SynGAP Research Fund (SRF) @cureSYNGAP1
#SYNGAP1 🧬 = 🧠NDD DEE causing #Epilepsy #Autism #ID #Sleep #GI. Incidence = 6️⃣.1️⃣/💯k ICD10 https://t.co/4UJNF5bKTl https://t.co/pjCrzqlbV7 🎙 cureSYNGAP1.org USA-UK-Europe-Latin America Joined December 2018-
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A child with #LGS had >300 seizures/mo - Mom gets her PhD to help and she found a treatment! Read on Today.com (loom.ly/BAUML-w) and @people (loom.ly/2Ae9aqY). #LGS #SYNGAP1 #Advocacy @TracyDixonSalaz @LGS_Foundation @TODAYshow
Drug repurposing works. Going from an avg of 5 seizures a day to no seizures bc of a drug we found in flies is AMAZING. The power of our partnerships with foundations AND families.
Drug repurposing works. Going from an avg of 5 seizures a day to no seizures bc of a drug we found in flies is AMAZING. The power of our partnerships with foundations AND families.
Drug Repurposing is coming for #SYNGAP1! In our very first Drug Repurpose update, we look at N-acetyl-L-leucine (NALL). Syngap.Fund/NALL24 @ClementYChow
Listen to the latest #SYNGAP10 episode with @JMGraglia! What is #SynGAPResearchFund doing to help SYNGAP1 families this week? Subscribe to the #podcast at Syngap.fund/10 podbean.com/eas/pb-mi5b5-1… #SYNGAP1
Es un honor ser parte de este grupo de increíbles panelistas en una conversación necesaria y urgente sobre la importancia de colaborar y conectar con comunidades minoritarias dentro del marco de las enfermedades raras. @OrphanConf @cureSYNGAP1 @dvrequesens
Estamos felices de anunciar que @JMGraglia será parte del programa @fastercures. Desde el principio hemos visto la necesidad de involucrar a las minorías en @cureSYNGAP1 y estamos agradecidos por la oportunidad de compartir nuestras experiencias y aprender de otros en el campo.
Estamos felices de anunciar que @JMGraglia será parte del programa @fastercures. Desde el principio hemos visto la necesidad de involucrar a las minorías en @cureSYNGAP1 y estamos agradecidos por la oportunidad de compartir nuestras experiencias y aprender de otros en el campo.
Time's running short! Please take 10-15 min. before the end of April to complete this survey for families living with rare epilepsy! Your participation makes a difference! Syngap.Fund/QOL24 #SYNGAP1 #Epilepsy #RareDisease 💙💜💚 Thank you @ucb_news!
Excited to join this phenomenal program & be mentored by remarkable #patientadvocacy executives. Thank you @fastercures/@MilkenInstitute for this opportunity to learn and become a more effective leader for the @cureSYNGAP1 (SRF) & board member of @combined_brain. #SYNGAP1
Excited to join this phenomenal program & be mentored by remarkable #patientadvocacy executives. Thank you @fastercures/@MilkenInstitute for this opportunity to learn and become a more effective leader for the @cureSYNGAP1 (SRF) & board member of @combined_brain. #SYNGAP1
I'm doing this with @DavidDavisMP! If you have some pennies you can spare to help with #SYNGAP1 research @PWCentre, we'd be so grateful. Help us understand and lessen the effects of this rare genetic condition. gofundme.com/f/syngap1resea… @SarahSc16211066
I'm doing this with @DavidDavisMP! If you have some pennies you can spare to help with #SYNGAP1 research @PWCentre, we'd be so grateful. Help us understand and lessen the effects of this rare genetic condition. gofundme.com/f/syngap1resea… @SarahSc16211066
In case you missed the premiere, #ConnectionIsEverything is on #YouTube! YouTube.com/cureSYNGAP1 Details - Syngap.Fund/Jaxon #SYNGAP1
Less than a week to go before we #SprintForSyngap! Create your team ... Donate ... Help us find a cure! #EveryDollarMatters #SYNGAP1 #SprintForOurKids #EveryStepCounts Syngap.Fund/Sprint24
¡Nuevo episodio de podcast! Episodio 14 - Diana Ramirez y Su Hija Luhana Desde Perú Syngap.Fund/Cafe #SYNGAP1 #CafeSYNGAP1 @VickyAArteaga
WE'RE SO EXCITED!!! Sprint is one week away, but there's still time to create your team. Remember, every dollar makes a difference, so sign up today and join the fun! #SprintForSyngap! #SYNGAP1 #SprintForOurKids #EveryStepCounts Syngap.Fund/Sprint24
Let's all #Scramble4Syngap! Register, donate, or sponsor at Syngap.Fund/Scramble. #SYNGAP1 #CureSyngap #Golf #GreerGolf
#WarriorWednesday SYNGAP1 Kaia (3 years old) from Fairfield, CA“Her laughter and smile and ability to connect gives us life.” Read her story & see more photos at curesyngap1.org/syngap-warrior… #SRFWW no.202 #SYNGAP #epilepsyawareness #autismawareness #rarediseaseresearch #CareAboutRare
Accept differences in all of us! #Autism #SYNGAP1 #Acceptance curesyngap1.org
SRF and the #SYNGAP1 community is lucky to have Dr. McKee working on our disease at @ChildrensPhila with the #ENDD team. This is a complicated disease and we need world class clinicians to help us take cover of these patients. She fits the bill!
