Rhi @RhiaRhiaRhi
Any pronouns. Bsc, PgDip Molecular Biology. Neuroscience Nerd & Science Communicator. Eternally trapped at VUW. Joined December 2014-
Tweets18K
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Recruitment for our recent Mason-funded ME/CFS biomedical study in VIC, Australia is LIVE! Please get in touch if interested or have questions. Some more info: docs.google.com/document/d/1-2… #MECFS #LongCovid #Victoria #Science
Penelope perfectly illustrates the differences in ME -PEM and the forms of PEM being referred to as occurring in other conditions. No other disease has a form of PEM that can worsen your whole condition, take away the ability to speak or chew, last months or longer etc.
Penelope perfectly illustrates the differences in ME -PEM and the forms of PEM being referred to as occurring in other conditions. No other disease has a form of PEM that can worsen your whole condition, take away the ability to speak or chew, last months or longer etc.
"Here we present recent findings in ME/CFS research focussing on proposed disease pathologies shared with long COVID." #MECFS #LongCovid cell.com/trends/molecul…
Taking a break from here, but wanted to share this... Trained a technician for 8 months in microscopy to analyze some brain slides for me. Tech left the lab after their first box of #COVID brain slices and left me this card on my lab bench space. Now imagine the life of…
Managing a severe chronic illness: dozens of medications and supplements, doctor's appointments, researching treatments, managing side effects, paperwork, blood draws, etc.. sometimes feels like a job you don't like but can't quit. #longcovid #mecfs
I think my mother declining is triggering my parental loss wounds coz my brain keeps making me picture her loss Thanks crashy trauma brain
Out of interest, how often have you had covid? Please re-tweet for reach, and only vote if you live in Aotearoa. Thanks 😊
can i come over and stare at you like this
KP.2 is one of the most immune-evading variants to date
KP.2 is one of the most immune-evading variants to date
It’s begun: In UK filing, #AstraZeneca admits for first time its #COVID #vaccine can cause rare side effects. #Thrombocytopenia #VITT #TTS #TeamClots #Thrombosis theage.com.au/world/europe/a…
*spins headline slot machine* quiet quitting... caused vaccines... to go woke ??? look, just run it. and don't forget the 'experts say'
Crashing unsure if I went up ketotifen dose too quick or because I tried to help my back last night so I had pem in my arms But I’m fully non stop tachycardic now
Complex illness patients worldwide need WAY MORE SUPPORT. Our family caregivers - especially for those who are severe - are not okay. #Care4Complex (only just occurred to me to leave off the province/country so we can use this hashtag for a global movement!)
my literal favorite bitch. suppository night goblin heathen worm queen of wet earth. dunce of dunces and blight of all birds. spirit sister of the turgid rat, eye of the hidden, long forgotten matriarch of the oldest failures of god. final diamond at the end of time. the Kiwi
my literal favorite bitch. suppository night goblin heathen worm queen of wet earth. dunce of dunces and blight of all birds. spirit sister of the turgid rat, eye of the hidden, long forgotten matriarch of the oldest failures of god. final diamond at the end of time. the Kiwi https://t.co/WEsmVv2AU1
Ur brain is a god damn nuclear power plant being run on backup generators rn. SHUT. IT. DOWN. and TAKE MAGNESIUM DONT ASK ME WHY UR LIL MITOCHONDRIA JUST NEED IT SO TAKE IT
Why must I be guaranteed a bunch of side effects taking meds So unfair
Why do people get soooo offended by someone protecting their health? I'm completely baffled.
