Pandemic Equity Initiative @pandemic_equity
An intersectional collective for mass action. Dedicated to collective liberation from inequitable immoral COVID policies. https://t.co/h5wjL1uKsF linktr.ee/pandemicequity… Joined February 2023-
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Never in my wildest dreams could I have predicted a future where a new virus would become the #1 infectious disease killer of children and that medical leadership would decide the vaccine for this virus is NOT important for kids, and NOT promote it. 🤯 ox.ac.uk/news/2023-01-3…
Long Covid Support, in collaboration with @LongCovidScot & @NIHRCRN_nthames are excited to invite everyone to our 2-day webinar: Long Covid: What needs to happen next? 5 & 6 July (1000-1300 BST). Register now at nihr.doclift.com/auth/register #LongCovid #LongCovidAwareness
What do we want? Masks in healthcare! When do we want it? Now! Join us this Saturday, June 17th at 2PM at Kaiser in LA off Sunset for WEEK 8 of PROTESTS to keep #MasksInHealthcare settings! Let’s keep growing the movement to protect our families and communities! #MasksSaveLives
Patients have the right to safe healthcare, a right being infringed upon as the pandemic rages on. If you or a loved one were infected with COVID in a healthcare setting, let us know so we can promote safety. zurl.co/26Dj #Healthcare
Nice to see @WHO joining the John Snow Project in recommending prevention of infection as the first line of defence against the harms of COVID-19. johnsnowproject.org/primers/who-ad…
‘if you’re marginalized in any way how you fare with long covid & long covid symptoms is likely gonna be determined by your identity’
‘if you’re marginalized in any way how you fare with long covid & long covid symptoms is likely gonna be determined by your identity’
LA Action: Week 6 of protests to keep masks in healthcare settings this Sat, June 3rd, 2PM at Kaiser off Sunset / Vermont. Every week more people are taking action to make our communities and healthcare settings safer during this airborne pandemic. Keep caring, keep going!
LA Action: Week 6 of protests to keep masks in healthcare settings this Sat, June 3rd, 2PM at Kaiser off Sunset / Vermont. Every week more people are taking action to make our communities and healthcare settings safer during this airborne pandemic. Keep caring, keep going! https://t.co/0NKRSMgjPo
Wanted to show off my 3.5 year old rocking his new XS Trident that fits similarly to a 3M Aura N95 💪 @CriticalAerosol will be sharing portacount fit test results soon for this best-of (what’s available) toddler/small child mask option 😷 #MaskUp
Tell your members of Congress: Support safe staffing for RNs! Add your name: act.medicare4all.org/letter/Urge-th…
Is the depletion of Natural IgM a key disease mechanism in #LongCovid ? @BhupeshPrusty argues that the depletion of these vital sweeper cells allows an imbalance in the body that starts the cascade into autoimmunity and more. Listen to the full Session: podcasts.apple.com/gb/podcast/epi…
Physicians and other healthcare workers have been speaking out in public protest against the removal of mask mandates by hospital administrations. In our latest newsletter we discuss their response. #KeepMasksInHealthcare zurl.co/d0sI #healthcare #COVID19
Join us Wednesday, June 7th at 12 PM for a co-work session to file complaints to Massachusetts Attorney General's office & write reasonable accommodation requests. You don't have to do this alone. linktr.ee/MaHealthEquity #KeepMasksInHealthcare #GiveUsCareNotCovid #LongCOVID
BIG news: Massachusetts’ Attorney General’s office wants to hear from YOU about the removal of masks in healthcare. They’ve asked that we file complaints about this civil and human rights violation. MCHE has put together templates here: docs.google.com/document/d/1Ny…
I want to highlight a couple big findings in the new RECOVER #LongCovid paper (aside from the definition) that may be missed! Journalists in particular, you may be interested: 1/