SRF and the #SYNGAP1 community is lucky to have Dr. McKee working on our disease at @ChildrensPhila with the #ENDD team. This is a complicated disease and we need world class clinicians to help us take cover of these patients. She fits the bill!
We have 26 teams registered for #SprintForSyngap - there's always room for more! Create your team today! Support with your donation - it's not too early! #EveryDollarMatters #SYNGAP1 #SprintForOurKids #EveryStepCounts Syngap.Fund/Sprint24
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
American Epilepsy Soc.. @AmEpilepsySoc
14K Followers 721 Following Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RTs ≠ endorsements.
Dennis Lal @LalDennis
3K Followers 329 Following Director of the Center for Neurogenetics; Associate Professor at UTH - Neurogenetics & Informatics - My opinions are my own & do not reflect my employer.
Ingo Helbig @IngoHelbig
3K Followers 349 Following Child Neurologist, epilepsy genetics researcher, blogger
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Mike Graglia 🌻 @JMGraglia
7K Followers 3K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others.
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Prof Ingrid Scheffer @ingridscheffer
3K Followers 656 Following Laureate Professor of Paediatric Neurology at @unimelb, @theflorey, @austin_health, @RCHMelbourne. Research epilepsy, classn, genetics, speech & mentorship
Brett @ UFD Tech @UFDTech
30K Followers 81 Following Some dude on the internet looking to @curesyngap1 for his son. Raising money & caffeine levels with @rarebrewcoffee
Dr. Heather Mefford @hcmefford
3K Followers 948 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
FamilieSCN2A @FamilieSCN2A
2K Followers 1K Following Our vision is to find effective treatments and a cure for SCN2A disorders.
Ethan Perlstein @eperlste
17K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, solo vc @AngelList, evo pharmacologist, mTOR worshipper, HODLer since '14, cofounder of Kai & Luca, bio/acc
BarabanLab @BarabanLab
3K Followers 3K Following Translational epilepsy research in an academic setting | neuroscience, drug discovery, zebrafish, electrophysiology, cell therapy, precision medicine and more
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
AGE Program - Adult G.. @DrDaniAndrade
2K Followers 714 Following Professor of Neurology @UofT. Director, #AdultGeneticEpilepsy Program @UHN. Chair of @IlaeWeb #TransitionTaskForce #EpilepsyGenetics #neurotwitter
Peter Halliburton @phalliburton
3K Followers 2K Following Raising $$ for #SYNGAP1 gene therapy 🧬 // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @lindsayhalli 💜 // @cyberark Channel
Dr. Tracy Dixon-Salaz.. @TracyDixonSalaz
3K Followers 975 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
Stoke Therapeutics @StokeTx
1K Followers 175 Following Stoke Therapeutics is addressing the underlying cause of severe diseases by upregulating protein expression with RNA-based medicines.
