Looms4Lupus @Looms4Lupus
Looms For Lupus-501c3 provides bilingual resources & support to minority families affected by Lupus,Fibromyalgia,mentalhealth https://t.co/6ueEPl9VKu looms4lupus.org Worldwide Joined September 2018-
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📢 Advocacy for Obesity Care in CA! On 2/24/24, our President @estelamata & Vice Chair @CAChronicCare & Dr. Wesley Mizutani Boardmember of @patientaccess testified in support of @SenBradfordCA #SB1008, a bill to expand health insurance coverage for obesity treatment options.
Advocacy in Action: Looms For Lupus & Mata Advocacy and Support At @Looms4Lupus & @MataAdvocacy, we’re passionate about eliminating disparities among racial & ethnic minority populations disproportionately affected by lupus & related chronic conditions. @JuanaMataa @estelamata
“Life is like a vibrant market, full of colors, flavors, and opportunities. Raise your hands in joy for today’s victories, big or small, and make every moment a celebration. Let the lively hustle of life inspire you to savor each experience at the market of existence."
Let’s tune in & support this vital conversation discussion on the undeniable impact of sex & gender on autoimmune diseases. @SWHR, @LupusTherapuet, @Looms4Lupus, and @UVA addressing the unmet needs in autoimmune disease care. #AutoimmuneAwareness #HealthcareInnovation
Let’s tune in & support this vital conversation discussion on the undeniable impact of sex & gender on autoimmune diseases. @SWHR, @LupusTherapuet, @Looms4Lupus, and @UVA addressing the unmet needs in autoimmune disease care. #AutoimmuneAwareness #HealthcareInnovation
We are reflecting with gratitude on an impactful event earlier this month at @WestwoodLAPL with partners and friends: @nnlmAoU, @AllofUsCA, @LALGBTCenter, @AllofUsResearch, @KECKSchool_USC, @UCLAHealth, @iamdanielggarza, @Looms4Lupus, @LAPublicLibrary, and @LACityClerk. We…
@BraveBosom Please help us get the word out! cc: @cvonraesfeld @estelamata @ellabalasa1 @afreshchapter @GRASPtweets @MyStyleMatters2 @HealthHats @stales @MayaRockeymoore @mike_mitt @Looms4Lupus @Maimah @ValRobinson8 @JillHoldren
Always a great day when we go to Capitol Hill to fight for patient rights. We are hearing good things about pro-patient legislation but we won't stop fighting for patients. Ever! @ATAPAdvocates @HarryGewanter @estelamata @Looms4Lupus @AngusWorthing @coreygreenblatt @StevenNewmark
Meeting w/ Minority Leader Hakeem Jeffries staff to talk about reducing patient costs @coreygreenblatt @StevenNewmark @AngusWorthing @HarryGewanter @estelamata and other patient and provider groups. @Looms4Lupus
Únete a la Platica con Las Hermanas Mata Estela y Juana este Sábado 13 de Abril, 2024 a las 8:00am PST en vivo! Platica, Apoyo y Concientización sobre #Lupus, #Fibromialgia, #SaludMental y Familia en Español para toda la familia. #Matasisters x.com/i/broadcasts/1…
We are #iLOOMinating patient stories🌟🌟 Diagnosed with Lupus at the age of 37, Iris finds motivation in the strength and resilience of her mother, a fellow Lupus warrior. Her message to others is simple yet profound: "Remember to love yourself a little each day." #Looms4Lupus
Join us this Saturday April 13th, 2024 at 9:30am PST. Join us virtually: us02web.zoom.us/meeting/regist… Acompañanos a el grupo de apoyo virtual en ESPAÑOL el Domingo 14 de Abril, 2024 a las 9:00am PST. Registrate aquí: us02web.zoom.us/meeting/regist…
Register NOW for a day of wellness, connection, & empowerment! If you have lupus, fibromyalgia, other autoimmune condition or support someone that does, join us. May 11, 2024 * 10:00AM - 3:00PM PST 📍Art Community Center, Baldwin Park, CA & Virtual ➡️bit.ly/L4LWellnessDay…
We had the opportunity to attend the science event to celebrate DNA Day, spotlighting Genetics and Equity at the @LAPublicLibrary @WestwoodLAPL. @JuanaMataa & @estelamata both Virtual Ambassadors of @AllofUsResearch program & advocate for more participation in Clinical trials
Gov. Youngkin, please veto the Prescription Drug Affordability Board legislation cardinalnews.org/2024/04/01/gov…
Conversations with the Mata Sisters: “Empowering Autoimmune Awareness throughout the year" Join us for a LIVE Friday March 29th, 2024 at 12 PM PST as we delve into the fascinating world of autoimmune conditions & raising awareness throughout the year. x.com/i/broadcasts/1…
It's always great to partner and collaborate with other amazing organizations like @IFAiArthritis and patient advocates like Leila @lupuslifestyle and Kerrry @buttahflyk! We are in this together!!
