Solving MS @SolvingMS
To fund scientific and/or medical research and to advocate for people with Multiple Sclerosis (MS). #SolvingMS solvingms.org Joined March 2023-
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Vote for Scott Whitney! @A4IScott a not for profit CIC creating safe places and communities for disabled people, platforms for disabled people to talk and educate others and help businesses become be inclusive to disabled people
Vote for Scott Whitney! @A4IScott a not for profit CIC creating safe places and communities for disabled people, platforms for disabled people to talk and educate others and help businesses become be inclusive to disabled people
Listen to Terri-Louise Brown from Talks with MS on this weeks podcast episode Terri is a well spoken leader, who has faced and overcome many challenges open.spotify.com/episode/6dPF5G… @RoxyMSAdvocate @SolvingMS @mssocietyuk @mscymru @mssociety @Nick_MSsoc @disabledadventr
Please help spread the word about our #MECFS study with @PutrinoLab 👇🏼 thank you 🙏🏼
Please help spread the word about our #MECFS study with @PutrinoLab 👇🏼 thank you 🙏🏼
Ozempic prevents multiple sclerosis? This data from the US Food and Drug Administration Adverse Event Reporting System (FAERS) found semaglutide (Rybelsus, Wegovy, Ozempic) is linked to a 76% reduced risk of MS. Why? pubmed.ncbi.nlm.nih.gov/38566910/
Big news with positive result announced for a randomized study of a GLP-1 agonist for Parkinson's just released @NEJM. A new era for Parkinson's or alternatively, more questions than answers raised by Meissner and colleagues. Key Points: - This multi-center French trial studied…
@ACTRIMS arranged a webinar for MS patients to hear from the presenters at #ACTRIMS2024. If you missed this wonderful event here is the replay actrims.org/forum-patient-…?
@ACTRIMS arranged a webinar for MS patients to hear from the presenters at #ACTRIMS2024. If you missed this wonderful event here is the replay actrims.org/forum-patient-…?
New Monoclonal Pemgarda Authorized to Prevent COVID in Immunocompromised People This includes #MultipleSclerosis patients on B-cell depleter drugs. medpagetoday.com/infectiousdise…
Account from a patient at the Mayo Clinic of all the repurposed medications thye prescribe for #LongCovid.
Account from a patient at the Mayo Clinic of all the repurposed medications thye prescribe for #LongCovid.
#Mavenclad treatment eventually failed because of lytic #EBV reactivation when off #acyclovir. Had I stayed on #antivirals for #MS, I might still be DMT-free. Now on #Kesimpta + #valacyclovir and trying to figure out an exit strategy from #DMT. Would LOVE an EBV #vaccine.
#Mavenclad treatment eventually failed because of lytic #EBV reactivation when off #acyclovir. Had I stayed on #antivirals for #MS, I might still be DMT-free. Now on #Kesimpta + #valacyclovir and trying to figure out an exit strategy from #DMT. Would LOVE an EBV #vaccine.
Yes, it’s the immune response. An infectious disease doctor minimized my experience with #EBV - “maybe it has something to do with MS, but I don’t know”. Then took me off antivirals in 2022. Enter very bad year.
Yes, it’s the immune response. An infectious disease doctor minimized my experience with #EBV - “maybe it has something to do with MS, but I don’t know”. Then took me off antivirals in 2022. Enter very bad year.