Faraidoon Haghdoost (.. @faradoost
2K Followers 2K Following MD, PhD, Research Fellow in Headache disorders, @georgeinstitute, conjoint lecturer @unsw, Sydney, Australia. Social Media Editor @JCephalalgia, #BigHeadPain
Elaine @ElaineOL24
6 Followers 91 Following Neuroscientist | Neuroimmunology | Epilepsy Research | Irish Mammy | Sea Swim and Tea | Views are my own
Esteban M Lucero, PhD @EstebanMLucero
333 Followers 316 Following Chicano, geneticist, former 11B | F99/K00 DSPANscholar | @nmsu alum | PhD @CUAnschutz | genetics of AD in Latinos
Unidad de Epilepsia d.. @EpilepsiaMalaga
732 Followers 329 Following Unidad Multidisciplinar de Epilepsia del Hospital Regional de Málaga.
Zohaib Hassan, PhD @drzohaibh
881 Followers 6K Following Postdoctoral Researcher at @ZhejiangLab Hangzhou
Dr. Maggie VP @MaggieVantan
358 Followers 1K Following #Highcontentanalysis aficionado. VP of Sales and Marketing @springdiscovery. Toxicologist. Microscopist at heart. Views are my own!
dr. christine liu ✨.. @christineliuart
24K Followers 3K Following 🧠 postdoc @ UCSF studying psilocybin 🎨 artist @twophotonart ⚗ let's make science accessible she/her
AnahA @AnahitaAvalos
25 Followers 220 Following
Dr. Anzer khan @dFlyScientist
441 Followers 2K Following Genetics Team Lead at Future Fields. Former PostDoc with @BrunoLemaitre. Alumni @MasarykUni @SouthAsianUni @UnivofDelhi.
Tammie Barnhart @Sillybugs81
10 Followers 44 Following
AnjeeDavis @AnjeeDavis
2K Followers 1K Following President of @FightCRC. Passionate about community engagement, patient empowerment, and social good. #crcadvocacy #CancerSurvivor 💪🏽 #RelentlessChampions
Md.Nazmul Alam Evan @gamingzone2022
3 Followers 5K Following
William Fostier @WFostier
365 Followers 313 Following @univmiami @Newcastlemedsch alum. @NewcastleHosps @uniofnewcastle Incoming NIHR ACF in dermatology.
badtro @btis
62 Followers 671 Following
Sumac Imilla @sumacimilla87
136 Followers 983 Following
Lindsay @MariaMille14735
1 Followers 843 Following
Steven L @StevenLaine1977
131 Followers 442 Following Father of two boys on the autism spectrum, runner and blogger.
4ger Edward shimikilo @AShimikilo
6 Followers 73 Following
Jarkko Koivunen @jarkko_koivunen
382 Followers 828 Following Research Manager at @InFLAMES_Health @uniturku. Entrepreneur. Docent of matrix biology. Passionate about food and cooking.
Ramiro Maldonado @RamMaldonado32
1K Followers 2K Following @Dukeeyecenter Retina specialist. Ophthalmic Geneticist. Clinician-Scientist. #ophthalmicgenetics #genetherapy #electrophysiology #translationalresearch
Carlos Vindel-Zuñiga @cvindelz96
339 Followers 769 Following IMG from 🇪🇨 A&O: Time, Space, Event, still finding out persona.
K McC @pellmellkell
219 Followers 618 Following Scientist, #n2genes #mitochondria #epidemiology “Manila or Memphis”
Anshum Patel @patelanshum
284 Followers 2K Following Cortex comedy and Cerebellum charm🧠 Research Trainee #Match2025 #Halamadrid #LH
Manchester Rare Condi.. @mft_iMRare
601 Followers 234 Following Official Manchester Rare Conditions Centre account. Improving lives of people with rare conditions
Narinder Singh @Narinde204
27 Followers 771 Following
DJ GiMiK @dj_gimik
1K Followers 3K Following He/Him. I'm Just Me a Gamer DJ . The Best Part Of Me Is My Better Half 😘. Music Is My Therapy .💙🎶🐾🎵💙🎧 https://t.co/X2zCHVtDRJ
Force Promo Agency @ForcePromotion
226K Followers 147K Following 📈 Building Artist Careers & Monetizing Fan Bases 💎 Marketing Contracts With Universal Music Group & Atlantic Records Since 2012 📩[email protected]
FOXP1 Intl @Foxp1I
125 Followers 96 Following We are a global group of parent volunteers working to empower families and individuals with FOXP1 syndrome to live full and enriched lives. A registered charity
Save the Planet Group.. @Grimnien
98K Followers 88K Following Developer https://t.co/lNF2lPBBkf free speech livestream. On an artistic journey of inspiring imagination. I only write what comes to mind. Truth? You decide.
