MNDA Soton & Winch @MNDASoton
Southampton & Winchester Group of the Motor Neurone Disease Association. Championing the amazing work of our volunteers. #MND facebook.com/mndsouthampton Southampton & Winchester UK Joined February 2015-
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As one of his first legislative acts as monarch, King Charles III has granted Royal Assent to the Special Rules for End of Life Bill. This final success means that the Scrap 6 Months campaign has reached the end of its campaign journey.gov.uk/government/new…
Our #inclusion learning programme is designed to help us understand more about different cultures and communities, and what is important to your branch or group members. mndassociation.org/get-involved/v…
@PaulJamesonMND book #VeryMuchAlive is available from most online stores. You can pick up your copy from Amazon today with all proceeds donated to the #MND Association. Buy it here: amazon.com/Very-Much-Aliv…
😀 "To be honest I am getting sick of seeing myself on TV. I’m going to lay low until Christmas and then get on with finding an effective treatment..." – @Rob7Burrow
#MND Matters: the MND Association #podcast mndassociation.org/media/mnd-matt…
£ 1 , 0 0 0 , 0 0 0 🥹 He’s done it again. Kevin Sinfield has raised over one million pounds for those living with and affected by motor neurone disease. Heroic 💙 This is going to make such a massive difference: donate.giveasyoulive.com/fundraising/ke… Thank you all 🧡 #Ultra7in7
Watching Kevin Sinfield on BBC breakfast - he is an extraordinary individual but he’s always been a team man and this is the best way of demonstrating what everyone else has done to keep him going. £1.8 million and counting. #mnd #Ultra7in7 donate.giveasyoulive.com/fundraising/ke…
Just in case you missed it, here's Kevin Sinfield being an absolute legend 💙💛 #BBCRL #RLWC2021 #Ultra7in7
“Kevin is a friend to all of us” 💙 This is what Kevin Sinfield’s #Ultra7in7 challenge meant to all those living with and affected by #MND. The team joined @sallynugent and @jonkay01 on the #BBCBreakfast sofa this morning after a remarkable 7 days!
Might be helpful! #occupationaltherapyweek2022 7 – 13 November rcot.co.uk/occupational-t…
#groupmeeting #MND #thisevening #southampton & #winchester Group. Tuesday 8th Nov @7pm-8pm #online via #zoom ! PM for the link to join us!
Latest episode Episode 20 - #NHS Continuing Healthcare NHS Continuing Healthcare (CHC) is a complex subject, and one that is often misunderstood.
MND Matters: the #MND Association #podcast: mndassociation.org/media/mnd-matt…
#kevinsinfield on Desert Island Discs: bbc.co.uk/sounds/play/m0…
Ho ho ho... it's #Christmas card time! Order here: shop.mndassociation.org/charity-christ…
Urge your #MP to attend the launch of the new Support #MND #Carers #campaign ! ecampaigns.mndassociation.org/page/109974/ac…
#fundraiser #mndawareness #welldone !! 800-mile #cycle across the #Rockies of #Canada from #Calgary to #Vancouver RAISED OVER £20K !!!
#MND Matters: the MND Association #podcast mndassociation.org/media/mnd-matt…
"I'm not giving in until my last breath" - your fortitude is inspirational @Rob7Burrow 👊 The perfect illustration of the importance of maintaining that love, fun and hope while living with MND.
He says that he thinks “about something in the future like growing old with Lindsey” and seeing his kids get married. “It gives me a goal to strive for. No one is going to change that.” As he puts it: “I’ve too many reasons to live. I’m not giving in until my last breath”
#coffeetime #MND #monday #meetup third Monday of each month Hillier Garden Centres 11am-1pm
MND Association @mndassoc
47K Followers 11K Following Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Jayne Halhead @Jaynes__World
6K Followers 5K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Friend of Bill W.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
MND Campaigns @mndcampaigns
8K Followers 2K Following Every day we campaign for the change that people with motor neurone disease urgently need. Because with MND, every day matters. @mndassoc
Lee Millard @onein300
2K Followers 893 Following 1/300 is lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. Moving over to Bluesky https://t.co/5z82GhhK69
Helen Millward Butter... @JohnAda10163823
10K Followers 9K Following
MND Association VIP &... @mndVIPteam
5K Followers 2K Following Every day we work with MND Association patrons and ambassadors to raise awareness and support. Because every day matters.
