A Chronic Voice @AChVoice
I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depression achronicvoice.com Singapore Joined November 2015-
Tweets65K
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Followers18K
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Following14K
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Likes298K
“When #reading #fiction, your #brain takes notes of all of the details and gets into #criticalthinking mode to try to figure out what happens next, a practice that is useful not just when reading but in day-to-day life and work": buff.ly/3vSEoP5 by @anthilemoon #mind
“While these are..natural responses, if you find yourself replaying these thoughts & fears..they only make u feel worse & it’s challenging enough getting through a flare & living with pain”: buff.ly/3HHQBbx from @APainPrincess #ChronicPain #coping #PainFlare #MentalHealth
"We can work on sharing the reality of our #experiences, and speak up for those who can’t or aren’t ready to do so yet. We can remind others of what it means to be #human, and how to behave like a decent one": buff.ly/2DWm4In #ChronicallyIll #spoonies #disabled
“I want to be able to make decisions about my #healthcare with my #healthcareprovider, and if they’re not open to my input then that’s not a #doctor that’s going to work for me”: buff.ly/3xwAUCd via @isabellacueto #ChronicIllness #lupus
“But change and growth are inevitable, and clinging onto the past won’t serve you in any way. Look to the future and who you want to be there": buff.ly/47W3idF by @janetkjay #personalGrowth #PersonalDevelopment #spoonies #ChronicallyIll #SelfLove
“The affirmation I received at the #clinic was itself a tonic. We need this kind of #accessible, patient-centered care everywhere, not just in New York City but also in the #hospital deserts that have arisen around the country": buff.ly/49yXI1B from @TIME #LongCOVID
"We don’t always know if a #symptom is related to our condition or if it’s a #sideeffect of #medication..have no idea if there’s a new issue. We just get so used to pain, tiredness & feeling unwell that it becomes #normal": buff.ly/41NQSCM by @DespitePainBlog #ChronicPain
“If yr just able to look at one or two proteins, you’re missing the big picture..We can now image as many proteins and other features as we want, in a very elegant and fast manner.””: buff.ly/3JeIfsL from @YaleMed #MedicalResearch #ScientificResearch #cells #microscopy
“sharing your illness experiences on #socialmedia, can lead to rude reactions, #gaslighting or #toxicpositivity. And getting upset over mean comments of strangers on the Internet is not what you need”: buff.ly/3SnQ6bE #MentalHealthMatters #InvisibleIllness
“The pursuit of #meaningful work, #happiness, and #wealth is deeply personal. What makes you #happy may not guarantee life satisfaction for another": buff.ly/3xv8dWh via @Postanly #QualityOfLife
“The most surprising part of getting better with conditions like #fibromyalgia and #chronicfatiguesyndrome is the sheer amount of work it takes to maintain it": buff.ly/3POL4p0 by @thefibromama #pwME #ChronicallyIll #InvisibleIllness
“Rosalie: There is still a lot of #stigma & misunderstanding attached to hep C. Most people assume that u contract hep C either bcos of intravenous drug use or homosexual relationships. Neither applied to my case”: buff.ly/4aLtGsp from @Healthline #HepatitisC #advocates
"Travel can be made easier by using #nausearelief bands..Using #acupressure, they have been used for centuries and are an evidence-backed non-drug way of managing #motionsickness": buff.ly/3IVNIEJ @throughfibrofog #Vestibular #dizzy