Yosuke Niibori PhD @YosukeNRepair
9 Followers 111 Following 🔬 Scientist & Co-founder of Re:Pair Genomics in Toronto. Develop gene therapy products for 8 years. Raised 20k. Bring hope and change the world🌍
KittyHoover @P3MaCG2FyOl6PN6
34 Followers 902 Following
Sumi @skhider
1K Followers 2K Following Little soul on a Journey to find the Light..to the Children of the Sky.. #sufi #INTJ
Novak @IvanovaIri
79 Followers 126 Following
AKHTER AFRIDI @AKHTERAfridi01
5K Followers 7K Following #HUMANITY //Changing lives, one donation at a time.// //Helping hands, happy hearts.//
Xavi @xavidal007
323 Followers 864 Following Infermer EESTO salut mental. Soci cofundador d'@ecoinfermeria, per uns centres de salut més sostenibles. Intervenció en tabaquisme
JR Associates @jrreimbursement
2K Followers 5K Following Experts in #medtech #reimbursement. Coverage + coding + payment strategies for innovative #medical #devices + #pharma products. President Judy Rosenbloom, FASE
Javeria Tehreem @JaveriaTehreem
4K Followers 5K Following Biotechnologist - Content Writer - Jobs Info - Scholarships Updates
Becky John @trump_ivan76785
12 Followers 821 Following The second-born child of Donald Trump, the 45th president of the United States and his first wife .
Qi Shu @QiShu153659
0 Followers 6 Following
Jenn Cremins @CreminsLab
4K Followers 2K Following Laboratory for chromatin and spatial neurobiology. Understanding how synapses and the nucleus communicate in the developing and diseased mammalian brain.
cbxp4cwnndbv25w4 @2g1t2g9mcj3
3 Followers 370 Following You are now invited to join a (cryptocurrency) discussion group created by an international team of financial analysts. ws link:https://t.co/NJD3hHQvbf
Courteney Westlake @CourteneyMW
496 Followers 1K Following PhD Candidate @ Otago studying synaptic plasticity mechanisms and the grooviest little protein sAPPα 🧠🔬 (she/her)
NeuroWoodworks @NeuroWoodworks
7K Followers 1K Following Developmental neurobiologist / artist. I sculpt biology in wood.
azzouzi mounir @azzouzimounir9
222 Followers 5K Following
Shanon Bramblette @Shanon0920
707 Followers 5K Following ?She/Her Bisexual & Bi-romantic TBI, DV, & GSW survivor in recovery. Single mom of 3 kids & 2 fur babies. Spoonie ♿️☮️☯️♋️ BLM Keto Low-carb Pro-Love Pro-Equal
The Notorious EEG (M... @TheNotoriousEEG
10K Followers 2K Following Epileptologist/Head of Neurosciences @cookchildrens, I 💜 #HailState, buffalo wings, art, music & foremost Becky & my daughters. Views are mine, not my employer
Effie Parks @OnceUponAGene
5K Followers 3K Following Nuclear Advocate | Award Winning Podcaster | Speaker | Captain Connection | #RareDisease #RareMama to my sweet, Ford, who lives with #CTNNB1 🦓
American Epilepsy Soc.. @AmEpilepsySoc
14K Followers 721 Following Official account for American Epilepsy Society. We support research + education for professionals working towards a world without epilepsy. RTs ≠ endorsements.
Dennis Lal @LalDennis
3K Followers 329 Following Director of the Center for Neurogenetics; Associate Professor at UTH - Neurogenetics & Informatics - My opinions are my own & do not reflect my employer.
