I AM ALS @iamalsorg
I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS. iamals.org Joined November 2018-
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We are exactly ONE MONTH out from the ALS Community Summit! Join us in Washington DC May 29th - June 1st for this first-of-its-kind event. Find everything you need to know on our landing page: iamals.org/2024-i-am-als-…
The Write Stuff's first of two Eyegaze panels is TONIGHT at 6:30pm ET! It's not too late to register, and you won't want to miss it: iamals.org/action/eyegaze…
I AM ALS's Clinical Trials Team is inviting you to their first Clinical Trials 101 webinar! This will kick off a series of webinars covering various clinical trial topics, but this first one just covers the basics. Sign up to join on May 9th at 6pm ET. iamals.org/action/clinica…
MISSOURI: the Legislative Affairs Team needs you! Every day they approach legislators about important issues. But their approach will be way more effective with Missouri legislators if they have someone from Missouri to back them up. Sign up: iamals.org/action/help-th…
Reminder: I AM ALS and @LiveLikeLou4 are presenting an informative virtual webinar about Lou Gehrig on May 6th! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…
All 32 MLB teams are participating in celebrations of the fourth annual Lou Gehrig Day! Find the event closest to you: iamals.org/lou-gehrig-day…
We're counting down the days until May 1st, when we get to kick off ALS Awareness Month with this awesome event! It's not too late to sign up: iamals.org/action/the-luc…
April social hour is next week! Gather with your fellow advocates on April 30th for an hour of low-key social time. Don't forget to sign up if you haven't already in 2024. iamals.org/action/april-s…
Maycee Wilkie cared for her father before he passed from ALS, and she's launching an awareness campaign called On Your Mark that focuses on self care and gratitude. Learn more from Maycee at the upcoming webinar on May 3rd! iamals.org/action/on-your…
Sign up to receive email notifications from I AM ALS to ensure you never miss breaking news from us! iamals.org/action/join-th…
It's here, it's here!! We just launched our Lou Gehrig Day 2024 landing page with everything you need to know about the festivities on June 2nd and beyond. Check it out and find an event near you: iamals.org/lou-gehrig-day…
Interested in learning about #eyegazetechnology or have questions? Join the first of our two-part series on #eyegaze on April 29 and hear from panel experts comprised of current eyegaze users. Attendance is free but registration is required. See you there!
In episode 94, Sara Bennett who is a young mother of two sons ages 5 & 7, shares how she is working with an end-of-life doula. This quote illustrates what it's meant to her. Direct Listen Link: bit.ly/ListenOnAppleP… or imdyingtotellyoupodcast.com @HerALSStory @iamalsorg #als
When a loved one is first diagnosed with ALS, there is so much to think about, it can be overwhelming. Check out this resource that will guide you through the initial steps of being and becoming a caregiver to someone living with ALS. iamals.org/get-help/careg…
The Youth Lou Gehrig Day Team needs your help to connect with Little League and youth baseball teams across the US this summer! Sign up to join the team and learn how to get your local youth teams involved: iamals.org/action/youth-l…
Looking to be a part of a team that advocates and addresses concerns specific to people of color who are impacted by ALS? Learn more about the Many Shades of ALS. #EndALS #Fight2EndALS
Looking to be a part of a team that advocates and addresses concerns specific to people of color who are impacted by ALS? Learn more about the Many Shades of ALS. #EndALS #Fight2EndALS
REMINDER: The deadline to add a flag to this year's display is May 2nd. If you haven't yet added a flag to honor yourself or a loved one, please do so soon! Note: please submit again if you've submitted in past years. ➡️tinyurl.com/sxamy3su #ALSMNDWithoutBorders @iamalsorg
Don't forget - the Write Stuff's first Eyegaze panel is next week! This panel, on Aprril 29th at 6:30pm ET, will feature advocates who have done some incredible things with Eyegaze. We hope to see you there! iamals.org/action/eyegaze…