It's always great to partner and collaborate with other amazing organizations like @IFAiArthritis and patient advocates like Leila @lupuslifestyle and Kerrry @buttahflyk! We are in this together!!
Patients shouldn't have to choose between their health & their financial stability. Copay accumulators create barriers to adherence, affecting vulnerable Californians. Let's ensure #AllCopaysCountCA for patients by passing AB 2180! @asmakilahweber Read ⤵️ tinyurl.com/2s3f9sh6
Happy Social Workers Day: Celebrating Juana Mata 🌟 Happy Social Workers Day: Celebrating Juana Mata (co-founder and advocate) and Ruth Padilla-King (board member). Let’s honor all social workers who make a difference! #SocialWorkMatters #LupusAdvocacy
Our co-founder & #Lupuspatient @JuanaMataa had the opportunity to share her story & talk about the #GetUncomfortable @AuriniaPharma campaign, raise awareness about #Lupus & #LupusNephritis last night at the @LFNC 9th Annual Purple Ribbon awards. GetUncomfortable.com
Join us for the 4th Annual @Looms4Lupus Wellness Day! A day of wellness, connection & empowerment! Save the Date: 🌸 Date: May 11, 2024 🕙 Time: 10:00 AM - 3:00 PM PST 📍 Location: Art Community Center, 14403 Pacific Ave., Baldwin Park, CA 91706 #L4LWellnessDay2024
Laurent ARNAUD @Lupusreference
17K Followers 595 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺#LupusChat @Lupus_Chat
10K Followers 3K Following #Lupus Online Community - Chat: Sundays at 3PM ET - Next #LupusChat May 5th - Moderated by @TiffanyandLupus, @Xtel007, @CaringForLupus & @Syncenerd_CarliTiffany ⁷ @TiffanyAndLupus
13K Followers 10K Following #Lupus Patient Advocate | Follow @Lupus_Chat | Mental Health #KBeauty | #BTS ARMY | 💗💛💙| 2024 📚: 40/75 - 📙: Smoke N Stroke by AjaLupus Research @LupusResearch
49K Followers 900 Following The Lupus Research Alliance is the world’s largest private funder of lupus research. Together with your help, we will conquer lupus.Lupus Association @LADAOrg
6K Followers 5K Following Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.CreakyJoints.org @CreakyJoints
19K Followers 2K Following CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide. | Part of @GHLForg | [email protected]More Than Lupus @LupusMore
2K Followers 836 Following More Than Lupus is a patient focused nonprofit run by Kelli Roseta aimed to amplify the patient voice through lupus advocacy, support, and patient educationTHEE Ashira Blazer MD @ashira_md
2K Followers 782 Following Academic rheumatologist 👩🏾⚕️| UMB| Lupus specialist | SLE in the African diaspora | NMQF Top 40 Under 40 | She/Her/Hers | IG: Ashira_MD| Tweets are my ownKathleen Arntsen @KathleenArntsen
5K Followers 5K Following President & CEO of Lupus and Allied Diseases Association. Passionate advocate, collaborator, strategist, communicator. Empowered lupus & autoimmune warrior.Peter Morley @morethanmySLE
159K Followers 13K Following ♿️ Patient Advocate-Cancer Survivor & Lupus Warrior; Testified 3x before Congress ; @AppropsDems/ @OversightDems/@EnergyCommerceA Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depressionRheum Barbie🩷🇧�.. @noellealicia242
1K Followers 980 Following 🐛"Nevertheless, she persisted."🦋| (she/her)Amanda G @LAlupusLady
12K Followers 10K Following #Lupus advocate raising #LupusAwareness sharing joy and information to empower people on their journey.Dr. Irene Blanco @IreneBlancoMD
2K Followers 1K Following Rheumatologist trying to figure it all out. she/her. All opinions are my own and not that of my institution.Cheryl Crow, Arthriti.. @realcc
4K Followers 4K Following ❤️ RA patient and OT helping others live life to the fullest *with* arthritis. 🎤 Arthritis Life Podcast❤️ Rheum to THRIVE self management & support program.Alfred Kim @alhkim
