Covid-19 Patient Stories @RecoveryCovid19
A resource for those recovering from Covid-19. Find out more about what a recovery journey can look like and share your own recovery story to help others. covid19-recovery.org Sheffield, UK Joined June 2020-
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We've recently had some more submissions to the website, which we will share over the coming weeks. If you wish to share your stories of recovery from Long Covid, you can still do so here: covid19-recovery.org/your-story/ #LongCovid
We've been contacted by a team at Hong Kong Polytechnic University @HongKongPolyU wanting to conduct research into cognitive linguistic difficulty associated with Long Covid. If you'd like to take part in the research, you can find it here longcovid19.wixsite.com/survey #LongCovid
Join @BBCPanorama this Monday at 8pm for an insight into frontline workers, long Covid and what we need to do to support them. @AppgCoronavirus has helped as much as we can and are grateful to BBC for giving this issue the attention it deserves bbc.co.uk/programmes/m00…
Our first new story to be published in some time. Read Keith's story of recovery from Covid: covid19-recovery.org/stories/keiths… At 72 and immune suppressed due to treatment for arthritis, Keith has had a rough ride with Covid. #LongCovid #PatientStories #LivedExperience
We've got plenty of stories that we've share here: covid19-recovery.org/stories-catego… But any further raising of awareness & understanding of living with Long Covid will only benefit those that suffer from it. Share your experiences with @guardian via the form below. #LongCovid
We've got plenty of stories that we've share here: covid19-recovery.org/stories-catego… But any further raising of awareness & understanding of living with Long Covid will only benefit those that suffer from it. Share your experiences with @guardian via the form below. #LongCovid
We still receive updates from those that submitted recovery experiences. Today we are sharing Catherine's update: covid19-recovery.org/stories/cather… As Catherine continues to recover from Long Covid, a recovery that encompasses many different symptoms. #LongCovid #LongCovidrecovery
We're re-sharing one of our other early stories submitted of Long Covid recovery today, as people continue to recover from various variants of Covid. This is Michelle's story: covid19-recovery.org/stories/michel… With lots of desk driven research of symptoms at the time. #LongCovid
Delighted to say our research paper on invisibility & epistemic injustice has been published in Health Expectations @WileyHealth onlinelibrary.wiley.com/doi/10.1111/he… Thank you @SHCFundraising for help make this happen Thank you to all those that submitted their experiences of #LongCovid 🙏
If you've experienced Long Covid, particularly if you believe (as testing was minimal then) were originally infected with Covid more than 18 mths ago, do share your story for the benefit of others & as a record for potential research purposes covid19-recovery.org/your-story/ 🙏 #LongCovid
Today we're re-sharing one of our co-founders Long Covid story again, as a reminder that many continue to experience the affects of their original Covid infections. #longcovid covid19-recovery.org/stories/janes-…
In our first update for a while, we're sharing Naomi's story. Naomi is now in the 85th week of recovery from suspected Covid, a long recovery journey for anyone to experience. covid19-recovery.org/stories/naomis… Wishing you the very best Naomi. #LongCovid
Today we're publishing Melanie's story of Covid recovery covid19-recovery.org/stories/melani… As part of Melanie's ongoing recovery, Melanie found a particular technique to help with the symptom often referred to as "brain fog" #LongCovid #livedexperience #patientstories
Today we're sharing Jackie's story of recovery covid19-recovery.org/stories/jackie… Jackie's Covid illness was from 2021, but Jackie is in week 13 of recovery already. As the mother of someone extremely vulnerable, it wasn't her health that was her initial concern. #LongCovid #PatientStories
Read Linda's story of Covid recovery covid19-recovery.org/stories/lindas… an initial infection back in April 2020, Linda is still dealing with her recovery. Working on a Covid ward, Linda has seen & experienced the impact of Covid on herself & others first hand #livedexperience #LongCovid
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Long Covid SOS @LongCovidSOS
27K Followers 939 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Prof Nisreen Alwan �.. @Dr2NisreenAlwan
82K Followers 5K Following Public Health Professor MBE. My words=my PERSONAL views. RT≠endorse. Other SM: @[email protected], nisreen.a.alwan @Threads, https://t.co/yfWKMqZjXJ
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Stephen Davis @PlanetEarth_HD
7K Followers 1K Following Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid
Morgan Stephens @morganstephensa
14K Followers 2K Following chasing around the White House @business, poet debuting TILT (Aldrich Press 2024), previously @cnn, #LongCovid advocate
Jon Wright 🇬🇧�.. @Wright1983Jon
1K Followers 1K Following Rail Worker, Engineering Geologist, Former Cyclist, Labour Party Member, #DRFC Fan. Proud to be British.
