FibroFacialGal @reelmemyselfi
Design obsessed, animal lover, wanderer, maker. FibroFacialGal. ChronicallyAwesome. Instructional Designer. Teacher. Caffeine+++ Doing what I can when I can... Joined February 2011-
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linkedin.com/posts/spelasal… If you are an unmasked doctor: we can all see you don't read, don't care, and can't be trusted.
Something I learned since getting sick, especially once the pandemic started, is how people see chronic illness as some kind of moral failing. I see it in the confident way they think it will never happen to *them* because they’re healthy and make good lifestyle choices. 1/5
Ten things twitter folks know about Covid that people on the streets don't.
If you’re newly disabled - whether by Long Covid or any other chronic illness - you need to prepare yourself for gaslighting. Doctors, HCWs, friends, family…. You will be surprised how much it’ll happen. A 🧵on how to cope, why it happens & finding your tribe. /1
Nothing adds up about the latest Covid news. Apologies to those who think this may be overly conspiratorial, but here’s what we know: 1. Covid is not “milder,” though fewer people are dying in the acute stage due to vaccines. It still causes long term harm. /🧵
y'all realize the virus isn't going to comply with any cdc bullshit instructions, right?
Many folks are pushing to go “back to normal” because they’re upset that their lives were upended in early days of Covid pandemic. I get it. My life was upended when I became disabled. But here’s the thing - “normal” isn’t working. It’s a mirage. 🧵 on denial & false ‘normal’ /1
@Helenreflects Thanks for this fabulous 🧵. Altho I don’t trend hopeful, the youngs are giving me hope. Have been seeing more and more 🔥🔥🔥 on #CovidIsNotOver TikTok. Three recent examples… x.com/withchem/statu…
@Helenreflects Thanks for this fabulous 🧵. Altho I don’t trend hopeful, the youngs are giving me hope. Have been seeing more and more 🔥🔥🔥 on #CovidIsNotOver TikTok. Three recent examples… x.com/withchem/statu…
The work I do clinically can be very rewarding, but the never ending stories of medical neglect and gaslighting are sometimes too much to bear. Medicine is failing so many people. It’s as if the worse off you are the more likely you are to get treated poorly. It’s heartbreaking.
Hello class! This is a bottle of Bitrex solution. It is the bitterest tasting substance known to science. I have filled this nebulizer with it. *turns on nebulizer, stream of particles shoots out* 🧵
Good Twitter is an echo chamber. Filled with repeated outbursts of laughter, cuteness, human kindness, love and joy. It’s designed to be as 10 times as positive as X is negative. I think we’re getting there. x.com/i/communities/…
This is your daily pension announcement. The Pension War Room™️ enjoys richest irony ever! Apparently, @aimcoinvests had a money-market investment account with short term investments that were managed on behalf of the GOA (the client). #AbLeg
🇦🇺Phenomenal article! 🙏🙏🙏 Data shows that COVID has decreased life expectancy, will cost the global economy an estimated US$13.8 trillion by 2024, and is decimating the lives of millions of people who have developed long COVID. 1/5 abc.net.au/news/2024-01-2…
@drseanmullen Here is video
This is Jann Arden’s hospital experience in Alberta…👇👇👇👇video credit @jannarden 👇👇👇👇👇#alberta #healthcare #abpoli #DanielleSmith @Alberta_UCP #publichealthcare @ABDanielleSmith
Occasionally people criticise me for swearing on here. I know. It always reminds me of this quote from an american preacher: "I have three things I'd like to say today. First, while you were sleeping last night, 30,000 kids died of starvation or diseases related to malnutrition.…
Jann Arden walks into an emergency room...the end of the joke seems to be the provincial government's funding model @ABDanielleSmith #health #healthcare @jannarden
“You think you are better than me for masking” Yes, yes I do. Morally. Endeavouring to not do harm is morally superior to openly spreading organ damaging virus everywhere. The consequence to being an asshole is that people think less of you. You want your cake and to eat it too.
