UK MND Clinical Studies Group @UK_mnd_CSG

UK-wide network of clinical researchers, bringing together the expertise & enthusiasm to develop the quality of MND research in the NIHR CRN community. mndcsg.org.uk UK Joined December 2017

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UK MND Clinical Studies Group @UK_mnd_CSG

2 years ago

Researchers in Sheffield are aiming to understand how to better support people with MND making the complex decision to have a gastrostomy placed. If you are a HCP in the UK who has been involved in these discussions, please consider completing the survey shef.qualtrics.com/jfe/form/SV_4N…

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MND Association @mndassoc

2 years ago

BREAKING 🥳 WE DID IT! The @GOVUK has now agreed to commit £50 million to fund specific research in to motor neurone disease in response to our #United2EndMND campaign. It's made the front page of Sunday's @Daily_Express, which has supported our fight 🔬 express.co.uk

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UK MND Clinical Studies Group @UK_mnd_CSG

3 years ago

Please take a few moments to pause and reflect on this inspiring and motivating open letter to MND researchers from a patient living with MND. mndcsg.org.uk/2021/06/open-l…

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AMRC @AMRC

3 years ago

#Clinicalresearch supported by AMRC charity @mndassoc has helped improve quality of life for people with motor neurone disease. Find out more in our #MakingADifference impact report: bit.ly/3fe1XW7. #charityimpact #CTD2021

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UK MND Clinical Studies Group @UK_mnd_CSG

3 years ago

MND patients, carers, family members - Can you help researchers understand patients & carers priorities? Would you be interested in joining a vibrant group of lay advisors supporting Sheffield researchers to develop new research proposals? smndrag.group.shef.ac.uk/2021/05/new-me…

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UK MND Clinical Studies Group @UK_mnd_CSG

3 years ago

The ALS Biomarkers study has been updated to allow people to provide biosamples using simple at-home collection kits, allowing patients to take part regardless of where in the UK they live. The study is recruiting patients with MND & healthy individuals mndcsg.org.uk/mnd-clinical-r…

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Chris McDermott @profcjmcdermott

3 years ago

Thank you @SteveBakerHW for your crucial support in the fight against #MND. With dedicated funding we can build on recent advances in our understanding of MND and make this disease treatable. #United2EndMND

Rt Hon Steve Baker MP FRSA 🗽 @SteveBakerFRSA

3 years ago

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MND Association @mndassoc

3 years ago

Over the next 5 years we want @GOVUK to invest £50 million into motor neurone disease (#MND) research. You can help us. We're #United2EndMND. Please add your name to our petition 👇 petition.parliament.uk/petitions/5645…

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UK MND Clinical Studies Group @UK_mnd_CSG

4 years ago

It would be great to capture thoughts of participants in MND studies in this NIHR survey...

CamilleBCarroll @CamilleBCarroll

4 years ago

It would be great to capture thoughts of participants in MND studies in this NIHR survey...

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UK MND Clinical Studies Group @UK_mnd_CSG

4 years ago

I've emailed my MP to ensure motor neurone disease is added to the list of 'extremely vulnerable persons' as a matter of urgency. Help protect people with #MND from #coronavirus #Covid19 by emailing your MP too. ecampaigns.mndassociation.org/page/58148/act…

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Neuroscience Institute @neuroshef

4 years ago

Celebrating Dr Guillaume Hautbergue, who has been elected as a Fellow of the Royal Society of Biology in recognition of his “prominent contribution to the advancement of the biological sciences” as a Senior Lecturer in Translational RNA Biology.

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Optical Jukebox @OpticalJukebox

4 years ago

Launched today! #myBreathing website supporting people with #MND #ALS to make choices about #breathing support, #NIV & #ventilation dev w/ @neuroshef @mndassoc @SYMNDA @MNDManchester @NWVU_MFT @mndeducation @profcjmcdermott @helloammba @designbyglass mybreathing.mymnd.org.uk

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Esther Hobson @DrEstherHobson

4 years ago

So far we have NIV-4-MND @NIV_4_MND

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Sally Light @sallylight17

4 years ago

This looks like a fantastic resource. Thank you so much to all of the people affected by MND that helped to create it. So much better for your contribution 👏🏼👏🏼👏🏼

Chris McDermott @profcjmcdermott

4 years ago

This looks like a fantastic resource. Thank you so much to all of the people affected by MND that helped to create it. So much better for your contribution 👏🏼👏🏼👏🏼

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MND Campaigns @mndcampaigns

4 years ago

Calling #MND clinicians: please take 10mins to fill DWP’s survey on reforming the welfare benefits system for terminally ill people. Give your views on the process before 29th Feb bit.ly/2wpGln5

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UK MND Clinical Studies Group @UK_mnd_CSG