Diana (Berrent) Zickl.. @dianaberrent
28K Followers 2K Following Founder of @Survivor_Corps. 29th Greatest World Leader as per @FortuneMagazine. Takes good selfies. Mom of two awesome humans.
🏴�.. @MaryGR65
2K Followers 1K Following Covid/Long Covid 3/2020 Retired Nov 21 #NotRecovered Advocate #LongCovid Mom to 1 son Supergran to 3 beautiful grandkids 5-18yr 4🐈 @[email protected]
Darren Brown @darrenabrown
10K Followers 6K Following Physiotherapist | @thecsp Fellow | @HIVandRehab Elisse Zack Award | @WorldPhysio1951 International Practice Award | @LongCOVIDPhysio past Chair | 🇬🇧🇮🇪🏳️🌈
Sara #FBLC @Sarasearching
3K Followers 2K Following Nov'20 I was fit, healthy & ran 50miles for charity that month...then bed/housebound for 19mths #LongCovid Re-infected June'22 & Feb'23 🙏 #LongCovidHope 💛
Roweena @r2ph
5K Followers 5K Following Liquorice addicted Irish lesbian feminist dyslexic foodie with achalasia. Owned by Pixie Drama my cat. Trinity College Dublin. #LongCOVID #TreatLongCovid
Philip Stewart @PhilipS02138097
601 Followers 1K Following
carlos perez @Carlosfreedom10
64 Followers 2K Following
Recovery-Stories @EKayacc8017
0 Followers 7 Following
BreizhPowerGirl @BreizhPowerGirl
785 Followers 3K Following Bretonne #CovidLong depuis le 13/03/2020… Une vie suspendue… Omicron 29/01/2022 et 07/12/2022 #Covid19 #covidlong #longcovid #ApresJ20 #EM #SFC #pwME #MPE
Tammy Peru @TammyPeru
527 Followers 2K Following Educator, Optimist, Avid Reader, & Lifelong Learner. Elementary Assistant Principal. Wife & mother of two amazing daughters. Cat mom. (she/her)
Anya @Anya07693246
2 Followers 19 Following You can help us get beyond the chapter of Long covid if you just listen to what’s helping those those that have recovered #Listentolongcovidvoices 👂🏻🩺
kim🇵🇷 @cluejuice
157 Followers 2K Following
Long Covid Advocacy I.. @LCAIreland
2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
Jan @Jan88090069
0 Followers 3K Following
Justine Docwra#FBPE#R.. @buxom29
1K Followers 2K Following Back on the nursing register for my sins. No DMs please
Janis Henderson @JanisHe17496508
0 Followers 34 Following
Jo Maybin @jomaybin
2K Followers 3K Following Researcher, Writer & Coach for progressive change. Prev @TheKingsFund @BBCNews. Parenting in #neurodiverse family. Living w #LongCovid. *On social media break*
LongCOVID Patients Mi.. @pwlcMichigan
215 Followers 830 Following Patient-Centric community platform for #LongCovid patients in Michigan #longcovidawareness #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
Rajan Mathew @rajanmathew
359 Followers 3K Following Health, Fitness, Diet & Nutrition, Transport, Travel, Tourism, Positive Mental Attitude. Fairness in Life, Human Dignity & Respect !!!
Tact Law Firm, APC @TactLawFirm
32 Followers 37 Following Tact Law Firm, APC is a Los Angeles-based boutique law firm focused on assisting individuals with disability claims, personal injuries, and appellate matters.
Long COVID Patients I.. @pwlcindia
88 Followers 335 Following Community platform for #pwLC #pwME #longcovid patients in India. We are in this together. #Healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
Long COVID Patients I.. @pwlcindonesia
38 Followers 42 Following Patient-Centric community platform for #LongCovid patients in Indonesia. Part of @careconnectlc #longcovidawareness #healthequity #dataprivacy
Rachal Young @RachalYoun83061
3 Followers 17 Following Kind people are my kind. Kindness matters. I challenge everyone to do just 1 random act of kindness each & every day.
