CA Chronic Care Coalition @CAChronicCare
Unique alliance of more than 30 leading consumer health organizations, physicians and provider groups representing Californians living with chronic condition. californiachroniccare.org Sacramento, California Joined April 2015-
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Thank you @RichElliotSax for your amazing contribution to our Stars of Advocacy Gala honoring exemplary patient advocates! Your generosity will make an impact in our continuous efforts to improve the lives of Californians with chronic conditions. We're grateful for your support🌟
📢 Advocacy for Obesity Care in CA! On 2/24/24, our President @estelamata & Vice Chair @CAChronicCare & Dr. Wesley Mizutani Boardmember of @patientaccess testified in support of @SenBradfordCA #SB1008, a bill to expand health insurance coverage for obesity treatment options.
Thank you @GBguitar, for your amazing contribution to our Stars of Advocacy Gala honoring exemplary patient advocates! Your generosity will make an impact in our continuous efforts to improve the lives of Californians with chronic conditions. We are so grateful for your support🌟
Thank you Assembly Health Committee member @HeathFloraCA for your aye vote on #AB2180 on Tuesday to ban copay accumulator policies, so that patient assistance programs actually benefit patients, not insurance companies! #MSActivist @CAChronicCare
What an amazing celebration! ✨
What an amazing celebration! ✨
Big thanks to the Assembly Health Committee for backing #AB2180! Copay accumulators unfairly hit patients with surprise costs, hindering access to vital treatments. California is moving closer to a health care system that truly supports those in need. @asmakilahweber
Honoring our very own Carson Knight at the California Chronic Care Coalition Stars of Advocacy tonight! #bleedingdisorders #chronicdisease #advocacy #starsofadvocacy @CAChronicCare
.@SecBecerra, the patient community is united and firm: copay accumulators harm patients and get in the way of access for those with serious and chronic conditions. Together we represent millions of patients and we urge you hear our voices! allcopayscount.org/about-us/ #AllCopaysCount
If you are experiencing issues with your Health Plan, contact the DMHC Help Center. For more information on how the DMHC’s Help Center can assist you, visit: DMHC.ca.gov. #DMHCHelpCenter #HealthHelp #DMHC
Thank you @RepBuddyCarter for questioning @HHSGov’ unwillingness to enforce the court’s ruling on #CopayAccumulators. PBMs are pocketing $$$ from copay assistance in employer sponsored plans + marketplace plans. Enforce the 2020 NBPP so #AllCopaysCount for patients. @SecBecerra
Did you know the Administrative Simplification Enforcement and Testing Tool (ASETT) is free to use for filing a complaint against a #HIPAA covered entity for potential violations of #AdminSimp standards? Learn more here: go.cms.gov/49aEjUz
Have you experienced unexpected side effects or other problems with @US_FDA-regulated products? You can report side effects and problems through the @FDAMedWatch program by phone or online. Learn how: fda.gov/safety/medwatc…
For more information on your health care rights, visit: bit.ly/2JrpNwp #HealthCareRights #HealthPlanCoverage
CA Advocates! California needs a Rare Disease Advisory Council. Join California Chronic Care Coalition and @RareDiseases in supporting #AB2613 to give voice to the 1-in-10 Californians living with a rare disease and their families.
We’re a proud supporter of Cancer Prevention & Early Detection Month! Preventing cancer or detecting it early can lead to #BetterOutcomes. Learn more & raise awareness: bit.ly/3VFUuG6
Thank you @SenToniAtkins and @Scott_Wiener for your support!
Thank you @SenToniAtkins and @Scott_Wiener for your support!
Urgent! #copayaccumulator policies are causing immense hardship for families like the Coad family. Please share and join the movement to make All Copays Count in CA. 💪🏼#AllCopaysCount, #CopaysCountinCA #PatientAdvocacy #AB2180 chroniccarealliance.org/accumulator-pr…
Today’s actions build on the steps HHS and @CMSGov have taken over the last year to protect health coverage during renewals which have helped increase auto-renewal rates nationally from ~36% in prior months to 47% in December 2023 and 46% in January 2024. bit.ly/3IWOiCk
Regular health screenings can prevent or detect many conditions. #WomensHistoryMonth is a great time to talk with your doctor about preventive services — like mammograms and cervical cancer screenings. Find the full list of covered services: go.medicare.gov/3TcjD8G
Tell PBMs to stop double dipping into copay assistance! Copay assistance is designed to support treatment for patients in need. @AsmRodriguez53, @MSantiagoAD54, @Pilar4CA, @asmakilahweber please support #AllCopaysCountCA legislation #AB2180 & put patients first!
