MND-SMART @mndsmart
Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments. mnd-smart.org Edinburgh, UK Joined February 2021-
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MND-SMART Amantadine Stage 2 Interim Analysis Results: Amantadine doesn’t slow MND - now we know, and now we move forward. Read more: edin.ac/4cnN3fp #ALS #MND #trial
We’re very proud to be working closely with the Motor Neurone Disease Association to increase equity of access and opportunities for people living with #mnd #als to participate in clinical #trials
We're proud to announce that we have trebled our investment in the unique MND-SMART trial platform which is driving faster research into potential treatments for motor neurone disease. Read more. 🔗mndassociation.org/media/latest-n…
⭐️The winter edition of our biannual newsletter is out now!⭐️ Take a look 👉edin.ac/48QllUW Subscribe on our website to receive the next newsletter directly by email: edin.ac/44K2zxB
We’re delighted to share that MND SMART is now open for recruitment at Imperial College Healthcare NHS Trust. A very warm welcome to the Imperial team! Read more 👉 edin.ac/47zZLn5 Register your interest to participate in MND SMART👉 edin.ac/490fmPk #ALS #MND
We’re delighted to announce that MND-SMART is now open for recruitment at Hull Royal Infirmary, offering opportunities for participation to people living with motor neuron disease across the Hull and Humber Region. 🔗 mnd-smart.org/news/mnd-smart…
Wonderful for @mndsmart at @EuansCentre @UKDRI to be profiled in @Forbes Magazine as an exemplar of an innovative patient centred platform trial for #mnd #als following the recent excellent #iDR25 international drug repurposing conference eur02.safelinks.protection.outlook.com/?url=https%3A%…
⭐️The brilliant and dedicated research team at the Southampton General Hospital Trial Centre have now randomised >50 participants to MND-SMART!⭐️ Read more 👉 mnd-smart.org/news/jul-2025-… #MND #ALS #clinicaltrial
We're excited to welcome a new Group Leader to the UK DRI! 🥳🙌 Prof @suvankarpal joins our Edinburgh Centre, where he aims to deliver a streamlined approach to take mechanistic understanding of neurodegeneration into evidence-based clinical trials👉buff.ly/WOVDlGI
Tacrolimus added as the fourth investigational arm in MND-SMART. MND-SMART uses an innovative #MAMS design to evaluate several potential treatments simultaneously, speeding up the time to identify effective therapies. Read more 👉 edin.ac/4jWf0uM #GlobalMNDAwarenessDay
🔔 New Trial Centre Open 🔔 Led by Principal Investigator Dr Malcolm Proudfoot, York & Scarborough Teaching Hospitals have joined the MND-SMART team. Read more here 👉mnd-smart.org/news/mnd-smart… #MND #ALS #MNDSMART #MAMS
Congratulations to the fantastic team at Birmingham for delivering equity of access to trials for people living with #MND. Supported by the wonderful @ADFoundationUK, Birmingham serves a diverse population, is a major regional recruitment hub, and one of 23 of our UK sites.
Our newsletter is back! Find out what’s been happening in MND-SMART over the past year with our Spring 2025 Newsletter: edin.ac/41OJ6td Join our mailing list to receive our bi-annual e-newsletter, showcasing all the latest trial updates: mnd-smart.org/news/newslette…
Platform trials have led to a significant step change in how we identify potential new treatments for #als #mnd Thank you to @ALSMNDAlliance for inviting @suvankarpal to present an update on progress we’re making alongside the #EXPERTS & #HEALEY platforms youtu.be/cg1Yon70eZ8?si…
ALS/MND Platform Trials Update | March 19, 2025 📊 Many thanks to HEALEY, EXPERTS ALS and SMART! They will update us on their approach, recruitment, trial eligibility and their latest news. Appreciation to moderator, Martina de Majo. 🙏 👉 Register now: als-mnd.org/events-program…
Incredibly grateful to @mndsmart for leading this initiative and a warm welcome and huge thanks to our new Davidson Nurses 🙏🥰
We are thrilled to launch our new 'Davidson Nurses' initiative in partnership with the @ADFoundationUK This special collaboration has established five regional hubs across the UK where dedicated nurses are working to promote equity of access to MND-SMART. mnd-smart.org/news/mnd-smart…
We are thrilled to launch our new 'Davidson Nurses' initiative in partnership with the @ADFoundationUK This special collaboration has established five regional hubs across the UK where dedicated nurses are working to promote equity of access to MND-SMART. mnd-smart.org/news/mnd-smart…
Wonderful Translational Summit on MND and Rare Dementias hosted by @lifearc1 this week. Great to hear about all the progress being made across multiple areas to improve outcomes for people and to join a panel session and update on progress with @mndsmart #RareNeuro
MND Association @mndassoc
47K Followers 11K Following Every day we support people affected by motor neurone disease. Because with MND, every day matters.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
Jayne Halhead @Jaynes__World
6K Followers 5K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Friend of Bill W.