#LongCOVID Patients I.. @pwlcIreland
136 Followers 599 Following Platamh domhanda atá dírithe ar an othar do pháitform phobail do chlongCOVID in Éirinn. #longcovid #healthequity #dataprivacy. Part of @CareConnectlc
katj 🇺🇸☀️ @kakkyj
212 Followers 2K Following
Abbie @abbielouise_OT
440 Followers 744 Following Newly Qualified Rotational Occupational Therapist with DCHS, first rotation is in Older Peoples Mental Health. @DerbyOT Class of 2023 🎓 all views are my own 💭
Julia Alley @JuliaAl58080331
5 Followers 78 Following
covidCAREgroup with N.. @CovidCareGroup
165 Followers 105 Following The covidCAREgroup is connecting the dots of Long COVID through education, research & resources providing clinical insights for the long community.
Sonali Mantoo @uniqorndoc
1K Followers 1K Following Wellness junkie, yogini, Emotional Intelligence, Storytelling - Critical Care Dr/Sim educator Mt. Sinai NYC on ⏸️ writing about my #LongCovid journey,
Fewtrella @Fewtrella1
2K Followers 5K Following views my own #LongCovid #POTS #Dysautonomia #Cogcom @GivingVoiceUK winner Advocating for Cognitive Communication Disorder Post Covid
Marinae @OceanPerspecti1
73 Followers 179 Following
Long Covid Choir @LongCovidChoir
882 Followers 2K Following Singing has brought joy and friendship as we navigate the life-changing experience of Long Covid. Time to find our voice again. Join us via https://t.co/hwyYtuLHZE
The LISTEN project @TheLISTENproj
634 Followers 292 Following The LISTEN project aims to work in partnership with individuals living with long Covid to co-design and evaluate personalised self-management support.
Star💫 @Starseeker1986
2K Followers 3K Following C19 March 2022 || Life ⏸️ || Creator of Beautiful Things | Emotional Health & #longcovid Advocate 🌙 💫 🔮💎🪬 🦋🦄#unvaxed #MCAS #foodintolerances #ToriesOut
Sarah Barley-McMullen.. @SarahBarleyMc
3K Followers 3K Following Inclusion & Belonging consultant. Living with #LongCovid. JNC. Stonewall Role Model. NYA Associate. Christian. ✝️ Chair @Prideinbelper🏳️🌈 @LongCOVIDSOS team
CHRONIC Campaign @chronic_action
1K Followers 5K Following Arts Comedy & Science Social Justice Campaign • Chronic Illness & Disability • Science page ⬇️ Arts page: https://t.co/E2qSDNLEdQ🙏🏷️☕️ https://t.co/fosjDeOMYP
Covid Castaways @CovidCastaways
5K Followers 4K Following Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜“𝓢𝓾𝓻𝓿𝓲𝓿𝓮 𝓣𝓲𝓵 𝓨𝓸𝓾 𝓒𝓪𝓷 𝓣𝓱𝓻𝓲𝓿𝓮”
International Long Co.. @LCawarenessInt
3K Followers 381 Following #LongCovid • #LongCovidAwareness -- #LongCovidAwarenessDay -March 15 -- #LongCovidAwarenessMonth -March -- Get profile pic frame @ link below⬇️
Toipuminen tauolla @toipuminen
212 Followers 382 Following Latest news and science around #LongCOVID, #MECFS and comorbidities relevant to post-infectious illnesses. Posts in Finnish and occasionally in English.
Kate S @childfreeme75
654 Followers 5K Following 02.19-3wkComa DblNecrotisingPneumonia& Sepsis foundColonCancer&Endometriosis 06.19LaparoscopicAPR 01.23Metastasised to🫁Stage4 06.23LULWedgeResection 07.23Chemo
Mike Mori MD @MikeMori8
15 Followers 204 Following Japanese guy who enjoys his work as a family doctor, but also likes to take frequent holidays.
Vikram Jha @invinciblejha
3K Followers 5K Following Founder & CEO @puchodigihealth. Working towards patient Centered #longcovid research for diagnostic,care & treatment. #Healthequity
[email protected] @KLDguitaramp
2K Followers 4K Following Since 2002, KLD pay attention to supply tube amp,amp kits and assembled kits of amp, speaker grill cloth, vinyl tolex at economic way .