The Many Shades of ALS Team is working to address disparities for people of color within the healthcare system, and especially within ALS. If you're interested in addressing those as well, join the team! iamals.org/action/many-sh…
This is sweeter than a glass of lemonade! 🍋 💙
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswritesSandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4Kaye @KayeSteinsapir
120K Followers 37K Following Proud mama of 3. Writer. Attorney. Cancer survivor. Bereaved parent. Founder of the Molly Steinsapir Foundation 🌈🦋✡️. #TEAMMOLLYChris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary FlamesSarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirlSteve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_sethShah Minokadeh, M.D. @MinoShah
4K Followers 732 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALSHande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)suong wong @SuongW95694
0 Followers 17 FollowingBahtiye yemişçi @BahtiyeY
112 Followers 671 FollowingJack3Ohio @HadersJack
1K Followers 3K Following father, grandfather, Reds, Bengals fan , University of Cincinnati BA American HistoryLilah @jT7otK9lr4r1eST
81 Followers 1K Following I am a lively and cheerful girl who would like to meet a good friend.Elonmusk @Elonmusk22641
1 Followers 558 Following Success should be your greatest motivation CEO TESLA AUTO @elonmuskナウル共和国政.. @nauru_japan
484K Followers 245K Following ナウル共和国政府観光局日本事務所の公式🇳🇷総人口 約一万人の南太平洋の国🇳🇷フォロバ100%(時間かかります)🇳🇷#ナウルが名売る #ナウラー #ナウルなう #ありが島ナウル島 #気にナウル 🇳🇷 https://t.co/kCai1b1kvyرجل @abdhali25
55 Followers 928 FollowingG.T @gefsdyeus
2K Followers 7K FollowingKathleen @komibuchiy66466
3 Followers 247 FollowingThomas Jordan Miles I.. @tjordanmiles3
889 Followers 1K Following Advocate for older adults & healthy aging spaces, ardent runner, former elected official and BOS Chairman (opinions are my own and do not reflect my employer)Jean Lionel @Lio52289187X
2 Followers 46 FollowingNatalia Pozuelo @name__natalia
36 Followers 675 Following jcu’21 | Disability:IN NextGen Leader alumni | NBCUniversal + AAPD Tony Coelho Award Recipient | Adaptive Fashion Advocate | Disability & Rare Disease AdvocateDeborah Little @DLSLTh
10 Followers 111 Following Speech & Language Therapist/Clinical Lead AAC & TC for CYP @NHS D&G. All views my own.Senate Aging Committe.. @SenateAgingGOP
3K Followers 400 Following The committee in the United States Senate working to secure a strong future for our nation's aging community. Updates from Lead Republican @SenatorBraun.RayColevas🐎🐎 @graybrigade
1K Followers 931 Following Below Avg Golfer & Horse Racing fan. Supporter of TB/SB Aftercare and Equine Rescue.Gerson euzebio Gerson @Ge13341Gerson
400 Followers 970 FollowingMaribel Fernández @maribelfdez2
29K Followers 24K Following Me encanta el mar, pasear por el campo, el olor a tierra mojada, los viajes, la lectura y las personas con educación y valoresZoe Be @BeahanLinda
121 Followers 1K FollowingDr.Amr Ahmed @DrAmrKameKhalil
253 Followers 542 Following طبيب مقيم اسرة ومثقف سكرى ومهتم بالانسولين الحديث وابحاثه حاصل على شهادة ال IDEEL كمثقف سكرى وحاصل علي ماجستير Gyn&Obest اعمل بوزارة الصحة السعودDevin Carty @DevinCarty
278 Followers 773 Following Chief Executive Officer at @MartinVentures, Cofounder & Chairman at @WellvanaHealth, Cofounder & Chairman at Reimagine Care, and cofounder at @TrilliantHealthJoshua Hawley 🇺�.. @dogridinmonkey
103 Followers 693 Following Native Bay Stater, used to think I could passably play golf, international swearing enthusiast. Also, NOT the traitorous senator from Missouri.Canan Bektaş @oroperi2
45 Followers 1K FollowingShirley Roberts @Shirley38175168
75 Followers 759 FollowingFight2EndALS @Fight2EndALS
15 Followers 68 FollowingClifford Nichols @clifford_nicho
40 Followers 410 FollowingRick Reyer @RickDReyer
887 Followers 2K Following Retired! Leadership, project management, comms, freelance drummer, fishes, hunts, cooks, reviews music, and reads the Bible.Earth Crisis Areas #R.. @EarthCrisisArea
65 Followers 1K Following ``| We are all the waves of one sea | The time has come for all to live as one | We are all the waves of one sea | We are all the stars of one sky |`` MMaxWJK Sayers @jk_sayers
14 Followers 119 Following just out here trying to make the world a better placejhenwork @jwork95471
3 Followers 76 FollowingLisa Zimmerman @LisaZimmer69346
0 Followers 6 FollowingalsHATER @HaterAlss
28 Followers 200 FollowingElon musk @EMusk32788
57 Followers 2K FollowingE Musk @BarristerS84208