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPPFibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFridayFay Fernelius @FerneliusF12820
81 Followers 5K FollowingDaisey Tousignant @DaiTousignan
65 Followers 5K FollowingJessie Halmick @HalmickJes16076
69 Followers 5K FollowingLeja Caliguire @LCaliguire26642
75 Followers 5K FollowingJemma 🔞 @Jemma__B3608
0 Followers 201 Following Рromisсuоus sirеn driven by an unstоpраble lust for рlеаsureRonnie Brouillard @RonnieBrouill
79 Followers 5K FollowingChristie Potter @CPotter9544
70 Followers 3K FollowingMarn 🏳️🌈�.. @barniefh1999
3K Followers 5K Following Happy wife/twin mom/trying to make sense of the world! Business owner. Necessary activist. She/Her—mom to queer kid & kooky kid + ally to all #GoodTwitterSarah Hoffman @shoffmanAB
28K Followers 4K Following Sarah Hoffman is running to be the Leader of the NDP and the next Premier of Alberta. Health. Climate. Housing.𝔾𝕦𝕒𝕔𝕒�.. @DavidTaylorNYC
8K Followers 9K Following Biochemist + much more. Look for me on PBS/BBC/AJ/DW. Coined 'unibrow' in 1984. Superforecaster. Not shown actual size. 322 ppmHighley Michele @highley_michele
92 Followers 176 FollowingLady Chuan @LadyChuan
9K Followers 4K Following Chronic and Infectious Diseases, International Corporation, U.S. Healthcare Division, Real Life Covid ExperiencesLee Good @leeroygood
3K Followers 3K Following I love to tweet about staying positive, blogging, marketing, and I love quotes.Selena Michael @drSelenaMichael
84 Followers 179 Following Manifesting success with affirmations | Life Coach | 🌿 Promoting mindfulness | Championing mental resilienceSky 🇺🇦 🇵🇸 @skymelilemyks
2K Followers 4K Following 🎭👩🏻🎤📚🌊✨🐈🏝🏳️🌈♀️ Ex-Actress/Ex-Singer/Poet/Sea-Witch/Cat Companion/Islander/Hermit/Queer/Feminist/Anti-capitalist/Anti-fascist/Anti-SARS2Keith @keetmuise
27K Followers 20K Following Mental Health & Covid19 Safety Advocate. 80s Kid, Teacher, and don’t forget… YerAweSum!Victor Flores @seaglassVFGD
193 Followers 1K Following One-of-a-kind SEA GLASS (ocean tumbled) Jewelry, Tiffany style Lamps&Furniture in RecycledMaterials. DigitalPhotos in color pencils. Build EcoDomes.Won Wilwin @WilwinWon
1K Followers 2K Following NO DMs. Alberta Girl, love the scenery, hate the politics. Big on morals, dont bother if you havent any. Love my kids, dogs. Cat girl, former candidate for PM.DKGray @TheRealDKGray
11K Followers 3K Following Economist. Pragmatic idealist. #GoodTwitter If you have a net worth less than $25,000,000, we should be on the same side of things.Jill Veale @JillVeale1
14 Followers 67 FollowingAlberta Educator War .. @AbEducatorWarRm
1K Followers 933 Following Proud Alberta educator. Defender of public healthcare & education. Politics, sarcasm & shade. Swears more often than not.Tracey Charlesworth @TraceyCharlesw6
484 Followers 5K Following Just leading an ordinary life. Boring and plain 52 years old and honest always.Melissa (she/her) @average_mammal
6K Followers 4K Following PhD scientist (get vaxxed). Animal lover, cat foster, mother of chickens. Universal childcare, housing, income, etc. Reproductive rights are human rights.Beautifulcalmbr.com @Legallane
300 Followers 1K Following Fibromyalgia & RA sufferer #chronicpain #chronicillness I make aromatherapy products to help ease the symptoms of pain, fatigue. https://t.co/9JWGWSJc6wChild of God✝️Fib.. @Virgiaj
5K Followers 3K Following I love Jesus✝️ My God is the Creator of Heaven and Earth✝️ Fibromyalgia🦋💜 Chronic pain Tinnitus My voice fades away when pain kicks in NO DM's PLEASE🚫Melissa Perry @Melissa39038409
52 Followers 436 Following Single Mom to a teenager. Aviation Enthusiast. Chronic Pain sufferer. FibromyalgiaMaster Savannah @Mastersavannah9