“I was chatting w a girl who lives w #Crohns..& she was telling me..hw the nurse told her that she had to go to the hospital if her #pain levels were at a ‘2’, as her tolerance had bcome that high” (What's It Like to Live in #Singapore w #ChronicIllness?): buff.ly/2D03kI7
“The solution might not always be to suppress your conflicting #desires, but to acknowledge and address the external factors that might be fueling the source of #conflict”: buff.ly/43wcpRu from @guardian #impulsiveness #Badhabits #SelfAwareness
“It helps #patients to cope with the enormity of what is happening to them, allows them to express their #emotions or #pain & helps..by distracting them fr pain, which allows them to cope with their daily #challenges with #chronicillness": buff.ly/352t0zv @globetrotteri
“Start out with small nos. Similar to how exposure therapy is used to help overcome phobias, you could start with saying no in low-stakes situations and then build up to more challenging & awkward contexts": buff.ly/46tciXc @psyche_the_mag #MentalHealthMatters #SelfCare
“I’ve come to understand that the #expectations of an “adult” are really the expectations of capitalism. As a #disabled adult, I’ve had to come to terms with needing #accommodations and asking for help every day”: buff.ly/3P83wHm @TheMightySite #disability #adulting
“"You don't really appreciate it until it's gone..'I don't know if I'm ever gonna be able to see again. I don't know if I'm gonna be able to hear again..I'm lucky to be alive." - #AshtonKutcher”: buff.ly/4aMNpIK via @1997_sojwjwjw #Chronicillness #celebrities #Awareness
“But behind closed doors, I witness the toll it takes on [my husband] – the exhaustion, the crashes, the moments when the facade crumbles, and the reality of his illness comes crashing down": buff.ly/3xPVHBa #InvisibleIllness #ChronicPain #ChronicIllness #ChronicFatigue
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11K Followers 877 Following Comprendre les grands enjeux de notre époque grâce à la science et aux technologies 🔬🌍 . 📩 Abonnez-vous à la Newsletter : https://t.co/ABr4iDhndD
MOOCs @MOOCsNews
5K Followers 37 Following Latest Global MOOCs & Free College NEWS by Augusto Failde - https://t.co/9NhCHYXzWh…, https://t.co/B7ddshAE8Q,MOOCs Directory,MOOCs App, MOOC Petition
Postive Change🌻�.. @RAWolutionary
3K Followers 4K Following (R)heumatoid (A)rthritis (W)arrior, Nutrition,Fitness,Wellbeing & Positivity🍏Juice Enthusiast🍹 & Tea Lover🫖 #talkmentalhealth #talkchildhoodtrauma
Jeremy @FocusThruTheFog
45 Followers 60 Following
Allison Wallis @wallis_all3779
47 Followers 335 Following Disability Beat Journalist Also @allylovespono https://t.co/sQGkeNvqeK Master of Typos, Raiser of Hell https://t.co/YiBlrNGano
Iman إيمان 🍉 .. @alilbitofaith
386 Followers 1K Following #ALilBitOFaith 🇧🇩🤲🏾🏳️🌈 Founder of @DearDisabled_ Newsletter assistant for @WishboneWords team Use code IMAN for 10% off @LiberareCo
Janet Morgan @jem0955
71 Followers 220 Following BED in Sec Art Ed. - 1976. MA-ABS in Leading and Consult - 1992. Diag with ME/CFS - 2003. My life ended.I can now only lay in bed or sit on the sofa since then.
Rebekah Salsbury @RebekahSalsbury
31 Followers 287 Following Single mom of 2, homeschooler, freelance writer.
Neil Clark @NeilClark74
361 Followers 626 Following Physiotherapist working in chronic pain. Teaching Fellow at University of Edinburgh. Rugby lover, coaching, playing, watching.