4 years ago

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King's MND Centre @kingsmnd

4 years ago

People affected by MND are at the heart of everything we do here at KingsMND. We need your input to tailor our services and future research. If you're interested in helping us do this, you can join our advisory group. DM us for details and our coordinator will email you back #MND

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DiAMoND Study @DiAMoNDstudy_

4 years ago

Another fantastic opportunity to share the @DiAMoNDstudy_ with an important audience. Great support for our work and thought provoking discussions 💡 #MND #shareddecisionmaking #feedingoptions

Ally Lycett @allylyce_physio

4 years ago

Another fantastic opportunity to share the @DiAMoNDstudy_ with an important audience. Great support for our work and thought provoking discussions 💡 #MND #shareddecisionmaking #feedingoptions

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MND Assoc VIP & Events Team @mndVIPteam

5 years ago

Huge congratulations to #Scottish #rugby hero and @mndassoc supporter #DoddieWeir (seen here with @mndresearch director @DrBrianDickie) on his #OBE for services to #MND research 🏅 #NewYearHonours

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MND Research @mndresearch

6 years ago

Abstracts for the 29th International Symposium on ALS/MND are now available to view online. This includes abstracts of 109 talks and over 400 poster presentations that will be presented at this year's #alssymp in Glasgow, in just over two weeks. mndassociation.org/symposium/abst…

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Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp

MND Research @mndresearch

13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp

Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.

Ammar Al-Chalabi @AmmarAlChalabi

5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.

Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.

Sally Light @sallylight17

3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.

Brian Dickie @DrBrianDickie

2K Followers 293 Following Director of Research at the UK MND Association

The Education and Information team at the Motor Neurone Disease Association for England, Wales and Northern Ireland.
Account monitored 9-5.30 Monday to Friday.

MND Education @mndeducation

3K Followers 2K Following The Education and Information team at the Motor Neurone Disease Association for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.

Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist

Chris McDermott @profcjmcdermott

1K Followers 496 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist

Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.

David Setters @dsetters

2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.

Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.

LifeArc @lifearc1

7K Followers 3K Following Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.

Nicola Waters @AberdareNic

1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 12 and 9. Fighting MND one day at a time... #MND #ALS

Consultant Neurologist/senior lecturer working at SITraN on ways to improve care for Motor Neurone Disease using telehealth and NIV (bikes and views are my own)

Esther Hobson @DrEstherHobson

737 Followers 265 Following Consultant Neurologist/senior lecturer working at SITraN on ways to improve care for Motor Neurone Disease using telehealth and NIV (bikes and views are my own)

Professor of Communication and Social Interaction & Head of Language and Cognition at University College London. Fascinated by conversation.

Professor Steven Bloc.. @steven_bloch

2K Followers 1K Following Professor of Communication and Social Interaction & Head of Language and Cognition at University College London. Fascinated by conversation.

Dietitian/NIHR doctoral fellow in Sheffield. Interested in decision making and the nutritional management of people with MND. Any views expressed are my own.

Sean White @SeanWhi00489566

421 Followers 620 Following Dietitian/NIHR doctoral fellow in Sheffield. Interested in decision making and the nutritional management of people with MND. Any views expressed are my own.

Professor of Neurodegenerative Disorders & Clinical Trials @mndsmart @AnneRowlClinic @EdinUniBrainSci #forthvalleyneurology @nhsforthvalley

Suvankar Pal @suvankarpal

2K Followers 1K Following Professor of Neurodegenerative Disorders & Clinical Trials @mndsmart @AnneRowlClinic @EdinUniBrainSci #forthvalleyneurology @nhsforthvalley

Charity Leadership Professional. Passionate about the power of people and community. Managing Director of Time for Impact

Chris Wade @ChrisWade_TFI

3K Followers 4K Following Charity Leadership Professional. Passionate about the power of people and community. Managing Director of Time for Impact

ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him

David Taylor @VPResearch_ALS

1K Followers 1K Following ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him

Neurologist with an interest in studying the role of kinases in ALS/MND @mrcppu. SAP member @MNDScotland. Trustee @PhysicsPartners.

𝐀𝐫𝐩𝐚𝐧 .. @DrArpan100

2K Followers 2K Following Neurologist with an interest in studying the role of kinases in ALS/MND @mrcppu. SAP member @MNDScotland. Trustee @PhysicsPartners.

Greater Manchester Branch of the Motor Neurone Disease Association. We help people across Greater Manchester affected by #MND, their carers, families & friends.

MND Association - Man.. @MNDManchester

3K Followers 517 Following Greater Manchester Branch of the Motor Neurone Disease Association. We help people across Greater Manchester affected by #MND, their carers, families & friends.

FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS.