#MSNews: Researchers seeking Black Americans with MS to participate in studies. Focusing on Black, Hispanic/Latinx, Northern European, and other ancestral groups may help identify the precise genetic variants that contribute to MS. Read more: ntlms.org/3wCrULm
People with #MultipleSclerosis and neuromyelitis optica #NMO have increased soluble CD226, compared with Alzheimer’s disease and controls, suggesting CD226 is a biomarker for neuroinflammation. Study from @SaniyaKari @AlastierLab @Univ_Toulouse ▶️ journals.sagepub.com/doi/abs/10.117…
🗞️ Woke up to INCREDIBLE news #NMOSD now has 4 FDA-approved therapies and that too, during #NMO Awareness Month! 🌺🥳 ULTOMIRIS® (ravulizumab-cwvz) approved in the US for the treatment of adults with neuromyelitis optica spectrum disorder @AlexionPharma businesswire.com/news/home/2024…
#EBV #EBVcausesMS #MSprogression I take valacyclovir and have been told it doesn’t help EBV (in #MS circles). A paper mirroring my own positive results. #valacyclovir #valtrex @GavinGiovannoni @SolvingMS journal.chestnet.org/article/S0012-…
Frexalimab ph 3 trials recruiting in USA, Quebec‼️ ➡️RRMS - 1400 subjects clinicaltrials.gov/study/NCT06141… ➡️Nonrelapsing SPMS - 858 subjects clinicaltrials.gov/study/NCT06141…
Frexalimab ph 3 trials recruiting in USA, Quebec‼️ ➡️RRMS - 1400 subjects clinicaltrials.gov/study/NCT06141… ➡️Nonrelapsing SPMS - 858 subjects clinicaltrials.gov/study/NCT06141…
@Brandon_Beaber @GavinGiovannoni #EBVcausesMS was proven Jan 2022 by Ascherio at Harvard. Some current DMTs reduce but don't cure it. The hypothetical is: can it be treated better w/ antiretrovirals or other drugs, like Frexalimab? 14 pages of documentation here: bit.ly/AntiviralsForMS
"EBV is the probable cause of MS" -@GavinGiovannoni pubmed.ncbi.nlm.nih.gov/38511407/ Do you agree?
Discover modern insights on the dynamic relationship between #MS and #COVID pathology in our upcoming #webinar. Hear from Drs. Scott Newsome, Gavin Giovannoni, and Avindra Nath as they unpack the complexities and implications. Don't miss this! Link: bit.ly/MS_COVIDactrims
I am surprised I was invited to submit a hypothetical article to Current Opinion in Neurology, which is largely read by neurologists. EBV as the cause and potential driver of MS disease activity is finally gaining traction #EBVcausesMS #Antivirals4MS => buff.ly/3PvWzAL
Wilfred van Sommeren @Wilfred_vS
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Samuel Nkwagoh Gwembo @Bowrinho
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Monica Harth @monic_hart
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Vienna Bandyk @ban_vienn
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Elizabeth Copelin-Mez.. @copelin_mezo
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Spiritual pill @spiritualpill
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Andrea Stennett PhD @AndreaStennett
126 Followers 122 Following Specialist Neuro-Physiotherapist/ Post doctoral Research Fellow
Vanessa Soto @butterrflyV
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M @meshal__mma
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Albert Vilella @AlbertVilella
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Leila Facenda @lei_face
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Nova Capestany @CapestaNov
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Fern Baudoin @baudoin_fe20477
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PwMS_V @PwMS_V
21 Followers 75 Following We are People with MS (Vic) Inc. Our Mission is to provide information, referral and support to Members with MS living in Victoria, Australia.
Sybil Togni @SybilTogni33562
38 Followers 5K Following
Samira Apóstolos-Per.. @SamiraNeuro
147 Followers 891 Following Apóstolos-Pereira, SL MD, PhD Neurology Focus in Neuroimmunology
Lorie Gon @gonzlo1022
134 Followers 603 Following Mother, wife, dog mom, mental health advocate, living with MS since 2005, #mswarrior thought I’d give twitter another chance 🤷♀️
Lavada Ansara @AnsaLava
14 Followers 3K Following
Barter Xavi @BarterX22114
474 Followers 504 Following "That whose existence is necessary must necessarily be one essence" :) Follow for instant follow back :)
Andy Bjornson @andybjornson1
1K Followers 5K Following Passionate about Transforming Living with #Braininjury #MS #MSsucks,Using New(OLD) Neuro #Technology #Electronics #Electricity & #Me.
