Chronic Disease Coalition @ChronicRights
Leading non-profit #health #advocacy for funding research and defending #ChronicRights - fighting for all affected by #chronicdisease RTs not endorsements chronicdiseasecoalition.org Portland, OR Joined June 2016-
Tweets39K
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Followers13K
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Following521
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Likes26K
Exciting news! AB 2180 unanimously passed through the California Assembly Health Committee, marking a critical step towards ensuring patients’ access to essential healthcare. This milestone brings us one step closer to making #AllCopaysCountCA. bit.ly/3w6Oufs
California could become the next state to ban #copayaccumulators, which force patients to pay twice for treatment just because they receive patient assistance. We have to ensure #allcopayscount & pass AB 2180 this year! Show your support: chronicdiseasecoalition.org/take-action/co… @asmakilahweber
Short-term health plans can hurt those who need quality care the most. Why? Because they aren’t required to follow the same rules as traditional insurance. That’s why we & 34 orgs applaud the @WhiteHouse for reining them in. More info: lls.org/sites/default/…
On #InternationalWomensDay, we celebrate the resilience, strength & contributions of women worldwide. 🌍 Today, we honor the countless female advocates & doctors tirelessly fighting against chronic diseases, offering hope and support to millions. Your dedication inspires us all!
Patients over politics--thank you @SenSanders @SenBillCassidy @lisamurkowski @SenatorHassan @HELPCmteDems @GOPHELP for your support of the #SafeStepAct. We KNOW this is the year to get bill passed.
Maryland ambassador, @TheAdvocateIsIn, is supportive of HB 1270 which has a hearing in @JPenaMelnyk’s committee today. The bill is a big step forward on #PBMreform. Check out an open letter Claire wrote about an experience she had with PBMs back in 2018: patientadvocateschronicle.com/blog/2018/3/13…
Stand up for fairness in healthcare. Support H.R. 485 and ensure our healthcare doesn't discriminate. #QALY #PatientsFirst @HouseCommerce
We are proud to join our friends @CancerSupportHQ in observing #WorldCancerDay, and collaborating on innovative and thoughtful ways to #CloseTheCareGap. #JustifiedMedicalMistrust #HealthcareEquity youtube.com/watch?v=1v7k8J…
Economic burden of approx 379 #RareDisease is est at 10 times higher than mass market diseases. This is why I advocate with @ChronicRights. #publicpolicy
Exciting news! Our CDC Ambassador, @chwcbak, is featured on @WebMD sharing his inspiring journey with kidney disease and living donation. We're immensely proud of his advocacy and the awareness he's bringing to chronic illnesses. Check out his story here: webmd.com/a-to-z-guides/…
This week marks a historic moment as @DonScott757 is sworn in as Speaker of the Virginia General Assembly. His journey is a testament to resilience and change. npr.org/2024/01/10/122…
#ActionAlert: Urge Congress to Pass the #SafeStepAct: votervoice.net/CHRONICDISEASE…
The CDC joins several patient advocacy organizations in urging a vote on HB 177 in Ohio. Chronic disease patients deserve to have #AllCopaysCount! @jasoncstephens
From all of us at the Chronic Disease Coalition, we wish you a Happy Holidays! May this season bring you health, comfort, and joy. Remember, we're in this together. 🌟
#ChronicUniversity TOMORROW: Thursday, December 21 — We’re celebrating a year of powerful #advocacy! December is the time when we discuss what happened in 2023 and share our 2024 policy priorities. Register at: us06web.zoom.us/webinar/regist…
🚨 Important read in @dallasnews on the challenges of insurance claim denials. At the CDC, we advocate for fair and transparent healthcare practices. Denying claims can have devastating effects on those with chronic illnesses. #PatientAdvocacy dallasnews.com/opinion/commen…
Join us in shining a light on IBD during Awareness Week. 🌟 Connect, share, and stand with the 1 in 100 Americans battling Crohn's & ulcerative colitis. Your voice can elevate research and foster a supportive community. Let's unite to Make #IBDVisible! @CrohnsColitisFn
Thank you @RepBradWenstrup for championing the #SafeStepAct at the @EdWorkforceCmte Member Day with @virginiafoxx! Let’s pass #SafeStepAct this Congress!
