Shazia Ahmad @ShaziaKAhmad
Head of S&PE @argenx, AdBoard @HPVAlliance, Passion for #RareDiseaseResearch, #PatientAdvocacy, Champion for #ClinicalTrialDiversity Tweets=Own shorturl.at/gjyCO Washington, DC Joined February 2016-
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Beautiful ❤️
This weekend has been a reminder on how fragile life is. My dear friend’s spouse lost his battle to an aggressive colon cancer that metastasized to the lungs. 💔 They tried every #clinicaltrial possible and at the end he was glad to contribute to research that will help others.
#EidMubarak to all who are celebrating today. #EidAlFitr
Does anyone have any #OutcomesResearch opportunities for a #medstudent. #medtwitter Please DM me. Thank you!!
In honor of Rare Disease Day, we are a proud sponsor of this year’s Rare Artist Gallery as part of Rare Disease Week on Capitol Hill. Swipe to get a closer look at this year’s events! #RareDiseaseDay #RareArtistGallery #RareDisease #argenx
So wonderful being back at the #NIH for #RDDNIH ! #RareDiseaseDay 🦓 So special having my @RiversideLCPS mentee @24JMMartinez join me!
I’m thrilled to share that I recently joined @argenxglobal as Head of Site & Patient Engagement. Humbled and inspired to contribute to advancing therapeutics for individuals with rare autoimmune diseases. #RareDiseases #ImmunologyInnovation
It may only take two seconds but double checking that you have spelled someone’s name correctly before reaching out for the first time can leave a lasting impression. Signed, Someone whose name is incorrectly spelled probs 80% of the time.
No cervical cancer cases detected in vaccinated women in Scotland following HPV immunisation! How great a headline is that. Details in the article below. Cancer prevention ALWAYS beats cancer treatment. academic.oup.com/jnci/advance-a…
#HPV #Vaccine saves lives. @HPVAlliance 👇🏼
#HPV #Vaccine saves lives. @HPVAlliance 👇🏼
✨✨✨✨✨💫💫💫💫
Gorgeous #winter photos. #Charlottesville #UVA Courtesy of my 4th year 😍❄️
“Of all the forms of inequality, injustice in health is the most shocking and inhumane.” - Martin Luther King, Jr.
Best wishes in the #NewYear! May 2024 be a year of optimism, greater progress and allow us all to make an even greater impact in all we do. May #Hope and #Gratitude continue to be a driving force. #HappyNewYear ❤️🙏🏼💫
Love this @glfceo! 👇🏼💯 #2024
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Marni Cartelli @Purrfectly_Rare
3K Followers 2K Following Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
Stephanie Fischer @RarePOV
7K Followers 6K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Mark Lewis @marklewismd
88K Followers 39K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
David Fajgenbaum, MD @DavidFajgenbaum
11K Followers 3K Following @Penn physician-scientist-patient who 'cured thyself' | Advancing @CureCastleman + @EveryCure | National Bestseller #ChasingMyCure https://t.co/26OS13etrF
Neena Nizar @NeenaNizar
2K Followers 2K Following Founder & Executive Director of The Jansen's Foundation. KOL,TEDx Speaker, Educator, Change Leader, https://t.co/Ty1g3WHftT Opinions are my own
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
SynGAP Research Fund .. @cureSYNGAP1
10K Followers 6K Following #SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 https://t.co/4UJNF5bKTl https://t.co/pjCrzqlbV7 🎙
Enlightening Results .. @GraceCordovano
9K Followers 7K Following #Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealth
Adam Johnson - DadVoc.. @RareDiseaseDad
1K Followers 1K Following Dad w/#RareDisease | #Mito Advocate |🎙Host: #ParentsAsRare | Educator | Support | Kindness | Dad Jokes |#MentalHealthMatters | #BoiseState | ⚾️ @Cubs 🏈@49ers
Dr. Tracy Dixon-Salaz.. @TracyDixonSalaz
3K Followers 974 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Stacy Hurt (she/her)�.. @stacy_hurt
10K Followers 2K Following Chief Patient Officer @Parexel 🫶 Cancer survivor, Rare disease mom/caregiver, Advocate for the unseen/unheard in healthcare 📣 Opinions are my own
GIL BASHE @Gil_Bashe
13K Followers 10K Following Voice for health innovation and patient care with @finnpartners | @medikalife | @healthtechworld | @HCNowRadio. Championing #biopharma #digitalhealth #ecohealth
Ritesh Patel @ritters90
9K Followers 9K Following Digital Evangelist - Geek at Heart. I focus on Healthcare - Spurs fanatic - Posts DO NOT reflect the views of the company I work for - This is all me!
