Chronius Health @chroniushealth
One place for your health data. One personalized plan to navigate your care journey. One advocate ensuring you get care you deserve. chroniushealth.com New York, New York Joined March 2022-
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A must-read from @imaniperry, who writes powerfully about her care journey with Lupus (and also speaks powerfully, in her audiobook : audible.com/pd/A-Dangerous… )
A must-read from @imaniperry, who writes powerfully about her care journey with Lupus (and also speaks powerfully, in her audiobook : audible.com/pd/A-Dangerous… )
hey. it's endometriosis awareness month. not to be drama on main, but this disease has destroyed almost every single aspect of my life for over a decade now. i am not alone in this. it has no cure. if you have an opportunity to learn more about this disease, please do.
A survey from @carta_health shows that most people (60%) don’t have immediate access to their medical records, and 17% don’t know if they do. Everyone deserves easy access to their health data - it belongs to you! businesswire.com/news/home/2023…
Almost the New Year😮 Which means it's about that time for some "year in review". See here for a Rheumatoid Arthritis year in review, and one for Lupus, as described by physicians associated with the American College of Rheumatology: rheumatologynetwork.com/view/rheumatoi…
This is a powerfully-written account of Ehlers-Danlos Syndrome, with many points that will likely resonate with people who live with chronic illness.
This is a powerfully-written account of Ehlers-Danlos Syndrome, with many points that will likely resonate with people who live with chronic illness.
Joanna No Banana @JoannaNoBanana
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Matthew Cortland, the.. @mattbc
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Veronique Mehr @MehrVeroni
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Lilia Kalmbach @KalmbachLi563
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Janet Smith @Perdie450
175 Followers 2K Following I'm a Disney Addict. l enjoy my work as an Optician, I'm ABOC NCLC & Medical Biller. Always learning it makes Life Exciting & New. I have Lupus SLE = Pain!
Haley Heesch @HeeschHal
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Mindy Kitei: journali.. @CFSCentral
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Virginia Nik @nik_virgin86033
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Jon @jlucchesi
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MedTech Breakthrough @MedTech_Awards
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Chery Palmateer @CheryPalma2622
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Jeanette @jeanette_dorfma
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Cailyn Newton @NewtonCail45847
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ReferralMD @ReferralMD
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Tessa Morrison @TessaMorri30159
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Aviva Sapir @AvivaSapir
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Karissa @karissa63alvare
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Priscilla @priscilla_solar
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Leroy Mcconnell @LeroyMccon50067
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Danielle Petchell @dpetchell704
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Myra Batchelder @myrabatchelder
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Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Arianne @ravensspirit68
14K Followers 9K Following Old soul, creating, hoping, learning. ME/cfs C-spine injury Chronic pain Adenomyosis survivor Married Underestimate me, that'll be fun.🌸💞🌸
Joanna No Banana @JoannaNoBanana
31K Followers 21K Following Joanna (she/her) 28 Queen of Allergies 👑 MCAS, POTS, EDS & CCI💛 Autistic, ADHD, OCD. PMDD. Check out @allergybeauty for allergy friendly products!
Eric Topol @EricTopol
694K Followers 589 Following physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Peter Morley @morethanmySLE
159K Followers 13K Following ♿️ Patient Advocate-Cancer Survivor & Lupus Warrior; Testified 3x before Congress ; @AppropsDems/ @OversightDems/@EnergyCommerce
CreakyJoints.org @CreakyJoints
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Dan Wyke 🦠➡️�.. @Dan_Wyke
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Meghan O'Rourke @meghanor
23K Followers 2K Following Author of NY Times Bestseller THE INVISIBLE KINGDOM: REIMAGINING CHRONIC ILLNESS, a finalist for the National Book Awards. Editor, The Yale Review. @NYUCWP.
Patient-Led Research .. @patientled
27K Followers 614 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
GHLF @GHLForg
3K Followers 715 Following The Global Healthy Living Foundation is a 501(c)(3) non-profit advocacy organization improving the quality of life for people with chronic illness. #hcsm
kaizen Valencia @Kaizen_Valencia
18 Followers 3 Following Jesus is King! love my Family #12ubaseball 🇲🇽🇯🇵🇺🇸
The National Women's .. @TheNWHN
7K Followers 1K Following The NWHN improves women's health by developing & promoting a critical analysis of health issues to affect policy & decision-making. Follow us on IG: @thenwhn
Szyzygy @Szyzygy2
1K Followers 2K Following Student of uncertainty, evidence, chronic illness, curiosity, and all things imperfect and perfectable. Attempting to live the 80/20 rule. Novid.