Join the fight & donate today: https://t.co/Jrbp90Mq0d

F I G H T M N D @FightMND

8K Followers 922 Following FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS. Join the fight & donate today: https://t.co/Jrbp90Mq0d

Nurse Consultant in a regional ventilation service. Passionate about promoting independence and assuring good life quality in this complex patient group.

Alison Armstrong @AlisonArmstron

2K Followers 1K Following Nurse Consultant in a regional ventilation service. Passionate about promoting independence and assuring good life quality in this complex patient group.

christina faull @cmfaull

1K Followers 298 Following Consultant in Palliative Medicine. Research lead LOROS Hospice Leicester.

Akua Hans Slangs|•�.. @AkuaHans_

807 Followers 745 Following Love to advocate and share opinions on various matters |•Loves Crime Drama🌹Introvert🧘🏿‍♀️👑

Paolo Marchi @paolo_m_marchi

11 Followers 189 Following Postdoctoral researcher in Neuroscience | London | @UCL and @UKDRI | @adrianisaacslab | C9orf72 ALS/FTD

A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.

UK MND Research Insti.. @UKMNDRI

551 Followers 58 Following A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.

Interested in the role communication, visual arts & public involvement can play in improving translational research & healthcare.

Philippa Pristerà @PPristera

116 Followers 137 Following Interested in the role communication, visual arts & public involvement can play in improving translational research & healthcare.

ROBERT WORRALL @velocibob

78 Followers 531 Following

SiHallas @SimonHallas2

347 Followers 2K Following Fundraising for MND. walking 100km in 1 day to raise money and awareness. Hull FC fanatic and Views are my own.

Clear, simple summaries of Neuroscience research hot off the press – read and reviewed by those who live beyond our labs at @sheffielduni & @SheffieldBRC

Readable Research @ReadableR

90 Followers 120 Following Clear, simple summaries of Neuroscience research hot off the press – read and reviewed by those who live beyond our labs at @sheffielduni & @SheffieldBRC

We provide specialist nurse-led #complexcare for adults and children across London and the home counties, delivered in the comfort of their own homes.

HFH Healthcare @HFHHealthcare

169 Followers 688 Following We provide specialist nurse-led #complexcare for adults and children across London and the home counties, delivered in the comfort of their own homes.

Physiotherapist interested in neurology and gerontology. PhD student in motor neuron disease. All views are my own. RT does not mean endorsement.

Avril Mc Tague @avrilmctague

164 Followers 590 Following Physiotherapist interested in neurology and gerontology. PhD student in motor neuron disease. All views are my own. RT does not mean endorsement.

PhD student exploring the use of technology to improve outcomes for people living with motor neuron disease. Public Involvement Lead on the CONTACT-GAD trial.

Lucy Musson @lucysmusson

35 Followers 147 Following PhD student exploring the use of technology to improve outcomes for people living with motor neuron disease. Public Involvement Lead on the CONTACT-GAD trial.

Wellcome clinical PhD fellow at Queen Square Institute of Neurology @FrattaLab 🧪 • Motor neuron disease researcher 🧠 • Neurologist 🩺 • @Cambridge_Uni alumna

Dr Puja R. Mehta 🩺.. @DrPujaM

1K Followers 2K Following Wellcome clinical PhD fellow at Queen Square Institute of Neurology @FrattaLab 🧪 • Motor neuron disease researcher 🧠 • Neurologist 🩺 • @Cambridge_Uni alumna

The Yorkshire Dales branch of the @MNDASSOC. We support people living with MND in the Yorkshire area.

Find out more HERE 👉 https://t.co/7n5OPdLuhb

MNDA Yorkshire Dales @MNDA_Dales

46 Followers 148 Following The Yorkshire Dales branch of the @MNDASSOC. We support people living with MND in the Yorkshire area. Find out more HERE 👉 https://t.co/7n5OPdLuhb

Riddhi @Riddhi098784515

2 Followers 14 Following

Consultant resp physio. NIHR Doctoral Research fellow. NHSE clinical entrepreneur. Passionate about patient care, health tech & research #Dyslexic

Stephanie Mansell (sh.. @skmansell

2K Followers 701 Following Consultant resp physio. NIHR Doctoral Research fellow. NHSE clinical entrepreneur. Passionate about patient care, health tech & research #Dyslexic

Chartered Accountant. FD/CFO. Architecture, R2R, Sustainability, Passivhaus, PropTech, Women's Health and HealthTech. MAMIOC. Views my own.

Stewart Gilmour @JSG2050

2K Followers 3K Following Chartered Accountant. FD/CFO. Architecture, R2R, Sustainability, Passivhaus, PropTech, Women's Health and HealthTech. MAMIOC. Views my own.

Alisdair McNeill @am_sheffgenet

3K Followers 4K Following Senior Clinical Lecturer in Neurogenetics. Editor-in-Chief @ejhg_journal. Opinions my own.