#ChronicUniversity: Thursday, December 21 — We’re celebrating a year of powerful advocacy! December is the time when we discuss what happened in 2023 and share our 2024 policy priorities. Learn more and register at: chronicdiseasecoalition.org/chronic-univer…
Wishing a delightful Thanksgiving to all! May this day bring warmth, happiness, and a little extra stuffing. 😉🦃 #ThanksgivingJoy
Tinu, Empress of Twer.. @Tinu
53K Followers 26K Following Writer. Speaker. Founder. Very Black. She/her I ♥️ #DisabilityTwitter @[email protected] NO DMs/#MutualAid tags!! See link for help. # in Contacts. #ForTinu
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Thomas Kline MD, PhD @ThomasKlineMD
34K Followers 20K Following 42 yrs rehab medicine; Hosp-in-Home Chief@Harvard-MGH; Stanford Peds,UOre PhD; JATH LLC CEO; National Pain Council Senior Advisor https://t.co/rRaWMYj6Ku
A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression
Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFriday
#MEAction Network @MEActNet
21K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Phoebe Boag @PhoebsBo
3K Followers 4K Following Life was once Leith, homelessness & a forklift truck. Life is now being chronically ill with ME & writing about it. Autistic. Smorky’s human. She/her.
Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
Lelena @LelenaPeacock
11K Followers 9K Following Human Being. pain patient, chronic illness, healthcare EDS/Arachnoiditis.
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Chris✞chronicpainDA.. @ChronicPainDad
24K Followers 22K Following Raising Awareness for #Chronicillnesses🎗Supporting all in #Chronicpain I’m in agony 24/7 but I’ll #NeverGiveUp #StayStrong #YouMatter ✝️ https://t.co/bW802UapEX
AJKD @AJKDonline
41K Followers 4K Following The American Journal of Kidney Diseases is the official journal of @nkf | 2022 Impact Factor: 13.2 | https://t.co/4McxH1FImg | https://t.co/jbvs9ghvKP
NKF Advocacy @NKF_Advocacy
3K Followers 529 Following We work with Congress, federal agencies, and states to further legislation and regulations that improve care for kidney disease patients. #MyKidneyVoice
Cathy Chester @CathyChes
10K Followers 9K Following Certified Health Advocate. Patient Leader for MS community. Lifetime Achievement Award, @socialhealthnet Living with #multiplesclerosis for 38 yrs #IBS Wife/Mom
Dr. Brandon Beaber @Brandon_Beaber
16K Followers 2K Following Neurologist and MS specialist. YouTube creator. Author of "Resilience in the Face of Multiple Sclerosis". Father of 2. Tweets my own & not medical advice.
Pajama Daze @PajamaDaze
12K Followers 12K Following Website for those w/chronic illness, pain & fatigue. By author of When Bodies Break, Cameron Auxer.
Barby Ingle Official @BarbyIngle
21K Followers 9K Following #AZ State Rep Candidate #LD7 |#PCRC D5, | #IAm #Writer #RareDisease #ChronicPain, #UniversalPetite, Creator of #NERVEmber | husband - @KenRayTaylor
Donate Life NW @donatelifenw
3K Followers 3K Following Visit our website to register as an organ, eye and tissue donor in Oregon! Also, find free educational resources and programs.