Tortured Paiges Dept:.. @blueafswiftie
559 Followers 686 Following Rep Stan TNx1 Chronically ill 🦓| POTS, EDS| Actually autistic & ADHD| 4 cats 🐈 😻 |
its me. raj. @joinths
90 Followers 406 Following 800 million OVs need something. we’re building for it.
Permanently DisLabele.. @priya3396815
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Lindsay @studyinmovement
497 Followers 1K Following normie-looking upper crust punx. 🎵🤘👩🦼💓 hEDS, POTS, MCAS, HH, pSpA, SFN she/her 🙋🏼♀️ Baltimore 🦀 https://t.co/86ZENI4mfz
Sara CuppaTea @EndoButterfly
2K Followers 2K Following 💛🎗Endometriosis Warrior🎗💛 💜 💪Fibromyalgia Fighter 💪💜
Dr. Cynthia Ann Betti.. @mogollonarchy
298 Followers 545 Following Retired Archaeologist (PhD) and Director Emerita of WNMU Museum, Silver City, NM, Sjogren's warrior
CAFE NAKI MEDIA™ @cafenaki
870 Followers 797 Following 🏆 Emmy® winning producer @CNN @HLNTV @ABC @CBS @FOXNews turned #Marketing + #PR strategist. RT’s are not endorsements.
Mackenzie Abramson, M.. @Kenz_Chronicles
323 Followers 1K Following 🦓 #RareDisease #Patient & #Advocate 🧬 #ehlersdanlossyndrome ❤️ #potssyndrome 🧠 #myalgicencephalomyelitis 🌏 #adventurer 🐶🐶🐱 #furbaby #mama
Alpesh Patel @Alpeshrph
1K Followers 3K Following CEO- Ravkoo Health & Bexcode services. Digital health marketplace. Solving complex healthcare system with technology and innovation.
Ravkoo Health @ravkoohealth
134 Followers 23 Following ravkoo Health™ is an innovative technology company that provides a patient-centric , data driven, interconnected, interoperable, digital health marketplace.
Crystal Bedoya @crystalbedoya_
289 Followers 323 Following writer | mexicana living w/ multiple sclerosis since 2005 🧡🌵
Gastro Girl @gastrogirl
7K Followers 6K Following Your trusted patient advocate and guide to digestive health expertise, resources and support. Partner w @AmCollegeGastro in @GIOnDEMAND
Fortesa Latifi @hifortesa
17K Followers 2K Following Features @TeenVogue. State school alum x2. Also in @nytimes @washingtonpost @cosmopolitan @Slate etc. Rep’d: @mina_hamedi
yes im subtweeting at.. @dreamsinger9
325 Followers 849 Following all opinions are my own cause i'm the only one i can trust
Shawnda Huffman @ShawndaMcNeal
2K Followers 1K Following Founder and CEO Tuuti Agency, Animal lover, trophy wife, & proud mama to a boy named Howie. ❤️
pots warrior @pots_syndrome_
89 Followers 33 Following Pots is a lot to deal with. This account is to talk about pots syndrome and also has jokes so we can learn to laugh at ourselves. #POTS #Dysautonomia
Tiah Marie Beautement.. @ms_tiahmarie
11K Followers 10K Following Writer. She/her. Disabled. ST book reviewer. Publishers: @modjaji_bks & @vhakololo Lives w/ dogs, cat, hens & humans.
Tenika Mason @TMason74
283 Followers 873 Following Wife, mom, animal lover, and brain cancer advocate. Our daughter is an Ependymoma survivor 🦋
Pashi Sedai 🐀🏳�.. @khawapashi
453 Followers 1K Following She/they 🔞♿️ queer enby. Older than the internet. Star Wars, WoT, Sandman, etc. Khawapashi on AO3.
Thanks, It’s Chroni.. @thxitschronic
9 Followers 15 Following Welcome to my unfiltered life with chronic illness. I don’t sugar coat things here. Goal is to spread awareness on REAL life with chronic pain/illness.
The Endo Informer @theendoinformer
1K Followers 274 Following Endometriosis is not the endometrium, Advocating for better treatment options for Endo & Adeno warriors. #changetheguidelines
Michele @Boho__dream
51 Followers 51 Following Fall, Halloween, Summer adventures, Boho, gypsy, hippie, witchy, art, photography, books, journaling, music, movies, meditation, RA warrior.
Dana Baker hopes you .. @DanaBaker
2K Followers 1K Following I'm not great at the advice; can I interest you in a sarcastic comment? • Fond of hats, dogs, naps, equal rights, open minds • Migraine/NDPH/Fibro/ThyCa ✌️🦥🥞
Long-Covid Advocacy �.. @longcovidIRE
3K Followers 5K Following Advocating for #longcovid treatment. Need help from journalists, researchers and politicians to create awareness to #treatlongcovid #FBLC
Taylor Nichols, MD @tnicholsmd
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Chelsea Hill @chill8214
122 Followers 86 Following Newly diagnosed RRMS late 2021. Striving to be the best for my two littles and husband. #msstrong
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Jess Green @jessgreenpoet
6K Followers 4K Following Poet. Performer. Writer of theatre, telly and podcasts. Rep @Casarottoramsay She/Her.