Ellen collins @Ellenco94240319

21 Followers 123 Following

Steelley Doubler @Pro.. @SteelsSolutions

0 Followers 94 Following

Advanced Research Fellow @aberdeenuni | MND/ALS & neurodegenerative diseases | Clinical heterogeneity | Immunity & neuroinflammation | Genetics | Data synthesis

Fergal Waldron @FergalWaldron

Trainee Clinical Psychologist researching how carers of people with motor neuron disease (MND) experience palliative care in the UK.

Georgia Steed @GeorgiaSteed2

11 Followers 134 Following Trainee Clinical Psychologist researching how carers of people with motor neuron disease (MND) experience palliative care in the UK.

Project Manager, The Together Academy. Project for adults with Down syndrome. Mum to 3 gorgeous children. Our son Alex has Down Syndrome.

Cathy Smith @CathyShovlin

88 Followers 320 Following Project Manager, The Together Academy. Project for adults with Down syndrome. Mum to 3 gorgeous children. Our son Alex has Down Syndrome.

Gideon Meade @GideonMeade

19 Followers 327 Following Life belongs to the discontented!

A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent

MND Peer Support @MND_PeerSupport

227 Followers 1K Following A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent

Sarah Opie-Martin @opie_martin

82 Followers 202 Following I love walking, boxing, coding, yoga and living in SE London!

Early retired civil servant.Married to Graham, wife, mother, grandmother.Mother of a recently diagnosed MND warrior 2022.
Supporter of Dartford FC.

Jayne Harler @dfc4ever

153 Followers 395 Following Early retired civil servant.Married to Graham, wife, mother, grandmother.Mother of a recently diagnosed MND warrior 2022. Supporter of Dartford FC.

The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.

ALS Hope Foundation @ALSHF

3K Followers 610 Following The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.

Emilia Michou @emimichou

1K Followers 1K Following Asst Prof, #dysphagia, #SLT, #language, #brain, #neurophysiology, #neurorehabilitation, #neurostimulation. Views of my own (🎧🎤🗣🥽)

Sancha Brody Stalker @SBrodyStalker

16 Followers 435 Following

Grace Hallinan @hallinan_grace

3 Followers 96 Following

Developing & supporting #Parkinsons clinical research across the UK & increasing research opportunities for people with Parkinson's. Funded by @CureParkinsonsT.

UK Parkinson’s Dise.. @UK_PD_CSG

461 Followers 576 Following Developing & supporting #Parkinsons clinical research across the UK & increasing research opportunities for people with Parkinson's. Funded by @CureParkinsonsT.

NIHR Sheffield BRC Research Project Manager & UK Parkinson’s Clinical Studies Group Coordinator 🧠 BSc in Psychology, MSc in Clinical Neurology.

Emma Davies @EmmaCDavies97

81 Followers 135 Following NIHR Sheffield BRC Research Project Manager & UK Parkinson’s Clinical Studies Group Coordinator 🧠 BSc in Psychology, MSc in Clinical Neurology.

Tara Bradford @Tara_B29

37 Followers 196 Following MND CNS

EJWright @RN_EJW

141 Followers 783 Following Dermatology fanatic and all things nursey. Also a fan of art, music, literature

Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.

Danielle Boyce @DataSciDanielle

583 Followers 1K Following Data scientist/Drug Repurposing, Neurodegen + Epilepsy + ID + Oncology//art lover//patient advocate//mom of 4 / Views strictly my own.

Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.

themnddiaryproject @mnddiaryproject

158 Followers 332 Following Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.

Tj @oztj

61 Followers 609 Following

Nicole Robertson @nrobertsonRD

213 Followers 146 Following HEF & Neurology Dietitian at ELHT | Musician | Cub leader | Environmentalist | Baker

Magdalena @Magdale57682014

0 Followers 5 Following

StampOutMND @StampOutMnd

315 Followers 1K Following Charity Fundraiser For The Motor Neurone Disease Association since 2015

Welcome to Cambridgeshire MND Branch. Run entirely by volunteers. Aims to provide the best possible support to local people with MND, their families, & carers.

Cambridgeshire MND Br.. @CambsMNDBranch

230 Followers 480 Following Welcome to Cambridgeshire MND Branch. Run entirely by volunteers. Aims to provide the best possible support to local people with MND, their families, & carers.

Sophie (SLT) @SophieG88

206 Followers 742 Following Advanced Speech & Language Therapist in Adult Neuro Rehab

Wendy Gray @wgray9

19 Followers 64 Following

Physio at UHL currently in cardiology. Wife, mum of 3. l love to run, travel & scuba dive. Summer lover & winter hater. My views are my own.

