Alexion @AlexionPharma
Alexion, AstraZeneca Rare Disease was created following the 2021 acquisition of Alexion Pharmaceuticals, Inc. GL/NP/0116 GL/NP/0095 alexion.com/Documents/Alex… Boston, MA Joined February 2011-
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We're looking for talented individuals who share our dedication to improving patient outcomes. Every role at Alexion contributes to our shared goal: delivering life-changing therapies to those who need them most. Could this be you? Apply now: spr.ly/6019ZYXqP
Immunoglobulin A (IgA) nephropathy is a rare, chronic kidney disease. Approximately 25-30% of people with IgA nephropathy will progress to end-stage kidney disease, or kidney failure, requiring long-term dialysis or a kidney transplant. Learn more about this condition below.
Haematopoietic stem cell transplant-associated thrombotic microangiopathy (HSCT-TMA) is a type of TMA–a group of severe and potentially life-threatening rare disorders that cause blood clots & damage to the walls of the smallest blood vessels–triggered by HSCT. Learn more below.
Hello from Buenos Aires! 👋 We’re excited to be joining the global kidney care community at the World Congress of Nephrology, where we’ll be presenting our latest research in Immunoglobulin A (IgA) Nephropathy, a rare, chronic kidney disease.
We’re excited to announce Rare Connections in NMOSD. This powerful short film weaves together the stories of Craig, Alex & Marie as told in letters. Watch below to see the power of finding support and community. youtube.com/watch?si=k5r4w…
We're pleased to be attending the World Congress on Osteoporosis, Osteoarthritis and Musculoskeletal Diseases in London, where we'll be presenting our latest research in hypophosphatasia (HPP).
Paroxysmal nocturnal hemoglobinuria (#PNH) is a rare, chronic, progressive, and potentially life-threatening blood disorder that is characterized by red blood cell destruction within blood vessels and white blood cell and platelet activation, which may lead to blood clots.
People living with #RareDiseases are faced with unique challenges, which often require unique solutions. We are committed to leading the way by applying a deep understanding of the patient experience to our clinical trial design. Learn how: spr.ly/6016Z0HyQ
#NMOAwarenessMonth may be coming to an end, but our work never stops. We remain committed to the #NMOSD community and strive to help the countless people whose lives are impacted by this rare disease.
Without collaboration, there would be no progress. Just ask SungKwon Kim, a driven research investigator based at our New Haven Center of Excellence in CT. Hear why he’s passionate about scientists partnering to drive complement research forward.
This #NMOAwarenessMonth, we’re launching a new storytelling approach to share what living with a #RareDisease like neuromyelitis optica spectrum disorder (#NMOSD) means. Hear from Alex, who has been living with the condition since she was a teenager.
The journey to diagnosis for #NMOSD can be long, and patients can feel isolated and alone. This #NMOAwarenessMonth, we are highlighting the patient experience and the power of the community to raise awareness - and will be sharing a new storytelling approach soon. Stay tuned!
Tackling #RareDiseases is an ambitious goal – but one we embrace head-on. As we work towards closing the gap of unmet need for people living with rare diseases, we’re hiring top-tier talent to join us. Apply now: spr.ly/6011XjSev
Intended for investors: We have entered into a definitive agreement to acquire @AmolytPharma, further expanding our late-stage rare disease pipeline. Learn more about the financial considerations here: learn.az/6019kTK63
Today and every day, we are committed to supporting patients affected by rare kidney diseases. This #WorldKidneyDay, learn how you can show your support and get involved: spr.ly/6013Xjqo9
#NMOSD is associated with unpredictable attacks, also known as relapses, which can lead to long term disability like vision loss or paralysis. Explore what other symptoms are associated with this #RareDisease below. #NMOAwarenessMonth
Neuromyelitis optica spectrum disorder (#NMOSD) is a rare and debilitating autoimmune disease characterised by unpredictable relapses, or attacks. In honour of #NMOAwarenessMonth, learn more about the condition below ⬇️
March is #NMOAwarenessMonth, an important time to support education and recognise the neuromyelitis optica spectrum disorder (#NMOSD) community. This year, we are proud to elevate the voices of those living with the disease and educate around NMOSD throughout the month.
