APPG on Motor Neurone Disease @APPGonMND
This is not an official feed of Parliament. It has not been approved by either House. APPGs are informal groups of Parliamentarians with a common interest. mndassociation.org/get-involved/c… Joined June 2020-
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Our Chair has written to Minister of State for Science @griffitha regarding the recent appraisal decision taken by NICE on tofersen. @ALewerMBE highlighted this decision goes against advice from patient organisations, including @mndassoc and leading #MND clinical experts.
Today we held the Annual General Meeting of the APPG on #MND. We're pleased to have successfully re-formed with @ALewerMBE continuing as Chair and with @IanByrneMP, @MaryRobinson01 & @Bren4Bassetlaw as Officers. Thanks to the 20 Parliamentarians who attended.
Thank you to everyone who came to today's meeting of the APPG. We heard about how the #CostOfLivingCrisis disproportionately affects people with #MND and other terminal illnesses, and what Government can do about this.
Today is the launch of the long awaited and much anticipated Motor Neurone Disease Research Institute. So proud this has got so far so soon! @mndassoc @CharlotteHawkns @MNDoddie5 @JillADouglas @mndresearch @mndresearch @APPGonMND @united2endmnd
Yesterday APPG Chair @ALewerMBE met with @Tanyacurry2 & @mndcampaigns to discuss future priorities for the group and campaigning opportunities in Westminster.
Today is #GlobalMNDAwarenessDay! It is vital we raise awareness of #MND and continue the fight to find a cure. We'll continue to work to bring more attention to MND in Parliament on and beyond.
Have you heard of motor neurone disease (#MND)? It’s a disease that kills a third of people within a year, and more than half within two years of diagnosis. It kills six people a day. It has no cure. On #GlobalMNDAwarenessDay, put #MNDOverMatter and help us raise awareness!
Huge thanks to Chair of @APPGonMND, @ALewerMBE, for sponsoring todays event for #GlobalMNDAwarenessDay!
We’re here at the #CarersWeek parliamentary reception with @APPGonMND chair @ALewerMBE. Time to #SupportMNDCarers!
I am delighted to continue as Chairman for the @APPGonMND after our AGM this morning. It was followed by a superb presentation from @AmmarAlChalabi who updated Parliamentarians on the progress of emerging treatments and the next steps for the £50m and MND Research Institute.
We are in Westminster for the next @APPGonMND meeting which will focus on exciting progress of #MND research. Keep an eye out on our social media for updates throughout the day…👀
Last night I was honoured to present the 2,000th Point of Light award to @Rob7Burrow. Rob's work shining a light on Motor Neurone Disease and funding research and care is nothing short of inspirational. It will change what it means to be diagnosed with #MND. Thank you, Rob.
Here at Parliament, we are marking the 20th anniversary of the All-Party Parliamentary Group on Motor Neurone Disease — and we are full of hope @mndassoc #MND @mndVIPteam @ZoeTheBall @CharlotteHawkns @jjanisiobi
I am absolutely delighted that @GOVUK (@beisgovuk & @DHSCgovuk ) set out how it will deliver its £50 million pledge to fund a ground-breaking #MotorNeuroneDisease Research Institute. Thank you @mndassoc @MNDoddie5 @Rob7Burrow youtube.com/watch?v=B3cSHG…
Grateful to @Helen_Whately for the support she and Ministerial colleagues have shown in responding to concerns, and facilitating access to funding for MND research.
Grateful to @Helen_Whately for the support she and Ministerial colleagues have shown in responding to concerns, and facilitating access to funding for MND research.
Today Chair of the APPG on MND @ALewerMBE raised the challenges unpaid MND carers face around accessing respite services. Good to hear @Helen_Whately commit to reviewing specialist training for MND for the social care workforce in upcoming social care reforms.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
My Name'5 Doddie Foun.. @MNDoddie5
38K Followers 252 Following Registered Charity, established by Doddie Weir & friends to raise funds to aid research into Motor Neuron Disease & supporting fellow sufferers.