RECOVER released a paper playing into gaslighting & myths of disability fraud, promoting misleading “scoring” prioritizing #LongCOVID symptoms less common in other conditions - like loss of taste/smell - over those most common in LC itself…
RECOVER released a paper playing into gaslighting & myths of disability fraud, promoting misleading “scoring” prioritizing #LongCOVID symptoms less common in other conditions - like loss of taste/smell - over those most common in LC itself…
Mindblown how many dentists offices don't require masks or have any ventilation and filtration. A medical office where you're required to remove your mask and keep your mouth open for an extended period of time would take COVID precautions you would think. #KeepMasksInHealthcare
We’re excited to announce that the 1st issue of the Patient-Generated Hypotheses Journal is available as a pdf on our website! This issue includes 6 hypotheses + poll results created by patients w/ #LongCOVID or associated conditions (or caregivers). patientresearchcovid19.com/patient-genera…
🧵1/2 “I feel like too many of us are yawning our way into what I now call #LongCovid’s disability roulette.” “Their illness is to invisible for many people. They are suffering from these things that we cannot see on the outside.” Dr @WesElyMD thank you
31% of Americans still masking is wild because sometimes I feel like the only one, but the selection bias warps reality so much. We are pushed out of spaces. As CleanAirClub says, “it’s a feedback loop that entrenches ableism in our music scene” due to inaccessibility. 1/9
Debbie Filippaki, BSW.. @filippakid
811 Followers 2K Following Teacher & social worker: environmental & health humanities, community development, linguistics, queer & disability pride. Workplace violence survivor.
Jadzia Masks @starfleetcdc
135 Followers 433 Following I retweet public health info, #LongCovid facts & support, occasionally Star Trek, always #IDIC 🖖🏻. Jew for Palestinian freedom and ceasefire now. (she/her)
Plzmaskup-aintoveryet @NaturalHairArt1
109 Followers 727 Following Masked & vaxxed Pro-choice Squad & Progressive leaders - no war - keep civilians safe Barbara Lee. She/her. #CovidIsNotOver A retweet is not an endorsement
plague rat 🐀 @x3r0gxx
8K Followers 7K Following federation of plague rats against forced mass infection 🐀 🐀 🐀 🏴
Misty @crescendomisty
144 Followers 1K Following Caregiver & Organizer. Following COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities.
Dylan Diaz-Infante @DylanDiazI45659
181 Followers 2K Following Sociocultural Anthropology PhD student @ASUBeingHuman. Transborder political ecology and water insecurity research. https://t.co/oexTONKL0N he/they
Lightbringer Designs .. @LtbrngrDesigns
359 Followers 652 Following Join @IndieSellersGld to push back on Etsy Exploitation! Wax Seals & Signet Rings make your letters stand out - great for wedding invitations, SCA/LARP & more!
Harry Burger 😷✊�.. @HarryRBurger
3K Followers 4K Following Past #GreenParty Candidate for Congress Ban all corporate political spending. Mechanical engineer AuDHD He/him
Scatha 2.0 @Sportygothgirl
1K Followers 3K Following Long Covid crusader. AuDHD Gen-Xer. 🖤:Star Trek, Timberwolves, goth/industrial music, coffee and cats. Therapist by day. Living w/hEDS, MCAS, & Dysautonomia.
Care Not COVID Chicag.. @CareNotCOVIDChi
553 Followers 292 Following #KeepMasksInHealthcare / #COVIDisAirborne: Advocacy for Illinois. Retweets are not endorsements.
Violetta D.🧋 @vecanqa
1K Followers 5K Following Communication and Media scientist. | GER & ENG | 'All my opinions are yours.' | Like, RT ≠ Zustimmung | Here for that #ZeroCovid lifestyle. #NoAFD 🇮🇱
Jennifer Heighton @jheighton3
7K Followers 6K Following Passionate BC teacher, activist. #COVIDisAirborne so ventilate, filtrate, mask up! Physics major. Co-Founder @Protect_BC @SafeSchoolsBC M: @[email protected]
🌙biomimic🐾🍉 @iseeuliars
8K Followers 7K Following Disabled & ND. Writer, teacher, disability justice & advocacy. 💀to capitalism/imperialism. It’s the end of an era, build well-relations up from ashes.