Dawn Woodland @woodland_d27647
5 Followers 91 Following
RheumaWarrior @steffie_davis
120 Followers 498 Following "Life's temporary - enjoy the ride! If you know, you know. Embrace the moment and let loose. Make memories and cherish every moment. 🌟"
Prabhu Prasad N.C @docprasadprabhu
1K Followers 5K Following Head,Interventional Pulmonology,@ManipalHealth,Goa Founder @interpneuma Intervene-Transplant-Palliate
Munish Sharma @Muneesh94
357 Followers 3K Following RA under @sharanidli @siddyg88 | Previously at @Pratham_India @asercentre | Interested in Development and Policy | Dharamshala, HP
Dawn H BSN, RN 🇺�.. @hugnrn
807 Followers 2K Following Registered Nurse, Home Care, IH Warrior, 🧠Chronic Migraine Warrior 💜,🐈Crazy Cat Lady! #fullyvaxxedandboosted #VoteBluetoSaveDemocracy 💙💙 🚫MAGA
mx1rav55gp6e57h @bstholqzf1edzn
2 Followers 469 Following 35歳、独身、女性、ゴルフ好き、ヨガ練習、ダイビングショッピングhttps://t.co/onKhX1MGhW
fastenhealth @fastenhealth
131 Followers 2K Following Fasten Health lets you collect and store your medical record on your device. No cloud, no cost, no fear of data brokers selling your medical history.
Let My Doctors Decide.. @action4patients
7 Followers 18 Following LMDD Action Network advocates for meaningful policy reforms to eliminate barriers that keep patients from accessing their doctor-recommended medicines.
CRPS Awareness @CRPS_Awarness
390 Followers 1K Following CRPS RSD Warrior and I love designing notebooks and T-shirts. If you need one I can get it for you from Amazon
Midwest Hemophilia As.. @MidwestHemophi1
64 Followers 116 Following A non-profit group with a mission to educate, advocate, & inform the world about bleeding disorders!
Ashley Gray, MPP @AshleyGrayMPP
55 Followers 455 Following Medicaid policy wonk and Executive Director of Aligning for Health dedicated to developing policy solutions to address social determinants. Views are my own.
Mayweather moyo @Mayweathermoyo
70 Followers 286 Following
MetalMama1987 🔸Bri.. @MetalMama1987
5K Followers 5K Following Mom | 2x Cancer Survivor| Music, Gaming, Tech, Sports, Movies, TV Fanatic ⚖️🎵#AutonomicDysreflexia #BrownSequardSyndrome #SpinalCordInjury #Disabled #Gamer
Afzaal Hussain @AfzaalHuss7922
68 Followers 138 Following Hi I am Afzaal, I will provide you all types of English movies Information.Thanks a lot
Nick Knowles @Moronface894
277 Followers 2K Following
Shuaibu Mohammed Bell.. @ShaibuBell45975
32 Followers 325 Following
BCusickRuff @cusickruff
25 Followers 161 Following M. Ed. in Counseling Psychology. Graduate student in Food Studies. News junkie. Plays with Pit Bulls.
Ryan @CureHDWeWontBe
153 Followers 383 Following 45 with Huntingtons disease. Bachelors in Finance. Did 12 Spinal taps in tominersen trial now in Sage. Advocating for $3 Billion annually to cure rare neuro.
B/\LTH/\ZAR & Dutch V.. @BalthazarBBB
661 Followers 2K Following ALL MONSTERS ARE REAL. 🦓 🥄 🌚 Follow the PSIence 🤓 Microbiology nerd AF - if you can’t see through the matrix glitches, ask someone for help!
Rachel Elizabeth @IsolaDiDolce
3 Followers 30 Following
J1 Chod @J1Chod46397
282 Followers 3K Following
Simmaron Research @RedefiningMECFS
4K Followers 397 Following Official Twitter account for Simmaron Research, a non-profit scientifically redefining ME/CFS. Visit our site to learn more.