1K Followers 5K Following Tai chi for mind and body, self defence, healing, and for all ages. For more info please click the link in my bio. Online tai chi relaxation classes.Jen Turner ♿ @SpoonieJen
3K Followers 4K Following 34, she/her, bi, spoonie, chronic pain patient since '04. HoH. Newly dx'd with MS. Disability & chronic illness patient advocate. $SpoonieJenT @Tamela1629
15 Followers 413 FollowingWeather Flare @WeatherFlare
364 Followers 2K Following Weather Flare is a handy app for people with chronic conditions triggered by the weather. #spoonies #chronicpainRenee Tennison @brounsugga25
18 Followers 334 Following NBA Sports Fitness Olympics News Weather Music Hip-Hop/Rap US & World NewsBob Sekel @bobsekel
77 Followers 1K Following Love music ,sports and my business Robert j Sekel contracting incAshley Whitaker @ashleyn7985
654 Followers 3K Following I am Brave/Fun/Loyal/Smart/Compassionate/Unique CPP with a 10 yr old son who luvs music/roller coasters/movies/fashion/gun shows/tattoo conventionsNichol Neto @nicholneto
729 Followers 4K Following #Mom #Catoholic #ChronicPainPatient #RSD #CRPS #Lupus #spoonieKratom NC @KratomNc
259 Followers 1K Following“Blockchain Jonny�.. @blockchainjonny
161 Followers 2K Following #Blockchain #Gold #Silver #WSOP #Sports #NFL #BearDown #Chicago #Bulls #Bears #Blackhawks #Cubs #WhiteSox🌙New Moon Labs @newmoonlabsorg
1K Followers 2K Following 🌙New Moon Concepts https://t.co/ETrp96MKdm| New Moon Host https://t.co/FkxCxdAmZp | #WebDesign #Wordpress #WebsiteManagement #VirtualAssistant #WebHosting #Dc🏳️🌈 @rn_er_c
6K Followers 3K Following ER nurse • heathen extraordinaire • i ♥️🪴• aggressively pro-choice • definitely always tired • healthcare is a human right • she/her🌈🏴�.. @Pookiehugz
659 Followers 3K Following 🦋My Invisible Nightmare🦋 💋@Toisich69's better half💋💜Mum of 4💜🌈Granny of 12!🌈 🦋Fibro/CDM/ON/PTSD/MH Warrior!🦋 🦄Indy2🦄chronically_supportiv.. @SarahPickston2
193 Followers 749 Following #chronicpain & #fatigue survivor 👩👧👦mum of 2 beautiful children Group admin supporting #chronicwarriors across the 🌏 Want to #join my community?JC @Shine_Jules
3K Followers 3K Following Equality for All♀️✊🏼♿ #WeThePeople (Peaceful & Respectful)🇺🇲Save The🐳🌊🌎🐯🐘🦋🦅🌳Archeology🦖🖼️Quotes and more🌠LawyerSandel @LawyerSandel
203 Followers 796 FollowingTracey Charlesworth @TraceyCharlesw2
474 Followers 4K Following I maybe crazy but I can be brutally honest. If you really wanna know what I think, just ask.Fibro Bloggers @FibroBloggers
18K Followers 9K Following Connecting fibro bloggers, inspired by all the #fibro bloggers and their stories at Fibro Blogger Directory #FibromyalgiaAwareness #FunnyFibro #FibroFridayChronically Exhausted.. @nurse_supermom
206 Followers 324 Following AB RN on pause. cPTSD. ME/CFS. Invisible. she/her. Mostly watch, reply and retweet. Following does not necessarily imply agreement.Lorna @lornamcfindy
4K Followers 989 Following (She/her) Writer, Disability & Chronic Illness Advocate, Cat MomagerDr. Sean Mullen @drseanmullen
23K Followers 6K Following Research Director @EtcLab studying #Exercise #Technology #Cognition #Neuroscience | Husband | Dad | #MartialArtist | #PTRTennisProDeborah Holloway 😷.. @DebHolloway
6K Followers 4K Following Former Prof. Communicator. Infected Mar 13/2020. 1st Wavers identified & named OUR disease. It is LONG COVID. Switch flipped: from victim to WARRIOR. #LongCovidMike Hoerger, PhD MSC.. @michael_hoerger
30K Followers 11K Following Director of the top public U.S. #COVID forecasting dashboard (PMC). #HealthPsych PhD Program Director, #CovidCancer scientist, over 100 science publications.No, Just Browsing @nothxjstlooking