Alexis M. @turnoftheshrew
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Thane Black @thane_black
7K Followers 187 Following 'Kindly let me help you or you will drown said the monkey putting the fish safely up a tree' #SevereME
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Jazmine, Esq. @ibeez_jaypee
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Mea @Meaph2020
1K Followers 2K Following #travel #friendly #fitness #mom #science #nature #fibromyalgia #endo #invisibleillness #makeup #fashion #gamer #destiny2 #twitch #health #wellness #mom
Kenz @bethecactuskenz
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SGD @Help4SGD
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@chroniushealth is a great organization I’m advising clinically. They’re hiring a #remote #physician to be a #pcp for the #startup It’s a part time role. Share it with others and reach out to me if you have any questions. #familymedicine @aafp @STFM_FM lnkd.in/e3ANu98q
This is exciting news @chroniushealth!
After oversubscribing our beta, we're admitting folks to our waitlist & just crossed 50 signups. So exciting to see interest grow in our solution for autoimmune & inflammatory patients! Hats off to beta users discovering bugs & giving feedback to improve the platform for all!
@chroniushealth SO beyond excited to see this take off!! 🥄 ✨
Chronius is a new one-stop shop for chronic illness management founded by a fellow chronic illness patient
Together we can build a platform FOR patients, BY patients that will help us take back our time. #Sponsored #NEISvoid #ChronicIllness #ChronicallyIll #DisabledTwitter
Will you join me in taking charge of your health? Sign up today for the waitlist and be among the first to get free access to the Beta version of Chronius. chroniushealth.com/get-early-acce… #Sponsored
One of my biggest challenges in managing POTS is how overwhelming it is to keep track of and easily share the fragmented health information I’ve collected over the years. That’s why I just joined the waitlist for @chroniushealth #Sponsored
Feeling they will prescribe me something that I know won’t work and won’t help me find accessibility.. my diplopia for instance.. I’ve had prisms, surgery, eyepatches.. everything. Still can’t see straight. I rather just be legally blind at this point so I can get aids
Hi chronically ill and/or disabled friends, What do you find most difficult in regards to preparing for a doctor’s appointment? #NEISvoid #ChronicIllness #ChronicallyIll #DisabledTwitter
Not panicking too much, because by now I always expect to be dismissed. 😅 And making a plan of what I want to say is hard as well.
Hi chronically ill and/or disabled friends, What do you find most difficult in regards to preparing for a doctor’s appointment? #NEISvoid #ChronicIllness #ChronicallyIll #DisabledTwitter
Setting expectations and trying not to overthink and overwhelm myself about getting a inadequate care prior to the appointment due to past instances.
Hi chronically ill and/or disabled friends, What do you find most difficult in regards to preparing for a doctor’s appointment? #NEISvoid #ChronicIllness #ChronicallyIll #DisabledTwitter
An important thread:
Hi chronically ill and/or disabled friends, What do you find most difficult in regards to preparing for a doctor’s appointment? #NEISvoid #ChronicIllness #ChronicallyIll #DisabledTwitter
The good news is…a new platform is coming to make chronic illness management effortless. Become an insider: chroniushealth.com/get-early-acce… #Sponsored #NEISvoid #ChronicIllness #ChronicallyIll #DisabledTwitter
Hi chronically ill and/or disabled friends, What do you find most difficult in regards to preparing for a doctor’s appointment? #NEISvoid #ChronicIllness #ChronicallyIll #DisabledTwitter
@JoannaNoBanana It would be great! I just send an email to them.
@JoannaNoBanana Thank you Joanna, will sign up. 💗
@JulieMeryl09 Yeah it’s a great resource! This is the sign up for a wait list and then beta launch is coming soon. I added MCAS in the other category, so hopefully it’ll get added soon. Definitely worth it to sign up and let them know that you would like MCAS added there 💛
@JoannaNoBanana HEYYY proud of you ❤️ I signed up
@JoannaNoBanana I try to avoid going unless I have to. I do have my monthly pain management, but unless they want to drug test me (like every 4 or so months), I often find reasons that I can't make it to the office so I can just do it over Zoom. I don't want a SARS-2 infection.
@JoannaNoBanana Preparing the confidence to make doctors listen to me and also preparing all my evidence to stop them from using excuses to dismiss me
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