8K.Nunes 🌍🌏🌎.. @seldnac
707 Followers 5K Following 🇧🇷 🇵🇸🌿🙏 #UseMáscaras #MáscarasPff2/N95 #Ventilação #ArLimpo #Pandemic #SARS-CoV-2 #LongCovid #COVIDisAirborne #CovidLonga /Desde 08/22 #DavosSafe2024
Danielle Zimmerman @DEZimmermanMD
463 Followers 1K Following
mx. papaya (see pinne.. @bufanator
1K Followers 348 Following disabled queer agitator, educator & student of liberation. any support for my art is appreciated! ca$happ: mxpapaya (pls send as friends/family with note: art)
Sam Norpel, MA @NorpelSam
2K Followers 2K Following Wife. Mom. Former eComm Exec.| #LongCOVID w/ME #disabled 12/21| 🚫 Bullies, trolls & misinfo. |Kindness Matters |Opinions= my own
K. @KristaCoombs3
275 Followers 910 Following Public Health, VCIL LC Advocate, C-19LAP, #FBLC #TreatLongCovid, #LongCovidKids, #pwME,#FundSupportServices, #PatientAdvocacy, #ConstituentAdvocacy
Elaine 🌈🌻🌊�.. @E_on_wheels
265 Followers 568 Following Car geek, avid reader, cat-owned, caregiver. Smart-mouthed. Zero fvcks to give. Black lives STILL matter. No lists, please. #GenX #Resist #CovidIsNotOver
Rob McLeod 💙🌎�.. @PassivhausPlus
3K Followers 5K Following Professor of Building Physics & Sustainable Design. CEng. FIMechE. Xs about built environ & humanitarian issues. Co-author #PassivhausDesignersManual #Ventilate
ℙ𝕣𝕠𝕗𝕖�.. @BGrammer1917
754 Followers 2K Following Fascism fears no 'scandal' and is not to be bluffed. It has to be beaten down. - James P Cannon
Suzette Lampman @SuzetteGiordano
109 Followers 302 Following
series of gj tubes @katimcf
6K Followers 5K Following they/them/y’all. violin. dogs @redsnootsilver. i also don’t want my collagen or my immune system to be doing what they’re doing & i sure would like them to stop
spoonie uni #COVIDisN.. @spoonieuni
1K Followers 867 Following Black & Indgn-prioritized disability justice. Political ed, mutual aid, crowdfunding, & peer support focused. Priority to TGNC2S, incarc, unhoused.
Kirt 🦣 @kirt@ecoev.. @Kirt_Hanks
260 Followers 2K Following Looking for my niche in evolutionary biology. aka @evolving_string Planning to keep @kirt_hanks more academic. Following ≠ Endorsement
COVID IS NOT OVER @billiebuttons64
1K Followers 3K Following Covid is an airborne multi-systemic, vascular, thrombotic, neurotropic, Severe Acute Respiratory Syndrome. Fibro/poly arthritis/asthma
Irene Macdonald @IreneMa16991007
14 Followers 532 Following
Geri Medina @gerimedina10
540 Followers 4K Following Colombian-Bostonian. #Publichealth / #EnvironmentalHealth. @busph alum. she/hers/ella 🌸 opinions are my own
mendy @mendy79173991
16 Followers 287 Following
Global Patient Center.. @pwlcconference
404 Followers 2K Following We are initiating global #longcovid conference in next few days. Mission is to coordinate with stakeholders globally. Initiative of @PuchoDigiHealth
Ashanti Daniel,BSN, R.. @AshantiRN
853 Followers 408 Following 👩🏾⚕️ Disabled Registered Nurse | 🦄 Chronic illness warrior 💪🏾 | 🗣 Chronic illness advocate Instagram: @AshantiRN
katemcn @katemcn
474 Followers 4K Following
Erin Dahl @ErinDahl11
523 Followers 2K Following
Asim Ali Ⓥ @asimtomatic
2K Followers 5K Following Prof. of American studies. Phd. Sometime musician. Habitat-builder. Pro-bunny. Earthling. Feral. Ⓥ He/him. @[email protected]
Laura Krawec😷🇺�.. @CaAquaGal
2K Followers 4K Following all opinions are my own 🇺🇸🏊♀️🤽♀️🤿♉️ UCSB Gauchos, Moms Demand Action, Progressive, #CovidIsNotOver #N95MaskUp, no DMs, no Misogyny CaAquaGirl@bsky
Lynn Krowczyk @krowczyk6
0 Followers 51 Following
Michell Grayson 😍�.. @MichellGra22923
130 Followers 381 Following Hello how are you doing today I’m available for fun , and outcall available and would you like to meet 🤩🤩🤩🤩🤩🤩🤩🤩🤩🤩🤩🤩
Lusiba Drift Ronald @DriftRonald
91 Followers 899 Following #MISSION MK 2026 #MISSIONCHANGEKABULAFORSEITH2026
Nikkole @nhughesoly
2K Followers 2K Following MPA. Energy policy specialist. Dog mom x3. Disabled by #MECFS. Former #waleg nonpartisan staff. She/her. Views are my own. I block ableists. 🇵🇸🪬🏳️🌈
CAIR MOR(Shielding: M.. @impishfairyelf
1K Followers 3K Following ❤️#Nature & the #Arts. Grad English, was #Hillwalker~long4 return2wilderness Live/w #chronicillness physical & mental. Passion4 #PatientEmpowerment. #CatOwned.
