Search results for #RDDNIH
Rare Disease Day at NIH 2024 may have passed, but our commitment to the community continues! Read an @NIHRecord story about the inspiring journeys of #RareDiseases patients & caregivers, scientific discoveries, impactful community programs & more: go.nih.gov/GWW2ee1 #RDDNIH
During #RDDNIH, James Best, @curejm Advocates Council, thanked NCATS Director Joni Rutter & team for their commitment to #RareDiseases. This proclamation of thanks shows the impact of collaboration between NCATS & the communities we aim to serve. videocast.nih.gov/watch=52569
Thank you to everyone who joined #RareDiseaseDay at @NIH last week to help spread awareness and learn more about #RareDiseases, advancing research, and new treatments. If you missed anything, check out the videocast: videocast.nih.gov/watch=52569 #RDDNIH
Some participants of the recent Rare Disease Day at NIH speak about their participation in this year's event. Since 2011, #NCATS and the @NIHClinicalCntr have sponsored Rare Disease Day at NIH as part of the Rare Disease Day global observance. #RDDNIH
At #RDDNIH, NCATS staff wore stripes to support the #RareDiseases community. NCATS Director Dr. Joni Rutter even spotted a zebra roaming @NIH! If you missed the event or want to revisit the day, you can watch the replay! videocast.nih.gov/watch=52569 #ShowYourStripes #RareDiseaseDay
@PBCFoundation @NIHClinicalCntr @PBCRobert @GlobalLiver @GlobalGenes "Artificial Intelligence (#AI) and it's role in #RareDiseases" was one of my panel discussions topics at @NIHClinicalCntr @ncats_nih_gov #RareDiseaseDay2024 #RDDNIH #showyourstripes @PBCFoundation
The latest issue of The #MyPART Minute - our monthly newsletter on rare tumor news & events - is out now! We share updates from our Natural History Study of Rare Solid Tumors, an upcoming #CCDI community forum, #RDDNIH, and more! Read & subscribe: cancer.gov/pediatric-adul…
During #RareDiseaseWeek2024 our team members Katie Forth, Aneri Suthar, and Raymond Puerini advocated for the urgent need for rare disease research by engaging with members of Congress and attending #RDDNIH
@HealthHats Thank you! Met someone at #RDDNIH who listened to our conversation and bought #RebelHealth bc of it 💛📘🦓
"Thank you to all the speakers, to all our poster presenters, to all our exhibitors & to all the artists. Thank you for all the work you're doing. We're making a ton of progress. Keep up the fantastic work & we'll see you next year." - NCATS Director Joni Rutter, Ph.D. #RDDNIH
I am thinking about life with gratitude and new perspectives and staying hopeful for advances in science and medicine. #RDDNIH @RareDiseases @ncats_nih_gov 3)
@AlexisLeonardMD @NIH Dr. Leonard also discussed the growth of sickle cell disease globally and healthcare costs. #RDDNIH
Did Rare Disease Day at NIH inspire you to spread the word about #RareDiseases research? NCATS Director Joni Rutter recently penned a guest blog post to share helpful tips for doing just that! Check it out: go.nih.gov/UHlB87E #RDDNIH
NCATS Director Joni Rutter, Ph.D., reflects on today’s #RareDiseaseDay at NIH. “It was an incredibly empowering, energizing, thought-provoking day.” #RDDNIH
We’re inspired by the great discussions at @NIH Rare Disease Day! From AI and machine learning to novel gene therapies, the discussions are paving the way for a brighter future. Grateful for our partners in the rare disease community. #RDDNIH #showyourstripes #endnf
Great testimony! #rddnih #RareDisease #RareDiseaseDay2024 #RareDiseaseDay #RareDiseaseAwareness @nih_nhlbi #SCD #sicklecell
Great testimony! #rddnih #RareDisease #RareDiseaseDay2024 #RareDiseaseDay #RareDiseaseAwareness @nih_nhlbi #SCD #sicklecell
Nasir Mason, Patient Perspective Advocate for #SickleCellDisease, shares his experience with the disease and receiving therapy. “It’s been amazing…the quality of my life has gone up so much. I wish more people had my opportunity.” #RDDNIH
We are thrilled that Dr. Hickman of @HesperosInc, an #NCATSsbir award recipient, spoke at the #RDDNIH event today for #RareDiseaseDay. Learn more about their #TissueChip & #RareDiseases research with NCATS: bit.ly/42Hickm