Maria Valentin @MariaVa12389124
33 Followers 59 Following Championing mental health awareness and support for those navigating depression. Together, let's erase stigma and promote healing. 💙 #MentalHealthMatters
Farman @Farman874901
72 Followers 667 Following
Basavarajnmath @Basavarajnmath1
112 Followers 2K Following
Rooster_Sleuth @roostersleuth
156 Followers 1K Following ~Mom of 2~MS warrior🧡~llama lover~grad degree ~♥️~my pets 🐈⬛🐈🐕🦺🐩🦎🔪~true crimeaholic~ ~laughter=medicine~emoji over-user🙄
BOSS HOG Racing Torqu.. @hog_torque
511 Followers 2K Following Best High Performance / Racing Torque Converter Manufacturer made right here in the USA for more than 50 years! We make The Original BOSS HOG Torque Converters.
Abdi Almanza @AbdiAlmanza
59 Followers 171 Following
Looms4Lupus @Looms4Lupus
2K Followers 1K Following Looms For Lupus-501c3 provides bilingual resources & support to minority families affected by Lupus,Fibromyalgia,mentalhealth https://t.co/6ueEPl9VKu
NWRareCoalition @nw_rare
28 Followers 75 Following We support the PNW’s rare disease community through programming, education, and by articulating a bipartisan policy platform to inform and engage policy makers.
Keesha Pink @KeeshaPink1
504 Followers 379 Following Proud Mama -Registered Nurse 🩺-Wellness Advocate -NO FEAR -NO GUILT- NO SURRENDER
Monica Wilson @MonicaWilsonCA
59 Followers 231 Following Paid for by Monica Wilson for Assembly 2024
Living Successfully W.. @illandwell
197 Followers 368 Following Sharing how I went from bedridden to thriving with chronic pain/illness using my 20 year experience as a Registered Nurse @ https://t.co/5RDhvdcc7e
Felicia Kate Solomon @myfacialpain
607 Followers 1K Following Head and Neck Patient seeking a Diagnosis and Medical Treatment for Benign Disease. Writer and Blogger
Dallas County Health .. @DallasStories
113 Followers 434 Following DALLAS COUNTY HEALTH STORIES is a campaign based on a single idea: We all, in our heart of hearts, desire to be healthy. https://t.co/HgnN3FPRJz
Lindsey Viscarra @LindseyViscarra
11 Followers 279 Following State Policy Manager, Western Region at National Organization for Rare Disorders. Health Policy Expert. Thoughts are my own.
Jes Valencia @Jes_Valencia_
684 Followers 4K Following Independiente, amante de las letras, la musica y la cultura visual. Inspirado en la naturaleza y las nostalgias de la vida. #YoEscribo #LosReyesMichoacan
Laramie Langdon @LaramieLAL
62 Followers 412 Following (She/her) Stingers up! Cat mom, opinions are my own.
Jesus Guillen, Advoca.. @LNGTERMSURVIVOR
1K Followers 1K Following #GlobalSpeaker #Advocate #hivlongtermsurvivors Int. network founder. #HIV/AGING/ChronicPain independent consultant. #Singer/songwriter/actor- Tshirts available
Debra Schwab @DSchwab57
183 Followers 1K Following
Tejdhar @Tejdhar4
172 Followers 2K Following Social Worker,Human Rights Activist, Motivational Speaker, True follower of Constitution of India
Bruce Alan Fries @BruceAlanFries
432 Followers 405 Following Advocate for patient-centered health care, entrepreneur, author, cave explorer, heavy equipment operator and occasional trouble maker. I throw good parties.