n-Lorem Foundation @n_lorem
1K Followers 572 Following Discovering, developing, and providing personalized experimental ASO medicines to treat nano-rare patients — for free, for life
Becky Sansbury @AftrTheShock
2K Followers 2K Following Emotional Support Specialist | Rare Disease | Palliative Care | Author of "After the Shock" | former hospice chaplain | always a mom
John Nosta @JohnNosta
79K Followers 54K Following The Cognitive Age—a remarkable leap in human capability and understanding enabled by artificial intelligence.
CoraNeedham @L69Pl6Xt8g22C
1 Followers 122 Following
Jeffrey Davis @JeffreyLDavis44
1K Followers 4K Following Health Policy Director @mcdermottplus. Husband, father of two, Duke basketball super fan. Opinions are my own.
ymub3h5dzenl86r8 @vu1i8zaj0t6z
0 Followers 320 Following If you want to make friends, you can contact me anytime TG：https://t.co/70UP7lZ3uP WS：https://t.co/SZT6QMNC6j
Nereauth @nereauth1790
32 Followers 2K Following
_hangover_ @hangove31188803
33 Followers 1K Following
strongerthancrps @strongrthancrps
233 Followers 493 Following Complex Regional Pain Syndrome Info & Support
Sheighsl @Sheighsl173109
11 Followers 2K Following
Irshad khan @IrshadKhan75185
23 Followers 166 Following
Thago @Thago1175220
27 Followers 2K Following
Carleigh Bradshaw @CarleighBr14998
189 Followers 3K Following
ebrima abdou njie @AbdouEbrima
81 Followers 5K Following There is nothing as precious in life as a true friend, A true friend is the best thing to have in the world, Proud of you my friends. 🥰
CUPA Working Group @CUPAethics
140 Followers 136 Following We advance research, policy, and education regarding the ethical issues surrounding access to investigational medical products.
Mateshesl @mateshesl72672
7 Followers 2K Following
Kendra @tanesha1508
121 Followers 4K Following See the world on the road, and get to know yourself on the way!
Elaine @MLethe35
329 Followers 5K Following See the world on the road, and get to know yourself on the way!
BLOC:Biopharma Leader.. @BLOC_US
256 Followers 389 Following A community of leaders united to advance the success and access of under-represented people of color in the life sciences industry.
King @Shasoa129766
418 Followers 5K Following See the world on the road, and get to know yourself on the way!
RandallHartstein @RHartstein16506
123 Followers 2K Following
Moshe Abramovitch @moriah_moshe
78 Followers 2K Following Dedicated team player with a heart for business strategy. Striving for growth, value creation and data-driven solutions in the tech space. Always learning.
Quinby @Sheete110445
329 Followers 5K Following See the world on the road, and get to know yourself on the way!
teens get cancer too @trials4now
11K Followers 4K Following Information and research advances posted by nurses & young adults to help families when a child or young adult has cancer #AYA #sarcoma #leukemia #ClinicalTrial
Halimat Olaniyan, M.D.. @halimattakeson
1K Followers 470 Following PGY1 @IUPathology | Founder & CEO of @chasingmedicine | Author |#sicklecellwarrior breaking barriers & ending silences. Views are my own.