Nick Goldup @NickGoldup1
995 Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Em (she/her) @EmilyRich3s
453 Followers 705 Following Supporting people affected by life-shortening illness to share their stories. ~All views are my own~
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
Jenn Scribbins @jennmndassoc
864 Followers 1K Following PhD, Fundraiser for @mndassoc. This page is for sharing information & not to be relied upon for communication. Views my own.
MNDA Northern Ireland @MNDA_NI
2K Followers 2K Following 💙Raising awareness 🧡Supporting people with MND in NI ➡️FB: https://t.co/L8xEK0v5zV ➡️JustGiving:https://t.co/wX1lQPM1Qf #mndani Reg Charity No. 294354
eyegazeartist @sarahezekiel
12K Followers 12K Following Loving life despite MND/ALS. Eyegaze & AI artist, @MND_NWLondon Branch Co-Chair & @LifelitesOrg Patron. Stunt double in Sarah's Story.
MNDA Leics & Rutland @MNDA_Leics
1K Followers 676 Following Leicestershire & Rutland branch of the Motor Neurone Disease Association.
🏔️ Paul @ Munros... @Munros4MND
2K Followers 3K Following 🌟 Doddie Champion 🌟 Attempting to climb Scotland's 282 highest mountains (Munros) & raising money for @MNDoddie5 🏔 £110,000 & counting... #DoingItForDad 💔
Katy Styles @WillowKaty
3K Followers 4K Following #UnpaidCarer to @markrstyles who lives with Kennedy's Disease #MND Created @WeAreCarers Campaign to #ValueCarers
Alex Ward MND Angel �... @alexwardfund
530 Followers 886 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
MNDANorwichWaveney @MNDANorWave
421 Followers 435 Following Norwich & Waveney branch of the Motor Neurone Disease Association. Branch area defined by all NR and IP21-27 postcodes inclusive. Facebook: MNDANorwichWaveney
MND Australia @mndaustralia
3K Followers 424 Following Care, advocacy and research in support of those living with motor neurone disease (MND).
ALS News Today @alsnewstoday
3K Followers 1K Following Your source for ALS news, support, & real stories from the community. Let's raise ALS awareness together!🎗️
MND York Group @yorkmndgroup
28 Followers 96 Following Supporting people in York living with MND Just Giving Page: https://t.co/1dUBUrp2Kz
Me v MND @Me_v_MND
39 Followers 229 Following The #MND #ALS related account of @edcooke. Living with MND since 2023. Trustee of @mndassoc. Views own.
David Ali @davidiali
351 Followers 418 Following MND advocate and supporter and working towards a world free from ALS/MND. Views/RT my own
SiHallas @SimonHallas2
179 Followers 2K Following Fundraising for MND. walking 100km in 1 day to raise money and awareness. Hull FC fanatic and Views are my own.
Claire @ClaireBickley1
2 Followers 22 Following
#STEM #ALS @WFakultat
177 Followers 2K Following Supporting #STEM. #Brain. #Health.Adminitrators | Clinicians | Graduate Students | Knowledge Users | Patients | Policy/Decision Makers | Professors | Scientists
Mind Over MND. @mindovermnd
113 Followers 154 Following
Jeanie Taylor @l1lsis
72 Followers 371 Following
50 Million @50MillionGin
141 Followers 120 Following 50 Million Gin is a delicious London Dry, designed to thank the MND heroes who campaigned for the £50 million funding into MND research. You are ginspirational!
Adam Brittain MND Ass... @CommunityMnd
11 Followers 130 Following Community Engagement Partner at the MND Association. Working to ensure that no one faces MND alone.
Moonbeam Ninja @MoonbeamNinja
459 Followers 1K Following While we research for a cure, let's approve #NurOwn, T-regs and Cu-tsum for ALS patients.
aravind @aravind41593327
1 Followers 47 Following
Sam & The Bucket List @SJHH32
506 Followers 1K Following 💪 MND (limb onset) diagnosed 5 March 2022 🪣 Sam's Bucket list: 73/100 complete. 🗣️ Wheelchair Life, Accessibility, Independence, MND/ALS 📍 Kent
MND Association | Nor... @mndassocNI
655 Followers 563 Following Every day we campaign for the change that people with motor neurone disease in Northern Ireland urgently need. Because with MND, every day matters. @mndassoc
Eat Your Catfish | do... @EatYourCatfish
203 Followers 604 Following Kathryn’s ALS has left her paralyzed and strained family relations, but she holds on to see her daughter’s wedding | IDFA Envision Competition
Daniel A @meadowcopse
963 Followers 2K Following Meadow, Orchard, Woodland. Conservation, Landscape History, etc. Goth & Folk music. Crohn's & atypical MND (ALS). Also @WurthympWood
Jordan @AnnmarieMND
544 Followers 801 Following Fighting to find a cure for Motor Nerones Disease! https://t.co/aOnxCOQQXK
Ian Marsden PLY @IanMarsdenGB
4K Followers 1K Following Tokyo 2020, Rio2016 Paralympic Medalist Former World & European Powerlifting champ Ambassador for @FitbitUK Staffs Uni Honorary Doctor of Science DM for booking
Georgia Steed @GeorgiaSteed2
8 Followers 127 Following Trainee Clinical Psychologist researching how carers of people with motor neuron disease (MND) experience palliative care in the UK.