Covid Safe NZ Schools @too_long_covid
726 Followers 531 Following Parent and writer. Supporter and advocate. Lived experience of Long Covid. Masked up. Distancing. Cleaning the air. https://t.co/bylWYnpZbC
Jami bateman @BatemanJami
1 Followers 26 Following
Louisa @Louisa50969510
97 Followers 752 Following
funnyfemoris @aquagirl1111
172 Followers 1K Following If I were a drink, i'd be a triple espresso white chocolate nonfat mocha. .
CDM @cmulionsfan
252 Followers 469 Following 80s rock, Movie lover, Fitness, Lifetime Lions fan, The Mitten, Starbucks, Biggby!
Fran Cook @francescacook
574 Followers 1K Following 💛 Brand, digital + comms design 💛 Charities | Start-ups | Entrepreneurs 💛 Health | Feminism | Social justice 💛 Currently product designer @chaynhq
Jane זהבה @janedpop
12 Followers 139 Following
Veru Inc. @Veru_Pharma
899 Followers 218 Following Biopharmaceutical company focused in metabolic diseases and oncology
Linda Cunningham @LindaCu64529260
16 Followers 82 Following
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Long Covid SOS @LongCovidSOS
27K Followers 939 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Eric Topol @EricTopol
694K Followers 589 Following physician-scientist, author, editor. Ground Truths: https://t.co/YhatcBT0hA
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Gez Medinger @gezmedinger
20K Followers 721 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Prof. Christina Pagel @chrischirp
204K Followers 952 Following Prof Operational Research @UCL_CORU, health care, women in STEM. Member of @independentsage. Tweets personal. chrischirp at bluesky. https://t.co/nNW5zMenx2
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Prof Nisreen Alwan �.. @Dr2NisreenAlwan
82K Followers 5K Following Public Health Professor MBE. My words=my PERSONAL views. RT≠endorse. Other SM: @[email protected], nisreen.a.alwan @Threads, https://t.co/yfWKMqZjXJ
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Long Covid Support �.. @long_covid
32K Followers 2K Following UK Charity • Support • Advocacy • Research Involvement • Awareness • Education • Keeping people with #LongCovid at the centre. #CureLongCovid
Trisha Greenhalgh @trishgreenhalgh
181K Followers 5K Following Professor of Primary Health Care, Oxford. Independent SAGE. Views my own. Gravitating to BlueSky - find me https://t.co/kLX18DAWAa
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Long Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tI
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Michael A Osborne @maosbot
33K Followers 1K Following Dad, spouse, Professor of Machine Learning @UniofOxford, Co-Founder Mind Foundry, Director @aims_oxford. Bayes, Long Covid, porridge, AI must be good for humans
Stephen Davis @PlanetEarth_HD
7K Followers 1K Following Former Footballer, Electronic Engineer, Content Creator #LFC fan #longcovid
Patient-Led Research .. @patientled
27K Followers 613 Following Patient-led research and advocacy for #LongCovid and infection-associated chronic conditions!
Claire Hastie 💙 @ClaireHastie1
5K Followers 627 Following Seeking rehab, research and recognition for people with #LongCovid | https://t.co/gsQHjeF7gB | @long_covid | https://t.co/ZE5JbihOKW | #FBLC
Philippa Göranson @Bokofil
1K Followers 5K Following @ #humanities #humaniora #healthliteracy #medicalhumanities #patientsvoice #patientsunite #epatient #books #bildning Multilingual tweeting
Covid Safe NZ Schools @too_long_covid
726 Followers 531 Following Parent and writer. Supporter and advocate. Lived experience of Long Covid. Masked up. Distancing. Cleaning the air. https://t.co/bylWYnpZbC
Natalie Rogers 😷 @RogersNat70
943 Followers 1K Following Trustee of @long_covid. Long Covid is a pathological disease. Listen to patients. Be curious. #LongCovid #FBLC https://t.co/f7O31tAThl…
James Pierce @InvisibleJim1
2K Followers 3K Following Working in the drug sector. Harm Reductionist. Freelance trainer , @darc_mdx student. I also run up mountains & grow pumpkins. Barnsley. All views my own own.
