Top Tweets for #PVFS on Twitter.

Search results for #PVFS

ME Research UK - Researcher Zone @MEresearchzone

a day ago

*Book* "Toward a Common Research Agenda in Infection-Associated Chronic Illnesses: Proceedings of a Workshop." Washington, DC: The National Academies Press. Illnesses discussed include: #MECFS #PVFS #longCOVID #PTLDS #MS Access here: nap.nationalacademies.org/catalog/27462/… #MEresearch

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Royal Free 1955 @RFH1955

3 days ago

Thirty-five years ago today. Star-Phoenix, Canada. 28th April 1989. #ebv #chronicfatiguesyndrome #pvfs #mecfs #cfsme #myalgicencephalomyelitis #myalgice.

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Royal Free 1955 @RFH1955

7 days ago

Today, thirty-seven years ago. Coventry Evening Telegraph, England. 25th April 1987. #pvfs #myalgicencephalomyelitis #myalgice #cfs #cfsme #chronicfatiguesyndrome #mecfs.

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Dan Gmaj @dansoapbox

a week ago

My #HOPE would be that @UniofExeter use the correct language for starters! #LongCovid is #PVFS #PostViralFatigueSyndrome Like #ME #MECfs #EffectiveTeatment is complex. I suggest those responsible for this #Study do the #Trial 😇 @itvnews @MEAssociation @cfsunravelled @actionforme

ME Association @MEAssociation

a week ago

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Tom Kindlon @TomKindlon

a week ago

2/ This article summarises the literature on post-viral symptoms during past pandemics and supplements and illustrates it with Swiss examples from the pandemics of 1890, 1918–1920 and later. #PVFS #MEcfs

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It's M.E. Linda 💙 😷 @HappyHoundHouse

2 weeks ago

@sunsopeningband Medical professionals confirmed to me that #Sepsis caused a relapse of #MECFS (after a remission following my #PVFS 'recovery' from an unknown virus of June 2001) I do not have a 'strong belief' on the origins of my illness but documented professional medical opinions!

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Tom Kindlon @TomKindlon

3 weeks ago

New: An Unwanted but Long-Known Company: Post-Viral Symptoms in the Context of Past Pandemics in Switzerland (and Beyond) Free full text: ssph-journal.org/articles/10.33… #PVFS #MEcfs #CFS

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SuzⓋ🕊🍉🐶🦊🐳🌍🌱🐮🐷🐥🐝 @SooozeKerr

4 weeks ago

Please vote. Help with #ME studies will also help with #LongCovid #MyalgicEncephalomyelitis #pwME #MEcfs #CFS #PVFS #PostViralFatigueSyndrome

Emma 🛌♿🌱☮️♻️🍉 @emma_vegan_mua

4 weeks ago

Please vote. Help with #ME studies will also help with #LongCovid #MyalgicEncephalomyelitis #pwME #MEcfs #CFS #PVFS #PostViralFatigueSyndrome

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Lou💜 @LouNicholls

a month ago

I can’t deal with this anymore. It’s an utterly pointless, lonely cycle #pvfs #pwme #chronicillness

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Royal Free 1955 @RFH1955

a month ago

Today, thirty-six years ago right now. #mecfs #cfsme #myalgicencephalomyelitis #myalgice #pvfs #cfs

Royal Free 1955 @RFH1955

2 years ago

Today, thirty-six years ago right now. #mecfs #cfsme #myalgicencephalomyelitis #myalgice #pvfs #cfs

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CK @broomoftrigger

2 months ago

Every reminder of what it’s like to exist with #ME/#CFS/#PVFS-type syndrome illnesses helps reduce misunderstanding & raises profile of how badly sufferers have been let down by medical research. It’s a life of attempted existence against the odds. theguardian.com/society/2024/m…

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Tom Kindlon @TomKindlon

2 months ago

3/ The CDC found in their research that an earlier diagnosis led to a better prognosis in #CFS. This prompted them to run a multi-million dollar awareness campaign in the 2000s aimed at professionals & the general public to highlight the issue. #MEcfs #PwME #PVFS

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Tom Kindlon @TomKindlon

2 months ago

2/ I speak from personal experience. I became ill an infection age 16 but was given no name for it. Initially I was fairly mildly affected. Unfortunately without a diagnosis I deteriorated until I was diagnosed aged 22 & remained severely affected 🙁 independent.ie/life/health-we… #PVFS

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Lou💜 @LouNicholls

2 months ago

but I feel like our community is fractured because of the differences between our illnesses & the severity to which we suffer that some are accused of not actually being unwell & that makes it even harder to reach out or share our experiences. I’m so beaten! #pwme #mecfs #pvfs

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Royal Free 1955 @RFH1955

2 months ago

I’ve tweeted about the Tayside group questionnaire that was sent to UK PM Margaret Thatcher in early 1988. I’ve put part of it into a PDF file (dropbox.com/scl/fi/cilytzc…). #cfsme #cfs #pvfs #myalgicencephalomyelitis #myalgice #mecfs

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Royal Free 1955 @RFH1955

2 months ago

I must have posted this letter before (I’ve certainly posted the text) but I cannot find any tweet with the actual letter so here it is. I may post some of the questionnaire but it’s rather long. #cfsme #mecfs #myalgicencephalomyelitis #pvfs #cfs.

Royal Free 1955 @RFH1955

3 years ago

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Royal Free 1955 @RFH1955

2 months ago

Final three pages from the #myalgicencephalomyelitis Association AGM, April 1988. Includes James Mowbray. The location for this meeting, the Friends Meeting House, is here friendshouse.co.uk. #medtwitter #mecfs #cfsme #cfs #pvfs #chronicfatiguesyndrome #myalgice

Royal Free 1955 @RFH1955

2 months ago

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Royal Free 1955 @RFH1955

2 months ago

The ME Association Annual General Meeting, April 1988, London. Includes Melvin Ramsay, Peter Behan and Betty Dowsett. Part two tomorrow. #mecfs #cfsme #myalgicencephalomyelitis #myalgice #pvfs #chronicfatiguesyndrome #medtwitter