Charlotte Brierley @CKBrierley
383 Followers 548 Following Wellcome Trust Clinical Research Fellow in Haematology @MRC_WIMM, Oxford and @Papaemmanuillab @sloan_kettering, NYC. Interested in all things myeloid.
Apollo Advisors @AdvisorsApollo
575 Followers 3K Following Helping leaders discover, grow and scale their products #innovation #entrepreneurship #productdevelopment
Hattie @hattie8walker
182 Followers 3K Following
Anisa Abdulrahman @DrAnisaTalks
703 Followers 616 Following Founder of House Service App 🏡 @houseserviceapp. Doctor 🏥 Medical Oncologist @NHS UK ❤️ AI | ❤️ @UKIP | Pharmacovigilance | pharmacoepidemiology
Antonio Reid @AntonioRei61994
84 Followers 3K Following
Hamayle Saeed @hamyeloma
2K Followers 952 Following Research Fellow @JoslinDiabetes @HarvardMed | Aspiring internist #Match2025 | Interested in hypoglycemia and metabolism #WomenInMedicine
Debra @tonydebra79
513 Followers 3K Following
R.J. Lewis @rlewis
1K Followers 2K Following Internet entrepreneur, investor, Dad - founded 1st vertical health ad network. Co-founded 1st ad discrepancy tool. Co-founder largest native health network.
Rachel King @RachelKingBio
163 Followers 115 Following Mother. Grandma. Wife. CEO @iambiotech. Aspiring Chef. Part Time Foodie. Lets go duke!🏀 #IamBIO
Anne Kim @HelloAnneKim
462 Followers 1K Following @MIT @MIT_CSAIL @MediaLab CS & Bio. Currently CEO at @arrayinsights (@secureAILabs). hacker in #cyberBiosecurity. Header by the talented https://t.co/HxCetYEFAZ
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
Mary P. Pettigrew @pettigrew66
6K Followers 7K Following #Writer & #PatientAdvocate living w/#ChronicIllness (MS, IBS, Anxiety, etc.) #Healthevoices #HealthUnion #SocialHealthNetwork #MSFocus #Lyfebulb
Raynaud's Assn. @raynaudsorg
4K Followers 595 Following The Raynaud's Association is a national non-profit organization providing support and education to the millions of sufferers of Raynaud's Phenomenon.
Lauren @lauren_dunkley_
255 Followers 3K Following
Whayshyn @whayshyn73851
32 Followers 100 Following
Doctor Podcasts @DoctorPodcasts
2K Followers 4K Following Reliable, collective knowledge and wisdom from physicians, scientists and healthcare experts. Not medical advice. Created and hosted by Robert Cykiert, M.D.
Hazel @hazel_wilson_
214 Followers 3K Following
Cathy @cathy_golden98
171 Followers 3K Following
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
Luke Rosen @lukebrosen
2K Followers 432 Following Dad of 2 amazing kids. Founder of https://t.co/M8dxuYqmgL. Works with families affected by rare neurological diseases and cancer. Baseball and hockey. Firefighter.
Taylor Kane @rarelikeher
3K Followers 1K Following Patient engagement consultant, #raredisease advocate, author, speaker, founder @remember_girls, and more!
Marni Cartelli @Purrfectly_Rare
3K Followers 2K Following Rare Disease Patient, mom, & advocate. Danny's Dose Alliance Board Member. Know who you are & live a way you can be proud of.
Stephanie Fischer @RarePOV
7K Followers 6K Following #Raredisease patient advocate & #stroke survivor.🦓 Member of @PARareDisease. Opinions are my own.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Ethan Perlstein @eperlste
17K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, solo vc @AngelList, evo pharmacologist, mTOR worshipper, HODLer since '14, cofounder of Kai & Luca, bio/acc
Mark Lewis @marklewismd
88K Followers 39K Following Director, GI Oncology, @Intermountain. Interests: neuroendocrine tumors, cancer syndromes, empathy (even had a Whipple myself). Tweets my own.