Annnd my mum fed me raw chicken If I get salmonella don’t think I’ll live through it
cool timothy @dreadconquest
8K Followers 3K Following ngāpuhi māori & west auckland white trash scab merchant. https://t.co/kLsZT2S4r5 co-host @red_planet_tv, making @darkrpg2000
B @barbarikkizzle
2K Followers 935 Following union hard, Rewa hard. big fan of women's rights. not a narc unless u break a waste bylaw. views not my employers! @augurdivine ❤️🔥
Dogman OFFICIAL @GokuSpiritBong
802 Followers 599 Following official account for sightings of the Dogman
Abigail 🌹 @abigail1963
10K Followers 2K Following Come loose your dogs upon me?? 🥹👉👈 https://t.co/EHJkKSmjWf
Te Rangikaiwhiria Kem.. @Te_Taipo
17K Followers 4K Following find me on Bluesky @taipo.bsky.social tautoko mai https://t.co/62lqloaNo9
trash bandicoot from .. @_trashbandicoot
2K Followers 445 Following film/audio/music education spaces | manic pixie emo girl | she/they | trans rights are human rights
stuart! @stuartfdrake
754 Followers 527 Following a work of non-fiction. completely alive and for real ~ he/him
Kyle Church @KyleDChurch
4K Followers 4K Following your friendly neighbourhood co-founder and producer of the independent media and politics @1of200podcast
Sam 7 @nomallnogardens
261 Followers 415 Following Sam! you know who, sound woman, word sayer, funny disposition, 26. 'impress'
hikikomoriana grande @mothmaam420
399 Followers 291 Following terminally online // https://t.co/AmzcIjnxGl
Power Nap @ChrisCudby
1K Followers 907 Following Power Nap / Airwalk / A Secret Third Thing He / Him ~ Editor & writer for UTR ~ Personal acct.
trash 👽 @hoygenius
656 Followers 1K Following
Justine @kvetchings
9K Followers 4K Following Unionist and socialist. @nzstandup co-convenor. Founder of Dayenu: NZ Jews Against Occupation. Gives workplace advice fortnightly at @95bFM. Opinions mine.
Rhia Stelzl @RhiaSte
50 Followers 5K Following
Grace Nissila @GraceNissi93667
90 Followers 5K Following
Philly Golden Teacher @phillygold_01
2K Followers 1K Following I ❤️🍄& teaching. Documenting my psychedelic journey experiences through time lapses. Click on the link on my bio to join my telegram channel
Kelvin @Eileen109560322
32 Followers 1K Following I am a lively and cheerful girl who would like to meet a good friend.
KatMcCarthy @KatMcCarthy_
70 Followers 264 Following Queer socialist health-nut with an addiction to sugar. invisibility disabled, visibly awesome. Ex-biologist, ex-model, ex-wife. I make stuff.
Nicole #KeepMasksInHe.. @chronicoley_me
154 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.
wil michael @wilplatypus
7K Followers 6K Following 21e8🍊 All our knowledge has its origins in our perceptions -lv
sean stidston @seanstidston
230 Followers 994 Following
Rachel Schraer @rachelschraer
12K Followers 3K Following Senior reporter for @BBCNews covering health, misinformation & internet culture. Making radio for @BBCTrending. ✍[email protected]. uk
Sabrina Poirier (On H.. @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Emily Johnson (is on .. @emily_rj
8K Followers 6K Following Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
oakleigh 🐀 @oaklleiigh
496 Followers 442 Following average wellington import (beer enjoyer, degree haver)
Ry @ry60003333
495 Followers 2K Following 🍎 engineer (opinions are my own). Former game dev student @RITtigers and startup co-founder at Venture Creations. Frozen fan 💙 Pfp credits to @frostharmonic!
Testsubject X1 @TestsubjectX1
189 Followers 414 Following
Amy 🦕🐈 @whisper447
454 Followers 2K Following Uk, Spoonie, Crafter, Cat lady, Amateur cryptozoologist, History lover. She/her.
padre @hanauchocolat
228 Followers 1K Following i like shakespeare, lipstick, buildings, books and binge-watching. bit of a mess. chronically ill with ME/CFS ✌🏼 fan of civil conversation
eggy @cappucinocloud
61 Followers 416 Following #ActuallyAutistic #pwME hooman bean. cat & dog parent. amateur bird watcher. invisible.
Ina @Ina_Luftschloss
774 Followers 2K Following Building castles in the sky. A hodgepodge of things that interest me.... at the moment mainly UAP, NHI, nutrition, Zen, AI and polyamory. 🫶🛸✨
Elke Asen @ElkeAsen
2K Followers 3K Following MSc in Economics Student @LSEEcon | former tax policy analyst @taxfoundation | Life on Pause since Dec ‘21 due to #LongCovid
⛵️ Capt. Caffiend.. @Capt_Caffiend
2K Followers 1K Following She/Her. Likes Coffee, Cake, Canines & Curse-words. Pākehā. PhD Student. Feminist Killjoy. #pwLC. Keep in touch via: capt_caffiend-hello at yahoo dot com
Lou Thornley @Lou_vs_ME
387 Followers 677 Following Public health, science communication. ME/CFS, Long Covid. Global research gems. Nearby nature pics.