Kill Phil: The Podcas... @KillPhilPodcast
163 Followers 746 Following Kill Phil: The Podcast. Following @philnewby5's journey with MND as he unpacks the debate on assisted dying with prominent experts and campaigners.
Nicola Ransom @NicolaRansom4
26 Followers 93 Following
MedicAlert UK & IRL @MedicAlertUK
4K Followers 4K Following This account is now dormant and not actively managed or monitored. Keep up to date and contact us on our other social media in the link below.
MND Navigate @MndNavigate
294 Followers 241 Following Diagnosed with MND 2019. Sharing my journey with MND to hopefully inspire others to live strong and with positivity-Also founder of MND Elite -views are my own
Darryl Borsato @BorsatoDarryl
1K Followers 1K Following ALS Fighter, proud husband and SOD-1 Mutant #FuckALS #WorldStrongestALSPatient ALS Action Canada board member / ALS Society of BC Advocacy Committee member
GreatRugbyEvents @RugbyGreat
194 Followers 927 Following Just doing what I can to help make a difference.. MND https://t.co/btooGH1Jy9
TIM @ASHBYHOOKER
639 Followers 3K Following Social enterprise design consultant ethical property foundation associate wheelchair user MND sufferer XRugby playing bullying hater left-wing leanings
東邦大学 脳神�... @Neurology_Toho
541 Followers 296 Following 東邦大学脳神経内科の公式アカウントです。学生、研修医や専攻医の方の見学希望、入局相談はいつでも大歓迎です。https://t.co/WDoPO1h3ed
Emily Mayberry (she/h... @ejmayberry
301 Followers 461 Following Clinical Psychologist & Researcher | PhD, DClinPsy | 🇺🇸🇬🇧🌏 | focus: MND/ALS; improving psychological care and quality of life for all affected | views mine
VoiceItt @Voiceitt
284 Followers 525 Following Voiceitt speech recognition for non-standard speech: opening the world of voice technology for people with speech disabilities and aging adults.
Pat Dolan @Team_Thriving
845 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
Walkathon For MND @WalkathonForMND
16 Followers 33 Following 14 Counties in 14 Days 🏃🏼♀️🏃🏻♂️🌎 to raise awareness/fundraise to support research into Motor Neurone Disease on behalf of the Mel Evans MBE Foundation.
Rachel Brown @MND_CarersCoord
243 Followers 222 Following Carers Coordinator at the MND Association. Previously MND Connect Helpline Adviser and Communication Aids Coordinator. All views are my own
Dr Denise Andrea Harr... @DeniseAndresHa2
115 Followers 302 Following Independent Consultant Occupational Therapist: Interpreting the Meaning of Existence for the Person with Motor Neurone Disease, and their Family Carer(s)
Osamu Onodera MD. P... @Osamu_ON
536 Followers 2K Following #Neurologist. Director of #Brain Research Institute. #Niigata Univ. The largest Brain Bank in Japan. Researcher for #ALS, #CSVD, #ataxia, #Aging.
Juliet Pierce @JpierceJuliet
195 Followers 2K Following Associate Director of Medical Services Paralyzed Veterans of America
MND Peer Support @MND_PeerSupport
197 Followers 1K Following A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent
Prof.Dr İdrisoglu @HAidrisoglu
239 Followers 2K Following
Sam Spears @SpearsSam
169 Followers 640 Following Biomedical Research Assistant | Medical Implants & 3D Printing | Designing Pedicle Screw Guides & Bone scaffolds at UCL | he/him
red devil @pilko71
1K Followers 2K Following Raising funds and awareness for MND, ST Old Trafford. live for today as tomorrow isn’t a given.