194 Followers 3K Following Entrepreneur... ELON MUSK... Mars mission exploration... support the future of humanity and beyond... SpaceX mission... become part of this movement...Dragonlady @Dragonlady457
297 Followers 1K FollowingThomas Graef @ThomasGraef68
0 Followers 5 FollowingKarrar Saad كــر�.. @karrar_saad19
795 Followers 624 Following Baghdad club player ⚽️ ، كن كما تريد وليس كما يريدون ، 🖤Omar Rodríguez Mendo.. @omarrmen
86 Followers 1K Following Medical Doctor. Master’s Student of Neurobiology. #UNAM. Mexican. Looking forward to study a phD in Biomedical Science.Iveta Mareckova @Imar83505
0 Followers 19 FollowingBrad Uptgraft @braduptgraft
167 Followers 50 FollowingPedro Assed @pedroassed
1K Followers 3K Following Magnus est qui se vincit. MD, MSc-Endocrinology-Federal Univ. Rio de Janeiro/UFRJ 🇧🇷Tweets are my own. RT is not endorsement #MedEdNick @NickMinocha
46 Followers 194 FollowingBrian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswritesSandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4Kaye @KayeSteinsapir
120K Followers 37K Following Proud mama of 3. Writer. Attorney. Cancer survivor. Bereaved parent. Founder of the Molly Steinsapir Foundation 🌈🦋✡️. #TEAMMOLLYChris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary FlamesSteve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNowMandi @RunningMama0522
2K Followers 1K FollowingLisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.Andrea Koval @jaxmadmom84
2K Followers 406 Following dereks widow :( , momma to 2 babes 2 angels raising ALS awareness and Retinitis pigmentosa awareness….Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.HopOnACure @HopOnACure
523 Followers 61 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOvForbes Tate Partners @forbestate
2K Followers 812 Following Bipartisan public affairs firm driving outcomes for our partners that achieve their goals and build value in today’s policy and political landscape.Katie Couric @katiecouric
1.7M Followers 5K Following Journalist, @SU2C founder, podcaster, and co-founder of the eponymous Katie Couric Media. #1 New York Times bestselling author (Couldn’t resist)Team Drea Foundation @TeamDreaFdn
507 Followers 219 Following Nonprofit & team of 200 athletes who have raised $750k to defeat ALS. Andrea is aiming to be the 1st person w/ ALS to do a marathon in all 50 states on a trike.Jill Brattain @MommaJillB
547 Followers 561 Following Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.Sarah Parton (she/her.. @sarahkarpar
1K Followers 940 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our familyJim Mourey @JimMourey
379 Followers 240 Following Husband of a strong amazing woman who fought ALS, father of 2 wonderful adult kids and advocate of ALS awarenessEndTheLegacy @End_The_Legacy
328 Followers 65 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.Behan Strong @BehanStrong
2K Followers 2K Following Join our movement to raise funds and awareness for Bucknell Alum and former SJC DC boys bball head coach Pat Behan (@CoachBehanSJC) in his fight against ALSElizabeth Dole Founda.. @DoleFoundation
33K Followers 24K Following Empowering, supporting, and honoring military and veteran caregivers, our nation’s #hiddenheroes.Phil Rosenthal @PhilRosenthal
105K Followers 424 Following ‘Somebody Feed Phil’ Season 6 Now Streaming.... Creator: Somebody Feed Phil-Netflix, Everybody Loves Raymond, I'll Have What Phil's Having, Naked Lunch PodcastYour ALS Guide @YourALSguide
384 Followers 64 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...Ales for ALS @AlesforALS
707 Followers 2K Following Since 2013, the #AlesForALS program has raised over $6,000,000 for ALS research at @alstdi. Cheers to beer and to helping #EndALS!Toronto Blue Jays @BlueJays
2.4M Followers 909 Following We are Blue Jays #TOTHECORE 🇨🇦 Follow us on Facebook, Instagram, YouTube, Threads, Snapchat and TikTok: @BlueJaysChad Clardy @ChadClardy3
97 Followers 78 Following Family, sports, music, & love ~ Mental health advocate & professional. Son to ALS SURVIVOR! #EndALSEveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.nai @imonfiya7
407 Followers 41 Following A proud mom of 👭fighting ALS with my 28 year old daughter. #helpmybaby……I was able to lose 50 pounds and keep it off. I can help you too.💝Punk Army @punkarmynet