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Jayne Halhead 🌹 @Jaynes__World
6K Followers 4K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND/#ALS #MND #MoreNeedsDoing! Championing #Lancashire
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
Geoff Burrow @burrow_geoff
9K Followers 181 Following Husband to my beautiful wife, Irene, and Proud Dad and Grandad. Fighting to find a Treatment and Cure for MND - we are SO CLOSE 👍👊🤞
Lee Millard @onein300
2K Followers 899 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 12 and 9. Fighting MND one day at a time... #MND #ALS
MND Assoc VIP & Event.. @mndVIPteam
5K Followers 2K Following News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).
Brian Dickie @DrBrianDickie
2K Followers 293 Following Director of Research at the UK MND Association
MND Education @mndeducation
3K Followers 2K Following The Education and Information team at the Motor Neurone Disease Association for England, Wales and Northern Ireland. Account monitored 9-5.30 Monday to Friday.
Sally Nugent @sallynugent
161K Followers 2K Following Presenter @BBCBreakfast. Instagram @sallynugenttv Enquiries [email protected]
Jude de Vos @heyheyjude23
621 Followers 789 Following Fly Free Jody🌻A Mothers Love Never Dies🕊️Love You 4 Ever ❤️ : MND FundRaising Challenges: Ben Nevis 2022: Euro Motorbike 2018: Camino 2025
Nick Goldup @NickGoldup1
1K Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Chris McDermott @profcjmcdermott
1K Followers 496 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Layla Cunard @cunard55830
45 Followers 5K Following
Fiona Barrett @FionaBa06286795
2 Followers 83 Following
Richard Evans @RichardJaEvans
2K Followers 2K Following Director of Engagement at @MNDassoc. @PointofCareFdn trustee. Have written books about journalists Basil Clarke and Philip Gibbs.
Nova Defonce @NDefonce98332
81 Followers 5K Following
Demi-leigh Agerter @AgerterDem59724
66 Followers 5K Following
Ruby Medero @MederoRuby47517
64 Followers 5K Following
Ginny Coachman @GinCoachm
86 Followers 5K Following
Cammie Thibodeaux @camm_cammie
73 Followers 5K Following
Emily Dornon @EDornon5462
84 Followers 5K Following
Min Kettle @MinKettle3907
77 Followers 5K Following
Lucy Mccowen @LucyMccowe79918
56 Followers 5K Following
Deneen Swentzel @SwentzeDene
68 Followers 5K Following
Indie-rose Safko @RoseSafko5115
66 Followers 5K Following
Scarlet Gonsiewski @SGonsiewsk56296
31 Followers 5K Following
Kirrie Todd @KirrieK
77 Followers 266 Following
janine culshaw @culshawsuperj9
86 Followers 155 Following my biggest fight is with MND. I’m trying to stay well enough until a cure is out there. I would love my voice back.
[email protected] @swmallett
12 Followers 18 Following
jidshurl @jidshurl
12 Followers 462 Following A Swansea girl living in the North East ... you can take the girl out of Wales but you can never take Wales out of the girl!
나는누구인가 @choehye83631849
51 Followers 101 Following
Rights For Residents @rightsforresid2
6K Followers 6K Following Grassroot campaign fighting for rights of those in care #CareSupporter #GloriasLaw #RightsForResidents FB: https://t.co/tSUgJJM6z2
Fozzie @Fozziedog
2K Followers 848 Following Particularly handsome Jack Russell born 2 July 2008 in North Yorkshire village but now living 'down south'. [email protected]
Arthur @ArthurButcher44
1K Followers 721 Following #motorsports🏎️🏍️, #gardening💐,. #once sponsored an Olympics 🇬🇧🏃♀️? …#MND/#ALS…cure desperately needed now!! for my daughter & others🙏🏼
W1gg @aw1011n
121 Followers 654 Following
Matthew Spurr @Matt_spurr
190 Followers 662 Following @UniOfNottingham Alumni (School of Social Policy) | Full Time Dyslexic | Civil Servant | 🦞@rebeccajflint
Jade Lucas @Jade_M_Lucas
3 Followers 115 Following
James - Diagnosed Dad @diagnosed_dad
583 Followers 157 Following 👋🏻 A Dad living & dealing with MND/ALS
Jessica Jones @jaffa_girl
447 Followers 2K Following Policy wonk: rare disease & transplantation. Patient advocate. Health inequality, politics & opinions. Views largely those of my dog, not my employer.