J. L. Washington @jlwashi
334 Followers 1K Following Speculative fiction writer. STEM nerd. Immunocompromised, Chronically ill. #writer #introvert #WritingCommunity #invisibleillness
Tania L-I am my Fathe.. @LashTania
224 Followers 587 Following I care about Humanity, the planet, and the creatures we share it with. I also believe quality truthful education is key to the safety and freedom of us all.
Melina Neuman @MelinaN15858
77 Followers 5K Following
MB @mbrlife
486 Followers 4K Following
Dorian Merli @dor_merl
44 Followers 5K Following
AYSE ALTINTAS @AYSEALT51949427
148 Followers 242 Following Professor of Neurology Chair of Koc University School of Medicine Neurology Dept Member of Koc University Translational Medicine Research Center
Quinn Sollberger @QSollberge
50 Followers 5K Following
Khalid Alshehri @khalidneuro
293 Followers 830 Following Fashionably late. Neurology resident interested in Autoimmune Neurology, Neuroimmunology and #Neurological_rarities.
Lab Anne L Astier @AlastierLab
101 Followers 173 Following Immunology of MS and role of environment factors, part of Team 4 at INFINITy centre in Toulouse, France
ThePeoplesChamp @MSpeopleschamp
128 Followers 229 Following Proud to be an American , battling MS since 2002, father of 2, & working hard for the people
Enlli Lapham @EnllLaph
15 Followers 3K Following
C.H. Romatowski @CHRomatowski
514 Followers 804 Following Recovering academic. Not so recovered sick person. ME ‘05, LC ‘23, many of their friends along the way. Very severe, thanks for your patience. Tweets delete.
Allison Harrison @HarrisonAl7787
61 Followers 3K Following
Brinda Lahaie @LahaiBrin
41 Followers 5K Following
Ailsa Jane 🐝 @AilsaJanePodMed
2K Followers 2K Following Podiatrist | PhD Researcher | @swanseamedicine @swanseauni #MultipleSclerosis #LowerLimbHealth #Podiatry #FootHealth |Mother|MSer|Beagle|Cats
Paul Naish @PaulNaish78
23K Followers 23K Following Global Head of Portfolio @ Taylor & Francis #Mathematics #Statistics #DataScience #HistSci #STS #scicomm. Fan of: 🐕🐈🐿🦔🍪☀️🍦Views = mine.
Hope Biosciences Rese.. @hopebio_org
392 Followers 190 Following On a mission to accelerate translational research in regenerative medicine and develop cures for all.
Samira Apóstolos-Per.. @SamiraNeuro
147 Followers 891 Following Apóstolos-Pereira, SL MD, PhD Neurology Focus in Neuroimmunology
Albert Vilella @AlbertVilella
21K Followers 8K Following Next-Generation Sequencing, Single-Cell and Spatial Biology, Next-Generation Proteomics, Synthetic Biology, Compute Acceleration in Biotech.
Spiritual pill @spiritualpill
548 Followers 2K Following Mathew 4:4 but he answered and said, It is written, Man shall not live by bread alone, but by every word that proceeds out of the mouth of God.
PolyBio @polybioRF
10K Followers 2K Following 501(c)3 transforming how #LongCovid, #ME/CFS & LongLyme are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium.
Dr. Alison Escalante @AEscalanteMD
12K Followers 11K Following Pediatrician, Author Sigh, See, Start (Available Now!) @Forbes Contributor & #Writer for @PsychToday. Tweets not medadvice/endorsements. #LongCovid
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Lab Anne L Astier @AlastierLab
101 Followers 173 Following Immunology of MS and role of environment factors, part of Team 4 at INFINITy centre in Toulouse, France
Khalid Alshehri @khalidneuro
293 Followers 830 Following Fashionably late. Neurology resident interested in Autoimmune Neurology, Neuroimmunology and #Neurological_rarities.
