Search results for #United2EndMND
We have had over 500 signings and messages so far supporting @DarbyRimmerMND @Rob7Burrow @edslater Marcus Stewart, partners and @burrow_geoff - Open letter to the #Mirocals consortium. See all the messages here and perhaps add your voice? united2endmnd.org/2024/04/30/wou… #united2endmnd
It's over 510 now! Add your voice if you have not yet. #united2endmnd #als #mnd
It's over 510 now! Add your voice if you have not yet. #united2endmnd #als #mnd
This is so important - Please show your support and sign #attackMND #united2endmnd
This is so important - Please show your support and sign #attackMND #united2endmnd
We have had over 400 signings and messages so far supporting @DarbyRimmerMND @Rob7Burrow @edslater Marcus Stewart, partners and @burrow_geoff - Open letter to the Mirocals consortium. See all the messages here and perhaps add your voice? united2endmnd.org/2024/04/30/wou… #united2endmnd
#mirocals trial ended nearly 2 yrs ago & we still await results! Typical survival once diagnosed with #mnd is just 2yrs! Something wrong here? If touched by #mnd please support @DarbyRimmerMND @Rob7Burrow @edslater & Marcus’s OPEN letter to the consortium. BW Lee #united2endmnd
#mirocals trial ended nearly 2 yrs ago & we still await results! Typical survival once diagnosed with #mnd is just 2yrs! Something wrong here? If touched by #mnd please support @DarbyRimmerMND @Rob7Burrow @edslater & Marcus’s OPEN letter to the consortium. BW Lee #united2endmnd
A great champion #United2EndMND
🎈 HAPPY BIRTHDAY to our mate @dsetters, relentless #MND trooper, conscientious #MND crusader and co-creator of the revolutionary #United2EndMND campaign! 🤩 WHAT a difference a Dave makes! ❤️ Have a super special day with your wonderful wife Helen! X #MND #MoreNeedsDoing!
@LorriCav We do most weeks. Conversation is regular & more than cursory. Here in Europe I work actively with 13 to 20 of the most influential, published & talented global #als #mnd researchers as part of work with @UKMNDRI formed after #united2endmnd research campaign since 2020. BW Lee
A special night for a special man & family, thanks @Burrow_strictly well done dancers and @DanikaPriim on the Trophy! A lovely evening 🧡💙 @sallynugent @AndyBurnhamGM @PaulBoothMC 👏 #United2EndMND
High five @TracyBrabin @AndyBurnhamGM for dancing the night away @Burrow_strictly. Your support @mndassoc means so much to every family affected by this cruel disease. This short video about our son Alex shows why for @Emma_MacLennan & me. #United2EndMND youtube.com/watch?v=lqXCej…
High five @TracyBrabin @AndyBurnhamGM for dancing the night away @Burrow_strictly. Your support @mndassoc means so much to every family affected by this cruel disease. This short video about our son Alex shows why for @Emma_MacLennan & me. #United2EndMND youtube.com/watch?v=lqXCej…
@AndyBurnhamGM @TracyBrabin @Rob7Burrow Thanks so much for agreeing to be humiliated Andy & Tracey! @Emma_MacLennan & I lost our much loved son Alex to MND nearly 4 years ago. He was a Lab Cllr & dedicated to public service. MND is such a cruel disease & your support is much appreciated. #United2EndMND
WE will never forget former soldier CHRIS RIMMER, who lost his life to #MND on this day 2022. CHRIS co-founded the @DarbyRimmerMND charity, co-created the #facebook support group 'MND Warriors United' and was a relentless campaigner for #United2EndMND. AN incredible legacy.
@PaulJSweeney @MNDScotland @ScotParl Thanks so much for your support Paul. This is a cause that means so much to me and my family. #United2EndMND
A shout out to #ElonMusk #PMModi . I am a #MND patient , Want to live a perfect healthy life but this disease does not have a cure. #neuralink telepathy have given me HOPE. Request the trials to open for Indians like Tesla operations or an assured treatment. #United2EndMND
Hi Gillian @GillianKeegan can you help to facilitate important meeting with @Andrew4Pendle regarding first truly effective treatment for #mnd #als that is being blocked by @NICEComms? Thanks @Rob7Burrow @burrow_geoff @DarbyRimmerMND for support #united2endmnd Best wishes Lee
Hi Gillian @GillianKeegan can you help to facilitate important meeting with @Andrew4Pendle regarding first truly effective treatment for #mnd #als that is being blocked by @NICEComms? Thanks @Rob7Burrow @burrow_geoff @DarbyRimmerMND for support #united2endmnd Best wishes Lee
James was a member of our #united2endmnd team & helped further both research and raising awareness. And as you will read below he raised a staggering amount of money quickly through his relentless enthusiasm. We are all shocked at this news. We will miss you James. Lee #als #mnd
James was a member of our #united2endmnd team & helped further both research and raising awareness. And as you will read below he raised a staggering amount of money quickly through his relentless enthusiasm. We are all shocked at this news. We will miss you James. Lee #als #mnd
@AberdareNic We are NOT campaigning for an unproven drug. We are merely campaigning for the results of a trial! #als #mnd research is truly challenging but we cannot overlook basic process issues. 2 years and still no results on just 200 patients? Something is very wrong? #united2endmnd
It’s 16 mths next week since exciting top line results of #mirocals trial for interleukin 2 for #als #mnd. Disease with no effective treatment that kills often in 2 yrs. Still no results! Is this now untenable whatever ‘the challenges?’ #united2endmnd United2endmnd.org/mirocals
Our #united2endmnd statement on the Tofersen situation with @NICEComms. Their decision cannot be final. If it is then it's the end for personalised medicine in the UK! @GOVUK @VictoriaAtkins #als #mnd united2endmnd.org/2024/04/02/tof…
Patients United2EndMN.. @united2endmnd
473 Followers 74 Following We are a group of patients, working to support the drive for a cure for MND.
David Ward @DavidDjward
6K Followers 2K Following Exec Pres @towardszerofdn @globalncap; Tenterden Town Cllr; Ex Policy Head John Smith MP; Mbr @AngHellenLeague; #United2EndMND; Own views
Cllr David Ward 🌹 @DwTenterden
1K Followers 1K Following Tenterden Cllr. Sec Weald of Kent Labour. Ex-Policy Head John Smith MP, #United2EndMND for late son Cllr Alex Ward. Heads sustainable transport global charity.