Shamekka Marty @prettylupuschic
231 Followers 1K Following I'm not chronic. I'm ICONIC. Advocate*Speaker*Influencer*Cyber HIT Girl Patient Leader at Health Union 📧Bookings: [email protected]
BeNourishedUK @BeNourisheduk
302 Followers 946 Following MSc | Researcher | Natural Health Practitioner | Complex Chronic Health Conditions | Long Covid Specialist |
Claire @MHmummaBear
2 Followers 9 Following Mummy to Freddie and brewing baby number 2 🥰 Mental health warrior 💪
#Fibromyalgia "I couldn't wait for doctors...I can't wait for science. No disrespect intended to anyone...but I simply can’t wait. I can’t just wait...for someone else (to help me)...and I don’t think I need to!" #WhatIKnowIsReal soisfibromyalgiareal.com/i-cant-wait-fo…
Don't tell me this night is over.. #fibromyalgia
Okay så hemma efter sex dagar på jobbet och armarna skakar,Merkurius och håret trasslar fortfarande och så ska det SNÖA på Ingarö en gång till?Jag går och lägger mig #fibromyalgia Med tyngd täcket och barn pyjamasen.
Patients with fibromyalgia display enhanced sensitivity to a wide array of stimuli, such as heat and cold, as well as to mechanical and ischemic pressure. ~ Laurence A. Bradley PhD Pathophysiology of #Fibromyalgia
"Depression is listed as one of the secondary symptoms of #Fibromyalgia and it is fair to say that I have at times fallen victim to it." ~ Susan Pearson 🦋 @creativefibro buff.ly/3mMR7J0
Has having chronic pain changed how you view your furniture? I hate my memory foam mattress. I can't stand to sit on my leather couches anymore due to pain. Has this happened to you? The most comfortable chair I own is my grandmother's old glider. #chronicpain #fibromyalgia
A young person in a chronically ill body is something I wouldn’t have expected to become but you gotta work with what you have I guess #spoonies #ChronicPain #Fibromyalgia
My fellow #ChronicPain survivors know the value of a bodywork person who when you go 'my shoulder hurts' massages your wrist and makes it all better Thank god for the #healthcare ppl
Graduated med school in '75 and has seen enough to be believed. My heart goes out to all. #MECFS #HIV #ChronicPain #depression #pain #mentalillness
“ME/CFS patients feel effectively the same every day as an AIDS patient feels two months before death; the only difference is that the symptoms can go on for never-ending decades.” Prof. Mark Loveless, Head of the AIDS and ME/CFS Clinic at Oregon Health Sciences #MECFS…
Every time a doctor, friend, or loved one dismisses, downplays, or denies our pain— it's often worse than the pain itself. #CRPS #CRPSWarrior #ChronicPain @APainPrincess
Linda Hunter shares her list of self-management journey. #PWLE Each person with #ChronicPain has a different journey. 👉🏻What does your list look like? #CanadianPain24 #patientsincluded
Great seeing @adfurlan IRL @CanadianPain conf and receiving a signed copy of her book at my presentation! Thanks for all you do #PLWP #PWLE #ChronicPain #PatientEngagement 😊👍
What is dystonia and what does it feel like? tomseamancoaching.com/dystonia-feel-… #MoveDisorder #dystonia #parkinsons #essentialtremor #ataxia #dyskinesia #huntingtonsdisease #multiplesystematrophy #myoclonus #spasticity #tourettesyndrome #wilsonsdisease #chronicpain
'Rockelle says singing has become part of her "self-deigned therapy program" in managing her FND and chronic pain.' ow.ly/q5Ac50Rqkfz #ChronicPain
Stop calling sick and #disabled people brave. It is belittling. It isn't our choice to #suffer. #chronicpain #disability
Enjoy your Monday everyone 🫶🏻 👉Motivational Memoir: books2read.com/ChantalAgapiti 👉Healing Memoir: books2read.com/UnwantedChildH… 🔔Subscribe #YouTube youtube.com/@ChantalAgapit… #indieauthor #WomenEmpowerment #selflove #ChronicPain #MentalHealthMatters #MondayMotivaton #booktwt
Consider joining Chronic Pain Ireland, and avail of: 💡 our workshops, 💡 courses, 💡 join us for a talk, 💡 chat with others living with pain, 💡 guide researchers and trainers. 🔎 chronicpain.ie/become-a-membe… #chronicpain #invisibleillness #chronicpainsupport #PainManagement
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