People with #RareDiseases often experience a lengthy diagnostic journey, lack of treatment options, and limited awareness of their conditions. On #RareDiseaseDay, learn how we are making a meaningful impact for people living with rare diseases every day: spr.ly/6018XzsWa
Rare is many. Rare is strong. Rare is proud. Today, on #RareDiseaseDay, we stand tall, strong, and proud as one of many in support of the broader rare community. Join us in amplifying the needs of people living with #RareDiseases on this incredibly important day. 🦓
EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.FEDER | Enfermedades .. @FEDER_ONG
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20 Followers 290 FollowingUCB UK & Ireland @ucb_uk
135 Followers 56 Following We are inspired by patients, driven by science. To report an adverse event or product complaint, please contact [email protected]kathie riker @kathieriker
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12 Followers 260 Following Aspiring Pathologist🧬 | Cell Therapy 🌐 | USMLE Candidate 📚 | Passionate about advancing healthcare through innovation 🚀Colin Werth @cjwerth10
128 Followers 291 FollowingHernan Inojosa @HernanInojosa
530 Followers 1K Following MD | Future neurologist | interested in understanding MS with Data | 2x latino (venezuelan and brazilian) living in Germany.EURORDIS-Rare Disease.. @eurordis
32K Followers 2K Following An alliance of over 1,000 patient organisations working across borders and diseases to improve the lives of all people living with rare diseases.NEJM @NEJM
942K Followers 436 Following The New England Journal of Medicine is the world’s leading medical journal and website.The Boston Globe @BostonGlobe
797K Followers 972 Following New England's leading source for breaking news and analysis.AstraZeneca @AstraZeneca
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490K Followers 2K Following Breakthroughs that change patients' lives. Visit https://t.co/zipcKiG1jD to learn more. https://t.co/FPP9fmzZh6NORD @RareDiseases
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570 Followers 780 Following Our Mission is to empower Women of Color to excel in their personal and professional development and to transform their path in the Pharmaceutical industry.Susan Galbraith @susanmgalbraith
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355 Followers 120 Following Passionate about patient advocacy @AlexionPharma and those who are rare. Tweets/RTs are mine only.CASPAR Shelters @CASPARshelters
644 Followers 2K Following Working every day to alleviate substance use disorders & the homeless crisis. 📍 Cambridge & Somerville MA 💙 Part of Bay Cove Human Services since 2014Luke Timmerman @ldtimmerman
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499 Followers 607 Following Love comms. Beruflich als Kommunikator bei Alexion, privat mit meiner Familie - sofern sie positiv und relevant ist. These are my views.Alex Schuman, MBA (sh.. @SchumanValueAdd
153 Followers 775 Following Head of Sustainability & CSR, @Schrodinger • @PlayworksNewEng Board • All opinions are my own • #ESG #CSREuropean Hematology A.. @EHA_Hematology
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1K Followers 266 Following Helping you better understand, manage and talk about myasthenia gravis (MG). Join us at https://t.co/TCZU9dlteEMyasthenia GravisWPA @MGAWPA
1K Followers 236 Following The #MyastheniaGravis Association of Western Pennsylvania is a Treatment & Advocacy Center dedicated to it's patient care, education & social/emotional support.MGA @myastheniakc
1K Followers 53 Following The Myasthenia Gravis Association is dedicated to improving the quality of life for those who are affected by this autoimmune, neuromuscular disease.Muscular Dystrophy As.. @MDAorg
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2K Followers 296 Following #MyastheniaGravis Foundation of America (MGFA) is the largest nonprofit patient advocacy organization dedicated to improving the lives of people with #MG.Thanks to @LaStatale for hosting us and to our generous sponsors @AlexionPharma, @DataSciencesInt, Euroclone, @Novartis, and @ZEISS_Group
Welcome to Day 2 of #WODC 2022! ‘How can Europe become leaders in rare disease innovation?’ Our opening keynote plenary discusses how the whole ecosystem has evolved over time. @AlexionPharma @pfizer @EFPIA @eurordis @FIPRAinsight @yann_eurordis
More enlightening talks here at #wodc“Measuring the burden and complexity of clinical trials from the patient perspective using a trial friction framework” from @AlexionPharma #orphandrugs #raredisease
Welcome to the biggest ever World Orphan Drug Congress Europe! #WODC Our opening speakers Marc Dunoyer, CEO of our title sponsor @AlexionPharma and Tomasz Dylag from the @EU_Commission get things underway in Sitges.
