Tanya Marlow @Tanya_Marlow
Writer | Broadcaster | Christian | Severe ME #MyalgicE #MEcfs #disability | Bylines @guardian @spectator etc | Author: Those Who Wait (and more) tanyamarlow.com UK Joined October 2011-
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Update - Jenny still suffering at a torture level :-( Hope this gets sorted soon and that @adrataicyf treat it as the emergency it is.
Update - Jenny still suffering at a torture level :-( Hope this gets sorted soon and that @adrataicyf treat it as the emergency it is.
This is important. I loved Baby Reindeer as an important story that needs to be heard, but I would be wary to draw any principles out of it. A lot of vengeful violent ex-boyfriends, for example. And female stalkers can also be as dangerous, mental illness or not.
This is important. I loved Baby Reindeer as an important story that needs to be heard, but I would be wary to draw any principles out of it. A lot of vengeful violent ex-boyfriends, for example. And female stalkers can also be as dangerous, mental illness or not.
I love this and wholeheartedly agree
SCOPE PETITION: Stop demonising us. @scope says: "Disabled people and people with mental health conditions must stop being seen as the problem by this Government. Proposals to curb PIP and change how people are assessed as unfit for work are dangerous." campaigns.scope.org.uk/page/148462/pe……
#MEAssociation Statement and Parliamentary Question: People with #MCFS at risk of starvation Recent cases of women with very severe ME/CFS being admitted to hospital have served to highlight just how badly they are treated when hospitals fail to adopt the very clear…
I joined #TikTok to invite @RishiSunak to coffee with me and a group of lived experience experts to talk about physical #Disability, #mentalillness (mental ill-health), #neurodiversity and financial trauma. Check out The Man in The Purple Hat's video! vm.tiktok.com/ZGeHsR5XM/
Also (final rant) the erasure of Covid in the minds of the government is WILD. You can literally see the BBC chart of ‘economic inactivity’ that it’s slowly falling until 2020 when it shoots up by 0.5 million people. Gee, I wonder what could have happened?
I also think it’s really hard living in a world right now where morality that should go without saying is being challenged (see Israel breaking international law and killing kids in Gaza, antisemitic violence in UK, anti-Muslim violence in UK, Rwanda deportations etc). So tiring
There is no such thing as “a sick note culture.” There is a record high NHS waiting list, crippling housing costs, widespread food poverty, stagnant wages and inadequate benefit rates, a broken social care system, dire mental health services, and closed Sure Start centres.
Matthew Syed has decided it's time for us to rethink compassion, in his attempt to provide a moral case for the government's plans to reduce disability benefits and to cast people that need benefits as lazy liars and selfish scroungers. "what we really need is a moral…
I enjoyed reading the competition winners and commended for National Poetry Competition 2023. But this one? Goosebumps. Unsettling, brilliant exploration of illness perceptions and how we see God. God has M.E. By @harrietjaepoet poetrysociety.org.uk/poems/god-has-…
@needs_light This is an article by @Tanya_Marlow which is a couple of years old now, and not about MP directly, but which I frequently go back to when this question and other like it are raised. tanyamarlow.com/5-stupid-thing…
The thread below is urgent and I’d appreciate you sending polite tweets to my MP @LSRPlaid and the housing association Adra @adrataicyf, asking for swift action on the points mentioned, to alleviate the torture FAO @Tanya_Marlow @jenbrea @DafoeWhitney
The thread below is urgent and I’d appreciate you sending polite tweets to my MP @LSRPlaid and the housing association Adra @adrataicyf, asking for swift action on the points mentioned, to alleviate the torture FAO @Tanya_Marlow @jenbrea @DafoeWhitney
Please lend your support to Jenny. It sounds like hyperbole to be tortured by noise, but her case is so unusually severe that it really is the case. @LSRPlaid - I beg you, please step in urgently here. @adrataicyf might actually kill my friend. Mitigations must happen NOW.
Please lend your support to Jenny. It sounds like hyperbole to be tortured by noise, but her case is so unusually severe that it really is the case. @LSRPlaid - I beg you, please step in urgently here. @adrataicyf might actually kill my friend. Mitigations must happen NOW.
Dr Krish Kandiah OBE @krishk
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1K Followers 3K Following Priest. School Chaplain. I use big words quite often in substitution for semantically equivalent words.@Tanya_Marlow I sometimes wonder how future biographies will be written, given the lack of written material that we're leaving behind. No letters, no school reports...
