MS Society UK @mssocietyuk
We’re here to provide support for people living with multiple sclerosis and drive research into better treatments. Together, we are strong enough to stop MS. mssociety.org.uk United Kingdom Joined December 2007-
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Terri-Louise is the CEO and founder of @Talkswithms she shares some of the #MSUnfiltered topics that she finds difficult to talk about. Thank you, Terri-Louise, 🧡 This #MSAwarenessWeek we want people to know they're not alone. Join the conversation by searching #MSUnfiltered
This is a fantastic campaign trying to raise awareness of symptoms that people who have #MS may find embarrassing to discuss #MSUnfiltered Honoured to have been asked to participate. I am passionate about good communication and teach my medical students about its importance!
Our website will soon look a little different. Keep an eye out for upcoming changes and more information on what we’ve done and why!
This week is #multiplesclerosisAwarenessWeek. MS is a lifelong condition that effects the nervous system. Do you know the symptoms of MS? All week @mssocietyuk have been raising awareness & speaking up about the realities of life with MS #multiplesclerosis
Meet GP, Dr Panna Muqit 👋 If you've avoided seeking medical help due to embarrassment, Dr Panna shares some helpful top tips on speaking to your GP about your #MSSymptoms ⬇️ We've got info and support on our website too. mssoc.uk/49OHrWw #MSUnfiltered
"One of things I’ve previously found hard to talk about is my bladder." From bladder issues, fatigue and speech difficulties. Anji shares the unfiltered version of her life, living with MS. Thank you Anji 🧡 mssoc.uk/4aSQ1EV #MSUnfiltered
No one should feel embarrassed about or have to hide their MS symptoms. Thank you to our wonderful supporter @MummyFelstead for sharing her MS story and raising vital awareness during #MSAwarenessWeek 🧡 Thanks also to @StormHuntley @JeremyVineOn5 #MSUnfiltered
No one should feel embarrassed about or have to hide their MS symptoms. Thank you to our wonderful supporter @MummyFelstead for sharing her MS story and raising vital awareness during #MSAwarenessWeek 🧡 Thanks also to @StormHuntley @JeremyVineOn5 #MSUnfiltered
"Let's get real for a second. I've been struggling with bladder issues since my diagnoses back in 2019." Meet Jordan, he lives with MS and has dropped the filter for our #MSUnfiltered campaign to talk about his bladder issues. ⬇️📽️ Thank you Jordan 🧡
Bladder problems are common in MS, but we know that people are too embarrassed to talk about it Let’s change that In our #MSAwarenessWeek survey, almost three quarters of people with MS said they experience bladder issues You're not alone mssoc.uk/49ILRht #MSUnfiltered
No one should feel embarrassed about their MS symptoms. This #MSAwarenessWeek is all about encouraging people to speak out and seek support. Search #MSUnfiltered to join the conversation..
No one should feel embarrassed about their MS symptoms. This #MSAwarenessWeek is all about encouraging people to speak out and seek support. Search #MSUnfiltered to join the conversation..
MS can affect all aspects of life, but one of those areas not often talked about is sex and relationships. We looked at some of the challenges that might come up, and ways to manage them: mssoc.uk/3WfQdts Let's open up about sex and MS this #MSAwarenessWeek #MSUnfiltered
Let's talk about sex! "People should be talking about it more. Why is it ok to talk about an ingrowing toenail but it’s not ok to talk about sex?" For #MSAwarenessWeek Francesca drops the filter about living with MS and sexual dysfunction. mssoc.uk/3WhAKsO #MSUnfiltered
"We have experienced problems in this area, particular with erectile dysfunction, and it’s something that’s really difficult to talk about, particularly with health professionals." Stuart and Marie join our #MSUnfiltered campaign and open up about MS and their relationship ⬇️📽️
We surveyed over 1,400 people with MS about topics that can feel difficult to talk about. Almost half said they wouldn't feel comfortable raising sexual dysfunction problems with a healthcare professional. No one should feel embarrassed by their MS symptoms #MSUnfiltered
It's #MSAwarenessWeek and we're sharing unfiltered stories from people living and affected by MS. We want people to know they're not alone! 🧡 Let's open up about MS and raise awareness by joining the conversation using #MSUnfiltered
This Monday, MPs debated the Carer’s Allowance in parliament. SNP Disabilities Spokesperson Marion Fellows MP (@marionfellows) highlighted issues faced by carers for people living with MS. Watch her contribution here ⬇️
It's #MSAwarenessWeek – if you're struggling with or would like to find out more about mental health, we have info, booklets, factsheets and self-help techniques that can make it easier to cope. ➡️ mssoc.uk/4aNFScG You're not alone 🧡 #MSUnfiltered
There are lots of ways you can get involved during #MSAwarenessWeek 😀 📢Help us spread the word and raise awareness of MS 🙋♂️Get involved in the conversation by using #MSUnfiltered 📢Download our supporter pack and get involved: mssoc.uk/3U2Dho6
"I have felt too embarrassed to talk to care workers – I have put off talking about things for way longer than I should have." Paige, living with MS ➡️mssoc.uk/44b0qJN We're sharing #MSUnfiltered stories to let everyone in the MS community know - You're not alone! 🧡
We all have mental health, and by talking about it we can support ourselves and others. If you or someone you know would like a chat - we're there for you. Swipe for ways to connect and where to find support. 👇
Rachel Horne @RachelHorne19
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Shift.ms/Clare @shiftms
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MS_Awareness ® ♿�.. @MSawarenessIndy
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theMSguide.com 🧠 @themsguide
5K Followers 5K Following I’m an MS patient of 31y. https://t.co/aHXj0R1KWe By an MS patient for MS patients. 🇬🇧+🇨🇦 Stay active! (not a warrior)
Penelope Conway ☀�.. @PositiveWithMS
10K Followers 155 Following Bringing smiles, hope and encouragement to everyone living with multiple sclerosis. MS is not the end of our life. https://t.co/DubmEs755J…
National MS Society @mssociety
69K Followers 379 Following We will cure multiple sclerosis while empowering people affected by MS to live their best lives.