Brain Ablaze @BrainAblaze
9K Followers 7K Following As people with Epilepsy, we raise awareness for Epilepsy and support anyone having seizures. | The Brain Ablaze Epilepsy Podcast | Blog | Support
Mike Graglia 🌻 @JMGraglia
7K Followers 3K Following CEO @cureSYNGAP1 🧬 Pod https://t.co/9jkDkMg5R8 🎧 Alum @GonzagaU @peacecorps @pdosoros @SAISHopkins @Columbia_Biz @IFC_org @bcg @gatesfoundation @newamerica
Ana Mingorance @CNSdrughunter
3K Followers 1K Following 🧠 🧬 Neuroscientist. Looking for new medicines for CDKL5, SCN1A, SHANK3, DHPS and a few others.
Torie Robinson 🇺�.. @TorieRobinson10
6K Followers 2K Following @EpilepsySparks Insights Podcast Host & YouTuber 🧠🧬 | International Speaker | #Epilepsy & #MentalHealth Research fiend | @MaudsleyNHS Gvnr | All views my own
Prof Ingrid Scheffer @ingridscheffer
3K Followers 656 Following Laureate Professor of Paediatric Neurology at @unimelb, @theflorey, @austin_health, @RCHMelbourne. Research epilepsy, classn, genetics, speech & mentorship
Brett @ UFD Tech @UFDTech
30K Followers 81 Following Some dude on the internet looking to @curesyngap1 for his son. Raising money & caffeine levels with @rarebrewcoffee
Dr. Heather Mefford @hcmefford
3K Followers 948 Following Physician, scientist, mom, wife #genetics #epilepsy #pediatrics #raredisease @StJude @StJudeResearch formerly @UWMedicine
Ethan Perlstein @eperlste
17K Followers 2K Following ceo @PerlaraPBC (@ycombinator W16), ceo @epalrestat, solo vc @AngelList, evo pharmacologist, mTOR worshipper, HODLer since '14, cofounder of Kai & Luca, bio/acc
BarabanLab @BarabanLab
3K Followers 3K Following Translational epilepsy research in an academic setting | neuroscience, drug discovery, zebrafish, electrophysiology, cell therapy, precision medicine and more
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
AGE Program - Adult G.. @DrDaniAndrade
2K Followers 714 Following Professor of Neurology @UofT. Director, #AdultGeneticEpilepsy Program @UHN. Chair of @IlaeWeb #TransitionTaskForce #EpilepsyGenetics #neurotwitter
Peter Halliburton @phalliburton
3K Followers 2K Following Raising $$ for #SYNGAP1 gene therapy 🧬 // @cureSYNGAP1 501(c)(3) Board // Carter & Presley’s Dad // @lindsayhalli 💜 // @cyberark Channel
Dr. Tracy Dixon-Salaz.. @TracyDixonSalaz
3K Followers 975 Following Mom. Rare Disease & LGS Advocate. Neuroscientist. The largest most neglected healthcare resource, worldwide, is the patient. Executive Director @LGS_Foundation
ILAE @IlaeWeb
11K Followers 628 Following A preeminent association of healthcare professionals & scientists working toward a world where no person's life is limited by epilepsy *RTs are not endorsements
Stoke Therapeutics @StokeTx
1K Followers 175 Following Stoke Therapeutics is addressing the underlying cause of severe diseases by upregulating protein expression with RNA-based medicines.
Stéphane Auvin @stephane_auvin
2K Followers 865 Following Child Neurologist & Epileptologist. Professor at @univ_paris_cite. Dept Chair at @HopRobertDebre. Senior member 2021 @InstUnivFr. Deputy Editor @EpilepsiaJourn
Jennifer E Smith Spre.. @VFS432
133 Followers 709 Following Helping Others,Generosity, Kindness, Compassion, Emotional Support, Making People feel Connected by Listing & Communicating showing true dedication & Kindness
Angie C 🧬 @iAngieTweet
155 Followers 3K Following Here to learn. Interested in transposable elements
Dr. Catherine Whittin.. @cfwhitt
1K Followers 1K Following Assistant Prof @WPI_BME @WPI; Tissue Engineering and In Vitro Disease Modeling Lab. Views are my own. She/Her/Hers. Follows and RT ≠ Endorsements.
Juliette Cook @GooMsJu4_DC4L
1K Followers 3K Following Grandmother of four, #Cowboys fanatic Lover of God and insomniac. Warrior of fibromylagia, and epilepsy! Recent weight loss surgery warrior. HELP!