Donna McHugh 💙 �.. @donna_physio

538 Followers 2K Following Physio at UHL currently in cardiology. Wife, mum of 3. l love to run, travel & scuba dive. Summer lover & winter hater. My views are my own.

haigh hounds @Sillysally1979

237 Followers 706 Following reward based ethical dog training.

Sarah @Sarah04lfc

43 Followers 113 Following 💉 Clinical Research Nurse 👰‍♀ Wife 🐕 Dog Momma All views are my own

Tom Nightingale @Tom_Night

472 Followers 859 Following Family 👨‍👩‍👧‍👦 Work 📆 Luxuries 🏉⚽️ Charlton fan 🔴⚪️Rugby player🔴⚪️

MND Association @mndassoc

48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND

MND Research @mndresearch

13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp

Ammar Al-Chalabi @AmmarAlChalabi

5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.

MND Scotland @MNDScotland

8K Followers 2K Following Making time count for people with motor neuron disease (MND).

Sally Light @sallylight17

3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.

Brian Dickie @DrBrianDickie

2K Followers 293 Following Director of Research at the UK MND Association

Chris McDermott @profcjmcdermott

1K Followers 496 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist

ALS/MND Alliance @ALSMNDAlliance

5K Followers 543 Following A World Free of #ALS #MND

Campaigning with people with motor neurone disease #MND @mndassoc
Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX

MND Campaigns @mndcampaigns

8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX

We conduct vital research into motor neuron disease. Based at the University of Edinburgh, we unite over 200 scientists and doctors across Scotland.

Euan MacDonald Centre @EuansCentre

3K Followers 1K Following We conduct vital research into motor neuron disease. Based at the University of Edinburgh, we unite over 200 scientists and doctors across Scotland.

News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).

MND Assoc VIP & Event.. @mndVIPteam

5K Followers 2K Following News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).

Esther Hobson @DrEstherHobson

737 Followers 265 Following Consultant Neurologist/senior lecturer working at SITraN on ways to improve care for Motor Neurone Disease using telehealth and NIV (bikes and views are my own)

Suvankar Pal @suvankarpal

2K Followers 1K Following Professor of Neurodegenerative Disorders & Clinical Trials @mndsmart @AnneRowlClinic @EdinUniBrainSci #forthvalleyneurology @nhsforthvalley

MND Association - Man.. @MNDManchester

3K Followers 517 Following Greater Manchester Branch of the Motor Neurone Disease Association. We help people across Greater Manchester affected by #MND, their carers, families & friends.

F I G H T M N D @FightMND

8K Followers 922 Following FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS. Join the fight & donate today: https://t.co/Jrbp90Mq0d

christina faull @cmfaull

1K Followers 298 Following Consultant in Palliative Medicine. Research lead LOROS Hospice Leicester.

Developing a decision aid to support individuals with MND to decide whether to have a gastrostomy feeding tube|@mariecurieuk & @mndassoc funded|@unisouthampton

DiAMoND Study @DiAMoNDstudy_

296 Followers 261 Following Developing a decision aid to support individuals with MND to decide whether to have a gastrostomy feeding tube|@mariecurieuk & @mndassoc funded|@unisouthampton

MND Australia @mndaustralia

3K Followers 440 Following Care, advocacy and research in support of those living with motor neurone disease (MND).

Emma Davies @EmmaCDavies97

81 Followers 135 Following NIHR Sheffield BRC Research Project Manager & UK Parkinson’s Clinical Studies Group Coordinator 🧠 BSc in Psychology, MSc in Clinical Neurology.

UK Parkinson’s Dise.. @UK_PD_CSG

461 Followers 576 Following Developing & supporting #Parkinsons clinical research across the UK & increasing research opportunities for people with Parkinson's. Funded by @CureParkinsonsT.

A group of scientists from Sheffield Institute of Translational Neuroscience who write lay summaries of research articles about neurodegenerative diseases.

HOTP Lay Summaries Sh.. @SheffNeuroHOTP

112 Followers 57 Following A group of scientists from Sheffield Institute of Translational Neuroscience who write lay summaries of research articles about neurodegenerative diseases.

Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.

MND-SMART @mndsmart

1K Followers 990 Following Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.