Helen Millward Butter... @JohnAda10163823
10K Followers 9K Following
Judith Newton @JNewton_MND
782 Followers 405 Following MND Nurse Consultant for Scotland, working closely with @MNDScotland & @EuansCentre. Views 100% my own.
Lee Millard @onein300
2K Followers 893 Following 1/300 is lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. Moving over to Bluesky https://t.co/5z82GhhK69
Suvankar Pal @suvankarpal
2K Followers 1K Following Professor of Neurodegenerative Disorders & Clinical Trials @EdinburghUni @mndsmart @AnneRowlClinic @EdinUniBrainSci @UKDRI #forthvalleyneurology @nhsforthvalley
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 13 and 10. Fighting MND one day at a time.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
MND Campaigns @mndcampaigns
8K Followers 2K Following Every day we campaign for the change that people with motor neurone disease urgently need. Because with MND, every day matters. @mndassoc
🏔️ Paul @ Munros... @Munros4MND
2K Followers 3K Following 🌟 Doddie Champion 🌟 Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 🏔 £110,000 & counting... #DoingItForDad 💔
Chris McDermott @profcjmcdermott
1K Followers 448 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Nick Goldup @NickGoldup1
995 Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Sean McGrath now on B... @sean_uk
7K Followers 7K Following Me: 🇿🇦🏴🇬🇧 family friends sport music current affairs travel & #FBPE #FBPPR #nafo. Work: consultancy entrepreneur @mndoddie5 Foundation
red devil @pilko71
1K Followers 2K Following Raising funds and awareness for MND, ST Old Trafford. live for today as tomorrow isn’t a given.
Stuart Thom @StuartThom11
837 Followers 3K Following Ambassador of the My Name'5 Doddie Foundation.. Charity fundraiser.. Lover of all things sport..
MND Education @mndeducation
3K Followers 910 Following Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.
Nancy G @hkucuk06
25 Followers 2K Following Flowers grow in my loneliness, dreams in silvery silence 🌿
Elizabeth Green @lizziegreenx
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SimonCarter1872 @SimonCarter1872
1 Followers 19 Following
Gethin Thomas @GethinThomas17
55 Followers 124 Following MND/ALS; Cycling; Welsh; Rugby; Family; Stuff... Show me the evidence. My views!
Darren @PoppedBall
11 Followers 470 Following
Toby Ferguson @TobyFerguson20
9 Followers 84 Following
Matt Rocheleau @mrochele
3K Followers 3K Following ALS volunteer advocate | former data & investigations editor at Hearst CT Media & Times Union; Columbia U. adjunct prof; Boston Globe Spotlight reporter
B @Sara4843
943 Followers 420 Following
kevin killeen @8f9krx28xn
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Seyhun Saçlı @SaclSeyhun
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Joe Wilson @JoeWils_
474 Followers 617 Following
Graeme Mackenzie @GDocs05
4 Followers 97 Following
elephantintheroommove... @ElephantIn2022
192 Followers 472 Following Let’s talk about the elephant in the room We are asking every organisation, business & individual in Ireland to help raise mental health awareness.