Eleni @eleni_nyc_
164 Followers 720 Following Here for the latest science, medical updates & support 🧪 🧬 😷 💊 🦠 LC deniers, minimisers & trolls=blocked & flagged (flogged would be more appropriate)
Lock'dInKim @lockdinkim
187 Followers 959 Following Best tasting 💯% #natural #Hydrogen-Rich #Water 💦 Kick #chronicillness to the curb! @TopazStudiosCom • Not financial advice $ltnc • Save 10% code: TOPAZ-LC2024
Yellow @Yellow989593
0 Followers 46 Following
Zaid @ZFGooner
49 Followers 300 Following Law graduate working in Legal/Fin Tech. Life unfortunately on pause due to #LongCovid since Dec 2021.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Charity 🫦 @Charity5366
2 Followers 483 Following Nаughty nymрh always оn the loоkout for steаmу enсountеrs
Tamara Jade @xTamaraJadex
491 Followers 2K Following Aspie mama of 1 amazing aspie teen girl ♥️...& 2 nutty Staffies🐾😂
WhiteAngels @CardosoPedroMi1
64 Followers 734 Following
Sam @sublimepilgrim
4K Followers 3K Following Security Engineer, MSc Cybersecurity. Long Covid, Vaccine Injury, ME, POTS, SFN. Will not be fallen by the wayside
Neha Jain @lifesciexplore
1K Followers 3K Following Freelance Science Writer. Bylines: Mongabay-India, SCMP, SciDev, Hakai, UNDRR. Climate | Conservation | Environment | Former Cell Cycle Biology Researcher
Mountain life @mountainkeep
611 Followers 2K Following Interest in Infectious disease's role in neurological conditions & mental health, ME/CFS, Lyme, Mold, Metabolic health, Microglia run the show
LG @a_progressives
431 Followers 2K Following 22 with #MECFS #MCAS & #POTS since 2020 #PwME Pass #MedicareforAll 🩺
Crunchie @s_carinci
39 Followers 2K Following
Carma Fiera @CarmaFiera
35 Followers 340 Following zeitgeist surfing. #LongCovid #FuckCancer Tired and retired. Libraries, cats, peace. Kndness first always.
sarah @twenty7angels
28 Followers 187 Following
Hippopotamus Rising @HippopotamusRi1
1K Followers 1K Following Professional Connector of Dots and Mad Scientist, just trying to do my part and stop the Weaponization of science Apathy is the mind killer.
After Dinner Conversa.. @AfterDinnerCon
33K Followers 30K Following Philosophy | Ethics Short Story Literary Fiction Publisher. Top 10 (Chill Subs) LitMag 2023, books, & podcasts. $ subscriptions (& Patreon) pay writers.
Andrew Isaac @AndrewIsaac1974
112 Followers 590 Following Medic, Welsh, musical theatre fan. nuff said for now
I🖤 @inadarkroom247
907 Followers 311 Following 25, UK and Dying from covid induced very severe ME. POTS + mild MCAS. FUNCAP 1.2
Beep @mutedragon
62 Followers 287 Following
T @Yrrepmot
344 Followers 1K Following Gardener 🌱weather fanatic ❄️ lefty+ ✊🏼 gay🔺MUFC mad 🇾🇪, ADHD, co-morbid 💀: ME, HIV+, hEDS, Fibro, complex mental health 🙃
Thanks @Thanks08401723
80 Followers 388 Following
B @barbarikkizzle
2K Followers 935 Following union hard, Rewa hard. big fan of women's rights. not a narc unless u break a waste bylaw. views not my employers! @augurdivine ❤️🔥
disasteradio, eyeline.. @disasteradio
6K Followers 2K Following him musician, in two solo projects Disasteradio (synthpop) & Eyeliner (midi jazz vaporwave) from Aotearoa New Zealand
Dogman OFFICIAL @GokuSpiritBong
802 Followers 599 Following official account for sightings of the Dogman
Abigail 🌹 @abigail1963
10K Followers 2K Following Come loose your dogs upon me?? 🥹👉👈 https://t.co/EHJkKSmjWf
Te Rangikaiwhiria Kem.. @Te_Taipo
17K Followers 4K Following find me on Bluesky @taipo.bsky.social tautoko mai https://t.co/62lqloaNo9
trash bandicoot from .. @_trashbandicoot
2K Followers 445 Following film/audio/music education spaces | manic pixie emo girl | she/they | trans rights are human rights
stuart! @stuartfdrake
754 Followers 527 Following a work of non-fiction. completely alive and for real ~ he/him
Kyle Church @KyleDChurch
4K Followers 4K Following your friendly neighbourhood co-founder and producer of the independent media and politics @1of200podcast
Marc Daalder 😷 Wea.. @marcdaalder
15K Followers 2K Following Senior Political Reporter @NewsroomNZ covering climate change, health, violent extremism & misinfo, tech and energy | DM for Signal | #WearAMask | He/him ✡️
Sam 7 @nomallnogardens
261 Followers 415 Following Sam! you know who, sound woman, word sayer, funny disposition, 26. 'impress'
hikikomoriana grande @mothmaam420
399 Followers 291 Following terminally online // https://t.co/AmzcIjnxGl
Power Nap @ChrisCudby
1K Followers 907 Following Power Nap / Airwalk / A Secret Third Thing He / Him ~ Editor & writer for UTR ~ Personal acct.