Dr. Elli Wilson - Anne McLaren Research Fellow, NCARE, School of Health Sciences, University of Nottingham. UK.
Quals, palliative+end of life
Views are my own

Dr. Eleanor Wilson @DrElliWilson

581 Followers 759 Following Dr. Elli Wilson - Anne McLaren Research Fellow, NCARE, School of Health Sciences, University of Nottingham. UK. Quals, palliative+end of life Views are my own

Studies exploring the use of home mechanical ventilation in MND.
-VentMND - end of life decision making - closed
-TVLife - Living with trachy vent- closed

VentMND Studies @VentMND

166 Followers 259 Following Studies exploring the use of home mechanical ventilation in MND. -VentMND - end of life decision making - closed -TVLife - Living with trachy vent- closed

The West Dorset Branch of the Motor Neurone Disease Association supporting local people living with MND, their carers & families.
#WestDorset #MND @MNDassoc

MND West Dorset @MNDWestDorset

482 Followers 424 Following The West Dorset Branch of the Motor Neurone Disease Association supporting local people living with MND, their carers & families. #WestDorset #MND @MNDassoc

Health sciences researcher, with a particular interest in quality of life & nutrition self-management in life changing & limiting conditions

Sally Wheelwright @SallyWheel

237 Followers 135 Following Health sciences researcher, with a particular interest in quality of life & nutrition self-management in life changing & limiting conditions

Southampton & Winchester Group of the Motor Neurone Disease Association. Championing the amazing work of our volunteers. #MND

MNDA Soton & Winch @MNDASoton

629 Followers 391 Following Southampton & Winchester Group of the Motor Neurone Disease Association. Championing the amazing work of our volunteers. #MND

Head of Research for The MND Association.
MND ALS Research Scientist, Research Group Leader, Adjunct Research Fellow, Kitesurfer, Husband, Dad.

Nicholas Cole @nickjamescole

479 Followers 182 Following Head of Research for The MND Association. MND ALS Research Scientist, Research Group Leader, Adjunct Research Fellow, Kitesurfer, Husband, Dad.

Charity 2018-2023 leaving a lasting legacy for Nick Smith who died at 38 from MND. Supported MND research, bereaved children & rugby league with £200k raised.

The Nick Smith Founda.. @ForSmudger

574 Followers 412 Following Charity 2018-2023 leaving a lasting legacy for Nick Smith who died at 38 from MND. Supported MND research, bereaved children & rugby league with £200k raised.

Tackling the biggest challenges in neuroscience by bringing together #SITraN and researchers across medicine, science and engineering.

Neuroscience Institut.. @neuroshef

4K Followers 917 Following Tackling the biggest challenges in neuroscience by bringing together #SITraN and researchers across medicine, science and engineering.

MND Register @MNDRegister

421 Followers 365 Following MND Register for England, Wales & Northern Ireland #MND #ALS

Better NIV for MND @NIV_4_MND

221 Followers 192 Following A research programme which aims to enhance the efficacy of non-invasive ventilation for people with #MND #ALS

Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine

Emily Mayberry (she/h.. @ejmayberry

339 Followers 516 Following Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine

we are trying to leave Twitter as a moral step, but lack of support means deactivating account seems nigh impossible…just says oops try later. can’t even escape

does not exist @mndsw_care

178 Followers 0 Following we are trying to leave Twitter as a moral step, but lack of support means deactivating account seems nigh impossible…just says oops try later. can’t even escape

PabloGarciaReitboeck @pablogarciareit

322 Followers 505 Following 👨‍👩‍👧‍👦👨‍⚕️🏥🇦🇹🇪🇦🇪🇺🇬🇧 Neurologist @stgeorgestrust. #mnd #myasthenia gravis #clinical trials

Nuffield Department o.. @NDCNOxford

5K Followers 698 Following World-leading programmes in basic, translational and clinical neuroscience research at the University of Oxford.

A UK multi-centre study aiming at understanding the optimal nutritional management for people with #ALS #MND who are fed enterally following a #gastrostomy.

PostGas @PostGasMND

82 Followers 94 Following A UK multi-centre study aiming at understanding the optimal nutritional management for people with #ALS #MND who are fed enterally following a #gastrostomy.

Information about how you can be part of health and social care research and the difference research can make, helping future generations live well for longer.

Be Part of Research @NIHRtakepart

29K Followers 2K Following Information about how you can be part of health and social care research and the difference research can make, helping future generations live well for longer.

We are a @NIHRresearch Clinical Research Facility;a partnership between @SheffieldHosp & @sheffielduni. Location: Royal Hallamshire & Northern General Hospitals

NIHR Sheffield CRF @CRFSheffield

2K Followers 597 Following We are a @NIHRresearch Clinical Research Facility;a partnership between @SheffieldHosp & @sheffielduni. Location: Royal Hallamshire & Northern General Hospitals

We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research

NIHR Involvement @NIHRinvolvement

19K Followers 659 Following We share learning, events and advice from @NIHRresearch on engaging patients, service users, carers and the public in health and care research

Sharing news, events and partnering opportunities for the life sciences industry from @NIHRresearch
Helping you to plan, set up and deliver research in the UK.

NIHR for Industry @NIHR_Industry

4K Followers 341 Following Sharing news, events and partnering opportunities for the life sciences industry from @NIHRresearch Helping you to plan, set up and deliver research in the UK.