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
David Fajgenbaum, MD @DavidFajgenbaum
11K Followers 3K Following @Penn physician-scientist-patient who 'cured thyself' | Advancing @CureCastleman + @EveryCure | National Bestseller #ChasingMyCure https://t.co/26OS13etrF
Neena Nizar @NeenaNizar
2K Followers 2K Following Founder & Executive Director of The Jansen's Foundation. KOL,TEDx Speaker, Educator, Change Leader, https://t.co/Ty1g3WHftT Opinions are my own
EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
Enlightening Results .. @GraceCordovano
9K Followers 7K Following #Cancer #PatientAdvocate | Healthcare Navigating Solutionist | De-Frictionizer | ⬇️ Patient Administrative Burden | #Techquity | co-founder @UnblockHealth
Adam Johnson - DadVoc.. @RareDiseaseDad
1K Followers 1K Following Dad w/#RareDisease | #Mito Advocate |🎙Host: #ParentsAsRare | Educator | Support | Kindness | Dad Jokes |#MentalHealthMatters | #BoiseState | ⚾️ @Cubs 🏈@49ers
Dr. Tracy Dixon-Salaz.. @TracyDixonSalaz
3K Followers 974 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Eric Topol @EricTopol
694K Followers 589 Following physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Dr. Kimryn Rathmell @NCIDirector
29K Followers 1K Following Official account of W. Kimryn Rathmell, MD, PhD (she/her/hers), Director of @theNCI. Follows & retweets are not endorsements. Privacy: https://t.co/AxsApipSxJ
Shematologist, MD @acweyand
84K Followers 6K Following Peds hematologist oncologist,mother, dreamer, pacifist, justice seeker.Clueless Mother https://t.co/HblMm3s8OM Cream Influencer #CakeForBreakfast https://t.co/4SLDqCFsMq
Michele Goodwin @michelebgoodwin
18K Followers 308 Following Law Professor, Author, Advocate. Host, On the Issues with Michele Goodwin @MsMagazine @GeorgetownLaw @oneillinstitute
Jeffrey Davis @JeffreyLDavis44
1K Followers 4K Following Health Policy Director @mcdermottplus. Husband, father of two, Duke basketball super fan. Opinions are my own.
Chef José Andrés �.. @chefjoseandres
1.2M Followers 2K Following We all are Citizens of the World. What's good for you, must be good for all. If you are lost, share a plate of food with a stranger...you will find who you are.
Muscle Movement Found.. @CureNMD
2K Followers 0 Following 💪Delaware’s leading organization in the fight against neuromuscular disease. #MuscleMovementFoundation #EndMuscleDisease
Ashley Eakin @asheakin
2K Followers 1K Following Disabled Director and Writer Reps:UTA/ArtistsFirst Forgive Us Our Trespasses -Netflix | SINGLE | Roommates | GrowingUp - Disney+ | BestFootForward -Apple TV+
Zai Lab @ZaiLab_Global
412 Followers 224 Following Zai Lab is an innovative biopharmaceutical company based in China and the U.S., focused on delivering transformational outcomes to patients around the world.
Medscape @Medscape
258K Followers 37K Following Medscape provides breaking medical news and expert perspectives, drug and disease information, and free CME across 30+ medical specialties.
GBS|CIDP Foundation @gbscidp
2K Followers 1K Following To support those affected by GBS|CIDP & variants so each patient obtains an early diagnosis, proper treatment &the opportunity for a full recovery #raredisease
argenx @argenxglobal
970 Followers 186 Following argenx is a global immunology company translating immunology breakthroughs into a world-class portfolio of novel antibody-based medicines.
Sarah Marion @sarahwmarion
155 Followers 175 Following she/her brown 2019 | uva med 2024 | soon @pennmedicine IM res narrative med, health equity, long walks w/ latte in-hand
Dagne Dover @DagneDover
4K Followers 364 Following Bags designed for humans getting the most out of life. ✨⚡️ Goodbye chaos, #HelloDagne
Bombas @BOMBAS
19K Followers 3K Following We make comfortable essentials, because your first layer should be your softest layer. One purchased = one donated.