Aaron Boster MD @AaronBosterMD
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Mark Webb @MarkWebb_
8K Followers 4K Following Speaker on disability. (I have advanced MS) Ambassador @Shiftms , @parallelglobal , @PurpleTuesNov Representation @ReflectAgency #DisabilityPower100 #TEDx
Bev Wright @TheMSKittylady
6K Followers 5K Following Ex Fitness instructor retired due to #MS but still exercising every day. Raised a fair few quid for research into neurological conditions. Love #Cats 😻😻
Andy Reynard ✍️�.. @andy_reynard
2K Followers 963 Following Writer of memoir ‘Balls to MS’. Blogger on life with MS. Spoiler alert: I have MS.
Multiple Sclerosis Ne.. @MSNewsToday
11K Followers 2K Following We are a free digital publication dedicated to sharing the latest news, research, and Multiple Sclerosis patient perspectives.
Patrick B, I walk ver.. @aid4disabled
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Klaus Schmierer🎗�.. @KlausSchmierer
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Abi B @AbiBuddComms
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Lauren @Laurenlondoner
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Anthony Rainford @AntRainford
2K Followers 1K Following .Diagnosed with MS in 2015 but determined to keep positive. Trying to break down the stigma of mental health one brick at a time . Mental Health First Aider
Cathy Chester @CathyChes
10K Followers 9K Following Certified Health Advocate. Patient Leader for MS community. Lifetime Achievement Award, @socialhealthnet Living with #multiplesclerosis for 38 yrs #IBS Wife/Mom
MSTrust @MSTrust
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Cath Cladingbowl @cathclad
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WheelieMSAdvocate2 @AgainRach
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Andrea Stennett PhD @AndreaStennett
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Hannah Harvey (she/he.. @_hannahharvey
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7K Followers 4K Following Journalist with MS, Honorary Research Fellow Queen Mary U, set up the https://t.co/B1fXZwrLR1 for Women's Research in MS, published in Neurology & The BMJ.
Gavin Giovannoni, aka.. @GavinGiovannoni
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Penelope Conway ☀�.. @PositiveWithMS
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National MS Society @mssociety
69K Followers 379 Following We will cure multiple sclerosis while empowering people affected by MS to live their best lives.
Aaron Boster MD @AaronBosterMD
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Mark Webb @MarkWebb_
8K Followers 4K Following Speaker on disability. (I have advanced MS) Ambassador @Shiftms , @parallelglobal , @PurpleTuesNov Representation @ReflectAgency #DisabilityPower100 #TEDx
Bev Wright @TheMSKittylady
6K Followers 5K Following Ex Fitness instructor retired due to #MS but still exercising every day. Raised a fair few quid for research into neurological conditions. Love #Cats 😻😻
Andy Reynard ✍️�.. @andy_reynard
2K Followers 963 Following Writer of memoir ‘Balls to MS’. Blogger on life with MS. Spoiler alert: I have MS.
Multiple Sclerosis Ne.. @MSNewsToday
11K Followers 2K Following We are a free digital publication dedicated to sharing the latest news, research, and Multiple Sclerosis patient perspectives.
Patrick B, I walk ver.. @aid4disabled
2K Followers 2K Following Advanced MS. Adult educator to help HCP students at Uni. Public patient involvement. Love my Travelscoot The Trike. Always optimistic.