Free & confidential methodological advice, post-award support and collaboration opportunities with expert groups in health, public health and social care

NIHR Research Support.. @NIHR_RSS

10K Followers 928 Following Free & confidential methodological advice, post-award support and collaboration opportunities with expert groups in health, public health and social care

Robbert Jan Stuit @rjstuit

539 Followers 63 Following #ALS/MND #ALS #MND #entrepreneur #investment #printing #communication #biotech, #Treeway, #advocate

ALS Hope Foundation @ALSHF

3K Followers 610 Following The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.

Nonprofit organization that provides FREE guidance and support to people with ALS in over 150 countries. We seek to help people live better and longer with ALS

ALS WORLDWIDE @ALS_WORLDWIDE

1K Followers 113 Following Nonprofit organization that provides FREE guidance and support to people with ALS in over 150 countries. We seek to help people live better and longer with ALS

We provide advice and support to people living with MND and their families in SE Wales. We also fundraise towards national research, to find a cure for MND.

MNDA SE Wales @SEWalesMND

877 Followers 311 Following We provide advice and support to people living with MND and their families in SE Wales. We also fundraise towards national research, to find a cure for MND.

Steve Bell @SteveBellMND

967 Followers 243 Following Retired from MND Association

Sharing news and information from the National Institute for Health and Care Research (NIHR). We fund, enable and deliver world-class health and care research.

NIHR Research @NIHRresearch

99K Followers 4K Following Sharing news and information from the National Institute for Health and Care Research (NIHR). We fund, enable and deliver world-class health and care research.

MNDA WSS Branch - Chichester, Worthing, Shoreham and the Chanctonbury Villages across to the Sussex Hampshire border. Text MNDSANDY 10 to 70085 to donate £10

MNDA West Sussex Sout.. @mndawss

448 Followers 281 Following MNDA WSS Branch - Chichester, Worthing, Shoreham and the Chanctonbury Villages across to the Sussex Hampshire border. Text MNDSANDY 10 to 70085 to donate £10

MND Victoria provides VITAL care + support for people with motor neurone disease & funds research.
Read the latest MND news & stories on our website.

MND Victoria @MNDVic

2K Followers 3K Following MND Victoria provides VITAL care + support for people with motor neurone disease & funds research. Read the latest MND news & stories on our website.

Jodie Keyworth @jodie_keyworth

530 Followers 1K Following Head of Business Development - Grounded Research, RDaSH - Love my garden and books, lots of books.. Views my own.

Julie Taghan @JulieUnsted

327 Followers 392 Following Chair for MND West Sussex North Branch. https://t.co/rfed28bEXA #MND https://t.co/lExosEzbRa

Sussex Motor Neurone Disease Care & Research Network. Brighton & Sussex Medical School. Working with @UHSussex & @mndassoc to improve care for PABMND in Sussex

Sussex MND Network @SussexMND

347 Followers 293 Following Sussex Motor Neurone Disease Care & Research Network. Brighton & Sussex Medical School. Working with @UHSussex & @mndassoc to improve care for PABMND in Sussex

Adapting and evaluating Acceptance and Commitment Therapy (ACT) for improving quality of life in people with Motor Neurone Disease

COMMEND Project @CommendProject

279 Followers 153 Following Adapting and evaluating Acceptance and Commitment Therapy (ACT) for improving quality of life in people with Motor Neurone Disease

ProSec3 @pro_sec3

83 Followers 21 Following A multi-centre evaluation of excessive saliva management in patients with motor neurone disease

Claire Hirst @clairehirstuk

19 Followers 38 Following

Suresh Chhetri @drsureshchhetri

182 Followers 281 Following Neurologist at Lancashire Teaching Hospitals NHS Foundation Trust, Preston MND care and research centre.

@NIHRresearch funded programme focused on nutritional management in #ALS #MND. @neuroshef, @CTRU_Sheffield, @ScHARRSheffield at @sheffielduni / @SheffieldHosp

OptiCALS @opti_cals

245 Followers 53 Following @NIHRresearch funded programme focused on nutritional management in #ALS #MND. @neuroshef, @CTRU_Sheffield, @ScHARRSheffield at @sheffielduni / @SheffieldHosp

An open-access resource helping scientists to accelerate ALS drug discovery by fostering collaboration, reporting the latest news & sharing research tools.

ALS Research Forum @ALSResForum

689 Followers 74 Following An open-access resource helping scientists to accelerate ALS drug discovery by fostering collaboration, reporting the latest news & sharing research tools.