5K Followers 4K Following Founder/Director @WUSTL_Lupus @WUSTLMed | Assoc Program Director @WUSTL_Rheum | Chief Medical Officer @KyphaInc | Complement, Lupus, & @COVaRiPAD | #HCQbrigadeCarrie Kellenberger -.. @globetrotteri
5K Followers 2K Following ♿️ #Disability Advocate @spondylitis @TeamFibro ➡️ I write so you can learn about life w #Arthritis #axSpA #Fibromyalgia #MECFS #ChronicIllness #ChronicPainNuria #Lupus @TuLupus
7K Followers 7K Following Me define lo q soy y no lo q tengo. Escribo en @lupuseurope, @afosfolipido, @LupusJaen, @AcoluEspana, @lupusmadrid y https://t.co/zpXRSUnCnECaring For Lupus @CaringForLupus
4K Followers 798 Following Passionate about improving Lupus Awareness; Co-host of #LupusChat (Sun. 3pm EST) - #Lupus #LupusWarrior #LupusAwareness #KearnyCares #BerkeleyAlumni #PinkSocksEileen Davidson - Rhe.. @chroniceileen
4K Followers 2K Following Rants @CreakyJoints Blog https://t.co/ghdlGYZy4h Research Partner @Arthritis_ARC Ambassador @ArthritisSoc Staff @IfAiArthritis Host @Arthritis_SHYVRMarguerite Casillas @MargueriteC_MS
111 Followers 160 Following Bay Area native; fierce Democrat; living with #multiplesclerosis since 2003; proud #MSActivistCasey @caseyramsey519
126 Followers 643 Following Music is good for the Soul. I love supporting music. Volunteer for @bbcsi. I’m a liberal. I love spending time with my family and friends.#fibromyalgia warriorSymone @symonejacks
342 Followers 2K Following Chicagoan in New York | Grey | Flare Fighters | Photography, & Floral Artistry | 1908Trish Miles @TrishMiles30246
610 Followers 2K FollowingCaroline Nickerson @CHNickerson
834 Followers 2K Following PhD-ing @ufaec | @flinnovation | @scistarter | friend to allKyverna Therapeutics @Kyverna_Tx
135 Followers 147 Following We are committed to change the paradigm in the treatment of autoimmune diseases.EachPic @EachPic
15 Followers 47 Following Ensuring Access through Collaborative Health (EACH) Coalition of patient organizations and Patient Inclusion Council (PIC) comprised of patient advocatesKathy Bishop @KathyBi82055485
0 Followers 33 FollowingCheapskate with Lupus @brooke_huf5402
14 Followers 123 Following I want women to have a voice, or a sounding board.. Someone that understands.... With hard questions and dialogue. I have Lupus and I am cheap. lolCroom Lawrence @PharmaStrategy
399 Followers 460 Following Healthcare marketing executive focused on bringing medical breakthroughs to market to meet the needs of patients, providers and payers.Mardell Bucciarelli @bucciarel_mard
92 Followers 5K FollowingBeau Starling @starlingbeau1
34 Followers 237 FollowingDanielle Rehman @RehmDaniell
35 Followers 5K FollowingAraceli Droski @AraceliDro63505
75 Followers 5K Following2my6rtgukkgq3 @fwr2rhwbob7kj
4 Followers 380 Followingqueen selena @QueenS94033
636 Followers 4K Following fan account dedicated to the amazing beautiful inside and out brave Queen that is selena marie gomez @joshwri03954536 be yourself always there's no one betterJammie Osso @JammieOsso25164
41 Followers 5K FollowingAubrie Honeck @hone_aubr
50 Followers 5K FollowingPaul Jerome Lamont @PAULJLAMONT
736 Followers 3K Following Committed to solve Alzheimer's syndrome. 🇳🇿🇺🇸🇦🇺🇮🇹Faye Frisbie @fay_frisb
65 Followers 5K FollowingAnnie5757 @herman_amalie
219 Followers 2K Following Surviving Sjogren’s (Neuro) patient w Dysautonomia, SFN, POTS, MCAS, Chronic Daily Migraines.Patrina Blough @blou_patri
12 Followers 2K FollowingRosemary Liquet @LiqueRosema
42 Followers 5K FollowingChronicIllnessHumor @HumorChronic
989 Followers 3K Following Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for a while. #chronicillness #autoimmune #funnyPSG @PlasmaServices
17 Followers 78 Following PSG is the premier bridge between patients with autoimmune, infectious, and clotting disorders and the diagnostics industry.Chris Hamilton @caxdj