Russell Brown @publicaddress
77K Followers 2K Following Journalist, rider of bikes, cooker of food, dad-DJ, seeker of joy. @publicaddress.bsky.social https://t.co/vvQNGvH9eX
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Nicole #KeepMasksInHe.. @chronicoley_me
154 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.
KatMcCarthy @KatMcCarthy_
70 Followers 264 Following Queer socialist health-nut with an addiction to sugar. invisibility disabled, visibly awesome. Ex-biologist, ex-model, ex-wife. I make stuff.
cirsxofficial @cirsxofficial
49 Followers 11 Following CIRSx: Advancing the science to treat, educate, and serve those suffering from Chronic Inflammatory Response Syndrome (CIRS)
ACAB AUD 🖤 FREE PA.. @audisdead
4K Followers 5K Following odd is the name 🏳️⚧️ post-gender. 1312. BLM. science🤝spirituality. ♌☀️ ♍🌙 ♊↑ QUEER. AUDHD. WEAR A MASK. DISABLED IF U CARE. FMS/EDS. pinned tweet: resources
Dr LG @subversivepsych
4K Followers 5K Following 🇮🇪➡️🇪🇸Dr(MD/MRCPsych) BSc(Hons)Pharmacol. Not medical advice. Life on hold. SARSCoV2 04/20 #LC #MECFS #CH #coagulonaut p/t #sloth 🦥 #endmedicalgaslighting
♝ 𝔄𝔩𝔢𝔵�.. @aalexandriabish
52K Followers 446 Following Film | SFX Makeup Artist | Sculptor | Illustrator | NO DM’s, email only for business inquiries
Sabrina Poirier (On H.. @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Dr.beauty 🇵🇸 @asdrawingaf
23K Followers 57 Following 🥛Nutrition| 🏇Movement | 🦷Dentistry| 👃🏻Breathing|💄Beauty -Not medical advice
Greer @mitd_greer
183 Followers 215 Following wife, mom, lifelong athlete. severe acute covid left me sick and disabled. #longcovid
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Rene Sugar @renesugar
4K Followers 4K Following
Emily Johnson (is on .. @emily_rj
8K Followers 6K Following Digital journalism. Design, news/book edits, linguistics, data, tech. Medical + academic research. Disability in news consults. @the_dailydis. #CripTheVote
Paul Gads @PaulGadsden82
860 Followers 826 Following Golf fan. Food fan. Animal fan. Mostly bedbound due to severe ME. Also MCAS. Quite dull.
oakleigh 🐀 @oaklleiigh
496 Followers 442 Following average wellington import (beer enjoyer, degree haver)
Lou Thornley @Lou_vs_ME
387 Followers 677 Following Public health, science communication. ME/CFS, Long Covid. Global research gems. Nearby nature pics.
Kendra F @SurvivingCFS
4K Followers 5K Following Disabled for a decade due to MECFS| Escaped homelessness | I’m advocating for those who can’t | See highlights tab for my free masking and disability art.