Mary-Louise Rogers @MLRogers123
354 Followers 338 Following MND&NR Lab Head, Flinders University. Research describing urinary biomarkers and novel treatments for ALS/MND. Opinions are my own. @flinders @flindersHMRI
We Care Campaign @WeAreCarers
5K Followers 5K Following Multi award winning grassroots campaign for UK’s unpaid carers.📢 Amplifying voices to decision makers #ValueCarers Join us 👇
JulieDoyleCullen @JulieDoyleCull
515 Followers 755 Following Business woman and caregiver turned #author. Doing what I can to fight #ALS
criticalcarecamilla @criticalcarecam
0 Followers 27 Following
Alli Anthony @AlliAnthony2
174 Followers 213 Following Proud to be working for the Motor Neurone Disease Association
Jane Morris @Jane17220975
586 Followers 1K Following Prevent further 'devolution' of planet &humanity passionate about environment,welfare of animals, CHOICE TO DIE with dignity, MND, Type 1 Diabetes & BIOETHICS
MND Association @mndassoc
47K Followers 11K Following Every day we support people affected by motor neurone disease. Because with MND, every day matters.
Jayne Halhead @Jaynes__World
6K Followers 5K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease.... #MND #MoreNeedsDoing! Friend of Bill W.
Rob Burrow CBE @Rob7Burrow
183K Followers 2K Following Legacy account of Rob Burrow CBE. Posts by the Burrow family and in support of the MND community.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
MND Campaigns @mndcampaigns
8K Followers 2K Following Every day we campaign for the change that people with motor neurone disease urgently need. Because with MND, every day matters. @mndassoc
Lee Millard @onein300
2K Followers 893 Following 1/300 is lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog. Moving over to Bluesky https://t.co/5z82GhhK69
Helen Millward Butter... @JohnAda10163823
10K Followers 9K Following
MND Association VIP &... @mndVIPteam
5K Followers 2K Following Every day we work with MND Association patrons and ambassadors to raise awareness and support. Because every day matters.
Chris McDermott @profcjmcdermott
1K Followers 448 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Nick Goldup @NickGoldup1
995 Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 13 and 10. Fighting MND one day at a time.
Em (she/her) @EmilyRich3s
453 Followers 705 Following Supporting people affected by life-shortening illness to share their stories. ~All views are my own~
MND Education @mndeducation
3K Followers 910 Following Supporting Health and Social Care Professionals who provide care and support for people affected by MND. Because every day matters.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
Jenn Scribbins @jennmndassoc
864 Followers 1K Following PhD, Fundraiser for @mndassoc. This page is for sharing information & not to be relied upon for communication. Views my own.
BBC Breakfast @BBCBreakfast
612K Followers 484 Following UK's most watched morning programme. Join 5 million viewers waking up every day with the BAFTA & RTS winning show from 6am on BBC One ⏰ #BBCBreakfast
MND Navigate @MndNavigate
294 Followers 241 Following Diagnosed with MND 2019. Sharing my journey with MND to hopefully inspire others to live strong and with positivity-Also founder of MND Elite -views are my own
MND Peer Support @MND_PeerSupport
197 Followers 1K Following A virtual peer-to-peer support programme for informal caregivers of individuals with Motor Neurone Disease at risk of becoming or currently technology-dependent
Remap @RemapUK
2K Followers 1K Following A charity helping disabled people live more independent lives. Our skilled volunteers design and custom-make equipment free of charge #MakingThingsPossible
Dan Walker @mrdanwalker
739K Followers 2K Following That tall fella off the telly, President of #EggClub and the bloke off @ClassicFM & @5_news
50 Million @50MillionGin
141 Followers 120 Following 50 Million Gin is a delicious London Dry, designed to thank the MND heroes who campaigned for the £50 million funding into MND research. You are ginspirational!
Mary-Louise Rogers @MLRogers123
354 Followers 338 Following MND&NR Lab Head, Flinders University. Research describing urinary biomarkers and novel treatments for ALS/MND. Opinions are my own. @flinders @flindersHMRI
We Care Campaign @WeAreCarers
5K Followers 5K Following Multi award winning grassroots campaign for UK’s unpaid carers.📢 Amplifying voices to decision makers #ValueCarers Join us 👇
Brad Turner @turnerMNDlab
999 Followers 847 Following Head of ALS/MND Lab | Florey Institute | University of Melbourne | Australia | Passionate ALS researcher striving for a cure
red devil @pilko71
1K Followers 2K Following Raising funds and awareness for MND, ST Old Trafford. live for today as tomorrow isn’t a given.
Bec Sheean @BecSheean
293 Followers 282 Following Researcher Director at FightMND, travel, wine and music enthusiast, coffee lover, huge Hawks and AFL fan and one of those annoying morning people!