NIHR PRU in Dementia .. @DeNPRUExeter
2K Followers 1K Following This NIHR Policy Research Unit is part of @NIHRresearch and hosted by @UniofExeter in collaboration with Bradford, LSE, Newcastle & UNSW. Views own.
Peter Whitehead @peter_whit18612
95 Followers 183 Following Recently Diagnosed with MND/ALS, Father of 3, Estate Agent of 40 Years, love being on the sea power boating & huge Leicester City fan.
Marsha Begley @MarshaSwMum
681 Followers 3K Following A proud social worker, putting my heart now into our workforce @ #teamSHSCT. All views my own. #Yes2SocialWork #ChooseSocialWork #SocialWorkNI #ChangeTheScript
Carol Gent @GentCarol
77 Followers 223 Following I live in Grantham. I'm a wife , mum ,Nannie and Macmillan Specialist Nurse and Queen’s Nurse all rolled into one it doesn't get any better than that!
Jurandyr Pimentel Net.. @PimentelNetoJ
6 Followers 90 Following Ph.D. Student in Cellular and Molecular Biology at São Paulo State University, currently searching for telocytes...
G Sefton @g_sefton
64 Followers 108 Following
Aleksandra @Aleksan36325679
1 Followers 13 Following I love and respect no matter the religion, race, skin color or sexuality.
GreyCurmudgeon @greycurmudgeon
4K Followers 4K Following Motor Neurone Disease (MND) sufferer. Never trusts MSM so don't use them. Mostly prefer dogs to people. They're more honest & often more intelligent.
ROBERT WORRALL @velocibob
78 Followers 531 Following
Slin @nils400045
1 Followers 156 Following
Natalie Wallis @NatalieJessic10
320 Followers 731 Following Scientist | Collaborator | Volunteer | Global Health | Outputs Development Manager @LivUni | Research Associate/PhD @Cambridge_Uni | BSc @UniofNottingham
Stuart Temple @Tempsy1
93 Followers 1K Following
Sarah 💚 @S4R4H999
466 Followers 1K Following Wife and Mum to an amazing LD/Autisic Son. Support #mnd and #heartdisease research in memory of my Parents. 💚 I work in #socialcare
Dipak Saha @DipakSahaFarida
8 Followers 31 Following
Graeme Walker @gosforthgraeme
366 Followers 1K Following Non Exec director, marathon runner, cyclist, husband, dad, Newcastle Utd, Durham cricket, Seattle Seahawks, rock music, books, maps, mountains & weather fan.
Susan Whalley @WhalleySusan
8 Followers 113 Following
Jennifer Watkins @JenniferW_work
30 Followers 150 Following Senior Campaigns Adviser at the Motor Neurone Disease Association. All views my own. She/her
Amber Collingwood @AmberColli83305
8 Followers 29 Following
Susan Baker @KSalsFighter
1K Followers 3K Following KS farm girl passionate about promoting awareness about Familial FTD ALS
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
Rob Burrow CBE @Rob7Burrow
199K Followers 2K Following Proud owner of the Autobiography of the year 2022. You can get it at all book stores or Amazon. #toomanyreasonstolive Number 1 Sunday times best seller!
My Name'5 Doddie Foun.. @MNDoddie5
38K Followers 252 Following Registered Charity, established by Doddie Weir & friends to raise funds to aid research into Motor Neuron Disease & supporting fellow sufferers.
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
Geoff Burrow @burrow_geoff
9K Followers 181 Following Husband to my beautiful wife, Irene, and Proud Dad and Grandad. Fighting to find a Treatment and Cure for MND - we are SO CLOSE 👍👊🤞
Lee Millard @onein300
2K Followers 899 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 12 and 9. Fighting MND one day at a time... #MND #ALS
MND Assoc VIP & Event.. @mndVIPteam
5K Followers 2K Following News and information about VIP support and special event activity for the Motor Neurone Disease Association (@mndassoc).