Sri Harsha Reddy Madi.. @Harsha549
341 Followers 5K Following Lifelong learner, a rational optimist who is playing an Infinite Game. Exploring opportunities to solve interesting problems
Seth Adelman @sethadelman
143 Followers 199 Following Clinical neurologist (retired) • docent in training @metmuseum • amateur classical pianist • permanent student at the University of Life
Emily Behrman @Emily_L_Behrman
674 Followers 438 Following Postdoc in Stern Lab @HHMIjanelia | Assistant Professor @Dartmouth starting July 2024 | Eco*Evo*Neuro*Genetics | also dogs, rowing, baking | she/her
Dr Ramesh @Ramesh8080
779 Followers 5K Following Consultant radiologist ,assistant professor in radiology,special interests in Fetal and MSK imaging..Apollo hospitals Hyderabad
💜AmyDanielle1994�.. @ADanielle1994
267 Followers 664 Following My close family are my support 🫶 Live one day at a time ❤️ Living with Epilepsy. Depression. Panic Disorder. #MentalHealthMatters💚 #EpilepsyAwareness 💜
Dr. Sabrina Green, Ph.. @MotherOfPhage
13K Followers 8K Following #Phage scientist at @KU_Leuven 🇧🇪 | #Science communicator | Advocate for phage therapy for patients
Faraidoon Haghdoost (.. @faradoost
2K Followers 2K Following MD, PhD, Research Fellow in Headache disorders, @georgeinstitute, conjoint lecturer @unsw, Sydney, Australia. Social Media Editor @JCephalalgia, #BigHeadPain
Iain Couzin @icouzin
13K Followers 6K Following Director, Max Planck Institute of Animal Behavior, Konstanz & Center for the Advanced Study of Collective Behavior, University of Konstanz. 🏴
Liberty Hamilton @LibertySays
2K Followers 2K Following Assoc Prof. @UTAustin. I study how the brain processes speech with ECoG, EEG, & computational methods. Opinions my own. Former @UCSF + @UCBerkeleyNeuro. She/Her
Elaine @ElaineOL24
6 Followers 91 Following Neuroscientist | Neuroimmunology | Epilepsy Research | Irish Mammy | Sea Swim and Tea | Views are my own
SrivatsaNagachandan @Srivatsa34
619 Followers 809 Following Intrest in: ecmo,Ultrasound,hemodynamic,mechanical ventilation,human physiology,nutrition#Foamcc #Foamed&iPhone📱iPad Pro addict#artist#autodidact
Syrma Virgo @syrmavir
1K Followers 2K Following Wife, mom of twins, teacher & crazy dog lady. Following authors, writers, musicals & US politics. 👯♀️🐕🐕🐹🐹🐥🐥🐥🐥
Carly k @crk1116
67 Followers 521 Following Babies, politics, comedy. Twitter is my safe place. she/her. Opinions are my own
diana- Alethea @kushicamp
441 Followers 4K Following CEO. I like traveling, shopping, meditation, yoga, adventure, sports and making friends
Katrina Lee @katrinajunelee
3K Followers 1K Following @OSU_Law prof | Director @Moritz_ADR | negotiation, business of law, legal writing | book author | former equity partner in SF | @Cal @Berkeleylaw | Mom of 2
OHSU Brain Institute @OHSUBrain
6K Followers 1K Following The OHSU Brain Institute is among the top institutions in the nation for NIH-funded neuroscience research. #OHSUBrain #OHSUResearch
Kate Buckley @EchinoKate
701 Followers 619 Following Asst Prof @ Auburn U. Invertebrate deuterostome comparative immunologist, evolutionary biologist & bioinformatics guru. That's 'Starfish doctor' to the kids.