Suresh Chhetri @drsureshchhetri

3 years ago

Our fantastic research team!! Thanks for everything that you do

Marianne Hare @mariannehare

3 years ago

Happy International Clinical Trials day to this lovely mob. Really enjoying getting back to our core business of research with patients in neurology, neurosurgery and stroke. #ICTD2021 #ICTD21 @LancsResearch

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MND Association @mndassoc

3 years ago

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MND Association @mndassoc

4 years ago

Barry, who is living with motor neurone disease, is a communication aid user. Here’s how he feels businesses becoming #CommunicationAccess accredited would help him. Find out more here 🗣️ rcslt.org/home/policy/co…! #MND

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MND Research @mndresearch

4 years ago

We're all ready for the first Regional Focus event of the year in Liverpool! #mndrfe

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Chris McDermott @profcjmcdermott

4 years ago

I am relieved to report that the case I have been involved with has been resolved. Lots of action from many including a local MP. A complaint is going to the sec of state about this case. I fear there are many still fighting DWP and there will be more until the rule is changed.

Jayne Halhead 🌹 @Jaynes__World

4 years ago

THANK YOU for your email, @timfarron MP, regarding the @mndassoc and @mariecurieuk #Scrap6Months campaign and advising you have written directly to the Secretary of State 'begging her to wind up the review in order to extend the fast track process to ALL with a terminal illness.'

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Katy Styles @WillowKaty

4 years ago

We need to #ValueCarers. This article highlights one in six MS carers are working more than 90 hours a week for free. It’s the *First * time I’ve seen anyone call it out for what it is. Working for free. 💪📢🩹mirror.co.uk/news/politics/…

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MND Research @mndresearch

4 years ago

We're excited to announce the launch of @UK_mnd_CSG's updated clinical research studies webpages! This is a valuable resource that you can use to find out about all the #MND research studies across the UK – in a patient-friendly and accessible format 🖥️ mndcsg.org.uk/mnd-clinical-r…

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eyegazeartist @sarahezekiel

5 years ago

Going home tomorrow and my back feels much better! So grateful to @mariecurieuk Hampstead hospice for taking such good care of me. The staff have been fantastic, I feel like I've been on holiday. Great food too 😀#MND #hospice

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MND Assoc VIP & Events Team @mndVIPteam

5 years ago

Huge congratulations to #Scottish #rugby hero and @mndassoc supporter #DoddieWeir (seen here with @mndresearch director @DrBrianDickie) on his #OBE for services to #MND research 🏅 #NewYearHonours

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COMMEND Project @CommendProject

6 years ago

Thank you and well done to @kingsmnd for recruiting a second participant to @CommendProject! #MND #research 👏

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Chris McDermott @profcjmcdermott

6 years ago

This is very useful. However it does highlight that the pathway to trialling new therapies for awful diseases is too long and complex #als #mnd

NIHR Research @NIHRresearch

6 years ago

The #CTToolkit is an interactive colour-coded routemap that helps researchers design clinical trials. Find useful advice here: ow.ly/Sy7E30mtygD #ResearchResource #healthresearch

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John Ealing @EalingJohn

6 years ago

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MND Assoc VIP & Events Team @mndVIPteam

6 years ago

Among the guests meeting The Princess Royal at our @mndresearch dinner on Weds evg at @RoySocChem were @mndassoc and @mndaeastsurrey supporters David & Helen Setters 📸 Huge thanks to them for all that they do! 👏🏼👏🏼

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MND Assoc VIP & Events Team @mndVIPteam

6 years ago

Great to introduce TV sports presenter and @MNDoddie5 trustee #JillDouglas to the Royal Patron of the @mndassoc, The Princess Royal, on Wednesday evening at our @mndresearch dinner 👑 Thanks for all you & #Doddie do to support people living with #MND Jill 👏🏼

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christina faull @cmfaull

6 years ago

May help doctors, educators and others learn how conversations about dying can happen effectively #PLOSONE: Engaging Terminally Ill Patients in End of Life Talk: How Experienced Palliative Medicine Doctors N ... dx.plos.org/10.1371/journa… @RCPFuture @drkathrynmannix @Marco_Pino_

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MND Assoc VIP & Events Team @mndVIPteam

6 years ago

#FridayReads reminder that the new/final book by our late patron #StephenHawking is out now....with a % of royalties going to @mndassoc & The #StephenHawkingFoundation 👍 #bookworms #book #weekend

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christina faull @cmfaull

6 years ago

@UK_mnd_CSG @Postgas1 We hope to recruit our first participant vey soon for this important study . It’s a tough time for patients going through this to think about research

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MND Assoc VIP & Events Team @mndVIPteam

6 years ago

.@DoddieWeir5 and @LJohnrose: two former sportsman now living with #MND who have done so much to raise awareness of the disease. What an honour to have them at the @mndresearch dinner tonight 👍 #rugby #football #TeamMND

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Nick Goldup @NickGoldup1

6 years ago

On the way to our @mndassoc Research Dinner attended by HRH The Princess Royal. A great opportunity to hear the latest on @mndresearch. Will make for a great evening.