1K Followers 2K Following My tweets *are* legal advice. If follow them, you're get what you deserve. Opinions clearly don't reflect the views of my employer.Ferousya Abdul Kadir @FerousyaK
2 Followers 89 FollowingJeanene Sunderland @JeaneneSun16004
46 Followers 5K FollowingWinnie Holdvogt @HoldvogtWi97052
51 Followers 5K FollowingJayna Sermeno @JaySerme
36 Followers 5K FollowingXuan Lotspeich @XLotspeich21014
40 Followers 5K Followingbox-pickleball @BoxPickleball
440 Followers 5K Following Box Pickleball is a unique sports venue brand featuring pickleball, cornhole, container bars and delicious food from our kitchen.Tambre Leighn, MA, CP.. @tambreleighn
15K Followers 13K Following Healthcare Engagement & Communications Specialist. Innovative Solutions 4 Patient Adherence & Engagement. Advocate. Disruptor. Finally here: @tambre.bsky.socialCHARLES AZZOPARDI @CHARLESAZZOPA16
124 Followers 768 FollowingZahra Psomiades @ZahraP19270
35 Followers 5K FollowingUlrica @ULRICAt
176 Followers 2K Following A picture is worth a thousand words, but it uses up three thousand times the memory.Yakira Israel @mslillyflower29
80 Followers 297 FollowingSusie and Adam Small @SusanSmall42
121 Followers 235 Following DIY & Home Entertainment Cute animals Fitness & Wellness Humor Lifestyle Movies Music nudity, naturalist, be who you truly are,Tina Crapse @tina98877
53 Followers 282 FollowingRaynaud's Assn. @raynaudsorg
4K Followers 594 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.PGraham=Try Jesus @mom2boy3s
3 Followers 301 FollowingRosamaria @ruiz72rosamaria
115 Followers 3K FollowingLaurent ARNAUD @Lupusreference
17K Followers 595 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺Rheum Cat @rheum_cat
9K Followers 793 Following cry a lot but so productive (it's an art)| @UWRheum @UWEpidemiology 2020 | @OHSUIMres 2017 | @UTMBhealth 2014 | @UTAustin 2010#LupusChat @Lupus_Chat
10K Followers 3K Following #Lupus Online Community - Chat: Sundays at 3PM ET - Next #LupusChat May 5th - Moderated by @TiffanyandLupus, @Xtel007, @CaringForLupus & @Syncenerd_CarliTiffany ⁷ @TiffanyAndLupus
13K Followers 10K Following #Lupus Patient Advocate | Follow @Lupus_Chat | Mental Health #KBeauty | #BTS ARMY | 💗💛💙| 2024 📚: 40/75 - 📙: Smoke N Stroke by AjaLupus Research @LupusResearch
49K Followers 900 Following The Lupus Research Alliance is the world’s largest private funder of lupus research. Together with your help, we will conquer lupus.Lupus Association @LADAOrg
6K Followers 5K Following Improving access to care & quality of life by wielding the patient voice as a catalyst to advance advocacy, education, awareness & research efforts.CreakyJoints.org @CreakyJoints
19K Followers 2K Following CreakyJoints is a digital community for millions of arthritis patients and caregivers worldwide. | Part of @GHLForg | [email protected]More Than Lupus @LupusMore
2K Followers 836 Following More Than Lupus is a patient focused nonprofit run by Kelli Roseta aimed to amplify the patient voice through lupus advocacy, support, and patient educationTHEE Ashira Blazer MD @ashira_md
2K Followers 782 Following Academic rheumatologist 👩🏾⚕️| UMB| Lupus specialist | SLE in the African diaspora | NMQF Top 40 Under 40 | She/Her/Hers | IG: Ashira_MD| Tweets are my ownLupus Foundation of A.. @LupusOrg
46K Followers 1K Following Lupus Foundation of America is the only national force devoted to solving the mystery of lupus while giving support to those who suffer from its brutal impact.Kathleen Arntsen @KathleenArntsen
5K Followers 5K Following President & CEO of Lupus and Allied Diseases Association. Passionate advocate, collaborator, strategist, communicator. Empowered lupus & autoimmune warrior.Peter Morley @morethanmySLE
159K Followers 13K Following ♿️ Patient Advocate-Cancer Survivor & Lupus Warrior; Testified 3x before Congress ; @AppropsDems/ @OversightDems/@EnergyCommerceBharat Kumar @BharatKumarMD