DEARhealth @DEARHealthInc
63 Followers 196 Following DEARhealth, provides value-based healthcare solutions that significantly improve outcomes & dramatically reduce costs. #digitalhealth #AI #healthtech
Chandler Tatum @chandlerintexas
50 Followers 247 Following
Dr. Jess Kelliher @10403Jess
602 Followers 896 Following Postdoctoral fellow in the @SauerLab @UWMadisonMMI | alumna x3 of @Illinois_Alma | complemented by 🏃🏻♀️🍺 🎻 | Future PI of @KelliherLab! 🎉
julia @Clairterre
81 Followers 1K Following
Andy Sposato @AndyLSposato
87 Followers 121 Following PhD Candidate, Gagnon Lab @ University of Utah, developmental biologist, she/her 🏳️🌈💖💙💜
Styleguy152 @styleguy152
275 Followers 2K Following Styleguy152. Fashion style and swagger. The modern warrior. Your Wingman [email protected]
Joan Pulupa @JoanPulupa
158 Followers 429 Following Cell Biology Postdoc in @LomvardasLab studying nuclear organization in live olfactory neurons using light microscopy 🔬 Formerly @RockefellerUniv
Paul's Purple Warrior.. @warriors_paul
104 Followers 649 Following #PaulsLaw has created a safe school environment for children with epilepsy by training school personnel, how to respond to seizures. #PaulsPurpleWarriorsNJ
Dagan Segal 💔 @dagan_segal
601 Followers 745 Following I study why cell shape matters in cancer. Currently postdocin' in the Danuser lab @UTSWnews. @WeizmannScience alum, @EMBO fellow, NCI K99 fellow
kavneet kaur @kavnee
209 Followers 326 Following Assistant Professor of Pathology at AIIMS, New Delhi ♥️#Neuropath🔬🧠#Reading📚#Art 🎨🖼
Create the Ripple @CreateTheRipple
35K Followers 23K Following I alone cannot change the world, but I can cast a stone across the waters to create many ripples. Passion for people and positivity.
Tianjiao Ding @RickTDing
134 Followers 222 Following TJ (He/him/his). PhD @CIS_Penn. AI backed up by math. https://t.co/aiWSUTZ5J3
Megh Marathe (they/th.. @marathe_megh
671 Followers 1K Following I study lived experience and expert practice in medicine. STS, ethnography. Asst Prof @MediaInfoMSU & @MSUBioethics. Prev: @UCI_Informatics @umsi @UofT 🏳️🌈
Maire, not the jackas.. @ib1gypsy
2K Followers 4K Following bodyworker👐dogs 🐾rescue dogs🐾tai chi ☯️ qigong ☯️ artist 🖌fed up citizen #Resister 🏳️🌈 ally she/her 🌻 Vaxxed 💉&😷 🚫lists
W42ST @w42st
3K Followers 2K Following Keeping the West Side connected, updated and upbeat with a Hell's Kitchen attitude and New York state of mind! News tips to [email protected]
SmartFocus® TMS @SmartfocusTMS
139 Followers 234 Following #nTMS technology enabling personalized and effective therapies and diagnostics for challenging brain diseases and disorders. Developed by @NexstimOyj
Frank Sloan (he/him) @DrFrankSloan
372 Followers 801 Following Pediatrician, #MedEd med school professor, pedi dermatology detective & LGBTQIA+ champion 🏳️🌈, my opinions are mine alone
Luciana Zorzoli @Luciana_Zorzoli
1K Followers 3K Following Interested in Work, Latin American Politics & History. Migrante. Mum. Associate Professor / Senior Lecturer in Employment Relations @Essex_EBS @Uni_of_Essex
Phyllis Boland @Boland415
167 Followers 1K Following
Ebtehal.. @betyqueen96
95 Followers 2K Following ㅤ من تفائل خير بالدنيا لقآھ لا تقول الحظ في دربي عنيد إنكساراتك من ظروف الحيآھ خلها دآفع ، لـ تحقيق المزيد ') MBBS🌸doctor
Indie-soul explorer @CampariTon1c
201 Followers 240 Following European guy in American biotech #Neuroscience #Biotech #Startups
How can the #RareDisease community, as a whole, work to enhance and amplify diverse voices and diverse patient experiences?