Veru Inc. @Veru_Pharma
899 Followers 218 Following Biopharmaceutical company focused in metabolic diseases and oncology
Greek_Neurologist @GreekNeuro
399 Followers 589 Following MD Neurology*Greek/German*Sport*Covid Long-Hauler since 12/2020💉💉💉💉💉💉 #TreatLongCovid #FBLC
Alida Drenth @AlidaDrenth1
2K Followers 5K Following MSc Integrated Care Design i.o. | Visio Onderzoek & Zorgverbetering | Drenthe | Natuur 🌿 | ‘On hold’ door #LongCovid (mrt. ‘20🦠| april ‘22🦠 | dec. ‘23🦠)
Georgina Jones @Profgljones
308 Followers 167 Following Professor of Health Psychology, Leeds Beckett University, UK. Speciality Chief Editor - Frontiers in Global Women's Health (Quality of Life Section).
WHH Long Covid Therap.. @WHH_LCTT
66 Followers 136 Following Service dedicated in educating and supporting those within their long covid recovery within the Halton and Warrington region.
Wiley Clinical Health @WileyHealth
12K Followers 3K Following We publish Health Sciences & Medicine research and books. We’ll help you build your career and get published, and connect you with the latest articles.
Maya Lindemann @MayaLindemannRN
1K Followers 1K Following RWJF ClinicalScholars Alum, School Nurse, scientific diver/ocean lover stranded by #longcovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
a person w/ Long Covi.. @RandomNWild
905 Followers 2K Following #LongCovid from the first wave diagnosed with cancer 2 years later #FBLC
katie palmer @katiepalmerOT
130 Followers 108 Following Clinical Specialist Occupational Therapist in neurology and neurosurgery in UHW
Long Covid Ireland Su.. @LCISUPPORT
281 Followers 62 Following This is a support group for people suffering from long covid
Sophie @slpglondon
1K Followers 1K Following One of #MillionsMissing - #LongCovid since September 2020 - Health is Wealth - 🕊️🍉 #StopArmingIsrael
Laura Foster @LauraFo54700809
162 Followers 217 Following Advanced Critical Care Practitioner, NHS. PMRAFNS. Living the long covid nightmare Dabbling in 🏋🏼♂️ Oly lifting
elle W @elleW902
4K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Bohumil Rajchl @BohumilRajchl
1K Followers 474 Following 🎓 Certifikovaný Kouč pro citlivé lidi ◾️Pomáhám citlivým lidem ke spokojeným vztahům, zvládat rozchody a většímu seběvědomí.
limehouse @limehou11657626
1K Followers 882 Following Contracted covid19 december2020 and now battling the new disease LONG COVID, i am reaching out for help. These views have nothing to do with my employment.
LongCovidPodcast @longcovidpod
5K Followers 4K Following Podcast hosted by Jackie Baxter, bringing together lived experience, medical experts, researchers & solidarity on this lonely #LongCovid journey #FBLC
Emma Reinhold @DrEReinhold
7K Followers 4K Following Former GP/Research/Advisor on #EDS #MCAS #MUS #fatigue #EDI Disabled🌈ally #NHS #gardening #miniatures Often irreverent Never disrespectful Views are mine, obvs
Rhoda Watkins 👣 @RhodaWatkins10
3K Followers 2K Following Tracker, Instructor, Search & Rescue specialist. Managed by: 🇬🇧Jane Compton [email protected] 🇺🇸Seamus Lyte [email protected]
Jacqueline H #FBLC @jackpack1968
869 Followers 712 Following #LongCovid #CareforLongCovid #CountLongCovid #TreatLongCovid #FBLC Longhauler, ill since April 2020. Long Covid is your worst nightmare. WEAR A MASK 😷😷
Long-Covid Brain Fog .. @fog_post
742 Followers 124 Following Long-Covid Brain Fog Severe, Trying to medically understand how to recover / Before the covid without pathologies, 30 years old, athlete, worked with literature
Long Covid Canada @LongCovidCanada
4K Followers 5K Following Canada’s 1st #LongCovid advocacy group /// BIPOC-led // founded June 11 2020 // #FBLC // email: [email protected]
KazzaCookie @CookieKazza
226 Followers 225 Following Pharmacist with PEs +Long Covid .Views my own.Retweets not always endorsed.#LongCovid #FBLC #bloodclots #vte #ThrombosisUk #antiphospholipid #chronicillness
suzy bolt yoga @suzybolt
825 Followers 33 Following Yoga for Covid Recovery specialist. long hauler herself, currently doing well in a new normal. loves laughing, learning and creating community.