3K Followers 541 Following I'm a Rheumatologist, Allergist, and Immunologist interested in medical education, addressing health disparities, and advancing medical communication.A Chronic Voice @AChVoice
18K Followers 14K Following I aim to share #chronicillness & #chronicpain news & stories fr VARIOUS perspectives. #Lupus #Sjogrens #AntiphospholipidSyndrome #epilepsy #anxiety #depressionRheum Barbie🩷🇧�.. @noellealicia242
1K Followers 980 Following 🐛"Nevertheless, she persisted."🦋| (she/her)Amanda G @LAlupusLady
12K Followers 10K Following #Lupus advocate raising #LupusAwareness sharing joy and information to empower people on their journey.Dr. Irene Blanco @IreneBlancoMD
2K Followers 1K Following Rheumatologist trying to figure it all out. she/her. All opinions are my own and not that of my institution.Autoimmune List @AutoimmuneList
9K Followers 4K Following #Autoimmune diseases: information and worldwide medical news updates. https://t.co/zp6PHneZxjCheryl Crow, Arthriti.. @realcc
4K Followers 4K Following ❤️ RA patient and OT helping others live life to the fullest *with* arthritis. 🎤 Arthritis Life Podcast❤️ Rheum to THRIVE self management & support program.Lupus Europe @LupusEurope
4K Followers 351 Following Lupus Europe is the umbrella association of currently 31 national lupus self-help organisations throughout Europe, and supports people with lupus in Europe.Marguerite Casillas @MargueriteC_MS
111 Followers 160 Following Bay Area native; fierce Democrat; living with #multiplesclerosis since 2003; proud #MSActivistThe ALS Association @alsassociation
33K Followers 890 Following The ALS Association / Fighting ALS on every front through research, care services, and advocacy. Community guidelines: https://t.co/Af1fOXYrBeDiagnOx @DiagnOx
75 Followers 65 Following Networking and incubation for researchers and early stage businesses in the UK bio-medical sector. Managed by Oxford Innovation.UVA @UVA
107K Followers 1K Following Official account of the University of Virginia, a proudly public institution that serves by putting academic excellence to good use. #GreatandGood #GoHoosCaroline Nickerson @CHNickerson
834 Followers 2K Following PhD-ing @ufaec | @flinnovation | @scistarter | friend to allSciStarter @SciStarter
14K Followers 9K Following Science we can do together. Supported by @NSF @NASA @ASU @IMLS @nnlmAoU @Verizon ++ | Tweets by @CHNickerson @jillfnugent @FutureDrGiles @ElMounRoMen with Lupus @MaleLupus
63 Followers 21 Following Diagnosed with SLE Lupus in July 2002. 10% of Lupus Fighters are Male. #LupusFighterKyverna Therapeutics @Kyverna_Tx
135 Followers 147 Following We are committed to change the paradigm in the treatment of autoimmune diseases.Lupus 2025 @2025Lupus
44 Followers 48 Following LUPUS 2025: Join us in Toronto, Canada, May 21-24, 2025, for the 16th International Congress on Systemic Lupus Erythematosus.Colors of Lupus NV @ColorsofLupusNV
43 Followers 1 Following We're devoted to improving the quality of life for Lupus sufferers, and to raising awareness of the disease among medical professionals and the general public.Float Like a Buttahfl.. @buttahflyk
1K Followers 1K Following Writer & Patient Advocate 🦋 arthritis | chronic illness | disability | invisible illness | rare disease | sarcoidosis Creator, Kaleidoscope RareDisease StoriesWays and Means Commit.. @WaysandMeansGOP
56K Followers 788 Following Official account of the Senior Committee, with jurisdiction over tax, trade, health care, welfare, and Social Security. Chairman @RepJasonSmith.The Hill Events @TheHillEvents
6K Followers 2K Following Live journalism. @TheHill’s events are timely, exciting live experiences that tackle big-picture, of-the-moment issues with authority: https://t.co/Xky2wkogkwSam Assmann. Follow u.. @SamAssmann