1K Followers 2K Following A woman learning to use a scythe to grow grass-fed 🥔’s. Refuse to be a link in the chain of transmission. #wearamask #CleanTheAir #ClimateEmergency #UBICOVID IS NOT OVER @billiebuttons64
1K Followers 3K Following Covid is an airborne multi-systemic, vascular, thrombotic, neurotropic, Severe Acute Respiratory Syndrome. Fibro/poly arthritis/asthmaPain Canada @pain_canada
1K Followers 162 Following Pain Canada is the home-base for eight million people in Canada living with chronic pain.Kelly @broadwaybabyto
12K Followers 2K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. Covid is airborne 😷 #SpacesHostThe John Snow Project @JohnSnowProject
17K Followers 275 Following Reliable, honest information on COVID-19 from public health, clinical, and research experts. https://t.co/KVTMhCT9ctLCAP (Long Covid Acti.. @LongCovidAP
3K Followers 139 Following LCAP is a united, diverse force of non-partisan individuals taking action to end the Long Covid crisis through awareness & government accountability.chantzy @chantz_y
14K Followers 1K Following Mom, communicator and science writer. Croissant maker & eater. Métis. Health equity. Accidental activist 🦠CovidIsntOver Communi.. @covidisntover
7K Followers 744 Following 😷 still coviding weekly hangout 🗓️ virtual event calendar 🌸 community bulletin board 💜 community spaces resource doc✨weekly action for Palestine event 🇵🇸YEG Coffee Outside @coffee_outside
3K Followers 1K Following Edmonton's outdoor coffee club. We meet every Friday, rain, snow or shine between 7 & 9 am at Ezio Faraone Park. Follow @handlebarista for #baristabike dates.Disabled Doctor @DisabledDoctor
9K Followers 849 Following PhD. Fired from a postdoc for being disabled. Filed w/EEOC August 2021 — still waiting. Gamer. Gardener. Clinician-Scientist. EDS. ADHD. CCI. 🏳️🌈Fibromyalgia Associat.. @fibrocanada
3K Followers 3K Following To improve the quality of life of Canadians with Fibromyalgia. To build one unified voice to advocate through increased respect, awareness, education & researchCovid Safe Network @covidsafenetwrk
8K Followers 3K Following I’m sorry if the virus outlasted your capacity for empathy. And if it didn’t, thank you. Covid is not over.Surviving in dystopia @Magnolia_613
6K Followers 4K Following What is this hellscape? Mom to human & cats. She/her. Sarcastic. Realist. We are in a mass disabling event. Wear a 😷#COVIDisAirborneShane Parrish @ShaneAParrish
512K Followers 3 Following Author of NYT bestseller Clear Thinking (https://t.co/BHBTqVjMAO). Mastering the best of what other people have already figured out. Over 600k read my newsletter.The Lone Masker @wonderartsy
9K Followers 1K Following Public Air Sanitation is the only future we have, pass it on.Flo Mask @flo_mask
15K Followers 2K Following Winner of 2021 BARDA Phase 1 Mask Challenge. Runner up in 2022 Phase 2 Mask Challenge led by NIOSH/BARDA/NIST. Questions? Let @flo_mask know!Lady Chuan @LadyChuan
9K Followers 4K Following Chronic and Infectious Diseases, International Corporation, U.S. Healthcare Division, Real Life Covid ExperiencesDr. Heref Oru @dr_oru
6K Followers 2K Following Alberta family doctor dedicated 💯 to helping fellow Albertans. Privatization is the agenda, the rest is distraction. Healthcare/Education are investments. 🌍🌈E. Concors, MD, MPH (.. @ConcorsErica
26K Followers 4K Following EM Attending Physician 🏥 LGBTQIAA2+ health 🏳️🌈 Social justice belongs in healthcare 📣 Trans + Non-binary 🏳️⚧️ Tweets = opinions 💬 Figs ambassador 🥼Tara Moriarty @MoriartyLab
46K Followers 5K Following 🏳️🌈🇨🇦Assoc Prof @UofT. Bloodborne infections, Lyme disease, misinfo. @COVID_19_Canada. Defend journalism. Opinions mine. @[email protected]Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my ownCovid19 @friendlycovid19