Christina Martin @cymartin518
678 Followers 705 Following Pharmacist. Certified Association Executive. Hot yoga instructor. Homebrewer. Dog Mom 🐾🐾
teens get cancer too @trials4now
11K Followers 4K Following Information and research advances posted by nurses & young adults to help families when a child or young adult has cancer #AYA #sarcoma #leukemia #ClinicalTrial
Halimat Olaniyan, M.D.. @halimattakeson
1K Followers 470 Following PGY1 @IUPathology | Founder & CEO of @chasingmedicine | Author |#sicklecellwarrior breaking barriers & ending silences. Views are my own.
Katy Rezvani, M.D., P.. @lab_rezvani
4K Followers 519 Following PI of the Rezvani lab. Researching NK cells' role in mediating protection against cancer and strategies to enhance their killing function. Views are my own.
Charlotte Brierley @CKBrierley
383 Followers 548 Following Wellcome Trust Clinical Research Fellow in Haematology @MRC_WIMM, Oxford and @Papaemmanuillab @sloan_kettering, NYC. Interested in all things myeloid.
The Leukemia & Lympho.. @LLSusa
41K Followers 2K Following United in progress toward a world without blood cancer. https://t.co/iUaB1KzuMq
Gurbakhash Kaur @GKaurMD
1K Followers 1K Following Multiple Myeloma Specialist at UTSW Harold C. Simmons Comprehensive Cancer Center | Montefiore & Tufts Alum
Emma M. Groarke @emmamgroarke
2K Followers 971 Following 🇮🇪🧛🏻♀️Haematologist @nih_nhlbi l via @ucdmedicine @trinitymed1 l Lover of 🚀🐷🖖🍷l #SAA #IBMFS #telomeres #CHIP #MDS #AML #HSCT #VEXAS l Comments mine.
Saad Z. Usmani MD MBA.. @szusmani
11K Followers 614 Following Chief of Myeloma @MSKCancerCenter | Chair @ALLIANCE_org #mmsm Com | MD ≠ Provider| @ASH_hematology @ASTCT @ASCO |married to @ZainabShd | #BMTsm #CARTsm #CureMM
Ayesha Butt, MD @AyeshaButtMD
3K Followers 3K Following Resident Physician @YaleIMed⬅️Postdoctoral Research Associate, Hematology @YaleCancer @YaleMed ⬅️MD @AKUglobal | #MedTwitter #ASH #ASCO|Views my own
CTTI @CTTI_Trials
3K Followers 610 Following Mission: Develop & drive adoption of practices that increase quality/efficiency of #ClinicalTrials. Follows/RTs ≠ endorsements #InnovationThroughCollaboration
Blood Journal @BloodJournal
51K Followers 161 Following Blood, the flagship journal of @ASH_Hematology, is the most cited peer-reviewed publication in the field of hematology, available weekly in print and online.
MDS Foundation @MDSFoundation
3K Followers 2K Following The MDS Foundation is building critical awareness of Myelodysplastic Syndromes (MDS), a rare, often undetected blood cancer. 🔬🩸
Anisa Abdulrahman @DrAnisaTalks
703 Followers 616 Following Founder of House Service App 🏡 @houseserviceapp. Doctor 🏥 Medical Oncologist @NHS UK ❤️ AI | ❤️ @UKIP | Pharmacovigilance | pharmacoepidemiology
Rajaie Batniji @RBatniji
4K Followers 582 Following doctor and political economist trying to make healthcare better. husband to @halaborno. co-founder and CEO @Waymark_care. co-founder @Collective. views my own.