Amy Tone4 @AmyTone4
1 Followers 26 Following
carloslopez @clopezlansdowne
19 Followers 94 Following
Colin Humphreys @ColinHumph29966
0 Followers 2 Following
Omima Alaa @OmimaAlaa3
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Nimue @nimue_lilith
2 Followers 17 Following
August Steffan @teslax_nation
108 Followers 2K Following Dedicated to enlightenment, prosperity, and the elevation of humanity🔺
ALS News Today @alsnewstoday
3K Followers 1K Following Your source for ALS news, support, & real stories from the community. Let's raise ALS awareness together!🎗️
Emma Keeling ♿️ @keeling_emma
125 Followers 418 Following
Sam & The Bucket List @SJHH32
506 Followers 1K Following 💪 MND (limb onset) diagnosed 5 March 2022 🪣 Sam's Bucket list: 73/100 complete. 🗣️ Wheelchair Life, Accessibility, Independence, MND/ALS 📍 Kent
Istaq Ahmad @istaqahmad
273 Followers 5K Following Research Coordinator Department of Neurology, AIIMS New Delhi India
Gary Parker @garyparker83
218 Followers 1K Following Workshop Director. space geek :) member of the Cody Astronomical Society. F1 fan, Aviation Fan, #MND #MNDA
Ana Theodoro @AnaTheodoro6
1 Followers 42 Following
Adele Mccormick @mccormickadele1
285 Followers 212 Following Reader at the University of Westminster. Research on HIV and HCV drug resistance, retroviral involvement in ALS and 3D lung models to screen drugs for SARS.
Stuart Moss @stuart_moss
172 Followers 388 Following
KEMAL OZ2021 @kemaloztly
6 Followers 520 Following
Alistair Lambie @allyl75
250 Followers 5K Following
Gio @officiallyGio
0 Followers 671 Following
John Hulex @mohammed_h87727
4 Followers 52 Following
MND Shared @MNDShared
1 Followers 25 Following Independent Researcher & Construction Worker | Sharing AI-assisted techniques to build verifiable, open hypotheses in ALS/MND OSF: https://t.co/eNuHHlFTAs
UK MND Research Insti... @UKMNDRI
637 Followers 65 Following A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
THE LAKES @nikkz0005
3 Followers 47 Following
Avril Dickson @AvrilDickson
282 Followers 178 Following
Teethoyn @Teethoyn7Hb
13 Followers 763 Following
Dawn Holywell @HolywellDa94619
5 Followers 329 Following More of an interested follower than an interesting tweeter 🤷🏻♀️
Seartoreth @SeartorethWYET
84 Followers 3K Following
Siobhan Hurson @currant2117
17 Followers 242 Following
Elle @Elenders
137 Followers 709 Following I'm loving my life right now, each new day brings new challenges big and small. My aim to embrace each as a mom, wife, sister, friend, colleague.
Mani Vannan @ManiVannan62439
1 Followers 39 Following
ahd @Ahd954082Ahd
66 Followers 7K Following
Jill Douglas @JillADouglas
24K Followers 1K Following TV Sport Presenter for ITV, BBC, Prime though views expressed are my own. MBE. Member of team @GallagherUK. Patron of @mndoddie5
MND Association @mndassoc
47K Followers 11K Following Every day we support people affected by motor neurone disease. Because with MND, every day matters.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
Rob Burrow CBE @Rob7Burrow
183K Followers 2K Following Legacy account of Rob Burrow CBE. Posts by the Burrow family and in support of the MND community.
Jayne Halhead @Jaynes__World
6K Followers 5K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Friend of Bill W.
Helen Millward Butter... @JohnAda10163823
10K Followers 9K Following
Judith Newton @JNewton_MND
782 Followers 405 Following MND Nurse Consultant for Scotland, working closely with @MNDScotland & @EuansCentre. Views 100% my own.
Lee Millard @onein300
2K Followers 893 Following 1/300 is lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. Moving over to Bluesky https://t.co/5z82GhhK69
Suvankar Pal @suvankarpal
2K Followers 1K Following Professor of Neurodegenerative Disorders & Clinical Trials @EdinburghUni @mndsmart @AnneRowlClinic @EdinUniBrainSci @UKDRI #forthvalleyneurology @nhsforthvalley
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 13 and 10. Fighting MND one day at a time.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Brian Wallach @bsw5020
142K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Doddie Aid @doddie_aid
9K Followers 480 Following From @MNDoddie5. Get active in January and raise funds for vital MND research 💙💛
MND Campaigns @mndcampaigns
8K Followers 2K Following Every day we campaign for the change that people with motor neurone disease urgently need. Because with MND, every day matters. @mndassoc
🏔️ Paul @ Munros... @Munros4MND
2K Followers 3K Following 🌟 Doddie Champion 🌟 Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 🏔 £110,000 & counting... #DoingItForDad 💔
Chris McDermott @profcjmcdermott
1K Followers 448 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Nick Goldup @NickGoldup1
995 Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Sally Nugent @sallynugent
156K Followers 1K Following Presenter @BBCBreakfast. Instagram @sallynugenttv I am not on Facebook.