AYSE ALTINTAS @AYSEALT51949427
148 Followers 242 Following Professor of Neurology Chair of Koc University School of Medicine Neurology Dept Member of Koc University Translational Medicine Research Center
Paul Naish @PaulNaish78
23K Followers 23K Following Global Head of Portfolio @ Taylor & Francis #Mathematics #Statistics #DataScience #HistSci #STS #scicomm. Fan of: 🐕🐈🐿🦔🍪☀️🍦Views = mine.
HERVCOV Project @hervcov
97 Followers 56 Following @HorizonEU project that involves research from Croatia France Greece Italy and Spain, focused on the HERV-W-ENV. Let's find out it together #HorizonEU #HERVCOV
brunoamaral@mastodon... @brunoamaral
3K Followers 1K Following Communication Strategist. Creativity and Storytelling. I play with tech to help communication. Follow @GregoryMS_ for more.
Direct Biologics @directbiologics
102 Followers 25 Following Direct Biologics is a market-leading innovator in regenerative medicine.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Clene Nanomedicine @CleneNano
769 Followers 165 Following Clene is committed to revolutionizing the treatment for people living with neurodegenerative diseases to restore and protect neuronal health.
Gods_Tabanacle @Gods_Tabanacle
1K Followers 3K Following Bringing peace and balance to the world. God is the only way, the truth and life. #followsalvation #followGod Pursue Freedom and Truth. Truth has no scrutiny.
BYHA-Health @byhahealth
1K Followers 2K Following Health writer / #health #diet #longevity #cancer #diabetes #anti-aging #epigenetics #dementia #brain #gut #science
strongwithMS @strongwithMS
2K Followers 891 Following Digital Marketer diagnosed w/MS 2007. Completed 2 YR stemcell trial at @tisch_ms in NY 2021. Staying positive and looking for joy in every day.
Judi Lecoq @JudiLecoq
2K Followers 4K Following Judi and that pesky unwanted companion, secondary progressive multiple sclerosis. Homeopathy, Paleo, Stem Cells, Exercise! Still here, still walking!
Lisa Kirouac @KirouacLisa
43 Followers 349 Following Hanging in while MS kicks my ass! My dogs give me a reason now that my son is more mature than me & I don’t have to birth another human being🙏🏼
Karyn Bishof @K_Bishof
3K Followers 3K Following B.S., Fmr. FF/PM & Educator #Disabled by #LongCOVID, Founder COVID-19 Longhauler Advocacy Project @C19LH_Advocacy (views/posts are my own)
Deborah Greenhouse @greenhousemd
9K Followers 2K Following pediatrician, mom, loves hiking, gardening, and advocating for kids everywhere. Tweets are my own, not medical advice. she/her
elizabeth bennett @ebennett74
27K Followers 1K Following children, animals, horses. obstinate, headstrong girl.
Luca Ghirotto @LucaGhirotto
1K Followers 1K Following Assoc. prof. but I have come to my senses. More fun as #qualitative methodologist for #health researchers - Qualitative Research Unit - AUSL-IRCCS @ausl_re
European Charcot Foun.. @EuropeanCharcot
209 Followers 0 Following independent non-profit organization for advancing Multiple Sclerosis research in Europe
Francesco Camonita @F_Camonita
104 Followers 232 Following Project Officer for the Intermediterranean Commission (Conference of Peripheral Maritime Regions, CPME); Guest lecturer at UAB
Valentina Parodi @tina_parodi
100 Followers 344 Following International Programme Officer @aism_nazionale | Scientific author 📝@ingbio_org | Bioengineer, PhD @polimi 🦾
Valentina Tageo @ValentinaTageo
818 Followers 2K Following @Wiseangle1 founder & director | #digitalhealth #socialinnovation #citizenscience #science4society #futurecities
AISM - Associazione I.. @aism_nazionale
9K Followers 597 Following Siamo al fianco delle persone con #sclerosimultipla e, con AINMO, delle persone con NMOSD e MOGAD. Numero Verde: 800 803 028
Paola Zaratin @paolazaratin
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Manuel Ruiz @manruipa
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Martin Picard @MitoPsychoBio
10K Followers 755 Following Mitochondrial Psychobiology. Our team studies energy, mind-body communication, mitochondrial diseases, aging, and the science of health.