738 Followers 2K Following 🧬Life Sciences Senior Director of Business Development 🧬California Life Sciences Association(CLSA). Views are my own.🧬Biocom California @BiocomCA
8K Followers 2K Following We are California’s leading advocate for life sciences.Biotech Day @biotechday
23K Followers 27 Following Biotech news from reporters at the 40 American City Business Journals papers, including Boston, SF, Seattle and more.California Life Scien.. @CALifeSciences
12K Followers 6K Following California Life Sciences is the state’s most impactful life sciences membership org. advocating for the industry & its diverse innovation pipelineSenator Steven Bradfo.. @SenBradfordCA
577 Followers 328 Following CA State Senator D-35 Chair, Sen. Energy, Utilities & Communications Vice Chair @CABlackCaucus https://t.co/gzpExTzAAC Comment Policy: https://t.co/IkibSiycBvLaqueria PurpleLady W.. @LUPUSRIA
1K Followers 2K Following IMMA STRONG BLACK GIRL WHO ROCK'S, BEEN A LUPUS SURVIVOR FOR 17YRS NOW! I LOVE THE LORD SO THAT JUST SAYS IT ALL!Nicole Shepard @thepcdiva
1K Followers 2K Following Health & Children #Advocate / #edtech #CTO #Techie #Gamer #EDM💜 @NIH_NIAMS Clinical Case Study @USArmy @MDNG Vet @Virginia_Tech Hokie [email protected]Lupus Autoimmune Advo.. @LupusAuto
135 Followers 200 Following Support and information for Lupus and autoimmune advocates and supporters. Lupus-Autoimmune Advocacy 2.0 is an auxiliary of N2S Cares Community Projects.Raynaud's Assn. @raynaudsorg
4K Followers 594 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.The Leukemia & Lympho.. @LLSusa
41K Followers 2K Following United in progress toward a world without blood cancer. https://t.co/iUaB1KzuMqKenWarringtonMD @MdWarrington
3K Followers 962 Following Professor and Rheumatologist l Vasculitis Clinic Director @MayoClinic Rochester | Researcher #vasculitis #rheumatology #MayoClinicRheumatology #travel 🇲🇹🇺🇸GivingTuesday @GivingTuesday
85K Followers 3K Following From a viral hashtag to a global movement, #GivingTuesday is reimagining a world built upon shared humanity and generosity.Sarah-Jane (SJ) Murra.. @SJ_Murray
62K Followers 8K Following Ph.D (@Princeton), EMMY-nominated, award-winning filmmaker. Translated the Ovide moralisé. Founded The Greats Story Lab. Professor @baylor, speaker @tedxtrudy @trudyflynn_
2K Followers 3K Following Fibromyalgia, Co-Chair MSSU PPPC & Chair Fibromyalgia Association Canada, PERA alumni CIHR-IMHA, Patient Partner #Fibromyalgia #FAC #PatientEngagement #MSSUCIHR-IMHA Community @CIHR_IMHA
1K Followers 1K Following The CIHR-Institute of Musculoskeletal Health & Arthritis (IMHA) mandate is research that enhances active living, mobility, MSK health, oral health & skin healthAnna Fryxelius @annatw
3K Followers 2K Following Patient leader 📢 Pro Science 🧪🧬Wheelchair speeding Catholic ♿️✝️ Wife. Mother. Kung Fu Fighter 👊.James Lind Alliance @LindAlliance
11K Followers 1K Following Bringing patients, carers, and health and care professionals together to identify and prioritise the unanswered questions they want health research to address.Dani Martinez @cunkid1288
2 Followers 50 Following𒀭Dr Able Lawrence .. @abledoc
6K Followers 3K Following Prof Clinical Immunology & Rheumatology; Foodie Birder Photography Axiology Statistics Nerd #Battery $TSLA #RenewableEnergy #EvoBio #Wine #FMSDeborah Desir @dddesir
311 Followers 379 FollowingBU/BMC Rheumatology @BU_BMC_Rheum
933 Followers 34 Following The Section of Rheumatology @BUMedicine & @The_BMC has a rich and strong history in conducting high quality, world-renowned research. https://t.co/ikxkrorGKFMichigan Lupus Founda.. @LupusMI
86 Followers 54 Following The MI Lupus Foundation exists to improve the quality of life for those living with lupus through support, education & research with the goal of finding a cure.Shelley Fritz @Dividivigirl