IamCervivor @IamCervivor
3K Followers 2K Following Educating the world about Cervical Cancer. Follow us: Instagram @iamcervivor & https://t.co/SFJjx45ZYQ
Hamayle Saeed @hamyeloma
2K Followers 952 Following Research Fellow @JoslinDiabetes @HarvardMed | Aspiring internist #Match2025 | Interested in hypoglycemia and metabolism #WomenInMedicine
Alexandra Finch @avgfinch
109 Followers 306 Following An Australian in New York. Associate @oneillinstitute. Adjunct Professor @georgetownlaw. Ex @UN_OVRA. Health / law / human rights.
Fogarty at NIH @Fogarty_NIH
17K Followers 2K Following Official: Fogarty International Center at @NIH. Supports #GlobalHealth #Research & training. Privacy https://t.co/hingbawJ49. Engagement ≠ endorsement.
Aaron Mitchell @TheWonkologist
4K Followers 763 Following Medical oncologist and health services resrcher @MSKcancercenter. Oncology reimbursement reform, physician-industry COI. Views mine. @thewonkologist.bsky.social
hpvandme.org @hpvandmeorg
573 Followers 112 Following https://t.co/AgjbJLtpbM In 2015, HPV-related oropharyngeal cancer cases surpassed cervical cancer in the US. (CDC) Prevention. Education. Support.
Myasthenia Gravis New.. @MyastheniaGNews
290 Followers 1 Following We exist to bring you science, research and clinical news about Myasthenia Gravis. We are a free digital publication dedicated to the patient community.
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
American Cancer Socie.. @ACSCAN
21K Followers 3K Following ACS CAN advocates for evidence-based public policies to reduce the cancer burden for everyone. Nonpartisan advocacy affiliate of @AmericanCancer.
Rachel King @RachelKingBio
163 Followers 115 Following Mother. Grandma. Wife. CEO @iambiotech. Aspiring Chef. Part Time Foodie. Lets go duke!🏀 #IamBIO
Katalin Kariko @kkariko
70K Followers 262 Following I am a scientist, working on the therapeutic use of in vitro transcribed mRNA.
Marianne De Backer, M.. @MDDBacker
749 Followers 694 Following Passionate about making a difference for patients.
Dr Winnie Mpanju-Shum.. @WinnieMpanju
237 Followers 153 Following Former Assistant Director-General (UN Assistant Secretary General) HIV/AIDS, Tuberculosis, Malaria, Neglected Tropical Diseases, World Health Organization
Lawrence Gostin @LawrenceGostin
20K Followers 801 Following Director @ONeillInstitute; O'Neill Chair in Global Health Law @GeorgetownLaw; Director @WHO Center on Global Health Law; Global Editor @JAMA_current; @theNASEM
O'Neill Institute @oneillinstitute
7K Followers 1K Following The official Twitter page of the O'Neill Institute. Innovative legal and policy solutions to the world's most pressing health concerns. Based @GeorgetownLaw
deepa purushothaman @DeepaPuru
2K Followers 725 Following Author, Speaker & Founder the re.write. Debut book, “The First, The Few, The Only” available now ⬇️
Najmieh Batmanglij @najmieh
1K Followers 33 Following cookbook author, teacher, and chef. https://t.co/dLShR0d3RH
Nastaran Zahir, PhD @nas_zahir
602 Followers 454 Following She/her/hers. Branch Director, Cancer Training Branch, Center for Cancer Training, NCI. Posts/views are my own.
michaeljfox.org @MichaelJFoxOrg
101K Followers 2K Following The Michael J. Fox Foundation is dedicated to finding better treatments and, ultimately, a cure for Parkinson’s disease. Social Info: https://t.co/jN2BqHCali
Investors.com @IBDinvestors
347K Followers 598 Following Investor's Business Daily is guiding investors of all experience levels through the stock market using time-tested strategies and actionable insights.