Kathleen Arntsen @KathleenArntsen
5K Followers 5K Following President & CEO of Lupus and Allied Diseases Association. Passionate advocate, collaborator, strategist, communicator. Empowered lupus & autoimmune warrior.
Perry Communications .. @PerryComGroup
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Health Access CA @healthaccess
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HemophiliaCouncilCA @HemoCouncilofCA
644 Followers 461 Following We promote access to care and advance the quality of life for people with bleeding disorders through advocacy, education, and outreach.
Marguerite Casillas @MargueriteC_MS
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wrh0p62xo7cffof @yuqczl9xx3uv9a
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Anthony Rendon @RendonAD62
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Kathleen Arntsen @KathleenArntsen
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Perry Communications .. @PerryComGroup
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CA Assembly Democrats @AssemblyDems
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Senator Scott Wiener @Scott_Wiener
101K Followers 999 Following CA State Senator. Chair, Budget Committee. Former Chair, Legislative LGBTQ Caucus. Housing/transit/climate/criminal justice reform/health. Democrat.🏳️🌈✡️
Kevin Mullin @kevinmullin
12K Followers 8K Following U.S. Rep. (D-CA15) Defending Democracy, Climate Resilience & an Economy for ALL. Twins Dad. Hard of Hearing. GS Warriors🏀/SF 49ers🏈/SF Giants⚾️/Retired DJ🎧🎤
Assemblywoman Rubio @AsmBlancaRubio
6K Followers 429 Following Asm. Rubio represents the communities of Azusa, Baldwin Park, Bassett, Covina, Duarte, Glendora, Irwindale, Monrovia, Charter Oak and West Covina.
Alex Vassar 📚 @AlexCVassar
10K Followers 4K Following Husband, father, man of letters. Also a park district chair & #CACapitol alum who works at the @CAStateLibrary and is a big fan of learning from history. 🇵🇦
Lynne Kinst @lynnekinst
500 Followers 1K Following Grateful recipient of grace, wife, mom, Exec Director for @hemocouncilofCA, Founder @DuranKinst - topics vary, opinions are mine.
Miguel Santiago @MSantiagoAD54
7K Followers 1K Following Asm. #AD54, Husband to Rad Wife + Dad to 2 kids & 2 dogs. Free community college, public banks, 💯 rent asst. & no evictions, Medicare 4 All. Progressive Dem.
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David “Sign the DSA.. @theehrnerd
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Senator Toni Atkins @SenToniAtkins
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Obesity Care Week @ObesityCareWeek
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44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
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182 Followers 99 Following The All Copays Count Coalition is 80+ patient and provider orgs working to ensure that all copays made by or on behalf of patients for medications are counted.
Lupus Foundation of A.. @LupusOrgSoCal
239 Followers 139 Following We provide education programs, services and community outreach for those affected by lupus in the Southern California region. See more: @lupusorgsocal on FB/IG
National Public Healt.. @NPHW
28K Followers 5K Following The American Public Health Association (@publichealth) will celebrate the 30th National Public Health Week April 7-13, 2025. See you for #NPHW!
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813 Followers 209 Following OUR MISSION: To represent and empower Pharmacists & Pharmacy Technicians in Health-systems to promote wellness, patient safety and optimal use of medications.
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HIMSS @HIMSS
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Scott Peters @ScottPetersSD
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Cystic Fibrosis Resea.. @CFRI_CureCF
2K Followers 2K Following CFRI funds research, provides educational resources and community support, and spreads #cysticfibrosis awareness. #curecf. For more info, visit https://t.co/H2fMOwqQ8c.📢 Advocacy for Obesity Care in CA! On 2/24/24, our President @estelamata & Vice Chair @CAChronicCare & Dr. Wesley Mizutani Boardmember of @patientaccess testified in support of @SenBradfordCA #SB1008, a bill to expand health insurance coverage for obesity treatment options.