Foremost @ForemostHealth
644 Followers 2K Following A Texas leader in health care, we are known for treating all patients with dignity and respect. https://t.co/RS0VVEdpSK
Anna Williams @eagleswings2004
117 Followers 215 Following Indiana resident with Cluster Headache, Migraine Headache, Trigeminal Neuralgia
Maya Lindemann @MayaLindemannRN
1K Followers 1K Following RWJF ClinicalScholars Alum, School Nurse, scientific diver/ocean lover stranded by #longcovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Tinu, Empress of Twer.. @Tinu
53K Followers 26K Following Writer. Speaker. Founder. Very Black. She/her I ♥️ #DisabilityTwitter @[email protected] NO DMs/#MutualAid tags!! See link for help. # in Contacts. #ForTinu
#MEAction Network @MEActNet
21K Followers 3K Following A global network fighting for equality for Myalgic Encephalomyelitis. #MEAction #MillionsMissing https://t.co/JhhNZoFYJi
Cynthia Covert, The D.. @TheDisabledDiva
17K Followers 13K Following 🤕My chronic life, 💡lifestyle tools, 🛍 product reviews, & 🏰 Disneyland accessibility ♿️ 💜 Fibromyalgia 💙 Psoriatic Arthritis 💛 Endometriosis
Multiple Sclerosis Ne.. @MSNewsToday
11K Followers 2K Following We are a free digital publication dedicated to sharing the latest news, research, and Multiple Sclerosis patient perspectives.
Lupus Foundation of A.. @LupusOrg
46K Followers 1K Following Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.
NKF Advocacy @NKF_Advocacy
3K Followers 529 Following We work with Congress, federal agencies, and states to further legislation and regulations that improve care for kidney disease patients. #MyKidneyVoice
Lupus Research @LupusResearch
49K Followers 900 Following The Lupus Research Alliance is the world’s largest private funder of lupus research. Together with your help, we will conquer lupus.
Donate Life NW @donatelifenw
3K Followers 3K Following Visit our website to register as an organ, eye and tissue donor in Oregon! Also, find free educational resources and programs.
National Kidney Found.. @nkf
44K Followers 909 Following We’re fighting to eliminate preventable kidney disease, accelerate innovation, and dismantle structural inequities in kidney care. Join our fight.
AMA @AmerMedicalAssn
744K Followers 7K Following Physicians' powerful ally in patient care. RT does not equal endorsement. #FightingForDocs @AMAmedstudents
National MS Society @mssociety
69K Followers 378 Following We will cure multiple sclerosis while empowering people affected by MS to live their best lives.
Darcy Bonjour @DarcyBonjour
157 Followers 294 Following PROS: Loves Jesus, family, health advocacy, laughing & naps CONS: Deaf, dizzy, long covid first waver, distorted taste/smell, migraine & more. Life is Good 🦙🦩
BCusickRuff @cusickruff
25 Followers 161 Following M. Ed. in Counseling Psychology. Graduate student in Food Studies. News junkie. Plays with Pit Bulls.
THE UNDERGROUND ATTIC.. @UndrgrndAttic
35 Followers 145 Following Goodies for the Dark and Snarky at heart. Gothic home decor, crafts, jewelry, accessories, and apparel. Custom embroidered designs, patches, et. al.
Charles Henderson @ChuckatADA
374 Followers 351 Following Fighting for a world without #diabetes│When WE FIGHT together, we change lives!
Looms4Lupus @Looms4Lupus
2K Followers 1K Following Looms For Lupus-501c3 provides bilingual resources & support to minority families affected by Lupus,Fibromyalgia,mentalhealth https://t.co/6ueEPl9VKu
Heidi Ryer @hfxmomability
2K Followers 5K Following The silver lining is my jam, #BetweenDreams 🎊 🌺🥰 #NSReLearnToEarn #EDs #hEds #BrainInjury #ABI& Sammy the Spider Fan🌻
Rep Nancy Nathanson @Rep_NN
658 Followers 40 Following Official account of Representative Nancy Nathanson
Keesha Pink @KeeshaPink1
504 Followers 379 Following Proud Mama -Registered Nurse 🩺-Wellness Advocate -NO FEAR -NO GUILT- NO SURRENDER
Monica Wilson @MonicaWilsonCA
59 Followers 231 Following Paid for by Monica Wilson for Assembly 2024
DafnaMichaelsonJenet @dafna_m
5K Followers 2K Following Colorado State Senator-elect SD21 Author: It Takes a Little Crazy to Make a Difference. #coleg
Akilah Weber, MD @drakilahweber
3K Followers 174 Following I am a physician, mother and member of the California State Assembly representing the 79th District.