Klaus Schmierer🎗�.. @KlausSchmierer
4K Followers 1K Following Personal views on #Neurology #MultipleSclerosis #ChariotMS #AttackMS #AssistMS #History #Politics RT≠endorsement
Abi B @AbiBuddComms
4K Followers 3K Following I #write a blog about #MultipleSclerosis .Part time #writer DX with #RRMS in 2008. now #SPMS 🙄 https://t.co/9rplaxege9
Anthony Rainford @AntRainford
2K Followers 1K Following .Diagnosed with MS in 2015 but determined to keep positive. Trying to break down the stigma of mental health one brick at a time . Mental Health First Aider
Cathy Chester @CathyChes
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MSTrust @MSTrust
44K Followers 1K Following We are here to support people with multiple sclerosis, their friends and families. Free Phone Information Service 0800 032 38 39. Reg charity no. 1088353
Carers UK @CarersUK
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Barry Singer MD 🧠 @drbarrysinger
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Julie Gould @GrumpyoldGould
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Jane Hawkes @ladyjaney75
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1K Followers 692 Following Lover of Dogs, 40s/50s era, books, upcycler, football, snooker. Living with Coeliac. RRMS dx Nov ‘22
Creatively reflecting on 30 years living with #MultipleSclerosis #MSAwarenessWeek #MSUnfiltered @mssocietyscot @mssocietyuk @WeAreProvoco @MS_HealthUnion #MSWeek #MultipleExposures #DisabilityAwareness #bnwphotography @thecourieruk
All set up for the @mssocietyuk #Guernsey conference this weekend. Grow offers local charities amazing accessible facilities at discounted rates thanks to the communities generous support of the new facilities #WithoutUs #Guernsey #Charities
I was in @heraldscotland today for #MSAwarenessWeek This year’s campaign is #MSUnfiltered As an educator, I teach my #ScotGEM #students that It is crucial patients feel comfortable discussing embarrassing symptoms with a medical professional by facilitating good communication.
This is a fantastic campaign trying to raise awareness of symptoms that people who have #MS may find embarrassing to discuss #MSUnfiltered Honoured to have been asked to participate. I am passionate about good communication and teach my medical students about its importance!
Meet GP, Dr Panna Muqit 👋 If you've avoided seeking medical help due to embarrassment, Dr Panna shares some helpful top tips on speaking to your GP about your #MSSymptoms ⬇️ We've got info and support on our website too. mssoc.uk/49OHrWw #MSUnfiltered
A big thank you to the wonderful @MummyFelstead and James from @monkeysox_org for raising awareness of #MSAwarenessWeek on the @StormHuntley show on @channel5_tv this morning. What a brilliant way to end the week! #MSUnfiltered @mssocietyuk 👏👏👏
@ladyjaney75 @mssocietyuk @OvercomingMS Thank you for sharing and raising awareness 💙
There are many symptoms of MS, some are difficult to talk about. To find out more search #MSUnfiltered @mssocietyuk @MSTrust @OvercomingMS #MSAwarenessWeek
No one should feel embarrassed about or have to hide their MS symptoms. Thank you to our wonderful supporter @MummyFelstead for sharing her MS story and raising vital awareness during #MSAwarenessWeek 🧡 Thanks also to @StormHuntley @JeremyVineOn5 #MSUnfiltered
"I can no longer pick my grandchildren up." "I can't cuddle them, I can't hold them." For MS Awareness Week @MummyFelstead shares how the illness affects her family life and self-confidence. James Carvell | @StormHuntley | #StormHuntley
"I can no longer pick my grandchildren up." "I can't cuddle them, I can't hold them." For MS Awareness Week @MummyFelstead shares how the illness affects her family life and self-confidence. James Carvell | @StormHuntley | #StormHuntley
Absolutely spot on!
“I don’t like talking about my mental health and I’ve hidden it from my family a lot. I don’t want people to think I’m moaning about my MS again.”
Let's talk about sex. No need to be embarrassed. 🧡 #MSUnfiltered #MSAwarenessWeek #MS
Let's talk about sex! "People should be talking about it more. Why is it ok to talk about an ingrowing toenail but it’s not ok to talk about sex?" For #MSAwarenessWeek Francesca drops the filter about living with MS and sexual dysfunction. mssoc.uk/3WhAKsO #MSUnfiltered
Nerve damage caused by #MS disrupts body signals. Most people will experience bladder issues as a result. Over half the 1,400 people we surveyed said they were embarrassed by this symptom. This #MSAwarenessWeek we’re bringing these issues into the open. #MSUnfiltered #LetsTalkMS
@NeuroTherapyNet @mssocietyuk @MSUK6 @OvercomingMS @MS_Together_ @shiftms Love this! Thank you to Jordan for sharing.
You know I felt pretty good at this half way mark. And I am almost at my half way mark for the charity goal today. So grateful for the support of a few more friends and family donating to the @mssocietyuk page at craiglambie.com/donate instagr.am/p/C6KSw28IB-n/
It’s #MSAwarenessWeek. The @mssocietyuk's #MSUnfiltered survey found that over 1/3 of people with MS have avoided seeking medical help due to finding their symptoms embarrassing.
No one should feel embarrassed about their MS symptoms. This #MSAwarenessWeek is all about encouraging people to speak out and seek support. Search #MSUnfiltered to join the conversation..
Over a third of people with MS have avoided seeking medical help due to embarrassment. This #MSAwarenessWeek seven of the UK’s MS charities have come together with one, unified message. You’re not alone! 🧡 Read more about our #MSUnfiltered campaign: mssoc.uk/3w16tUp
The medical gaslighting in MS is getting more traction than I expected it to. The MS Society has now engaged with the issue => buff.ly/49R5PXt
We're looking at some of the more taboo symptoms of MS as part of MS Awareness Week. Many people with MS experience problems with their bowels. Take a look at this page for some tips to keep your bowels healthy. pulse.ly/gbn3olp8r6 #MSUnfiltered #MSAwarenessWeek
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