Mike @LongHaulerBear
1K Followers 280 Following 50, Covid Long Hauler since 2020. I mostly post about Covid, Long Covid, ME/CFS, gut microbiome, scientific research.
Covid Aid @covidaidcharity
944 Followers 885 Following Covid Aid was the UK’s national Covid-19 charity, working as one to bring Covid-19 support to all.
Ruby E...w/ LC & ME �.. @RubyEngel1
1K Followers 2K Following Surviving Covid is NOT the same thing as recovering from Covid #FBLC #LongCovid #LongHaulers #CountLongCovid #MECFS
Linda Bauld @LindaBauld
40K Followers 790 Following Prof of Public Health @EdinburghUni and Chief Social Policy Adviser @Scotgov - https://t.co/d8C6I7ZygN . Director @SPECTRUMRes & Co-Director @BehaviourRes_UK
C19 Recovery Awarenes.. @c19recovery
1K Followers 123 Following Established in May 2020, in affiliation with Long Haul Covid Fighters. C19 Recovery Awareness serves as a global hub for #longcovid news research & resources.
Covid Persistente Chi.. @covidpersistecl
750 Followers 204 Following Tuvimos COVID y desarrollamos la ENFERMEDAD COVID PERSISTENTE. ¡Comparte tu historia! por acá o a [email protected]
Lorna 🌈 @Lornaam73
186 Followers 306 Following Proud NHS MH nurse, wife, dog-mum to Tank the Frenchie. Views my own.
Michael Short @Yorkshirelad27
457 Followers 549 Following Covid positive on 18/04/2020 on my #longcovid journey #FBLC now diagnosed with #me #cfs post Covid 19 virus. A life long follower of #marillion
Kristen #CovidLongHau.. @Kristen75769854
8 Followers 21 Following 👩🏭Bench Jeweler⚒⛓💍 🧫COVID LONG HAULER - 6/19/2020 ⚾ Baseball Mom ❤
Emma Linton @emmalintonPT
160 Followers 201 Following REACT Manager within UHCW’s Emergency Medicine Group. Physiotherapist & proud AHP. Passionate about improving pathways for older people & making a difference!
Helen Hughes @helenh49
5K Followers 5K Following Chief Executive of Patient Safety Learning. Passionate about patient safety (obvs) & social justice. Feminist. Love Wales & Penge. Views my own etc
Dagmar Divjak @dagmardivjak
2K Followers 2K Following Professorial Research Fellow @artsatbham. Editor of Cognitive Linguistics. Working with @ooominds to understand language and optimize language learning.
LongCovidNYC @LongCovidNYC
2K Followers 2K Following Got Covid in Spring 2020 in NYC and never got better. #LongCovid #CountLongCovid #WearaMask #GetVaccinated #LongCovidKids #FBLC #TreatLongCovid
Jasmine Hayer @JasmineHayer
3K Followers 1K Following #LongCovid since March 2020. Writer. Advocator. On the biggest healing mission of my life. Mainly on IG: @Jasminehayer_ Blog: http://mylongcoviddiaries.medium
@kelsveil #FBLC @Kelsveil
2K Followers 986 Following Prior MARAC research representative for Domestic Abuse. | My views are my own. Campaigning for biomedical research into LongCovid #Longcovid #FBLC
Elly Bailey @ellbail
1K Followers 2K Following 🇵🇸 Welcome to the Recumbent Renaissance. Freedom’s just another word for nothing left to lose. Amor fati. Dercum’s/ME/longcovid. Remission Biome R50
Nichole Yam @nicholeyam
519 Followers 953 Following Occupational Therapist with @NHSBartsHealth @RoyalLondonHosp // All views are my own
Lords COVID-19 Commit.. @HLCOVID19Com
3K Followers 144 Following News & information from the House of Lords COVID-19 Committee, looking at #LifeBeyondCOVID. Produced by staff on behalf of the committee.