Mark A Wheatley @RepMarkwheatley
2K Followers 117 Following I am serving in the Utah House of Representatives District 35 and Vice President of NHCSL. My district encompasses Murray, Millcreek and Taylorsville.
Sen. Liz Boldon @LizBoldonMN
3K Followers 2K Following Mom. Nurse. Educator. Advocate. MN State Senator for District 25 #ALLIN
Tom Oliverson, M.D. @TomOliverson
6K Followers 662 Following Republican State Representative, House District 130
Israel O'Quinn @IsraelOQuinn
5K Followers 929 Following I represent the 44th District in the House of Delegates and serve as Deputy Republican Leader. No taxpayer funds used for this account.
Living Successfully W.. @illandwell
197 Followers 368 Following Sharing how I went from bedridden to thriving with chronic pain/illness using my 20 year experience as a Registered Nurse @ https://t.co/5RDhvdcc7e
Dallas County Health .. @DallasStories
113 Followers 434 Following DALLAS COUNTY HEALTH STORIES is a campaign based on a single idea: We all, in our heart of hearts, desire to be healthy. https://t.co/HgnN3FPRJz
Kristen Mueller @kristenmueller
590 Followers 326 Following VP, Autoimmune Arthritis Research at @@ArthritisFdn. Immunology enthusiast, dog lover, mom to twins. My views are solely my own.
Anna Williams @eagleswings2004
117 Followers 215 Following Indiana resident with Cluster Headache, Migraine Headache, Trigeminal Neuralgia
Maya Lindemann @MayaLindemannRN
1K Followers 1K Following RWJF ClinicalScholars Alum, School Nurse, scientific diver/ocean lover stranded by #longcovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
RTHM @RTHM_Health
4K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Efren Martinez Jr. @EfrenMartinezJr
282 Followers 232 Following
Avery's Hope @AverysHope1
385 Followers 303 Following Avery's Hope raises awareness for rare, ultra rare and undiagnosed pediatric GI patient families helping with out-of-pocket and insurance denied expenses.
Global Psoriasis Atla.. @PsoriasisAtlas
3K Followers 1K Following 4 Key Research Areas - Our aim is to uncover & generate defensible data on the epidemiology of psoriasis for every country of the world.
NAMI Westside Los Ang.. @NAMIwla
2K Followers 753 Following We provide education, support & advocacy for those affected by mental health conditions on the Westside in Los Angeles. https://t.co/5kdq5lvZfu
Erick Johnson @Rongway3
358 Followers 2K Following Husband/Father of 3 》MS WARRIOR ADVOCATE OF MS/HEMOPHILIA ♡
Oxford Cannabinoid Te.. @OxCanTech
2K Followers 1K Following A biotech company combining cannabinoid medicine with world-class scientific research.
ApplPharmSolutions @ApplPharmSolns
252 Followers 101 Following
International Foundat.. @IFAiArthritis
4K Followers 3K Following We impact education, advocacy, & research for those with AiArthritis diseases by addressing patient-identified issues and creating patient-infused solutions.
My Patient Rights @myhealthrights
827 Followers 976 Following Frustrated with your insurance? Denied medication or treatment? We're here to help health care consumers throughout the nation get the care they need & deserve.
Liver Coalition of Sa.. @LiverCoalition
116 Followers 181 Following To save lives by improving liver health and preventing liver disease through community-based education, linkages to care, advocacy and research programs.
CCFheartkids @CCFheartkids
1K Followers 680 Following The Children's Cardiomyopathy Foundation (CCF) is a non-profit organization focused on pediatric cardiomyopathy, a chronic disease of the heart muscle.
MAGIC Foundation @magicfoundation
1K Followers 948 Following MAGIC Foundation is the global leader in endocrine health, advocacy, education, and support for adults and children with growth disorders.