??? @thananswers
167 Followers 34 Following Retired Anaesthetist, Intensivist, CPET & a bit of research. Don’t follow me, I don’t have any answers....Just questions.
RTHM @RTHM_Health
4K Followers 3K Following RTHM connects you with a digital care team specializing in Long COVID and ME/CFS that provides access to a range of therapies based on the latest research.
Stray @K9FCR
13K Followers 391 Following 🇩🇪アルネ・ブルクハルト教授✝️、🇺🇸ライアン・コール博士など #戦う病理医たち を敬愛する比較病理学の一人の学徒／「抄読会」スペース録音#1~32や後遺症研究会録画格納庫は@bioerorist 固定に／5/18（土）大阪、6/1（土）東京で同じ内容の勉強会「ワクチン後遺症と腎臓病」を開催します！
Winston Blick @winstoncb
3K Followers 901 Following #MECFS post-viral #longhauler | ally of #LongCOVID | quoter of @mecfsquotes | previously, 🚵🏼♂️ 🏂 🏃🏻🏕️ 📖
Amy Proal, PhD @microbeminded2
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Briana Landis @briana_landis
66 Followers 94 Following MS Activist. Pediatric MS Advocate.Scientist. Follow me on TikTok @brianaolivialandis for the fun MS content
Kristine Werner Ozug @KrisWerner1118
103 Followers 273 Following Ideator | Implementor | Teacher | Pioneer | Researcher | Writer | Medical Geek | Yogi | Bird Watcher | Painter? | John's Wife | Dog Lover | Lives with MS
Neuralink @neuralink
1.4M Followers 1 Following Creating a general-purpose, high-bandwidth interface to the brain
Jan Choutka @jan_choutka
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Dr. Jennifer Curtin @jencurtinmd
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Bari Talente @BTalente
233 Followers 298 Following Thoughts are my own and don't represent the views of my employer. Passionate about advocacy, dogs and drug pricing and access. Not necessarily in that order.
Krishna Kandregula @kckandregula
594 Followers 3K Following Vascular Neurologist/Neurohospitalist|Doctrine of Nerves|Indian expat|Amateur chef|Global citizen. Tweets are personal opinion, not medical advice. 🇮🇳 🇺🇸
Maria Domercq @LabDomercq
319 Followers 344 Following We investigate oligodendrocytes/myelin and microglia in myelination/remyelination at @AchucarroGlia and @upvehu
Carlie L Cullen @DrCarlieCullen
456 Followers 387 Following Neuroscientist. Glial enthusiast. Myelin super fan. Glial Neurobiology, Cognition and Behaviour Research Group
@hopebio_org Congratulations to the whole HBS team+participants! I hated to withdraw in early ‘22, but the travel pummeled me each time I attempted a visit. The roads are hard on our fragile heads. It must be quite exciting gathering the data & we look forward to the big reveal. Kind regards!
Our clinical trial for longcovid “PCOV02” is officially complete. Database lock will occur by the end of the month. Topline results excepted in May. Thank you to all participants, caregivers and families that sacrificed so much to be a part of our trial.
Check out my capeless heroes Ted Talk……… Is it capeless or careless ????