Brian Dickie @DrBrianDickie
2K Followers 293 Following Director of Research at the UK MND Association
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Sally Nugent @sallynugent
161K Followers 2K Following Presenter @BBCBreakfast. Instagram @sallynugenttv Enquiries [email protected]
Chris McDermott @profcjmcdermott
1K Followers 496 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Leeds Rhinos @leedsrhinos
204K Followers 2K Following Official account for eight times Men’s Super League Champions & two-times Women's Super League Champions Leeds Rhinos
Alex Ward MND Angel �.. @alexwardfund
525 Followers 895 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
Richard Evans @RichardJaEvans
2K Followers 2K Following Director of Engagement at @MNDassoc. @PointofCareFdn trustee. Have written books about journalists Basil Clarke and Philip Gibbs.
James - Diagnosed Dad @diagnosed_dad
583 Followers 157 Following 👋🏻 A Dad living & dealing with MND/ALS
UK MND Research Insti.. @UKMNDRI
551 Followers 58 Following A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
Louie French MP @louie_french
6K Followers 587 Following 🏴🇬🇧 Conservative MP for Old Bexley & Sidcup. Promoted by Louie French of 19 Station Road, Sidcup, DA15 7EB
UKParliamentRL @UKParliamentRL
2K Followers 895 Following UK Parliamentary Rugby League Group Twitter feed.
Carers Week @carersweek
23K Followers 3K Following Carers Week is an annual campaign to raise awareness of caring and highlight the challenges unpaid carers face. Carers Week is 10-16 June 2024.
Dr Alice Lilly @aliceolilly
13K Followers 3K Following Senior Researcher @instituteforgov and Learning & Development Manager @ifg_academy: all things parliament, govt, ministers, policy making. Sport fan.
UK Covid-19 Inquiry @covidinquiryuk
23K Followers 0 Following This is the official Twitter account of the UK Covid-19 Inquiry. As an independent and public inquiry, it will examine the UK's response to the Covid pandemic.
Ian Duncan @IanDuncanHMG
9K Followers 3K Following Deputy Speaker, House of Lords. Former minister & MEP. Know about energy & climate, forestry, fish and gin. Chair of @forestsandwood
House of Lords Adult .. @HLAdultCare
4K Followers 645 Following News & information from the House of Lords Committee on Adult Social Care. Produced by staff on behalf of the committee.
British In Vitro Diag.. @BIVDA
3K Followers 2K Following Trade association representing 200+ UK medical diagnostics companies. Innovative diagnostics save lives, provide early diagnosis & transform patient pathways.
Institute of Psychiat.. @KingsIoPPN
57K Followers 1K Following Institute of Psychiatry, Psychology & Neuroscience (IoPPN) at @KingsCollegeLon | Globally renowned for research excellence and education in #MentalHealth
LifeArc @lifearc1
7K Followers 3K Following Medical research non-profit transforming promising life science ideas into medical breakthroughs that change patients’ lives.
Robbie Moore MP @_RobbieMoore
9K Followers 637 Following Member of Parliament for Keighley & Ilkley 🇬🇧 | Minister for Water & Rural Growth at @DefraGovUK | Working hard to level-up & deliver positive change
George Freeman MP FRS.. @GeorgeFreemanMP
38K Followers 2K Following MP Mid Norfolk. Former Minister of State for Science, Research, Technology + Innovation. // Published by George Freeman of 8 Damgate St. Norfolk. NR18 0BQ.
RCSLTpolicy @RCSLTpolicy
10K Followers 3K Following RCSLT Policy & Public Affairs team (Caroline, Claire, Berenice, Naj, Elissa & Peter) covering UK Government and England.
