NG @LLMN80
#FBLC #LongCovid Stuttgart, Deutschland Joined November 2018-
Tweets3K
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Followers1K
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TW Abschied/Tod Ich möchte mich kurz - schmerzlos geht nicht - öffentlich verabschieden, weil mir hier viele über die Jahre eine große seelische Stütze waren!! #lastdays #euthanasia #MEkills #farewell (very)#severeME #POTS #notjustadecicion #greatestMEdicalscandal‼️
Bitte geben Sie nicht auf! Es läuft Forschung auf Hochtouren. Wir werden in den nächsten Jahren auch mittels KI das Immunsystem immer besser verstehen und behandeln können. Die Heilung naht, davon bin nicht nur ich überzeugt. Für symptomatische Therapie vermittele ich gerne!
TW Abschied/Tod Ich möchte mich kurz - schmerzlos geht nicht - öffentlich verabschieden, weil mir hier viele über die Jahre eine große seelische Stütze waren!! #lastdays #euthanasia #MEkills #farewell (very)#severeME #POTS #notjustadecicion #greatestMEdicalscandal‼️
Vielleicht sollten wir doch, auch mal langsam LC/PC unabhängig von ME/CFS erforschen. Was nicht heißt das parallel keine mecfs Forschung stattfinden sollte, aber COVID scheint doch so ein paar Eigenheiten zu haben die andere Viren nicht haben.
Sydney researchers analyzed over 1,000 vessels from COVID-19 patients and found that endothelial necroptosis, not clotting, causes red blood cell rupture and microvascular blockage, revealing a new, platelet-independent bleeding control system. nature.com/articles/s4158…
@FFHambu Ist das die Nachmedikation von Puntmann ? Muss auch noch schauen wo man das Vitamin D herbekommt. Sagt sie einem das beim Abschlusstermin alles ?☺️
Eine junge Frau tritt sich Holzsplitter ein. Die meisten kann sie selbst entfernen. Doch einer bleibt zurück, entzündet sich, wird von Pilzen besiedelt, die Infektion greift auf Knochen über. Fünf Jahre lang glauben ihr Ärzte nicht, aber sind sofort 1/ rtl.de/leben/schmerze…
The fact Long Covid is a chronic disease of the small blood vessels is completely unsurprising seeing as Covid itself is a vascular disease. What is surprising is that neither of these things are widely acknowledged despite the scientific evidence being absolutely crystal clear.
@AmandaB55744931 Want to get another PET Scan of the heart put can’t find a doctor who is ordering it 🙄
@AmandaB55744931 Still the same everyday! 🙈 just don’t like twitter that much anymore….you will be the first I will send a message if I ever would become better 🌸🫶🏻
Suche Leute die an der Myoflame Studie in Frankfurt teilgenommen haben und keinen positiven Befund hatten , sprich aus der Studie ausgeschlossen wurden! #FBLC
Five years of being ill with #longCovid I’ve lost my health. I’ve lost my home. I’ve lost my job. I’ve lost my marriage. Unable to care for my pet cat so I had to give her up. I’ve got nothing left, but still fighting shout out to my family that never gave up on me ❤️
ACE2 and Long COVID Beyond initial SARS-CoV-2 infection, the potential involvement of ACE2 extends to facilitation of long term viral presence, disruption of the renin-angiotensin system, autonomic dysfunction, and neuroinflammation.
🚨🚨🚨How many on this platform with palpitations, inappropriate sinus tachycardia, and orthostatic intolerance had their “provider” refer them to a cardiologist who found…nothing.
Urgent cry for help! Please read the 🧵 and share with medical professionals that might have an idea as to what is going on with me! I am 41 years old and have Marfan's Syndrome. I was living a normal, active life, working full-time until 08/23 when I caught a bronchitis. 1/
3 Jahre gaslighting , Vorwürfe ich sei nur dekonditioniert + müsse mehr Sport machen , hysterisch + zu senisbel. key issues: grippesymptome + belastungsintolerant mit zeitversetzter Zustandsverschlechterung. Now we know: spezielle herzentzündung seit 3 Jahren, dank COVID. /2
@nervensystemck habe aufgrund zeitlich klaren Zusammenhangs(24h) eine vaskuläre Erkrankung Post covid entwickelt. Diese hat schwerer Dissektion und Schlaganfall kurz danach geführt, sowie Herz/Lungenproblemen auch nach 4 Jahren. Merken Sie nicht, dass Sie diese Verläufe komplett vernachlässigen?