Andrew Morris @andrewmorrisuk
16K Followers 2K Following Passionate about how IT solutions can bring positive value to our business and personal lives. Proud #autisticparent. Son of a parent with #dementia
Patient Pocket Protec.. @PatientPocket
97 Followers 103 Following The Patient Pocket Protector Coalition brings together a diverse group of chronic illness stakeholders to form a unified coalition for political action.
Governor Eric Holcomb @GovHolcomb
79K Followers 901 Following Hoosier, Husband, Navy Veteran, Dog Dad, 51st Governor of the Great State of Indiana
Association of Migrai.. @MigraineDisordr
7K Followers 2K Following Expanding the understanding of #migraine with research, education, and awareness. Support research by donating at https://t.co/EVcsckNZ36
OA Action Alliance @oaactionallianc
2K Followers 987 Following A national coalition promoting effective programs, policies and communication strategies to prevent and control osteoarthritis. #StandUp2OA #OACareTools
Beth Urban @burbanrd
285 Followers 398 Following Beth Goldfarb Urban. Registered Dietitian (RD), Certified Dietitian/Nutritionist (CDN) Certified Diabetic Educator (CDE), RunJunkEe, Marathoner, Ultramarathoner
JP Summers @authorjpsummers
4K Followers 5K Following #1 Best Selling Author / Senior Patient Advocate Community Outreach Manager @GHLForg #migraine #heartdisease #rheumatoidarthritis / Tweets Are My Opinion
Dr Mary Ann Wilmarth @Back2backPT
3K Followers 5K Following #BeKind #Empathy PtDrPtAdvocate #DPT #OA #PI #CVID #PsA #Sjogrens #Arthritis #Immune #Migraine #Colitis #Endo #Zebra IG: @Docmaw_co @SunSeekerMiMi3
The Rare Disease Comp.. @RareCoalition
469 Followers 351 Following We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve. #OneRareVoice
Governor Joe Lombardo @JosephMLombardo
14K Followers 138 Following 31st Governor of Nevada. Veteran. Former Sheriff of Clark County. Believer in the Nevada Way.
Dan Weiner @DanTheKidneyMan
2K Followers 956 Following Kidney doc, family guy, Go Pats, Sox and C’s! Vaccines highlight the best of people, combining great science with a unified goal to protect others. Get vaxxed!
Immune Deficiency Fou.. @IDFCommunity
8K Followers 1K Following The Immune Deficiency Foundation improves the diagnosis, treatment, and quality of life of people affected by primary immunodeficiency.
Rep. Lucy McBath @RepLucyMcBath
55K Followers 582 Following Mother. Fighter. Congresswoman. If you need help with a federal agency, please call my office at (470) 773-6330 or visit https://t.co/z9i7IG2RFZ.
Just Crohning Around @hardy_kita
32 Followers 26 Following I'm fearfully and wonderfully made. I am a Crohn's Disease patient and advocate. COCCI Ambassador COCCI Advocate IBD WARRIOR
Camille Bonta @csbonta
192 Followers 296 Following Health Policy Consultant All tweets and corresponding views are my own
All Copays Count Coal.. @copayscount
183 Followers 99 Following The All Copays Count Coalition is 80+ patient and provider orgs working to ensure that all copays made by or on behalf of patients for medications are counted.
@nkf Sharon Pearce, Senior Vice President of Government Affairs at the National Kidney Foundation, stopped by to say hello & even met with Curtis Warfield and myself with Andrew Murray from Senator Young's Office to lend support at the 2024 NKF KIDNEY SUMMIT. #KidneySummit
@ChronicRights On this National Donor Day, I remember my Father, James W. Myers, Jr., A PKD PATIENT who did not receive the same opportunity that I had to receive a Kidney Transplant. Support the Living Donor Protection Act
@ChronicRights My Video For Rare Disease Day
Economic burden of approx 379 #RareDisease is est at 10 times higher than mass market diseases. This is why I advocate with @ChronicRights. #publicpolicy
who got The Duck actin like this at 9 in the morning?