Suffering people often need others to have faith and hope for them. Admonitions to hope or trust only often result in despair; if the sufferers were able, they would do so. It is often helpful to say, “I know you struggle to hope right now. I will hope for you.”
@Tanya_Marlow Well said. I support adults with learning disabilities and lots would love to have a little job but there is no support for them to be able to have a job. Expensives claimed by greedy MP's or dodgy buisness dealings with relatives needs to be cracked down on!
@Tanya_Marlow This must be so heavy. I'm so sorry. We believe you, are for you, and want you to play whole, full roles in a flourishing society for all. You and your voice Tanya are so important, but the burden of using it must cost you dearly. Sending love. ❤️
I enjoyed reading the competition winners and commended for National Poetry Competition 2023. But this one? Goosebumps. Unsettling, brilliant exploration of illness perceptions and how we see God. God has M.E. By @harrietjaepoet poetrysociety.org.uk/poems/god-has-…
Really helpful from @Tanya_Marlow on this topic…
@needs_light This is an article by @Tanya_Marlow which is a couple of years old now, and not about MP directly, but which I frequently go back to when this question and other like it are raised. tanyamarlow.com/5-stupid-thing…
ICYMI: #MattSmith and #ThomasOstermeier talk all things #EnemyPlayLDN on @bbctodayprogramme 🎧
@EnemyPlayLDN #enemyplayldn Sent MY autograph and thanks via security… Grateful THAT #mattsmith reacted to my comment, IF it was scripted I was grateful HOW he reacted. An amazing show … as the curtain falls so happy people heard #dyspraxia & the #socialmodel of #disability!
The Redmans have been so brave in sharing what Mike Pilavachi did to them. There are so many leaders & organisations that I directly challenged a year ago to speak out. Now that the Redmans have spoken out, these people are keen to offer their support.
New Severity Scale for ME/CFS I wrote this new severity scale for ME/CFS about 2 years ago. I really wanted to express how severe the illness can actually get which is not at all reflected in our current mild-moderate-severe-v.severe scale. And I wanted to make it more…
WARNING AND OUR EXPERIENCE WITH VAGUS STIMULATION DEVICE (tVNS): I have been seeing some posts in the #longcovid and #mecfs community discussing and willing to try one of these devices. We purchased one (just the device was €4000, with all equipment it was €5000. I know there…
@katienorouzi @UCCF @naydawson Thank you for your courage in speaking out. Every person like you who brings their story into the light deserves recognition, validation and an apology that speaks to their individual experience. Anything short of that risks being simply window dressing.
@DafyddJob @NicolaLaver @DanLeafe1 @Tanya_Marlow @UCCF @sleafe97 @ChristianToday @EvangelicalsNow I understand your fear. But right now I feel that UCCFs refusal to apologise directly and properly to individuals who have been hurt is what is affecting their work. It is not the responsibility of the abused to keep quiet, but the responsibility of UCCF to own up.
@DafyddJob @Tanya_Marlow @UCCF @sleafe97 @ChristianToday @EvangelicalsNow Delighted to recognise this but it also risks buying into the @UCCF message, shared by many others, that its all about 'students hearing the gospel'. It isn't. It's about doing His work His way. That is what glorifies God most & I'm not sure @UCCF gets that.
@DafyddJob @Tanya_Marlow @UCCF @sleafe97 @ChristianToday @EvangelicalsNow It isn't 'a number' it's a lot. And it isn't 'recent years' it's 2 decades. Those who want @UCCF to do 'wonderful work' won't hide from that.
@DanLeafe1 @UCCF But also, if Katie had spent the last decade and more criticising UCCF to anyone who’d listen, it wouldn’t make their actions any better - their sustained actions are awful, without qualification or defence
@phillsacre @IrreverendPod @JamieFranklin40 During a rather sleepless night after listening to some @UCCF ex staff I did some maths. In the last 6 yrs or so I think my wife & I have had direct personal contact with upwards of 200 survivors of about 25 Conevo scandals (of course some overlap). That's why 'systemic' is right
Katie was one of my staff workers as an undergrad. I was shocked to read this and would suggest folk continue to pray for the UCCF situation.
A while ago I worked for @UCCF as a staff worker.After @naydawson shared her story,I felt it was time to share mine.I feel no bitterness nor desire4revenge but I hope my voice will bring comfort to others who were hurt&that it might contribute more widely. premierchristianity.com/opinion/uccf-p…