Masks4Wpg @masks4wpg
311 Followers 529 Following Free N95/KN95 community mask box for Winnipeg 💖😷 Location: 689 Maryland Street next to the community fridge #maskssavelives
COVID Safe MSU/Michig.. @COVIDSafeMSU
342 Followers 839 Following COVID isn't over. Public health as community care | @covidsafecampus ambassador | Views own | Previously Covid Campus Coalition affiliate #KeepMasksInHealthCare
It's Nice to Have Fun @DontBlameMe87
13 Followers 860 Following Leftist. Gay Archie Andrews Truther.🐀💄🦋no point in the government existing unless they do something for us 💜
Zeno @InvaderZeno
87 Followers 313 Following #PodcastHost #Writer #Cartoonist #LibertarianSocialist #UnitarianUniversalist #PhilosophicalTaoist #ACAB #abolishPrison #BLM #AnCom #AnSyn #BIPOC He/Him
Olivia @OliviaB_bear
41 Followers 160 Following @covidsafeconnecticut on Instagram #wearamask #covidisntover
F░R░E░E░ P░.. @joaquinlife
20K Followers 11K Following Ran for Congress Southeast LA #CA42 🤖 Engineer 🤝 Organizer Now: @theacecoalition @speakupamerica_ @greenzoneactnow @laist Alum: Biden ‘20, CORO, Obama ‘08
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Brenda Eadie - NHS Wo.. @BrendaEadie
306 Followers 214 Following Charge Nurse & activist for our NHS, Long covid (March 2020) sacked for having LC(30.11.22) Romany Gypsy #NHS OUR NHS IS DYING COME HELP US SAVE IT 💙💪
MaskBlocABQ @MaskBlocABQ
514 Followers 28 Following #CovidIsntOver #MaskUp For masks, either DM us or fill out the form in the link tree! https://t.co/rANnBpxK2X
Care Not COVID Chicag.. @CareNotCOVIDChi
553 Followers 292 Following #KeepMasksInHealthcare / #COVIDisAirborne: Advocacy for Illinois. Retweets are not endorsements.
Stephanie Tait ♿️ @StephTaitWrites
39K Followers 1K Following Author | Speaker | Consultant | Amateur Florist| #Disabled l Queer | #CPTSD | #AuDHD | #Bipolar2 | #Adoptee | Oversharing is my Spiritual Gift 💁🏼♀️(She/Her)
MaskBlocATX @MaskBlocATX
314 Followers 141 Following
COVID Safe MSU/Michig.. @COVIDSafeMSU
342 Followers 839 Following COVID isn't over. Public health as community care | @covidsafecampus ambassador | Views own | Previously Covid Campus Coalition affiliate #KeepMasksInHealthCare
COVID Safe Maryland @CovidSafeMD
1K Followers 391 Following Marylanders working to stop the spread of SARS-CoV-2. We organize for disability justice from an anti-racist, pro-queer & trans standpoint. #KeepMasksInHealthca
Hazie Thompson @haziethompson
6K Followers 2K Following Long Covid/ME 2020, Mitigation Advocate, Founder @BIRcovidhealth
The Corsi-Rosenthal F.. @CRFoundationUK
6K Followers 494 Following Improving human health. Promoting clean indoor air through education and the provision of devices and technology. Registered Charity in England & Wales 1206282
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
Ed Yong is not here @edyong209
385K Followers 2K Following Science writer. Author of AN IMMENSE WORLD. Not on Twitter any more. Find me on Bluesky or through my newsletter: https://t.co/sUMoqFWZWg.