🚨 WHO chief urges immediate action to tackle ‘devastating’ long Covid 🚨 'It is critical for governments to invest long-term in their health system and workers and make a plan now for dealing with #LongCovid' theguardian.com/society/2022/o…
Another great opinion piece from colleague, Penny Gillies: Treating patients as individuals is key to good healthcare during hard times… pressandjournal.co.uk/fp/opinion/489… via @pressjournal
Found out yesterday that I can stand still for 13 minutes in a quiet, cool room before completely, massively, ugly passing out (TTT). On the one hand, good to know. On the other hand, what is this life? #LongCovid #NotRecovered
A very welcome intervention from Dr Tedros 🌟 “Second, the best way for people to prevent long Covid is to avoid infection…” Vaccines are crucial of course - but are they enough? theguardian.com/society/2022/o…
I highly recommend this paper, testimonies from #LongCovid from Apr-Nov 2020, by @RecoveryCovid19 Another project led entirely by people by Long Covid while they were ill So much hasn't changed in 2 yrs, these stories could have been written yesterday
Indeed - delighted and proud. #LongCovid #invisibleillness great team to bring grassroots online community research to the table
Indeed - delighted and proud. #LongCovid #invisibleillness great team to bring grassroots online community research to the table
Delighted to say our research paper on invisibility & epistemic injustice has been published in Health Expectations @WileyHealth onlinelibrary.wiley.com/doi/10.1111/he… Thank you @SHCFundraising for help make this happen Thank you to all those that submitted their experiences of #LongCovid 🙏
The founder of a long-COVID recovery support group @RecoveryCovid19 has called for more help for nurses recuperating from lingering symptoms of the illness. Full story⬇️rcni.com/nursing-standa…
contributing to post-covid awareness. thank you for all your hard work @RecoveryCovid19
We're sharing Barbara's story of recovery in Sweden covid19-recovery.org/stories/barbar… Unfortunately after and initial suspected infection back in Feb 2020, Barbara then fell ill again in Nov 2020 after just starting to feel well. Barbara's recovery is on-going. #LongCovid #PatientStories
Published today – a stunning piece by @sarahsalway on recovering from Covid & finding solace & meaning in the park & the trees close to home. #covidwriting #covidrecovery #LifeAfterCovid19 @RecoveryCovid19 @Editors_MIR @GoldsmithsEng @doctor_oxford
This is a must-read piece about coming back into the world after Covid-19 and finding comfort and meaning in the natural world. Essential reading for our times! bluedoorpress.co.uk/2021/01/27/lea…
@Nhla1576 @rcr_pereira @phindigp @LongCovid @RecoveryCovid19 Happy to share my story if it helps others who are struggling.
@firefly_fan si, hi ha diferents iniciatives similars És imprescindible el relat per entendre el q està passant gràcies🥰
Many 'long Covid' sufferers unable to fully work six months later: #LongCovid @long_covid @RecoveryCovid19 @LongCovidSOS theguardian.com/society/2021/j…
@RecoveryCovid19 @SHCFundraising Glad to lend our support to such vital work.
So much has been achieved already though #LongCOVID advocacy. Ongoing challenges exist and collaboratively so much can continue to be achieved with all these groups - continued list 👉 @COVID19Valencia @RecoveryCovid19 @COVID19 @patientled @LongCovidID @CanCovid
Now @mlaba_lwazi informs us of the situation in South Africa, with concerns and points on Long Covid and it's impact on other diseases, highlighting further there are so many questions all over the world. Thank you for sharing with us, Lwazi. #LongCovidForum #CountLongCovid
Now @Know_HG describing what it's like to live with Long Covid. Detailing how patients found out they weren't alone, how we came together, formed groups and represented ourselves. What does recovery look like? Whatever it looks like, patients want to be involved #LongCovidForum
Today is my #LockdownBirthday and I’m so grateful to my amazing boyfriend who has done everything he could to make it the best day possible. Love you Carlos 🥰
Oh Amy, you have given me so much encouragement over the last few months and always say the right things. My heart broke to watch and hear your struggles, sending you huge hugs from 🏴 to 🏴 my second home. 🤗
GP Amy Small says she lost her job after experiencing so-called long Covid. She is calling for a "one-stop shop" that offers specialist support and treatment. Read more ➡️ bbc.in/3nhyOvR
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