A U.S. judge has struck down a Trump administration rule that allowed health insurers not to count copay assistance offered by drug companies toward out-of-pocket costs. trib.al/t89a3Dz
Patients need to stick together to protect our access to vital medications. HUGE THANK YOU to the 29 other patient groups that joined us and @HIVHep to fight against big insurance & PBMs' copay accumulators. This could only be done with your support.🤝
📢 Big news! We won our lawsuit w/ @DiabetesPAC and @HIVHep to fight for patients denied copay assistance under an illegal HHS Rule. Now Big Insurance companies and PBMs have to play fair & ensure patients get the support they need for their medications. diabetesleadership.org/news/court-str…
@ChronicRights Did You Miss The Broadcast With Ed Hearn, 4x Kidney Transplant Patient, World Series Champion, Author, Award Winning Speaker, Ambassador for NephCure? Catch The Instant Replay Here! fb.watch/mXxaRwXWS5/?mi…
@ChronicRights Did You Miss The Broadcast With Our Guest David Perchinsky, Dialysis Patient, Former Coach and Teacher, Currently Seeking a Kidney Transplant? Catch The Instant Replay Here! m.facebook.com/story.php?stor…
Looking forward to starting as a rare disease legislative advocate with @RareAdvocates for those in #Nevada & beyond! See you this week @SenJackyRosen @MarkAmodeiNV2 @SenCortezMasto policy needs. @DhhsNevada @gbscidp @ChronicRights @RareDiseases
Nephrology researchers create cellular map of human kidney. A privilege to work with members from IU School of Medicine on this NIDDK Kidney Precision Medicine Project (KPMP). medicine.iu.edu/news/2023/07/n… nature.com/articles/s4158… medicine.iu.edu/news/2023/07/n…
@ChronicRights Did You Miss The Broadcast With Cynthia Infante, 2x Kidney Transplant Recipient, Mentor and NKF Kidney Advocate? Catch the Instant Replay Here! Cynthia Has A Very Compelling Kidney Story! m.facebook.com/story.php?stor…
@ChronicRights Did You Miss The Broadcast With Gregory McNamee, Kidney Dialysis Patient, who is actively seeking a Kidney Transplant. Catch The Instant Replay Here! Join us and hang out with Uncle Jim! fb.watch/lQ3BJQhlo2/?mi…
I am honored to be on this panel and represent @NKFofIndiana discussing care for older people in the African American community at the @INBlackExpoInc Black and Health Fair. #MyKidneyVoice @ChronicRights @NKF_Advocacy @hdunews
Thank you @ChronicRights !!
Thank you @ChronicRights !!
133M Americans live with 1+ chronic illnesses. Don't fight alone. Today I spoke on a Legislative Champions panel at the Chronic Disease Month Symposium advocating for federal #steptherapyreform with the #SafeStepAct! You can catch me at 1:27:00 #CDM23 streamyard.com/watch/jr8ZAR9k…
TODAY! To help drive action on bipartisan policy solutions, @Terrilox will be speaking w/ @ChronicRights about efforts underway at state/federal level to improve access to care. Join us & Sen. @lisamurkowski. Register: hubs.ly/Q01X8DYs0. #ChronicRights #CDM23
We’re in our “dancing to Taylor’s new album” era. What’s your go-to song (from any artist) to listen to during dialysis sessions? #SpeakNowTaylorsVersion
Kidney disease is one of the most common #chronic conditions. We hope you'll join our partners at @ChronicRights for their symposium on Monday! #CDM23
Meet the speakers! Join us Monday, July 10 for an in-depth discussion about chronic disease patients and what you can do to help fight for patient rights. Register today: streamyard.com/watch/jr8ZAR9k…
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