COVID Safe Campus @COVIDSafeCampus
5K Followers 827 Following Disabled academics and advocates with public health and policy expertise, challenging ableism and fighting for COVID safety in higher ed and beyond.
Brown Skin Matters @BrwnSkinMatters
20K Followers 21 Following Addressing the lack of reference photos of dermatological conditions on non-white skin. Find us on Instagram for more.
DSA Disability Workin.. @DSADisability
5K Followers 1K Following Disability Working Group of the Democratic Socialists of America (DSA) fighting for socialism and for the liberation of disabled people.🌹
Mandate Masks MA @MandateMasksMA
523 Followers 357 Following A community advocacy effort to get MA & Boston to mandate masks in public places when needed to support inclusion and equity.
Emmanuel @ejustin46
13K Followers 517 Following Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. William Faulkner
COVID Advocacy Initia.. @COVID_Advocacy
7K Followers 3K Following Advocacy group working to connect COVID advocates at the local, state, and national level and taking action to prevent COVID spread & save lives.
Covid Pledge @CovidPledge
2K Followers 147 Following Raise the issue of Covid safety using the Pledge: at work, school, community group, local shops, restaurants, public transport, supermarkets
Massachusetts Coaliti.. @MAHealthEquity
1K Followers 154 Following Massachusetts Coalition for Health Equity unites healthcare workers, public health & community leaders advocating for equity in response to COVID19
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr. Lisa Iannattone @lisa_iannattone
74K Followers 2K Following Assistant Professor of Dermatology @McGillMed. MD/residency @med_umontreal. Fellowship @HarvardDerm. Focus: complex medical dermatology and medical education.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
COVID-19 Longhauler A.. @C19LH_Advocacy
9K Followers 9K Following A U.S. based grassroots, patient-led, all-volunteer 501(c)(3) nonprofit organization advancing the understanding of & expediting solutions for #LongCOVID. #FBLC
The John Snow Project @JohnSnowProject
17K Followers 274 Following Reliable, honest information on COVID-19 from public health, clinical, and research experts. https://t.co/KVTMhCT9ct
💙#MarkedByCovid #F.. @MarkedByCovid
28K Followers 6K Following Covid justice and remembrance, by & for those most harmed. - IG, FB, Threads, LinkedIn, Bluesky: @MarkedByCovid - Email updates: https://t.co/q5P5uZrNzY
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Long COVID Alliance @LongCOVIDAllian
4K Followers 90 Following Research. Advocacy. Education. https://t.co/yE6W9ul1Yd
Artie Vierkant @avierkant
9K Followers 1K Following @DeathPanel_ | wrote Health Communism w/ @realLandsEnd (Verso 2023): https://t.co/Ybfrw73ff9 | #MedicareForAll | https://t.co/3Ho4AGRtmk
Community Legal Servi.. @CLSphila
7K Followers 893 Following Our mission is to fight poverty, challenge systems that perpetuate injustice, and change lives through cutting-edge advocacy & exceptional legal representation.
Disability Economic J.. @DEJCollab
2K Followers 1K Following Bringing together research organizations and disability advocacy groups in partnership to learn from each other and drive a disability economic justice agenda.
Justice in Aging @justiceinaging
9K Followers 3K Following Justice in Aging is a national advocacy organization that fights senior poverty through law.
Laura Miers @LauraMiers
65K Followers 13K Following Pro-Kindness/Compassion/Love. Wealth inequality will destroy us. Ex-Texan, Global citizen. Law, Medicine, Sustainability, Languages. LongCovid since 2020.