2K Followers 3K Following Patient Education Fellow Global Healthy Living Foundation, Patient Advocate, Educator living with #rheumatoidarthritis #fibromyalgia #oa #spreadalohaExpecting Health @ExpectHealthOrg
684 Followers 1K Following Expecting Health was founded by a group of women with a simple idea: families deserve and should expect more – more support, more guidance, better health.Assemblymember Stepha.. @AsmNguyen
506 Followers 66 Following Official legislative Twitter account for CA Assemblymember Stephanie Nguyen #CALeg #AD10Didem Saygin, MD @DidemSayginMD
2K Followers 1K Following Rheumatologist, Assistant Professor of Medicine @PittRheum • Researcher #Myositis #ILD #Outcomemeasurement • Opinions are mineCristiana Sieiro Sant.. @cristianasieiro
1K Followers 763 Following Rheumatologist and Clinical Researcher @ReumaLeon | @JovReum | @EMEUNET | YIG at @EUSTAR_org |@RheumJnl | #lupus #scleroderma #epidemiology | 🇵🇹 and 🇪🇸Prakashini @prakashini_
722 Followers 787 Following Rheum resident, MD, (DM Clinical Immunology & Rheumatology), #ACRambassador, animal whisperer 🐶 #RheumTwitter Mysore ❤️Puja Mehta 🧩 🌻 @DrPujaMehta1
6K Followers 2K Following Rheumatology SpR | Research Fellow Respiratory Medicine 🫁🤚🧬 @UCLRespiratory | ILD: RA/CTD/IPF | COVID | ResearchCulture |✍️ AssocEdit @RheumJnl🎙️ @ThoraxBMJTue Kragstrup @KragstrupTW
1K Followers 988 Following Rheumatologist | Associate Professor Immunology/Pharmacology | Co-founder Aptol Pharma | @EMEUNET ChairMax Konig @MaxKonigMD
3K Followers 2K Following Rheumatologist/Assistant Prof @JohnsHopkins, @Ludwig_Cancer | via Berlin & Boston | Cellular therapies; Antigen-specific therapies for rheumatic diseasesDr Aakanksha Khanna @dr_akhanna
529 Followers 978 Following Advocate for Gamification in Medical Education & creating novel Medical Escape Rooms | Rheumatology Fellow @dartmouth | Int Med @ubimresidency I🇨🇦🇺🇸🇮🇳Today the "Los Angeles Daily News" published an op/ed by Victoria Killian on why patients need AB 2180! AB 2180 would ban the harmful insurer practice known as copay accumulators. CA patients can advocate for AB2180 to ban such practices! To read more: dailynews.com/2024/04/25/pay…
Congrats to @asmakilahweber for #AB2180 moving out of Assembly Health on Tuesday! This important bill will ban copay accumulator policies so that patient financial assistance actually benefits patients. #AllCopaysCountCA #MSActivist @CAChronicCare
Thank you Assembly Health Committee member @HeathFloraCA for your aye vote on #AB2180 on Tuesday to ban copay accumulator policies, so that patient assistance programs actually benefit patients, not insurance companies! #MSActivist @CAChronicCare
Vitamin D appears to promote the immune response to cancer and the success of immunotherapy; now a mechanism is identified involving the gut microbiome interactions science.org/doi/10.1126/sc… science.org/doi/10.1126/sc… @ScienceMagazine @KathyDMcCoy @ReiseSousaLab @TheCrick
So great to see these ideas go from emails/GoogleDocs to #ACR24 reality
Looking good, 105 Freeway at Crenshaw Blvd! My community clean-up day has given this Hawthorne thoroughfare a fresh clean look. Thanks to @CaltransDist7, my staff, and especially all the volunteers who put on their safety vests & picked up roadside trash today! #EarthDayEveryday
Thank you @RichElliotSax for your amazing contribution to our Stars of Advocacy Gala honoring exemplary patient advocates! Your generosity will make an impact in our continuous efforts to improve the lives of Californians with chronic conditions. We're grateful for your support🌟
📢 Advocacy for Obesity Care in CA! On 2/24/24, our President @estelamata & Vice Chair @CAChronicCare & Dr. Wesley Mizutani Boardmember of @patientaccess testified in support of @SenBradfordCA #SB1008, a bill to expand health insurance coverage for obesity treatment options.