📣 Maciej Gajewski, Executive Director, Head of International Government Affairs and Policy at Alexion Pharmaceuticals will feature in a keynote on what is next for ERN 2.0 at the World Orphan Drug Congress in November. #WODC Book now and save: buff.ly/3wwBDA5
🎤 Martine Zimmerman, SVP, Head Global Regulatory Affairs (GRA) at @AlexionPharma will be speaking at #WODC 2022. Martine will be part of the keynote panel discussing "How Europe can become leaders in rare disease innovation". Book tickets & save now: buff.ly/3uQOfBa
Last week, we joined forces with @AlexionPharma to create a more #sustainable future for people, society and the planet. We partnered with @anacostiaws to plant 50 native trees along the Northwest Branch Anacostia River to help improve water quality & health outcomes locally.
Do you want to know how to build a resilient rare disease ecosystem for the next decade? Join @AlexionPharma's conference with @odexpertgroup presenting its work and proposals on how to build a sustainable rare disease ecosystem 👉 bit.ly/3SlJI3q
Meet our sponsors #WODCEU #orphandrugs @AlexionPharma @EVERSANAcompany @VolvGlobal @Allucent_CRO @Clinigen @IQVIA_global @Partners4A @pfizer @TakedaPharma @aparitohealth @News_CRA @CRiverLabs @MARKEN_LLP @myTomorrows @Orphan_Reach See all sponsors: buff.ly/3pAYB5c
We always enjoy the projects we complete with @AlexionPharma , from our #RareDiseaseDay #SpecialEdition to our recent #LongtermCaregiving edition and the #RareSiblings project currently underway. bit.ly/LongTermCaregi…
We’re reflecting on a month of engagement, education & celebration. We will continue to shine a light on LGBTQUIA+ contributions and how we can remain committed to creating an inclusive and equitable culture where everyone feels like they belong. #Pride2022
Delighted that @AlexionPharma has announced further investment in Ireland. Particularly delighted to see continued investment in #Athlone - further endorses the #Midlands as an excellent place to invest, work and live @IDAMidlandsReg @DeptEnterprise rte.ie/news/business/…
Welcome to the @CambMA neighborhood, @AlexionPharma and @AstraZeneca! Looking forward to the innovation this research center will drive in our community.
AstraZeneca to open major research center in Kendall Square trib.al/aOyqZL0
Ibec, with @BandF is delighted to announce the Leading in Wellbeing Top 100 Companies 2022 index, showcasing the organisations who are leading the way in supporting employee mental health & wellbeing. For the full list of companies: lnkd.in/dZwAGpc #workplacewellbeing100
Global collaboration is key to scientific discovery. Our postdocs come from all corners of the world. The R&D Postdoctoral Challenge will bring together some of the brightest minds in the industry to accelerate progress. #PostDoc #WhatScienceCanDo know.az/3K9QwgF
Our postdocs gain valuable industry experience with the room to remain on the academic track. They have the autonomy to undertake their own research to advance scientific discovery. Help accelerate drug development through the R&D Postdoctoral Challenge. know.az/3qsykXQ
We are proud of our colleagues, Neelima Rao and Sharon Barr, on their recognition as 2022 Healthcare Businesswoman’s Association “Luminaries” for their important work to advance women’s careers and their significant impact to the healthcare industry.
Congrats! Carol Pitcher-Towner, @Alnylam; Rohini Deshpande, Susie Tappouni, Disha Patel, @Amgen; Patricia Turney, @ArcutisBio; Sand'Eria Lewis, @AstellasUS; Sharon Barr, Neelima Rao, @AstraZeneca ow.ly/pN2P50IiNHX #HBAWOTY22 #HBAimpact #genderequality #healthcare
Congrats! Carol Pitcher-Towner, @Alnylam; Rohini Deshpande, Susie Tappouni, Disha Patel, @Amgen; Patricia Turney, @ArcutisBio; Sand'Eria Lewis, @AstellasUS; Sharon Barr, Neelima Rao, @AstraZeneca ow.ly/pN2P50IiNHX #HBAWOTY22 #HBAimpact #genderequality #healthcare
Tomorrow we’re launching an ambitious challenge where outstanding candidates can secure fully funded postdoctoral research positions to transform future treatments. Register to join the live launch event. #PostDoc know.az/3JtlDTK
Are you excited to progress scientific discovery? Register to learn the details of our new R&D Postdoctoral Challenge launching next week, offering outstanding candidates the opportunity to secure a fully funded postdoctoral position. #PostDoc know.az/3I96ghP