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following ex-filmmaker, home & bedbound due to complex chronic illnesses, mcas, cci, pots, sfn, fq & flagyl toxicity, longlyme, longpathogens, longsomething, longlist
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Bettina Grande @GrandeBettina
9K Followers 759 Following Psychologische Psychotherapeutin Charité Berlin & Heidelberg Psychotherapie-Netzwerk ME/CFS Aufklärung, Schutz & Versorgung #MECFS #PEM #PEMistnotnegotiable
Juli Maëlle 🍋 @julimaelle
7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
Ulli Brand- Ich behin... @radineulla
4K Followers 2K Following #MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS #Sjögren etc seit Feb 2021 dank #COVID Darf ich Max Ernst zitieren?
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Marximus @MarximusOne
1K Followers 1K Following
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/7/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Read: https://t.co/U1POSyEkKJ
Sandra 👩🏻�... @RSandra266
4K Followers 802 Following https://t.co/tv9iKDwMkf.Biosystems Engineering #neurobiology #Nature #teaching 🍂 | #LongCovid & #MECFS Aktivismus ✊🏻 #NaturalMedicine 🌱
IchBin_RO @IchBin_RO
10K Followers 5K Following Einer der ersten LongCovid Betroffenen. Warnt seit Mai 2020 vor Spätfolgen. Inzwischen überwiegen gute Tage. Folge häufig zurück.
Herbert Renz-Polster @RenzPolster
9K Followers 814 Following physician-researcher, paediatrician, ME/CFS since 2016. This account is about ME/CFS (may also visit: @kinderverstehen: on child development (German)
Prof Doug Kell CBE #F... @dbkell
14K Followers 10K Following I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice
Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #pedanticzebra book club. 🛍️ https://t.co/8JlRWqxASF
Brian Fog @useless_priest
9K Followers 5K Following LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Nwiss 🇸🇪🇪�... @Gronnet
4K Followers 2K Following Health & Medical Science (views my own) News and Research on #LongCovid #FBLC #MEspine #EDS Longhauler since March 2020, (3x Covid inf) #MECFS since 2011
Yek #longcovid @100YEKS
1K Followers 1K Following #longCovid since 24 years old. 27 now. Microvascular disease, heart failure, low Vo2 max, Bedbound. The self is an illusion thats worth saving.
Opinion Health @OpinionHealth
1K Followers 4K Following A global patient-centred healthcare research firm based in London, UK. We work with thousands of patients and caregivers to understand real-world experience.
laura @awwwkid.bsky.s... @xawwwkidx
868 Followers 3K Following
Rauoovan @rauoovan27969
11 Followers 142 Following
Anonymiss @Conservativgal1
2K Followers 4K Following Constitutionalist, American Patriot, Anti-Zionist, Shotokan Black Belt, Classic Cars, Travel, Research. Curses a lot!
Maurizio Stephen @MaurizioSt50126
344 Followers 8K Following
Beach Bound @peakstopac
1K Followers 1K Following Data lover. Reader. Gardener. Long COVID since Feb 2020, 6 wks of nicotine patch turned it around. Married into 🇵🇱🇺🇦family. Slava Ukraini!