Commons Library @commonslibrary
34K Followers 1K Following The House of Commons Library is a research and information service based in @UKParliament. Read our impartial research online at https://t.co/xO4jBG4KGQ
Petitions Committee @HoCpetitions
24K Followers 240 Following We are a cross-party group of MPs appointed by @houseofcommons to consider petitions submitted to Parliament. Contact: https://t.co/s3kev28cYW
Dan Carden MP @DanCardenMP
54K Followers 4K Following 🌹 MP for Liverpool Walton | President of @IPUParliament Forum of #YoungMPs | @CommonsForeign | 🇬🇧🇲🇽 Trade Envoy | 📧: [email protected] | 🏳️🌈
Ilora Finlay @IloraFinlay
669 Followers 21 Following Crossbench Peer, a Deputy Speaker, House of Lords Prof. Pall Med, Cardiff Uni Chair Nat MCA Forum & Cardiff Met Bevan Commissioner Past Pres. BMA, RSM, MWF, APM
PARLY @PARLYapp
66K Followers 1K Following PARLY is a journalism project that reports on what’s happening in the House of Commons. 📸 © House of Commons
Sir Lindsay Hoyle @CommonsSpeaker
61K Followers 776 Following Sir Lindsay Hoyle, 158th Speaker of the UK @HouseofCommons. Father, grandfather and animal lover. Follow @LindsayHoyle_MP for my constituency work.
ALS Online Database @alsod_bot
141 Followers 99 Following Twitter account for the ALS Online Genetics Database, hosted at King's College London. Follow for information on research related to ALS genetics.
Rt Hon Valerie Vaz MP @Valerie_VazMP
9K Followers 738 Following Member of Parliament, Walsall South; candidate for Walsall &Bloxwich; queries and casework contact [email protected]
MND-SMART @mndsmart
1K Followers 990 Following Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
Hafezparast Lab @HafezparastLab
248 Followers 161 Following Based at the University of Sussex, we are working on understanding motor neurone diseases to help improve diagnosis and lead to new treatments.
Neurological Alliance.. @NeuroAlScotland
619 Followers 706 Following We are an alliance of neurological charities committed to improving neurological services for those living in Scotland
susie rabin @susierabin
224 Followers 164 Following Campaigner, vegan cake lover, Trustee @FourthReserve, Associate Director of Communications & Public Affairs @RoyalSocBio. All cake and views my own.
Chris Wade @ChrisWade_TFI
3K Followers 4K Following Charity Leadership Professional. Passionate about the power of people and community. Managing Director of Time for Impact
Helen Mackie @MND @HelenMackieMND1
224 Followers 257 Following #MND Association Regional Fundraiser South West; helping the amazing people fighting against MND & fundraising in the South West. Views my own #proudfundraiser
MNDA Northern Ireland @MNDA_NI
2K Followers 2K Following 💙Raising awareness 🧡Supporting people with MND in NI ➡️FB: https://t.co/L8xEK0v5zV ➡️JustGiving:https://t.co/wX1lQPM1Qf #mndani Reg Charity No. 294354
Clare Brennan @ClareVBrennan
1K Followers 937 Following Senior Content and PR Executive @Ballyhoo_PR_, former editor @mndassoc and @BandW_Adv, wife and mum. Views my own.
Brendan Clarke-Smith .. @Bren4Bassetlaw
14K Followers 3K Following @Conservatives MP for Bassetlaw 🌳 Notts County fanatic ⚽️ Contact [email protected] - visit Facebook for local info
Alison Railton @AlisonRailton
839 Followers 1K Following Head of policy and external affairs at @Kidney_Research UK. Formerly at @mndassoc. Wife, mum to boys. Swimmer. Own views.
Andy L @andylrev
63 Followers 17 Following retired Methodist Minister living near Warwick diagnosed MND in July 2019. I want to raise awareness about MND and as much money for mnd association as I can.