Registration is open! Nonprofit Forum ninds.nih.gov/nonprofit-forum #NINDS @NIH_NINDS @cureSYNGAP1 @combined_brain
A child with #LGS had >300 seizures/mo - Mom gets her PhD to help and she found a treatment! Read on Today.com (loom.ly/BAUML-w) and @people (loom.ly/2Ae9aqY). #LGS #SYNGAP1 #Advocacy @TracyDixonSalaz @LGS_Foundation @TODAYshow
NEW EPISODE! #SYNGAP1 Mom, Samar Katnani, joins Ashley this week to talk about 3yo #Syngapian Reema's relationship with her Jiddo, the importance of sharing your story, AAC devices & more! Syngap.Fund/Stories #SYNGAP1StoriesReema
Drug screen ✅ Positive hit ✅ Patients on drug with positive results ✅ Getting a French over the counter drug approved in the US for #Syngap1 and available for entire community = new⛰️to climb and challenge accepted!
Drug Repurposing is coming for #SYNGAP1! In our very first Drug Repurpose update, we look at N-acetyl-L-leucine (NALL). Syngap.Fund/NALL24 @ClementYChow
Exceptional neurology grand rounds from Dr. Sarah Spence on “autism spectrum disorder -lessons learned over 30 years”
On February 29, the ASF and FAST joined forces with 104 other organizations to send a letter to Senators Michael Bennet (D-CO) and Shelley Moore Capito (R-WV), as well as Representatives Mike Carey (R-OH) and Linda Sánchez (D-CA). Read the letter: buff.ly/3POIlLm
Drug repurposing works. Going from an avg of 5 seizures a day to no seizures bc of a drug we found in flies is AMAZING. The power of our partnerships with foundations AND families.
Drug Repurposing is coming for #SYNGAP1! In our very first Drug Repurpose update, we look at N-acetyl-L-leucine (NALL). Syngap.Fund/NALL24 @ClementYChow
Spent the afternoon in lovely DC advocating for @NIH @NIHFunding on the Hill with @GeneticsSociety. Great experience, esp shared w/ past (Brendan Lee), current (Bruce Gelb) and future (@SarahTishkoff) ASHG presidents!
@cureSYNGAP1 @OneMindOrg Thanks for the fyi!
Biden administration finalized strict limits on “forever chemicals” in drinking water. Utilities must ⬇️ them to lowest level reliably measured. This “will ⬇️ exposure for 100M people & help prevent thousands of illnesses, incl #cancer.” #MedTwitter 👏 apnews.com/article/foreve…
📣 One Mind wants to fund your #MentalHealth research! Applications are open for the 2024 Rising Star Awards ✨ Learn more about our $300K grants supporting early-career #neuroscience & #psychiatry investigators: onemind.org/rising-star-aw…
Tracy Dixon-Salazar hoped studying science would help her understand research about her daughter's condition. She had no idea she'd find a treatment option. today.com/health/disease…
Huge news for anyone working in tech in the US. Noncompetes are now banned: not just in California (like before), but nationwide. Very, very relevant for anyone at Amazon (which is the Big Tech that has enforced noncompetes even for low-level engineering positions).
@fastercures senior advisor Lee Fleisher wrote an op-ed for @statnews focused on ways to give gene therapies to patients who need them and collect data evidence on their effectiveness. Read it here:
Gene therapies represent an evidence problem. Because they are just beginning to be used, little long-term data exists on their effectiveness and downstream risks. trib.al/X6tatgR
@IpsenGroup I hoped you’ve looked at SynGap! @Skyhawk_Tx @cureSYNGAP1 #syngap
"You don't have to apologize for your child ever ... you don't have to expect them to be anything but how amazing they are!" Ep 28 of #Syngap1Stories! Available at Syngap.Fund/Stories or wherever you listen to podcasts. #Syngap1 #Syngap1StoriesHope
Es un honor ser parte de este grupo de increíbles panelistas en una conversación necesaria y urgente sobre la importancia de colaborar y conectar con comunidades minoritarias dentro del marco de las enfermedades raras. @OrphanConf @cureSYNGAP1 @dvrequesens
Estamos felices de anunciar que @JMGraglia será parte del programa @fastercures. Desde el principio hemos visto la necesidad de involucrar a las minorías en @cureSYNGAP1 y estamos agradecidos por la oportunidad de compartir nuestras experiencias y aprender de otros en el campo.
Excited to join this phenomenal program & be mentored by remarkable #patientadvocacy executives. Thank you @fastercures/@MilkenInstitute for this opportunity to learn and become a more effective leader for the @cureSYNGAP1 (SRF) & board member of @combined_brain. #SYNGAP1
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