Brffeal @BrffealnGl
47 Followers 1K Following
Tricia’s Thoughts @Care4AllPeople
4K Followers 6K Following views my own 🇺🇦💙💛 Democracy matters 🐾mini-schnauzers💙💕 #BeKind Love my family 🥰Educator Sjogrens RA LC Dysautonomia
Sharon Archibald @SharonA50234115
49 Followers 818 Following
Barbara Wimmer / shro... @shroombab
8K Followers 4K Following Preisgekrönte Journalistin, Buch-Autorin, Speakerin, FH-Lektorin. #Netzpolitik #IoT #KI #Krimi seit 11/22 & 10/23 #LongCovid #MECFS #MCAS #POTS
Thdonew @ThdonewJovOrXz
124 Followers 5K Following
ClaireEllen @T8K4NnUp09R97o
53 Followers 3K Following
L Ward @Lwardo4
864 Followers 5K Following WxWatcher🌪️ Mizzou Alum 🖤💛🐅 How you treat people reveals who you are. Words are easy—actions show truth & character *5years*LC#POTS#Hashi DYSAUTONOMIA
Soyrtew @SoyrtewXZ_a
48 Followers 1K Following
Fatih @fatihnomad
591 Followers 2K Following #LongCovid #Dysautonomia #POTS patient since November 2020, @Not_Recovered
Finding Vulneraries @FVulneraries
455 Followers 647 Following Recovering from Fluoroquinolone Toxicity and advocating for the safety of others. #FQToxicity #MCAS
Frank Famous @FrankFamou38367
813 Followers 7K Following I'm Looking For a relationship With a trustworthy Woman
lindagdetroit @lindagdetroit
248 Followers 669 Following Dealing with Longhaul Covid/MECFS since the first wave. 4 year anniversary 3/24/2024 'I Create The Space For Good Things To Happen'
Natalie @Natalie6548
788 Followers 489 Following Accountant, artist, adventurer in a past life - now bedbound/housebound with severe #longcovid #ME #POTS 👩💼🎨🌲🏔️🥾
kirbs 🦋 @kirstymecfslife
2K Followers 2K Following one day at a time 🦋 | ME since 2009| drastically deteriorated after vaccination and a covid infection | not anti-vax🪫between stage 2 and 3 M.E.
holdingonME @JoannaWo4
811 Followers 888 Following 27/ i have long covid for 40 month, and now suffer from severe mecfs (bell 0-10) and pots. I prob have other issues as well but too fatigue to get tested #mecfs
KimK ... one day at a... @TopazStudiosCOM
3K Followers 3K Following Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #IgGdeficiency 💙 Volunteer at @renegaderes 🥩 animal-based keto ♿️ amputee
Teswis @Teswis9Bc2J0
14 Followers 471 Following
Alexander @MEandme_info
98 Followers 465 Following Living with & fighting against ME - Research, findings & news on #MECFS #PostVac #LC #MCAS #POTS #EBV - Supporting #UniteToFight #Millionsmissing #LiegendDemo
Maschkera 🎭 @SuentelGeist
196 Followers 240 Following Mother of a daughter with very severe ME/CFS, caregiver around the clock, #pwmecfs, #MCAS, #chronicillness, #verysevereMECFS, #millionsmissingLittlewisehen @littlewisehen
52K Followers 56K Following Alpenländischer Londoner, Sybaritischer Professor für angewandte Kulinarik. Doctor humoris causa. Dulce et decorum est in commoditate vivere. Ad usum Delphini!
Céline Lesprit (Cast... @CCCastera
2K Followers 2K Following #IDEL #ApresJ20 #CovidLong mars 2020 #EM #POTS #SAMA/📢porte-parole @apresJ20 + Soutien FB ❤️🩹https://t.co/OOWaiSiiTg
kristal @kristal1122
1K Followers 2K Following full time caregiver. visiting lecturer, former jr high teacher. longcovid/POTS. sports fanatic. Arkansas Razorbacks. lover of sarcasm. not a hugger. night owl.
miss information @_ms_info_
820 Followers 2K Following ME/CFS, LongCovid, prevention at ms-information dot bsky dot social at miss_information at mastodon dot social
Bernd Claes 13x @BerndSek31
2K Followers 4K Following Västasiatisk arkeolog Vänstergrön futurist som aktivt kämpar mot den globala galenskapen för att vi äntligen ska få de Förenade Staterna på Jorden.