245 Followers 182 Following helping you create websites, merchandise, social media more. owners: @rrlitster & @albertorodxMihir @terminal_coder
147 Followers 210 Following 36. Programmer, developer. Living with ALS (Amyotrophic Lateral Sclerosis). Grateful for each day.Disability & Intersec.. @DISummit_org
3K Followers 295 Following Updates and information for the Disability & Intersectionality Summit 2021Jean C9orf72 @Jeanc9orf72
1K Followers 858 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the LegacyNathalie Jacoby @nathaliejacoby1
280K Followers 56K Following Democrat • Kindness matters most of all. #SpacesHostProud Retired Navy CA.. @KRob8753
2K Followers 3K Following ALS is my battle now. 1/6/21 was an attempted coup. Never Trump. “We convey by our presence, and our actions, that which is important.”Becky Mourey @becky_mourey
634 Followers 318 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.Morris ALS Principles @ALSprinciples
325 Followers 19 FollowingHer ALS Story @HerALSStory
2K Followers 165 Following We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.Tim Green @timgreenbooks
3K Followers 793 Following Tim Green: NFL player; @NYTimes bestselling author;TV host/commentator @FOX, @NFL, GMA, @CourtTV, @ABC, @NPR; lawyer/coach/father of 5; newest book Final SeasonWalter Shelton @wcs929
109 Followers 198 FollowingCircleboom @circleboom
115K Followers 5K Following Boom your Social Circle! We create intuitive and easy-to-use social media products for brands, SMBs and users to grow and strengthen their social network.The American Brain Co.. @AmericanBrainCo
1K Followers 222 Following Nonprofit organization, seeks to advance the understanding of the functions of the brain, and to reduce the burden of brain disorders through public advocacy.Luke Deal @lukedeal86
4K Followers 393 Following Embrace The Journey | @ontovictorynil Student-Athletebeanish 🐝 @bean_ish
322 Followers 1K Following ALS traveler ... Wife mom sister aunt friend neighbor activist legumist deltiologist... Team Pete forever #ENDALS #ALSAwarenessMonth #iamalsikanread @ikanread
415 Followers 2K Following ikontainmultitudes but mostly here for Bravo, law, and dog Twitter (she/her) - same handle on all the socialsbob verber @bobverber
554 Followers 3K Following Coffee fueled Europe based Californian. Steelers, Cal Bears, SF Giants. Languages -- lots. Hair -- almost none. Opinions and poor attempts at humor are my own.Christina Warren @ChristinaHagi
340 Followers 612 Following Reader, writer, book whisperer, EFL teacher...Paul Seay @PaulSeay2
170 Followers 1K FollowingCarolyn MacDonald @Mommycita21
22 Followers 208 FollowingDARK Malarkey PAB Rod.. @ingee
196 Followers 1K Following Specializing in spray tanning testicles. Part time River Boat security guard. Chinese balloon inflation technician. ❤️me some RICO.anna hayward @reikilady22
241 Followers 821 Following therapist at Farleigh Hospice /Buddhist healer 🙏West Ham Fan @BraintreeReserves @WestHamFoundation @Barkingside @EnsignOfficial @mndassoc @claptonfootballchar barton @charb33
346 Followers 707 Following 988 National 3 digit suicide hotline # NEEDS TO BE FUNDED/ACTIVATED. Believer in democracy equal opportunity. Universal Health Care. UPDATE MEDICAL SYSTEMSSuch a moving and inspiring article by someone living with ALS @iamalsorg . nytimes.com/2024/04/25/boo…
Join @PaganoniMDPhD & @MeritCudkowicz for another great #weeklywebinar this Thursday 5/2. @ALSTDI @alsassociation @iamalsorg @everything_als @alsone_official @LesTurnerALS @NEALSConsortium @iamalsorg Register: partners.zoom.us/webinar/regist…
The first of two #eyegaze panels is today! Don’t forget to sign up so you can learn about eyegaze technology from people living with #ALS who use this important device. #EndALS #Fight2EndALS
Don't forget - the Write Stuff's first Eyegaze panel is next week! This panel, on Aprril 29th at 6:30pm ET, will feature advocates who have done some incredible things with Eyegaze. We hope to see you there! iamals.org/action/eyegaze…
Join @iamalsorg, @youralsnetwork, and other ALS nonprofit organizations for the first ALS Community Summit from May 29 - June 1. Learn more at iamals.org/action/alsnetw…. #ALS
Interested in learning about #eyegazetechnology or have questions? Join the first of our two-part series on #eyegaze on April 29 and hear from panel experts comprised of current eyegaze users. Attendance is free but registration is required. See you there!