Alison Railton - This... @AlisonRailton
807 Followers 1K Following Director of policy and public affairs @Kidney_Research UK. This account is no longer active.
Helen Mackie @MND @HelenMackieMND1
212 Followers 238 Following #MND Association Regional Fundraiser South West; helping the amazing people fighting against MND & fundraising in the South West. Views my own #proudfundraiser
themnddiaryproject @mnddiaryproject
129 Followers 306 Following Listening to stories of people living with Motor Neurone Disease to help improve future healthcare. Monitored 8-4 weekdays.
MND Lincolnshire @MNDLincs
86 Followers 96 Following Supporting those and their families living with Motor Neurone disease in Lincolnshire. Find us also on Facebook and Instagram
Philip Brindle @PhilipBrindle
269 Followers 309 Following Diagnosed with motor neurone disease in 2015 and user of the Head Up Collar. Member of the Sheffield Motor Neurone Disorders Research Advisory Group.
Moira Edwards @MoiraEdwards5
31 Followers 48 Following
Martin Burnell @reddevil7159
137 Followers 185 Following I am TERMINALLY ILL Diagnosed with rare form of MND PLS 2017 6 mouths is scraped extended to 12 I have waited 4 years for this now to happen
David Ali @davidiali
351 Followers 418 Following MND advocate and supporter and working towards a world free from ALS/MND. Views/RT my own
Cambridgeshire MND Br... @CambsMNDBranch
206 Followers 454 Following Welcome to Cambridgeshire MND Branch. Run entirely by volunteers. Aims to provide the best possible support to local people with MND, their families, & carers.
Helena Foster @helena_foster23
37 Followers 169 Following Proud mother, dog lover, Outlander obsessive, MNDA supporter. In awe of my amazing brother who fought Motor Neurone Disease so bravely Hannah ♥️ Shamook ♥️
MND-SMART @mndsmart
1K Followers 942 Following Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
Minstead Trust @MinsteadTrustTS
918 Followers 1K Following An independent charity supporting people with learning disabilities.
Hanger Farm @HangerFarmArts
971 Followers 608 Following Totton's local entertainment venue! A social enterprise run by @minstead_trust, a local charity supporting people with learning disabilities.
Russ MND @RussMnd
103 Followers 163 Following MND Association Regional Fundraiser - London and Thames Valley (All views expressed are my own)
StampOutMND @StampOutMnd
313 Followers 1K Following Solo Charity Fundraiser For The Motor Neurone Disease Association since 2015, Check out FB for more detailed posts.
Caroline Lee @Caroline18Lee
266 Followers 489 Following Mum to 5 amazing children, step mum to 4 more 😊 Fundraiser for MNDA 💙
Beck Griffiths @BeckyG_MND
200 Followers 238 Following Hi - I am the Area Support Coordinator for Sussex at the MND Association @mndassoc . Views are my own. They/Them
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
Mike Bushell @mikebreakfast
57K Followers 9K Following Breakfast tv sport pres/record holder at trying 560 different sports. Speaker/author Bushell's Best Bits. @Strictly2019. own views @knightayton
Therapy Box @TherapyBox
5K Followers 5K Following Award-winning technology for speech and language therapy. Unicef app catalogue inclusion for Predictable. As seen on BBC, SkyNews. Queen's Award for Enterprise
MNDPamfry @PamelaF43299782
77 Followers 44 Following Motor Neurone Disease Association Regional Fundraiser South East
Ruth💙🫁 Respirat... @respphysio
4K Followers 3K Following Respiratory&rehab physio #LongCovid specialist, LongCovidPhysio board exec BritishLungFoundation https://t.co/YB6Oju1haz 11marathons love ☕️ & rugby
West Surrey MNDA @westsurreymnda
141 Followers 132 Following West Surrey Branch MNDA supports people living with #MND and their families. We aim to provide practical and emotional support. New Page for @MNDA_SWSURREY
David Whalley @DavidW_MND
320 Followers 491 Following Area Support Coordinator for @mndassoc in the North East of England #TeamMND #United2EndMND #MND
P2P4MND @P2P4MND
27 Followers 69 Following https://t.co/8989UM7H50 Paris to Penybont Cycle Challenge - to raise awareness & funds for the Motor Neurone Disease
University of Southam... @UoSMedia
3K Followers 771 Following Updates from the University of Southampton media team | @unisouthampton | Email us at [email protected]














