Long Covid Updates @UpdatesLong
Take a break from social media without missing any relevant #LongCovid updates. Subscribe and receive research news in your mailbox, link below longcovidupdates.beehiiv.com Joined August 2022-
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🚨 @TevogenBio to Study Therapeutic Potential of its Investigational #COVID19 T Cell Therapy in #LongCOVID Read the full press release here: tinyurl.com/43ksm2t6
@MarianTjaden @ErnstKuipersVWS @MinVWS Daarnaast reduceert Paxlovid kans om Long Covid op te lopen mogelijk met 26%, zou dus voor iedereen beschikbaar moeten zijn... medrxiv.org/content/10.110…
@KunstJonas "In addition, our study identified that longer duration of symptoms was associated with lower metabolism in identified clusters, which suggests that post-COVID conditions are becoming chronic." #treatLongCovid
Many people with #LongCovid seem to benefit from the Wim Hof Method. In this article a breakdown of the science behind the method. Possible explanations: it's proven immunomodulating effects and potential ability to improve blood flow to the brain. longcovidupdates.beehiiv.com/p/wim-hof-meth…
What #LongCovid immunomodulating therapies are being trialled? In this blog post you can find an overview: longcovidupdates.beehiiv.com/p/immunotherap…
@useless_priest It helps me as well. I wrote a blog article in which I break down the science behind it. It also includes a poll to see how other's experience it: fierce-law-757.notion.site/Wim-Hof-Method…
@riendebock Nr 3 moet deze zijn: researchgate.net/publication/36…
As a doctor if all you do is follow protocols why not replace you with a computer? It wouldn’t take 6 weeks to be seen by a computer only to find out it hasn't updated its knowledge in years. It wouldn’t take a computer 6 years to diagnose a “rare” disease either #LongCovid #POTS
@AaronTeasdale Ah, my bad. Thanks for letting me know. This one should work: longcovidupdates.beehiiv.com
Just published LCU#5, have a look at the latest #longcovid updates on published and planned research and trial data: app.beehiiv.com/posts/472f4459…
@YazanAbdullahMD @WesElyMD "I read all the time" 😂. Good boy! maybe try picking up something that is not a picture book next time.
@elleW902 I can do anaerobic exercise (bouldering) easily but absolutely no aerobic exercise (running). I think the problem for me must be oxygen related. During anaerobic exercise the muscles use glucose while oxygen is used during aerobic exercise.
@loscharlos I made notes of both podcast episodes, let me share them with you: fierce-law-757.notion.site/Dr-Brad-Nieset…
@D_Bone I use it daily. I figured maybe it can clear out residual virus trapped in the lungs, if that is a thing. Not sure whether it has helped me with LC, at least haven't got Covid since using it.
I collect research and trial data shared by the people I follow here and compile it into an email. I add a few sentences to summarize so you don't have to read the paper/abstract. Subscribe and take a break from social media without missing any important #LongCovid research.
@Naomi_D_Harvey Was on it for a few months. Felt like a silver bullet first few weeks, then stopped working completely. Not taking it anymore. Got it prescribed at a functional medicine clinic without GP on board. Built up to 4.5mg quickly with no side effects.
Take a break from Twitter. Get research updates in your mailbox. Subscribe now: longcovidupdates.com #FBLC #LongCovid #pwLC
Last week was eventful on the research front. If you want to stay up to date without having to sift through social media subscribe to #LongCovid Updates via this link: longcovidupdates.com #FBLC #pwLC
ahmed rouizi @AhmedRouizi
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Slavica @ozrock67
2K Followers 5K Following Not interested in being argumentative. If you disagree with my opinions or tweets, just scroll on by. None of my posts are assumed to be facts, merely opinions.
Emily @emily_3391
38 Followers 515 Following 🇨🇦 Canadian. 33 yo. Bedbound w severe long covid since '23. suspected POTS. prior social media manager. living w parents who don't understand this illness
Katherine Marie @LCRealTalk
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Maria Pastor @Drewhywhywhy
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carlos perez @Carlosfreedom10
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Josh Fox @joshfoxfilm
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LongCovidSpain @LongCovid_Spain
1K Followers 2K Following Dando voz a los pacientes e investigadores de #CovidPersistente #LongCovid Encuentra tu asociacion mas cercana en el link ⬇️
BreizhPowerGirl @BreizhPowerGirl
742 Followers 3K Following Bretonne #CovidLong depuis le 13/03/2020… Une vie suspendue… 5 infections #Covid19 au compteur #covidlong #longcovid #ApresJ20 #EM #SFC #pwME #MPE.