Mountain life @mountainkeep
611 Followers 2K Following Interest in Infectious disease's role in neurological conditions & mental health, ME/CFS, Lyme, Mold, Metabolic health, Microglia run the show
TopazStudios.com @TopazStudiosCOM
2K Followers 5K Following ONE chronic #illness to #disabled—follow @RenegadeRes—#longcovid #ckd #IgG #kidney #mecfs #pots #mcas #dysautonomia #pem #mitochondria $ltnc #lockdin #health
Cortney Gensemer, PhD @CortDoesScience
7K Followers 937 Following Postdoctoral Fellow at MUSC | Driving Research Progress in the Ehlers-Danlos Syndromes | Passionate about Science Communication and Education
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Mike S @MichaelSpurrie3
137 Followers 387 Following CFS/ME Pandas/Pans IIH Jugular compression Chronic Headache Persistent neurological lyme disease Noticed symptoms at age 11 now 30 Sci-Fi Lover RPG gamer
Stella Huggins @StellaR_Hugs
173 Followers 562 Following science communication, 95bFM Breakfast producer, media accessibility and healthcare access research in aotearoa 🐡
Elliot Overton @EO_Nutrition
12K Followers 464 Following Founder of EONutrition & Objective Nutrients || Thiamine supremacist
Socialist Equality Gr.. @SEGNewZealand
728 Followers 201 Following The SEG is fighting for a party based on internationalism and socialism, the NZ section of the International Committee of the Fourth International. https://t.co/HTYXPzN6qH
Amanda Bennett @AmandaB55744931
1K Followers 253 Following Usually up mountains, sidetracked by long covid since Dec 2020 (infection Mar 2020). @[email protected]
MarliesKdG @MarliesKdG
723 Followers 520 Following True: climate change ☹️ my three curlyheads ❤️, liquorice, knitting, gardening, CCL, Home Sweet Home. False: cellphone, alcohol, chocolate. @Mastodon en Bluesky
mask on😷no cap™�.. @trulleyamazing
278 Followers 277 Following here to bring clarity🔮healing from LC, ME/CFS, audhd burnout, & a bunch of other diseases probably. regaining my power back, & welcoming in the rEVOLution🍉
Julie 🚀🌕 for LC.. @dualiejulie
1K Followers 1K Following In LongCovid/ME hell looking for a way out! 🫠 First waver. We need research funding to find treatments. Severe, 26, former engineering student
Lena @Lena9534
1K Followers 122 Following once bedridden with very severe #longcovid #MECFS now healing. 🌟 🌊 Mold avoidance 🥩 Carnivore diet IG: Lenas_healingjourney
Vladimir Jenin @VladimirJenin
783 Followers 368 Following Painfully correct in every opinion. Māori / Pākehā / Misc. Māmā. Tattooer. radical leftist. I was in Viva once
deftonesfan69 @deftones_fan420
17 Followers 16 Following
Todd Maderis, ND @dr_todd
3K Followers 224 Following Specializing in treating the cause of complex chronic illness #LymeDisease, #MoldIllness, #MCAS #LongCOVID #MECFS #autoimmune
Hera 👑 @its_not_lupus
2K Followers 431 Following 🐀Noted chaos tulpa 🪼12,301,320 undiscovered jelly fish go to hell ❤️🩹Fix your hearts or fuckin die. 🧴Epidermis nerdis 🏞️ https://t.co/ybtpyR4M69
Andy @yowhatsupimandy
83 Followers 126 Following
Emma, thechronicsurvi.. @chronicsurv1vor
58K Followers 45K Following Aspiring Author ✍🏼📖 |Singer/Actress, Trainee Therapist on hold due to #MECFS ♿️ for 6 years | #POTS / #IST✨Spiritual Awakening. Lessons from the void. 💖
Veronica @celestialbe1ng
43K Followers 591 Following Health researcher. Reclaiming your metabolism, youth and beauty with bioenergetics. 🍇🍯🦪🥛🌞🥥🍊 Fish oil disrespecter. | Liberté. 🏴
Olena ‘Olenka’ Sa.. @coco_chatel
3K Followers 1K Following Ukrainian-American. Theater nerd/former arts administrator. Left-ish Libertarian-ish. Life on pause due to #LongCOVID. Wife to @max_e_rodriguez
Toby Morris @XTOTL
15K Followers 559 Following Cartoonist, illustrator, sometimes writer, sometimes animator.