22K Followers 1K Following Expert at crappy replication error repair. Pronouns it/its. Bluesky: https://t.co/Mz6GbJxc7YJohn Fetterman @JohnFetterman
934K Followers 5K Following Dad, husband to @GiseleFetterman, and Senator for the Commonwealth of Pennsylvania. 🇺🇸Marty Chan @Marty_Chan
10K Followers 4K Following I write books for kids, plays for adults and tweets for fun. I'm snarky and political, but I try to be fair and funny.Kevin Nimmock @KevinNimmock
14K Followers 2K Following He/him. Prairies Assignment Senior Producer at CBC News. Former: CTV Calgary. Survivor superfan. Settler on Treaty 7 territory. [email protected].CareForEd. @CareForEd1
936 Followers 1K Following Educator in Alberta seeking a normal provincial government.Keith @keetmuise
27K Followers 20K Following Mental Health & Covid19 Safety Advocate. 80s Kid, Teacher, and don’t forget… YerAweSum!Heather J. Quinn @HQuinnLocal37
2K Followers 2K Following Edmonton Public Teacher of 20+ years. President Edm Public Teachers Local 37. #WeAreATAjason schilling @schill_dawg
12K Followers 946 Following proud AB teacher, runner, ATA President: responsible for my own thoughts and typos; he/himDr Frances (still mas.. @vettergreenart
2K Followers 3K Following Settler on Treaty 7. lands. Artist. Day job: family physician. Retweets are not endorsements. Tweets my own. I have questions. she/herJohn MD @John1MD
6K Followers 2K Following Family Doctor, enjoys hiking, biking, motorcycling, and... you, I like you #Abdocs4patientsUnlearn16 @unlearn16tweet
52K Followers 647 Following Podcast - Unlearn16: Class is in Session [email protected]Jen The Feisty Librar.. @Feisty_Waters
35K Followers 7K Following Oatmeal influencer, whimsical twitter aunt, insufferable dog mom, chaos goblin, spoonie tattooed librarian. She/Her.Erin Johnson @a_better_world2
758 Followers 995 Following social advocate, strong supporter of public healthcare, lover of the outdoors, mental health therapist, disheartened born and raised AlbertanUbaka Ogbogu @UbakaOgbogu
46K Followers 34 Following Law Professor. Tweeting about health, law, politics, policing, antiracism, sports, fashion & culture. #BlackLivesMatter. he/him 🧡. Did you? O-kay. 🫤AB_Fam_Doc (#Physicia.. @AB_Fam_Doc
2K Followers 984 Following Damn Tired. #InequityKills #ABdocs4SCS Family Doc & Mom. Passionate about patient care. #ABdocs4patients. All tweets are my personal opinions.Laurie @laurfoll
1K Followers 1K Following All people deserve to be treated with dignity. If this view conflicts with your beliefs, don’t bother following me. Proud Canadian and former educator.Rakhi Pancholi @pancholi_rakhi
25K Followers 3K Following Mother, partner, lawyer, and proud Albertan. MLA for Edmonton-Whitemud. Tell your dog I said hi!DKGray @TheRealDKGray
11K Followers 3K Following Economist. Pragmatic idealist. #GoodTwitter If you have a net worth less than $25,000,000, we should be on the same side of things.Jon Meddings @JMeddings
5K Followers 234 Following Past Dean, Cumming School of Medicine; Gastroenterologist, Avid photographer in no particular order. Opinions are mine.atbfinancial @atbfinancial
12K Followers 50 Following Defy impossible with something more powerful—your next step fuelled by our expert advice.Jenny Ryan @CrankyFibroGirl
221 Followers 173 Following Hedonistic, word-obsessed, crazy cat lady, bad-ass goddess babe. Fighting chronic illness with all the snark at my disposal.The richest province in Canada spends the least on education. Because none of the people who developed fracking, or oil sands separation, or hardy northern wheat varieties needed to edumacated. 🤬 It’s the mythic myth of the moron. But enough about Cabinet.