🕸️Dr.T, PhD @chydorina
18K Followers 6K Following PhD in Biology (not an MD). Cognitive health and chronic disease recovery.
Long Covid Kids Rep.o... @LCKIreland
1K Followers 2K Following LCK & Friends Ireland, Associate Acc @longcovidkids. Advocacy & support for kids with #PostViralKids #LongCovidKids #LCKfriends 🧡🧡
Covid Castaways @CovidCastaways
5K Followers 4K Following Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜Chronic disease & chronic pathogen advocate.
palash nagdevte @nagdevte_palash
44 Followers 1K Following
Long Covid Advocacy I... @LCAIreland
3K Followers 4K Following The voice for Long Covid in Ireland. A patient-led advocacy group fighting for awareness and adequate services in Ireland for all living with Long Covid
LongCovidPodcast @longcovidpod
5K Followers 3K Following Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
Gail Allyn Short @GShortWriter
211 Followers 568 Following I'm a #journalist, #content creator and #storyteller in Birmingham, Alabama. I help companies and nonprofits tell their stories.
Sonia @sonialexandra
1K Followers 5K Following My feminism includes everyone. No justice no peace ☂ Anything you send to $SoniaTF redistributed to the people!🍴🍵✊🏻
N Rog @Nc_Rog
1K Followers 2K Following Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. Sick since March 2020. Yes BEFORE the vaccine.
Aaron Teasdale @AaronTeasdale
2K Followers 862 Following Writer & photographer specializing in adventure, natural history, & conservation. Two-time Travel Writer of the Year.
Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #cripademia book club. 🛍️ https://t.co/8JlRWqy8Id
Lang Dominique @dlang57500
7K Followers 7K Following Ex-Conseiller municipal- ex-Secrétaire Général adj.Ordre National des Infirmiers- conseiller départemental ordinal - FF cadre hygiéniste #covidlong
Fuck Long Covid ❌ @fucklongcovid
4K Followers 3K Following exposed late january 2020, fucked up since march 2020. here to learn and make sense of what's happening inside us. longtime lurker. alt @cancellongcovid
Tevogen Bio @TevogenBio
621 Followers 222 Following Specialty immunotherapy biotech developing off-the-shelf precision #Tcell therapeutics in #oncology, #neurology, and #virology. $TVGN
Parexel @Parexel
12K Followers 1K Following Improving the lives of patients every day #withheart. #biotech #healthcare #lifesciences #innovation
covidwiki @covidwiki
1K Followers 30 Following Kennisbank COVID-19 met opinies, debunks en een knowledge base die continu wordt bijgewerkt. Het initiatief draait uitsluitend op vrijwilligers.
Ziyad Al-Aly, MD @zalaly
32K Followers 939 Following Physician-Scientist | TIME100 Health https://t.co/AXG4WotuRc Profile: https://t.co/ywweQn5DHA…
Mehdi Hasan @mehdirhasan
2.2M Followers 5K Following British-American journalist. Editor-in-chief and CEO of new media company @zeteo_news. Subscribe here: https://t.co/sEC1ETzeiV.
Dr. Glaucomflecken @DGlaucomflecken
686K Followers 430 Following Ophthalmologist. Comedian. Speaker. Tiktok. Contact: [email protected] Bluesky: https://t.co/XXBQPt82Qg
Eric Feigl-Ding @DrEricDing
761K Followers 15K Following Health & economic warnings. Health policy, epidemiology & finance data. Faculty/Chair of Public Health @NECSI. Fmr @Harvard @JohnsHopkins. (backup @EricDingEpi)
Dr. Pat Soon-Shiong @DrPatrick
156K Followers 2K Following Chairman of Chan Soon-Shiong Family Foundation, Exec Chairman ImmunityBio, Chairman and Chief Executive Officer of Los Angeles Times Media Group (LATMG)
Long COVID Nederland @LongCovidNL
5K Followers 1K Following Onafhankelijke patiëntenvereniging voor én door #longcovid patiënten. Volg ons ook op Bluesky, FB, LinkedIn en Instagram. Lid van oa PCNN en @longcovideurope
Siebe. @PatientPersists
2K Followers 804 Following I write the blog 'How to solve a disease?' with a focus on Long Covid & ME - rigorous science, clinical trial abundance, and effective advocacy.