Claire @claireheatherd1
128 Followers 963 Following Holy Spirit filled Christian who's not ashamed to say it. In full faith for deliverance & healing from severe ME. Nothing is impossible with God. In Jesus Name
Amy @ACK025
267 Followers 1K Following ApoE4/4 + Ehlers-Danlos + IACI (Lyme) + Neuropathy (SFN, Autonomic) + Myasthenia Gravis, Sjögren’s, RA + POTS + Mast Cell + IBS/SIBO + Bilateral Vestibulopathy
Thirsme @Thirsmeowg__M
22 Followers 707 Following
Pennie Reese (she/her... @pennie_reese
3K Followers 6K Following 💜#BLM #Resist #FightSupremacy #NeverAgain #FaceTheClimateEmergency #WearAMask “You're in this world, you know.” ~ Mrs Edith Beale
Terbrur @TerbrurWxGxlBo
23 Followers 539 Following
Smooteen @SmooteenP0ixnd
63 Followers 4K Following
Michael @michael_on_x_
3K Followers 7K Following When we lose our principles, we invite chaos Engineer / Musician / Geek / Friend 🙋♂️ for legal reasons, whatever it is, it's a joke
raince @lotsoostri32152
48 Followers 844 Following
Pceris @cstlrpl6577
43 Followers 1K Following Friendship is the golden thread that ties the hearts of all the world.
McThonee @McThoneeogUKC
45 Followers 4K Following
Christine Schöller @ChristineSchll2
192 Followers 2K Following
Lara - Covid is Airbo... @fillthewhole
8K Followers 8K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
wz @nimbasiiiem
181 Followers 2K Following
LongCovidPharmD @organichemusic
36K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Michael Stingl @neurostingl
16K Followers 1K Following Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin Ordination @cereprax
Bhupesh K Prusty @BhupeshPrusty
16K Followers 65 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Resia Pretorius @resiapretorius
29K Followers 268 Following Vice-Dean: Research and Postgraduate Students, Faculty of Science, Stellenbosch Univ; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Shaney Wright @ShaneyWright
17K Followers 445 Following @WestHam Fan ⚒ 🏴 | Accidental Centrist I Pro-Pragmatism and Real World Outcomes I Anti-Ideologues.
Sibylle Dahrendorf �... @sibylle_berlin
7K Followers 3K Following ex-filmmaker, home & bedbound due to complex chronic illnesses, mcas, cci, pots, sfn, fq & flagyl toxicity, longlyme, longpathogens, longsomething, longlist
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Dr Asad Khan FRCP FRA... @doctorasadkhan
27K Followers 4K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine ONLY POSTING ON UPSCROLLED NOW
Christoph Ströck @cstroeckw
9K Followers 765 Following Soon, people will look back in disbelief at what happened to patients with ME/CFS | Co-founder @weandmecfs | Godspeed 🙇🏼
Bettina Grande @GrandeBettina
9K Followers 759 Following Psychologische Psychotherapeutin Charité Berlin & Heidelberg Psychotherapie-Netzwerk ME/CFS Aufklärung, Schutz & Versorgung #MECFS #PEM #PEMistnotnegotiable
Juli Maëlle 🍋 @julimaelle
7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
Putrino Lab @PutrinoLab
36K Followers 405 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr. Bettina Hohberger @Dr_B_Hohberger
8K Followers 43 Following PD Dr. med. Dr. rer. biol. hum. Bettina Hohberger
Ulli Brand- Ich behin... @radineulla
4K Followers 2K Following #MECFS #severeME #MCAS #severeMCAS nichtlängenabhängige #SFN #POTS #Sjögren etc seit Feb 2021 dank #COVID Darf ich Max Ernst zitieren?
Billy Hanlon @bhanlon15
14K Followers 14K Following ME/CFS | Long COVID | IACC | https://t.co/Qitpgq8anF | Stand with Minnesota
Marximus @MarximusOne
1K Followers 1K Following
Yek #longcovid @100YEKS
1K Followers 1K Following #longCovid since 24 years old. 27 now. Microvascular disease, heart failure, low Vo2 max, Bedbound. The self is an illusion thats worth saving.