LongCovidAidBot @LongCovidAidBot
2K Followers 2K Following Here to RT the tags #COVAidReq, #LongCovidCrowdfund, #LongCovidAid, & support community members who must rely on #MutualAid to survive COVID & #LongCovid #FBLC
International Long Co.. @LCawarenessInt
3K Followers 381 Following #LongCovid • #LongCovidAwareness -- #LongCovidAwarenessDay -March 15 -- #LongCovidAwarenessMonth -March -- Get profile pic frame @ link below⬇️
DecodeME the ME/CFS S.. @DecodeMEstudy
7K Followers 748 Following The world's largest study ever into #MEcfs. #pwME [email protected] - 0800 196 8664 #DecodeMEStudy #pwME #MillionsMissing
Pandemic Patients @PandemicPatient
2K Followers 388 Following Pandemic Patients is a 501(c)(3) non-profit organization that works to relieve the harm caused by COVID-19.
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Breathe Safe Air @safe_breathe
6K Followers 78 Following Everything that you need to know about air pollution. Respirators, masks, air purifiers, monitors and more.
🍉Jerome is Team #C.. @jacksojj88
3K Followers 5K Following Educator, historian, fierce advocate for children #Blacklivesmatter #StopAsianHate #DAYS, #Sprina,#themeparks, #SARSCoV2isAirborne 🍉🏳️🌈(they/them/he/him)
Myra Batchelder @myrabatchelder
19K Followers 11K Following Health Policy & Advocacy. @COVIDAdvocacyNY @COVID_Advocacy. #SRHRJ #VaxPlus #KeepMasksInHealthcare. @Harvard @SarahLawrence alum. She/her
Typer Durden @drdevonprice
23K Followers 2K Following 📚Author of Unmasking Autism, Laziness Does Not Exist, and Unlearning Shame.
MaskTogetherAmerica @TogetherWeMask
5K Followers 2K Following We advocate for people threatened by COVID-19 by promoting the multi-layered approach in mitigation measures. Let’s stay COVID-SMART.
Julie S. Lam @MsJulieSLam
3K Followers 1K Following https://t.co/8mUMQ9kQna | MaskwithUs FB Group | @TogetherWeMask Founder, Writer, Photographer, Mom, IgAN Warrior
Julia Marie @julia_doubleday
10K Followers 3K Following International and domestic politics; Deputy Director, Committee LLC; co-host @committeepro; Julie Oliver for Congress 2020, Beto for Senate 2018, Bernie 2016
Ryan Prior @r_prior
6K Followers 878 Following Author of “The Long Haul” book on #LongCovid (@mitpress) Psychology Today “Patient Revolution” Columnist. Fmr: @CNN @tcfdotorg
Dr. Lucky Tran @luckytran
70K Followers 4K Following 📢 Public Health, Climate Justice, and Science Communication 🎓 Columbia, Cornell, Cambridge, Adelaide ➡️ Find me on other websites: https://t.co/yvBIYKMcGF
Gregory Travis. Make .. @greg_travis
17K Followers 2K Following I will minimize COVID and write anti-vaccination books for $$$$$$ DM meNever in my wildest dreams could I have predicted a future where a new virus would become the #1 infectious disease killer of children and that medical leadership would decide the vaccine for this virus is NOT important for kids, and NOT promote it. 🤯 ox.ac.uk/news/2023-01-3…
Long Covid Support, in collaboration with @LongCovidScot & @NIHRCRN_nthames are excited to invite everyone to our 2-day webinar: Long Covid: What needs to happen next? 5 & 6 July (1000-1300 BST). Register now at nihr.doclift.com/auth/register #LongCovid #LongCovidAwareness
What do we want? Masks in healthcare! When do we want it? Now! Join us this Saturday, June 17th at 2PM at Kaiser in LA off Sunset for WEEK 8 of PROTESTS to keep #MasksInHealthcare settings! Let’s keep growing the movement to protect our families and communities! #MasksSaveLives
Patients have the right to safe healthcare, a right being infringed upon as the pandemic rages on. If you or a loved one were infected with COVID in a healthcare setting, let us know so we can promote safety. zurl.co/26Dj #Healthcare
Nice to see @WHO joining the John Snow Project in recommending prevention of infection as the first line of defence against the harms of COVID-19. johnsnowproject.org/primers/who-ad…
‘if you’re marginalized in any way how you fare with long covid & long covid symptoms is likely gonna be determined by your identity’
TW: Domestic Violence There’s an untold number of people who are now disabled from COVID for whom the decision to leave will become that much harder.