JMU @JMU
67K Followers 393 Following Official Twitter account for James Madison University. #GoDukes
Improving scientific rigor and patient outcomes depends on where we are and how to improve where we are going #clinicaltrials #DEI #diveristyinclinicaltrials @NCIResearchCtr #HouseofHope @chfloudas
NEW FINDINGS: Diversity in #ClinicalTrials is critical for understanding how well a treatment may work in different populations. A new study done by CCR researchers describes representation based on sex, age and ethnicity in clinical trials done at CCR. @theNCI, @IRPatNIH
Happy birthday to my favorite human who never got the chance to grow old. ti amo fratello
Really going to miss @swaggsheila1 linkedin.com/feed/update/ur… #BCSM She was a super star.
Effie turned the darkest hours of her life into a beacon of light for other rare families like hers, which she does through the power of storytelling via her popular podcast, Once Upon a Gene. bit.ly/OnceUponAGene #WomenInRare #CTNBB1 #OnceUponAGene #Podcast @OnceUponAGene
On the morning of his 95th birthday, Joe woke up at exactly 6AM. This small irony never failed to irritate him: he had never been a morning person, but the more the years passed, the earlier he woke. “Well, this is it!” He said, to no one, as he swung his legs out of bed. 1/
There was no response. The doc frowned, and felt for a pulse. “Well I’ll be… he actually did it.” And the doc sat a few moments longer, saying a prayer in his mother tongue. Joe opened a door, and beamed to see Sally, and so many people he loved. And he stepped through.
Why do I share my story? Because we have to leave it better than we found it. Help raise awareness with me. L #Epilepsy #IntellectualDisabilities #Autism #LennoxGastautSyndrome Thank you @TODAYshow @LGS_Foundation @ucb_news
Tracy Dixon-Salazar hoped studying science would help her understand research about her daughter's condition. She had no idea she'd find a treatment option. today.com/health/disease…
Co-creation is key to our work to support the rare disease community. CEO Tim Van Hauwermeiren shares how relationships with disease biology experts and patients drive this work. Learn more about how we deliver immunology solutions to the patient community. #TogetherWeDiscover
Humbled and honored to receive a National Award at #IM2024 @ACP2024. Deep gratitude to the amazing leaders, team and colleagues I have the privilege to work with.
This week we lost @swaggsheila1, a fierce advocate for the entire metastatic community. To know her was to love her: her smile lit up the room, and her positivity was felt throughout. Sheila was a GRASP mentor since our first in-person at SABCS2019, and her loss is felt deeply.
❗️More worrisome data on microplastics (MP). People w/ inflammatory bowel disease (IBD) had more MP in stool than healthy ppl, & higher MP concentrations were assoc w/ more severe IBD. (IBD is also a risk factor for #coloncancer 💡) #MedTwitter #crcsm pubs.acs.org/doi/10.1021/ac…
Had a wonderful rejuvenating and recharging @ACP2024 meeting, a particularly memorable moment to thank @RWalensky for her valuable service, contributions and accomplishments #IM2024 @ACPIMPhysicians #IMProud
You all are amazing! Thank you! Tomorrow is the day!!! Savannah’s Walk ‘n’ Wheel for LGS Research @LGS_Foundation lgsfoundation.salsalabs.org/2024walkforlgs…
Rest in power @swaggsheila1 ❤️ You leave a legacy of change that we will continue to build upon. Thank you 🙏
Check out the newest edition of @RareRevolutionM featuring some incredible Women in RARE. Thank you for including me alongside so many badasses. #RareDisease #CTNNB1 rarerevolutionmagazine.com/previous-editi…
Rare Disease Day at NIH 2024 may have passed, but our commitment to the community continues! Read an @NIHRecord story about the inspiring journeys of #RareDiseases patients & caregivers, scientific discoveries, impactful community programs & more: go.nih.gov/GWW2ee1 #RDDNIH
We loved seeing all 3,000 of you who joined us on the Lawn to witness this afternoon's solar eclipse. 🌙
Longer Tables……this shows you, there is still hope……
An Israeli Jewish family offering dates to Palestinian Muslim worshippers outside Damascus Gate in Jerusalem during an evening in Ramadan. A small yet profoundly meaningful gesture in a time dominated by hatred, dehumanization, and calls for revenge from both sides.
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