Feuerwehr Stuttgart @Feuerwehr_S
5K Followers 77 Following 🚒Offizielle Seite der Feuerwehr Stuttgart. ⛔️Kein 24/7 Monitoring. ☎️Im Notfall immer den Notruf 112 wählen! Impressum: https://t.co/0faUuKR9zY
Dara in Chains @DarainChains
4K Followers 2K Following Long COVD Kills. It is a problem that needs solutions. Being left to die slowly with VI and LC, SPS, vascular Compression, Dys, Strokes, DSFN
Daniel Missailidis, P... @DanMissailidis
4K Followers 699 Following Researching the cell biology of PD, ME/CFS & Long COVID at La Trobe Uni in Melbourne, Aus. Papers: https://t.co/JMi5U6cBLI
Jax💙#FBNHS #FBPE @Jax06153243
3K Followers 4K Following Wife, mother, granny, sister, ex NHS HCA, animal rights, justice, kindness & decency 😊#GTTO #SaveOurNHS
Danka @danka_mm
408 Followers 364 Following Harpsichordist, pianist, teacher; Software test Engineer, runner, skier, sea lover, diver, yogini, hiker, traveler… ⏸️ Long Covid fighter!💪
Dr. Sean Mullen @drseanmullen
33K Followers 7K Following Doctor of Philosophy in Education | Director @EtcLab studying #Exercise #Technology #Cognition | Husband | Dad | #FlowArtist | #MartialArtist | #PTRTennisPro
Lucas @Anzugmensch
3K Followers 775 Following Unkonventioneller Jurist bei gewöhnlicher Scheißelaberei. Definitiv kölner als du - momentan Expat in Frankfurt. #FCKAFD
Jason S @JasonS1269
2K Followers 966 Following #ME Jan 2012- Housebound. #LongCovid Dec 2021- Bedbound. Bloods normal until SC2 infection. Dying alone without honour, love or dignity.
Dan Van Ackeren (dyin... @DanVanAckeren1
1K Followers 824 Following Struck by a Bioweapon. Still fighting for my life AND against Suppression.
WACM @_VFK_DAA
768 Followers 1K Following LC is unique due to its chronic inflammation of the vessels (vasculitis). Just because some symptoms are shared, it doesn't mean the conditions are the same.
Barbara Wimmer / shro... @shroombab
8K Followers 4K Following Preisgekrönte Journalistin, Buch-Autorin, Speakerin, FH-Lektorin. #Netzpolitik #IoT #KI #Krimi seit 11/22 & 10/23 #LongCovid #MECFS #MCAS #POTS
Soph #millionsmissing @lisa_mecfs
284 Followers 279 Following Here for medbubble to be on track with new therapy trials and research for post-infectious diseases, as government doesn't care.
InaD_aus_H @Ina66
754 Followers 765 Following Bloggerin mit den Themen Bücher, Wirtschaft, Politik, Gesellschaft, Behinderung. https://t.co/jvR4GicTH4
a n n a @mecfsanna
504 Followers 575 Following 25 y/o | she/they | ME/CFS since 2017 | Bell 0 | cannot respond to messages - i’m sorry
Meiners PT, PhD @KellyMMeiners
2K Followers 888 Following *Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.
Patrick Jay @PatrickJayMD
532 Followers 327 Following Physician and Researcher Neuropsychiatry Technical University Munich (Private Account)
Finding Vulneraries @FVulneraries
455 Followers 647 Following Recovering from Fluoroquinolone Toxicity and advocating for the safety of others. #FQToxicity #MCAS
Tobias @992tobias
4K Followers 86 Following MECFS 2010 - I don’t belong to the scars that they left on my soul
Anne Will @annewill
102K Followers 1K Following Journalistin, Moderatorin, Podcasterin 👉„Politik mit Anne Will“👈
KimK ... one day at a... @TopazStudiosCOM
3K Followers 3K Following Retired 🪷 Grandmother • 3 chronic illnesses since early 2020 🥄 #longCOVID #ESKD #IgGdeficiency 💙 Volunteer at @renegaderes 🥩 animal-based keto ♿️ amputee
World's Gone mad🇨�... @jurnigurl
614 Followers 383 Following
Michael R Scoma MD @DrMichaelScoma
9K Followers 123 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given. https://t.co/HkQt5xRhlP
Stephan Achenbach @Steph_Achenbach
13K Followers 433 Following Chairman, Department of Cardiology, University of Erlangen, Germany. Intervention and Imaging. Past President, European Society of Cardiology. @escardio
XY @ZoSxyz
171 Followers 414 Following Früher: sportlich, aktiv und rastlos/ bis vor kurzem: erzwungener Couchpotato/ Jetzt: es geht bergauf, ich werd wieder die alte 😀 #longcovid #POTS
Karl @karlander_
2K Followers 3K Following Ich twittere zum Thema ME/CFS. I tweet about the topic ME/CFS.
