: go.globalgenes.org/4dimG8p #RareDaily #RareNews #WeekinRareDaily #CareAboutRare #RareDiseaseAwareness #GlobalGenes
A week of celebrations. This IS OUR @sportssammy05 This IS HER Story, Now! This IS A Very Proud Mom sharing “Our Song”. This is the #CareaboutRare #ZebraTales #RareDiseaseStory @GlobalGenes #NationalDNADay #NationalMonthOfHope #UnDiagnosedDay #AprilAwareness
A week of celebrations. This IS OUR @sportssammy05 This IS HER Story, Now! This IS A Very Proud Mom sharing “Our Song”. This is the #CareaboutRare #ZebraTales #RareDiseaseStory @GlobalGenes #NationalDNADay #NationalMonthOfHope #UnDiagnosedDay #AprilAwareness
🌼May is right around the corner. Check out the programs we are offering this May! May program blog: mgadigest.wixsite.com/mgakc/post/may… #careaboutrare #rarekc #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures #MGDigest
Facebook should invite you to set up a birthday fundraiser in the lead up to your special day, and we'd love you to support Alex TLC 💖 You can also set up a page anytime: facebook.com/fund/AlexTLCsu… #alextlc #geneticdisorders #raredisease #careaboutrare #fundraising #charity
Welcome Megan to our Board of Directors! She is a Senior Content Strategist at Mercy Children's Hospital. We are excited to have your expertise! #careaboutrare #rarekc #mgawareness #neuromuscular #autoimmune #myastheniagravis #mga5k #mgatriplecrownshowdown #mgarun #missouricures
(pictured: Founder & CMO, Nicole Boice sharing her message of hope) April is designated as the National Month of Hope to inspire individuals worldwide to share a light of hope with others. Global Genes was built on the foundation of hope. #HopeIsInOurGenes #CareAboutRare
From @GlobalGenes : Meredith has been diagnosed with a number of rare and chronic conditions i To read her story on the impact receiving a diagnosis had on her life, click here: go.globalgenes.org/43Sc4ZR #ShareYourStory #CareAboutRare #RareDiseases #RareDiseaseDiagnosis
We're 1 week away from the 2024 RARE Drug Development Symposium! It's not too late! Register for the virtual conference: go.globalgenes.org/3W4eUcn #RDDS #RareDisease #CareAboutRare #LiveStream
April is #MOGAD Awareness Month. Julia Lefelar, the exec. director of @TheMOGProject, shares her story. Read here: globalgenes.org/story/the-maki… #CareAboutRare
Expanding Access to Genome Sequencing in Rural Populations & More — This Week in RARE Daily. See what you missed. Click to read the full articles here: go.globalgenes.org/3xG3IIO?utm_so… #RareDaily #RareNews #CareAboutRare #GlobalGenes
Join the #MED13L Data Collection Program with #RareX and help us gather crucial insights into its symptoms. Understand what our loved ones experience and learn how best to support them. Make a difference! Head over to enroll: rare-x.org/med13l/ 💡✨ #CareAboutRare
Did you catch the updated quarterly report on #MED13L? Dive into the latest findings and insights here: simonssearchlight.org/research/what-… 📊🔍 #CareAboutRare #Research #Data #Patientadvocacy #Patientdata
Did you catch the updated quarterly report on #MED13L? Dive into the latest findings and insights here: simonssearchlight.org/research/what-… 📊🔍 #CareAboutRare #Research #Data #Patientadvocacy #Patientdata
Learn about what the Healthcare Education Institute accomplished since the full-scale invasion of Ukraine two years ago with founder Adrian Goretzki. go.globalgenes.org/4d4Ifti #UKR #RareDisease #CareAboutRare #ImpactGrants
#throwbackThursday Thank you to all our volunteers! We could not do it without you! #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgatriplecrownshowdown #mgarun #missouricures
#WarriorWednesday SYNGAP1 Kaia (3 years old) from Fairfield, CA“Her laughter and smile and ability to connect gives us life.” Read her story & see more photos at curesyngap1.org/syngap-warrior… #SRFWW no.202 #SYNGAP #epilepsyawareness #autismawareness #rarediseaseresearch #CareAboutRare
Join us in wishing Graham, who sits on our Board of Directors, a happy birthday! Thank you for all you do! #careaboutrare #rarekc #mgstrong #ihaveheardofmg #mgawareness #neuromuscular #autoimmune #myastheniagravis #worldwithoutmg #mga5k #mgarun #missouricures #happybirthday
Our Board Members are thrilled to attend the RARE Drug Development Symposium! Can't join us in person? No worries! Be sure to follow the event online and stay updated on all the latest developments. #RDDS2024 #RDDS #CareAboutRare
Our Board Members are thrilled to attend the RARE Drug Development Symposium! Can't join us in person? No worries! Be sure to follow the event online and stay updated on all the latest developments. #RDDS2024 #RDDS #CareAboutRare
CareAboutRare @careaboutrare
162 Followers 352 Following #CareAboutRare Let your voice be heard! I will RT #rarediseaseday
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Amy-Charlotte Devitz @bendybiologist
552 Followers 120 Following EEB PhD Student (she/her) • Animal Behavior Nerd • Rare Disease Patient • Disability Advocate • #EDS #DisabledandSTEM #CareAboutRare
nicoleboice @nicoleboice
1K Followers 2K Following Founder RARE-X and Founder/Former CEO of Global Genes #CareAboutRARE #raredisease. Opinions are my own.