Healthcare providers in one of the FB groups I am in are bashing patients who self-diagnose. I’m trying to educate them on why patients do this, how it is valid, how to actually help, etc.. I’m also trying to communicate that it’s problematic to mock this behavior (all while…
Medical gaslighting is a very real and severe issue that doesn’t get talked about enough. It can lead to lifelong consequences (and even death) for patients. Women & marginalized individuals are disproportionately impacted. It’s happened to me many times - with dire effects. 🧵/1
@drdagly It seems our lives have little value under the UCP.
@ringothe5th Anyone who works in healthcare and also self-identifies as a “militant anti-masker” is not someone whose observations I take seriously.
This is one of the many reasons that otherwise well-informed people (including healthcare providers) dropped their guards. And it remains one of the primary reasons people think Covid is behind us. Because they can’t see it. They don’t see half the people carrying virus who show…
My GP is always even tempered, but she became angry when she said that there is no such thing as asymptomatic transmission of #SARSCoV2
I am a physician married to a physician who completely agrees with this. I will pay my taxes and plant trees so that those who follow me can learn under the shade of a spreading elm, and not fear the unfortunate fate of becoming ill.
I am a physician and I am married to a physician. We will never have to worry about paying off our mortgage, making car payments or affording food. If the changes in capital gains means we pay more tax so that social programs are more economically viable, we’re OK with that
It's time to talk about the anti-mit movement in the same tones as we talk about the anti-vax movement.
Does else anyone feel psychologically calmer & safer just by looking at this photo?
Wow! The Network is blown away by the response to yesterday’s Forum on #COVIDRehab research.
People don't pretend to be sick. They pretend to be well.
You may not have time to wade through the whole of the WHO report on how Covid and other viruses transmit, so here's a thread to summarise it. Grab a cup of tea and get comfy. 1/🧵
No one: UCP: We object! Absolutely not! Never! Albertans: What are you objecting to now? UCP: Money that Ottawa is trying to give Alberta. Forget it! Albertans: But…don’t we need it? 1/
@101build People are under stress because of uncertainty. The Conservatives roll out another tax cut for oil companies, then there’s another 10,000 layoffs. Hospitals and schools are over crowded. Traffic is terrible. Price inflation for insurance and electricity are sucking…
@MCandian2 Thanks. You too. Check out Good Twitter where that grandfatherly part of me gets to delight in amazing stories of wonderful people. And dogs. So many dogs. And cats. So many cats. And otters. So many otters.
New CDC update: “Emerging evidence suggests that severe acute respiratory syndrome coronavirus 2 (SARS-CoV-2), the virus that causes COVID-19, can have lasting effects on nearly every organ and organ system of the body weeks, months, and potentially years after infection.”
@SalamonSMD Obviously doctors (and everyone else) should wear fit tested respirators at all times but it’s not always a good idea to antagonise them because, as today shows, they retaliate
@kate___said Unfortunately, I can't work due to my daughter's condition; I'm with her 24/7. We avoid professional help due to the risk of infection. My husband wears a KN95 mask, but all his coworkers are mask-free, since they see no danger for themselves, right?
We have a neurologist (me), a neuroradiologist, an interventional radiologist, and an emergency radiologist (my husband, who has 3 specialties) at home, yet we still can't manage the symptoms of a child with #longcovid #longcovidkids
@1goodtern Folks in the disability community are in hiding due to lack of care, awareness, and concern. Limiting exposure becomes a way of life.