Treat Long Covid @TreatLongCovid
2K Followers 146 Following Internationale initiative, with the goal to establish effective treatments for LongCovid and other postviral diseases as fast as possible. #TreatLongCovid
Aaron Teasdale @AaronTeasdale
2K Followers 862 Following Writer & photographer specializing in adventure, natural history, & conservation. Two-time Travel Writer of the Year.
Tjalco @tjalcovrv
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Carmen Scheibenbogen @C_Scheibenbogen
14K Followers 75 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
WesElyMD @WesElyMD
56K Followers 343 Following Husband & Dad. ICU Doc. Vanderbilt. @CIBScenter studies Covid & Long Covid, ICU Survivorship, PICS, Dementia, Delirium. Tweets my own. Still learning.
Cancel Long Covid @cancellongcovid
175 Followers 98 Following preposterous you would even suggest an affiliation with another account. how. dare. you! main acct @fucklongcovid
COVID-19 Longhauler A... @C19LH_Advocacy
9K Followers 8K Following We are a patient-led #LongCOVID 501(c)(3). Visit link below to learn more and take action this #LongCOVIDAwarenessMonth. #LongCOVIDAwareness #OneInfectionAway
John K @j_b_kennedy
17K Followers 6K Following I tasted chronic illness in the form of Long Covid. It tasted horrible. But I was lucky & improved over 4 years. Now I’m here for those still struggling
Long Covid Research I... @research_long
12K Followers 920 Following Research initiative aimed at basic science and clinical trials for Long Covid. https://t.co/QHcZmCJMJw
A. Mannan Baig (Ph.D.... @AMannanBaig
12K Followers 7K Following Consultant COVID-19 and Long-COVID. Employer Free status. Book for your Zoom session for Long-COVID and injuries related to S-protein in LC.
Eliana @ElianaUku
3K Followers 506 Following #LongCovid patient (mar '20); MBA candidate @StanfordGSB | ex @37angelsny @paypal @inturnhq
Dana Parish @danaparish
43K Followers 5K Following The Dana Parish Podcast 🎙️ : https://t.co/FSjDWcQPcw Bestselling Author 📖: https://t.co/mSsjINP4X1 📰: https://t.co/Oi3iDXQL9L
Stephen Davis @PlanetEarth_HD
7K Followers 1K Following Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid blue-sky address please add me @planetearth-hd.bsky.social
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Long Covid Advocacy �... @LongCovidAdvoc
15K Followers 13K Following A non-profit social enterprise dedicated to people with #LongCovid + #ME. 💙📚 Home to the #cripademia book club. 🛍️ https://t.co/8JlRWqy8Id
Prof Doug Kell CBE #F... @dbkell
14K Followers 10K Following I tweet in a personal capacity. ENTJ. CBE. Against brexit/Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Dr. Alice 💕 @calirunnerdoc
27K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
BODY POLITIC @itsbodypolitic
20K Followers 364 Following Grassroots health justice org at the forefront of the patient-led #LongCovid movement. Home of Body Politic COVID-19 Support Group. [email protected]
Erin C. Sanders, MSN,... @ErinSandersNP
18K Followers 8K Following Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT/Stanford | Connector | Healing in my Garden | #JusticeAccomplice
Cat (CovidSolidarity) @CovidSolidarit1
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Dr Elisa Perego @elisaperego78
36K Followers 1K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Fuck Long Covid ❌ @fucklongcovid
4K Followers 3K Following exposed late january 2020, fucked up since march 2020. here to learn and make sense of what's happening inside us. longtime lurker. alt @cancellongcovid
Naomi Harvey “PhD W... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Berlin Cures @BerlinCures
5K Followers 270 Following Berlin Cures ist ein junges Biotechnologie Unternehmen, welches das Therapeutikum BC007 gegen Autoantikörper induzierte Krankheiten erforscht.
CDC @CDCgov
5.5M Followers 244 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE4uoO
NIH @NIH
1.7M Followers 221 Following Official account of the National Institutes of Health. NIH...Turning Discovery Into Health®. Privacy Policy: https://t.co/wOGwZ3gX1M Engagement ≠ endorsement
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PolyBio @polybioRF
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Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Amy Proal, PhD @microbeminded2
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Long Covid SOS @longc... @LongCovidSOS
26K Followers 982 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation https://t.co/C4SrS4KEIu https://t.co/v7y3yvsceN
Long Covid Support @long_covid
30K Followers 2K Following UK charity dedicated to supporting people with Long Covid • Support • Research • Advocacy • Education •
Patient-Led Research ... @patientled
26K Followers 700 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!You might like