Gabriella @hinetumakerita
856 Followers 639 Following mai te awa ki te moana / aga'i mai le vaitafe e o'o atu i le sami
Ko 🦌 | COMMISSIONS.. @bbqcosmonaut
1K Followers 266 Following russian + evenki artist ❄️🌌 | 22 | comms are open | dm 2 purchase
nancy klimas @ngklimas
1K Followers 62 Following Director, Institute for Neuro Immune Medicine,KPCOM Nova Southeastern University and Miami VA Health Care System
i see the dystopia fr.. @DeMercy_
1K Followers 714 Following 22, HoH, AuDHD, long covid, 18+, white, so-called US
Increasingly I've been realizing that the healthy world sees meeting with family and friends as my 'silver linings,' while it's actually the opposite. I go from PEM to PEM and I cannot wait to have an empty schedule again so I can return to my (shitty) baseline. #MECFS
this is Franklin’s killer, Jack the Rip-purr
OH MY GOD YOU GUYS IM SCREAMING FRANKLIN GOT MURDERED BY THE NEIGHBORHOOD CAT ON HIS FIRST FLIGHT OUT OF THE NEST OH MY GOD
@doyouseem_e_now All ME has a poor prognosis, we all have a poor prognosis after we’ve been affected for more than 2 years. That’s just how it is. Things might happen to change that, yes, and there’s cause for hope for improvement, yes of course there is. But based on current options, it’s poor.
VIC, Australia: MECFS study recruiting - Importantly, includes home visits for Severe patients 👏👏👏 Please do look into whether you can join this one.
Recruitment for our recent Mason-funded ME/CFS biomedical study in VIC, Australia is LIVE! Please get in touch if interested or have questions. Some more info: docs.google.com/document/d/1-2… #MECFS #LongCovid #Victoria #Science
@Becs In Rarotonga there are no retirement villages. Multiple generations live together and when a family member dies they’re buried on the family property
@Becs Totally. Retirement Village you have a licence to occupy your own house/unit with bathroom, kitchen. Independent living. No need to socialise if you dont want to. Rest home has care staff and you have a bedroom and living areas are shared. In general.
Both of my parents (77 & 86) are so ewww about retirement villages. Can't say I blame them. I'm not convinced that siloing elderly people is good for our communities or them.
@PicoPaco17 It's crazy to me how the Polynesian culture spans thousand of miles of open ocean
UPDATE: SOFIA IS SAFE!!! 🥹🥹🥹
mom came back to an empty nest and is calling for her babies I’m literally inconsolable right now this is brutal my heart is aching
Socialized mitochondria: mitonuclear crosstalk in stress | Experimental & Molecular Medicine #GroupTheoryOfAging. nature.com/articles/s1227…
@ClagueNjc36 No article I’m afraid but my breast cancer specialist said she’d operated on a disproportionally large number of ME women with breast cancer.
WEAR A FUCKING P100
VIDEO THREAD: Police deployed tear gas this afternoon against a circle of University of South Florida students attempting to set up a pro-Palestine encampment on their campus, their second time trying in two days. Filmed by @davedeckerphoto for @N2Sreports
The International Consensus Criteria diagnose ME. Every pwME would profit from reading the IC Criteria & Primer to know about the illness they have. It would help them understand the terminology & to differenciate btw theirs and others diseases.
How long until pwME get it that what they have is PENE, not PEM? They. Are. Not. The. Same. PENE: Post Exertional Neuroimmune Exhaustion, specific for ME, objectively measurable pathology. PEM: Post Exertional Malaise, unspecific, subjective feeling. Read the ICC.
Seems like someone recently using PEM to describe their post cancer fatigue may have been justified in using the term but I still don’t think that it should be used for other diseases. The PEM we get in ME is a severe, disease altering state. It’s nothing like other diseases.
I ocasionally overhear someone's biology lectures, and I'm surprised how often phrases like "We don't yet know what this is/does" drop. Talking to medics, you'd get the impression human biology is a solved field, and extant nosological paradigms are as good as they can ever get.
I get it
This man resigned from Microsoft after 22 years, just to become a farmer 😭
Penelope perfectly illustrates the differences in ME -PEM and the forms of PEM being referred to as occurring in other conditions. No other disease has a form of PEM that can worsen your whole condition, take away the ability to speak or chew, last months or longer etc.
@lifeanalytics 1/3 To me, PEM is distinct. I have observed at close hand my mother's cancer-related fatigue and I had Lyme for 28 years before it was diagnosed and treated successfully. What is unique to PEM and thus to ME/CFS? Plenty. Delayed onset, prolonged recovery, all symptoms worsen, ...
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