Covid #LongHauler since Feb 2020. Male 45 @2020_c19

Non-hospitalised and no pre-conditions. Slowly improving with the help of meds. London, England Joined July 2020

Tweets

177
Followers

166
Following

907
Likes

1K

Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS

4 years ago

Long Covid SOS is now a registered charity! Today is 2 years since we sent out our SOS and it all began with our #messageinabottle film. Our advocacy for #longcovid is needed now more than ever We are proud to mark this date by launching our new website longcovidsos.org

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Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS

4 years ago

Our Take the Plunge fundraising campaign page is live on @JustGiving making it easy to set up your own event 🛟 Have a dip in the sea, or just your fingers & toes! 🛟 Jump in a puddle! 🛟 Be inventive and most importantly HAVE FUN! #LongCovid justgiving.com/campaign/LongC…

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Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS

4 years ago

To help us launch our charity can you 🛟 Take the Plunge 🛟 for Long Covid SOS? Have a sponsored splash any way you are able so we can continue to send out our SOS and do more to throw a lifeline to people living with #LongCovid longcovidsos.org/post/take-the-…

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ApresJ20 - Association Covid Long France @apresj20

4 years ago

Nous adressons toutes nos félicitations à nos ami(e)s de @LongCovidSOS qui est devenu un organisme caritatif. Leur rôle pour faire avancer la cause du #CovidLong est essentiel et cela que ce soit nationalement ou internationalement, bravo à toute l'équipe! #apresJ20

Long Covid SOS @longcovidsos.bsky.social @LongCovidSOS

4 years ago

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Covid #LongHauler since Feb 2020. Male 45 @2020_c19

4 years ago

@NIHRresearch have launched some fantastic web pages about the various Long Covid studies they are funding. Thanks to all the scientists and volunteers involved. There are some great studies here and they give me so much hope.

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Covid #LongHauler since Feb 2020. Male 45 @2020_c19

4 years ago

Current studies recruiting now bepartofresearch.nihr.ac.uk/results/search…

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Covid #LongHauler since Feb 2020. Male 45 @2020_c19

4 years ago

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Covid #LongHauler since Feb 2020. Male 45 @2020_c19

4 years ago

@lmrlmrlmr Sorry your are going through this, wishing you well, just wanted to say I had that extreme thirst in the first wave, I drank as much water as I could, it passed after a few days. Mostly recovered now I think, doing all I can to avoid Omicron.

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Tessa Davis @TessaRDavis

4 years ago

The most powerful feature that Twitter has: Advanced search Until recently I hadn't even heard of it, but now I use it all the time. Here are 6 twitter advanced search features that will revolutionise the way you search for what to read: 🧵👇

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Rivka @Rivkatweets

4 years ago

Folks w #LongCovid: Here’s some history. The main character of a 1980s TV show Golden Girls fights to be recognized as being sick w/ postviral illness. This video is a compilation of different episodes. They edited Dorothy’s story into 1 vid. Its powerful! youtu.be/vVyLZTKDy2E

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Adam @ABrokenBattery

4 years ago

Highlights of Dr Asad Khan talking about #LongCovid on AlJazeera. "It is not psychological, just in the same way ME and Fibromyalgia and POTS are not psychological. What we do know is that exercise and talking therapies are not going to fix this."

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Covid #LongHauler since Feb 2020. Male 45 @2020_c19

4 years ago

Please sign this petition for the UK Government to fund research into microclotting and Long Covid and ME petition.parliament.uk/petitions/6056…

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Margaret O'Hara @Know_HG

4 years ago

It's been a pleasure to be involved in establishing the Long Covid Research Involvement Hub Thanks to @its_amitchell and @PPristera and everyone at @Imperial_PERC for dogged persistence and their committment to working with pwLC from @long_covid to get it up and running

Imperial Patient Experience Research Centre (PERC) @Imperial_PERC

4 years ago

Launching the Long COVID Research Involvement Hub. Developed with @VOICE_Global & our public partners. The hub is a #collaborative space where patients & researchers can connect to co-create & share ongoing research into #LongCovid Explore the hub: bit.ly/30VJoCV

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Tash Binnie @tash_binnie

5 years ago

It’s not too late to get your first COVID-19 vaccination. No questions will be asked nor eyebrows raised. Ask us any questions you have. I can assure you you are not wasting our time. We can’t wait to see you!

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Dr. Deepti Gurdasani @dgurdasani1

5 years ago

We're going to be in a serious crisis soon. We can't count on govt , so we have to do our best to help the NHS. Please wear FFP2 masks when going out or double mask. Limit socialising. Ventilation if you do meet up. Get boosted. Don't assume you're protected even if vaccinated.

John Burn-Murdoch @jburnmurdoch

5 years ago

I think we may need to recalibrate our idea of typical case numbers as Omicron takes off. Here’s what UK cases could look like *in the next week or two alone* if Omicron continues to double every 3 days (some actually estimate faster growth) Story: ft.com/content/2b309e…

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Covid #LongHauler since Feb 2020. Male 45 @2020_c19

5 years ago

Thanks @EleanorBarnesOx and @GavinGiovannoni for your @Join_ZOE appearance. My girlfriend has a bad reaction first Pfizer, immediate eye pain and throat closing, needed Adrenalin and drip in a&e, what options does she have? Should she take a second Pfizer or different one maybe?

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Covid #LongHauler since Feb 2020. Male 45 @2020_c19

5 years ago

@dr_barrett @nursekelsey Yes I’ve had workplace training that advised to stay in place with child, ask another adult to stand with you and get one more adult to raise the alarm.