Jude de Vos @heyheyjude23
556 Followers 734 Following Fly Free Jody🌻A Mothers Love Never Dies🕊️Love You 4 Ever ❤️ : MND FundRaising Challenges: Ben Nevis 2022: Euro Motorbike 2018: BenLomond New Zealand 2025
Sheena Chew, MD @sheenachew
333 Followers 412 Following Dedicated to taking care of and developing treatments for people with ALS | @MGHneurology and @Harvardmed | Tweets my own
MND Research @mndresearch
666 Followers 185 Following Every day we drive research into motor neurone disease — from understanding causes to finding treatments. Because every day matters.
Tara @ArcadianAnge1
3K Followers 3K Following Therapist • Heritage Consultant • Certified Fitness Coach • Tech & Creative • Advocate 💔 • CrohnsWarrior “I am rooted, but I flow.”
Nora Markus @norimarkus
55 Followers 281 Following Neuroscientist with a keen interest in glia, neurodegeneration and ageing. All views are my own.
Longitude Prize on AL... @longitude_prize
6K Followers 2K Following Join us in bringing AI to the fight against ALS, the most common form of motor neurone disease. Learn more at our website, and follow us for updates.
WolfLabs @wolflabsuk
3K Followers 7K Following One of the UK’s leading suppliers of laboratory equipment. https://t.co/0IiKhTeM38
Carol Wilson 🇬🇧 @ukcarolee
28 Followers 236 Following
Michael Bridgman @MichaelBridgma6
42 Followers 471 Following Food, wine, travel, music, rugby, cycling - Volunteer and campaigner for @MNDA @MND_WestYork @ProstateUK and @overgate - fan of Leonard Cohen
Prof Anna Maslin PhD @AnnaMaslin
22K Followers 1K Following Author. 40+ years in Health, Human Rights & non-violent #FORB advocacy, Theology - John 3:16 , Views are personal RT ≠ endorsement
Nicola Walters 💙 @nicolaw30092512
32 Followers 309 Following
Michael Ferraro @mcferraro_
339 Followers 452 Following Postdoctoral researcher, @UNSWMedicine & @neuraustralia
Jane Haley @hal69577850
4 Followers 13 Following Director of Research, MND Scotland. Former Scientific Coordinator at Edinburgh Neuroscience (my Girlguides call me Jane the brain 😆). Love a good cup of tea ☕!
Alexandra Entwistle -... @AlexandraEThomp
31 Followers 117 Following
Lyle Ostrow MD PhD @LyleOstrow
712 Followers 1K Following Neuromuscular doc/researcher @TempleNeurology @ALSHF. Director, ALS Postmortem Core collab w CDC ALS Registry. Chair, DoD ALS Res. Prog Panel. Views my own.
Claire page @Clairep78828406
67 Followers 386 Following
Fiona Barrett @FionaBa06286795
5 Followers 84 Following
UCL Queen Square Inst... @UCLIoN
11K Followers 306 Following Our mission is to translate neuroscience discovery research into treatments for patients with neurological diseases. Follow on https://t.co/lJ9oLvPpBi & LinkedIn.
Danny Fudge-Harman @danfudgeharman
106 Followers 368 Following
Shashank Joshi @shashj
234K Followers 2K Following Incoming Washington bureau chief, The Economist. Formerly defence editor. Signal: shashank.96
Queen Square Neurophy... @QSNeurophys
386 Followers 156 Following We provide a comprehensive diagnostic service for neuromuscular diseases, epilepsies and movement disorders at the National Hospital (@UCLH)
Shalini Agarwal @Agarwal_Shal04
460 Followers 737 Following PostDoc @MRCPPU Interested in Mitochondrial Quality Control in ALS/MND
North Midlands MND Ca... @NorthMidMND
54 Followers 217 Following North Midlands MND Care & Research Centre @UHNM_NHS. Individual MDT care to people living with MND/ALS & their families. Enabling access to MND Research
Nitesh Sanghai, PhD C... @Sanghai_MedChem
286 Followers 989 Following Medicinal Chemistry, Drug Discovery. Doing Science to bring meaningful impact in human life. Let’s come together to bring “Hope” in People’s Lives. Love you God
MortiboysLab @MortiboysLab
331 Followers 185 Following Neuroscience research group at the Sheffield Institute for Translational Neuroscience led by Professor Heather Mortiboys find more on our website linked below