LA Action: Week 6 of protests to keep masks in healthcare settings this Sat, June 3rd, 2PM at Kaiser off Sunset / Vermont. Every week more people are taking action to make our communities and healthcare settings safer during this airborne pandemic. Keep caring, keep going!
Week 5 of protests to keep masks in healthcare settings! Together, we are making a difference toward the safety of our families and communities during this airborne pandemic. Join us as we give away free N95s to our community! #MasksSaveLives #KeepMasksInHealthcare #KeepGoing
Wanted to show off my 3.5 year old rocking his new XS Trident that fits similarly to a 3M Aura N95 💪 @CriticalAerosol will be sharing portacount fit test results soon for this best-of (what’s available) toddler/small child mask option 😷 #MaskUp
Tell your members of Congress: Support safe staffing for RNs! Add your name: act.medicare4all.org/letter/Urge-th…
Is the depletion of Natural IgM a key disease mechanism in #LongCovid ? @BhupeshPrusty argues that the depletion of these vital sweeper cells allows an imbalance in the body that starts the cascade into autoimmunity and more. Listen to the full Session: podcasts.apple.com/gb/podcast/epi…
Physicians and other healthcare workers have been speaking out in public protest against the removal of mask mandates by hospital administrations. In our latest newsletter we discuss their response. #KeepMasksInHealthcare zurl.co/d0sI #healthcare #COVID19
Join us Wednesday, June 7th at 12 PM for a co-work session to file complaints to Massachusetts Attorney General's office & write reasonable accommodation requests. You don't have to do this alone. linktr.ee/MaHealthEquity #KeepMasksInHealthcare #GiveUsCareNotCovid #LongCOVID
BIG news: Massachusetts’ Attorney General’s office wants to hear from YOU about the removal of masks in healthcare. They’ve asked that we file complaints about this civil and human rights violation. MCHE has put together templates here: docs.google.com/document/d/1Ny…
I want to highlight a couple big findings in the new RECOVER #LongCovid paper (aside from the definition) that may be missed! Journalists in particular, you may be interested: 1/
… to hold NIH responsible and be a turning point in our relationship scientific powers-that-be. We repudiate toxic finger pointing among advocates - it’s just what those who benefit from LC minimization (pols, insurers, provider networks, COVID deniers, etc) want to happen.
Which brings us back to the importance of honest, humble reseach with community leadership and accountability. RECOVER leadership is throwing all of us under the bus in a rush to show Congress they can find results. This RECOVER JAMA debacle must spur us to action…
We need biomarkers for #LongCOVID but remember they likely won’t be perfect and will also expose those who don’t fit the profile - biomarkers are tricky in many complex chronic conditions that present in such diverse ways….
This is repeating bad history: many were harmed and even killed by an #AIDS definition that excluded symptoms common in women and drug users. Diagnostic gatekeeping weaponizes our medical records, fuels care and treatment restrictions, sets patients against one another…
RECOVER released a paper playing into gaslighting & myths of disability fraud, promoting misleading “scoring” prioritizing #LongCOVID symptoms less common in other conditions - like loss of taste/smell - over those most common in LC itself…
The 1st RECOVER adult cohort results have been published. I was a patient rep on this paper, which means I did what I could to represent the patient experience in writing up the results. A few clarifications🧵1/ jamanetwork.com/journals/jama/…
Dentists taking strong COVID prevention efforts are untapped market in NYC area. First appointments of day are booked til August at number of offices. Home dental services are charging $1000+ and people are paying. New Yorkers are traveling out to NJ for dentist that wears PAPRs
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