24 hours since release, my @TEDxKingston talk has about 22,000 views. Hurrah! Would love to get to 30,000 over the weekend. Watch it, retweet it??? Pretty please! It's about kindness after all... youtu.be/ZjoSwaU1yYo?si…
Please vote for me in the @ndawards if you think I’m doing an okay job as a Positive Role Model within disability nationaldiversityawards.co.uk//awards-2024/n… @eharno @Books_n_friends @cornwall_fraser @LFC_Tonks @FNDnurse @FndLifewith @TheBrainCharity @otis_donnelly @knypevale @Anne_W_Strike
All4Inclusion Discord Community discord.gg/CyRwQxBj If you are in @discord why not come and say hi
@CharityHourUK Scott from All4Inclusion a not for profit CIC creating safe places and communities for disabled people, platforms for disabled people to talk and educate others and help businesses become be inclusive to disabled people
Listen to Terri-Louise Brown from Talks with MS on this weeks podcast episode Terri is a well spoken leader, who has faced and overcome many challenges open.spotify.com/episode/6dPF5G… @RoxyMSAdvocate @SolvingMS @mssocietyuk @mscymru @mssociety @Nick_MSsoc @disabledadventr
Clinical trials in MOG antibody disease webinar: youtu.be/WrFuc9eBIog @MGHNeurology @TheMOGProject
The Brain Health Imperative in the 21st Century—A Call to Action: The AAN Brain Health Platform and Position Statement bit.ly/3ZpjjpS #NeuroTwitter #BrainHealth
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Answer away in the comments! #MedTwitter #NeuroTwitter #MedEd
A couple of broad categories for #SpatialBiology: the imaging-based and the NGS-based. Here the top one is based on RNA probes, but there is also antibody-based equivalents to these.
Parse Bio is an instrument-free method for single cell transcriptomics
Parse Bio Partners With Hamilton, Opentrons Labworks, SPT Labtech to Automate Single-Cell Workflow genomeweb.com/sample-prepara…
Added the MACSima Spatial Biology instrument from @miltenyibiotec to the table of #SingleCell #Spatial #Platforms bit.ly/scplatforms
We’re proud of our antibodies at Miltenyi. MACSima includes 1000s of antibodies and RNA on same slice. For those new to Spatial we have launch a premade panel of 20 IO markers to go along with our full IO (61) and REAScreen MAX (146). Check us out #AACR24 linkedin.com/posts/robertpe…
@OptispanPodcast @mkaeberlein @DylanA4LI @theA4LI 1/ Want to speed #RegeMed for anti-aging? Trials in phase 2 =safe/effective. Need funds for phase 3. @SolvingMS sent ARMA to Bernie Sanders for Long COVID Moonshot, and ALL autoimmune diseases. Help us pass this, then easier to approve for anti-aging! bit.ly/Accelerate_Reg…
@OptispanPodcast @mkaeberlein @DylanA4LI @theA4LI 2/ @SolvingMS has a #RegenMed trials database for MS but therapies like stem cells are universal therapies that work for almost any disease or injury, including aging. Repurposed anti-aging drugs like Metformin are also in 7 trials for MS. solvingms.org/research-datab…
@OptispanPodcast @mkaeberlein @DylanA4LI @theA4LI 3/ This profile of @hopebio_org from the @SolvingMS database describes completed and running trials of high dose #stemcells for 18 different conditions, incld MS and Long Covid. The highest dose ever trialed, 1 billion MSCs over 6 months. All safe. bit.ly/HopeStemCells
Meera your work on rabbit model of EBV infection could help millions! #EBVcausesMS, 6 other autoimmune diseases, many cancers. Reactivates & worsens #LongCovid, ME/CFS. @PlzSolveCFS @VirusesImmunity @GavinGiovannoni @SolvingMS
PolyBio Research Foundation is excited to be leading the #LongCovid Research Consortium: a scientific collaboration between top global research teams to rapidly & comprensively study LongCovid, with a focus on the topic of SARS-CoV-2 persistence in tissue: polybio.org/longcovid
Mast cell activation triggered by SARSCoV2 causes inflammation in brain microvascular endothelial cells & microglia;1) SARSCoV2 triggered MC accumulation in cerebrovascular region; 2) spike/RBD protein–triggered MC activation induced inflammatory factors frontiersin.org/articles/10.33…
Trends for United States
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