AfPA's Board Member Wesley Mizutani, MD, testified yesterday at the California State Senate in support of #SB1008, which will require health insurers to expand coverage for obesity treatment options. This bill will tackle access barriers and promote patient-centered obesity care.
Yesterday, Dr. Mizutani was also honored by @CAChronicCare at their 2024 Stars of Advocacy Gala for his commitment to serving, educating, and empowering others while advocating for patient-centered care.
Exciting news! #AB2180 unanimously passed through the California Assembly Health Committee, marking a critical step towards ensuring patients’ access to essential healthcare. This milestone brings us one step closer to making bit.ly/3w6Oufs #AllCopaysCountCA
Honoring our very own Carson Knight at the California Chronic Care Coalition Stars of Advocacy tonight! #bleedingdisorders #chronicdisease #advocacy #starsofadvocacy @CAChronicCare
Thank you @GBguitar, for your amazing contribution to our Stars of Advocacy Gala honoring exemplary patient advocates! Your generosity will make an impact in our continuous efforts to improve the lives of Californians with chronic conditions. We are so grateful for your support🌟
Advocacy in Action: Looms For Lupus & Mata Advocacy and Support At @Looms4Lupus & @MataAdvocacy, we’re passionate about eliminating disparities among racial & ethnic minority populations disproportionately affected by lupus & related chronic conditions. @JuanaMataa @estelamata
“Life is like a vibrant market, full of colors, flavors, and opportunities. Raise your hands in joy for today’s victories, big or small, and make every moment a celebration. Let the lively hustle of life inspire you to savor each experience at the market of existence."
Let’s tune in & support this vital conversation discussion on the undeniable impact of sex & gender on autoimmune diseases. @SWHR, @LupusTherapuet, @Looms4Lupus, and @UVA addressing the unmet needs in autoimmune disease care. #AutoimmuneAwareness #HealthcareInnovation
Sex and gender influences in #autoimmune disorders are undeniable. Join SWHR @LupusTherapuet @Looms4Lupus @UVA as we discuss how research, clinical, and policy stakeholders can address unmet needs in autoimmune disease care: ow.ly/hzvT50Rh1pW #SWHRtalksAutoimmune
Sex and gender influences in #autoimmune disorders are undeniable. Join SWHR @LupusTherapuet @Looms4Lupus @UVA as we discuss how research, clinical, and policy stakeholders can address unmet needs in autoimmune disease care: ow.ly/hzvT50Rh1pW #SWHRtalksAutoimmune
Glad to report staffers at all levels of Congress told us today there is broad bipartisan support to reform #PBMs thx to a unique coalition of patients, doctors, pharmacists, & businesses. Writing is on the wall! Keep raising your voice! #ATAPHillDay2024 @ATAPAdvocates @ACRheum
April is Rosacea Awareness Month - In a survey conducted by @rosaceaorg , it is estimated 90% of Rosacea patients have lower self-confidence & self-esteem. Often mis-diagnosed (mimicking a #lupus malar rash) & misunderstood. Sending love & support to our Rosacea Community. ❤️🌹
We’re 2 weeks from the 2024 New Jersey Walk with Us to Cure Lupus on 5/4, at MetLife Stadium! Join us and the incredible #lupus community for a day filled with celebration, family-fun activities, music and more. Register now! bit.ly/NJ-WALK24 #ManyOneCan #WalkwithUs