Honoring our very own Carson Knight at the California Chronic Care Coalition Stars of Advocacy tonight! #bleedingdisorders #chronicdisease #advocacy #starsofadvocacy @CAChronicCare
Yesterday, Dr. Mizutani was also honored by @CAChronicCare at their 2024 Stars of Advocacy Gala for his commitment to serving, educating, and empowering others while advocating for patient-centered care.
Intellectual property rights are the backbone of biopharmaceutical inventions that improve the quality – and outlook – of patients’ lives. Let’s continue to support policies that promote innovation and access to life-changing medicines. #WorldIPDay2024
Let’s tune in & support this vital conversation discussion on the undeniable impact of sex & gender on autoimmune diseases. @SWHR, @LupusTherapuet, @Looms4Lupus, and @UVA addressing the unmet needs in autoimmune disease care. #AutoimmuneAwareness #HealthcareInnovation
Sex and gender influences in #autoimmune disorders are undeniable. Join SWHR @LupusTherapuet @Looms4Lupus @UVA as we discuss how research, clinical, and policy stakeholders can address unmet needs in autoimmune disease care: ow.ly/hzvT50Rh1pW #SWHRtalksAutoimmune
Applications are OPEN for Camp Hemotion 2024! hemofoundation.org/programs/progr…
We are excited to share that yesterday the Assembly Health Committee unanimously voted to support AB 2180 with a vote of 16-0! Lynne Kinst, E.D. of Hemophilia Council of California, was one of those providing powerful testimony in support of the bill. Check out the video!
.@SecBecerra, copay accumulators are standing in the way of patients affording their prescription medications. Just hear from Tami, a patient with psoriasis who continues to be impacted by copay accumulators. @HHSGov must enforce the 2020 NBPP: triblive.com/opinion/tami-s…
Meeting w/ Minority Leader Hakeem Jeffries staff to talk about reducing patient costs @coreygreenblatt @StevenNewmark @AngusWorthing @HarryGewanter @estelamata and other patient and provider groups. @Looms4Lupus
Applications are OPEN for Camp Hemotion 2024! hemofoundation.org/programs/progr…
I am deeply honored and humbled by this special dedication. For 20+ years, the Entrepreneur Educational Center, Inc. has been leading change and strengthening our communities by nurturing minority entrepreneurship. I am proud to see that work continue in this new training center.
Join us in cheering on the 39 Team End ALZ runners 🏃 participating in today's #BostonMarathon in support of the fight to #ENDALZ!
We are excited to announce our new partnership with @synapticure, a leading telemedicine focused on improving the lives of people and caregivers living with neurodegenerative diseases, to expand access to care for people living with #ALS. Learn more: bit.ly/synapticure-pa…
Protect yourself and your family by staying up to date with ALL recommended #vaccines. Learn more at: ow.ly/awPY50ReXyR #GetVaccinated
OPINION: Multi-cancer early detection screening could change how Nevadans face cancer thenevadaindependent.com/article/opinio…
Today is International Maternal Health and Rights Day and the kickoff of Black Maternal Health Week! The theme for the week is “Our Bodies STILL Belong to Us: Reproductive Justice NOW!” #BMHW24
Thank you @SenToniAtkins and @Scott_Wiener for your support!
Pharmacists are a critical part of our state's health care infrastructure. I joined @CAPharm to discuss issues impacting the profession, and thank them for providing a variety of essential services – from #COVID19 vaccines to critical #ReproductiveCare and everything in between.
Join Men with Bleeding Disorders at Dave & Buster's with HFNC and Octapharma. Guest blood brother Seth Rojhani will join you as you rap, eat and play with 135 game cards and a virtual reality gaming package! There is room for 20 in this Men. bit.ly/3wsTQ4r
The AIDS Institute happily joins 34 other patient organizations to celebrate Biden Administration’s new rule to help protect patients from short-term, limited-duration health plans with risky, low quality health coverage. Read the joint statement at ow.ly/Tqwj50R4uYS
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