NHS Scotland Dementia... @NHSSDementia
537 Followers 337 Following NHS Scotland Dementia Consultant (AHP/ Nurse) Group.
Ben Clarke @Ben_ClarkeUK
386 Followers 761 Following Postdoc interested in glia in motor neuron disease @PataniLab @TheCrick @UCLIoN
SeRP - Secure eResear... @ukserp
79 Followers 335 Following The complete customisable Trusted Research Environment solution for data sharing, linkage & analysis accredited to the highest standard (ISO 27001)
Population Data Scien... @PopDataSci_SU
3K Followers 4K Following The science of data about people. We are proud to be pioneering this science across a range of data-intensive initiatives. @GwyddorDataPob
Caroline Bidder @CarolineBi9952
15 Followers 45 Following
Jade Lucas @Jade_M_Lucas
10 Followers 118 Following PhD Student @UKDRI @UniversityOfEdinburgh | ALS research
Raja S. Nirujogi @Raja_Nirujogi
319 Followers 467 Following A mass spectrometry-driven Biochemist as an Independent Investigator @MRC-PPU Uni of Dundee...
Nicola Roseman @nicroseman
36 Followers 97 Following
Dr Allan Shaw @Smurfation
399 Followers 1K Following Post-Doc at Uni of Sheffield, trying to find cures for MND and FTD with @FerraiuoloLab Member of Vegan Runners. Proud parent to Mouse.
Florentine Barbey @Flo_rissante
104 Followers 371 Following PhD in cognitive neuroscience, digital biomarkers, remote brain recordings, my own views. You will find here work related posts and cute animal videos.
Jacqui casey @Jacquicasey28
27 Followers 213 Following
ICTM at UCL @ICTM_UCL
753 Followers 314 Following The Institute of Clinical Trials and Methodology is a centre of excellence for #clinicaltrials, meta-analysis and epidemiological studies. We are @UCL
Lizzie Dellar @LizzieDellar
601 Followers 885 Following Postdoc at @MNDOxford, working on protein biomarkers of MND and Extracellular Vesicles. Otherwise found water-colouring, board-gaming and tea-drinking.
Danielle Wilson @Daniell19244313
405 Followers 911 Following Centre & Research Commercialisation Manager @ UK Dementia Research Institute, loves all things ethics, dogs, research. Not in that order, possibly not together.
Anna @AnnaMotyl
356 Followers 580 Following Dr🦋 Research Programme Manager @MNDoddie5. Previously doing research on SMA and MNDs in @GillingwaterLab, Edinburgh. She/Her.
Sophie hawkins @Sophie_hwks
121 Followers 279 Following Postdoctoral research fellow at the University of Edinburgh
Ed Cooke @edcooke
467 Followers 976 Following Entrepreneurial lawyer / investor with conscience. Working on global projects where the built environment and tech converge @conexuslaw. Proudly @LibDems.
Jayne Harler @dfc4ever
170 Followers 364 Following Early retired civil servant.Married to Graham, wife, mother, grandmother.Mother of a recently diagnosed MND warrior 2022. Supporter of Dartford FC.
Ella Bourke @ellarosebourke
42 Followers 197 Following MSc Translational Neuroscience @ University of Sheffield / BSc Neuropsychology @ Bangor Uni 🧠
Steve Barrett OBE, Ce... @barrett_steve
173 Followers 319 Following Retired, former Director of Prisons. Living with and fighting #MND and lifelong Jambo 🇱🇻
Ruepp Lab @RueppLab
489 Followers 195 Following The Ruepp Lab (@UKDRI @KingsIoPPN) is interested in dysfunctional RNA metabolism in neurodegeneration with a specific focus on the pathomechanisms in ALS/FTD.
@scholpplab.bsky.soci... @scholpp_lab
1K Followers 2K Following This account is closed. Bye, bye, Twitter. Discuss science with us in a friendly atmosphere here: @scholpplab.bsky.socialYou might like