Miriam Ellmers @MiriamEllmers
448 Followers 268 Following M.E. - mein Name ist leider Programm! Geplantes Leben pausiert. Auf der Suche nach und Kämpfen für ▶️. #millionsmissing #mecfs #meawareness
Schatten meiner selbs... @zidius_
277 Followers 177 Following ME/CFS | Mein Leben steht auf Pause seit 2009 | Schwer krank und ohne medizinische Versorgung | Team Wissenschaft |
Maschkera 🎭 @SuentelGeist
196 Followers 240 Following Mother of a daughter with very severe ME/CFS, caregiver around the clock, #pwmecfs, #MCAS, #chronicillness, #verysevereMECFS, #millionsmissing
POTS @_potsblitz
157 Followers 233 Following #POTS #MECFS #POSTVAC #millionsmissing #notrecovered Evtl schwarzer Humor und eigener Senf als letzte Überbleibsel des Lebens vor #chronicillness erkennbar
Chris 🏳️🌈 @ungenesbar
2K Followers 742 Following LongCovid & ME/CFS advocate & activist // Project Manager @MECFSResearch Foundation // Co-Founder @U2Fight_World // creator of https://t.co/MkjlN3XmQF // gay
NurseKelsey (she/her)... @nursekelsey
61K Followers 1K Following Mama. Trauma ICU nurse. Introvert. Runner. Dog lover. 🏳️🌈 Strong believer in science & medicine. BLM. Prochoice.
Céline Lesprit (Cast... @CCCastera
2K Followers 2K Following #IDEL #ApresJ20 #CovidLong mars 2020 #EM #POTS #SAMA/📢porte-parole @apresJ20 + Soutien FB ❤️🩹https://t.co/OOWaiSiiTg
Stefan Schwartze @s_schwartze
4K Followers 1K Following Hier als Abgeordneter des Deutschen Bundestags für den Kreis Herford & Bad Oeynhausen unterwegs | Außerdem Patientenbeauftragter der Bundesregierung | @spdde
Bill G. (頑張る) @freshheroo
434 Followers 936 Following Big 4 consultant CPA. Aspiring career in commodity private equity. Slowly inching myself out of Long Covid and post vax.
Süsse Limone @suesselimone
2K Followers 2K Following Gut zuhören, wenn fast alle Wissenschaftler dasselbe sagen.
Neurologist Mom @NeurologistMom
10K Followers 286 Following A neurologist, M.D., mother of a 18-year-old with #Lupus #NeuroSjogrens #AutoimmuneEncephalopathy triggered by SARS-CoV-2 ⚠️ Occasionally blocks energy drains.
Scott Daniska @scott_scientist
3K Followers 571 Following Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
MIRAME ARTS @MIRAME_ARTS
1K Followers 136 Following Verein für #MECFS- und #LongCovid-Patient:innen. Wir produzieren Medien und Kunst, um für emotionale Aufklärung zu sorgen. Spenden: siehe -linktr.ee-
Christina Koch @CK65375
2K Followers 140 Following Until 8/23: School, hiking, soccer, chess, wine, culture, politics. Now severely ill (ME/CFS, POTS, CCI, MCAS). Still fighting. Antifascist. #eisern


