Don't forget - the Write Stuff's first Eyegaze panel is next week! This panel, on Aprril 29th at 6:30pm ET, will feature advocates who have done some incredible things with Eyegaze. We hope to see you there! iamals.org/action/eyegaze…
In episode 94, Sara Bennett who is a young mother of two sons ages 5 & 7, shares how she is working with an end-of-life doula. This quote illustrates what it's meant to her. Direct Listen Link: bit.ly/ListenOnAppleP… or imdyingtotellyoupodcast.com @HerALSStory @iamalsorg #als
Looking to be a part of a team that advocates and addresses concerns specific to people of color who are impacted by ALS? Learn more about the Many Shades of ALS. #EndALS #Fight2EndALS
The Many Shades of ALS Team is working to address disparities for people of color within the healthcare system, and especially within ALS. If you're interested in addressing those as well, join the team! iamals.org/action/many-sh…
REMINDER: The deadline to add a flag to this year's display is May 2nd. If you haven't yet added a flag to honor yourself or a loved one, please do so soon! Note: please submit again if you've submitted in past years. ➡️tinyurl.com/sxamy3su #ALSMNDWithoutBorders @iamalsorg
@iamalsorg My husband has eyegaze software, very interesting. Thank you VA
Today, I donated the funds raised by the amazing lemonade stand. I just cannot believe the incredible kindness of the kids who put on the stand. I am humbled and inspired by them. If you want to join me and donate to @iamalsorg, click the link here. iamals.org/give/
Whether you’re near the Grayslake, IL area or not, you won’t want to miss this webinar to learn more about #LouGehrig, #ALS and Lou’s amazing legacy. Register now! #EndALS #Fight2EndALS
Reminder: The Lou Gehrig Day Team has partnered with @LiveLikeLou4 to bring an informative webinar to the Grayslake Library on May 6th! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…
Lou Gehrig Day 2024. Plans are starting to shape up with the Detroit Tigers. If you want to be first to learn the what, when, and how to get tickets go to iamals.org/action/tigers2…. Join those in Michigan impacted by ALS for a fun day at @ComericaPark. Thanks, @tigers & @iamalsorg!
@iamalsorg @HopOnACure Signed copies of @jonathaneig 's book "Luckiest Man: The Life and Death of Lou Gehrig." are available at the I AM ALS store! store.iamals.org/products/lucki…
I can’t wait for this conversation about Lou Gehrig with @HopOnACure and @iamalsorg. Sign up to join us via Zoom.
Breaking: this event will now feature special guest interviewer John Driskell Hopkins! Join us and @HopOnACure for this awesome book talk with Jonathan Eig and Hop about Eig's new book "Luckiest Man: The Life and Death of Lou Gehrig." #believeinacure💙 iamals.org/action/the-luc…
@alsadvocacy @HopOnACure @iamalsorg It’s pronounced Eye-g. 😅
Join us for another great #weeklywebinar on this Thursday 4/25 with Drs. @MeritCudkowicz and @PaganoniMDPhD @ALSTDI @alsassociation @iamalsorg @NEALSConsortium @LesTurnerALS @MDAorg @everything_als @alsone_official Register: partners.zoom.us/webinar/regist…
Come join us as we kick off ALS Awareness Month with two incredibly talented writers ! 📚 &🎶 #IAA4Lou #believeinacure💙
Breaking: this event will now feature special guest interviewer John Driskell Hopkins! Join us and @HopOnACure for this awesome book talk with Jonathan Eig and Hop about Eig's new book "Luckiest Man: The Life and Death of Lou Gehrig." #believeinacure💙 iamals.org/action/the-luc…
Lou Gehrig was quite a man with multiple legacies. Looking forward to this conversation. Thanks to Mr. Eig, Mr. Hopkins, and @iamalsorg for the opportunity.
I can’t wait for this conversation about Lou Gehrig with @HopOnACure and @iamalsorg. Sign up to join us via Zoom.
If you're heading out to the @iamalsorg Community Summit in June, consider a fun boat outing c/o Chesapeake Region Adaptive Boating, or CRAB. Reservations are required, so sign up now! 🛥️🦀 #Fight2EndALS #EndALS
If you're planning to travel to DC for the Summit, OR if you're local to Annapolis Maryland, check out this great offering from our friends at CRAB! They are planning several boat outings onto the Chesapeake Bay on Saturday, June 1. Reserve your spot: iamals.org/action/crab202…