PACAC Committee @CommonsPACAC
13K Followers 527 Following The Public Administration and Constitutional Affairs Select Committee (PACAC) is a cross-party committee appointed to scrutinise Government. RTs ≠ endorsements.Explaining to MP’s in Parliament the hope for Interleukin 2. Full video here ⬇️ youtu.be/OyQYIKg-JBc?si… #newdrug #interleukin #trial #hope #treatment #mnd #als #motorneuronedisease #lougehrigsdisease
Today is the launch of the long awaited and much anticipated Motor Neurone Disease Research Institute. So proud this has got so far so soon! @mndassoc @CharlotteHawkns @MNDoddie5 @JillADouglas @mndresearch @mndresearch @APPGonMND @united2endmnd
It was great to meet with @ALewerMBE, MP for Northampton South, and Chair of the @APPGonMND yesterday. Alongside colleagues from our @mndcampaigns team, we spoke with Andrew about the work of the APPG, plans for campaigning priorities in Westminster and more. Watch this space!
So pleased that @Emma_MacLennan was able to join @mnda @APPGonMND #GlobalMNDAwarenessDay event in Parliament today & meet with friends @YvetteCooperMP & @AlfDubs who both knew our late son Alex lost to this cruel disease in 2020. Why we are #United2EndMND.
Have you heard of motor neurone disease (#MND)? It’s a disease that kills a third of people within a year, and more than half within two years of diagnosis. It kills six people a day. It has no cure. On #GlobalMNDAwarenessDay, put #MNDOverMatter and help us raise awareness!
Huge thanks to Chair of @APPGonMND, @ALewerMBE, for sponsoring todays event for #GlobalMNDAwarenessDay!
Great friend of @DoddieWeir5, Lord Selkirk, came to the @mndassoc @APPGonMND meeting in parliament today to remember that great man, so sorely missed. #GlobalMNDAwarenessDay
Lord Dubs of Battersea is both a member of the @APPGonMND and a dear friend. Alf, thank you for showing your support on #GlobalMNDAwarenessDay
We’re here at the #CarersWeek parliamentary reception with @APPGonMND chair @ALewerMBE. Time to #SupportMNDCarers!
I am delighted to continue as Chairman for the @APPGonMND after our AGM this morning. It was followed by a superb presentation from @AmmarAlChalabi who updated Parliamentarians on the progress of emerging treatments and the next steps for the £50m and MND Research Institute.
We are in Westminster for the next @APPGonMND meeting which will focus on exciting progress of #MND research. Keep an eye out on our social media for updates throughout the day…👀
Here at Parliament, we are marking the 20th anniversary of the All-Party Parliamentary Group on Motor Neurone Disease — and we are full of hope @mndassoc #MND @mndVIPteam @ZoeTheBall @CharlotteHawkns @jjanisiobi
Really excited to meet @theJeremyVine at an MNDA event last night. He gave a wonderful speech and so much of his time to an event celebrating campaigning work. It was an honour to be invited.
I am absolutely delighted that @GOVUK (@beisgovuk & @DHSCgovuk ) set out how it will deliver its £50 million pledge to fund a ground-breaking #MotorNeuroneDisease Research Institute. Thank you @mndassoc @MNDoddie5 @Rob7Burrow youtube.com/watch?v=B3cSHG…
Desperately sad to hear of the death of @DoddieWeir5 who waged a brave and public battle with MND. His bravery was incredible and did so much to raise awareness of this cruel disease. I really hope we will one day find a cure for #mnd. Thoughts are with his family tonight
We’re sorry to hear that Doddie Weir OBE has died. Since sharing his MND diagnosis in 2017, Doddie became an inspiration to many, raising awareness and campaigning tirelessly on behalf of those with MND. Our thoughts are with Doddie’s wife Kathy, his 3 sons, family and friends.
Check out my latest poem on my Facebook page “Our CEO” dedicated to Sally Light who we will be saying goodbye to at the end of the year! Thank you Sally!😎
Our understanding of MND has come a long way but we must ensure our scientists must have the political and financial backing to help those affected in the future. scotsman.com/news/opinion/c…
Today is #GlobalMNDAwarenessDay. A day to raise awareness of motor neurone disease around the world. As an MP I will work to support people living with and affected by #MND and champion @mndcampaigns in Parliament
Thank 𝐲𝐨𝐮 for helping us raise awareness of #MND today. We'll continue to strive to improve access to care, research and campaigning for those people living with or affected by motor neurone disease. Our vision is a world free from MND. 💙 #GlobalMNDAwarenessDay
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